Heart and Lung Transplant Notification User Manual
Contents
1. e ne a ae nai viele Peer 1 Please take note that you must fill in all the compulsory fields marked with l Ol ell OE Centre Provider 1 Fill in reason to request delete Ab Transpamcenmename paana a maamme 5 een s adaa then click the Request Delete coon button 2 Date of Transplant 09 03 2010 ddimmiyyyy eos rote Saas i iratori ee 2b Follow up Hospital Name Institut Perubatan Respiratori HKL 4 chartumber ais uns use Other ID document number Specify document type if others Mis e Other specify 26 02 1988 _ Date of Birth Estimate If the exact date is not known please enter 01 07 yyyy Education Level Not ee Others Date added to wait list dd mmiAyyyy State of diramas Wilayah Persekutuan Labuan Sabah 999 i Recipient Post Tx clin pt status rx Donor Picture 1 18 Heart amp Lung Transplant Notification Request to delete notification Note Only manager can delete a record that has been requested to delete by user IF user has request to delete wrong form user can call the manager to undo the pending request delete Follow Up Section Add second or more Heart amp Lung Tx Click on the Add button 1 to add new Follow Up Cee _ Picture 1 19 Heart amp Lung Transplant Notification List Add new Follow Up Institut Jantung Negara Click on the Add button a to add new Follow Up 14 National Transplant Registry NTR for Heart amp Lung Web Applica2. User s Manual for National Transplant Registry NTR for Heart amp Lung Transplant Web Application Tel 603 2681 5948 E mail ntr acrm org my Website https www macr org my entt National Transplant Registry NTR for Heart amp Lung Web Application Version 1 0 Table of Contents 1 0 NTR WEB APPLICATION MODULES cccscccscccscccccccccccccccccccccccces 3 1 1 Online data access and Remote data capture c cc ceecesescceccceeeeseeeeeeeeeeeeaees 3 DR cl SUTIN UC pO cece oh dares easiest a toa dene esa all ordenm ae neea teas dente 3 leo ala lanGal CSc cececiecu cue ertei onto ansanouecasaena mies aad noes teneaees guneieeaeeaey 3 MSV ADS NING Gt E E E A EEA IEE EE EA E E AA EA A 3 PI AT e C Ono ea EE O EAE 3 2 0 SECURITY oeenn EEEE E EEEE OA 4 21 Policiesand Practices as TOONS sieer parena aa a ETARE 4 3 0 HOW TO ACCESS NTR WEB APPLICATION ccsccccsccscccccsccscccees 5 4 0 STEP BY STEP PROCEDURE IN USING NATIONAL TRANSPLANT REGISTRY NTR FOR HEART amp LUNG TRANSPLANT WEB APPLICATION 9 Ar Heare Cune rans PLAC era i inenedateuaindstasiaven 9 Al INAV NS AOL MOO MD Ais aiee E 9 ede IN MAMI IY MTU es Sc erate sine seats cara Sina est esc ees eee eae eee ae 10 4 1 3 New Patient Data Entry vies cscccusssccsesicscataesiscotsvcaceerianeseuavenacalanseieeivioenccuates 10 4 1 4 Register New Heart amp Lung Transplant Patient cc eeeeeeseeeeeeeeeeees 10 Ale Ea OCES oraa a
3. Excel xls A dialog box for saving the data download or open the data download will appear as shown in Picture 1 32 bellow Name 7x Notification 20100421 165032 _ 74 50_KBi xls Type Microsoft Office Excel 97 2003 Worksheet From localhost While files from the Internet can be useful some files can potentially harm your computer IF pou do not trust the source do not open or save this file What s the risk Picture 1 32 Dialog box 20 National Transplant Registry NTR for Heart amp Lung Web Application Version 1 0 4 1 8 Change Password To change the password click on the Change Password menu toolbar Picture 1 33 Change Password page Fill in the details and click the Submit button Picture 1 34 Result page for Change Password User can use the new password for the next login Picture 1 35 Help Tab Menu The Help tab menu consist of the following information 1 Contact Use 2 Data Standard 3 User Manual This information also exist in the login page 4 1 10 Logout To logout from National Transplant Registry NTR web application click on Logout menu bar Picture 1 36 Logout Menu Bar 21 National Transplant Registry NTR for Heart amp Lung Web Application Version 1 0 5 0 HELP DESK SUPPORT Note The NTR User s Manual is subjected for amendment in future for better quality of NTR For assistance in completing your application or if you experi
4. amp Lung Tx Notification different tx date from the existing record click on the 4 5 See aes Rae CHa Add second or more es notification Notification Follow Up Section Section Add second or more Heart amp Lung Tx noe Add new follow up pp Back to New Patient Registration Picture 1 15 Heart amp Lung Transplant Notification List In the Notification list there are two sections which is the Notification Section and Follow Up Section Each Notification can have multiple Follow Up 12 National Transplant Registry NTR for Heart amp Lung Web Application Version 1 0 Notification Section Refer Picture 1 15 Add second or more Heart amp Lung Tx To add second or more notification click the blue ADD button General information about the patient details are automatically entered base on the first registration and can only editable in the patient s form Refer to Picture 1 20 Patient Information Pt Status Rx Donor a General information No 1 3 5 6 7 Overiaocmennmr is auto entered from the first Specify document type if others registration See mun cryersoiormeeny RER trang 26 02 1988 I Date of Birth Estimate Age At Date of birth dd mm yyyy Gender oo If the exact date is not known please enter O1 07 yyyy Transplant Ethnic Group Indian Islam Single Married Widowed Divorced Not Available Uneducated Primary Secondary Tertiary Others specify Unknown Not Avail
5. CCD NCPR Breast ADCM MyCARE NOR NUR Photo Gallery ASSOCIATION OF CLINICAL REGISTRIES MALAYSIA ACRM PERSATUAN REGISTRI KLINIKAL MALAYSIA Level 3 Dermatology Block Hospital Kuala Lumpur Jalan Pahang 50586 Kuala Lumpur Malaysia Phome 603 4044 0815 Fax 603 4043 9661 Email contacti acrm org my 4 Click on the NTR link and the NTR website will be displayed as show in Picture 1 1 or can access to NTR Website at http www mst org my ntrSite index htm National Transplant Registry NTR for Heart amp Lung Web Application Version 1 0 NATIONAL TRANSPLANT REGISTRY ed The National Transplant Registry NTR collects information Sponsors about patients who had undergone organ or tissue transplantation The information allows us to estimate the National Transplant magnitude of transplant activity in the country Such KO EREE iain information besides being useful to practitioner of eet ee A E transplantation is also useful in assisting the MOH Non MOH Governmental Organizations private providers and industry in the planning and evaluation of transplant services Clinical de ornare 8 Sth Report of the National Transplantation AR Registry 2008 ii Click here Malaysian Society of Transplantation lt a Publication from NTR available for Download Fourth Report of the National Transplant Registry 2007 Major Industry Sponsors Online Data Access ATOM TRANSPLANT REGISTRY A Institut Jantu
6. Version 1 0 To view Follow Up record click on the blue View icon la on the Follow Up section Please take note that you must fill in all the compulsory fields marked with Name of reporting center name of f Te E Institut Perubatan Respiratori HKL Follow up care provided by Not available 3 Dateoffollowup 24 04 2010 Patient 21 04 2010 dd mmiyyyy Living Cause of Death Code E specify O O Number of transplant related i hospitalizations b ii Hospitalized for rejection b iii Hospitalized for infection If yes indicate areas of noncompliance gt 1 Immunosuppression medication sss C Patient unable to afford immunosuppression medications Other Specify Other therapeutic regimen 4 Functional status at follow up Not available Employment status Not available Other Specify Patient ff clin Tx umm Ty auon Jf ate Picture 1 22 Follow Up View page To update Follow Up record click on the blue Update icon 44 on the Follow Up section rs or click edit button on the View Page Picture 1 22 Click save button after update the notification To request delete notification record click on the blue request delete icon iB Fill in the Reason for request delete and click the request delete button iS SSS Please take note that you must fill in all the compulsory fields marked with Reason Request Delete a Others specify _ _ _ _ _ _ _ f then click the Request
7. simply close the browser window when you wish to end the Web Application session National Transplant Registry NTR for Heart amp Lung Web Application Version 1 0 3 0 HOW TO ACCESS NTR WEB APPLICATION 1 Register the centre as Source Data Provider with NTR Registry contact NTR Manager at Tel 03 2681 5948 or email ntr acrm org my 2 Fill in the authorization list form for the purpose of access control and sign the security policy form to receive a username and password 3 Access to ACRM Website at http www acrm org my P About ACRM gt EXCO Constitution Affiliated Databases Registers Renal Diahysis Renal GhSLeE Transplant National Eye Database Neonatal Cardiovascular Trauma Diabetes Medicines Devices News amp Events gt Meetings Conferences Publications Bibliography Links Online Registration gt ACRM Mailing List pn 2007 v e Newsletter 2nd Issue i te a Sa Wisttor number 037808 since 8412 2005 Clinical Databases News amp Sys Welcome to ACRM The ACRM Association of Clinical Registries Malaysia was established for the purpose of facilitating the set up and maintenance of clinical registries and databases in the country Registry databases include information concerning demographics diagnosis treatment history and outcomes A variety of output can be generated from the information collected In Malaysia however there have been a lot of debatable
8. to user s mobile phone User then types in the Auth Code before gaining access to the system 8 Key in the authentication code received via SMS You are about to gain access to the National Transplant Registry NTR Web Application By proceeding you are agreeing to maintain the confidentiality of all information made available to you through this application Any unauthorized access use and or disclosure of information shall be construed under the laws of Malaysia and any action instituted pursuant to the terms of the Confidential Rule Agreement as set forth in the Governance Manual of the NTR shall be brought in the Court of Malaysia Actions may include but not limited to loss of access privileges an action for civil damages an action for criminal charges and or discijpb action including but not limited to suspension or dismissal The security of your data is of utmost concern to us We practice unauthorised access and interference of transactions and data Read mo Key in authentication code received via sms Picture 1 5 Authentication page National Transplant Registry NTR for Heart amp Lung Web Application Version 1 0 9 The next page allows the user to select the Heart amp Lung Transplant application 1 HEART amp LUNG TRANSPLANT Picture 1 6 Application selection page Heart amp Lung Transplant National Transplant Registry NTR for Heart amp Lung Web Application Version 1 0 4 0 STEP BY S
9. Delete 3 Date of follow up 24 08 2000 S O button Patient b ii Hospitalized for rejection If yes indicate areas of noncompliance gt 1 4 Functional status at follow up Not available Employment status Not available Patient clin tx amm ty avr Jf att Picture 1 23 Request to delete page 16 National Transplant Registry NTR for Heart amp Lung Web Application Version 1 0 4 1 5 Patient List Picture 1 24 Patient List Tab Menus In this page user can view and search for the patients records within the user s centre instruction To register a new patient please click here To update existing patients please click on a icon below in the next page that appears click on the 7 Whole word 5 m 1 Key in one of Whole word 5 me ail i lt thepatient information ey FIND Show All rA Select the i 3 Click FIND button ts 4 Click Show All button corresponding filter to start searching to reset searching for better search a Patient Information E el Picture 1 25 Patient List Search page In the Search section search the patient by filling in the different selection criteria then select the filters for easy searching and click the Show button to start searching Result will be shown in the Patient List Click the Show All button to reset the searching Please refer Picture 1 20 To View Update Heart amp Lung Transplant
10. TEP PROCEDURE IN USING NATIONAL TRANSPLANT REGISTRY NTR FOR HEART amp LUNG TRANSPLANT WEB APPLICATION 4 1 Heart amp Lung Transplant Upon selecting Heart amp Lung Transplant application link on the application selection page user will be directed to Patient List lt By Range Whole word S Whole word 5 Whole v nord 6 Whole word S Equal to S Whole word S 2 wy or A m lt lt aaae FIND Show All gt V sy ae B Ben Picture 1 7 Patient Lists for Heart amp Lung Transplant 4 1 1 Navigation Toolbars On top of Heart amp Lung Transplant page there are 8 menu navigation toolbars which include 1 Main Menu ll Patient List tii New Patient Data Entry IV Statistics V Data Download Vi Change Password Vil Help Vill Log Out Picture 1 8 Menu Navigation toolbars for Heart amp Lung Transplant User s can only view parts of this menu navigation toolbars depends on their group that has been assigned to them National Transplant Registry NTR for Heart amp Lung Web Application Version 1 0 4 1 2 Main Menu Navigate to Main Menu See Picture 1 6 4 1 3 New Patient Data Entry Before registering a patient please verify that patient has not been registered in the system before by clicking on New Patient Data Entry tab teens es ETTORE sina oe ononnns Picture 1 9 New Patient Data Entry Tab Menu 2 Select filter for better search m 4 characters
11. a E a Masmsnuete ns caleateeest 17 WO Sra E aena Gods E E ees 19 Beds MACAO WHOA d eee E 19 Alko Chanot TASS wordon eentuctarnsavan Gacueeareeeptecteneeeeaeee 21 EE cl eee een eee E E mete ne ene em ee eee mete eevee 21 4 1 10 LOS OO unsere me ene erate een Reena nn ea ne re ane Routt a ere Ane te Sere ae 21 50 HELPDESK SUPPORT cascssecstesacs Sisescessarestcaatssea ica riesisdiecsiesana Sscuacistieastiarauiiiieds 22 6 0 NATIONAL TRANSPLANT REGISTRY NTR FOR HEART amp LUNG TRANSPLANT DATA ENTRY PROCESS sidssessssscccdacssevcsccsscessdeccoccaatenctecacssevcaseenceciace 23 National Transplant Registry NTR for Heart amp Lung Web Application Version 1 0 1 0 NTR WEB APPLICATION MODULES 1 1 Online data access and Remote data capture Each SDP is given right to access its own data and is able to enter data remotely at its site via the NTR Web Application 1 2 Real time report Reports are generated on a real time basis based on data entered via the online data access and Remote data capture module 1 3 Data Standard These documents contain definition of all variables collected in all the NTR registries 1 4 Maintenance This module allows user to change their password Users are encourage to change their own password after every three months for security reasons 1 5 Access Control Only authorized users can gain access to a system Depending on the role of user different users have different access rights to the application 1 e some ma
12. able Malaysia Others specify Not available Others speci Not available iv Recipient Pre Tx Clin Pt status Rx Donor Please click here to save the data entered Beef Picture 1 16 Heart amp Lung Transplant Notification Add second or more notification To view notification record click on the blue View icon Le Please take note that you must fill in all the compulsory fields marked with Transplant Centre Provider Number ca Institut Jantung Negara Other Specify 09 03 2010 daimmiyy Institut Perubatan Respiratori HKL Recipient Pre Tx Clin Pt Status Donor ALL j 26 02 1988 _ Date of Birth Estimate if the exact date is not known please enter O1 07 yyyy Not Available dd mmiyyyy Wilayah Persekutuan Labuan Sabah Malaysia 9999 tus Not Working Reason Unknown Post Tx Clin Pt status Rx Donor AUDIT a 23 pe SS g SE A IREMI 7 ATE Recip Edit Picture 1 17 Heart amp Lung Transplant Notification View notification 13 National Transplant Registry NTR for Heart amp Lung Web Application Version 1 0 To update notification record click on the blue Update icon 44 or click edit button on the View Page Picture 1 17 Click save button after update the notification To request delete notification record click on the blue request delete icon iB Fill in the Reason for request delete and click the request delete butt ni e
13. at MyKad MyKid field at first otherwise find any other one of the fields below pd Please key in with dash Whole word S aa iar 1 Key in one of the SY case Key in mining Patient information LL ll apes ones an 4 Whole word S wif Please key in minimum 4 charag 3 Clickbutton PE Search to start searching Add Heart amp Lung Tx Please enter at least one of the fields above to search e g Name MyKad MyKid Old IC Picture 1 10 Patient Search Page In this page user can view and search for the patients records within the whole centre In the Search section search the patient by type in the MyKad MyKid Patient Name Old IC or Other ID Document No of the patient with not less than 4 characters Use the filter for better search Click on the search button to start searching 4 1 4 Register New Heart amp Lung Transplant Patient If the patient exists in the database i e Patient is shown in the patient list click on Notification button of the patient to view the list of Heart amp Lung Transplant notification for that patient Please key in with dash eg 881 characters PO Please key in minimum 4 characters Wholeword S wj A y in minimum 4 cter PR lease key in minimum 4 chai Search Click on the notification button to view the notification g Picture 1 11 Patient Search Page Patient Exist 10 National Transplant Registry NTR for Heart amp Lung Web Appl
14. cel xls ba Download 4 Click on the Download i N 2 Select the b e For file size more than 1MB the system will automatically compress the file and download in Winzip downloadbable format utton to start Kindly unzip the file to get the dataset in the file format MS Excel xls Click to download the Winzip program downloading ppg 3 Check on the checkbox for the desired field that F need to be download a cea T el 2 contr EF tsgqmoswconm FF _Pt Status Rx Donor 7 E Other ID document number Specify document type if others Picture 1 30 Heart amp Lung Transplant downloadable forms 19 National Transplant Registry NTR for Heart amp Lung Web Application Version 1 0 Check the checkbox for the desired field that need to be download Use the search function to filter the downloadable data Equal to 5 i e Comma separated values CSV Tab delimited e Winzir Picture 1 31 Data Download search section Download Format There are 3 types of downloadable format as shown in Picture 1 31 a Excel xls b Comma separated values cvs c Tab delimited txt The download format is defaulted to excel type Select the desired format and click the Download button Download to start downloading Note For file size more than I MB the system will automatically compress the file and download in WinZip format Kindly unzip the file to get the dataset in the file format MS
15. e click the save button Clicking on the validator s link will highlight the corresponding fields that got error The system is unable to save the record due to the following errors Please resolve the following and click SAVE button again PROVIDER INFO Transplant Centre Name cannot be blank User need to resolve RECIPIENT INFO Name of Patient cannot be blank RECIPIENT INFO Please key in one of the following 1 MyKad MyKid 2 Old IC 3 Other ID document No 4 Other ID Doc for age below 12 the validator message RECIPIENT INFO Date of birth cannot be blank RECIPIENT INFO Gender cannot be missing before Saving RECIPIENT INFO Ethnic Group cannot be missing RECIPIENT INFO Date of Transplant cannot be blank Please take note thy teenies anaa ee Clicking on the validator link will al highlight the corresponding field a Se om spect O ae eei eee e a e A eee C gt Follow up Hospital Name Institut Perubatan Respiratori HKL x e ea MM I I IIa Recipient ff Pre Tx clin Jf tx clin Post Tx clin pt status ro Donor 1mm Tv J att Picture 1 14 Validation message After completed the form click on the button to save the data into the database Upon clicking the save button user will be directed to the Heart amp Lung Transplant Notification List PID 99 MyKediMykid 880226025540 OOOO ae Other D documento S epange others Others specify A Add a second or more H Heart amp
16. ence technical difficulties using this site including problems related to data entry please contact 1 The Registry Manager Phone 603 2681 5948 Email ntr acrm org my Address National Transplant Registry NTR Level 5 Menara Wisma Sejarah Jalan Tun Razak Kuala Lumpur OR 2 The IT Administrator at Tel 603 4044 0615 22 National Transplant Registry NTR for Heart amp Lung Web Application Version 1 0 6 0 NATIONAL TRANSPLANT REGISTRY NTR FOR HEART amp LUNG TRANSPLANT DATA ENTRY PROCESS Access ACRM website http www mst org my ntrSite Click eNTR Log in 1 Key in user name and password then click Sign In button Log in 2 Key in the authentication code received via sms Application selection page Bone amp Tissue Transplant Home page Patient List Select New Patient Data Entry from Menu bar Perform SEARCH patient in the database Enter MyKad Num or Other Document Num or Name and click Search New Patient Existing patient Name appears in list after search Data Download Statistic z Register new patient Add Notification Click D And then click Add Heart amp Lung Tx Add second or more be Heart amp Lung Tx Enter Notification form Section 1 to 4 and click Save Diagram 1 Heart amp Lung Transplant User s Manual Flow
17. guardian r E Z e e Male 26 02 1988 JEI pate or rth Estimate Female Not available Missing B AB Recipient ABO Blood Group Not available Missing Indian Bumiputra Sarawak Pac toa i Bumiputra Sabah Others specify Not Available Islam Buddhism Christianity Hinduism Others specify Unknown Religion Not Available Picture 1 27 Patient s Information UPDATE page the blue request delete icon Request Delete Note Only manager can delete a record that has been requested to delete by user IF user has request to delete wrong form user can call the manager to undo the pending request delete Fill in the To request delete a patient s record click on Reason for request delete and click the button 18 National Transplant Registry NTR for Heart amp Lung Web Application Version 1 0 4 1 6 Statistic Teta terrane ny EEE Doris case nent sep Picture 1 28 Statistic Tab Menus On progress 4 1 7 Data Download HL Tx Data Download Picture 1 29 Data Download Tab Menu Data entered in Heart amp Lung Transplant Notification and Follow Up forms are downloadable Note Only those that have the access right can view Data Download tab and download it Upon clicking on the Data download sub menu user will be brought to the downloadable form where each fields are in checkbox By Range nt 1 Use the search function to filter the ange v Bil By Range wi n downloadable data x
18. ication Version 1 0 If patient doesn t exist 1 e Patient is NOT shown in the patient verification list click on Add Heart amp Lung Tx we the blue icon ia as shown in Picture 1 12 bellow to register a new patient 1111 Whole word S laali he fact Whole word S pd Please key in minimum 4 f Click on the Add button to Search register new patient Picture 1 12 Patient Search Page Register New Patient After click on blue icon user will be brought to Heart amp Lung Transplant Notification Form as shown in Picture 1 13 bellow 7 Mother s 1 c Armed Force ID C Date of Birth Father s I C Work Permit Lab number Not available Missing L J EA nate orsin Estimate if the exact date is not known please enter 01 07 yyyy Not Available Others specify Unknown Not Available stars 3 Not available Recipient Pre Tx Clin Post Tx Clin Pt Status Rx Donor ALL Please click here to save the data entered Ehka Picture 1 13 Heart amp Lung Transplant Notification Form The Heart amp Lung Transplant Notification Form consists of 8 different sections that need to be filled in 11 National Transplant Registry NTR for Heart amp Lung Web Application Version 1 0 Field with symbols are mandatory which cannot be blank or missing otherwise action submitted will be rejected and show the error in color red So it is advisable for user to rectify the errors befor
19. issues surrounding clinical databases The common problem seems to be in terms of collecting and sharing the data as well as database maintenance Most institutions collect data for their own use The majority of them have reservations with regards to data sharing even if itis for a common good This is due to lack of clear policies on data sharing These issues will remain unresolved unless measures are taken Thus spelling the need to standardize in both content and quality and share databases This association was established to meet to those needs It will be used as a platform to set up and maintain clinical databases for key diseases in Malaysia It also aims to be the one stop portal where users can have access physically and virtually to majority of clinical databases in Malaysia Register with us If you are currently involved or maybe planning to set up a clinical register or maybe interested in clinical databases please send us an email at contact acrm org my We also welcome participation from both individuals as well as organizations keen to link up with us Sign up as ACRM member today Updated on 2 2 2010 Privacy Notice Site Contents Copyright CRO 2005 Created by C TAMED VC CORRU SE SA H Tracked Dy leq ck Picture 1 2 ACRM Home page at Contact Us x s NRR Dialysis NRR eMRRB NTR NED NcVD NTrD NER DICARE NMUS NMDS MNNR DermReg NORM NCPR NCPR Hematology NCPR NPC NCPR
20. izes your Password If you suspect your Password may have been compromised change your Password immediately Tips Your password is what tells the system that you are who you say you are Because your password is like a key to your account you need to safeguard it Anyone who has your password can pose as you Therefore you may be held responsible for someone else s actions if they are able to get your password Do not record your passwords down memorise them Ensure you are accessing the correct website Never access the website via a hyperlink from an e mail Always enter the correct website address yourself which is https www macr org my entr Only access Web Application using a secure and trusted computer Never access your Web Application on computers devices which you have doubts with regard to security such as those located in public places If you have to use such computers for example when you are outside the office change your password once you have access to a secure computer Keep your operating system eg Microsoft Windows and Internet related software updated with the latest security patches Protect your computer from viruses and malicious programs with anti virus software and firewalls where possible Always update your anti virus software with the latest virus signatures Always log out your Internet session by clicking on the logout button whenever you leave your computer even for a short while Do not
21. ng Negara E Foundation Click here to go to National Transplant Registry NTR Announcemen Web Application U NOVARTIS MST annual scientific Roche meeting will be held on 8 10 July 2010 l nEn The NTR would like to invite Putrajaya Abstract ry you to be its sponsor submission is now open Click here to find out the Ath National Popova benefits of being sponser Publication from NTR available for Download Contact us teday Third Report of the National Transplant Registry 2006 National Transplant Registry Level 5 Menara Wisma Sejarah RATIONAL TRANSPLANT REGISTRY A Picture 1 3 National Transplant Registry NTR website 5 To go to NTR Web application click the E eNTR link 6 You also can go directly to eNTR Web Application at https www macr org my entr National Transplant Registry NTR for Heart amp Lung Web Application Version 1 0 7 On the login page key in the username and password in the appropriate column and then click on the Sign in button Welcome to National Transplant Registry NTR web application londay Friday except Public Holiday 8 30am to Spm Mana National Transplant Registry NTR Phone 03 2681 5948 Email ntr acrm org my Picture 1 4 National Transplant Registry NTR web application Welcome page User authentication There are two levels of user authentication After user logs in using Username and password an SMS containing Authentication Code will be sent
22. notification data click on the Notification icon I The numbers indicates how many notifications exist in each of the patient registered Clicking the Notification icon will directed user to the Notification List Please refer to Picture 1 15 In the Patient Information section user can view or update general information of the patients registered 17 National Transplant Registry NTR for Heart amp Lung Web Application Version 1 0 To View Patient Particulars click on the blue View icon Lg Please take note that you must fill in all the compulsory fields marked with 1 NameofPatient HLS A NRIC Please enter only one of the z Missing identification document number 3 Birth cert IC guardian m i e mg Date of Birth 26 02 1988 Date of Birth Estimate 4 Gender Recipient ABO Blood Group ramon msc Picture 1 26 Patient s Information VIEW page Y orcickeditbuton To update the patient s form click on the blue Update icon in the View page Please take note that you must fill in all the compulsory fields marked with Name of Patient HiNS o ooo E Other ID document number c Registration number c Mother sI c Armed Force ID Date of Birth NRIC Please enter only one of the c Passport c C Father s I C Work Permit Lab number identification document number Specify document type if others C C Others c Not available Missing omer speciy Doo a Birth cert IC
23. tion Version 1 0 Follow Up form consists of 4 sections Key in all the compulsory fields and then click the save button Meza Please take note that you must fill in all the compulsory fields marked with Name of reporting center name of ee Institut Perubatan Respiratori HKL Follow up care provided by Transplant centre Primary Care Physician Non Transplant centre Specialty Physician Other specify Not available owners speciy Eoo ee C A Pratient J clin J rx 1mm ty ALL he data entered Bf Living Dead Lost to follow up Retransplanted since last follow up Not available Number of transplant related hospitalizations Functional status at follow up Employment status Not available w Other speciy o G Patient Not available Missing No activity limitations NYHA Class I or Class IT Performs activities of daily living with some assistance NYHA Class III Performs activities of daily living with total assistance NYHA Class IV N A Patient Hospitalized Unknown A O oO O o O Not available Picture 1 20New Follow Up form After saving the Follow Up form user will be brought back to the Heart amp Lung Transplant Notification list as shown in Picture 1 21 Add second or more Follow Up List oO a om Picture 1 21 Heart amp Lung Transplant Notification List Follow Up List 15 National Transplant Registry NTR for Heart amp Lung Web Application
24. y view data only but not edit data some may view and edit data etc Timer On top of each application timer has been set from 60 minutes and will decrease each time the application left idle If the application is left idle for more than 60 minutes the application will be logged off automatically 29 58 Picture 1 1 Timer National Transplant Registry NTR for Heart amp Lung Web Application Version 1 0 2 0 SECURITY Each authorised user is required to read through understand and sign The Security Policy for NTR Web Application before being authorised to access the application This is to ensure that users play an active role in ensuring security of data at their level 2 1 Policies and Practices as follows As a good security practice you are strongly advised to Keep your password confidential Avoid sharing or divulging your Password to anyone This includes any person who may appear to represent or work for the Registry Our administrator do not request for your password at any time Avoid using the same Web Application Password for any other web based services such as for e mail or for Internet Service Provider login Avoid choosing a Password that is easily anticipated by a third party like your NRIC number telephone number date of birth etc You should select a unique Password to make it difficult for anyone to anticipate Avoid writing down or saving your Password on your browser or any other software Memor
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