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1. INDEPENDENT DIABETES TRUST Ep June 2015 Newsletter Issue 23 Box 294 Northampton NN1 4XS Telephone 01604 622837 Welcome Welcome to the twenty third issue of Type 2 and You In this issue we look at how to manage your diabetes when you are on holiday and generally over the summer months medical exemption certificates and advice on fasting over Ramadan We also announce the date of our Annual General Meeting and offer you the chance to win a years supply of Pomegreat juice drink Launching our N EWW Parents Passport onmens for Schools ma SPORT FOR SCHOD s ist school Staff i diabetes Needs Meeting MY child s IDDT is a charity that actively listens to its members and is all too well aware of the difficulties that children with diabetes and their parents and families face in everyday life when managing the condition One area that proves particularly problematic is managing the condition at school With this in mind IDDT has produced a new free booklet a Parents Passport for Schools IT GIVEs Sc ABOUT ree STAFF IMPorz EVERYONE pe AND SHOULD po NF O ESPONSIBL FOR a aa EIR RMATION LABLE TO CARE The passport has been designed to provide a means by which parents rnana E can formally let schools know how to manage their child s diabetes and in erent turn support schools to comply with SEN regulations as well as informing teachers about the condition
2. IDDT has produced similar documents for use in hospitals and also in care settings such as residential care which have been very well received and proved very popular As with all our leaflets the passport is FREE The passport contains a wide range of information on how a child s diabetes is managed including e Dealing with high and low blood sugar levels e Food and mealtimes e Insulin administration and blood testing IDDT hopes that the passport will prove to be a valuable tool for families with a child with diabetes teachers with a child with diabetes in their charge school nurses and SEND co ordinators To get your FREE copy call IDDT on 01604 622837 write to IDDT at PO Box 294 Northampton NN1 4XS or email enquiries iddtinternational org i A charity supporting and listening to people who live with diabetes i N nii Charity Number 1058 2 Registered Numbe www iddtinternational org enquiries iddtinternational org e Excitement can affect blood glucose levels so it is important to test regularly and be prepared for some low blood glucose levels e Hypos may be unexpected due to changes in routine in temperatures or in the amount of exercise taken such as swimming or sightseeing so always be prepared It is a good idea to take plenty of glucose tablets with you because they won t melt leak or become sticky in high temperatures e When travelling always wear identification that s
3. DDT Lottery We would like to thank all the people who have joined in the IDDT monthly Lottery over 200 entries at the time of writing the 1st prize will be at least 115 00 2nd prize over 85 00 3rd over 55 00 and 4th over 25 00 The Lottery draw for June will take place at the end of the first week in July so there s still time to enter just fill in the form which is with this Newsletter The winners will be contacted directly and will be announced on our website and in the next Newsletter Diabetes Food Meds and More a With summer coming we can look forward to lighter recipes for the warmer weather So you might like to look at IDDT s recipe book It is available to members at the reduced price of 7 99 plus 1 50 P amp P To order call IDDT on 01604 622837 write to IDDT at PO Box 294 Northampton NN1 4XS or email enquiries iddtinternational org The new IDDT Tax Disc As you will be aware the old paper tax discs are being ohased out this year but instead of throwing away your old tax disc holder use it to show your support for IDDT ask for your FREE IDDT TAX DISC using the contact details at the end of this newsletter The disc is the same size as the old disc and is even perforated so show your support for us and ask for your IDDT tax disc today INDEPENDENT DIABETES TRUST Exemption free prescriptions England If you are over 18 and under 60 living in Engla
4. a to have snacks to hand in case there are long periods without meals Travelling across several time zones will probably cause some degree of jet lag Symptoms include daytime ___ sleepiness fatigue disorientation poor concentration _ headache and irritability There are a number of ways to relieve jetlag J e Avoid caffeine and alcohol on the plane drink plenty of water or fruit juice Fa mE e pe ian o a a E e r aa a INDEPENDENT DIABETES Trust June 2015 Issue 23 SAS e Eat modestly at times that correspond to the usual mealtimes as this will help your body to readjust to the new Hime Zone e After a westward flight stay awake while there is daylight and try to sleep when it is dark e After an eastward flight get up in the morning but avoid bright light and go outdoors in the afternoon e Take moderate exercise perhaps by sightseeing If you or your child has diabetes travel agents are not the best people to provide holiday insurance Shop around but always declare your diabetes and any other medical conditions otherwise you may not be covered if anything goes wrong and you need to use the insurance If you are going on holiday in Europe remember to take your European Health Insurance card EHIC and proof of being a UK resident eg driving licence The EHIC is available at the Post Office or online at http www applyehic org applynow htm We collect tips from our members to pass on Here s a tip fr
5. e cancelled if they submit a valid application for a medical or maternity exemption certificate within 60 days of the receipt of the penalty charge notice Where a penalty surcharge has already been paid a payment equal to the amount of the surcharge will be refunded but not the cost of the prescription How to obtain a medical exemption certificate e Obtain form FP92A from your GP surgery e Complete the form and return it to your GP for signing and the surgery will send it off e f you do not have a certificate or your application is being processed you will need to pay for your prescription Ask your pharmacist for a FP57 receipt and refund claim form so that you will be able to claim the money back once your certificate has been issued It is backdated by a month from when it is issued The certificate is valid for 5 years and you should receive a renewal reminder letter a month before it expires If you move house remember to inform the NHS BSA To pay a fine see the rules on having a certificate or to contact the service go to the NHS NBA website htto www nhsbsa nhs uk PrescriptionServices 4666 aspx helps people to take their meds Support was given the researchers found that the participants who had cut back or discontinued taking their medication dropped from 46 to 2 2 In the group where no educational support was given to families these figures were 39 1 and 26 1 respectively The group whose fa
6. es but is given in a 3mg dose whereas Victoza is given as a 1 2mg dose Saxenda is approved for the treatment of obesity alongside a reduced calorie diet increased physical activity in adults with a BMI of 30 or more obese or 27 to 30 overweight and with at least one other weight related problem Treatment should be stopped if weight loss does not reach 5 of the starting weight after 12 weeks The company has stated that it will not seek state reimbursement for the product but prefers to market it for private prescribing Practical Diabetes Vol 32 No 2 Whether this will apply in the UK is not clear yet Recycle 4 Charity We would like to thank everyone who helps IDDT by using Recycle4Charity Unfortunately from April 1st 2015 there has been a policy change regarding mobile phones Due to Royal Mail s policy changes in prohibited goods mobile phones via Freepost bags can no longer be accepted and Royal Mail will make a surcharge to Recycle4Charity for each phone sent via Freepost Clearly this means that any benefit to IDDT will be lost as this surcharge will be passed on to IDDT This policy does not affect the donation or ability to recycle inkjet cartridges through the Freepost recycling envelopes so please keep these coming to continue to help us raise funds If you would like Freepost recycle envelopes just call IDDT on 01604 622837 or email enquiries iddtinternational org CU Date for y
7. her parts of the body The user manual for blood glucose meters will outline which other sites in the body can be used to obtain a blood sample Newsletter Ramadan Fasting amp Diabetes Ramadan is based on the ninth month of the lunar calendar so this year it is expected that the fast of Ramadan will commence on Thursday 18th June and will end on Friday 17th July During this month it is expected that Muslims who participate will abstain from food water beverages smoking oral drugs and sexual intercourse from sunrise to sunset Ramadan moves forward each year by about 11 days which means the length of fasting is greater at certain times of year than others The length of fasting has special consequences for people with diabetes especially those taking insulin and the risk of complications increases with longer periods of fasting People with diabetes may be exempted from fasting but the majority of people with diabetes do fast Those who fast during Ramadan can have acute complications such as hypoglycaemia hyperglycaemia diabetic ketoacidosis and dehydration most of which are as a result of a reduction of food and fluid intake and the timing of meals There are no evidence based guidelines for safe fasting so people have to rely on expert advice from doctors and their personal experiences However a study in people with Type 1 and Type 2 diabetes carried Out in Pakistan has shown
8. mily received educational support were also less likely to forget to take their medication decreasing from 91 1 to 22 1 but in the group whose family received no support this figure increased from 73 9 to 80 4 So this study albeit relatively small showed that family support may encourage people to take their medicines as they are Supposed to do and this results in better control of blood sugars and cognitive improvement Journal of Diabetes amp Metabolic Disorders December 2014 As a partner or parent of someone with diabetes we may feel we are nagging and the person with diabetes may feel they are being nagged but it is worth remembering that there appear to be real benefits The common belief presently held by many endocrinologists is that blood taken from finger tips for monitoring blood glucose levels is more current and accurate than blood drawn taken from other sites such as the forearm shoulder and stomach Sadly for many people with diabetes the fingertips have the most pain nerves which causes discomfort as well as leaving the finger tips bruised calloused and with reduced sensitivity Researchers have found four new test sites that appear to give the same response time and accuracy as finger tips These sites are located on the fleshy area of the palms on a line between where the thumb joins the palm and the centre of the wrist and fleshy area along a li
9. nd and you use insulin or medicine to manage your diabetes you are entitled to free prescriptions but you must have a medical exemption certificate Prescriptions are free for everybody in Scotland Wales and Northern Ireland There has been a crackdown on people with diabetes claiming free prescriptions without an exemption certificate and this has led to some people being fined up to 100 and more If you have been issued with a fine and received no reminder letter then you can call the NHS BSA and explain this to them the telephone number is 0300 330 9291 Just a note From an answer toa Parliamentary Question end of January 2015 it appears that from 17 September 2014 to 16 January 2015 5 572 patients have paid a penalty charge in full with a further 2 252 patients opting to pay the penalty charges in instalments Unbelievable Family support It is well known that a lot of people often do not take their medicines as they are supposed to people with diabetes being no exception Sometimes people cut back on taking their medicines or even stop taking them altogether or they simply forget to take them A recent study involving 91 people with Type 2 diabetes found that having good support from the family leads to higher adherence to medicines and fewer cognitive disorders High blood sugars from not taking medication may cause cognitive decline The people in the study were separated into
10. ndent Diabetes Trust PO Box 294 Northampton NN1 4XS Tel 01604 622837 email enquiries iddtinternational org Or visit our website www iddtinternational org pomegreat juice drinks Just answer the simple question below How many pomegranates are featured on the front of a pack of pomegreat juice drink Answer a 4 b 5 c 9 Email your answers to enquiries pomegreat com Postal entries to 165 New Greenham Park Newbury RG19 6HN Please mark postal entries with Pomegreat IDDT June 2015 Competition OR use Pomegreat IDDT June 2015 Competition as the subject line Closing date for this competition is 30 June 2015 and the winner will be chosen from the correct entries received The winner will be chosen on 1 July 2015 and will be notified by email and or post One years supply of juice drink is the equivalent of 1 carton per week for 12 months No cash alternative is offered A charity supporting and listening to people who live with diabetes IDDT June 2015 www iddtinternational org enquiries iddtinternational org
11. ne connecting where the pink area joins the palm to the wrist To prove this the researchers carried out tests in people without diabetes people at risk of Type 2 diabetes and those with diabetes under control The tests consisted of simultaneously taking blood samples from alternate sites such as the forearm fingertips and from the palm areas mostly after rising from a night s sleep Repeated tests were carried out at 5 and 10 minute intervals Four new blood glucose test sites with the same response time as finger tips Blood glucose levels on the palm areas of both hands consistently matched those on the finger tips well within meter accuracy However the other sites forearm shoulder and stomach lagged behind the palm areas by 22 minutes but also only reached 70 of the rise from static levels to peak levels So this study suggests that the palm areas are suitable alternatives to finger ends because they are equally accurate and have less pain nerves Using these areas also allows finger ends to heal and regain sensitivity Important warning if you are considering trying testing using these new sites it is important to talk to your doctor before doing so to ensure that there are no special reasons why you should not do so Alternate site testing is not possible with all blood glucose meters Newer machines only require a smaller drop of blood to provide accurate blood glucose readings from ot
12. om a couple who regularly fly abroad to Italy and France and although the lady carries medical equipment relating to her diabetes her husband has a medical condition that requires him to carry equipment that includes a small pair of scissors As advised he carries a letter from his GP as should anybody carrying insulin pens syringes blood testing equipment and any sharps This had proved to be fine when flying into major airports However when they flew into a more provincial airport where the customs officers did not understand the letter as they could not read English this resulted in an unpleasant and unnecessary search both his body and luggage On their return home they were talking to their son about the experience and he advised that they use Google Translator http translate google co uk hl en amp tab wT to get French and Italian versions of the letter Since then they have flown to several provincial airoorts and have had no further problems So if you are travelling abroad and taking diabetes supplies with you then get the letter you have from your GP translated into the relevant language to avoid any potential problems Another of our members regularly flies to Thailand and he advises notifying airports in advance that you will be carrying medication and sharps His second piece of advice applies to anyone travelling to hot countries to purchase a digital thermometer that not only tells you the current temperature but al
13. our Diary Although we won t be having a conference again this year we will still be holding our Annual General Meeting The meeting is free to attend and will be held on Saturday 17th October at the Kettering Park Hotel Kettering The meeting will start at 12 30pm and we will provide a sandwich lunch discussion sessions and our speaker will once again be Dr Gary Adams It would be helpful for catering numbers if you could let us know if you are coming So we hope that many of you will still be able to join us for the afternoon More details will be available in the September 2015 issues IDDT comments on the NHS Diabetes Prevention Programme The Independent Diabetes Trust welcomes the announcement of the National NHS Diabetes Prevention Programme as the increase in Type 2 diabetes is major problem for both people who develop it and for the NHS However we need to know more specific details about how the programme will work There are many unanswered questions For example helping people to change their lifestyle requires education and ongoing support because evidence suggests that without ongoing support people simply revert to their previous habits A further important question is where will the resources come from Clearly such an ambitious programme will require additional resources not just funding but increased numbers of GPs and health professionals We already have a situation where many people living
14. so records the highest and lowest temperatures This can then be placed in the fridge alongside supplies of insulin and used to adjust the temperature of the fridge to ensure it is running at the optimum temperature for storing insulin Obtain comprehensive travel insurance and read the small print Research your destination know the local laws and customs Tell someone where you are going and leave them emergency contact details Take enough money and have access to emergency supplies e Drink plenty of water as dehydration can raise blood glucose levels e Sunburn can raise blood glucose levels So avoid spending long hours in the sun and wear sunscreen of at least 30 SPF and children or people with pale skin should use 50 SPF e Shield you meter from the sun and test strips should be kept in a cool dry place e People who use a pump may need to protect the adhesive patch from perspiration by using an antiperspirant at the contact site e In very hot weather insulin is absorbed more quickly so test regularly to avoid hypos Our holiday pack also contains information and advice on keeping your insulin cool advice for pump users Managing changing time zones and avoiding Diabetic Holiday Foot Syndrome among other things If you would like a one of our holiday packs please call IDDT on 01604 622837 write to IDDT at PO Box 294 Northampton NN1 4XS or email enquiries iddtinternational org The I
15. tates you have diabetes especially if you take insulin and if possible gives an emergency telephone number Insulin should not be packed in your suitcase This will be placed in the hold where the temperature can be below freezing and this is likely to damage your insulin Your blood glucose meter should also not be packed in the hold e Carry two lots of insulin testing equipment and syringes pens and distribute them between two different lots of hand luggage Luggage does get lost and it could prove difficult to replace your diabetes equipment e You should always carry a card to say that you or your child has diabetes You will need a letter from your GP to explain that you have to carry insulin and other diabetes equipment on board with you Once you have this letter it can be used again for future trips It is a good idea to make several copies of this letter e Always take more insulin than you need in case of breakages The country that you are travelling to may not have the type of insulin you need It is also a good idea to take an extra prescription with you just in case e When you come home it is sensible to throw away the insulin you took on holiday as heat bright light and vibration can all damage it and make it less effective e t is worth remembering that ordering a diabetic meal on flights often means that they are low in carbohydrates so it is probably not a good idea On long journeys it is a good ide
16. that with active glucose monitoring alteration of drug dosage and timing dietary counselling and patient education the majority of patients did not have any serious acute complications during Ramadan Two educational sessions were given to patients one about drug dosage and timing and one about dietary and lifestyle modifications Patients were asked to test their blood glucose levels twice daily for at least 15 fasting days with one test being during the fasting period Following these education sessions and the advice given the researchers found that the majority of people did not have any serious acute complications none developed diabetic ketoacidosis and the highest frequency of hypo and hyperglycaemia occurred before dawn Diab Med 29 709 715 2012 The findings of this and other studies suggest that people with Type 1 and Type 2 diabetes should have an assessment with their diabetes team before Ramadan about drug insulin adjustments exercise and awareness of the risks of hypo and hyperglycaemia If they are ill during the fasting then they should seek advice from their diabetes team Saxenda makes progress in Europe We reported in March this year that Novo Nordisk s Saxenda had received marketing approval in the US It has now received approval in Europe and is expected to be on the market during 2015 Saxenda is the drug liraglutide the same as Victoza for the treatment of Type 2 diabet
17. two groups and in one of the groups the key family members received educational support and the others did not In the group where educational June 2015 Issue 23 What now f C q S A new process has been introduced whereby if Why is this happening now The NHS Business Services Authority NHS BSA issues and renews medical exemption certificates and has been issuing reminders e ZOO e f you were registered for a certificate then or have been registered since then you should receive reminders to update your certificate e However if you did not have a certificate in 2002 or you have moved without registering your new address then you will not be on the NHS BSA s system and you will not have received any reminder letters Until 2014 the responsibility for checking exemption from paying prescriptions was carried out locally but in 2014 this was transferred to the NHS BSA with a more thorough checking system This has resulted in fines being issued to a lot of people many of whom have had diabetes a long time without ever realising they needed a certificate Pharmacists have a responsibility to check that you have an exemption certificate when you collect your prescription but up to now this has not been done very thoroughly someone has made a claim for medical or maternity exemption and there is no evidence they hold an exemption certificate they will still receive a penalty charge However this can b
18. with diabetes are not receiving the 9 key annual health checks to prevent or delay the complications of the condition so an expansion of staffing levels is essential for people already diagnosed Rolling out this prevention programme nationally will significantly add to this need for extra resources or are there plans to hand the programme to the private sector We look forward to hearing more detailed plans of how the prevention programme will be rolled out nationally to provide the public across the country with equal access to the Diabetes Prevention Programme Something for the men walking football Walking football was designed as a way of tackling both inactivity and social isolation for older men and those men who have health K conditions Walking football is supposed to involve a free kick fitness levels every time a player runs Although this rule is sometimes flouted it means that the game appeals to a wide range of While it is more leisurely than the real thing it can still be hercely competitive and of course there are the benefits of camaraderie which older women tend to get at sitting down aerobics or tea dances It was invented 6 years ago but there are already 225 registered clubs across the country with new ones springing up all the time If you have access to the internet just Google walking football to find a game near you If we can be of help in any way please contact InDepe

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