User`s Manual For NTR – BMT Web Application (Version 1.1)
Contents
1. iransplantation n 49 National T Registry Hello Caan T 53 Key in ONE Of MORE mm Search search criteria dike Aided emer word Hospital Registration SS e Add Patient EES number mamme Rese Old IC number mm TA New IC number User Manual Printer friendly format pdf doc Details keyed in eu ui TETTE Date last update by le F Ti 5 t Webmaster Contain os Begin with 2 30 4 Search detail can be either Whole word S Contain S or Begin with S 5 Patient List fulfilling the criteria will appear 1 Search Patient Microsoft Internet Explorer File Edit View Favorites Tools Help Back gt A A search xjFavortes Meda C D 5 El w O MA m Search the Web fF Address https www macr org my bmt main jsp PAGEID Patient_List_C Y Q Search Web 7 B My Yahoo QP Personals HotJobs FjGames Music Sign In CRC BiBabfid Marrow Transplantation A National T Registry Hello lt lt testuser login time 16 53 i Patient List Home Test Centre Reports Search Patient Ad Hoc Event Add Patient Printer friendly format Change Password Logout Data dictionary User Manual pdf doc Date last u2. 1m balog pouin ommum ph que monens und chakal ks defer ponie cherie critic Ese nue WHO chen caugen Gece Weed dona thar kere povn gt luvs climcal aad relevance maca wu ful moro mg mcum cm ln arr Vos ho WIE scm ern rn geom ln CO m Famam Aenean lymphoma EAL Clinics a syare iha m chicos sooplaans many od lec crier ol the imera teh FORE Groep clean fico te of mcm mkd lakoma AMT ary ee TER ai s i gr cd s ee Urn Sims mn P a n ihe noms m gad di aene ira X HL A bai ilone p m pow of das commmmioieom b cubns the WHO chanics of thy 60 d noe EK an previous clas bon n af hoe and w provid the mwaaa dor thre ws wu go addere and clay pee comcammnge ikr bere Oe ers We ids vmm gy Thr net ml rernm nad 1 Heiden 3 1 fer tha diagnosis af myeloid meoplanms by the WHO cEssification The WTO clasulicumcm n arabe to FATE amd FUSCO dices ippa iiec merplisiu su
3. ii iil yi vil Access control Only authorized users for authorized purposes can gain access to a system Depending on the role different roles have different access rights to the application 1 e some may view data only but not edit data some may view and edit data etc Ifthe application is left idle for more than 20 minutes the application will be logged off automatically Encryption All Personal Health Information are encrypted in the database and during transmission We use SSL technology to secure the data Note By definition of http www webopedia com TERM S SSL html SSL is short for Secure Sockets Layer a protocol developed by Netscape for transmitting private documents via the Internet SSL works by using a private key to encrypt data that s transferred over the SSL connection Both Netscape Navigator and Internet Explorer support SSL and many Web sites use the protocol to obtain confidential user information such as credit card numbers By convention URLs that require an SSL connection start with https instead of http Security features e Address bar https indicating use of SSL technolog Patient List Microsoft Internet Explorer Edit View Favorites Tools Help Back Fj Ti Gi Search Favorites ENT c Address 224 Wa macr arg mylbmt main jsp PAGEID Patienk Lisk e Lock sign at the bottom right of the web page indic
4. File Edit view Favorites Tools Help Search the web Disclaimer Data in tables are auto generated Further data management for any accurate analysis Totals by Current Patient Outcome Status Test Centre Alive in CR Total Patient Alive Alive in CR Alive with disease Moved to another centre Lost to follow up Relapsed Died Others l 2 Total Patient Alive Alive in CR Alive with disease Moved to another centre Lost to follow up Relapsed Died Others 38 Stock and Flow This reports list the total number of patient for new transplant patient death and lost to follow up patient by year It also shows at the end of each year Print Microsoft Internet Explorer File Edit Favorites Tools Help Search the Web jJ Search Address 2 https www org my bmt print jspePAGEID ReportStatiskic3L Disclaimer Data in tables are auto generated Further data management for any accurate analysis Stock and Flow Test Centre Hew transplant Deaths Lost to follow up Alive at 31st December patients le Done m E Internet 2 Totals by of Transplant This report lists total number of patients for each type of transplant by year 101 File Edit Favorites Tools Help Search the web Disclaimer Data in tables are auto generated Further data management for any accurate analysis Totals by
5. D 3 Sw OAM Search the Web FL Address https www macr org my bmt main jsp PAGEID Patientfu_UpdateForm_C uw ef search web 2 Ede Camy web gt Yahoo S Personals VfjHotobs Games gt Music Sign In x e Remaining time 19 55 Youre research iso c M Hational Transplant Registry Helle tuser gt login time 16 53 Patient Ad Hoc Event Confirm Reports Date Ad Hoc Event Notification dd mm yyyy 26 09 2005 Hame of reporting centre Test Centre TEST PATIENT 5 Search Patient Other 1D document di If lt 12 years old Birth Cert Hum 1234532 I A dcii f lt 12 years old I C Guardian 801010 10 1010 B 3 Change Password Logout If person lt 12 years Sibling ranking ate of Transplant 99 0 04 2004 Data dictionary 2 04 User Manual pdf doc Date of Relapse dd mm yyyy Date of Death 99 30 06 2005 Underlying Cause of Death GVHD Overall AGVHD AGVHD Skin grade Date last update by Webmaster 20 Jul 2005 4 b ue END ja b ec pan poi 2 pe 3a Bb Bc 4a 45 4 D D Relapsed D DLI Administered Missing iopathic Pneumonia Syndrome IP Secondary Malignancy Lost to Follow up Date
6. Loa Fea s Filis DD eee ae tend PR B amp r1125in E pr ail radon of ira ogeite aud TA Ba DDR PG 8 Ue cod Lele uni ene ed nr ol ee Scl y Hamas pat e icsTy the Duecqesini lem of Hinaaja Erdagi and mune Trim TUO CEP a DERE ROTE UTE ln whe eer iE Hd borsa Ey 0 upe Dies em punt nor in feel piruna Fog the cago Ihin CHS PERS B dH mw Wet OO wire B Smee eer Aq mar kc am Lope AL Hino Eiai man ie ren seed ack wits Todas Ferca here Boi Baer nas AU He ee Ve he VESD ane cal el Er eye cee cali ii bn calins fa WHO cias Vo es Dee shes c provide ti Bor dy visum ead ss Iniresuction Recent Gold Orga nae WMO ini compo Bro aap lege Am ol loge gelidi i ope elsi Dosis am yug pce Tuo creep dla this were fiom cameras pab Kihi md vnl irs aed rom tbe apneno ed man than W puxkclegurs and wimi dcn mami hy weed who colle wo develop his conn cleus A bar poe he WIH are m diar hy iln iii o e mop Dye ll lia uc seb only findings bas abes all
7. ient Name der Ethnic 5 of Tx Outcome am PATIENT 1001 GL Others specify Chronic myeloid leukemia 09 01 2005 02 2005 Thai missing missa 52 Meses es Mesa Missing fissa 409204 Missing 9050 Mae Mssmg 07204 Wssma 3082004 _ ecc specify Non Hodgkin s lymphoma Indolent 22 10 2004 Autologous pM Missing Missing 12022003 Missing Missing 3488 Malay 4572005 Autologous B1223 Female Chinese Chronic myeloid leukemia 30 04 2004 live 6 05 2004 Missing Missing Missing Bumiputra Sabah Missing 5 10 2003 Missing Missing Missing 5 5 z 2 D ABU BAKAR O E ia o o ojojo N gt IND 2 05 2004 Missing Mae iive Sabah 234 Male Malay RI LATHA A P KANESAN 4922875 Female Chronic myeloid leukemia i EST PATIENT 5 2475 missing esmg Missing oea 50 06 2005 Male Misa Meso 27208 Bled 01 06 2008 alay 0 05 2004 0 08 2004 ae ue x zb i N n XYZ 41123 aklds22 ab45575 w12345 aE lt 2818 s SHE a uu 34 E Print Preview Pit Pagel o amp 100 Close Print Page 1 of 1 Disclaimer Data in tables are auto qenerated Further d
8. 20 21 Molecular Studies 22 23 conditioning mtensiy _ Cell dose Merrow medesedceWdese rTeMg Cord Blood 00 Knucleated cell dose x 10 7 kg S po fostengo OOOO femen r Gelrepiet SECTION 4 OUTCOME Day 30 26 Patient Status Alive 27 Engrafted Transplant day gt 0 5x10 9 l Transplant day platelets gt 20x10 9 3 days 44 transfusion free back Confirm 51 To confirm click on button 511 To go back to edit click on button Reset 6 To reset to original values for all data in this page click on button To print the details in the Patient Confirm page click on Printer friendly farmat 3c To Notify new Ad Hoc Event for a patient Add New Ad Hoc Event Flow Chat 1 Home page 2 Click on Ad Hoc Event 3 Ad Hoc Event List page 4 Patient Ad Hoc Event Add page 51 Confirm 511 Back 24 1 Home page 3 Patient Microsoft Internet Explorer EF 218 x File Edit view Favorites Tools Help Bak gt A Search GyFavorites media 4 E w 6 i Search the Web search address amp hetns jwum macr org myibmtjmain jsp PAGEID Patient_List_C Y e search web KA web My Yahoo S Personals Vj HotJobs Music Sign In Remaining time PRE EA CLS TW dca login time 16 04 Patient List
9. Date last update by Webmaster 20 Jul 2005 2005 CRC All rights reserved EZ JD fi internet 8 Test from the login page to make sure you can log in using the new password you have just changed 48 7 To View Download data dictionary 1 Click Data dictionary the left panel Home Reports Search Patient a Add Patient Change Password Logout Date last update by Webmaster 23 Hov 2004 2 Data Dictionary in pdf format will appear You may download Acrobat Reader for free at http www adobe com products acrobat readstep2 html if you do not have one E https www macr org my bmt DataDictionar yBMTV1 pdf Microsoft Internet Explorer File Edit View Favorites Tools Help gt o Bsearch Favorites D 3 SI ge Address https www macr org my bmt DataDictionaryBMTV1 pdf 8 9 enanala Le i d 8 7 42 amp IDEE toolbar Go Links MAk GUIDELINES The source data producer should ensure the accuracy completeness legibility and timeliness of the data entry in the notification forms and ad hoc form if any outcome occurs A Methodology and Data Collection Technique 1 Notify all Blood and Marrow transplantation cases to NTR within a month post transplant in the notification form 2 Notify all the ad hoc event e g patient s outcome in
10. we National T Registry zu E 8 Hello lt stestuser login time 16 53 Home REPORTS _ Reports Cent rt Hh Listing 2 Patient Basic Details Listin Search Patient _ Add Patient Statistics ummary of Patient Diagnosis otals by Current Pt Outcome Status Stock and Flow E _ Change Password Logout x Data dictionary otals b amp of Tx otals by Type of Tx by Month User Manual pdf 5 Totals by Tx Source doc 5 1 Totals by Tx Source By Month Registry Statist ics 4 1 Totals by Type of Tx by Month for all centres 51 Totals by Tx Source By Month orallgenres 5 Printer friendly format Date last update by Webmaster 20 Jul 2005 2005 CRC All rights reserved Click on the hyperlink of the report you want to view 4 At the report page go to menubar to select File gt Print Preview to preview the formatting of the page for printing purpose and to identify how many pages will be printed File Edit view Favorites Tools Help Eh xgFavortes C 55 Open Ctr o Edit with Microsoft FrontPage Saye Gris Save As print jspePAGEID Patient listing rpt sdp Disclaimer Data in tables are at Page Setup Print Print Preview Ctrl P Send Import and Export Missing Properti
11. Blood po muclestedcelldose x1O Thg OOO y O pase O ps steme SS r Cenrepiete T OUICOM 30 26 Patient Status Alive 27 Engrafted 28 Transplant day ANC gt 0 5x10 9 1 Transplant day platelets gt 20x10 9 3 days 44 transfusion free 5 1 To confirm click on Confirm button 5 11 To go back to edit click on d xe m zu li button Reset 6 To reset to empty values for all data n this page click on button 17 Upon confirmation Patient List Home page will appear The patient added is shown in the Patient List as shown in the diagram below Zh Patient Microsoft Internet Explorer File Edit View Favorites Tools Help A Qsearch Favorites 5 5 5j Hr mh ii Search the Web Psa Address https www macr org my bmt main jsp PAGEID Patient_List_C Y Q Search Web gt 7 Web my Yahoo S Personals Vf HotJobs Ejcames gt Music Sign In Hational Transplant Registry Marrow Transplantation sstuser gt gt login time 14 27 Patient List Home Test Centre Reports New patient record added Search Patient 1 sri LATHA A P KANES Wel ions Ad Event y LIM J Y 881123 22 3345 ab46575 Female 26 04 2004 05 04 2004 30 05 2004 Ad Hoc Event Change Password 6 ABU BAKAR
12. If you have to use such computers for example when you are on trips change your password once you have access to a secure computer Keep your operating system eg Microsoft Windows and Internet related software updated with the latest security patches Protect your computer from viruses and malicious programs with anti virus software and firewalls where possible Always update your anti virus software with the latest virus signatures Always log out your Internet session by clicking on the logout button whenever you leave your computer even for a short while Do not simply close the browser window when you wish to end the Web Application session Due to the criticality to safeguard data of patients various technological mechanisms are set up and administered by the administrator to counter security risks 1 Authentication Access control 11 Encryption iv Audit trail v Physical security vi Control of external communication links and access vii System backup and recovery 1 Authentication e Web application owner authentication VeriSign ensures that the website belongs to NTR and not an impostor s De DR Sm luv Db iG _ weak 2 2 Gres GB 23 9 v Adres hetps idhgk abd mectrustgate com gobal og bevhaydn exe 6o uris n Server ID Status You con review the status of your certificate online ond find what information is required to complete your order If your order or ad
13. 17 t 8 21 gt gt m e ae o h h wo o inv 16 t 4 11 Mot Done Others specify Not available Missing Molecular Studies None ber abl C pml rar a 0 1 2 Not Done Others specify Not available Missing lif others please specify 2 C Not available v Missing Conditioning Intensity None C Myeloablative Non myeloablative Not available Missing GVHD Prophylaxis None o Cyclosporin MTX Cyclosporin MTX Steroids Tacrolimus Cellcept Cyclosporin Others specify Cc Not available Missing Marrow nucleated cell dose x 10 8 kg Cord Blood 0 nucleated cell dose x 10 7 kg PBSC CD34 cells x 10 6 kg Unknown SECTION 4 OUTCOME Day 30 Patient Status Alive C Alive in CR Alive with disease Died Moved to another Lost to follow up Not available Missing centre p 25 a Date of Death dd mm yyyy 26 b Underlying Cause of i C GVHD Underlying _ Haemorrhage disease C Others Not available 7 Missing specify If others please specify Engrafted Yes C Not available Missing Transplant day ANC gt 0 5x10 9 1 Please set 99 for not achieved 7777 for never dropped below 0 5 8888 for unknown Transplant day platelets gt 20x10 9 3 days Please set 99 for not achieved 7777 for never dropped below 20 8888 for transfusion free unk
14. 40 Totals by Transplant Source by Month This report lists total number of patients for each Source of transplant by month E Print Microsoft Internet Explorer File Edit wiew Favorites Tools Help Search the Web Disclaimer Data in tables are auto generated Further data management for accurate analysis P Totals by Transplant Source By Month Test Centre St l a tere 4 41 Registry statistics report a Summary of Patient diagnosis for all centres This reports the total number of patients by diagnosis of all SDPs Source data providers of the NTR A Print Microsoft Internet Explorer File Edit View Favorites Tools Help Search the Web Search 7 Address https www macr org my bmtjprint jsp PAGEID Patients_diagn Disclaimer Data in tables are auto generated Further data management for any accurate analysis P Summary of Patient Diagnosis for all centres Patients Non Hodgkin s ymphome doen E Hodgkin s lymphoma AML post chema Thalassaemia major 8 2 4 2 9 1 1 2 2 3 1 1 1 1 1 1 1 1 1 1 1 3 1 2 3 4 5 T n 4 2 3 4 5 B 8 9 20 21 22 1 1 31 Congenital agranulocytosis az 34 HLH with cerebro meningeal involvement 1 E Done m I3 E Internet a 24 25 2b 27 28 29 ju 1 S ay oo 42 b Totals by Current Patient Outcome Status fo
15. 701230 28 2938 wB1223 Female 30 04 2004 30 04 2004 E Ad Hoc Event Data dictionan doc Date last update by 19 PATIENT 1001 651205 14 5827 RN 1001 02 12 2004 09 01 2005 Diea 01 02 2005 Printer friendly format Ad Hoc Event Ad Hoc Event 2005 CRC All rights reserved Done 7 18 To print the details in the Patient Confirm page click Printer friendly format There is a window popup page with the Patient Confirm page Click on ERINTI E Print Preview Print a pall 2 A 100 7 Help Close Print Page 1 of 2 Disclaimer Data in tables are auto qenerated Further data management for any accurate analysis Patient Confirm BLOOD AND MARROW TRANSPLANT NOTIFICATION FORM Date of Notification dd mm 30 04 2004 SECTION 1 RECIPIENT DETAILS ame TEST PATIENT 5 Hospital Registration Humber Ab32475 Old La ET b Date of birth dd mm yyyy 30 04 2004 Age at transplant Ic 2 4 h d Other document num 4 d i f lt 12 years old Birth Cert amp 1234532 Hum If lt 12 years old Guardian 501010 10 1010 If person 12 years Sibling 1 J ranking Missing Country OTHERS thnic group ansky scale age 16 years Karnasky scale age 16 years O pma on So E eight kg 4 0 zu 3b To View Edi
16. BM T under OnlineDataAccess section Click on ForgotYourPassword link below submit button Fillupfollowing Username Reportingcentrecode As stated in the Authorization list Handphonenumber Emailaddress SMSwillbesenttoyou 2 in the system A Log in via SMS authentication Login National Transplant Registry Microsoft Internet Explorer File Edit Favorites Tools Help Back o A Search Ga Favorites 8 Media EN s i Address https www macr org my bmt BWM_login jsp Go Links BloOd and Marrow Transplantation 9 N gt National Transplant Registry Welcome to the National Transplant Registry Blood and Marrow Transplantation NTR BMT Web Application 1 Type user name Username icrcntrtestuser 2 Type password Forgot Your Pass 3 Click Submit General Instruction and Helpdesk information To access this system please enter the username and password in the text boxes above and click on Login If you have forgott link for further instruction For assistance in completing your application or if you experience technical difficulties using this site including problems related to data entry please contact the NTR Administrator at Tel 603 26924249 or 603 26980310 ext 22 Monday Friday 8 30am Spm The NTR BMT Web Application supports Microsoft Internet Expl
17. Click on the 29 button to notify a new Ad Hoc Event for the selected patient If you want to go back to Patient List page click on Ht button 26 4 The New page Patient Ad Hoc Event Add will appear Fill up the form aaa Ad lame of reportingcentre esceme O OCS CO home esae e bie Ur Bo eic o O e omermaocumetmm O OSS pereon lt years sing ranking of traneplent oem No Yes Not available Missing SF RESI 0 00 UE a se Underlying Cause of Death Sepsis GVHD Underlying disease Others specify Not available Missing If others please specify lt o Not available Missing 2 e Missing 4 Overall AGVHD Not available 4 6 AGVHD Skin grade 1 2 Mot available Missing AGVHD Bowel grade 1 2 Q ie Not available Missing AGVHD Liver grade 1 T4 Mot available 2 e he Missing None Limited Extensive Not available Missing ae to Follow up No Yes Not available Missing LEGEN TIS SEN UU VEN 5 Upon completion click on button Confirm page appear after click Confirm Add Patient Ad Hoc Event Detail Microsoft Internet Explorer File Edit Favorites Tools Help Bak gt Qsearch Favorites
18. Home Test Centre Reports ERLATWA APKANESAN 4872675 feme 6 00 2006 ane p ema eer reae pem bmiy Geers psoemor pes uera ave Search Patient gt m eo Add Patient gt X gt Change Password 22 zi zi xxi EI EI EI 2 a 2 2 gt gt lt 2 lt gt o lt lt lt lt lt lt lt lt lt lt lt lt lt Ld Ld Ld Ld Ld Ld Ld c Ld Logout Edit ABU BAKAR 701230 28 2938 wB1223 Female 30 04 2004 30 04 2004 ave Edit Data dictionar i 7 ATEST3 551021 21 2134 atest3 Female 14 05 2004 02 05 2004 68 a User Manual 09 05 2004 ss Missina Ss SS LEON NENNEN MESSEN ee pa e i as pee Lo TE Mais CE gt aem EMEN pronaos ae ama prose per ter nemen was Jae A een m
19. Notification dd mm yyyy Change Password ng 26 08 2005 17 04 00 30 04 200 Data dictionary User Manual Printer friendly format pdf doc New record Date last update by added Webmaster 20 Jul 2005 2005 CRC All rights reserved To go to Patient List click on To continue adding another new ad hoc event for the same patient repeat from Step to 5 To edit view for the same patient click on Edit To add another new ad hoc event for a different patient go back to Home page and repeat Step 1 to 5 29 4 To Search Patient record 1 Click on the left panel Home Reports Search Patient Add Patient Change Password Logout Data dictionary Date last update by Webmaster 23 2004 2 Patient Search page will appear 3 Type the search criteria You may key in more than one search criteria Then click to show patient list that fulfils the criteria To reset to no value for all search criteria click on 2 button Search Patient Detail Microsoft Internet Explorer File Edit View Favorites Tools Help amp gt G Reach yravorites D 2 Sw mA Search the Web https www macr org my bmt main jsp PAGEID Patient_UpdateForm_C amp Task 5 Y 2 7 Search web 2 Fay Myweb JMall Yahoo SP Personals Agg HotJobs Games Music Remaining time OU ai gt o
20. Type of Transplant Test Centre le Done fe Internet 2 39 e Totals by Type of Transplant by Month This report lists total number of patients for each type of transplant by month e Print Microsoft Internet Explorer File Edit View Favorites Tools Help Search the Web Disclaimer Data tables are auto generated Further data management for accurate analysis Totals by of Transplant by Month Test Centre f Totals by Transplant Source This report lists total number of patients for each Source of transplant by year BPrint Microsoft Internet Explorer c ipi x File Edit View Favorites Tools Help Search Ehe Web D Search Address https www macr arg mwy bmt prink jsp P AGEID ReportStatiskic Disclaimer Data in tables are auto generated Further data management for any accurate analysis Totals by Transplant Source Test Centre ser rooe 1909 reso 1994 1992 1909 1994 1995 996 1997 1908 1999 2000 2004 2002 2003 2004 2005 rotat Source O S O O Marrow of of of of of of of of of of of of of o of o o s 1 s Marrow cord of of of of of of of of of of of of of o of o o af of t Missing of of of of of of of of of of of of of o of o 2 posc of o of oj oj o of oj oj o oj o o aj aj 1 3 Grand Tota of oj oj of of of oj of of of oj oj of of o aj 2 15 2 20 E Done m E Internet a
21. Web Application 1 Click EBENE on the left panel s Home a Reports Search Patient Add Patient Change Password Data dictionary Date last update by Webmaster 23 Hou 2004 9 Help Desk support For assistance in completing your application or if you experience technical difficulties using this site including problems related to data entry please contact the NTR Administrator at Tel 03 4045 5948 or 4044 0615 email ntr crc gov my 51
22. last seen dd mm yyyy Confirm Back Printer friendly format 2005 CRC All rights reserved an ESI 51 To confirm click on Confirm button 511 To go back to edit click on poer button Reset 6 To reset to original values for all data in this page click on button To print the details in the Patient Confirm page click on Printer friendly format 28 Upon confirmation patient s Ad Hoc Event List page will appear The record you ve just added will be shown in the list Patient Ad Hoc Event Microsoft Internet Explorer I e x File Edit View Favorites Tools Help Back gt Q A A seach xjFavorites D 3 w O 99 je Search the Web FSC Address https Jwww macr org my bmt main jsp PAGEID Patientfu List C amp patientid search 1005 Y7 Q Search Web p Ld My Web Mail Yahoo SS Personals g HotJobs Tj Games gt lt Outcome Died will be CHC32 d fid Marrow fransplantation ie display when Patient is T6563 died Not allow to add new record when patient is died 8 Go Links Reports Patient Name TEST PATIENT 5 RN Ab32475 Date of Transplant 30 04 904 Outcome Died Search Patient Add Patient List Date Last Follow up dd mm yyyy Edit or ty me No Date Ad Hoc Event
23. management for any accurate analysis Stock and Flow Done fe Internet E d Totals by Type of Transplant This report lists total number of patients for each type of transplant by year of all SDPs Source data providers of the NTR Print Microsoft Internet Explorer File Edit View Favorites Tools Help Search Ehe Web D Search Address https www macr arg mwy bmt prink jsp PAGEID ReportStatiskic Disclaimer Data in tables are auto generated Further data management for any accurate analysis Totals by Type of Transplant eser 1980 1909 1990 1991 1992 1993 1554 1855 1556 1997 1998 1993 2000 2001 2002 2063 2004 705 roter Transplant Type LITT TRERERN NN allogeneic ef S 2 s 17 24 z 25 p ss rof 7s 84 er 32 sns autatogous of of a of o a a 1 3 6 17 sa s s se syngeneic of of ol e of of 1 of of a of of e of A of of v e rana Tora e e 2a sa z a5 25 a0 26 ss sep er nra esp 136 oi 950 Done d l3 m Internet E 44 e Totals by Type of Transplant by Month for all centers This report lists total number of patients for each type of transplant by year of all SDPs Source data providers of the NTR ipi x File Edit wiew Favorites Tools Help Search the Web D Search Address https jie macr arg my bmtjprint sp P4cEID Reportstatistic Y Disclaimer Data in tables are auto generated Furth
24. recorded in the chart about energy level work status time spent in bed and activities of daily living to assign a value Please note that the following numbers are the only valid values for the performance scales 10 20 30 40 50 60 70 80 90 100 Zero is not valid for this Report Form nor are values not ending in zero such as 85 See Appendix IHI for functional status Click on Appendix I to link to Appendix I of this file Diagnosis Refer to Appendix 1 for the definition of the diseases Click on Appendix IV to link to Appendix IV of this file b CML Chronic Myeloid Leukemia Categorised as Chronic phase Accelerated phase Blast phase Please use WHO definition See Appendix IV Click on Appendix II to link to Appendix II of this file e CVGHD Categorised as none limited extensive Refers to Appendix II for CGVHD Click on WHO to link to another file as shown below CML as defined by WHO Blood October 2002 Vol 100 No 7 pp 2292 2302 11 Chronic myeloid leukemia TA wwwomacr org my bant Blood 100 2290 pdf Mitrosoft Interret Explorer fie Edt View Favorites Took Hesk GA 2 reda ib of le Rds 4 betes femen macr ong my bmtjblood 100 292 pd gram 4 4 gt ow 63 8 m amp R 3X 0 ZH ETS Review urticle The World Organizmion Ww HO classification of the myeloid neoplasms Jum Vy lar mann
25. sso Done E Internet E 45 Totals by Transplant Source by Month for all centres This report lists total number of patients for each Source of transplant by year of all SDPs Source data providers of the NTR Print Microsoft Internet Explorer File Edit View Favorites Tools Help Search the Web Search 7 Address https www macr org my bmtjprint jsp PAGEID ReportStatistic3L_rpt amp type txsourt Disclaimer Data in tables are auto generated Further data management for any accurate analysis Totals by Transplant Source By Month for all centres El Bi mee 7 h Total number of transplants by month per site centre This report lists total number of transplants performed by year of all SDPs Source data providers of the NTR Print Microsoft Internet Explorer File Edit View Favorites Tools Help Search the Web Search Address https www macr org my bmtjprint jsp PAGEID ReportStatistic3L_rpt amp type txtype Disclaimer Data in tables are auto generated Further data management for any accurate analysis Total number of transplants by months per site center UMMC Pae tt tt o 2 8 Tote 197 o9 o t eo o vd gy dg d S o9 2 8 UMMC Paed 2 op 1 1 o Total i888 o o o 6 UMMC Paed 2 2 2 3 2 2 2 2 2 2 22 0 2 2 2 3 2 2 2 2 2 2 2 UMMC Pae t
26. the text boxes above and click on Login If you have fo link for further instruction For assistance in completing your application or if you experience technical difficulties using this site including problems related to data entry please contact the NTR Administrator at Tel 603 26924249 or 603 26980310 ext 22 Monday Friday 8 30am 5pm The NTR BMT Web Application supports Microsoft Internet Explorer Browsers version 5 5 and above To download the latest version of the Microsoft Browser please click the following link http www microsoft com windows ie Copyright CRC Rights Reserved 1 your assigned user name 2 Type your password Note You are required to change your password every 3 months for security reasons 3 Click Submit https www macr org my bmt BWM_MobileAuth jsp Microsoft Internet Explorer D E 8 x File Edit View Favorites Tools Help gt 12 i A Search s Favorites 8 Media d ES amp 9 Links Address hite macr org mio BW MobileAuth jsp v Go DAF Marrowiiransplantationn Welcome to the National Transplant Registry Blood and Marrow Transplantation NTR BMT Web Application You are about to gain access to the National Transplant Registry Blood and Marrow Transplantation NTR BMT Web Application By proceeding you are agreeing to maintain the confidentialit
27. will be sent to you via sms Type the password and the click Change password Microsoft Internet Explorer File Edit View Favorites Tools Help Back 1 A Gsearch uires lt 4 D 5 we Search the Web JJ Search Address https www macr org my bmt main jsp PAGEID BWM_ChangePassword_MobileAuth cre T bf Marrow Transplantation Hello lt stestuser an Change Password Home Reports a Search Patient SMS Authenticatin Code ern Add Patient Change Password Logout Printer friendly format Data dictionary a User Manual pdf 6 Type this eti in the SMS doc Authentication code box Click Submit Date last update by Webmaster 20 Jul 2005 2005 CRC All rights reserved EZ Done Internet 2 7 Following page will appear to notify you that password has been changed x File Edit View Favorites Tools Help Back gt amp 2 A Qsearch Favorites Eh amp w Search the Web JJ Search Address https www macr org my bmt main jsp PAGEID BWM_ChangePasswordSuccess crc bid Marrow Transplantation Hello lt lt testuser login time 18 12 Home Reports a Search Patient Please use new password for next login Add Patient Change Password Printer friendly format Logout Data dictionary a User Manual pdf doc
28. 2938 wB1223 Female 30 04 2004 30 04 2004 Ea Ad Hoc Event Data dictionary pdf 8 JAATESTA qgatest missing 14 05 2004 14 05 2004 09 05 2004 Ad Hoc Event doc Date last update by es pesos eor pes pesa pee End rer pee pes Lear epe pese pereo pes Lear _ Le paren feros pron paz z00e pes leat nereetem Printer friendly format 2005 CRC All rights reserved E 0 7 21 3 A new page Patient Update will appear Patient Update ANS SPL NOT IFICA TION F ORM jusme of reporting centre Date of Notification dd mm yyyy 30 04 2004 of transplant centre HKL Adult If others please specify pate of Transplant dd mm yyyy 50 04 2004 all Place of transplant centre available 7 If others please specify Graft Number 1 2 Not available C Missing SECTION 1 RECIPIENT DETAILS 2 Hospital Registration Humber b32475 EU 0 04 2004 E Age at transplant 0 00 lf age month divide by 12 Age week divide by 52 Eg 6 months 2 weeks 0 5 0 038 0 54 Instruction Please Fill in at least one of the following Identification Card number
29. 7 for never dropped below 0 5 8888 for unknown Transplant day platelets gt 2041019 3 days 44 Please set 99 for not achieved 7777 for never dropped below 20 8888 for transfusion free RR RU 27 28 29 Sp SE Audit Information ke o 200s amar um Audit Information shows e when was patient record notified who was the person notifying the patient record e when was patient record last updated e who was the person last updating the record 32 5 To View Report 1 Click the left panel Change Password Logout Data dictionary Date last update by Webmaster 23 2004 2 Reports page will appear There are three different categories of reports a Centre report reports pertaining your centre s patient data b Centre statistics aggregated data reports of your centre c Registry statistics aggregated data reports of all centres in the registry Reports Microsoft Internet Explorer File Edit View Favorites Tools Help Back gt 2 A Qsearch Favorites D SM Ew DAMM Search the Web https www macr org my bmt main jsp PAGEID BWM_ReportIndex Y 2 Search web 2 B MyWeb Comal MyYahoo Personals HotJobs FjGames Music J Sign In m a l 7 N o Remaining time Blobd Gfid Marrow iransplantation
30. User s Manual For NTR BMT Web Application Version 1 1 User Manual for National Transplant Registry BMT Web Application I nner erro enret 3 a NTR BMT Web Application 3 1 Online data access and Remote data capture 3 H READ AIC TS OMe tote doe 3 111 Data 3 IV Als 3 E condim E M 4 HOW DEIOCOSS ose edd uon commu E Duane comu Re eodein 8 d Forgot password data flow process cccccccccccceceeeceeeeeaeeeesessssseeeeeeeeeeeeess 9 SSS HI 10 A Log in via SMS authentication 10 B Alternative for SDP users with poor phone line reception Log in via password E 12 3a Noly a Hew 13 3b To View Edit Blood and Marrow Transplant Notification Form 20 To Notify new Ad Hoc Event for a 24 A Lo Search Patient FECOE s esses crates SEES TRE VIR eU REPE trt RIEN ERA means 30 d losortwihm current patient St soie ee ree e P b RR e ede 3l D AOE NOTA OD cione eae epee ee N 32 S LO VIEW RCD OL 33 MEME D SCHOLIO 33 H Genie statistics TEDO usss easi tdt as ds atte dud ate inn bb sitet 38 111 Re
31. arnofsky D Bumiputra Sarawak Others specify C Not available Missing If others please specify Auto Calculate Double click to auto calculate the age 6 00 age in month divide 12 Age in week divide by 52 Eg 6 months 2 weeks 0 5 0 038 0 54 Malay Chinese Indian Bumiputra Sabah Bumiputra Sarawak Others specify Not available Missing If others please specify Allogeneic Syngeneic Autologous C Not available Missing 14 Transplant Source C Marrow PBSC C Marrow PBSC 1 Cord blood C gt 1 Cord blood Marrow cord C Others specify Not available 15 If others please specify Type of Mobilization None Chemo GF Chemo GF Others specify Not available v Missing If others please specify HLA Match Identical 1 AG Disparate 2 AG Disparate gt 3 AG Disparate Mot available Missing Allogeneic Donor Relationship Sibling Unrelated Others specify Not available Missing If UU please specify Diagnosis Missing If others please Marrow Status 1st Remission gt 1st Remission 1st Relapse C gt 1st Relapse Refractory Not available Missing 9 b CML Chronic phase Accelerated phase Blast phase C Not available Missing Lymphoma CR1 CR2 CR 3 C Relapse Refractory Not available Missing Cytogenetic abnormalities None t 9 22 15
32. ata management for any accurate analysis Patient Listing Test Centre Patient Diagnosis Tx date Type of Tx Hame 1 RM 1001 Chronic Autologous myeloid leukemia 2 10 Missing Missing Missing 16 05 Missing 2004 ABC 21123 hale Others Mon Autologous Alive specify Hodgkin s punjabi lymphoma Indolent ABU wWB1223 Female Chinese Chronic BAK AR myeloid leukemia Li SHE aklds22 Missing Bumiputra Missing 05 10 Sabah 14 LEE 1243 Male Malay Chronic 01 08 Autologous Alive myeloid 2004 leukemia 15 LIM J ab46575 Female Bumiputra Chranic 05 04 Allogeneic myeloid 2004 leukemia 18 LLL 1234 Male Malay Thalassaemia 01 08 Autologous major 2004 Date Outcome 01 02 2005 e co e 1 bI e e an Missing available Missing bJ e ea e e 4A r3 bi a E Missing Autologous Syngeneic Alive Missing Missing Missing Missing Missing Missing Allogeneic Missing e 1 bi gt 5 a gt a a a a a a a a a a 4 4 E O 4 en 4 1 1 LI 30 05 2004 30 08 2004 14922975 Indian chronic 07 12 Allogeneic Alive myeloid 2002 leukemia b Patient Basic Details listing This report can be filter by key in the search criteria Blood and Marrow Transplantation Microsoft Internet Explorer File Edit View Favori
33. ate of Notification dd mm yyyy 0 atient ID 1322 2 12 2004 F H n of transplant centre Centre for Testing Date of Transplant dd mm yyyy 09 01 2005 Place of transplant centre froca H z D Graft Number Mam PATIENT 1001 ospital Registration Humber 07 Age at transplant 51205 14 5827 4 0 i A o Other ID document num A i If lt 12 years old Birth Cert Hum ii lt 12 years old Guardian iii f person lt 12 years Sibling ranking gt gt n erlis Indera Kayangan ALAYSIA Ethnic group Others specify Thai tanskyscore SSS n Wie M d ii Centre statistics report a Summary of Patient diagnosis This reports the number of patients by diagnosis Print Microsoft Internet Explorer l Bi x File Edit View Favorites Tools Help Search the web Search Address https fwww macr org myybmt print jsp PAGEID Patients_diac Disclaimer Data in tables are auto generated Further data management for any accurate analysis summary of Patient Diagnosis Test Centre 1 a k measaemi mao _ d Z7 b Totals by Current Patient Outcome Status This report lists total number of patients for each Outcome status by year E Print Microsoft Internet Explorer
34. ates SSL secured 128 bit encryption M2004 CRC All rights reserver 551 Secured 128 Bit m sm SL Secured 126 Bit Audit trail Tracks activities in the application 1 who made a change what change was made when was the change made and why was the change made Physical security Access to secured data storage media and area is limited to authorized qualified personnel only Control of external communication links and access Various hardware software policies and network designs are in place to ward off insecure and suspicious activities from outside the network System backup and recovery Strict adherence to backup policies are implemented to ensure smooth and accurate data recovery C Overall data flow process Access NTR website www mst org my Click BMT under Online Data Access section Log in 1 Key in the user name and password then submit Log in 2 Key in the authentication number received via sms Home page Patient List New Patient Register Patient Existing Patient Y New Ad Hoc Event Register Ad Hoc Event v Data Entry Data Edit Data Viewing END d Forgot password data flow process AccessNTRwebsite www mst org my Click
35. ditional documentation was submitted recently please allow our processing staff 24 hours to update your status online To find out what additional information is required click on the links below ond we ll tell you what we need Digital ID Status Payment Information Received Domain Name Registration Approved Business Name Validation Approved Final Verification Complete Server ID Distinguished Name Country MY State Wilayah Persekutuan Locality Kuala Lumpur Organization CLINRESEARCH SON BHO Organizational Unit CLINRESEARCH SDN BHO Organizational Unit Terms of use at www msctrustgate com rpa c 01 Organizational Unit Authenticated by MSC Trustgate com Sdn Bhd Organizational Unit Member VeriSign Trust Network Common Name www macr org my We welcome your feedback on the content of this status page Wiele our staff cannot respond to your suggestions we ll use them to improve the service and usability of these pages Please submit your comments to support msctrustgete corn Copyright 1996 VesSign inc Rights Rerenwed VeriSign Trust Network S O imene e User authentication There are two levels of user authentication After user logs in using User ID and password an SMS containing additional password will be sent to user s mobile phone User then types in the additional password before gaining access to system LOGIN PAGE Forgot Your Password MOBILE PHONE AUTHENTICATION
36. e Recien fpes sa fave Drjez hoarzo pes Lean _ epum is faavesr feros pes Printer friendly format 2005 CRC All rights reserved zu Done A internet 7 2 Click on on the left panel Home Reports Search Patient Add Patient Change Password Logout Data dictionary Date last update by Webmaster 23 2004 3 A new page Add Patient Detail will appear Patient E 0 e of centre Test Centre pate of Notification dd mm yyyy 26 09 2005 Name of transplant centre C12 Missing Age at transplant BU 00 age in month divide by 12 Age in week divide by 52 Eg 6 months 2 weeks 0 5 0 038 0 54 Instruction Please Fill in at least one of the following identification Card number section fa and or b OR c OR fa 4 If lt 12 years old Birth Cert CUM L dH 4 940 If lt 12 years old Sibling ranking ONIS ON C Male Female C Not available Missing e a i group Malay C Chinese Indian C Bumiputra Sabah MM eae CCC Bb K
37. eme ee eae pes leat is ios farsans eo poe pes Lear nemeetem Printer friendly format Date last update by Webmaster 20 Jul 2005 O o 17 05 2004 16 05 2004 Missing gt T pdf AATEST4 14 05 2004 14 05 2004 AATESTIO aatest10 doc 17 05 2004 16 05 2004 L gt i t to EX 2 EN E ES ET EX 10 E E E E 2005 CRC All rights reserved rte 7 Ad Event 2 To notify a new ad hoc event record of a patient click on of the patient record If the patient you are searching for 15 not in current page you may either click on the page number Page Is 1 2345 or click on Search Patient on the left panel Note Page l1 1 2 3 4 5 E El gt click LE to go to first page gt click El to go to last page gt click to go to next five pages The Ad Hoc Event List for the selected patient will appear 25 3 Add Hoc Event List Page Name of your centre Name of patient you selected in Patient list Hospital Registration Num Date of Transplant Ad Hoe Event Liat Tew Patient Hamaj FEST PATENT AH Ab fdr Date of 18 28 sot Miata r nat Last rana TOREM AC Click Add to notify new ad hoc event for the patient you have selected TET
38. er data management for any accurate analysis Totals by Type of Transplant by Month for all centres Syngencic Autologous Hot available Missing Total 1987 Mar ug Sep E e ct Total 1987 15958 m t e lt EX ug Total 1988 1989 T uy a is f Totals by Transplant Source This report lists total number of patients for each Source of transplant by year of all SDPs Source data providers of the NTR 4 Print Microsoft Internet Explorer File Edit View Favorites Tools Help Search the web search Address https amww macr org my bmtjprint jsp PAGEID ReportStatistic v Disclaimer Data in tables are auto generated Further data management for any accurate analysis Totals by Transplant Source ise nasa 1994 rosa ross resa vens 1sss 1997 1398 1999 2000 2004 2002 2005 2004 2006 Tatar pores of of s g of of v 2 3 5L 3L 39 Marrow s zm t so ze ze 28 a so aa a0 10 Marrow scora of of e of of of of of of of of of of of of of 2 1 of 5 Marrow asc of of of of of of of of of of 1 2 3 5 5 3 5 3 eese of of of of of of of o o of 9 zo s se aaa rand Tatar s iz 21 1a so ze ss sz se er 114 126 s
39. es Female Chinese Work Offline Female Bumiputra Sabah Close anna gt Following are details of each report i Centre report a Patient listing is 33 This report can be sort by 3 options Date of Tx Descending Date of Tx Ascending or Patient Name Blood and Marrow Transplantation Microsoft Internet Explorer 81 xj File Edit View Favorites Tools Help wack gt OA 21 fairavertes 3 Ow O Search the Web https www macr org my bmt main jsp PAGEID BWM_PatientFilter amp type Patient_listing_rpt_sdp 2 Search web 2 fe r Mail my Yahoo S Personals V HotJobs Ejcames Music Sign In Remaining time iobd ria Transplantation IT National T Home REPORTS FILTER Reports Search Patient Date of Tx Descending OU Add Patient Date of Tx Ascending View Report Patient Name _ Change Password Logout Printer friendly format Date last update by Webmaster 20 Jul 2005 2005 CRC All rights reserved This report lists all patients of your centre Print Microsoft Internet Explorer File Edit View Favorites Tools Help Search the Web https www macr org my bmt print jsp PAGEID Patient_listing_rpt_sdp Disclaimer Data in tables are auto generated Further data management for any accurate analysis Patient Listing Test Centre
40. g your Password to anyone This includes any person who may appear to represent or work for the Registry Our administrator never requires your password at any time e Avoid using the same Web Application Password for any other web based services such as for e mail or for Internet Service Provider login e Avoid choosing a Password that is easily anticipated by a third party like your NRIC number telephone number date of birth etc You should select a unique Password to make it difficult for anyone to anticipate e Avoid writing down or saving your Password on your browser or any other software Memorizes your Password e If you suspect your Password may have been compromised change your Password immediately Tips Your password is what tells the system that you are who you say you are Because your password is like a key to your account you need to safeguard it Anyone who has your password can pose as you Therefore you may be held responsible for someone else s actions if they are able to get your password Do not write your passwords down Ensure you are accessing the correct website Never access the website via a hyperlink from an e mail Always enter the correct website address yourself which is either www mst org my Only access Web Application using a secure and trusted computer Never access your Web Application on computers devices which you have doubts with regard to security such as those located in public places
41. gistry statistics urbe 42 ToeChansedset pasSwWOEG eue 47 7 To View Download data 49 8 Logout of the BMT Web Application eeeeeeeeee 51 Oe 51 ii iii iv Introduction NTR BMT Web Application modules Online data access and Remote data capture Each SDP 1 given right to access their own data and enter data remotely at their site via the NTR BMT Web Application The forms that incorporate these two functionalities are Blood and Marrow Transplant Notification Form and Blood and Marrow Ad Hoc Event Notification form Real time report Reports are generated on a real time basis based on data entered via the Online data access and Remote data capture module There are three sections of reports 1 e Centre report Centre Statistics and Registry Statistics Data Dictionary This documents the definition of all variables in both the Blood and Marrow Transplant Notification Form and Blood and Marrow Ad Hoc Event Notification form Maintenance This module allows user to change their password Users are responsible for changing their passwords every time it expires b Security Each authorised user is required to sign read through understand and sign The Security Policy for NTR BMT Web Application before being autho
42. ll omoia oii erage anl id man irm bo amea aa bri LM ILU rogaa the piwikad of the biasi cosni m ceper my ered decom ad m predicting propane Ihre lora WHO serge w charly diar bien w clay mn er ag aala te Xorsa of che oe bora morphology dar drcum bens m organs lma ba dnm i Thy Masi powewiage anl varane of dypere Af ade anl abnormali m br nephnane cola skoski Ev dumel if possible pora a inl kab Homa om a gum rad Us ramum ium arid re ee Um zu ri aua rs eek Wgh xara cai apna ia js pi dn ll hed ma aet maks edis muri Pom Geen movie In addon clothes the rca ass aa pramon cee m xu mambara amd sco mylene koko cmd de megakanckieds m acu rarpakarycblasr beso ari lae mim ike ipae pore ings od Haih m Rx ides Logs ln pal mm the abrormaal promprkorytc edi a peters or bel aecenas her cropium mas vary Dom heady lated of rede nc by ag ra en dar Asoo Aou led adinim vi aed paky m AL hoe hd mo a Bener appa ma wai m maa a ps ILE I IL op Phe ruo m ibr emr ede d ee nnd bid ire 50 8 Logout of the NTR
43. ne pes ppe poea fera pesna forras pes fen nereetem Printer friendly format m m 881123 22 3345 MA E RI LATHA A 2878 i ie m E i j gt m 2005 CRC All rights reserved u Done 7 1 Click on Column Title to sort the column to view the data as needed to display 31 b Audit Information pe Conditioning Regimen C No C Yes Not available Missing 23 Conditioning Intensity None Myeloablative Non myeloablative Not available Missing 24 GVHD Prophylaxis None Cyclosporin MTX C Cyclosporin MTX Steroids Tacrolimus Cellcept C Cyclosporin Others specify Not available Missing f others please specify me Call doas Marrow bo 7 nucleated cell dose x 10 8 kg Cord Boodoo nucleated cell dose x 10 7 kg PBSC no 0034 cells x 10 8 kg unknown DM MI cic I SECTION 4 OUTCOME Day 30 26 Patient Status lt Alive Alive in CR Alive with disease Died Moved to another Lost to follow up Not available Missing centre Dead gt If Yes 25 a Date of Death dd mm yyyy 25 b Underlying Cause of GVHD Underlying Haemorrhage Death disease Others Not available 7 Missing specify Engrafted v No C Yes Not available Missing Transplant day ANC gt 0 5 10 9 33 Please set 99 for not achieved 777
44. nown 4 Fill up the form 5 Upon completion click on button 16 Confirm page will appear after click Patient Confirm D AND MARROW T NOTIFICATION FORM Forofficeuse Patient ib 105 Date of Notification dd mm yyyy 50 04 2004 Name of transplant centre Date of Transplant 4 50 04 2004 PTE RECIPIENT DETAILS Mme 5 D A E r 2 Hospital Registration Number ate of birth 99 co r 5 Co ho 4 un 0 04 2004 ge at transplant Other ID document num d i If lt 12 years old Birth Cert Hum 41234532 4 d ii lt 12 years old Guardian 801010 10 1010 4 4011 If person lt 12 years Sibling ranking Weight kg s eim Ethnic group ea jnekvscoe Donor Details Not Applicable 10 a Date of birth dd mm yyyy 14 05 2004 mow 12 Ethnic group Missina SSS SSS m T eee s ECTIOH 355 TRANSPL AHT DATA fypeoftranspiant MSI transplant Source Y Hs 7 Allogeneic Donor Relationship is Diagnosis Psa Marrow Status CS 2o ytogenetic abnormalities 2 bIConditionimgRegimen 23 Conditioning 24 eVMDProphylaxis Missing Ci
45. on amp ny unauthorized access use and or disclosure of information shall be construed under the law Malaysia and any action instituted pursuant to the terms of the Confidential Rule Agreement as set forth in the Governance Manual of the NTR shall be broughieis include but not limited to loss of access privileges action for civil damages action for criminal charges and or disciplinary action including but not mm this password in the SMS Authentication code box The security of your data is of utmost concern to us We practice strong security measures to prevent unauthorised access and interference of trans policies and practices 6 Click Submit zu E fime 11 B Alternative for SDP users with line reception Log in via E Login National Transplant Registry Microsoft Internet Explorer 181 File Edit View Favorites Tools Help Back gt amp A A Search Favorites 4 D 5 Address macr org ULL login jsp v Go Links m m CRC 108419 Marrowaransplantations Welcome to the National Transplant Registry Blood and Marrow Transplantation NTR BMT Web Application user name renee E a ig T2 password General Instruction and Helpdesk information 3 Click Submit To access this system please enter the username and password in
46. orer Browsers version 5 5 and above To download the latest version of the Microsoft Browser please click the following link http iwww microsoft com windows ie Copyright CRC All Rights Reserved 7 1 your assigned user name Type your password Note You are required to change your password every 3 months for security reasons 3 Click Submit 10 5 Type the password that you received via sms in the SMS Authentication code box Note The password sent via sms will be different for each new log in You may delete the sms after successfully accesssing the application 6 Click Submit 4 Wait for a few seconds The password to access the system will be sent to you via sms ZOOM UP 3 https www macr org my bmt BWM MobileAuth jsp Microsoft Internet Explorer File Edit View Favorites Tools Help Back amp A a Qsearch Favorites media C4 D k0 Address https macr org edt Lais MobileAuth jsp G Links Marrowalransplantationss E Welcome to the National Transplant Registry Blood and Marrow Transplantation NTR BMT Web Application You are about to gain access to the National Transplant Registry Blood and Marrow Transplantation NTR BMT Web Application By proceeding you are agreeing to the confidentiality of all information made available to you through this applicati
47. pdate by Webmaster 20 Jul 2005 2005 CRC All rights reserved a To sort within current patient list File Edit View Favorites Tools Help Y e Search Web BE Web Mail My Yahoo S Personals V HotJobs Fjcames Music Sign In Remaining time cre Bobd amp Ad TE Hational Transplant Registry at EJ Hello lt lt testuser login time 14 27 Patient List Home Test Centre Reports y ii 1 Date tcon Ei ent eere o Qr pene lt pel mI emet _ posses em Me erano fos os 200 we p emet pedes penne ep faroese repe pod em Click on the title to sort the Ad Hoc Event Search Patient Add Patient gt m Change Password gt m O Logout Data dictionary a User Manual pdf doc BU BAKAR 701230 28 2938 ojo Cet tae 551021 21 2134 E a mm e a a ME s 701230 25 2035 N wha onana gt E Benzsazsse he 7zosoz1as3s0 Date last update by Webmaster 20 Jul 2005 O o data as need Ad Hoc Event Hoc Event Hoc Event ee eremo prenez per esas sss poses eee pe
48. r all centres This report lists total number of patients for each Outcome status by year of all SDPs Source data providers of the NTR Please refer to Totals by Current Patient Outcome Status for further details on how data 1s calculated 4 Print Microsoft Internet Explorer File Edit View Favorites Tools Help Search the Web D Search Address https macr arg my bmtjprint sp P4cEID Reportstatistic Disclaimer Data in tables are auto generated Further data management for any accurate analysis P Totals by Current Patient Outcome Status Alive in CR Alive with Move tn Lost to Relapsed Others Total disease another centre follow up Patient Status uc pau a N ee ee ee ea MEE EN EE ME oo oo Co co D 7 oo D oo ol e E Eus e a Be oop bo oo RIG el E E uJ cn i Cy ee mm 34 3 1 Status Total Patient Alive Alive in CR Alive with disease Moved to another centre Lost to follow up Relapsed Died Others DJ St 43 Stock and Flow for all centres This reports the total by current patient s outcome status of all SDPs Source data providers of the NTR E Print Microsoft Internet Explorer File Edit View Favorites Tools Search Ehe Web Disclaimer Data in tables are auto generated Further data
49. rised to access the application This is to ensure that users play an active role ensuring security of data at their level Security practices as follows Prior to entry of application user is reminded of their responsibility by laws of Malaysia Following message is notified to user every time user logs into the system ec You are about to gain access to the National Transplant Registry Blood and Marrow Transplantation NTR BMT Web Application By proceeding you are agreeing to maintain the confidentiality of all information made available to you through this application Any unauthorized access use and or disclosure of information shall be construed under the laws of Malaysia and any action instituted pursuant to the terms of the Confidential Rule Agreement as set forth in the Governance Manual of the NTR shall be brought in the Court of Malaysia Actions may include but not limited to loss of access privileges an action for civil damages an action for criminal charges and or disciplinary action including but not limited to suspension or dismissal The security of your data 1s of utmost concern to us We practice strong security measures to prevent unauthorised access and interference of transactions and data Read more about our policies and practices 99 Policies and Practices as follows ee As a good security practice you are strongly advised to Keep your password confidential e Avoid sharing or divulgin
50. section fa and or b OR fc OR fa Other ID document num If others please specify 4 001 lt 12 years old Birth Cert Hum fat 234532 4 d ii lt 12 years old Guardian 010 10 1010 4 Edit the data 5 Upon completion click on button 22 Confirm page will appear after click Update Patient Confirm BLOOD AND MARROW TRANSPLANT NOTIFICATION FORM Jersmseuse O of reporting centre of notification da m yyy hame ottronsptantcentre agam O OOOO pate of Transplant dd mmayyy of transplant centre Not available eee Ce e ESTE SECTION 1 RECIPIENT DETAILS t Maus z Hospital Registration number esar OOOO 5a Be Jl estranphm ac other Wdocumentnum d i If lt 12 years old Birth Cert Hum 41234532 dcii If lt 12 years old Guardian 801010 10 1010 4 4011 If person lt 12 years Sibling ranking h yyyy 14 05 2004 job anda 12 ethnic group Missing ood SECTION 3 TRANS weeortanspam Mesng Pa rranspiant Soure es s type of Mobilization Mesng ERR i7 Donor Relationship immu TII Deme o Edd epum MEE pdqerscni Psa Marrow status O OO O
51. t 2 B Gy e Web My Yahoo SP Personals HotJobs Music 4 Signin 18 x 4 4 ia Hello testuserz login time 11 48 National Transplant Registry x ONE Biopdiend Marrow iransplantation E D Patient List Home Test Centre Reports _ Gender Date of Notit Date of Tx Outcome Date Outcome Edit Ad Hoc Event lt Soare Patien Sri Lama anesan frzoeozrasoso fremere 6 00 2004 fame ieee pesas Qaem change Passwora peers es __ _ armeen Logout 5 rest patents 35 missing 0 04 2004 3006204 Missa AnHocEvemt Jabu Bakar _ z01230 20 2090 8122 30 04 2004 30 04 2004 RAT 7 atestas 21 219 ptest 14 05 2004 02 05 2004 missing User Manual pan epas pee ccna essa pea _fosos 200 rus Meses Mess ER 22108 Hee e Nem pem EERT we e e paene wwe me Mes Mess DER _ faked fav
52. t Blood and Marrow Transplant Notification Form View or Edit Patient Data Flow Chat 1 Home page 2 Select patient and click on Edit 3 Patient Update page 4 Edit the data 5 Update 6 Reset 51 Confirm 511 Back 20 1 If you are not at Patient List page click on the left panel Reports Search Patient Add Patient Change Password Logout Data dictionary Date last update hy Webmaster 23 2004 2 To view edit a patient record click on Edit button Patient Microsoft Internet Explorer laj xl File At Gsearch Favorites 4 Eye z ww 65 0 mM Search the Web Search Address https www macr org my bmt main jsp PAGEID Patient_List_C Y web c B Web My Yahoo Personals HotJobs FjGames Music Sign In Edit View Favorites Tools Help National Transplant Registry ANE CRC Marrow iransplantation Hello lt lt testuser login time 15 27 Patient List Test Centre Home Reports Search Patient 1 sri LATHA A P KANESAN 720602145350 14922875 Female 16 08 2004 07 12 2002 Ad Hoc Event Add Patient Ghengs Password 4 iov 881123 22 3345 46575 Female 25 04 2004 05 04 2004 Died 30 05 2004 Ad Hoc Event 5 BAKAR 701230 28
53. t o9 o9 Total 1990 0 2 2 1 vo o o oj o o o 5 46 6 To Change user password 1 Lid ae Wird on the left panel Change password Microsoft Internet Explorer Ele Edit Favorites Tools Help Back gt A A Asearch Favorites D 5 we Search the Web Search Address https www macr org my bmt main jsp PAGEID BWM_ChangePassword E GE gt a H biobd ria Marrow ransplantation f i g Hational Transplant Registry Hello lt lt testuser gt login time 18 12 Change Password ReypeWewPeewor O To change your password please enter your existing password enter the new password and retype your new password in the text boxes Mew password and retype new password should be match f you are using SMS authentication authentication code will be sent via SMS shortly f you are using fixed password authentication please key in your fixed password authentication on next page Printer friendly format 2005 CRC All rights reserved i hd E A ap internet 7 3 the current password the first line 4 Type the new password on the second line and retype new password on third line again to verify 5 Upon completion click button 47 6 SMS Authentication code page for Change Password will appear Wait for a few seconds The password to access the system
54. tes Tools Help Back G A Asearch xgFavortes meda C 5 5 2 El w O m a Search the Web earch Address https www macr org my bmt main jsp PAGEID BWM_PatientFilter amp type Patient_basic_detail_listing_rpt_sdp Go Links xi Y or ER gt lt 7 Cae Web My Yahoo Personals Vj HotJobs Fjcames Music ns Sign In Remaining time T baba bid Marrow Transplantation National Hello testuserz login time 16 53 Hone REPORTS FILTER Reports Patient Basic Detail Listing za Hospital Registration Number Whole word S Old Ic whole word S _ _ com Search Patient Add Patient Change Password Logout View Report Data dictionary User Manual pdf doc Printer friendly format Date last update by Webmaster 20 Jul 2005 2005 CRC All rights reserved This report lists all patient s basic details i Print Microsoft Internet Explorer File Edit view Favorites Tools Help Search the Web Disclaimer Data in tables are auto generated Further data management for accurate analysis P amp https www macr arg mv bmt print jsp PAGEID Patient basic detail lis Patient Basic Detail Listing Test Centre AATEST PATIENT 1001 ID 1322 Diagnosis Hew IC 651205 14 5827 State Perlis Indera Marrow Other ID Hum Other ID Type Specif
55. the Ad Event Form 3 Item mark with is a mandatory field that needs to be filled B Dates 1 All complete dates must be provided 2 Must include day month year dd mm yyyy e g 17 September 2003 3 Ifonly the month is available then assume the date to be the 1 of that month 4 If only the year is available then assume the date to be 1 Jan of that year Tor T2 Signatures f Comments Thumbnais Y Bookmarks Check Boxes 1 Any questions leading into a box with a series of yes no tick boxes must have each line completed yes unknown etc Do not tick only yes boxes and leave the rest blank as the unanswered lines will be flagged as an error 2 Check more than one box if Check one or more boxes below if present instruction is indicated m lis 10t12 826x1169n m j Done T B 3 To save the file click the toolbar To print the file click 5 on the toolbar 4 Note There are links in the file that leads to other section or other files indicated by words underlined as shown below 49 ae on Appendix to link to Appendix III of this file a Lansky score f the patient is aged 1 16 vears please use the Lansky bi Kkarnofsky score Play Performance Scale for Children If performance status is not quantified in the medical record it 15 acceptable to ask the responsible care provider or interpret details
56. y Birth Cert Guardian IC Sibling Ranking Missing 0 Age Sex Race Specity Country MALAYSIA Kayangan 15 12 1999 Others specity Transplant Source Specity Allogeneic Donor Rel Specify Match 5 Tx date Male Type of Tx Outcome Thai Date Outcome 09 01 2005 Autologous Died 01 02 2005 Click here ta view BLOOD AND MARROW TRANSPLANT NOTIFICATION FORM for LOVY FANG YIM LOW FANG YIN ID R H State Country 0 0 Sex Race Specify Old ic Hew IC Other ID Hum Other ID Type Specify Birth Cert Guardian IC Sibling Ranking 0 900923 07 5566 1456 Pulau Pinang MALAYSIA 23 09 1990 Female Chinese Diagnosis Specity Transplant Source Specity Allogeneic Donor Rel 15 Specify Match Tx date Type of Tx Outcome Date Outcome AML PASC Sibling Identical 20 05 2005 Allogeneic Alive in CR 20 05 2005 Cik to access Details in the Confirm data page format as shown below E Done io Internet a 36 3 Print Microsoft Internet Explorer File Edit View Favorites Tools Help Search the Web https www macr org myJbmtjprint jsp PAGEID Patient Full detail amp patientid 1322 Disclaimer Data in tables are auto generated Further data management for any accurate analysis Patient full detail Forofficeuse SP ame of reporting centre Test Centre
57. y of all information made available to you through this application Any unauthorized access use and or disclosure of information shall be construed under the laws of Malaysia and any action instituted pursuant to the terms of the Confidential Rule Agreement as set forth in the Governance Manual of the NTR shall be brought in zi Malaysia ces may include but not limited to loss of access privileges an action for civil damages an action for criminal charges and or disciplinary action including but notglia The security of your data is of utmost concern to us We practice strong security measures to prevent unauthorised access and interference of tran 4 fixed policies and practices y password in the SMS OS Authentication code I EE sa ten ote box 5 Click Submit je 0000000000 O e 4 In the authentication page type the fixed password given to you by NTR BMT Web Application Administrator NTR Manager 5 Click Submit 12 3a To Notify a new patient Flow Chat to notify a new patient 1 Home page 2 Add Patient 3 Patient Add page appear 4 Fill up the form 51 Confirm 51 Back 13 1 Home Page File Edit Favorites Tools Help gt A Asearch Favorites E5 2 s wwe 65 m mM Search the web search Address https www macr org my bmt main jsp PAGEID Patient_List_C Y Search web g
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