Liver Transplant Notification User Manual
Contents
1. Bone amp Tissue Transplant Home page Patient List Select New Patient Data Entry from Menu bar Perform SEARCH patient in the database Enter MyKad Num or Other Document Num or Name and click Search New Patient Existing patient Name appears in list after search Data Download Statistic z Register new patient Add Notification Click la And then click Add Liver TX Add second be or more Liver Tx Enter Notification form Section 1 to 4 and click Save Add Follow Up Outcome ll Diagram 1 Liver Transplant User s Manual Flow2. Roche meeting will be held on 8 10 July 2010 l nEn The NTR would like to invite Putrajaya Abstract 8 un in ry you to be its sponsor submission is now open L ee Click here to find out the Ath National Popova benefits of being sponser Publication from NTR available for Download Contact us teday Third Report of the National Transplant Registry 2006 National Transplant Registry Level 5 Menara Wisma Sejarah RATIONAL TRANSPLANT REGISTRY A Picture 1 3 National Transplant Registry NTR website 5 To go to NTR Web application click the E eNTR link 6 You also can go directly to eNTR Web Application at https www macr org my entr National Transplant Registry NTR for Liver Transplant Web Application Version 1 0 7 On the login page key in the username and password in the appropriate column and then click on the Sign in button Welcome to National Transplant Registry NTR web application londay Friday except Public Holiday 8 30am to Spm Mana National Transplant Registry NTR Phone 03 2681 5948 Email ntr acrm org my Picture 1 4 National Transplant Registry NTR web application Welcome page User authentication There are two levels of user authentication After user logs in using Username and password an SMS containing Authentication Code will be sent to user s mobile phone User then types in the Auth Code before gaining access to the system 8 Key in the authentication co
3. User s Manual for National Transplant Registry NTR for Liver Transplant Web Application Tel 603 2681 5948 E mail ntr acrm org my Website https www macr org my entr National Transplant Registry NTR for Liver Transplant Web Application Version 1 0 Table of Contents 10 NTR WEB APPLICATION MODULES cccccccccsccccccssccccsssssssssssscsssssssees 3 1 1 Online data access and Remote data capture 2 0 0 0 cececesescceecceeeeseeeeeeeeeeeeneas 3 Doe RCC CINCOM Lorch decrease casiccr a toa den esac camllondinm see neea tena dente 3 Lo Mal aa CAN ANC vtec sace cates pics tan acbers temnaiaen nace asen aay nectratansesunns ace aeen aye Rateatene 3 KE MoN IVAN Gato atnsct tet A ENA 3 to ACeS OM UO henor E E os aha meee hana manny 3 20 SECURITY oestra a ea a 4 21 POMCICS and Practices as TOMOWS ceranae naen a E a 4 3 0 HOW TO ACCESS NTR WEB APPLICATION 22 0 0 ccccsssssescccccccceeeeeees 5 4 0 STEP BY STEP PROCEDURE IN USING NATIONAL TRANSPLANT REGISTRY NTR FOR LIVER TRANSPLANT WEB APPLICATION 04 9 4 1 Liverani oenen hte es cree laos O E N padusenitess 9 dL INAV US AOL OOM ais etc wien E ene aaeientes 9 delez Maw IN NG I tis attach ace eae te eetanet dade sau a ace ie eens anaemia eee aie 9 4 1 3 New Patient Data Entry viscccccissssccsisicscatarsiessotsveateersaneseuevieadalansnieeiviounccuantens 10 4 1 4 Register New Liver Transplant Patient ccccseeseseeccceeceeeeseeeeeeeeeeeeaaas
4. click on the blue e uest delete icon Fill in the Reason for request delete and click the button MLS Si Request Delete MyKadiMyKid Fill in reason to request delete s s s sS Other D document number l nn NRIC Please enter only one of the i identification document number Spacy oent Ope E oara E p as 4 Contact Number Handphone w et 5 Date of Birth 22 02 1988 Date of Birth Estimate Female va weight gig Malay Other Specify CO O O Ethnic Grou j Bumi Sarawak other specify Bumi Sabah other specify E Picture 1 27 Request Delete section Note Only manager can delete a record that has been requested to delete by user IF user has request to delete wrong form user can call the manager to undo the pending request delete 4 1 6 Statistic Picture 1 28 Statistic Tab Menus On progress 4 1 7 Data Download Picture 1 29 Data Download Tab Menu Data entered in Liver Transplant Notification and Follow Up Outcome forms are downloadable Note Only those that have the access right can view Data Download tab and download it 19 National Transplant Registry NTR for Liver Transplant Web Application Version 1 0 Upon clicking on the Data download sub menu user will be brought to the downloadable form where each fields are in checkbox m 7 Co Jol 1 Use the search function ng center x al m l to filter the downloadable Date of transplant Evrene x D a e e A data Down
5. NTR for Liver Transplant Web Application Version 1 0 4 1 5 Patient List Picture 1 24 Patient List Tab Menus In this page user can view and search for the patients records within the user s centre 1 Key in one of the patient information Equalto s v a n _ E FIND Show All 2 Select the i 3 Click FIND button f 4 Click Show All button corresponding filter to start searching to reset searching for better search SOL Patient Information Section Picture 1 1 24 Panu List Search pa page In the Search section search the patient by filling in the different selection criteria then select the filters for easy searching and click the Show button to start searching Result will be shown in the Patient List Click the Show All button to reset the searching Please refer Picture 1 20 To View Update Liver Transplant notification data click on the Notification icone The numbers indicates how many notifications exist in each of the patient registered Clicking the Notification icon will directed user to the Notification List Please refer to Picture 1 15 In the Patient Information section user can view or update general information of the patients registered 17 National Transplant Registry NTR for Liver Transplant Web Application Version 1 0 To View Patient Particulars click on the blue View icon Lg Other ID document number z Missing identification document nu
6. button General information about the patient details are automatically entered base on the first registration and can only editable in the patient s form Refer to Picture 1 20 Patient Information iv ate ortronspiant Local China Australia USA Singapore Others specify Not available Missing Discharge Death 1 2 3 4 Date of discharge death type Not available Missing Not fe Date of discharge raean C aa Place of transplant center General information No 1 3 6 8 10 m is auto entered from the first Other ID document number gt registration ee ee eee eee Other specify Ee ee ml rent cea trocar Johor Darul Takzim Pahang Darul Makmur Sarawak Wilayah Persekutuan Labuan Sabah Kedah Darul Aman Perak Darul Ridzuan Selangor Darul Ehsan Wilayah Persekutuan Putrajaya Kelantan Darul Naim Perlis Indera Kayangan Terengganu Darul Iman Not applicable Foreign Melaka Pulau Pinang Wilayah Persekutuan Kuala Lumpur Not available Negeri Sembilan Darul Khusus Sabah Missing 5 Contact numer a P P 22 02 1988 _ Estimate Presumed Year 6 Dateorbinn amma a evorimy 7 A8 a Bander Female sa weit eign cry Ul Malay Bumi Sarawak other specify Bumi Sabah other specify Other Specify Primary liver disease s m A Primary sclerosing Malignancies specify Biliary atresia ore cholangitis Metabolic liver disease speci Cholestatic liver disease s i B oe p Others specify Primary biliary cir
7. is found or the patient identities are NOT the same This is to avoid duplication of registration Steps 1 Enter one or more search criteria at the Search section and click Search It is encouraged to enter MyKad Num first if available Add Liver Tx we 7 2 If no record is found in the list below click on the to register a new Liver transplantation patient 3 If a record is found in the list below click on the to enter the Liver Transplant Notification Form List Further instruction is available on the page Patient Verification Before Registration in NTR This screen will search records of all registration within Liver Transplant NTR Alva ai aatiant e idani aire registration 2 Select filter for ord is found better search fminimum 4 characters at MyKad MyKid field at first otherwise find any other one of the fields below SEARCH MykadMMyKid wholeword S v t CO OCOOOCOCOCOCOC C amp diPilease key in with dash eg 880226 05 1 Key in one of the Name Wholeword S v t s s S C C C CXdSPl a key in minimum 4 characters patient information Old IC Iwholeword 5 w OOO E Please key in minimum 4 characters with minimum 4 Other ID Number Whole word S Please key in minimum 4 characters characters 3 Click button Search to Please enter at least onSermemens enoe Sepreme MyKad MyKid Old IC Patient List No Patient Id MyKad MyKid Gender Notification P
8. 10 Ale eget PAs oaar e each tase uty sidhe dade E 17 AMO SAUSU Cacia a a E 19 AE Data DOWNI ensena AEA 19 Alko Chanot TASS wordon a nants ZZ EE E eee eee eer ea ero eet en ener ree mete eee em ee eee ete eee 22 al O EOS OU erreren a E E E 22 50 HELPDESK SUPPORT oicroinresnesine ansias aaa ETS aai 23 6 0 NATIONAL TRANSPLANT REGISTRY NTR FOR LIVER TRANSPLANT DATA ENTRY PROCESS sidssassssssncdacsdevcsscsevessdeccoccaaedacccdacasevcnseshecssacs 24 National Transplant Registry NTR for Liver Transplant Web Application Version 1 0 1 0 NTR WEB APPLICATION MODULES 1 1 Online data access and Remote data capture Each SDP is given right to access its own data and is able to enter data remotely at its site via the NTR Web Application 1 2 Real time report Reports are generated on a real time basis based on data entered via the online data access and Remote data capture module 1 3 Data Standard These documents contain definition of all variables collected in all the NTR registries 1 4 Maintenance This module allows user to change their password Users are encourage to change their own password after every three months for security reasons 1 5 Access Control Only authorized users can gain access to a system Depending on the role of user different users have different access rights to the application 1 e some may view data only but not edit data some may view and edit data etc Timer On top of each application timer has been
9. 4 Result page for Change Password User can use the new password for the next login 4 1 9 Help Picture 1 35 Help Tab Menu The Help tab menu consist of the following information 1 Contact Use 2 Data Standard 3 User Manual This information also exist in the login page 4 1 10 Logout To logout from National Transplant Registry NTR web application click on Logout menu bar Picture 1 36 Logout Menu Bar 22 National Transplant Registry NTR for Liver Transplant Web Application Version 1 0 5 0 HELP DESK SUPPORT Note The NTR User s Manual is subjected for amendment in future for better quality of NTR For assistance in completing your application or if you experience technical difficulties using this site including problems related to data entry please contact 1 The Registry Manager Phone 603 2681 5948 Email ntr acrm org my Address National Transplant Registry NTR Level 5 Menara Wisma Sejarah Jalan Tun Razak Kuala Lumpur OR 2 The IT Administrator at Tel 603 4044 0615 23 National Transplant Registry NTR for Liver Transplant Web Application Version 1 0 6 0 NATIONAL TRANSPLANT REGISTRY NTR FOR LIVER TRANSPLANT DATA ENTRY PROCESS Access ACRM website http www mst org my ntrSite Click eNTR Log in 1 Key in user name and password then click Sign In button Log in 2 Key in the authentication code received via sms Application selection page
10. LAYSIA Level 3 Dermatology Block Hospital Kuala Lumpur Jalan Pahang 50586 Kuala Lumpur Malaysia Phome 603 4044 0815 Fax 603 4043 9661 Email contacti acrm org my 4 Click on the NTR link and the NTR website will be displayed as show in Picture 1 1 or can access to NTR Website at http www mst org my ntrSite index htm National Transplant Registry NTR for Liver Transplant Web Application Version 1 0 NATIONAL TRANSPLANT REGISTRY ed The National Transplant Registry NTR collects information Sponsors about patients who had undergone organ or tissue transplantation The information allows us to estimate the National Transplant magnitude of transplant activity in the country Such KO EREE iain information besides being useful to practitioner of eet ee A E transplantation is also useful in assisting the MOH Non MOH Governmental Organizations private providers and industry in the planning and evaluation of transplant services Clinical de ornare 8 Sth Report of the National Transplantation AR Registry 2008 ii Click here Malaysian Society of Transplantation wee Publication from NTR available for Download f Major Industry Sponsors Fourth Report of the National Transplant Registry 2007 Online Data Access ATOM TRANSPLANT REGISTRY A Institut Jantung Negara Foundation Click here to go to National Transplant Registry NTR Announcemen Web Application U NOVARTIS MST annual scientific
11. ble Negeri Sembilan Darul Khusus Sabah Missing msie Date of birth dd mm yyyy EEE ES _ estimate Presumed vear a ifthe exact date is not known please enter O1 O7 yyYY N labil Z ot available Missing a eii Bumiputra Sarawak specify Bumiputra Sabah specify Others specify Not available ri se s Primary liver disea s Malignancies specify tis Indication for transplantation b Uncontrolled bleeding varices c Intractable ascites d Spontaneous bacterial peritonitis 3o00 b azatmioprine E Rapamycin 3 tonoctonal potyctonal anuivoaies d Tacrolimus FK506 qo RECIPIENT DONOR DONOR MATCH DATA TRANSPLANT SURGERY COMPLICATIONS OUTCOME Picture 1 13 Liver Transplant Notification Form 11 National Transplant Registry NTR for Liver Transplant Web Application Version 1 0 The Liver Transplant Notification Form consists of 6 different sections that need to be filled in Field with symbols are mandatory which cannot be blank or missing otherwise action submitted will be rejected and show the error in color red So it is advisable for user to rectify the errors before click the ES button Clicking on the validator s link will highlight the corresponding fields that got error The system is unable to save the record due to the following errors Please resolve the following and click SAVE button aga
12. de received via SMS You are about to gain access to the National Transplant Registry NTR Web Application By proceeding you are agreeing to maintain the confidentiality of all information made available to you through this application Any unauthorized access use and or disclosure of information shall be construed under the laws of Malaysia and any action instituted pursuant to the terms of the Confidential Rule Agreement as set forth in the Governance Manual of the NTR shall be brought in the Court of Malaysia Actions may include but not limited to loss of access privileges an action for civil damages an action for criminal charges and or discijpb action including but not limited to suspension or dismissal The security of your data is of utmost concern to us We practice unauthorised access and interference of transactions and data Read mo Key in authentication code received via sms Picture 1 5 Authentication page National Transplant Registry NTR for Liver Transplant Web Application Version 1 0 9 The next page allows the user to select the Liver Transplant application istry NTR web application 1 LIVER TRANSPLANT Picture 1 6 Application selection page Liver Transplant National Transplant Registry NTR for Liver Transplant Web Application Version 1 0 4 0 STEP BY STEP PROCEDURE IN USING NATIONAL TRANSPLANT REGISTRY NTR FOR LIVER TRANSPLANT WEB APPLICATION 4 1 Liver Transplant Upon sel
13. ecting Liver Transplant application link on the application selection page user will be directed to Patient List Whole word 5 Equal to S vj Hospital ae Depa of Hepatobiliary gt Hospital Selayang 09 03 2010 Picture 1 7 Patient Lists for Liver Transplant 4 1 1 Navigation Toolbars On top of Liver Transplant page there are 8 menu navigation toolbars which include i Main Menu ii Patient List iii New Patient Data Entry IV Statistics V Data Download vi Change Password Vil Help Vill Log Out Main Wenu Patient List New Patient Data Entry Statistics Data Download Change Password Help Logout Picture 1 8 Menu Navigation toolbars for Liver Transplant User s can only view parts of this menu navigation toolbars depends on their group that has been assigned to them 4 1 2 Main Menu Navigate to Main Menu See Picture 1 6 National Transplant Registry NTR for Liver Transplant Web Application Version 1 0 4 1 3 New Patient Data Entry Before registering a patient please verify that patient has not been registered in the system before by clicking on New Patient Data Entry tab Main Menu Patient List New Patient Data Entry Statistics Data Download Picture 1 9 New Patient Data Entry Tab Menu Patient Verification Before Registration Please verify that the patient you wish to register has not been registered before in the registry Only register NEW Patient if NO record
14. enance Most institutions collect data for their own use The majority of them have reservations with regards to data sharing even if itis for a common good This is due to lack of clear policies on data sharing These issues will remain unresolved unless measures are taken Thus spelling the need to standardize in both content and quality and share databases This association was established to meet to those needs It will be used as a platform to set up and maintain clinical databases for key diseases in Malaysia It also aims to be the one stop portal where users can have access physically and virtually to majority of clinical databases in Malaysia Register with us If you are currently involved or maybe planning to set up a clinical register or maybe interested in clinical databases please send us an email at contact acrm org my We also welcome participation from both individuals as well as organizations keen to link up with us Sign up as ACRM member today Updated on 2 2 2010 Privacy Notice Site Contents Copyright CRE 2005 Created by C TAMED VC CORRU SE SA H Tracked Dy leq ck Picture 1 2 ACRM Home page at fa Contact Us NRR Dialysis NRR eMRRE NTR NED NCVD NTrD NER DICARE NMUS NMDS MNNR DermReg NORM NCPR NCPR Hematology NCPR NPC NCPR CCD NCPR Breast ADCM MyCARE NOR NUR Photo Gallery ASSOCIATION OF CLINICAL REGISTRIES MALAYSIA ACRM PERSATUAN REGISTRI KLINIKAL MA
15. he search function to filter the downloadable data yrange v Eerie iByRance e ne Gaa i values Em Tab delimited TXT Picture 1 31 Data Download search section Download Format There are 3 types of downloadable format as shown in Picture 1 31 a Excel xls b Comma separated values cvs c Tab delimited txt The download format is defaulted to excel type Select the desired format and click the Download button to start downloading Note For file size more than I MB the system will automatically compress the file and download in WinZip format Kindly unzip the file to get the dataset in the file format MS Excel xls A dialog box for saving the data download or open the data download will appear as shown in Picture 1 32 bellow File Download Do you want to open or save this file 3a Name nt_ Notification 20100427 104047 _ 66 50_KBi xls H Type Microsoft Office Excel 97 2003 Worksheet From localhost harm your computer IF pou do not trust the source do not open or C While files from the Internet can be useful some files can potentially save this file Whats the isk Picture 1 32 Dialog box 21 National Transplant Registry NTR for Liver Transplant Web Application Version 1 0 4 1 8 Change Password To change the password click on the Change Password menu toolbar Picture 1 33 Change Password page Fill in the details and click the Submit button Picture 1 3
16. icture 1 10 Patient Search Page In this page user can view and search for the patients records within the whole centre In the Search section search the patient by type in the MyKad MyKid Patient Name Old IC or Other ID Document No of the patient with not less than 4 characters Use the filter for better search Click on the search button to start searching 4 1 4 Register New Liver Transplant Patient If the patient exists in the database 1 e Patient is shown in the patient list click on Notification button of the patient to view the list of Liver Transplant notification for that patient SEARCH MyKad MyKid Whole word 5 880222 50 2222 Please key in with dash eg 880226 05 5500 or minimum 4 characters Name whoewordo a o Please key in minimum 4 characters Old IC whoeword o a OOo e Please key in minimum 4 characters Other ID Number Whole word S D O00000 Please key in minimum 4 characters Click on the notification button to ea view the notification list No PatientId Name MyKad MyKid Gender Notification Action 1 1 157 S E No PtTxID Tx Center Date of Tx RN No 1 71 Others 08 04 2010 Picture 1 11 Patient Search Page Patient Exist 10 National Transplant Registry NTR for Liver Transplant Web Application Version 1 0 If patient doesn t exist 1 e Patient is NOT shown in the patient verification list click on Add Liver Tx the blue ic
17. in GENERAL INFO Name of transplant center cannot be blank GENERAL INFO Date of transplant cannot be blank RECIPIENT DETAIL Item 1 to 14 Please check at least one Primary liver disease RECIPIENT DETAIL Item 1 to 10 Please check at least one Indication for transplantation RECIPIENT DETAIL Item 1 to 10 Please check at least one Current Immunosuppressive drug s treatment DONOR DETAIL Type of donor cannot be missing Clicking on the validator link will highlight the oe iscsi field that got error Eo ee Eas C Australia C Others specify Picture 1 14 Validation message After completed the form click on the ES button to save the data into the database Upon clicking the save button user will be directed to the Liver Transplant Notification List ee ee document No See MyKad Mykid 880222 50 2222 owe Add second or more notification Add new Follow Up Notification Section Outcome Pere or more Liver Tx ee Le i Back to New Patient Registration Picture 1 15 Liver Transplant Notification List In the Notification list there are two sections which is the Notification Section and Follow Up Outcome Section Each Notification can have multiple Outcomes 12 National Transplant Registry NTR for Liver Transplant Web Application Version 1 0 Notification Section Refer Picture 1 15 Add second or more Liver Tx To add second or more notification click the blue ADD
18. iver Transplant Web Application Version 1 0 3 0 HOW TO ACCESS NTR WEB APPLICATION 1 Register the centre as Source Data Provider with NTR Registry contact NTR Manager at Tel 03 2681 5948 or email ntr acrm org my 2 Fill in the authorization list form for the purpose of access control and sign the security policy form to receive a username and password 3 Access to ACRM Website at http www acrm org my P About ACRM gt EXCO Constitution Affiliated Databases Registers Renal Diahysis Renal GhSLeE Transplant National Eye Database Neonatal Cardiovascular Trauma Diabetes Medicines Devices News amp Events gt Meetings Conferences Publications Bibliography Links Online Registration gt ACRM Mailing List pn 2007 v e Newsletter 2nd Issue i te a Sa Wisttor number 037808 since 8412 2005 Clinical Databases Welcome toACRM M The ACRM Association of Clinical Registries Malaysia was established for the purpose of facilitating the set up and maintenance of clinical registries and databases in the country Registry databases include information concerning demographics diagnosis treatment history and outcomes A variety of output can be generated from the information collected In Malaysia however there have been a lot of debatable issues surrounding clinical databases The common problem seems to be in terms of collecting and sharing the data as well as database maint
19. load Format Excel xls w 4 Click on the Download button to start downloading 3 Check on the checkbox for the desired field that need to be download Notification ID Name of reporting center Name of transplant center Place of transplant center z paesorranspamomr RECIPIENT DONOR DONOR MATCH DATA TRANSPLANT SURGERY COMPLICATIONS OUTCOME AUDIT ALL Date of discharge death type a m i NRIC Address Postcode Town City state Estimate Presumed Year If the exact date is not known please enter O1 07 yyyyY weno o pese M i Ethnic group an Contact Number Date of birth dd mm yyyy Primary liver disease s Primary biliary cirrhosis Indication for transplantation c Intractable ascites d Spontaneous bacterial peritonitis e Poor liver function Current Immunosuppressive drug i Other speci es ica i b Azathioprine Fa f Rapamycin c Cyclosporin A Fmf g Monoclonal polyclonal antibodies d Tacrolimus FK506 h Anti IL2R Antibodies RECIPIENT DONOR DONOR MATCH DATA TRANSPLANT SURGERY COMPLICATIONS OUTCOME AUDIT ALL Picture 1 30 Liver Transplant downloadable forms D IE 20 National Transplant Registry NTR for Liver Transplant Web Application Version 1 0 Check the checkbox for the desired field that need to be download Use t
20. mber SPecify document type if others Other specify _ Birth cert IC guardian z n ee Postcode towmncty 4 Contact Number Home andpone Work et 5 DateotBinh 22 02 1988 Lloateersinmestmate Banderas Bumi Sarawak other specify Bumi Sabah other specify Picture 1 25 Patient s Information VIEW page To update the patient s form click on the blue Update icon LA or click edit button EG in the View page woos eee wes onermsoamenmmbe Registration number Mother s I C Armed Force ID Date of Birth NRIC Pr enter onl of th Passport Father s I C Work Permit Lab number identifcation document number Specify document type if others Others Not available Missing ae ua Birth cort IC guardian 3 Address Johor Darul Takzim Pahang Darul Makmur Sarawak ra Persekutuan Labuan Kedah Darul Aman Perak Darul Ridzuan Selangor Darul Ehsan son aes Kelantan Darul Naim Perlis Indera Kayangan Terengganu Darul Iman Not applicable Foreign Melaka Pulau Pinang paan Persekutuan Kuala Not available Negeri Sembilan Darul Khusus Sabah Missing cometmimoer pome bnon OOOO w ed Date of Birth FEE I ate of Birth Estimate Female Not available Missing Indian Bumiputra Sarawak specify Bumiputra Sabah specify Others specify Ethnic Group Not available Picture 1 26 Patient s Information UPDATE page 18 National Transplant Registry NTR for Liver Transplant Web Application Version 1 0 To request delete a patient s record
21. on patient in as shown in Picture 1 12 bellow to register a new whole word se Bu o o o ooo E Name _ Whole word 5 Please key i Old Ic whole word S w Please Key ner ID Number Whole word 5 le Cisse key i Other ID Number whole word S x ieee keyii Click on the Add button to ta a register new patient Patient Not Found Kindly check the criteria you have provided or Click on the Add button below tt r a new patient Add Liver Tx Picture 1 12 Patient Search Page Register New Patient After click on blue icon user will be brought to Liver Transplant Notification Form as shown in Picture 1 13 bellow UN ji Date of notification 21 04 2070 Se Date or transpa 1 Local China Australia USA Singapore Others specify Not available Missing omerspecity o nnn l E me a fe isi E Not available i Registration number Mother s IjC Armed Force ID Date of Birth Passport Father s I C Work Permit Lab number Not available Missing Address Johor Darul Takzim Pahang Darul Makmur Sarawak wilayah Persekutuan Labuan Sabah Kedah Darul Aman Perak Darul Ridzuan Selangor Darul Ehsan wilayah Persekutuan Putrajaya Kelantan Darul Naim Perlis Indera Kayangan Terengganu Darul Iman Not applicable Foreign Melaka Pulau Pinang wilayah Persekutuan Kuala Lumpur Not availa
22. r password is what tells the system that you are who you say you are Because your password is like a key to your account you need to safeguard it Anyone who has your password can pose as you Therefore you may be held responsible for someone else s actions if they are able to get your password Do not record your passwords down memorise them Ensure you are accessing the correct website Never access the website via a hyperlink from an e mail Always enter the correct website address yourself which is https www macr org my entr Only access Web Application using a secure and trusted computer Never access your Web Application on computers devices which you have doubts with regard to security such as those located in public places If you have to use such computers for example when you are outside the office change your password once you have access to a secure computer Keep your operating system eg Microsoft Windows and Internet related software updated with the latest security patches Protect your computer from viruses and malicious programs with anti virus software and firewalls where possible Always update your anti virus software with the latest virus signatures Always log out your Internet session by clicking on the logout button whenever you leave your computer even for a short while Do not simply close the browser window when you wish to end the Web Application session National Transplant Registry NTR for L
23. rhosis Chronic hepatitis C Alcoholic iver disease T unknown Indication for transplantation i Other speci d Spontaneous bacterial peritonitis T 5 mnow Current Immunosuppressive drug i b Azathioprine E f Rapamycin Fa c Cyclosporin A g Monoclonal polycional antibodies i at l d Tacrolimus FK506 h Anti IL2R Antibodies RECIPIENT DONOR DONOR MATCH DATA TRANSPLANT SURGERY COMPLICATIONS OUTCOME h Failure to thrive and growth retardation in paediatric patients Picture 1 16 Liver Transplant Notification Add second or more notification 13 National Transplant Registry NTR for Liver Transplant Web Application Version 1 0 3 s r EF To view notification record click on the blue View icon la f RECIPIENT a i Name o O TEST RNNO Specify document type if other i Se ee ee Other specify lt 12years oid Birth certnumber guaran MoterFather a Cie Te B a a 22 02 1988 _ Estimate Presumed Year e nacon ae E a rororo 7 A O a oe Wott age Primary liver disease s cea eE Metabolic liver disease specify E Autoimmune hepatitis Acute liver failure specify Cholestatic iver disease specify E Chronic hepatitisa Idiopathicicryptogenic biliary cirrhosis 1 Chronichepatiisc Others specify 4 4 Others specify specify EF Atconotictiver disease C Unknown S Seman 8 gm S mmm nt 5 semma T memm S me me Curentimmuncsuppressive drug a Steroids I e Mycophenola
24. set from 60 minutes and will decrease each time the application left idle If the application is left idle for more than 60 minutes the application will be logged off automatically 29 58 Picture 1 1 Timer National Transplant Registry NTR for Liver Transplant Web Application Version 1 0 2 0 SECURITY Each authorised user is required to read through understand and sign The Security Policy for NTR Web Application before being authorised to access the application This is to ensure that users play an active role in ensuring security of data at their level 2 1 Policies and Practices as follows As a good security practice you are strongly advised to Keep your password confidential Avoid sharing or divulging your Password to anyone This includes any person who may appear to represent or work for the Registry Our administrator do not request for your password at any time Avoid using the same Web Application Password for any other web based services such as for e mail or for Internet Service Provider login Avoid choosing a Password that is easily anticipated by a third party like your NRIC number telephone number date of birth etc You should select a unique Password to make it difficult for anyone to anticipate Avoid writing down or saving your Password on your browser or any other software Memorizes your Password If you suspect your Password may have been compromised change your Password immediately Tips You
25. st to delete notification Note Only manager can delete a record that has been requested to delete by user IF user has request to delete wrong form user can call the manager to undo the pending request delete Follow Up Outcome Section Outcome result in Noification form Click on this red button to ADD Follow Up Outcome Patient Tx Id ee OOS Back to New Patient Registration Picture 1 19 Liver Transplant Notification List Add new outcome Click on the Add button a to add new follow up outcome Key in all the compulsory fields and then click the save button Date of Outcome Notification dd a a Seana Date of outcome date of death date of last follow e Date of Follow Up dd mm yyyy 22 04 2010 E up osh detothe Death due to other causes specitycause od Not available Missing Alive with functioning graft tissue Lost to follow up center Jerse evanslan spec cause oe peci L o SOE raft failure s cause Patient outcome E hi fy a a peoe moop seecae OOOO Picture 1 20New outcome form 15 National Transplant Registry NTR for Liver Transplant Web Application Version 1 0 After saving the outcome form user will be brought back to the Liver Transplant Notification list as shown in Picture 1 21 Add second Follow Up Outcome List or more Liver Tx un PatientTx Name oft ylz 3 f r no mm aa Back to New Patient Registration Picture 1 21 Liver Transplant Notification List Follo
26. te motett MMF LI LOtherspecty E b Azathioprine Rapamycin unknown E e cyclosporina E g Monoclonalipolyclonal antibodies E Tacrolimus FK506 T AntiIL2R Antibodies RECIPIENT DONOR DONOR MATCH DATA TRANSPLANT SURGERY COMPLICATIONS OUTCOME AUDIT Indication for transplantation T a Recurrent encephalopathy a f Malignancy Picture 1 17 Liver Transplant Notification View notification To update notification record click on the blue Update icon 4 or click edit button on the View Page Picture 1 17 Click save button after update the notification 14 National Transplant Registry NTR for Liver Transplant Web Application Version 1 0 To request delete notification record click on the blue request delete icon iB Fill in the Reason for request delete and click the request delete button bibs J Reason Request Delete sec Name of reporting center ee a nk acifinsin 08 04 2010 ii Name of transplant center others ssl in reason to request delete 08 04 2010 Mace otuanetcoar oaa e lick the Request Delete Po utton Missing tnestdecome atom Beasain mtr uono RECIPIENT DONOR DONOR MATCH DATA TRANSPLANT SURGERY COMPLICATIONS OUTCOME AUDIT TEST NRIC ee 880222 50 2222 SSS a a Other ID document number document number s eet f m pecify document type if others Other specify Picture 1 18 Liver Transplant N Transplant Notification Request to lotification Reque
27. w Up Outcome List To view outcome record click on the blue View icon ee on the Follow Up Outcome List c 3 ti 21 04 2010 e poms Date of outcome date of death date of last follow Date of Follow Up dd mm yyyy 22 04 2010 up Moved to another center name of new center Retransplant specify cause 2 oe live with functioning graft Graft failure specify cause ees Patient A Alive with functioning graft Specify ai Transplant related death specify cause ae Intraoperative death specify cause aa ee Death due to other causes specify cause 1 Request Delete O 2 Request Delete Date 3 Request Delete Userid 4 Request Delete Reason 5 Date Registered 22 04 2010 09 58 00 6 Lastupdatedby vere 7 Registeredby leme 8 DatetimeLastupdate 22 04 2010 09 58 00 9 Reason For Change Insert Liver_Transplant_OutcomeController Picture 1 22 Follow Up Outcome View page To update outcome record click on the blue Update icon I4 on the Follow Up Outcome section or click edit button EG on the View Page Picture 1 22 Click save button after update the notification To request delete notification record click on the blue request delete icon lx Fill in the Reason for request delete and click the request delete button e Se Date of Outcome Notification dd Hott Fill in reason to request delete then click the Request Delete Picture 1 23 Follow Up Outcome Request to delete page 16 National Transplant Registry
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