GIPA Report Card User Guide
Contents
1. Development agencies Civil Society Organisations National AIDS Councils Donor organisations Various levels and lengths of involvement in country s HIV response GIPA REPORT CARD GUIDE 2009 1 6 INTERVIEW LOGISTICS Decide on safe and quiet location for the interviews and make arrangements for travel depending on if you will need to travel to meet people or have them meet you Take time to arrange for suitable venues in which the interviews can be conducted and also establish a safe place to store all your interview data and completed questionnaires Be sure to use a locked filing cabinet for hard copies of your study materials and a password protected folder on a computer with password protected backup on USB stick or disk where you can store individual electronic files It is also recommended to remove all personal data from questionnaire forms and store this separately with the consent forms using the same number codes on each for the same person Depending on project funding your team will need to decide an appropriate honorarium amount It is customary to compensate interviewees for the time they have taken to participate in the interview 1 7 GETTING YOUR INTERVIEW RESPONDENTS Through the questionnaire your team will gather respondent s observations ideas feelings and thoughts on how the GIPA principle and the meaningful involvement of PLHIV is taking place in your country The minimum number2. GIPA Ager Guide Published by The Global Network of People Living with HIV AIDS GNP P O BOX 11726 1001GS Amsterdam The Netherlands Website www gnpplus net E mail infognp gnpplus net Some rights reserved This document may be freely shared copied translated reviewed and distributed in part or in whole but not for sale or use in conjunction with commercial purposes Only authorised translation adaptation and reprints may bear the emblems of GNP Enquiries should be addressed to GNP P O BOX 11726 1001 GS Amsterdam The Netherlands infognp gnpplus net May 2009 The Global Network of People Living with HIV AIDS GNP Graphic design www samgobin nl Suggested citation The Global Network of People Living with HIV AIDS GNP 2009 GIPA Report Card Amsterdam GNP KEY PROCESS STEPS TO IMPLEMENT THE GIPA REPORT CARD About the GIPA principle The Greater Involvement of People Living with HIV GIPA is a principle that aims to realise the rights and responsibilities of people living with HIV to self determination and meaningful participation in decision making processes that affect their lives By promoting and strengthening the involvement of PLHIV the application of the GIPA principle enhances the quality and effectiveness of HIV responses About the GIPA Report Card The GIPA Report Card is a means of generating evidence about the application of the GIPA principle in country based on the
3. asking for comments please feel free to ask prompt questions to help garner more information Below are a series of example questions that are intended to help the team member performing interviews through the interview process and get the interview respondent to provide some context to their replies Example prompt questions Please explain further Whye Or why note Please tell me a little bit more Why was that process effective or not effective How could have things been made better GIPA REPORT CARD GUIDE 2009 7 Why do you think people living with HIV were not involved in that process What made people living with HIV involvement successful in that process If people living with HIV were not involved what were the barriers to involvement How were barriers overcome Or how could barriers have been overcome GIPA KNOWLEDGE COMPONENT Conducting a workshop on the GIPA principle and the meaningful participation of PLHIV is highly recommended This can be done for the interview respondents and also among the wider community during the GIPA Report Card implementation process The process of implementing the GIPA Report Card should be viewed as an opportunity to support the advocacy aims of the end result of the project The GIPA Report Card should not only be seen as a research project and in fact the process of doing the research can be used to build technical knowledge of the GIPA principle and how
4. information gathered will be contributing to advocacy for more meaningful involvement of people living with HIV in the response to HIV I have also been advised that my participation will in no way impact my agency s or organisation s relationship with or funding from Privacy amp Confidentiality I understand that if the interview is recorded I will be asked to use only my first name or a nickname pseudonym during the interview and that inadvertent mention of last names will be deleted from the interview transcript All first names or nicknames will be changed to only initials in the interview transcript I understand that only the research team will have access to the research data All recordings and data will be destroyed at the conclusion of the study Publication of Research Findings I understand that aggregate results of the research may be published in a final report and in professional journals Quotations from the interviews may be included in the results in an aggregate form without reference to participants names or identifying information Reimbursement I understand that I will receive for my participation in this study Dissemination of Findings I understand that as a research participant I may request a copy of the final report by contacting Copy of Informed Consent for Participant Iam being given a copy of this informed consent to keep for my own records GIPA REPORT CARD 2009 GIPA Report Card Briefing P
5. separate from the interviews just in case the team does any follow up evaluation interviews C The interview respondent is provided with a copy of the questionnaire and is guided through it by the nterviewer It is recommended to record responses with a digital recorder Alternatively they can be manually transcribed using a computer however this method is not recommended If neither of these other options is available the interviewer can ask the respondent to clearly write down all responses into the questionnaire If possible use two 2 digital recorders to safeguard against low batteries or loss D When the questions are finished the interview respondent is asked if they any questions or if they would like to provide any more information The interview respondent is given some time to reflect on their answers and see if they have any more information E Finally the interview respondent is then thanked for their time when the discussion questions have concluded and they are provided with a monetary honorarium for their time SOMETHING TO REMEMBER Having all your responses inputted electronically will help with i developing your report and will also ensure that responses are legible as some interview respondent s poor handwriting may obscure the i intent of their responses As a majority of the questions are seeking respondents to Agree or Disagree replies or are just generally
6. to advocate on its application within country policies and programmes Key resources GIPA Report Card Briefing Paper Key areas to cover in the workshop s The origins of the GIPA principle The benefits of acting on the GIPA principle for organisations governments and PLHIV in order to influence policy programmes and funding actions The GIPA principle in practice including examples of how to meaningfully involve PLHIV in policy development and programming Developing indicators for measuring the application of the GIPA principle 3 DEVELOPING THE GIPA REPORT CARD The GIPA Report Card will only be successful if the final report is rooted in data collected through the in h an terviews and the Literature and Policy Review For e final GIPA Report Card to have integrity meaning d to be used effectively as evidence to inform advocacy efforts the final report must accurately e th flect what the interview respondents indicated and e information gathered in the review Here is a suggested step by step guide to developing the final report Ensure when planning that plenty of time is devoted to the final report as this is the most important part of the process The final report will be the GIPA Report Card Listen to all of the interviews or read all of the questionnaires depending on how you recorded your data Gather quotes from the interviews which convey an overall consensus or highlight d
7. views and experiences of people living with HIV The evidence will contribute to monitoring and evaluating governments and organisations application of the GIPA principle with the aim of enhancing the programmatic policy and funding actions taken to realise the greater involvement of people living with HIV in a country s HIV response Depending on each country and the partners involved the GIPA Report Card will be realised in different ways In each case people living with HIV must be at the center of the process guiding the implementation of the GIPA Report Card While multiple variations will occur either cultural regional or others a number of key process components are recommended to effectively implement the GIPA Report Card The following recommended processes are described below 1 Getting started preparation and planning 2 Doing the interviews 3 Developing the GIPA Report Card 4 Getting the results out GIPA REPORT CARD GUIDE 2009 1 GETTING STARTED PREPARATION AND PLANNING A team of 2 3 people may be needed to develop the GIPA Report Card from start to finish Collaboration with people living with HIV PLHIV networks at state provincial regional and national levels will be needed to gain wide ownership of the process Through the collaboration identify a small team of PLHIV with the skills needed to develop the GIPA Report Card Consultants will need the following skills and resources Writ
8. ERIA FOR WHOM TO INTERVIEW It is important to have an idea of the types of people your team will want to interview It is recommended that the interviews be targeted to key individuals including the UNAIDS Country Coordinator and manager of the National AIDS Programme The GIPA Report Card should aim to include a total of twenty five 25 interview respondents Examples of whom to target for interviews are Executive Director of National and State level PLHIV Networks Board Chair of National and State level PLHIV etworks LHIV CCM Representatives LHIV working in the United Nations LHIV working in Government Ministries GIPA Officers PLHIV Representatives on National HIV Programme Committees for the National AIDS Plan U U U However there may be other key individuals your team would like to interview Think about what experiences are important to capture among the people living with HIV that will be interviewed Setting criteria can help ensure that your team selects the appropriate individuals to interview and timately will get valuable data for the final report This is an important area to consult your partners on u Below are some suggested criteria Representative of and or working with key populations Engagement in organisations and mechanisms related to the country s HIV response such as PLHIV networks Country Coordinating Mechanisms UNAIDS secretariat and Co sponsors
9. act if I have more questions about the GIPA Report Card If you have any general questions about the project please feel free to contact For more information on participating in interviews please contact THANK YOU GIPA REPORT CARD 2009 Interview number Interviewee Consent Form Interview date Title of Research Project GIPA REPORT CARD Background amp Purpose of Research The is implementing the GIPA Report Card which aims to increase and improve the programmatic policy and funding actions taken to realise the greater involvement of people living with HIV in a country s HIV response Investigators This project is being coordinated and supported by The GIPA report card was developed and is being implemented by people living with HIV The development and implementation of the tool has been led by the Global Network of People Living with HIV AIDS GNP with support from UNAIDS I understand that if I have any questions about the research procedures I can contact the project coordinator Invitation to Participate I understand that I am being asked to participate in a research study to increase understanding of how people living with HIV are meaningfully engaged in various levels of the HIV response including programmatic funding and policy within my county Procedures I understand that my participation in the study will involve taking part in a one on one interview lasting approximately 45
10. aper About the GIPA principle The Greater Involvement of People Living with HIV GIPA is a principle that aims to realise the rights and responsibilities of people living with HIV to self determination and meaningful participation in decision making processes that affect their lives By promoting and strengthening the involvement of people living with HIV PLHIV the application of the GIPA principle enhances the quality and effectiveness of HIV responses About the GIPA Report Card The GIPA Report Card is an advocacy tool which aims to increase and improve the programmatic policy and funding actions taken to realise the greater involvement of people living with HIV in a country s HIV response It is seen as a means of monitoring and evaluating governments and organisations application of the GIPA principle particularly in light of the 2001 United Nations General Assembly s Special Session on HIV and the Declaration of Commitment The need for developing a GIPA Report Card was identified at a PLHIV Think Tank Meeting in 2005 The process for developing this GIPA Report Card involved a literature review and telephone interviews with men and women living with HIV from all regions who are either working in organisations and networks of PLHIV or for nongovernmental organisations donor agencies or United Nations agencies or who have previously worked extensively on the application of the GIPA princip
11. ative data the interview respondent s thoughts ideas and feelings this is the kind of data you will be collecting through the comments sections and open ended questions of the questionnaire nterviews should be conducted one on one and not in groups The best way to collect qualitative data is to do your interview face to face meaning that the respondent being interviewed and the interviewer from your team are meeting face to face Having interview respondents self administer the questionnaire will likely result in your team not gathering enough data from the interview to contribute to the final report However based on your budget and location you may have to have certain interview respondents do their interview via email The interview should take between 45 minutes to one hour From start to finish the interview process could go as follows A Before the interview the interviewer makes sure that the interview respondent understands the intent of the project The interview respondent is provided with a verbal overview of the project and goals of GIPA Report Card by the local team member A copy of the GIPA Report Card Briefing Paper and the Community Member and Interviewee Information Sheet are provided B The interview respondent agrees to participate and signs the consent form Contact information email address phone number fullname and signature are provided Contact information is kept
12. f people living with HIV and the Global Network of People Living with HIV AIDS GNP GIPA REPORT CARD GUIDE 2009 Community Member and Interviewee Information Sheet What is this project about The GIPA Report Card is an advocacy tool which aims to increase and improve the programmatic policy and funding actions taken to realise the greater involvement of people living with HIV ina country s HIV response Who is running this project The GIPA Report Card was developed and is being implemented by people living with HIV The development and implementation of the tool has been led by the Global Network of People Living with HIV AIDS GNP with support from UNAIDS The contact information of your local researcher will be at the bottom of this sheet How will selected interviewees participate in this project We are asking a diverse range of people living with HIV to participate in a one on one interview that will consist of 14 questions lasting approximately 45 minutes to one hour We are looking for people living with HIV with experience in their country s HIV response The interview will involve a discussion about personal experiences and perspectives regarding the application of the GIPA principle as well as barriers to involvement and the personal initiative to be involved including safe space for disclosure clarification on why one is getting involved and strategies to deal with stigma discrimination and bu
13. how the GIPA principle and PLHIV involvement is discussed in current policies and other selected documents across the country Evaluative the review should include critical statements analysing the described policies and selected documents by indicating relations contradictions gaps and inconsistencies Integrative the review should be able to compare and contrast how the GIPA principle is or is not discussed in to the policies and other selected documents SOMETHING TO REMEMBER When reading the entire collected documents make sure to look for cases where the GIPA principle is or is not included Look for cases where people living with HIV are involved in participatory mechanisms e g if people living with HIV were consulted inthe development of the National AIDS Plan and if there are specific people living with HIV with designated governance staff and volunteer i positions 1 4 MATERIALS TRANSLATION Make sure to devote an appropriate amount of time and financial resources to accurately translate the GIPA Report Card Questionnaire Community Member and Interviewee Information Sheet and Interviewee Consent Form and other materials Some of the technical language in the documents may take time to translate therefore the translation process should be organized well in advance If funds are limited the materials could be translated verbally to the respondents during the interview 1 5 SETTING CRIT
14. iffering opinions on key topic areas from the questionnaire Synthesize the questionnaire responses into the Report Template and include the collected quotes where appropriate Include the already developed Literature and Policy Review at the beginning of the final report Also make sure to include the bibliography at the end of the report draft Once each section is finalized summarize overall themes from the findings into a one page country overview or executive summary Include the overview or executive summary at the front of the final report When the draft is completed ensure that a number of people from the team act as editors and review the draft The editor s role is to ensure that the final report is accurate and reflects what was said in the interviews Once the draft report has undergone a review process and revisions then itis ready to be disseminated GIPA REPORT CARD GUIDE 2009 Contact GNP gipareportcard gnpplus net 31 20 423 4114 for an electronic copy of a Report Template 4 GETTING THE RESULTS OUT The results of the GIPA Report Card should have wide ownership among all the partners interview respondents and the community of people living with HIV It is important that results are shared with all partners and the people who were interviewed and there are multiple ways to disseminate the results and final GIPA Report Card Please also share the results with the regional networks o
15. ing and communication skills Research experience is a plus but not mandatory Have some experience in the local or national people living with HIV movement in your country Consistent computer internet and printer access Printing or photocopier access Digital recorders for recording interviews Key documents your team will need to get started GIPA Report Card User Guide GIPA Report Card Questionnaire Community Member and Interviewee Information Sheet Interviewee Consent Form GIPA Report Card Briefing Paper Report Template electronic version available from the Global Network of People Living with HIV AIDS GNP gipareportcard gnpplus net 31 20 423 4114 Once the team is formed and has become familiar with all the documents then the process can begin 1 1 COMMUNICATING WITH PARTNERS Connecting with the various partners who may be interested in participating in the development of the GIPA Report Card and who may also be involved as interview respondents is an important step in moving forward Identifying partners and meeting with them will help your team to communicate and build an understanding among partners of the GIPA Report Card and the intended process Speaking with the PLHIV networks the UNAIDS country office the National AIDS Programme Ministry of Health and other civil society organisations will help to garner support for the GIPA Report Card and will also help with communication efforts once you start seeking in
16. le Subsequently the draft GIPA Report Card was developed and has been piloted in four countries Kenya India Lesotho and Trinidad and Tobago Recommendations from the implementation of the GIPA Report Card in the four countries have informed an updated version of the GIPA Report Card and its accompanying tools The GIPA Report Card will continue to be adapted and improved over time based on experiences of implementing of the tool in country Who is running this project The GIPA Report Card is a prime example of the application of the GIPA principle The tool was developed by consultants living with HIV and is managed by the Global Network of People Living with HIV AIDS GNP with support from UNAIDS The tool is being implemented by people living with HIV networks in country GIPA Report Card Objectives The objectives of the GIPA Report Card are to 1 Provide information on the current level of application of the GIPA principle which will serve as a baseline against which future application of the GIPA principle can be measured 2 Hold governments NGOs United Nations agencies donors organisations of PLHIV and other stakeholders accountable to their commitments relating to the application of the GIPA principle 3 Increase and improve the meaningful participation of PLHIV in different sectors within the broader national response to the HIV epidemic in a country 4 Assist in developing indicators to monitor a
17. le and PLHIV involvement is discussed in policies and guidance documents A Literature and Policy Review generally looks at key documents on a specific topic and analyses them for a specific purpose In this case government and organisational HIV policies will be analysed for how they integrate the GIPA principle and discuss the involvement of people living with HIV The Literature and Policy Review provides the final GIPA Report Card a broad perspective and understanding of how the GIPA Principle is or is not being written about in policy documents in your country Key documents to be gathered include national state and district strategic plans organisational by laws from Non Governmental Organisations and PLHIV networks GIPA Principle guidance documents country United Nations General Assembly Special Session on HIV AIDS UNGASS reports and civil society shadow UNGASS reports Country Coordinating Mechanism CCM Terms of Reference organisational pamphlets and other information When the Literature and Policy Review is finalised make sure to include a bibliography of all referenced documents Suggested format for the bibliography is in APA style use the following online style guides for assistance www library uq edu au training citation apa pdf www wisc edu writing Handbook DocAPA html 4 GIPA REPORT CARD GUIDE 2009 A Literature and Policy Review should be Informative the review should contain a neutral description of
18. minutes to one hour I will be asked 14 questions looking at the experiences of people living with HIV with experience in their local country response The interview will involve a discussion about personal experiences and perspectives regarding the application of the GIPA principle as well as barriers to involvement and the personal initiative to be involved including safe space for disclosure clarification on why one is getting involved and strategies to deal with stigma discrimination and burnout understand that the interview may be audio recorded and transcribed and that all information I share will be coded in such a manner that I cannot be identified The data will be used only for research purposes and the development of a report on the meaningful involvement of people living with HIV in my country Voluntary Participation I understand that my participation in this research study is purely voluntary and that I am free to withdraw from the interview at any time I can choose not to participate in any discussions or answer any questions in the interview that I do not want to Risks amp Benefits I understand that as a participant I might recall emotionally upsetting experiences during the interview However I have the right not to participate in any discussions or answer any questions which make me feel uncomfortable GIPA REPORT CARD 2009 I understand that although I may not benefit from involvement in this study the
19. nator and National AIDS Programme Manager or equivalents to arrange interview dates and times make sure to be flexible and allow plenty of time in advance Contact your countries UN Plus representative if applicable to get to word out to colleagues in country UN Plus is the United Nations System HIV Positive Staff Group For more information please visit their website www unplus org ake sure to set a timeline within which people will need to respond by and make sure to add dates and contact information on all communication materials SOMETHING TO REMEMBER You will not be able to interview everyone who contacts you or everyone who fits your criteria Your team will want to ensure that the persons selected as interview respondents have a certain amount of knowledge to be able to effectively contribute i to the GIPA Report Card It may be important to liaise with partners to discuss your potential interview respondents in order to ensure that you i get broad and knowledgeable perspectives cosesocsssocosessososoosososossecosessososococsosocsecosossocososocsoso 6 GIPA REPORT CARD GUIDE 2009 2 DOING THE INTERVIEWS Your team will be gathering various kinds of information during the interviews including quantitative data data that can be measured ina unit or numerically this is the kind of data you will be gathering with the agreement or disagreement questions in the questionnaire and qualit
20. nd evaluate the quality and impact of PLHIV engagement and 5 Provide follow up recommendations to enhance stakeholders governments NGOs United Nations agencies donors organisations of PLHIV identification of opportunities and entry points for the application of the GIPA principle within their organisation or institutions and in their policies and programmes including cost estimates The GIPA Report Card is to be owned developed and implemented by PLHIV through a bottom up process including broad and diverse consultation GIPA REPORT CARD 2009 GIPA Report Card Outline It is envisaged that ultimately the GIPA Report Card questionnaire will cover a broad range of the issues relating to the various stakeholders governments GOs multilaterals United Nations agencies organisations of PLHIV and other stakeholders It is proposed that the GIPA Report Card addresses the following three levels 1 Macro Institutional level government policy level such as UNGASS follow up processes and programmes and institutions such as CCMs There must be laws and policies for protecting PLHIV who become involved including access to affordable health care such as life prolonging medication and capacity building as required 2 Meso Organisational level organisational level focusing on government ministries NGOs and organisations of people living with HIV Pre conditions for safe involvement include sensiti
21. of interview respondents suggested is twenty five 25 a majority of whom are living with HIV We also recommend interviewing one 1 UNAIDS Country Coordinator or equivalent and one 1 National AIDS Programme Manager or equivalent Depending on your country and resources for the project this number can vary depending on what your team decides is appropriate however less then twelve 12 respondents is not recommended Now you will need to get the word out so that people living with HIV will be available to take part in the interview process There are various ways to get the information out to potential individuals you might want to interview One simple way to do this is by using the Community Member and Interviewee Information Sheet You could send out invitations with the information sheet attached describing the GIPA Report Card and indicating that your team is looking for interested parties on PLHIV network list servs Be proactive and directly contact people you think are important to be interviewed ake a poster about the GIPA Report Card and post it in PLHIV networks offices ake sure to give your respondents appropriate time to schedule an interview time be flexible your team will want to make sure you get the right people interviewed Get references from others such as Board members from PLHIV networks UNAIDS staff Country Coordinating Mechanism members and others When contacting the UNAIDS Country Coordi
22. rnout How are interview participants selected to participate The information in this sheet is only for information purposes it does not indicate you have been selected to participate in an interview Interviewees will be selected by using criteria to ensure those interviewed have a diverse range of experiences within the country HIV response and also represent local HIV prevalence trends If you are interested in participating or know someone who might be please contact the researcher What will happen to the information provided during the interview All the information gathered will be put into a final report which can then be used to further develop the GIPA Report Card tool and may also be used towards advocacy efforts and to support more effective application of the GIPA principle The information provided during interviews will be used to report on the successes and challenges faced within your country in regards to the application of the GIPA principle within policies and programmes How will interviewee participation be confidential Interviewees will be asked to give their name and organisational information during the interview however this will not be included in the report There will be no way of connecting them with the information provided Will interviewees be compensated for participation Yes each selected interviewee will be given for their time participating in the one on one interview Who can I cont
23. terview respondents This may also assist your team with practical issues as your connections may help to support the GIPA Report Card if your partners are willing to assist with logistical or other supports Suggested partners are UNAIDS National AIDS Programme Ministry of Health GIPA staff or officers in the government Non Governmental Organisations delivering care and support to people living with HIV and all PLHIV networks 1 2 WORKSHOP ON RESEARCH SKILLS FOR GIPA REPORT CARD TEAM The GIPA Report Card is primarily aresearch project Some basic research skills are required by the team to implement the project effectively The GIPA Report Card team should take part in a focused skills development workshop to build research skills such as understanding different research approaches how to conduct interviews research ethics analysing data and using research data to mobilise policy change Suggested Resources Some useful resources cbr cbrc net modules php name Topics amp area Library Online ethics tutorial www pre ethics gc ca english tutorial Guideline for ethics in international settings ethics cahr acrv ca CAHRreportFinal pdf How to on conducting interviews cbr cbrc net files 1075145804 InterviewingFocusGrp Techniques pdf 1 3 WRITING THE LITERATURE AND POLICY REVIEW A vital component to the GIPA Report Card is the Literature and Policy Review which will provide an overview on how the GIPA princip
24. vity training for colleagues information about the opportunities for the application of the GIPA principle appropriate training for the tasks to be undertaken and optimal use of existing skills 3 Micro Individual level barriers and or facilitators to involvement It has to be a personal initiative to be involved and should be accompanied by a safe space for disclosure counselling and support clarification on why one is getting involved and strategies to deal with stigma discrimination and burnout Evidence based advocacy The GIPA Report Card is a means of generating evidence about the application of the GIPA principle in country based on the views and experiences of people living with HIV The evidence will contribute to monitoring and evaluating governments and organisations application of the GIPA principle with the aim of enhancing the programmatic policy and funding actions taken to realise the greater involvement of people living with HIV in a country s HIV response For more information please visit www gnpplus net GIPA REPORT CARD 2009 The Global Network of People living with HIV AIDS GNP is a global network for and by people living with HIV GNP advocates to improve the quality of life of people living with HIV For more information please visit www gnpplus net
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