Home

User's manual

1. Num Name Type Default Formula Description 112 FREQUENZA8 CHAR 8 previous value Other drug frequency 113 FREQUENZA9 CHAR 8 previous value Other drug frequency 114 FREQUENZAA CHAR 8 previous value Other drug frequency 115 FREQUENZAB CHAR 8 previous value Other drug frequency 116 FREQUENZAC CHAR 8 previous value Other drug frequency 117 FREQUENZAD CHAR 8 previous value Other drug frequency 118 FREQUENZAE CHAR 8 previous value Other drug frequency 119 FRUTTOS NUM 6 2 Fruttos 120 FSH NUM 6 2 FSH 121 FT4 NUM 6 2 FT4 122 FTG NUM 7 2 FTG 123 GAMMAGT NUM 6 2 GammaGT 124 GLICEMIA NUM 6 2 Glicemy 125 GLICEMIA_BASALE NUM 7 2 Basal Glicemy 126 GLICEMIA_POST NUM 7 2 Post Glicemy 127 GLOBULI B CORR NUM 6 2 Formula 35 pag 44 Absoluted white blood cells 128 GRAMMI_TRAS NUM 5 1 Formula 1 page 39 Transfused DFO amount 129 GRAMMI_TRASF_P NUM 6 2 Prescribed transfused DFO amount 130 GRAVI CHAR 2 DFO reaction gravity 131 HB CONTR NUM 5 1 Hb at check 132 HB_FIX NUM 5 1 Desired hb pre 133 HB_POST NUM 5 1 Formula 3 pag 39 Hb post 134 HB_POST_TIPO CHAR 1 Type HB post 135 HB_PRE NUM 5 1 Hb pre 136 HB_PRE2 NUM 5 1 Desired hb pre 137 HBC NUM 6 2 HBC 138 HBS NUM 6 2 HBS 139 HCV NUM 6 2 HCV 140 HCV_RIBA CHAR 5 HCV_RIBA 141 HOV_RNA CHAR
2. kg Unnary iron excretion med Ascorbic Acid dosage E mg Hotes i Type of chelation The Vitamin C and weight fields are imported automatically from the Day Hospital record nearer to the infusion date to be entered In the presence of updated values enter them During printing the program calculates some data such as the administered dose of desferal and the excreted iron 21 Annual summary Patient Name 7 Annual Summary E WebTHAL functions include calculation and arrangement of patients annual data The program creates a summary record for every year of life of the patient This function is enabled by choosing the Summary calculations function button E i Calculations can be done for the current year or for all years for a single patient or for all patients E Summary of ALT ALT 1205 2001 CALCULATION OF SUMMARY Year E001 Call Years Calculation of a single patient ALT ALT Calculation of all the patients The program is automatically preset to do calculations for a single patient and for all available data All years The operation may require a lot of time if you want to update the data of one year set it in the relevant box select the related check and press the Summary calculations button If you want to update the summary file for all patients choose the year to be updated and select the check relating to the Calculation for the record o
3. FARMACOC CHAR 13 previous value Other drug 78 FARMACOD CHAR 13 previous value Other drug 79 FARMACOE CHAR 13 previous value Other drug 80 FEGATO NUM 4 2 Liver margin 81 FEQ CHAR 2 DFO frequency reaction 82 FERRITINA NUM 5 Ferritin 83 FIBRI NUM 6 2 INR 84 FILTRATE CHAR 1 Filtrated in bed Sacs type 85 FOLATI NUM 6 2 Folati 86 FREE1 CHAR 10 Blood test dosage 87 FREE1 DOSE CHAR 3 not used 88 FREE1_ NOME CHAR 10 Blood test 89 FREE2 CHAR 10 Blood test dosage 90 FREE2_ DOSE CHAR 3 not used 91 FREE2 NOME CHAR 10 Blood test 92 FREES CHAR 10 Blood test dosage 93 FREE3 DOSE CHAR 3 not used 94 FREE3_NOME CHAR 10 Blood test 95 FREE4 CHAR 10 Blood test dosage 96 FREE4 DOSE CHAR 3 not used 97 FREE4_NOME CHAR 10 Blood test 98 FREES CHAR 10 Blood test dosage 99 FREE5 DOSE CHAR 3 not used 100 FREE5 NOME CHAR 10 Blood test 101 FREE6 CHAR 10 Blood test dosage 102 FREE6 DOSE CHAR 3 not used 103 FREE6 NOME CHAR 10 Blood test 104 FREQ_CARD NUM 5 2 Hearth frequency 105 FREQUENZA NUM 3 Desferal frequency 106 FREQUENZA2 NUM 3 L1 frequency 107 FREQUENZA3 CHAR 8 previous value First drug frequency 108 FREQUENZA4 CHAR 8 previous value Second drug frequency 109 FREQUENZA5 CHAR 8 previous value Third drug frequency 110 FREQUENZA6 CHAR 8 previous value Other drug frequency 111 FREQUENZA7 CHAR 8 previous value Other drug frequency 53
4. HbA2 HbA2 HbA2 HbA2 HbF HbF HbF HbF HbF HbF HbF HbS HbS HbS HbS HbS HbS HbS Genotype B Genotype B Genotype B Genotype B Genotype B Genotype B Genotype B Genotype a Genotype a Genotype a Genotype a Genotype a Genotype a Genotypea Altro Altro Altro Altro Altro Altro Altro HLA HLA HLA HLA HLA HLA HLA ABO ABO ABO ABO ABO ABO ABO Rh Rh Rh Rh Rh Rh Rh Legenda Female Healthy Carrier Male Sick 16 Entering a Day Hospital admission To enter a Day Hospital admission go to WebTHAL main page select the patient select the 3 Day Hospital file and click the enter icon A small window will be displayed containing the current date 62 110 51 28 JavaScript Application Hew day hospital date Cancel To cancel this operation press the Cancel button If the current date is not the date of admission that you intend to enter cancel the current date and enter the correct date The date will be reported as date of admission to the new Day Hospital If the date matches an existing admission the program will automatically positioned on the change of the corresponding admission At this point the mask with all the Day Hospital fields is displayed and you can enter data After entering the date the test haemoglobin and the pre post transfusion haemoglobin the program will automati
5. 172 NOTE2 CHAR 20 Comments 173 NUCLEATE NUM 6 2 Formula 34 pag 44 Nucleatee 174 NUM_INF_SC NUM 2 not used 175 OBIET CHAR 70 Phisical examination 176 P NUM 6 2 P 177 PAOS NUM 9 2 Paos 178 PESO NUM 6 1 Weight 179 PIASTRINE NUM 6 2 Platelets 180 PRO_LATT NUM 6 2 PRL 181 PROVV CHAR 30 Reaction therapy 182 PSACCA CHAR 10 Number first sac 183 PT NUM 6 2 PT 184 PTT NUM 6 2 PTT 185 Q_PSACCA NUM 4 Hematocrit 186 Q_QSACCA NUM 3 Hematocrit 187 Q_RSACCA NUM 4 Hematocrit 188 Q_SSACCA NUM 3 Hematocrit 189 Q_TSACCA NUM 3 Hematocrit 190 Q USACCA NUM 4 Hematocrit 191 QSACCA CHAR 10 Fourth sac number 192 REAZIONI CHAR 14 NO L1 reactions 193 RSACCA CHAR 10 Fifth sac number 194 SEDE CHAR 2 DFO reactions point 1 14 195 SEDI CHAR 40 Local reactions 196 SGOT NUM 4 not used 197 SGPT NUM 4 not used 198 SIDER_SC NUM 7 2 Sideruria 199 SIDEREMIA NUM 7 2 Sideremia 200 SSACCA CHAR 10 Second sac number 201 STATURA NUM 7 2 Height 202 SUPERF NUM 6 2 Body surface 203 TEMPO CHAR 2 Time of appearence 204 TERAP_REAZ CHAR 27 Pre Reaction Therapy 205 TERAP_REAZ_ POST CHAR 100 Post Reaction Therapy 206 TERAPIA CHAR 22 not used 207 TIPO CHAR 6 not used 208 TIPO_DESF CHAR 2 not used 209 TIPO_INF CHAR 50 Desferal type 210 TIPO_LIC CHAR 50 LIC type 211 TIPO SIST_LOC CHAR 50 Reaction type systemic local 212 TIPO VISITA CHAR 50 Hospitalization type DHT DHNT A
6. 27 29 32 35 39 45 52 Day Hospital File 39 52 Deferiprone 3 12 28 29 44 64 65 Deletin 14 deleting 3 14 desferal 40 discharge 3 19 30 Dynamic E C G Card 31 E Ecocardiography Card 31 entering 6 10 11 13 15 17 27 entral venous catheter 21 Ergospirometry card 31 erythrocytes 25 export 12 32 F Family tree 3 10 15 16 50 Family tree Tests file 50 Ferriprox 29 Ferritin 44 Formulas 3 17 20 39 H haemoglobin 17 32 Hb 29 39 40 43 45 50 52 54 57 61 65 Hb desired 44 HOLTER 31 67 68 69 I instrumental tests 3 19 24 66 intensive chelation 3 21 60 IV infusions 21 M Main function buttons 3 9 main function buttons 8 mainmenu 10 main page 3 4 8 10 11 13 15 17 18 23 24 32 manual 1 2 10 31 modification 11 P password 6 10 personal data 3 10 13 15 25 46 50 Personal Data File 3 10 13 14 25 46 printing 3 11 21 24 25 29 printmenu 24 protected mode 7 R Requesting a transfusion 25 S scheduler 3 12 19 29 search 3 10 12 14 32 34 38 Search operators 3 32 34 server 5 7 server name 9 SIDERURIA 3 20 42 44 55 60 61 64 65 Sideruria File 43 64 Siderurie 1 simple search software house specialist examinations Summary calculation Summary File 63 T Transfusion requests file 61 3 11 14 32 35 37 6 13 14 19 29 30 66 12 22 Transfusion sac data 3 12 27 U user 1 2 6 9 11 13 17 W WebTH
7. COMUNE CHAR 35 City 24 D 1TRASF DATA First transfusion date 25 D 2TRASF DATA Transfusion date 26 D CHEL DATA Begin of chelation date 27 D _ DIAGNOSI DATA Diagnosis date 28 D EMO DATA Blooad group definition date 29 D _HBSAG DATA Hbs date eventuallly 30 D HCV DATA Hev positive date eventually 31 D_HIV DATA Hiv positive date eventually 32 D_POSIZION DATA not used 33 D REAZ DATA copied from DH Reaction date eventually 34 D SPLENECT DATA Splenectomy date if done 35 D TRAPIANTO DATA Transplantation date if done 36 DATA CARDIO SINTO DATA Pre clinical cardiopaty date 37 DATA CARDIO STRU DATA Clinical cardiopaty date 38 DATA MORTE DATA Death date 39 DATA1_ CARDIO _ SINTO DATA Pre clinical cardiopaty date 46 Num Name Type Default Formula Description 40 DATA1_CARDIO_STRU DATA Clinical cardiopaty date 41 DATAC1 DATA copied from DH Complication date 42 DATAC10 DATA copied from DH Complication date 43 DATAC2 DATA copied from DH Complication date 44 DATAC3 DATA copied from DH Complication date 45 DATAC4 DATA copied from DH Complication date 46 DATAC5 DATA copied from DH Complication date 47 DATAC6 DATA copied from DH Complication date 48 DATAC7 DATA copied from DH Complication date 49 DATAC8 DATA copied from DH Complication date
8. TR aC Ct 511001 28 12 1976 26 04 2000 109 i 4620 L TUE 16 72 CHECK INFORMATION The red cells are empty fields if you want to fill them write L1 code s patient and his check date and go back to main menu choose patient 11 archive and click on update button and add absent informations If informations are ok click on Save as file button and choose file name to send as attachment to follow address deferipronei medeanetwork it click here to open the mail Cancel Save as file The National Register is maintained by prof Adriana Ceci Data must be sent to E mail address deferiprone O medeanetwork it 28 Appointment scheduler The appointment scheduler section allows you to sum up the entered data The preset date corresponds to the current day however you can choose the period freely The list of appointments can refer to a single patient or all patients The following books are provided e Hb check Day Hospital appointment for the checking of cross tests e Transfusions transfusion dates already included in Day Hospital e Requests for transfusion filling out date list of requests for transfusion filled out on a certain day period e Requests for transfusion transfusion date list of transfusions scheduled on a certain day period e Specialist examinations list of specialist examinations scheduled on a certain day the date for the examination confirmed on field is indicated from the specialist examin
9. 10 HCV_RNA 142 HCV_UNITA CHAR 50 HCV_RNA units 143 HOVRNA CHAR 50 HCV_RNA 144 HT _PSACCA NUM 6 2 0 8 Hematocrit 145 HT_QSACCA NUM 6 2 0 8 Hematocrit 146 HT_RSACCA NUM 6 2 0 8 Hematocrit 147 HT_SSACCA NUM 6 2 0 8 Hematocrit 148 HT_TSACCA NUM 6 2 0 8 Hematocrit 149 HT_USACCA NUM 6 2 0 8 Hematocrit 150 IDENTIFIER CHAR 15 copied from basic data 151 INFUS_SETT NUM 4 Formula 4 page40 Index 152 INSULINA NUM 6 2 Insul 153 INTERVALLO NUM 4 Formula 2 page 39 Transfusional interval 154 K NUM 6 2 Potassio 155 LDH NUM 6 2 LDH 156 LEUCO NUM 6 2 White blood cells 157 LH NUM 6 2 LH 158 LIC NUM 6 2 LIC 159 MEDICO CHAR 20 Docto who visit 160 MG NUM 6 2 Mg 161 MG_KG1 NUM 5 1 Formula 8 page40 mg kg Desferal 162 MG_KG2 NUM 5 1 Formula 8 page40 mg kg L1 163 MILZA NUM 4 2 Spleen 164 MOSTDOC__ KEY CHAR 18 assigned Unique identificator 165 N1 NUM 3 Formula 9 page41 Jumped desferal infusions 166 N2 NUM 3 Formula 10 page41 Jumped L1 administrations 167 NA NUM 6 2 Sodio 168 NATO DATE Birth date Copied from basic data 54 Num Name Type Default Formula Description 169 NEUTRO NUM 6 2 Neutrophils 170 NOME CHAR 17 Copied from basic data Name 171 NOTE1 CHAR 20 Comments
10. DATA ESAME DATE data attuale Examination date 5 DATA INGRESSO DATE data ultimo ricovero Hospitalization date 6 ESITO CHAR 40 Result 7 MOSTDOC_ KEY CHAR 18 assigned Unique Id 8 NATO DATE assigned Birth date 9 NOME CHAR 25 assigned Name 10 NOTE CHAR 250 Comments 11 TIPO ESAME CHAR 50 Examination type The following list shows the fields in the order of the input mask the table includes the field description the database field name and the reference number in the previous table Description Name Number Surname COGNOME 1 Name NOME 9 Birth Date NATO 8 Program PROG_STRU In basic data Hospitalization date DATA_INGRESSO 5 Examination date DATA ESAME 4 Examination type TIPO_ESAME 11 Result ESITO 6 Comments NOTE 10 Next check date DATA _CONTRI 3 Check description DATA _CONTR 2 66 Cardiology file File containing data on cardiological examinations Num Name Type Default Formula Description 1 ALDOSTERONE NUM 3 Aldosterone 2 ALTRO CHAR 50 Other 2 ALTROD NUM 5 2 Other 3 ANP NUM 3 Anp 4 CLASSE _NYHA CHAR 50 Nvha class 5 CMV NUM 3 Cmv 6 COGNOME CHAR 25 copied from basic data Surname 7 COMMENTO CHAR 250 Comments 8 COX_A NUM 3 Coxsackie A 9 COX B NUM 3 Coxsackie B 1
11. amount pure GR gt sac weight hematocrit GRAMMI_TRAS Y transfusion sac P_SACCAi Q_SACCAI 2 INTERVALLO Intervall datein previous date out INTERVALLO DATA_INGR DATA_USC_PREC NOTE T previous date out is empty or previous date out 0 interval 0 3 HB_POST 3 1 DFO Patient treated with a transfusion in 1 day with calculated hb_post and patient L1 R HB post hb pre p CA aU PUL GR average index last six month HB_POST HB_PRE GRAMMI_TRAS MED_FABB NOTE Computed only if average index last six month is not equal to 0 3 2 DFO Patient with hb_pre2 transfusion in several days HB posh mope diiy ES EE O intertransfusional index HB_POST HB_PRE2 GRAMMI_TRAS FABB_INTERTRASF NOTE Computed only if intertransfusional index is not equal to 0 see 4 2 at page 40 2 day means last transfusional day when transfusion lasts more days 3 3 Re calculation for Patient L1 using the data of the last follow up L1 HB post follow up hb average hb fall observed follow up date previous date in HB_POST HB_CONTR MED_DECR DATA CONTR DATA_INGR_PREC NOTE If follow up date previous date in gt 10 days a warning is shown 39 4 INFUS_SET 4 1 DFO Patient treated with a transfusion in 1 day with measured hb_post or patient with hb_pre2 or re calculation for patient L1 using the data of the last
12. average weight days Blood requirement CONSUMO QT_TRASFUSA 0 93 PESO_MEDIO 365 GIORNI NOTE days means 365 in case of complete year or the number of days from the begin of the year to current date 27 HB_MEDIA hb gt hb t lane AE number hb pre number hb post HB MEDIA Y HB PHE Y HB_POST number hb pre number_hb_ post 28 FE_INTROD Ironin transfused amount 1 16 0 93 FE_INTROD QT_TRASFUSA 1 16 0 93 29 FE_ELIM Desferal Patient 43 Excrated Iron gt infusions number sideruria iron eventually excreted with intensiv chelation FE_ELIM Y NUMERO_INFUS SIDERURIA SOMMA_FE_ELIM NOTE Sideruria means the sideruria done before the hospitalization used in calculations L1 Patient Excrated gt administrations number x sideruria xcrated Iron Z prescribed daily mean administrations FE_ELIM 2 NUMERO _SOMM SIDERURIA MED_SOMMINISTR NOTE Sideruria means the sideruria done before the hospitalization used in calculations 30 FE_INTR_T e FE_ELIM_T Introduced Iron pro kg die AN weight days l excreted iron Excrated Iron pro kg die lt weight days ER INTR T FE_INTROD PESO GIORNI FE ELIM T FE ELIM PESO GIORNI NOTE days means 365 in case of complete year or the number of days from the begin of the year to
13. current date 31 Yearly average of Hb_pre trasfusionale Hb_post_trasfusionale decrease Weight ALT LIC Ferritin Compliance with two compliances during a hospitalization calculate average for L1 and DFO TRANSFUSION REQUESTS FILE 32 TOT_EMAZIE urina hb post hb pre average index last six month average transfused units hematocrit TOT _EMAZIE HB DOST HB PRE MED _FABB EMATOCRITO NOTE Hb_post and hb pre are taken from the last hospitalization with not null values 33 DATA_SACCA1 hb at check hb desired at next check Transfusion date check date _ _ _ _ _ _ average observed hb fall during last six month DATA_SACCA1 DATA CONTROLLO HB CONTR HB EIX MED_DECR NOTE Hb desired at next check is taken from the last hospitalization with a not null value DEFERIPRONE FILE L1 34 ERITRO_CORR 44 NRBC total nucleated cells 100 NRBC ERITRO_ASS ERITRO_PERC NUCLEATE_TOT 100 ERITRO_PERC Absoluted NRBC count 35 GLOBULI B_CORR total nucleated cells 1 fe NRBC 100 GLOBULI_B_CORR NUCLEATE_TOT 1 ERITRO_PERC 100 Corrected white cells count NOTE If NRBC is null it is substituted with O 36 NEUTRO_CORR neutrophils x corrected white cells count 100 NEUTRO_CORR NEUTRO_PERC GLOBULI B_CORR 100 Absolut neutrophils count 37
14. previous hb post and hb pre are not equal to 0 7 DECR_PERC observed hb fall s 100 previous hb post DECR_PERC DECR_REALE 100 HB_POST_PREC hb fall NOTE Computed if previous hb_post gt 0 8 MG_KG1 e MG_KG2 dose 1000 last weight MG_KG1 DOSE1 1000 PESO MG_KG2 DOSE2 1000 PESO NOTE Computed onlyy if weight gt 0 Mg kg desferal e Mg kg L1 40 9 N1 Desferal infusions number N1 if NI gt 0 intertransfusional interval weekly prescribed infusions N 7 if NI lt 0 intertransfusional interval weekly prescribed infusions 7 if NI gt gt N1 INTERVALLO FREQUENZA1 7 N1 NOTE N1 gt 0 means the number of infusions done N1 lt 0 means jumped infusions N1 star means that all prescribed infusions have been done 10 N2 L1 administrations number N2 if N2 gt 0 interval prescribed administrations die N2 if N2 lt 0 interval prescribed administrations die if N2 N2 INTERVALLO FREQUENZA2 N2 NOTE N2 gt 0 means the number of administrations done N2 lt 0 means jumped administrations N2 star means that all prescribed administrations have been done 11 COMPLIANCE1 Compliance Desferal round OM 100 interval weekly prescribed infusions 7 COMPLIANCE1 round N1 INTERVALLO FREQUENZA1 7 100 NOTE Computed if interval f
15. the data order in the search result Click the Advanced search button 35 The displayed page allows you to 1 Choose the fields to show in the search result select the field to be added to the results of the pull down menu that contains the list of file fields and confirm by clicking the Display button You can also choose all the file fields more quickly by clicking the All button 2 Choose the result order select the order type by clicking the pull down menu Decreasing increasing order select the field on which the results from the list of file fields will be ordered and confirm by clicking the Order By button You can select several fields to order results 5 Res et Fields Ron Max number matching records Point 1 and 2 36 3 Set the search conditions e Select the field on which you want to set the condition e Select the related operator operators depend on the type of field involved in the conditions and are the same as those available for simple search e Enter the comparison value if the field provides a group of prefixed values a menu is displayed below the field with the values provided for the field e Confirm the set condition by clicking Add Condition You can combine more conditions using AND and OR operators Boolean algebra and modify their priority with parantheses N B the AND operator takes priority over the OR operator To use operators and paretheses click the AND OR an
16. type FILTRATE 84 First sac number PSACCA 182 First sac volume HT PSACCA 144 First sac hematocrit Q_PSACCA 185 First sac transfusion date DATA _PSACCA 37 Second sac number SSACCA 200 Secon sac volume HT_SSACCA 147 Second sac hematocrit Q_SSACCA 188 Second sac transfusion date DATA _SSACCA 40 Third sac number TSACCA 216 Third sac volume HT_TSACCA 148 Third sac hematocrit Q_TSACCA 189 Third sac transfusion date DATA _TSACCA 187 Forth sac number QSACCA 191 Forth sac volume HT_QSACCA 145 Forth sac hematocrit Q_QSACCA 186 Forth sac transfusion date DATA _QSACCA 38 Fifth sac number RSACCA 193 Fifth sac volume HT_RSACCA 146 Fifth sac hematocrit Q_RSACCA 187 Fifth sac transfusion date DATA _RSACCA 39 Sixth sac number USACCA 223 56 Description Name Number Sixth sac volume HT USACCA 149 Sixth sac hematocrit Q_USACCA 190 Sixth sac transfusion date DATA _USACCA 42 Prescribed amount GRAMMI TRASF_P 129 Tranfused amount GRAMMI_TRAS 128 Reactions REAZIONI 192 Pre therapy TERAP_REAZ 204 Post therapy TERAP_REAZ_POST 205 Check date DATA CONTR 34 Hb at check HB_CONTR 131 Hb pre transfusional HB_PRE 135 Hb post transfusional HB POST 133 Hb post type HB POST TIPO 134 Pre2 check date DATA_HB_PRE2 35 Hb pre second date HB PRE2 136 Index INFUS_SETT 151 Hb fall observed DECR_REALE 47 hb fall DECR_PE
17. 0 DATA_VISITA DATE today Visit date 11 DEFIBRI CHAR 50 Defibrillation 12 DIAGNOSI CHAR 50 Diagnosis 13 DIGOSSINEMIA NUM 4 Digossinemia 14 ECG CHAR 50 Ecg 15 ECHO NUM 3 Echo 16 ECO DIAN NUM 6 2 Dyameter 17 ECO FE NUM 5 2 Fe 18 EDEMI CHAR 2 Edemas 19 EPATOMEGA NUM 6 2 Liver 20 EPATOMEGA1 CHAR 50 Hepatomegaly 21 ERGO CHAR 20 Ergospirometry 22 FA CHAR 1 FA 23 FREQ RIP NUM 4 Heart rate 24 FUMO CHAR 1 Smoker 25 HBS CHAR 1 Hbs 26 HCV CHAR 1 Hev 27 HIV CHAR 1 Hiv 28 HOLTER CHAR 50 Holter 29 IDENTIFIER CHAR 15 copied from basic data Uniaue Identificator 30 INDICE_CT NUM 5 Ct Index 31 INF A NUM 3 influenzae A 32 INF_B NUM 3 influenzae B 33 MEDICO CHAR 20 Physician 34 MOSTDOC__ KEY CHAR 18 assigned Unique Identificator 35 MOTIVO CHAR 50 Visit cause 36 NATO DATE copied from basic data Birth date 37 NOME CHAR 25 copied from basic data Name 38 PM_MOTIVO CHAR 10 PM cause 39 PM_TIPO CHAR 10 PM type 40 POTENZIALI CHAR 1 Potentials 41 PRA NUM 3 Pra 42 PRESS_MAX CHAR 7 Max pressure 43 PRESS_MIN CHAR 7 Min Pressure 44 QT_CORRETTO NUM 4 Corrected Potentials 45 QT_MISURATO NUM 4 Mesured Potentials 46 QT_SEC NUM 3 Qt_sec 47 REFLUSSO CHAR 50 Reflusso 48 RITMO CHAR 2 Rhytm 49 STASI CHAR 20 Stasi 50 T3 NUM 4 ES 51 T4 NUM 4 T4 52 TPHA NUM 3 Tpha 53 TPSV CHAR 1 TPSV 54 TSH NUM 4 TSH 55 TV CHAR 1 TV 56 VDX CHAR 1 Vdx 67 The followin
18. 50 DATAC9 DATA copied from DH Complication date 51 DIAGNOSI CHAR 50 Thalassaemia diagnosis 52 EMO GRUPPO CHAR 3 Blood group A B 0 53 EMO RH CHAR 1 Blood group Rh 54 GENOTIPO CHAR 12 Genotype 55 IDENTIFIER CHAR 15 assigned 56 IMMUNIZZAZ CHAR 15 Immunizzation 57 INDIRIZZO CHAR 35 Adress 58 LIBRETTO CHAR 15 Sanitary book number 59 MEDICO CHAR 20 Doctor 60 MOSTDOC__KEY CHAR 18 assigned Number Identification 61 N ESENZIONE TICKET CHAR 20 No Ticket Number 62 NATO DATA Birth date 63 NAZ_NASC CHAR 20 Birth nation 64 NAZIONALIT CHAR 15 Nationality 65 NAZIONE RESID CHAR 25 Nation 66 NOME CHAR 25 Name 67 NOTE CHAR 250 Comments 68 PROG_CARDIO CHAR 250 Copied from cardiological card Cardiological program 69 PROG CHEL CHAR 250 copied from DH Chelation program 70 PROG CHEL INT CHAR 250 Copied from intensiv chelation Intensiv chelation program 71 PROG CLINICA CHAR 250 copied from DH Clinical program 72 PROG_EMATO CHAR 250 copied from DH Examination program 73 PROG_STRUM CHAR 250 Copied from instrumental Instrumental check program examination card 74 PROG_TERAPIA CHAR 250 copied from DH Therapy program 75 PROG_TRASF CHAR 250 copied from DH Transfusional program 76 PROV_RESID CHAR 6 Province 77 PROVINCIA CHAR 25 Province 78 SESSO CHAR 50 Sex 79 SPLENECTO CHAR 1 Splenectomy done Y N 80 STATO CHAR 50 alive Patient state live dead 81 TELEFONO CHAR 50 Telephone number 82 TRAS
19. 9 Other examination FREES NOME 94 Other examination dose FREE3 92 Other examination FREE4 NOME 97 Other examination dose FREE4 95 Other examination FREE5_NOME 100 Other examination dose FREE5 98 Other examination FREE6 NOME 103 Other examination dose FREE6 101 59 Intensive chelation file File containing the intensive chelation data Num Name Type Default Formula Description 1 COGNOME CHAR 17 copied from basic data Surname 2 DATA FINE DATE today End chelation Date 3 DATAINIZIO DATE today Begin chelation date 4 DESF_KGDIE NUM 6 1 Formula 19 page Desferal pro kg die 5 DFO NUM 6 1 Formula 18 page42 Desferal infused 6 DEO MOG KOG NUM 5 1 Formula 21 page42 mg Desferal infused pro kg 7 DURATA NUM 6 1 Formula 16 page42 Lasting 8 FE ELIMINA NUM 4 Formula 20 page42 Sideremy out 9 FERRITINA NUM 5 Copied from last card Ferritin 10 FREE1 CHAR 10 not used 11 FREE1 NOME CHAR 10 not used 12 FREE2 CHAR 10 not used 13 FREE2 NOME CHAR 10 not used 14 GG_INFUS NUM 3 1 Infusion days 15 IDENTIFIER CHAR 15 not used 16 LOTTO AGO NUM 5 not used 17 MIN_FINE NUM 2 00 End chelation minutes 18 MIN_INIZIO NUM 2 00 Begin chelation minutes 19 ML RESIDUI NUM 4 MI left only via catetere chelation 20 MOSTDOC_ KEY CHAR 18 assigned Unique Identificator 21 NATO DATE copied from basic data Birt
20. AL 4 15 22
21. AST gt 100 or ALT gt 100 order by cognome asc nome asc data_ingr asc fields to be displayed Surname Name and Ferritin order Surname increasing Name increasing and admission date condition AST gt 100 or ALT gt 100 if either condition is met the hospitalization is included in the search result 3 To obtain the list of all patients with AST gt 100 and ferritin gt 1500 select COGNOME NOME DATA_INGR from WTTO VISTA CARTELLE where AST gt 100 or ALT gt 100 and FERRITINA gt 1500 order by cognome asc nome asc data_ingr asc fields to be displayed Surname Name and admission date order Surname increasing Name increasing and admission date condition AST gt 100 or ALT gt 100 and FERRITIN gt 1500 both one of the conditions relating to transaminase and the condition relating to ferritin must be met to have the hospitalization included in the search result 38 Appendix A Formulas This section details all fields whose value is stored by WebTHAL through a formula The calculated fields are divided by file and their numbering can be used as reference in the tables that describe the files included in Appendix B The field name is the one entered in the database The table relating to each field contains the descriptive formula first line the formula expressed with the database fields names second line and any optional notes third line DAY HOSPITAL FILE 1 GRAMMI_TRAS Transfused
22. Blood group date D_EMO 28 Immunizzation IMMUNIZZAZ 56 First transfusion date D_1TRASF 24 First chelation date D CHEL 26 Splenectomy date D_SPLENECT 34 Transplantation date D_TRAPIANTO 35 Hcv positivity date D HCV 30 Hiv positivity date D HIV 31 Hbs positivity date D HBSAG 29 Patient date STATO 80 Death ate DATA_MORTE 40 Death cause CAUSA MORTE 3 Memo NOTE 67 Memo in main page VISUAL_NOTE 84 Pre clinical cardiopaty CARDIO_STRU 4 Pre clinical cardiopaty date DATA_CARDIO_STRU 36 Pre clinical cardiopaty relevation date DATA1_CARDIO_STRU 39 Clinical Cardiopaty CARDIO_SINTO 5 Clinical cardiopaty date DATA_CARDIO_SINTO 35 Clinical cardiopaty relevation date DATA1_CARDIO_SINTO 38 Complication 1 COMP1 13 48 Description Name Number Complication date 1 DATAC1 41 In main page 1 VISUAL1 85 Complication 2 COMP2 15 Complication date 2 DATAC2 43 In main page 2 VISUAL2 87 Complication 3 COMP3 16 Complication date 3 DATAC3 44 In main page 3 VISUAL3 88 Complication 4 COMP4 17 Complication date 4 DATAC4 45 In main page 4 VISUAL4 89 Complication 5 COMP5 18 Complication date 5 DATAC5 46 In main page 5 VISUAL5 90 Complication 6 COMP6 19 Complication date 6 DATAC6 47 In main page 6 VISUAL6 91 Complication 7 COMP7 20 Complication date 7 DATAC7 48 In main page 7 VISUAL7 92 Complication 8 COMP8 21 Complication dat
23. CP_RIMASTE tablets delivered at previous check tablets left at previous check Tablets left tablets pro diex check date previous check date CP_RIMASTE CP_CONSEGNATE_PREC CP_RIMASTE_PREC CB DIE DATA CONTR DATA_CONTR PREC 38 HB_POST DAY HOSPITAL PREVIOUS FOLLOW UP HB post hb followup average observed hb fall follow up date previous hospitalization date HB_POST HB_CONTR MED_DECR DATA CONTR DATA_INGR_PREC NOTE A warning is shown if follow up date previous date in gt 10 days The ricalculation is possible only for the first follow up next the hospitalization See point 3 3 at page 39 Note If in case of DAY HOSPITAL the date of admission corresponds to the follow up date the calculated fields ERITRO_ CORR GLOBULI B CORR and NEUTRO_CORR are reported on this one 45 Appendix B File format Every field of a file is characterized by a name a type and a description The field can be pre assigned and will appear in the input mask with a value or it will not appear though initialised or will be assigned a value resulting from calculations that involve other fields of course if these are increased in the input phase Captions Type of data CHAR N string field N characters max DATA chronological date field NUM X Y numerical field X digits max Y of which are decimal digits The fields not used are included in the database
24. F ncion CLOTS lt r orale ATI vw wits deh detente 1 Chanoine person eil iii 13 ROE T Ea cicala ila 14 RIO ULC L 15 TITS GUMS heal Ee RTT 19 LCE UU E AAA PON E A a a a 20 Intensive chelation 1 a aiii 21 LST n AAA A A O e atrio 22 Ser T A 24 EEES EE e E A E E ii caida edo 27 Exporti e Deteriprone PT 28 Appomtment e H siste ela 29 Di aio 30 Specials cc arre 31 COOL CAI lcd 31 SMP sedre A I tn 32 KE R TTT 34 Advanced SCALCD TT 35 Examples Of advanced SCOT TTT 38 APpendix A ROMS i iii 39 Appendix B Pil DM is 46 PD Rinalda 46 PMT 50 Di TAOS DUGG bias nata ritto DR iniensWechielalo niente 60 OSO LC IRR IAEA Ar IA 61 SUMAI Nicla 63 VIII TIRO RI A ORSI EEE IT 64 Defer Prone ikea ia 65 Trumen ab LOSES ini 66 COTA OGY erede sei 67 Hardware and software requirements To use the WebTHAL computerized clinical record you simply need a computer provided with web browser As for web browsers the correct operation of the WebTHAL program has been checked with Internet Explorer 4 0 and 5 0 and Netscape 4 x The tested operating systems are Windows 95 98 Windows NT Linux RedHat 6 x 7 x and Solaris 2 x Access to the program WebTHAL can be used only through web browser therefore to have access to the program start the browser by clicking its icon F W Ed Metscape Internet Communicator Explorer Enter the web address of WebTHAL national web site in the relevant space http www thalassemia it y N
25. F A CHAR 35 Transferred from 83 TRASF DA CHAR 35 Transferred to 84 VISUAL NOTE CHAR 1 Memo shown in main page 85 VISUAL1 CHAR 1 copied from DH 86 VISUAL10 CHAR 1 copied from DH 87 VISUAL2 CHAR 1 copied from DH 88 VISUAL3 CHAR 1 copied from DH 89 VISUAL4 CHAR 1 copied from DH 90 VISUAL5 CHAR 1 copied from DH 91 VISUAL6 CHAR 1 copied from DH 92 VISUAL7 CHAR 1 copied from DH 93 VISUAL8 CHAR 1 copied from DH 94 VISUAL9 CHAR 1 copied from DH The following list shows the fields in the order of the input mask the table includes the field description the database field name and the reference number in the previous table 47 Description Name Number Surname COGNOME 8 Name NOME 66 Sex SESSO 78 Birth Date NATO 62 City of birth COM_NASC 9 Province of birth PROVINCIA 77 Nation of birth NAZ_NASC 63 Nationality NAZIONALIT 64 Adress INDIRIZZO 57 City COMUNE 23 Zip code CAP 2 Province PROV_RESID 76 Nation NAZIONE_RESID 65 Telephone TELEFONO 81 Fiscal code C_FISCALE 1 Sanitary book number LIBRETTO 58 No ticket number N_ESENZIONE_TICKET 61 Transferred from TRASF_DA 83 Transferred date D_2TRASF 25 Transferred to TRASF_A 82 Doctor MEDICO 59 L1 code CODICE L1 7 Diagnosis DIAGNOSI 51 Diagnosis date DATA DIAGNOSI 27 Blood group EMO GRUPPO 52 Phenotype GENOTIPO 54
26. NOME_P 36 Grade ORDINE 37 Alive VIVO 42 Healthy Sick Carrier SALUTE 40 Parent surname COGNOME 5 Parent name NOME 35 Birth date DATA_NASCITA 7 Birth province PROVINCIA 38 Birth nation NAZ NASC 34 Sex SESSO 41 Hb HB 21 MCV MCV 31 MCH MCH 30 HbA2 HBA2 22 HbF HBF 23 HbS HBS 24 A genotype A first part DNA1 8 A genotype A second part DNA2 9 B genotype first part DNAS 10 B genotype second part DNA4 11 Other Second part DNA5 12 Other second part DNA6 13 HLA HLA 28 HFE1 HFE1 25 HFE2 HFE2 26 HFE3 HFE3 27 ABO ABO 1 RH RH 39 SI Day Hospital File File containing the data relating to the patient Day Hospital Num Name Type Default Formula Description 1 AHAV NUM 6 2 aHAV 2 AHBC NUM 6 2 aHBC 3 AHBE NUM 6 2 aHBE 4 AHBS NUM 6 2 aHBS 5 AHIV NUM 6 2 aHIV 6 ALPH NUM 6 2 ALPH 7 ALT NUM 4 ALT 8 ALTRIESAMI CHAR 100 Name and result of other examinations 9 ANAMNESI CHAR 26 Anamnesis 10 APPUNTAM DATE Formula 5 page40 Next check date 11 AST NUM 4 AST 12 BIL_IND NUM 6 2 Ind bilirubina 13 BIL_TOT NUM 6 2 Total bilirubina 14 BMI NUM 6 2 Bmi 15 CA NUM 6 2 Calcio 16 CIRC_ADD NUM 7 2 Abdominal Circonference 17 CL NUM 6 2 Cl 18 COGNOME CHAR 17 Copied from basic data Surname 19 COMPLIANCE C7 NUM 3 CRONO inf
27. RC 46 Hb fall expected DECR_TEOR 48 Hb pre desired HB FIX 132 Next control date APPUNTAM 10 Chelation program PROG_CHEL In basi c data Desferal infusion type TIPO_INF 209 Desferal total dose DOSE 56 Desferal dilution DESF_DILUI 49 Infusion regim FREQUENZA1 105 Infusions Crono COMPLIANCE C1 19 Infusions given N1 165 L1 dose DOSE2 57 L1 pro die dose FREQUENZA2 106 MEMS administrations COMPLIANCE C2 20 Given administrations N2 166 Therapy reactions DESF_REAZ 50 Ascorbic acid dosage VITC_DOSE 226 Note NOTE1 171 Reaction type TIPO_SIST_LOC 211 Reaction date DATAR 44 Reaction description TIPOR 213 Reaction severity GRAVI 130 Reaction dimension DIM 55 Reaction latency TEMPO 203 Reaction lasting DURATA 62 Treatment PROVV 181 First drug FARMACO3 68 First drug prescription FREQUENZA3 107 Second drug FARMACO4 69 Second drug prescription FREQUENZA4 108 Third drug FARMACO5 70 57 Description Name Number Third drug prescription FREQUENZA5 109 Forth drug FARMACO6 71 Forth drug prescription FREQUENZA6 110 Fifth drug FARMACO7 72 Fifth drug prescription FREQUENZA7 111 Sixth drug FARMACO8 73 Sixth drug prescription FREQUENZA8 112 Other drug FARMACO9 74 Other drug prescription FREQUENZA9 113 Other drug FARMACOA 75 Other drug prescription FREQUENZAA 114 Other drug FARMACOB 76 Other drug p
28. TE CHAR 100 Note 21 NUCLEATE_TOT NUM 6 2 Total nucleated cells 22 PIASTRINE NUM 6 2 Platelets 23 RICALCOLO CHAR 1 Hb_ post last hospitalization recalculation 24 SGPT NUM 6 1 Copied from last hospitalization Alt 25 SIDERURIA NUM 4 Copied from last urinary iron Urinary iron excretion excretion The following list shows the fields in the order of the input mask the table includes the field description the database field name and the reference number in the previous table Description Name Number Surname COGNOME 2 Name NOME 19 Birth date NATO 16 Check date DATA CONTR 7 Hb at check HB CONTR 13 Total nucleated NUCLEATE TOT 21 Neutrophils NEUTRO PERC 18 Neutrophils absolut number NEUTRO CORR 17 NRBC ERITRO PERC 10 Platelets PIASTRINE 22 Tablets pro die CP_DIE 4 Tablets remained CP_RIMASTE 5 Tablets given CP_CONSEGNATE 3 Delivery date DATA CONSEGNA 6 Next check date DATA CONTR SUCC 8 Comments NOTE 20 Hb_post recalculation RICALCOLO 23 Ferritin FERRITINA 11 Alt SGPT 24 Urinary iron excretion SIDERURIA 25 65 Instrumental tests file File containing data on instrumental tests and specialist examinations Num Name Type Default Formula Description 1 COGNOME CHAR 25 assigned Surname 2 DATA_CONTR CHAR 10 Next check date in letters 3 DATA CONTRI DATE data attuale Next check date d
29. WebT HAL Computerized clinical record for thalassemia User s manual WebTHAL project Secretary Board Implementation Educational Grant Support Dr Antonio Piga Centro Microcitemie Dip di Onco Ematologia Pediatrica Piazza Polonia 94 10126 Turin Tel 39 011 3134771 Fax 39 011 3134509 antonio piga Ounito it Prof M D Cappellini Centro Anemie Congenite Osp Policlinico IRCCS Pad Granelli Via F Sforza 35 Milan Tel 39 02 55033757 Fax 39 02 55180241 maria cappellini unim1 it Dott G Forni Centro della Microcitemia Osp Galliera Via Mentana 10 Genoa Tel 39 010 5634554 5 Fax 39 010 5634556 forni galliera it Prof R Galanello Osp Reg Microcitemie Via Jenner s n Cagliari Tel 39 070 6095508 Fax 39 070 6095509 renzo galanello meweb unica it Dott G Quarta Div Ematologia Az Osp A di Summa Osp Perrino Brindisi Tel 39 0831 537507 Fax 39 0831 537613 brinemat tin it MOST s r l Via Bezzecca 9 10131 Turin Tel 39 011 6600202 Fax 39 011 6600246 most most it Novartis Farma S p A S S 233 Km 20 5 21040 Origgio VA Freephone 800 390563 support most it User s manual Version 1 5 17 may 2001 Table of Contents Hlordwar and sortwarereguliementis fects hes is 4 ACCESS to he TS 4 Runne MeO SPAIN TTT 6 Protected COMME CE OM TTT 7 Web THAD main pace wien lella 8 TUe bai eats ON 9 WIP Per Second da asa 9 MGI COn Wicca 9 MOIO I ARRE a 10
30. a at Diagnosis _ Annual Summary Chat 5 i LI Clinical Data 3 Complications 1 6 T Ci Transfusional Treatmenti4 T _ In patient corde 71 Li Iron Chelation 6 _ Heart Assessment 21 i DT Other Drugs 6 i _ Echocardiogram 20 T L Blood Tests 9 101 i l Holter E K 274 i E Weekly Deferiprone Follow upred _ Ergospirometry 22 i Investigations and Consultations 11 Order by date Li o _ Dimission Paper 25 _ Heart Assessment Summary 1 2 Note when using the Explorer browser you cannot start printing as you would do with Netscape If you click the printer icon the following message will be displayed Microsoft Internet Explorer gt A i Per stampare premere il tasto destro del mouse e scegliere Stampa 24 Requesting a transfusion The data relating to any request for transfusion for a single patient is entered in this field The program calculates and displays 3 data total amount of requested erythrocytes real loss from last transfusion and transfusion date Of course the calculated data can be modified The type of unit is automatically reported from the last Day Hospital BLOOD REQUEST FORM Date I Hb Weight Kg Transfused amount of red blood cells 2 Unit type PACKED FILTER Transfusion date Volume required Number of units required Emergency Transfusion date Volume required Humber of units required Volume required Number o
31. a list of rint accessible files and a list of function buttons Simple search The file list can change according to the access levels Advanced search allowed to the user Blood delivered informations To carry out an operation select a patient choose the file and click one of the function buttons Summary calculation Export Deferiprone data Appointment scheduler Function buttons have the following meaning Se Entering a new record This function is applicable to all files and is used to enter a new record in the selected file EE Record modification When you click this button the program shows the record list from the file of the selected patient in decreasing chronological order If you choose a record and confirm you ll have access to the modification of the selected record Printing the clinical record Clicking this button gives you access to the list of the record print sections followed by print preview and print functions D Simple search This function button allows you to search for data in the selected file 11 Advanced search This button enables the advanced search function O Blood delivery informations This button allows you to enter the transfusion sac data sac ID number and weight These data will be automatically entered in the Day Hospital card of every patient E Summary calculation This function allows you to do summary calculations means additions
32. al small letter is considered as two distinct letters e g mario is different from Mario gt lt gt and lt that operate on the lexicographic alphabetic order All capital letters precede small letters If the data on which the search condition is set are numbers the following mathematical operators can be used gt lt gt lt and lt gt not equal If the data on which the search condition is set are option menus the available operators are only and lt gt not equal 34 Advanced search The advanced search is a WebTHAL function that allows you to set the search query directly This is an alternative to simple search for a more flexible setting of the query that requests basic knowledge of Boolean algebra To access it click the icon Regarding the Day Hospital file that consists of a large number of fields the fields to search must be preset Physician Check Type Date out History Number Arnaout Hematocrit Hematocrit Humb er To select the search fields highlight fields in the File fields list on the left and click the gt button The Fields will be moved to the right in the Fields to search list The Ea button moves to the left hand list the fields highlighted in the right hand list that you want to exclude from the search Buttons A and w move the field highlighted in the right hand list up or down by one position in order to modify
33. ations file e Ferriprox control appointments control appointments entered in the Deferiprone file You can choose to order appointments by date surname test this one only for the specialist examinations scheduler Click print preview to view the book before printing E ALL PATIENTS 2 7 _ Transfusions WALT ALT 12 05 2001 E PIM PAL 11411413991 2 l Ferriprox check appointments PRO PRO 1 2 05 2001 pi K N date pate _ Transfusional requests i Transfusion date 7 l Invetstiqations and Consultations orti by date 2 Order by surname Order by investigalions consultations type 29 Discharge card This card generates a printed report that can be delivered to the patient on discharge The displayed data are imported from the Day Hospital file from the last admission or if absent from preceding admissions and the tests specialist examinations file MEDICAL CENTER Xxxxxxxx HOSPITAL 10 Eaton Street 1000 London Hospital Code 01005 Yeyyyyyyy Center Tel 3d Fax 0 aa E mail CHIEF DOCTOR Dr ANXN AAA DISMISSION PAPER Surname ALT Mame ALT Birth date 12 05 2001 Fiscal Code Date of check Check Hb 2 Hb pre Hb post 2 Transfused Amount Feritin ngimi 2705 2001 amp LTimUimi 2705 2001 THERAPY Chelator i Other therapies INVESTIGATIONS AND CONSULTATIONS Diet NEST APPOINTAMENT Date 08 08 2001 Physician signature 30 Specialist se
34. b fall 49 DESF_DILUI NUM 4 2 not used 50 DESF_REAZ CHAR 8 Transfusional reaction 51 DESF_SC NUM 7 2 not used 52 DESF_X_KG NUM 5 not used 53 DIETA1 CHAR 13 First diet 52 Num Name Type Default Formula Description 54 DIETA2 CHAR 13 Second diet 55 DIM CHAR 50 Local reaction dimension 56 DOSE1 NUM 6 2 Previous value Desferal dose 57 DOSE2 NUM 5 1 Previous value L1 dose 58 DOSE3 NUM 6 2 previous value Other drug dose 59 DOSE4 NUM 6 2 previous value Other drug dose 60 DOSE5 NUM 6 2 previous value Other drug dose 61 DOSE6 NUM 6 2 previous value Other drug dose 62 DURATA CHAR 2 DFO reaction lasting 63 ELETTRO NUM 6 2 NRBC 64 ERITRO_ASS NUM 6 2 Formula 34 pag 44 Absolut NRBC 65 ESTRAD NUM 6 2 Estrad Testosteron 66 FARMACO1 CHAR 13 not used 67 FARMACO2 CHAR 13 not used 68 FARMACO3 CHAR 13 previous value First drug 69 FARMACO4 CHAR 13 previous value Second drug 70 FARMACO5 CHAR 13 previous value Third drug 71 FARMACO6 CHAR 13 previous value Fourth drug 72 FARMACO7 CHAR 13 previous value Fifth drug 73 FARMACO8 CHAR 13 previous value Sixth drug 74 FARMACO9 CHAR 13 previous value Seventh drug 75 FARMACOA CHAR 13 previous value Other drug 76 FARMACOB CHAR 13 previous value Other drug 77
35. cally calculate the date of the next appointment The calculated values of this and other fields can be modified by the user Appendix A Formulas on page 39 provides a detailed description of the list of calculated fields Hemoglobins g dl Check Date Check Hb Pre transfusion Hb Post transfusion Hb 3 Calculated from PC Hb Pre 2 Date Hb Pre 2 Index mifgHb 2 Hb fall observed Hb fall 6 Hb fall expected gdl Hb pre desired grdi Date of next control Choose OK the program will enter the new admission in the Day Hospital file You can reset the fields at any time by clicking t he de icon on top In this case all fields are empty if a new hospitalization is being entered or contain the original value if you are in the change mode After filling in the necessary data confirm by clicking the icon on top wP the program will display the main page again 17 To modif y one or more fields of a Day Hospital admission select the patient on the main page click the SE change icon and select the admission date by clicking the related date The list of fields in the Day Hospital table will be displayed again together with the relevant values 2 06 2001 Select the day hospital date Confirm the update 18 Instrumental tests file The reports of any instrumental tests and specialist examinations as well as any comments can be entered in this file Two fields are provided to
36. ction WebTHAL has been conceived to provide you with a basic folder that includes essential data for a proper follow up of thalassaemic patients Other specialist sections will be added to this file over time The first one is the cardiological section consisting of four files Cardiological Card Ecocardiography Card Dynamic E C G Card Holter Ergospirometry card coo E This manual illustrates only the first card that provides a summary of the data on this pathology Cardiological card The data on the cardiological examination of the patient is entered in this file The displayed therapy is the one reported in the last Day Hospital of the patient HEART ASSESSMENT FORM Heart assessment progran 1 date Oy 1807 2001 Physician L Canse GI dvastolie Pressure E Hepatomegaly BG Edemas ES Rhythm a ECG EE seli TDD mm L Halter J Diagnosis 9 I Systolic Pressure Heart Pulse Pulmonary stasis Hepato Jugular Retlux NYHA Classification sy VDX m l Z Ergo Watt LL Notes 31 Simple search The program allows you to perform both simple and advanced searches To perform a Simple Search proceed as follows select the patient on WebTHAL main page Select the file to search Click the simple search button L A mask to be filled in will appear enter the patient s name if you want to search a single patient for the preset Day Hospital file the search period th
37. d buttons If during the compilation of compound conditions you want to remove a condition inserted by mistake highlight it and click Remove Condition Confirm the search setting by clicking Query Sql The set selection is displayed in the relevant window To correct the set query you can cancel the set data going to the data entry windows and filling them or writing directly inside them or through the automatic compilation explained above You can always remove the entire set query by clicking Field Reset Start the search by clicking the Search button The figure shows an example of compound condition setting Datahase Fields 3 AE i Value connector cS E IDENTIFIER E Suname max 3 for privacy Name max 3 for privacy Add Cond select IDENTIFIER COGNOME HOME SE550 HATO PROVINCIA INDIRIZZO COMUNE PROV_RESID where COGHOME gt aaaaa AND SESSO F SOL Query Belnald order by IDENTIFIER ASC 37 Examples of advanced search 1 To obtain the list of all patients with ferritin gt 1000 in alphabetical order Set the following selection select COGNOME NOME FERRITINA from WTTO VISTA_CARTELLE where FERRITINA gt 1000 order by COGNOME ASC NOME ASC fields to be displayed Surname Name and Ferritin order Surname increasing and Name increasing condition Ferritin gt 1000 2 To obtain the list of all patients with AST gt 100 select COGNOME NOME from WTTO VISTA_CARTELLE where
38. database field name and the reference number in the previous table 61 Description Name Number Patient surname COGNOME 1 Patient name NOME 17 Birth date NATO 16 Check date DATA CONTROLLO 3 Hb HB_CONTROLLO 11 Weight PESO From last DH Transfused amount of red TOT_EMAZIE 21 blood cells Unit type FILTRATE 10 Transfusion date DATA _SACCATI 4 Required volume Q_RICH_A 18 Required units N_RICH_A 13 Emergency URGENTE 22 Transfusion date DATA _SACCA4 6 Required volume O RICH B 19 Required units N RICH B 14 Transfusion date DATA_SACCA7 7 Required volume Q_RICH_C 20 Required units N_RICH_C 15 62 Summary File File containing annual summary data on the patient Num Name Type Default Formula Description 1 ALT MEDIA NUM 6 2 Formula 31 page44 Mean ALT 2 ALTEZ ULT NUM 6 2 copied from DH Last height 2 ANNO CHAR 4 Today year Summary year 3 COGNOME CHAR 17 copied from basic data Surname 4 COMPLIANCE NUM 5 1 Formula 31 page44 Desferal Compliance 5 COMPLICANZE CHAR 20 copied from basic data Complications 6 CONSUMO NUM 6 1 Formula 26 page43 Total blood cells used 7 DECR_PERC NUM 6 2 Formula 31 page44 mean fall 8 DESF_TYPE CHAR 2 Desferal type 9 ETA NUM 3 Formula 24 page43 Age at summary months 10 FE_ELIM NUM 7 2 Form
39. de confirm all the requests displayed WebTHAL main page After the authentication phase the main page of the program is opened The window is divided into two horizontal sections the upper section is always available and includes the main function buttons as well as information on the current file and function the lower section is used by the program to present the various working phases its content can change according to the set function Central Section Upper Section Title Bar Archive selection Gp Archive 1 Basic data 8 ALT Alt 1 205720011 PIN Pal 11 11 1991 i PRO Pro 12 05 2001 93 Day Hospital i 4 Investigations and Consultations i i J Urinary Iron Excretion i Intensive Chelation 2 2 Annual summary Chart i 16 Weekly Deferiprone Follow up i Blood Request Form i c1 Heart Assessment iic2 Holter EKG i c3 Echocardiogram c4 Ergospirometry Patients Function list Buttons Title bar The window s title bar provides the following information application name user name server name Main function buttons Current file Informations Upper section The WebTHAL window s upper section includes the main function buttons and information on the current file and function This section is always visible so that the main functions can be recalled at any time Main function buttons Icons always visible in the upper left corner Clos
40. e 8 DATAC8 49 In main page 8 VISUAL8 93 Complication 9 COMP9 22 Complication date 9 DATAC9 50 In main page 9 VISUAL9 94 Complication 10 COMP10 14 Complication date 10 DATAC10 42 In main page 10 VISUAL10 86 Free complication code COMP_COD FREE 10 Free complication type COMP_FREE 12 Free complication date COMP_DATA FREE 11 Transfusional program PROG_TRASF 75 Clinical program PROG_CLINICA 71 Therapic program PROG_TERAPIA 74 Emato chemical examination program PROG_EMATO 72 Instrumental checks program PROG_STRUM 73 Intensif chelation program PROG_CHEL_INT 70 Therapy program PROG_CHEL 69 Cardiological therapy program PROG_CARDIO 68 49 Family tree Tests file File containing the personal data and doctors of the patients relatives Num Name Type Default Formula Description 1 ABO CHAR 3 Blood group ABO 2 ALFA_NALFA NUM 5 1 Division alfa not alfa at diagnosis 3 ANNO_NATO NUM 4 not used 4 BETA NUM 6 1 Division beta non alfa at diagnosis 5 COGNOME CHAR 17 copied from basic data Surname patient or mother before marriage 6 COGNOME_P CHAR 17 copied from basic data Surname patient 7 DATA_NASCITA DATE copied from basic data Birth date updatable 8 DNA1 CHAR 8 Beta genotype 9 DNA2 CHAR 8 Beta genotype 10 DNA3 CHAR 5 Alfa genotype 11 DNA4 CHAR 5 Alfa genotype 12 DNA5 CHAR 8 Ot
41. e search operators see next paragraph the fields to be displayed with any limits the result order increasing or decreasing e Click the Search button if more than 1000 matches are expected increase this number A table with the relevant data will be displayed now the program allows you to show complete records with the button FE modify the selected records with the button cancel the selected records with the button E print the search results on client server with the button export the search result with the button display an indicative chart with the button The result of a search for pre post transfusion haemoglobin in a patient is illustrated below The search has been performed over 10 years and the enclosed chart shows the trend of haemoglobin values X axis and time Y axis 32 Fal E 7 Date in Pre transfusion HE Post transfusion Hb i ell Pre trans fusion Hb FPost transfusion Hb 16 12 052011990 1511 1991 2305 1994 1112 1996 0604 1999 1207 2001 33 Search operators Search operators are different for every type of data If the data on which the search condition is set are text strings the available operators are Include and Exclude that check the presence of a sub string in the field and lt gt not equal that check equality and inequality Be careful with the difference between capital and small letters during a search the same capit
42. enmt name NOME 24 Birth date NATO 23 Clinical history STORIA 31 63 Sideruria File File containing the data on the patient s sideruria Num Name Type Default Formula Description 1 ALTRE NUM 6 2 Other 2 CHELANTE CHAR 3 previous value Desferal Deferiprone 3 COGNOME CHAR 17 copied from basic data Surname d DATA RACCOLTA DATE today Sampling date 5 DIURESI NUM 4 Diuresis 6 DOSE NUM 5 1 Dosage 7 DOSE DIE NUM 5 1 Daily dosage 8 HB NUM 5 1 Formula 23 page 43 Hb 9 IDENTIFIER CHAR 15 copied from basic data Unique Identificator 10 MEDIA NUM 6 2 Mean urinary iron excretion 11 MOSTDOC__ KEY CHAR 18 calculated Unique key 12 NATO DATE copied from basic data Birth year 13 NOME CHAR 17 copied from basic data Name 14 PER_CALCOLO CHAR 1 yes To use in calculation 15 SID CONC NUM 6 2 Conc urinary iron excretion 16 SID MG_KG NUM 6 2 Formula 22 page 43 Mg kg urinary iron excretion 17 SIDERURIE NUM 6 2 previous value Total urinary iron excretion 18 VITC NUM 6 2 Copied from DH Ascorbic acid The following list shows the fields in the order of the input mask the table includes the field description the database field name and the reference number in the previous table Description Name Number Patien surname COGNOME 3 Patient name NOME 13 Birth date NATO 12 Sampling da
43. enter the next examination e the first is a text field where you can enter a memo e g next examination in Six months e he second is a field date to be filled in once the next test examination date has been confirmed This date will be automatically reported in the discharge card and will be inserted in the appointment scheduler Audiometiy every three month EEG once per year 72 06 2001 Dite 28 06 2001 J F 12 06 2001 E eck next month From To the Personal data file The Schedule can be entered and modified also in the patient s personal section including all schedules 19 Sideruria file This file contains all data on the patient s sideruria Data are ordered by date of collection regardless of the Day Hospital admission dates By choosing the option Use for calculations pre selected automatically WebTHAL will use this value in the summary File calculation of the excreted iron see formulas 20 Intensive chelation file In this file you can enter data on IV chelation The file has been created for intensive chelation via central venous catheter but can be used also for IV infusions from peripheral vein INTENSIVE DESFERAL CHELATION FORM Intensive chelation program PROGRAM DF Prescribed I g Volume hoo m Duration E INFUSION START Date 0 23 08 2001 Hour E INFUSION END Date 23 06 2003 Hour E I Residual volume ml Weight
44. etscape File Edit View Go Communicator Hip iow Gat Ww sv E Bookmarks A Location http www talassemia it From the main page of the site go to the WebTHAL centres section http www thalassemia it centri_webthal html Web Browser is the word used to identify a program for navigation through the pages of the Internet web sites 4 A list of pointers will be displayed for the centres that are using WebTHAL choose the file applicable to your centre and click the link amp Instant Message Internet iar PI Document Done Back i Reload Home Search Netscape Print Security Shop dal What s Related Ricerca y Nuovo e curiosa MOST srl Veb THAL Versione 1 5 Copyright 1999 2001 Glicca qui per le NOTE DI ISTRUZIONE Archivio WebTHAL DIMOSTRATIVO ARCHIVI PERSONALI PER OGNI CENTRO Archivio WebTHAL AOSTA osp Beauregard Archivio WebTRAL BARI osp Policlinico di Bari Archivio WebTHAL BARI Universita degli Studi x Archia Muah THAI BiFMINGHARA nen 1 Ei Whoever reads these pages without being enrolled may contact the project manager Note Dr Antonio Piga Centro Microcitemie Dip di Onco Ematologia Pediatrica Piazza Polonia 94 10126 Turin Tel 39 011 3134771 Fax 39 011 3134509 The users that have a local WebTHAL server in their hospital must enter the web address of their server in the location field instead of the
45. f all patients We recommend that you launch the calculation for all years for all patients in well determined conditions since this operation can take several hours 22 In the summary card the only part to be entered is the clinical history Select the patient s name on the main page select the annual summary file and click the change function button 25 Patient name To access the print menu go to the WebTHAL main page choose the patient whose record is to be printed and click the function button P The print menu allows you to choose the record sections to be printed To select or deselect each section click the checkbox near every section To select or deselect the printing of all sections click the symbol Pat In this program the most frequently used sections are pre selected automatically you can choose to accept the pre selection or to modify it The preset dates allow printing of the events occurred during the last year the couple of dates that identify the period can be modified as necessary As to the instrumental tests section you can choose to print it in chronological order or according to the examination type After selecting the sections to be printed click the print preview button In this page click the printer button to start printing 7 __ Index __ Urinary Iron Excretion 13 T _ Basic Data 1 2 i __ Intensive Desferal Chelation 14 T __ Family Tree Dat
46. f units required Transfusion Date After filling out the mask click the icon 5 the print previews for the request will appear click the button again to print the request If you simply want to store data without printing the request form click the button WV Note A few data in the request for transfusion such as personal data blood group and phenotype are automatically taken from the patient s personal data file To modify a request for transfusion select the patient select the transfusion request file and click the change function button 25 MEDICAL CENTER Xxxxxxxx HOSPITAL 10 Eaton Street 1000 London Chief Doctor Dr KEKKKK Hospital Code 01005 Ward CENTRO MICROCITEMIE Tel 39 XX XXXXXXXXXXXKXXXX Surrame ALT Name ALTO Birth date 12 05 01 Diagnosis Hb af check 12 Blood group ABD Ah Phenothype Done on To be done Patient transplanted on Donor blood group ABI renal MAA OOO OO iO OTT TYPE OF BLOOD UNIT REQUESTED Packed Red Blood Cells m Ue Packed amp Filtered Red Blood Cells ml 150 mit 1 Packed Filtered amp Washed Red Blood Cells U EE IE Packed Filtered amp three Washed Red Blood Celle m UNIT Past transfusions Wes No Hot known Past transfusional reactions Wes No Not known Immunization Vag No Not known URGENT No Date and hour choosen for collecting 13 06 2001 i Urien Date and hour choosen for collecting G L no l
47. follow up L1 transfused amount pure GR hb post hb pre INFUS_SETT GRAMMI_TRAS HB POST HB_PRE Index NOTE Computed only if hb post gt hb pre 4 2 DFO Patient with hb prez transfusion in several days amount pure GR transfused during days previous hb pre 2 day hb pre 2 day hb pre INFUS_SETT GRAMMI_TRAS HB_PRE2 HB_PRE NOTE Computed only if hb_pre2 gt hb_pre This index is used for hb_ post calculation but it is not saved see 3 2 on page 39 Intertransfusional index 4 3 DFO Patient treated with a transfusion in 1 day with calculated hb_post and Patient L1 Index transfused amount pure GR average observed hb fall check date previous date in check hb previous hb pre INFUS_SETT GRAMMI_TRAS MED_DECR DATA_CONTR DATA_INGR_PREC HB_CONTR HB_PRE_PREC INFUS_SETT GRAMMI_TRAS MED_DECR DATA_CONTR DATA_INGR_PREC NOTE If HB CONTR lt HB_PRE_PREC the second formula Is used 5 APPUNTAMENTO hb post hb pre desired previous expected hb fall APPUNTAMENTO HB_POST HB_FIX_PREC DECR_TEORICO_PREC DATA_USC_PREC NOTE If saturday 1 if sunday 1 Next control previous date out 6 DECR_REALE Observed hb fall Previous hb post hb pre transfusional interval DECR_REALE HB_POST_PREC HB_PRE INTERVALLO NOTE Computed only if interval gt 0 and if
48. for compatibility with the files of the previous program COMPUTHAL Personal Data File File containing the patients personal data as well as fields associated to the patient but used in other files such as code Ll for file LI and all fields containing the programs displayed in the relevant cards Num Name Type Default Formula Description 1 C_FISCALE CHAR 16 Fiscal code 2 CAP CHAR 6 Zip code 3 CARDIO_SINTO CHAR 50 Pre clinical Cardiopaty 4 CARDIO SRU CHAR 50 Clinical Cardiopaty 5 CAUSA MORTE CHAR 25 Death cause 6 CENTRO CHAR 50 assigned Hospital center 7 CODICE L CHAR 18 L1 code 8 COGNOME CHAR 25 Surname 9 COM NASC CHAR 35 Birth city 10 COMP COD FREE CHAR 10 Free Complication Cod 11 COMP DATA FREE DATA Free Complication date 12 COMP FREE CHAR 20 Free complication 13 COMPI CHAR 7 copied from DH Complication type 14 COMP10 CHAR 7 copied from DH Complication type 15 COMP2 CHAR 7 copied from DH Complication type 16 COMP3 CHAR 7 copied from DH Complication type 17 COMP4 CHAR 7 copied from DH Complication type 18 COMP5 CHAR 7 copied from DH Complication type 19 COMP6 CHAR 7 copied from DH Complication type 20 COMP7 CHAR 7 copied from DH Complication type 21 COMP8 CHAR 7 copied from DH Complication type 22 COMP9 CHAR 7 copied from DH Complication type 23
49. function button The program will show all current modifiable values After effecting any change press the icon to confirm Note The fields Surname Name Date of Birth Sex and Rh may not be modified To modify these fields you must contact the software house freephone 800 390563 or you must have a login with administration rights Super user 13 Deleting patient data The deletion of all data on a patient is available only as a simple search option and not all users are enabled to do it To delete a patient select the basic data file and click the simple search function button 5 Set the surname name fields of the patient to be cancelled in the search field mask and start the search a table with the patient data will be displayed Select the record by clicking the checkbox on the left hand then the delete icon 7 Simple search Archive 1 Basic data Select the record Delete it to be deleted Before deleting the record vou l be asked to confirm 62 110 51 28 JavaScript Application 2 Do you conferm the deletion of the ALL selected records 7 Annulla If the delete icon is not present the login being used is not enabled to proceed and you must contact the software house freephone 800 390563 14 Family tree WebTHAL automatically enters a record for the patient one for his her father and another for his her mother in 2 Family tree file These three records are empty the
50. g list shows the fields in the order of the input mask the table includes the field description the database field name and the reference number in the previous table Description Name Number Surname COGNOME 6 Name NOME 37 Birth Date NATO 36 Program PROG_CARDIO In basic data Examination Date DATA_VISITA 10 Physician MEDICO 33 Cause MOTIVO 35 Dyastolic Pressure PRESS_MIN 43 Systolic Pressure PRESS MAX 42 Frequency FREQ_RIP 23 Epatomegaly EPATOMEGA1 20 Pulmonary stasis STASI 49 Edemas EDEMI 18 Hepato jugular reflux REFLUSSO 47 Rhytm RITMO 48 NYHA class CLASSE_NYHA 4 E K G ECG 14 Sec QT_SEC 46 FE ECO_FE 17 DTD ECO_DIAM 16 VDX VDX 56 Holter HOLTER 28 Ergo Watt ERGO 21 Diagnosis DIAGNOSI 12 Comments COMMENTO 7 QT Mesured QT_MISURATO 45 QT Corrected QT_CORRETTO 44 Pot Tard POTENZIALI 40 Smoke FUMO 24 Aldosterone ALDOSTERONE 1 ANP ANP 3 CMV CMV 5 TPHA TPHA 52 Coxsackie A COX A 8 Coxsackie B COX_B Influenzae A INF_A 31 Influenzae B INF_B 32 Liver EPATOMEGA 19 68 Alphabetical Index A admission 17 18 20 27 30 38 45 advanced search 3 12 32 35 38 ALT 38 44 Annual summary 22 Appointment scheduler 29 AST 38 B browser 2 4 C calculated field Cardiological card Cardiology file 67 Closing 9 Compliance 44 D Day Hospital 17 45 3 31 3 10 12 17 18 20 21 25
51. h date 22 NOME CHAR 17 copied from basic data Name 23 NUM_BUCHI NUM 1 not used 24 ORA_FINE NUM 2 12 End chelation hour 25 ORA_INIZIO NUM 2 00 Start chelationhour 26 PESO NUM 5 1 Copied from last card Weight 27 PROBLEMI CHAR 30 Problems 28 QUANTITA NUM 5 1 Amount 29 SGPT NUM 4 Copied from last card ALT 30 SIDERURIA NUM 6 1 Copied from last sideruria Sideruria 31 TIPO CHAR 1 Periferal vein Chelation type Periferal vein Via catetere 32 TIPO_AGO CHAR 15 not used 33 VIT C_DOSE NUM 3 Copied from last card Ascorbic acid dose 34 VITO_PLASM NUM 6 2 not used 35 VOLUME NUM 3 Volume he following list shows the fields in the order of the input mask the table includes the field description the database field name and the reference number in the previous table Description Name Number Patient Surname COGNOME 6 Patient name NOME 36 Birth date NATO 21 Program PROG_CHEL From basic data Chelation type TIPO 31 Desferal prescribed DFO 5 Volume VOLUME 36 Chelation lasting GG_INFUS 14 60 Description Name Number Lasting type TIPO_DURATA 33 Begin date DATAINIZIO 3 Begin hour ORA_INIZIO 25 Begin minutes MIN_INIZIO 18 End date DATA_FINE 2 End hour ORA_FINE 24 End minutes MIN FINE 17 Left volume ML_RESIDUI 19 Weight PESO 26 Urinary iron e
52. her 13 DNA6 CHAR 8 Other 14 DPN CHAR 1 Pre birth diagnosis Y N 15 FREE1 CHAR 10 not used 16 FREE1_ NOME CHAR 10 not used 17 FREE2 CHAR 10 not used 18 FREE2 NOME CHAR 10 not used 19 FREES CHAR 10 not used 20 FREES NOME CHAR 10 not used 21 HB NUM 5 1 Hb at diagnosis 22 HBA2 NUM 5 1 HBA2 at diagnosis 23 HBF NUM 6 1 HBF at diagnosis 24 HBS NUM 6 1 HBS at diagnosis 25 HFE1 CHAR 20 HFE1 26 HFE2 CHAR 20 HFE2 27 HFES CHAR 20 HFE3 28 HLA CHAR 50 HLA compatible not compatible 29 IDENTIFIER CHAR 15 not used 30 MCH NUM 5 1 MCH at diagnosis 31 MCV NUM 6 1 MCV at diagnosis 32 MOSTDOC__ KEY CHAR 18 assigned Unique 1dentificator 33 NATO DATE copied from basic data Patient birth date 34 NAZ NASC CHAR 20 copied from basic data Patient birth nation updatable 35 NOME CHAR 17 copied from basic data Name 36 NOME_P CHAR 17 copied from basic data Patient name 37 ORDINE CHAR 1 Parent order 38 PROVINCIA CHAR 6 Birth province 39 RH CHAR 7 Blood group Rh 40 SALUTE CHAR 1 Healthy Sick Carrier 41 SESSO CHAR 1 Sex 42 VIVO CHAR 1 Alive Y N The following list shows the fields in the order of the input mask the table includes the field description the database field name and the reference number in the previous table 50 Description Name Number Patient Surname COGNOME_P 6 Patient name
53. ing WebTHAL Press this button to close WebTHAL You can also close the browser s window directly with ATL F4 or by choosing the Close option or the X box in the upper left corner of the window Close options Return to WebTHAL main page This button allows you to go back to WebTHAL main page containing the patients list files list and function buttons starting from any section of the program Changing the user password A personal password is given to every WebTHAL user The user may decide to modify its password at any time When you choose this function button you ll be requested to enter your current password and to confirm the new password twice Once the password has been modified all of the user s work sessions must be re opened The use of any login should not be personal The activation of a new login can be always requested to the system administrator one for every user Note The system administrator doesn t know the current password but can re enable access with a new password Information on current file The current file basic data file family tree Day Hospital etc and the activated function main menu entering of a new record change search etc are displayed in this area of the window oy This icon opens a web window with the online manual 10 Function buttons Add l Update The WebTHAL main page displays the list of filed patients together with their date of birth
54. mbulatorial 213 TIPOR CHAR 2 DFO reaction type 214 TR_INX NUM 6 2 Tr Index 215 TRANSFERRINE NUM 7 2 Transferrin value 216 TSACCA CHAR 10 Third sac number 217 TSH NUM 7 2 TSH value 218 UNITAS CHAR 8 Other drug measure unit 219 UNITA4 CHAR 8 Other drug measure unit 220 UNITA5 CHAR 8 Other drug measure unit 221 UNITA6 CHAR 8 Other drug measure unit 222 URIC NUM 6 2 Uricemy 223 USACCA CHAR 10 Sixth sac number 224 VITA NUM 6 2 A vitamin 225 VITC NUM 6 2 C vitamin 226 VITC_DOSE NUM 5 2 previous value C vitamin dose 55 Num Name Type Default Formula Description 227 VITE NUM 6 2 E vitamin 228 ZN NUM 6 2 Zn The following list shows the fields in the order of the input mask the table includes the field description the database field name and the reference number in the previous table Description Name Number Surname COGNOME 18 Name NOME 170 Birth Date NATO 168 Clinic program PROG_CLINICO In basic data Check type TIPO_VISITA 212 Date in DATA_INGR 36 Date out DATA_USC 43 Phisical examination ANAMNESI 9 History OBIET 175 Heart rate FREQ CARD 104 Paos PAOS 177 Weight PESO 178 Height STATURA 201 Liver FEGATO 80 Spleen MILZA 163 Abdominal Circ CIRC_ADD 16 Physician MEDICO 159 Transfusional program PROG_TRASF In basic data Sacs
55. national server s address e g the Turin centre must enter http cab2 pediatria unito it the Genoa centre http webthal galliera it Running the program After selecting the link for your centre the user s authentication mask will be displayed Enter your user name and password Be careful with the difference between small and capital letters If you don t remember your password contact the software house that will re enable access to the program with a new password talassemia Aw MOS TO OC him tw T SA auth gli Passwo rd After entering your user name and password press Avvio to run the program in Italian or Start to choose the English version Protected connection Connection to WebTHAL is protected i e communication on the Internet is not transmitted through legible data but is encrypted The communications protocol allowed by web browsers and servers is known as SSL Secure Socket Layer The security level is the same as the one used by web sites involved in financial transactions When the web browser connects to a safe server the respective credentials are exchanged for security purposes then on your first connection the following enable screens will be displayed E New Site Certificate Netscape New Site Certificate Netscape XE New Site Certificate Netscape New Site Certificate Netscape To accept connection to the server in protected mo
56. ount Administered amount prescribed amount A A a S volume DFO QUANTITA ML_RESIDUI QUANTITA VOLUME NOTE Computed if volume gt 0 20 FE_ELIMINA Excreted iron sideruria duration FE_ELIMINA SIDERURIA DURATA NOTE If sideruria isnull it is used the previous value of sideruria 21 DFO_MG_KG ae 1 Administered amount pro kg die administered amount 1000 amount 1000 weight duration DEO MG KG DFO 1000 PESO DURATA NOTE Computed if weight gt 0 42 SIDERURIA FILE 22 SID_MG_KG Sideruria pro Kg total sideruria weight SID_MG_KG SIDERURIE PESO NOTE Computed if weight gt 0 23 HB Haemoglobin previous hb post average observed hb fall sampling date previous date out HB HB_POST_PREC MED_DECR_REALE DATA_RACCOLTA DATA_USCITA_PREC NOTE Hb post and date out are of the last day hospital before sampling date with hb post and date out not null d SUMMARY FILE 24 ET current date birth date 365 Age ETA DATA _ATTUALE DATA_NASCITA 365 NOTE Age is in years 25 NUM_TRASF Transfusions number transfusion numbers of previous year transfusions number of current year NUM_TRASF NUM_TRASF_ANNO_PRECEDENTE NUM_TRASF_ANNUALI 26 CONSUMO transfused amount 0 93 A 365
57. ower than 30 after the arrival of the sample 3 lari the correct identification of the patent and give the test tube tatl hawe checked declare that have obtained the informed consent form as required Date and hour 02 06 2001 14 26 Signature of the physician pak for the deve an d the hO Baralis dd foto at the hpr a cin SPACE RESERVED TO THE BLOOD BANK E Type of blood delivered 2 Red blood cells Unit n Blood group Fiht Typing blood test Negative Positive i Unit n Blood group Ah Typing blood test Negative Positive Unit f1 Blood group AR Typing blood test Negative Positive Unit ree Blood qroupfAh Typing blood test Negative Positive Unit egies Blood groupfAh Typing blood test Negative Positive Unit n Blood groupfAh Typing blood test Negative Positive NIS GR e Blood grouprRh Typing blood test Negative Positive Works done Filtration Irradiation Signature of physician of the Blood Bank Hopia Code 01905 O07 Print date OFA WebTHAL 91 U 0 1 6 26 Transfusion sac data The data relating to the transfusion sacs received by the transfusion centre are entered in tabular form The specified date is the transfusion date entered in the transfusion request file The chart provides for each patient treated with a transfusion on the specified date the entering of no more than three blood unit
58. refore you have to access the change option to enter personal data To do so choose the patient from the list select the 2 Family tree file and click the change function button se The program will display the fields to enter the data of some tests After entering or modifying this data you can e confirm changes by clicking the icon Y e cancel changes by clicking the icon x l e go to previous or next data by clicking arrows 4 and Confirm changes and go back to main menu Confirm changes and remain on the current record Go to the next or previous record A E Insert menu Archive 2 Family tree Back to the main page Cancel changes po button select the patient from the list choose the 2 Family tree file and click the enter function button Sp l 15 You can enter data on the whole family and the family tree can be shown on a print page see print sections 2 FAMILY TREE Date at Diagnosis Hb g dL Hb g dL MCV f1 MCV f1 MCH pg n i pg HbA2 HbF HbF HbS HbS Genotype B Genotype B Genotype a Genotype a Altro oe i HLA HLA ABO ae Rh an Hb g dL Hb g dL Hb g dL Hb g dL Hb g dL Hb g dL Hb g dL MCV fl MCV l MCV fl MCV fl MCV fl MCV fl MCV 1 MCH pg MCH pg MCH pg MCH pg MCH pg MCH pg MCH pg HbA2 HbA2 HbA2
59. requency anf infusions number gt 0 12 COMPLIANCE2 Compliance L1 round administrations number 100 interval x administrations prescribed die COMPLIANCE2 round N2 INTERVALLO FREQUENZA2 100 NOTE Calcolato se intervallo frequenza e numero somministrazioni maggiori di O 13 CONCENTRAZIONE dose 100 dilution CONCENTRAZIONE DOSE1 100 DILUIZIONE NOTE Computed if dilution gt 0 Desferal concentration 14 RI interval x weekly prescribed infusions 7 Expected Desferal infusions number 41 R1 INTERVALLO FREQUENZA1 7 15 R2 Expected L1 administrations number interval daily prescribed administrations R2 INTERVALLO FREQUENZA2 INTENSIV CHELATION FILE 16 DURATA end hour begin hour x end minutes begin minutes Time d enddate begin date ime days g T Du DURATA DATA_FINE _ DATA_INIZIO ORA_FINE ORA_INIZIO 24 MINUTI_FINE MINUTI_INIZIO 24 60 17 QUANTITA DF prescribed IV periferal way daily prescription durata ricovero DF prescribed CVC catetere ways total prescription QUANTITA QUANTITA DURATA NOTE DF prescribed CVC means DFO presents in every vaschetta to infuse during the prescribed period DE prescribed IV means daily prescription 18 DFO i residual ml prescribed am
60. rescription FREQUENZAB 115 Other drug FARMACOC 77 Other drug prescription FREQUENZAC 116 Other drug FARMACOD 78 Other drug prescription FREQUENZAD 117 Other drug FARMACOE 79 Other drug prescription FREQUENZAE 118 Diet DIETA1 53 Diet Compliance COMPLIANCED1 29 Diet Compliance DIETA2 54 Diet Compliance COMPLIANCED2 30 Complication COMPLICANZE 31 Complication date DATA_COMPL 33 Examination program PROG_EMATO From basic data White blood cells LEUCO 156 Neutrophils NEUTRO 169 Erythroblasts ELETTRO 54 Platelets PIASTRINE 179 Ferritin FERRITINA 82 Serum iron SIDEREMIA 199 Transferrin TRANSFERRINE 215 Ast AST 11 Alt ALT 7 gGT GAMMAGT 123 ALP ALPH 6 LDH LDH 155 Tot Bil BIL_TOT 13 Creat BIL_IND 12 NA NA 167 K K 154 Ca CA 15 P P 1 6 Mg MG 160 PTT PTT 184 INR FIBRI 83 Glycemia GLICEMIA 124 58 Description Name Number Fruttos FRUTTOS 119 Insul INSULINA 152 TSH TSH 217 fT4 FT4 121 LH LH 157 FSH FSH 120 Estradiol ESTRAD 64 PRL PRO_LATT 180 LIC TIPO_LIC 210 Transferrin Index TR_INX 214 Serum Uric Acid URIC 222 HCV HCV 139 HCV Riba HCV_RIBA 140 HCV RNA HCVRNA 143 HCV RNA value HCV_RNA 141 HCV RNA measur unit HCV_UNITA 142 HBsAg HBS 138 HBs Ab AHBS 4 HAV Ab AHAV 1 HIV Ab AHIV 5 Other examination FREE1_ NOME 88 Other examination dose FREE1 86 Other examination FREE2 NOME 91 Other examination dose FREE2 8
61. s with the relative ID number and quantity The entered data is stored in the Day Hospital for the specified day if the Day Hospital admission has not yet been entered it will be created automatically TYPE OF BLOOD DELIVERED 07 08 2001 21 Exporting Deferiprone data This function allows you to send by E mail the data on patients treated with oral chelating therapy to the National Deferiprone Register Vice versa when data cannot be sent by E mail you can store it in a file The created file can be sent on a floppy CD Click the button o display the data to be sent Confirm by clicking the Save on file button Followup Deferipron export CO TEO RRR RRR RRR RRR RR RRR RR RRR RRR COCO RRR RRR RRR RRR RRR RRR RRR RRR RRR RRR RRR RRR NN RRR RRR RRR RRR RRR RRR RRR RR RRR COE RRR RRR RRR CODICE 0 NATO DATA CONTR HB CONTR NEUTRO PERC NEUTRO CORR PIASTRINE GLOBULI E CORR ARRE RRR RRR RRR RRR RR RRR RRR ARR RRR RRR IRR TTT RRR RRR RRR RRR RRR RRR AENNAAANANAAMANNAAMAANANANNNANEAANA BR RRR RR RRR RRR RRR RRR RRR RRR RRR RRR RRR ARR RRR RRR RRR RRR RRR RRR RIR RRR RRR RRR RRR RIRI RRR RRR RRR RRR RRR RRR RRR DIRI RRR RRR RRR RRR RRR RRR St TOO 2012032 31 01 2000 13 2 30 40 do 573 0 11 77 T ro nn ba RONN repo vee BEEN Da eee eres rere E amo 7 ananas O 588 E 6260 BC ka E ee ee ee ee BET a wi i a osmo T anaig ae 7 108 8D W T map L a OSTO E aiae zabi Po oD 390 BRC ls O nn E la O eee en eee y i anaig
62. starting from the data of each file and records such results in the annual summary file This option can be activated for a single patient or on the entire file Export Deferiprone data This button allows you to activate the necessary procedure for sending data of all patients treated with chelating agent Deferiprone to the National Deferiprone Register e mail address deferiprone Omedeanetwork it This button allows you to display and print the appointment scheduler for one or more patients 112 Entering a new patient To enter new data start from basic data From the main page without considering the patient over whom the pointer is positioned select the 1 Basic data file and click the enter button ou Il be asked to confirm 62 110 51 28 JavaScript Application E 2 Do you confirm the entering of a new patient Annulla The fields displayed concern general basic data the main data on basic disease and the list of clinic and therapeutic programs The data entered in this file will be automatically entered in the corresponding files and vice versa Some fields indicated by the icon H must be filled in Surname Name and Date of Birth Note The fields Surname Name Date of Birth Sex and Rh once confirmed may not be modified Changing basic data To modify a patient s basic data select the patient from the list choose the basic data file and press the change
63. te DATA RACCOLTA 4 Chelator name CHELANTE 2 Chelantor dosage DOSE 6 Diuresis DIURESI 5 Conc urinary iron excretion SID_CONC 15 Total urinary iron excretion SIDERURIE 17 To use in calculation PER_CALCOLO 14 Ascorbic acid VITC 18 Others ALTRE 1 64 Deferiprone L1 File File containing data on weekly checks on patients treated with L1 therapy Num Name Type Default Formula Description 1 CODICE_L1 CHAR 18 copied from basic data L1 code 2 COGNOME CHAR 25 copied from basic data Surname 3 CP_CONSEGNATE NUM 4 Given tablets number 4 CP DIE NUM 3 1 Copied from last hospitalization Tablets pro die 5 CP_RIMASTE NUM 4 1 Formula 37 page44 Tablets remained 6 DATA_CONSEGNA DATE Copied from last hospitalization Delivery date 7 DATA_CONTR DATE Check date 8 DATA CONTR_SUCC DATE Next check date 9 ERITRO_CORR NUM 6 2 Formula 34 page 44 Absoluted NRBC 10 ERITRO_PERC NUM 5 2 NRBC 11 FERRITINA NUM 7 2 Ferritin 12 GLOBULI B CORR NUM 6 2 Formula 35 page 44 White cells number 13 HB CONTR NUM 6 2 Haemoglobin at check 14 IDENTIFIER CHAR 15 copied from basic data Patient ld 15 MOSTDOC_ KEY CHAR 18 assigned Id 16 NATO DATE copied from basic data Birth date 17 NEUTRO_CORR NUM 6 2 Formula 36 page 44 Neutrophils absolut number 18 NEUTRO_PERC NUM 5 2 neutrophils 19 NOME CHAR 25 copied from basic data Name 20 NO
64. ula 29 page43 Iron excreted 11 FE_ELIM_T NUM 7 2 Formula 30 page44 Total iron excreted 12 FE_INTR_T NUM 7 2 Formula 30 page44 Total iron in 13 FE_INTROD NUM 7 2 Formula 28 page43 Iron In 14 FERRIT MAX NUM 5 From DH Maximun ferritin value 15 FERRIT_ MEDIA NUM 5 Mean Ferritin 16 FERRIT MIN NUM 5 From DH Minimun ferritin value 17 FERRIT_ULT NUM 5 copied from DH Most recently ferritin value 18 HB_MEDIA NUM 5 1 Formula 31 page44 Mean hb 19 HB_POST TIPO CHAR 1 copied from DH Hb post type 20 IDENTIFIER CHAR 15 not used 21 LUC MEDIO NUM 6 2 Mean LIC 22 MOSTDOC__ KEY CHAR 18 assigned Unique Identificator 23 NATO DATE copied from basic data Birth date 24 NOME CHAR 17 copied from basic data Name 25 NUM_TRASF NUM 4 Formula 25 page43 Total transfusion number 26 PESO_ULT NUM 6 2 copied from DH Last weight 27 POST_MEDIA NUM 5 1 Formula 31 page44 Mean post trasfusional hb 28 PRE MEDIA NUM 5 1 Formula 31 page44 Mean pre trasfusional hb 29 SGPT_MEDIA NUM 5 1 not used Mean ALT 30 SPLENECTO CHAR 1 copied from DH Splenectomy Y N 31 STORIA CHAR 250 Clinical history 32 STORIA_AUT CHAR 100 not used Clinical history 33 VOLEMIA NUM 6 2 not used Volemia The following list shows the fields in the order of the input mask the table includes the field description the database field name and the reference number in the previous table Description Name Number Patient surname COGNOME 3 Pati
65. usions 20 COMPLIANCE_C2 NUM 3 MEMS administration 21 COMPLIANCE_R1 NUM 3 Formula14 page41 Calcolated infusions 22 COMPLIANCE_R2 NUM 3 Formula 15 page42 Calcolated administrations 23 COMPLIANCE1 NUM 5 2 Formula 11 page41 Desferal Compliance 24 COMPLIANCE2 NUM 5 2 Formula 12 page41 L1 Compliance 25 COMPLIANCE3 NUM 5 2 previous value Third drug compliance 26 COMPLIANCE4 NUM 5 2 previous value Fourth drug compliance 27 COMPLIANCE5 NUM 5 2 previous value Fifth drug compliance 28 COMPLIANCE6 NUM 5 2 previous value Sixth drug compliance 29 COMPLIANCED1 NUM 5 2 First diet compliance 30 COMPLIANCED2 NUM 5 2 Second diet compliance 31 COMPLICANZE CHAR 20 Copied to basic data Complication 32 CREATININA NUM 6 2 Creatinina 33 DATA_COMPL DATE Complication date 34 DATA_CONTR DATE today Haemoglobin check date 35 DATA_HB_PRE2 DATE hb second day check date 36 DATA_INGR DATE today Date in 37 DATA PSACCA DATE First sac transfusion date 38 DATA QSACCA DATE Second sac transfusion date 39 DATA RSACCA DATE Third sac transfusion date 40 DATA SSACCA DATE Fourth sac transfusion date 41 DATA TSACCA DATE Fifth sac transfusion date 42 DATA USACCA DATE Sixth sac transfusion date 43 DATA USC DATE today Date out 44 DATAR DATE Reaction date 45 DAY CHAR 6 not used 46 DECR_PERC NUM 6 2 Formula 7 page40 hb fall 47 DECR_REALE NUM 6 2 Formula 6 page40 Observed hb fall 48 DECR_TEOR NUM 6 2 Previous DECR_REALE Teoric h
66. xcretion SIDERURIA 30 Ascorbi c acid VIT C DOSE 34 Notes PROBLEMI 27 Transfusion requests file File containing data on requests for transfusion Num Name Type Default Formula Description 1 COGNOME CHAR 25 Copied from basic data Surname 2 DATA_COMP DATE today Compilation date 3 DATA_CONTROLLO DATE today Check date 4 DATA_SACCA1 DATE Formula 33 page First transfusion date 5 DATA SACCA4 DATE Second transfusion date 6 DATA_SACCA7 DATE Third transfusion date 7 EMO _ GRUPPO CHAR 50 copied from basic data Blood group 8 EMO RH CHAR 50 copied from basic data Blood group Rh 9 FENOTIPO CHAR 12 copied from basic data Phenotype 10 FILTRATE CHAR 50 Unit type 11 HB_ CONTROLLO NUM 5 2 Hb at check 12 IDENTIFIER CHAR 15 copied from basic data Unique dentificator 13 N_RICH_A NUM 4 Total units required first transfusion 14 N_RICH_B NUM 4 Total units required second transfusion 15 N_RICH_C NUM 4 Total units required third transfusion 16 NATO DATE copied from basic data Birth date 17 NOME CHAR 25 copied from basic data Name 18 Q_RICH_A NUM 4 Total amount required first transfusion 19 Q RICH_B NUM 4 Total amount required second transfusion 20 Q_RICH_C NUM 4 Total amount required third transfusion 21 TOT_EMAZIE NUM 4 Formula 32 page Total amount required 22 URGENTE CHAR 1 No Emergency The following list shows the fields in the order of the input mask the table includes the field description the

User's manual

Contents

Download Pdf Manuals

Related Search

Related Contents