Home

ENIS System User Manual title]

1. Column heading Description ET Nr ET registration number Recipient Name Last name of recipient Date Of Birth Date of birth ABO Blood group of recipient Rh Rhesus factor of recipient Sex Male or female Urg Urgency status of recipient per organ Reg Center Registration center code The vertical line contains 3 parts HLA Column heading Description Full Match Phenotype Full match phenotype of recipient Reduced Match Reduced match phenotype of recipient Phenotype Current Acceptable Current acceptable antigens of recipient Antigens Current Unacceptable Current unacceptable antigens of recipient Antigens Antibody Screening Column heading Description PRA Current Current antibody screening of recipient in percentage with sample date PRA Highest Highest antibody screening of recipient in percentage with sample date Current Antibody Current antibody specificities of recipient Specificities Cumulative Antibody Cumulative antibody specificities of recipients Specificities Previous TXP Column heading Description Eurotransplant Previous KI TXP Amount of previous kidney transplants Dialysis Center Dialysis center of recipient Match Comment Free text field containing all sorts of information In case of a previous transplantation the next line contains Column heading Description Transplant Transplant number Date Date of transplantation
2. E10 1 Insulin dependent diabetes mellitus with ketoacidosis E10 1 Insulin dependent diabetes mellitus with ketoacidosis E10 1 Insulin dependent diabetes mellitus with ketoacidosis E10 2 Insulin dependent diabetes mellitus with renal complications E10 2 Insulin dependent diabetes mellitus with renal complications E10 2 Insulin dependent diabetes mellitus with renal complications E10 3 Insulin dependent diabetes mellitus with ophthalmic complications E10 3 Insulin dependent diabetes mellitus with ophthalmic complications E10 3 Insulin dependent diabetes mellitus with ophthalmic complications E10 4 Insulin dependent diabetes mellitus with neurological complications E10 4 Insulin dependent diabetes mellitus with neurological complications E10 4 Insulin dependent diabetes mellitus with neurological complications E10 5 Insulin dependent diabetes mellitus with peripheral circulatory complications E10 5 Insulin dependent diabetes mellitus with peripheral circulatory complications E10 5 Insulin dependent diabetes mellitus with peripheral circulatory complications E10 6 Insulin dependent diabetes mellitus with other specified complications E10 6 Insulin dependent diabetes mellitus with other specified complications E10 6 Insulin dependent diabetes mellitus with other specified complications E10 7 Insulin dependent diabetes mellitus with multiple complications E10 7 Insulin dependent diabetes mellitus with multiple com
3. N01 9 Rapidly progressive nephritic syndrome Unspecified N02 0 Recurrent and persistent haematuria Minor glomerular abnormality NO2 1 Recurrent and persistent haematuria Focal and segmental glomerular lesions N02 2 Recurrent and persistent haematuria Diffuse membranous glomerulonephritis N02 3 Recurrent and persistent haematuria Diffuse mesangial proliferative glomerulonephritis N02 4 Recurrent and persistent haematuria Diffuse endocapillary proliferative glomerulonephritis N02 5 Recurrent and persistent haematuria Diffuse mesangiocapillary glomerulonephritis N02 6 Recurrent and persistent haematuria Dense deposit disease N02 7 Recurrent and persistent haematuria Diffuse crescentic glomerulonephritis N02 8 Recurrent and persistent haematuria Other N02 9 Recurrent and persistent haematuria Unspecified N03 0 Chronic nephritic syndrome Minor glomerular abnormality NO3 1 Chronic nephritic syndrome Focal and segmental glomerular lesions NO3 2 Chronic nephritic syndrome Diffuse membranous glomerulonephritis N03 3 Chronic nephritic syndrome Diffuse mesangial proliferative glomerulonephritis NO3 4 Chronic nephritic syndrome Diffuse endocapillary proliferative glomerulonephritis NO3 5 Chronic nephritic syndrome Diffuse mesangiocapillary glomerulonephritis N03 6 Chronic nephritic syndrome Dense deposit disease NO3 7 Chronic nephritic syndrome Diffuse crescentic glomerulonephritis N03
4. DTT Til Sample Cross Match Date Type PRA Auto match Specificities Occurred a l 7 Specificities a Cum Specificities a Non cytotoxic complement fixing antib a __s lt Previous Next gt gt The screen contains two tab pages Lab Results and Antibodies The red fields are mandatory Lab Results The field Entry Date is automatically filled with date and time of entry and cannot be changed Enter the code of the screening laboratory in the field Code Choose F9 or the arrow to select a laboratory It is only possible to use the center codes ending on TT e g NLBTT Enter in the field Sample Date the date the blood sample was drawn from the recipient The fields behind Sample Date are display only If already a percentage of antibodies is entered this will be shown in these fields The percentage of antibodies and the sample date of the most recent test result will be used in the ETKAS match When these data are used for matching the checkbox Match Occurred is checked You can use the Comments field for comments per result Cum Specificities are the cumulative specificities Note the information entered in the Antibodies screen will also be used to calculate the highest antibody percentage and date and the current antibody percentage and date Both data sets are shown on the Immunological and Viral History screen along with t
5. The weigth height does not comply with the BMI check do you want to continue If the entered values are correct select Yes and continue the entering of the information If the values are incorrect select No and enter the correct values Identity Name or registration number of the donor Relation to recipient Relation between donor and recipient selection from LOV The following list appears Relation to Recipient Country of Citizenship fee anaa aAA E Permission Given Register Checked Find Relation to Recipient Type Ea E Father Mother BR Hospital Te Son Daughter BR Contact Te Brother Sister BR Grand Father Mother BR Contact Other Te Grand Son Daughter BR Nephew Niece BR Cousin BR Uncle Aunt BR Blood Related NOS BR Spouse Partner NBR PT nth nw in larn t RA ath anew im larna unm Eind J Cancel Select the relation from this list In the list are 2 columns the relation and type of relation BR means Blood related genetically related and NBR means Not blood related not genetically related If the relation is not in the list select either Blood related NOS Not Blood Related family Not Related or Not Blood Related NOS Describe the relation between donor and recipient in the tab Reported Organs in the field Comments Country of citizenship Name of the country where the donor lives automatically fil
6. Eurotransplant individual recipient on the waiting list at time of any future matching procedures Additionally a further stratification in groups of recipients with the same MELD score only takes place at time of matching with a current donor In this stratification recipients within same MELD scores are stratified by a fraction of waiting time that calculates at time of matching the time spent v inthe current MELD v previously in a MELD equal to the current or any higher MELD v previously in HU In conclusion both reports can only serve as a snapshot of the current waiting list They can only serve as an indicator as to v where an individual recipient is at that moment v whether a recipient is in a group of recipients with the same MELD score v how many recipients have a higher or lower MELD score at that moment Parameters for this report are Children only Yes No If Y only recipients younger than 16 years will be reported If N all recipients will be reported HU recipients only Yes No If Y only high urgency recipients will be reported If N all recipients will be reported Sort on Enter a number from 1 to 2 The following sorting orders will be applied 1 ABO 2 ET registration number Both parameters can be combined to show only HU pediatric recipients The header contains the country and an indication whether the options Children only and HU only are selected
7. Columnheader Meaning Follow up frequency D Discharge W6 6weeks Y1 year 1 Yn E end Reject_lu Did the recipient have drug treated lung transplant rejections Yes No Unknown Rejectnr_lu Number of lung rejection treatments the recipients received during the Been iastetoweppeed eee Chr_rej_lu Did the recipient have a chronic lung transplant rejection BOS Yes Reject_he Did the recipient have drug treated heart transplant rejections Yes BS Nerina EAT eee Rejectnr_he Number of heart rejection treatments the recipients received during Chr_rej_he Did the recipient have a chronic heart transplant rejection Yes No ORL hia ewe eberpianreesien eine Immun 1 code First immunosuppression code numeric code Eurotransplant Colummheader Weaning i i i i Fifth immunosuppression code numeric code Immun 5 text Fifth immunosuppression text text translation of code Specification in case of fifth immunosuppression other Blindtrial Did the recipient participate in a blind trial for immunosuppression Yes No Unknown Specification in case of fourth immunosuppression other Malignancies diagnosed Yes No Unknown Malign 1 diagdate The date on which the first malignancy was diagnosed IStrial If the blind trial was stopped which immunosuppressive drug was given Immun 4 text ourth immunosuppression text text translation of code Specification of second malignancy other
8. Creatinine concentration Has the recipient suffered from airway complications lung transplants only Yes No Unknown Number of hospitalisation days in follow up period Malign 1 code First malignancy code numeric code Malign 1 text First malignancy text text translation of code 9 12 13 K_X_020 NOTR Kidney Recipient Extract The data extract contains the following data items concerning recipients in the selected transplants Column header Weaning City of recipient from address Eurotransplant Cause of death text of recipient text translation of code Specification of the cause of death if the cause of death is Other 9 12 14 K_X_021 NOTR Kidney Donor Extract The data extract contains the following data items concerning donors in the selected transplants a a Ur rr Sex of donor F emale or M ale Specification of the cause of death if the cause of death is Other 9 12 15 K_X_022 NOTR Kidney Transplant Extract The data extract contains the following data items concerning the selected transplants Eurotransplant Colummheader Meaning SSC The cold ischaemic period of the graft min This is the time between perfusion from donor and placement in recipient out of the ice First warm ischaemic period min Second warm ischaemic period min This is the time between placement in recipient out of the ice and recirculation e The total ischaemic period cold and
9. Information shown onder this item depends on selected parameter if selected parameter is Cadaver Heartbeating or NHBD cat If selected parameter is Living relation to recipient is shown If selected parameter is All Heartbeating or NHBD cat or relation of donor to recipient Eurotransplant The end of the report shows the total number of transplantations done in the specified center over a specific period 9 7 Match reports 9 7 1 Report A_R_286 Post Allocation report to Transplant Center This report contains information on the allocation procedures during a specified period including the factors which determine the recipient s position on the allocation list This is a basic report organ specific information will be added in time Parameter for this report is Center Code of the center for which the report must be printed ALL The ee code must always end on TP All centers authorized to see Single recipient Et Nr ET registration number Sorting order Enter a number from 1 to 2 The following sorting orders will be applied 1 ET Nr 2 Last Name Maximum rank position 10 default K fe Include unfiltered Yes No orure o OS The header of this report shows the Center code or the ET nr of the recipient and the selected period Sorting order and max rank is shown The body contains the following recipient information Column heading Description Date of birth 9 7 2 Report A_R_287 Post Allocation report t
10. 188384 Whole Liver NLBTP 12 06 2009 Lastseen date Sae immediate performance of liver E SPECIFIC TRANSPLANT INFORMATION C Partial transplant Save the information via F10 or the Save button Note it is possible to register the transplantation even if the donor was reported in the ENIS system after the transplantation was performed Enter the correct date and time of the nephrectomy or the hepatectomy in the organ screen For description see 4 4 Organ anatomy registration 6 1 4 Immuno Suppression In this screen the medication of the recipient must be entered Go to TXP Immuno Suppression The following screen appears Action Edit New Select Recipient Donor TXP Center Reports Help Window Doel AFR IRS KI za Immuno Suppression ve set 177285 Right Kidney NRDTP 11 03 2008 Last seen date Save Initial Maintenance In this screen the ET number and transplanted organ of the selected recipient is shown next to the registration center and transplant date The cursor is at the first record Now you can enter the Initial and the Maintenance ieres suppression via the List of Values F9 This list of values contains the following ieres suppression Name of medication Code ALG 45 ATG 46 OKT3 MOAb 81 IL2 receptor MOAb 82 ALG or ATG 49 Anti_Pan T MOAb 51 MOAb to lymphocytes 59 OKT4 MOAb 83 MOAb to epitopes 89 IL 3 receptor antagonist 93 Plasmapheresis 92 Cyclosporin A 31 Tacrolimus
11. Fifth initial immunosuppression code numeric code Fifth initial immunosuppression text text translation of code Specification in case of fifth immunosuppression other Is the recipient lost to follow up Yes No Unknown Lastseen The date on which the recipient was last seen in case of lost to follow up Dialysis Was the recipient on dialysis at the time of transplant Yes No Unknown Dialtech The dialysis technique used if the recipient was on dialysis at the time of transplant code Dialysis technique Insuline The daily amount of insulin before transplantation U day Numeric 0 60 HBA1c The percentage of glycosylated serum hemoglobin of the recipient before transplantation Numeric 0 20 Ductman Duct management The pancreas duct anastomose Intraperitonal Pancreaticocystostomy Pancreaticoileostomy Pancreaticojejunostomy Ducttech Duct management technique The drainage technique used code duct management technique Vendrain The venous drainage technique used Vena porta Right vena iliaca left vena iliaca vena cava Renalbiop Was a renal biopsy taken Yes No Unknown Eurotransplant Cowumnneader Weaning Neprhopat Diabetic nephropathy documented by renal biopsy Yes No Unknown Othrendiag Diagnosis of other renal diagnosis in case of a renal biopsy and no diabetic nephropathy 9 12 8 P_X_8 NOTR Pancreas Follow Up Extract The data extract contains the following data items co
12. Overview of available reports and extracts lists all the available reports and extracts and gives an overview of the contents of each report or extract Addendum A contains the code tables for the extracts Eurotransplant 1 Overview of the Eurotransplant ENIS system You don t have to be a computer expert to be able to use the Eurotransplant ENIS system However to help you operate it more efficiently take your time to read this section about the components of the ENIS system and different environments 2 The Eurotransplant information system The Eurotransplant International Foundation has a computer system to register recipients donors and transplants and to perform matches for the separate organ This system has the name ENIS Eurotransplant Network Information System Each transplant center collaborating with Eurotransplant can enter update and retrieve their own information of center recipients living donors and transplants To ensure as much privacy to donors and recipients access to data in the ENIS system is limited by user rights Users can see data specific for their function and or center Even at the Eurotransplant head office in Leiden not all personal has access to all the data We distinguish three different environments in our system 3 Production environment 4 Education environment 5 Development environment Production is the environment where all the daily information is entered and where the
13. Y only selected records in antibodies per center will be printed N all records will be printed Below the report header are shown the center code the name of the user that processed the data and the organ being processed The body contains the recipients on the waiting list selected for antibody input For each recipient the following information is shown Column heading Description Etnr ET registration number DC Dialysis center first 2 characters Name Last name ABO Blood group Sample date Blood sample date Center Center code where the screening was performed Entry date Entry date AP Antibody percentage Specificities Antibody specificities At the end of the report there is room for a date stamp and approval 9 4 3 Report K_AM_129 AM Program Waiting List This special report generates an overview of the recipients who take part in the Acceptable Mismatch AM program at the time of the report The content covers in particular immunological information and relevant administrative data Parameters for this report are Name Parameter Acc unacc all Option between only acceptable antigens AM only unacceptable antigens UN or both Empty Please use always Empty TP Center s Code of the center for which the report must be printed The code must always end on TP All shows all centers you have authorizations to see Sorting order Enter a numb
14. An editor window will open to have an overview of the whole text oc Eurotransplant ENIS system user manual 2 3 4 Messages and prompts During registration or updating information it is possible a message or prompt question appears on the screen Usually all you have to do is answer Yes No Cancel OK or Exit by clicking the appropriate button For example ENIS checks to see if mandatory fields are filled If information is not complete and you want to save the information a warning appears with the missing information Message Code ET 71130 Date of birth is mandatory R_MOD022 v A A gt gt Print FRM 40400 Transaction complete 1 records applied and saved An example of a prompt is a Recipient 266289 is not on the Kidney Waiting List do you want to insertthis recipient In the description of the system which starts at chapter 3 the most common messages and prompts will be displayed 2 3 5 ID Header At the top of the screen is also a line called ID Header Information about the recipient or donor you have selected will appear in this ID Header 2i Eurotransplant This is the header belonging to a recipient shown in every recipient screen ETNr Recipient Name Date of Birth ABO Rh Sex HE LU LIY PA KI Special Reg Ctr 278984 Enis manuat moso po fos fw k Ner The header makes it possible
15. Center The profile items are not mandatory When there is no data entered the system will use the 50 Eurotransplant center donor profile for matching The recipient specific profile has always priority over the center specific profile Next to the items you can fill out you see the center profile shown in view only fields The following requirements can be entered Min Age Max Age Minimum and maximum acceptable donor age Only whole numbers can be entered Accept en bloc lt 5yr This is a Yes No field indicating whether en bloc offers for donors of age 5 and younger are accepted No automatic filtering is done on this item It appears on the match reports that are used by the Eurotransplant duty office NHB Donor This is a Yes No field indicating whether non heartbeating donors are accepted for this recipient Euthanasia donor This is a Yes No field Yes means euthanasia donors are accepted No means they are not accepted for this recipient ESP donor gt 65 yr This is a Yes No field indicating whether ESP donors are accepted These are donors 65 years of age or older HbsAg HbcAb HCVAb There are two possible entries Any and Neg selectable by the arrow Any means that positive and negative donors are accepted When entering Neg only negative donors will be accepted Exclude Recipient from No Capacity This is a Yes No field Yes means that this recipient will appear on the ET
16. Dob Date ofbinth ofrecipient OOOO O Ki ABO i R H Highest PRA screening HLA A B C in recipient full match phenotyping Primary disease code Primary disease code for kidney End stage renal disease Code table 2 Pa Disease No of pa txp in other Number of pancreas transplantations in other center then current center registration center 9 8 9 R_X_025 Waiting List With Insurance Data Extract The waiting list extract lists recipient and waiting list data plus recipient insurance data from all waiting list registrations of the indicated organ type and in the indicated period The parameters which should be entered are Default is the separator ALL RU PR FE Wor Format dimm yyy Format dimm yyy Eurotransplant Non residents only Y es or N o If Y only non resident recipients are shown If No all reported recipients are shown s Center s Default is ALL which means all transplants from the user s center are shown If the center to do name begins with G the column header for the insurance company is filled with VK nr otherwise it is filled with R ins comp Columnheader Meann SSCS R Country Country of recipient Registration center of recipient R Reg Date Registration date of recipient R Date on wl Date put on waiting list Date of birth of recipient R Required Organ s Organs for which recipient is on the active or passive waiting list s ipi
17. HbsAg status of recipient HCVAb status of recipient CMVIgG status of recipient HIVAb status of recipient Highest Pra percentage of recipient at time of transplant Date of highest Pra of recipient at time of transplant Current Pra of recipient at time of transplant Date of current Pra of recipient at transplant Cumulative AB specificity Acceptable antigens Unacceptable antigens maximum length of 125 positions Unacc complete Indicator if Unaccept ab is complete Yes if length of Unaccept ab is less then or equal 125 No if length of Unacceptable ab greater then 125 in which the first 125 positions are reported Height Height in cm of recipient Weight in kg of recipient Nr of hospitalisation days Number of hospitalisation days before transplantation after date put Nr of outrecipient visits Number of outrecipient visits before transplantation after date put on HEtxptech The transplant technique of the heart Code 393 orthotopic a 394 heterotopic 395 heart lungs Eurotransplant Cowumnneader Meaning LUtxptech The transplant technique of the lung s Code EB Lungs transplanted en bloc S Lungs transplanted bilaterally sequentially HL Heart and lungs transplanted UL Unilateral The lung disease of the lung or heart lung recipient numeric code Specification of the heart disease if the diagnosis is Other HLAtype_1 The sort of typing that is used for the HLA class typing of the a reci
18. Name Parameter TP center Organ Date screening becomes Page break on dialysis center Code of the center for which the report must be printed The code must always end on TP LOV KI HE LU LIV PA The date the screening becomes outdated default filled with current date Yes No If Y recipients are grouped by dialysis center If N all recipients will be reported by sorting order The header shows the organ selected the outdated date and the center code The body contains the following recipient and screening information Column heading Description Seq Nr Ranking order Center Registration center code ET Nr ET registration number Name Last name Date of birth Date of birth Urg Urgency status of recipient Last Scrndt Date on which the last screening was tested Dialysis center Dialysis center of recipient 9 4 6 Report K_IM_241 Immunological Monitoring Report This special report generates an overview of the rank positions of one or all recipients including the allocation results Parameters for this report are Name Parameter From date Until date Center Start date of report End date of report Code of the center for which the report must be printed The code must always end on TP Eurotransplant Recipient ET nr Possibility to run the report for a single recipient Leave blank all recipients are selected Sorting o
19. annual inquiry you can update the Eurotransplant Date last seen field Save the information via F10 or the button Save Note in case of a combined transplantation in the Transplant Update screen a Combined Txp button will be visible When you click on the button a small window is popped up with transplant numbers and the corresponding organ details of the combined organ transplantation za Combined Transplants X Txp nr Organ 177286 He 1772987 LLu 177288 RLu 6 2 2 Automatic updates after transplantation registration After the registration of the transplantation the recipient is removed from the waiting list for this organ The Urgency code is changed to FU Follow up Transplanted The Organ Screen is updated with the Date removed from waiting list The Reason for removal is Transplanted The transplant data is shown in the screen Status and Events The number of transplants of this type carried out on this recipient is totaled and visible in the Recipient Organ screen in the Cumulative transplants field Eurotransplant 7 Center information registration and update 7 1 Entering and updating the center registration screen Address data and contact data must be entered in the Center registration screen Select Center Center A search screen appears zg Select Center Select F9 New Exit Center Selection Criter
20. HU only are selected The body contains the recipient information in a one line format for the short and a two line format for the long report In the first line printed in long and short reports Bo eos Eurotransplant cr Days on status HU high urgent Days on status U urgent Days on status T transplantable Days on status NT not transplantable Second line only printed in the long report 9 1 9 Report HL_WL_165N Heart Lung Waiting List National This report contains all recipients registered on the heart lung waiting list in your country a national heart lung waiting list using the same layout as for HL_WL_165C including the Tot NT Total days waiting time on not transplantable urgency Data for non local recipients are anonymous Parameters for this report are Short or long list L S Enter L or S to get a long or short report The description of the report body will show which items are included in each version Sort on Enter a number from 1 to 3 The following sorting orders will be applied 1 Name 2 ET registration number 3 ABO Children only Yes No If Y only recipients younger than 16 years will be reported If NT N a reapienes var ereponea o oo S oSer HU recipients only Yes No If Y only high urgency recipients will be reported If N all e recipients will be reported The last two parameters can be combined to show only HU pediatric recipients The
21. Maint immsupp 3 Thi maintenance immuno suppression Code tabe Maint immsupp 4 Four maintenance immuno suppression Code tabe 7 Fl hase hours a ta I minutes ia a period 2 eere Performance eee ee eros table 1B ki Disease mem trea table 2B pa Disease 3C LI Disease 4B HE Disease 5B Lu Disease Number Explanation of the Notes The sequence number for this transplant organ Thus if a transplant registration is the first such transplant registered in the ET computer system then the value is 1 if it is the second then the value is 2 etc In the HE_X_004 report Heart the column T He will be filled In case the recipient had a multi organ transplant i e more than one organ from the same donor during the same transplant procedure then the corresponding columns will contain a transplant registration nr 9 10 4 LU_X_005 Lung Transplant Extract This extract reports all lung transplants lung only or lung combined with other organ Column header Explanation Fae osd __ TOENE Transplant cener rst postions oT ET cantercode Ren ET recisvaton number oireen Rame tastname ofrecient Ramm Femeie a Sex of recipient F emale or M ale ooo Rao b di R Bodas a as R Ki pdc edta Primary ET kidney disease of recipient Code table 1A Ki K a R Pa pdc et Primary ET pancreas disease of recipient Code table 2A Pa D en eee R Li pdc etlr Primary ET liver disease of recipient Cod
22. Min age Max age Minimum and maximum acceptable donor age Only whole numbers can be entered For both fields the minimum is 0 and maximum 999 HbsAg HocAb HCVAb There are two possible entries Any Neg Any means HbsAg HbcAb or HCVAb positive and negative donors are accepted When entering Neg only HbsAg HbcAb or HCVAb negative donors will be accepted NHB Non heartbeating donors accepted Yes No Domino Donor Domino liver accepted Yes No Explanted liver Explanted liver accepted Yes No Sepsis Donors with sepsis accepted Yes No Meningitis Donors with meningitis accepted Yes No Malignant Tumor Donors with a malignant tumor accepted Yes No Drug Abuse Donors with drug abuse accepted Yes No Rescue Allocation Rescue allocation accepted Yes No Marginal donor Marginal donor accepted Yes No A donor is a marginal donor when one of the following items is met IC with mechanical ventilation gt 7 days BMI gt 30 Steatotic liver gt 40 Biopsy proven Serum Sodium gt 165 mmol SGPT ALAT gt 105 U I SGOT ASAT gt 90 U I Serum Bilirubin gt 3 mg dl All these criteria are shown in the screen as a reminder lt e2 ee fe Once you entered or updated the information save the information via F10 or the disc button Eurotransplant 7 1 4 Thoracic The tab page SONG contains the Center Profile for the thoracic organs Min Age mo HbsAg Sepsis ves B Max Age fos HBcAb Mening
23. None Show Output Save Output Show Logfile Retesh Autorefresh is Off The screen with all requested reports or extracts appears The screen contains two parts The first part gives you a list of jobs you started with the latest one on top The vertical scrollbar lets you scroll to other reports extracts which are not visible In the screen the name and description of the report extract is shown the status of the report extract and the Job number and planned and actual start of the report extract The column Status shows the status of your report These are the different statuses Queued this status indicates that the report or extract in waiting in line to start It is placed in a queue what may happen if multiple centers request reports at the same time Running this status shows the report extract is still being processed all information is gathered Succeeded this status shows the reports or extract is ready You can open and print or save the report or extract Error This status shows the report or extract did not run and encountered an error Note some reports or extracts take a while to finish It might look as if it is not working but please be patient As long as the status is Running the information is still gathered If the report fails to run the word Error will appear in the column Status Then you can try again If the status Error appears again please contact Eu
24. Proof of Maturation X Ray Date Date Next Reevaluation It is an overview of waiting days in the different urgency statuses and the cumulative transplants No data can be changed in this screen it is view only When the urgency code for an adult recipient is HU international the fields Date Last Re 57 Eurotransplant ENIS system user manual evaluation and Date next Re evaluation are filled If a re evaluation is accepted Eurotransplant will change the Date Last Re evaluation Then the field Date next Re evaluation will be updated automatically The Button Print Letter is used only by Eurotransplant The button prints the letters send to the transplant centers with the date the recipient has to be re evaluated for HU When the Hospitalized request for a pediatric recipient is accepted ET will enter the date of Hospitalization in the field Date Request Hospitalized The Button Print Letter is used only by Eurotransplant The button prints the letters send to the transplant centers with the confirmation of the acceptance for status Hospitalized When the In Maturation request for a recipient is accepted ET will enter the X Ray in the field Proof of Maturation X Ray Date After saving the field Date next Re evaluation is filled The Button Print Letter is used only by Eurotransplant The button prints the letters send to the transplant centers with the date th
25. The body contains the recipient information in a one line format for the short report In the first line Deby baeben OOOO Eurotransplant Doe ae of inh recipi oE Pediatric MELD score Recertification date for the Lab MELD score Reconfirmation date for Exceptional MELD score Display only for recipients of your own center The end of the report shows the total number of recipients on the waiting list of the specified country 9 1 12 Report P_WL_168C_R Pancreas Waiting List Center This report contains all recipients registered on the pancreas waiting list in your center Parameters for this report are From center Code of the center for which the report must be printed The code iia must always end on TP Children only Yes No If Y only recipients younger than 16 years will be reported If N all recipients will be reported HU recipients only Yes No If Y only high urgency recipients will be reported If N all iia recipients will be reported Cluster list Yes No Y All recipients of the participating centers will be reported aide N Only recipients of the own center will be reported Sort on Enter a number from 1 to 2 The following sorting orders will be applied 1 ABO 2 ET registration number The second and third parameters can be combined to show only HU pediatric recipients The header contains the center code and an indication whether the options
26. Y recipients are grouped by ET Nr If N all recipients will be reported by sorting order View changes by LOV A C R A All users C Central Eurotransplant R Remote ed The header contains the period selected and the center code Eurotransplant The body contains the following recipient information Column heading Description ET Nr ET registration number Name Last name Item Type of information entered Old value Information entered prior to update New value New entered information Entry date Date of entry new information Changed by Username of person who entered the information 9 2 4 R_H_152 Urgency History This report generates an overview of registrations concerning the urgency for a single recipient or all recipients in your center during the given time of period Parameters for this report are Name Parameter Center Code of the center for which the report must be printed The code ET _ atsnaysondon Ten nn ee TIS ET Nr Possibility to run the report for a single recipient Leave blank all ON rapenean S o S oS ORON Toae Man el KI HE LI LU PA or ALL Start date of report dd mm yyyy End date of report dd mm yyyy Page break on ET Nr Yes No If Y recipients are grouped by ET Nr If N all recipients will be reported by sorting order The header contains the period selected the selected organ and the center code The body contains the fol
27. Active or passive recipients with outdated screening 4 Active or passive recipients without date of first dialysis or technique The body contains the following recipient information Column heading Description ET Nr ET registration number Name Last name Center Registration center code Dob Date of birth Urg Urgency code Living Family transplantation Yes No Dial Date Date of first dialysis Tech Dialysis technique ABO Blood group Scrn Date Date of last antibody screening Reduced Match Reduced match phenotype phenotype Days in WR report 1 Total of days in the waiting room Days invalid report 2 Total of days with invalid data Eurotransplant Days OS report 3 Total of days with outdated screening in urgency T Report 4 Total of active of passive recipients without date of first dialysis or technique 9 2 Recipient reports general 9 2 1 Waiting list Overview The waiting list overview is an overview per recipient with all the relevant waiting list data The waiting list overview can be printed out at any time When a recipient is on more than one waiting list all available overviews will be shown and can be printed Select the recipient go to Recipient Organ Waiting List overview The report will appear Example of a Kidney waiting list overview 22 june 2005 14 26 53 Waiting List Overview Database betal ET Nr Reci
28. Bregda Regatraton dae of dor o Bye Donor ype Cede Oral Relation of donorto ecient Dabo Biood roup af donor D sex Sex of donor F emale or M ale Dod Cause of death afdonor o Bw wmo Dem mioo Full match phenotype of donor ooo Transplant registration number of left kidney Recipient ET registration number for left kidney Recipient ET registration number for both kidneys Rpa Reopen ET regsvaion number orpanowas r Transplant registration number of whole liver Recipient ET registration number for whole liver R ERLliv Recipient ET registration number for Extended right lobe Transplant registration number of full Left lobe R LLliv Recipient ET registration number for full Left lobe 2 Transplant registration number of full Right lobe Recipient ET registration number for full Right lobe Transplant registration number of heart lung Recipient ET registration number for heart lung Eurotransplant Explanation Recipient ET registration number for left lung Number Explanation of the Notes 1 If there is no ET transplant registration number in the respective column then there is no transplant registered for the respective organ detail In case a recipient received a multi organ transplant i e more than one organ from the same donor during the same transplant procedure then the same recipient ET registration number will be present for the respective organ detail 9 9 2 D_X_013 Donor Organ Transplant Inform
29. CP Donor Euthanasia Euthanasia donor accepted Yes No Center profile Donor 9 8 6 HL_X_034_R Thoracic Waiting List with donor profile Extract This extract offers an overview of all registered thoracic recipients and the entered recipient profile The parameters which should be entered are Name Parameter Separator Default is the separator Organ HE LU HELU List Center Country Cluster HU only Yes No If Y only high urgency recipients will be reported If N all recipients will be reported Children only Yes No If Y only recipients younger than 16 years will be reported If N all recipients will be reported Unicode The last two parameters can be combined to show only HU pediatric recipients If the list is made for the entire country or cluster the items Name Dob and Sex are shown for the recipient of your own center only The header shows the selected parameters The body contains the following columns Column header Explanation Registration center of recipient ET registration number of recipient bob b di SSCS Height Height of recipient in cm Organs required Organs for which recipient is on the active or passive waiting list s Eurotransplant Column header Explanation Blood group and rhesus factor Current thoracic urgency code HU U T NT R FU Foreign Approval Has the HU status been approved by the international audit committee Yes No
30. Date on WL Date put on heart waiting list Number of continuous days the recipient has been as HU on the waiting list waiting list Number of continuous days the recipient has been as T on the waiting list Number of continuous days the recipient has been as NT on the waiting list Female Donor min Minimal acceptable female donor length height Maximal acceptable female donor length height Exclude Recipient from Exclude Recipient from No Capacity Yes No Recipient profile No Capacity Current LAS score LAS score currently used in match 9 8 7 K_X_027 Tbase Kidney Waiting List Extract The kidney waiting list extract reports all recipients who are on the kidney waiting list The parameters for these extracts are Eurotransplant Wameitem bespton SOS eX Dob baedi oS Dialysis center name Current PRA screening Highest PRA screening Primary disease code Primary disease code for kidney End stage renal disease Code table 1 Ki Disease HB immunization Yes No No of ki txp in other Number of ki transplantations in other center then current registration center center 9 8 8 P_X_029 Tbase Pancreas Waiting List Extract The pancreas waiting list extract reports all recipients who are on the pancreas waiting list The parameters for these extracts are Name item Description o Default is the separator Eurotransplant Format is aT P Column header Explanation
31. ETKAS Indication of match type recipient is participating in for German recipients only Donor Malignant Tumor Donor with malignant tumor accepted Yes No Recipient profile Donor Drug abuse Donor with drug abuse accepted Yes No Recipient profile Donor Euthanasia Donor Euthanasia donor accepted Yes No Recipient profile Donor Domino donor Domino donor accepted Yes No Recipient profile Donor Rescue Allocation Rescue allocation accepted Yes No Recipient profile 9 8 2 LI X_009 Liver Waiting List Extract The liver waiting list extract reports all recipients who are on the liver waiting list Column header Explanation ET Nr ET registration number of recipient tr Registration center of recipient Last Name Last name of recipient First Name First name of recipient Eurotransplant Column header Explanation Sex Sex of recipient F emale or M ale Date of birth of recipient Age Age of recipient at time of extract Country Country of recipient ET Resident Is recipient considered a match resident Yes No Req Organs Organs for which recipient is on the active or passive waiting list s Ki urg Current kidney urgency code HU HI T NT Pa urg Current pancreas urgency code SU T NT R FU 3 J J Lu urg Current lung urgency code HU T NT R FU ABO ABO blood group of recipient Rhesus factor of recipient D gt Weight Weight of recipient Height Height of recipient Liv urg Current liver urg
32. Eurotransplant Column header Cum Specificities Cumulative antibody specificities Full match phenotype Full match phenotype The end of the report shows the total number of recipients on the waiting list of the specified country 9 1 8 Report HL_WL_165C_R Heart Lung Waiting List Center This report contains all recipients registered on the heart lung waiting list in your center Parameters for this report are From center Code of the center for which the report must be printed The code ere nastauayeendont o r Sopta m Short or long list L S Enter L or S to get a long or short report The description of the ee report body will show which items are included in each version Sort on Enter a number from 1 to 3 The following sorting orders will be applied 1 Name 2 ET registration number 3 ABO Children only Yes No If Y only recipients younger than 16 years will be reported ai If N all recipients will be reported HU recipients only Yes No If Y only high urgency recipients will be reported If N all jeer recipients will be reported Cluster list Yes No If Y all recipients of the participating centers will be reported If N only recipients of the own center will be reported The fourth and fifth parameter can be combined to show only HU pediatric recipients The header contains the center code and an indication whether the options Cluster list Children only and
33. FK 506 32 Azathioprine 21 Cyclophosphamide 22 MMF Cellcept 24 Methotrexate 25 MMF Myfortic 70 Mizoribine 26 Everolimus 27 Sirolimus 33 Corticosteroids 10 Other Antimetabolites 23 Other Cyclosporins 39 Rituximab 71 Other 99 None 0 Eurotransplant When you have entered all medication save the information via F10 or the Save button 6 1 5 Transplant organ information The transplant organ information screen offers the possibility to enter specific information about the transplantation e g ischemic times follow up details There is a separate screen per organ Select the recipient or transplantation and go to TXP Organ Information Kidney This is the screen for the kidneys ea TXP Organ Information Kidney Module TXP_82 188383 Right Kidney NLBTP 12 06 2009 Lastseen date Diuresis first hour SPECIFIC TRANSPLANT INFORMATION Diuresis ml Rest diuresis ml Site of implantation Cold ischaemic period Warm ischaemic period 2 PROTOCOLS AM OHIT O KidNet O uw O HTK Center Date Creatinine Units FOLLOW UP DETAILS A gt r J v In this screen the ET number and transplanted organ of the selected recipient is shown in the header as well as the registration center and transplant date The screen is divided in two parts Specific transplant information and Follow up details In the first part Specific transplant information information concerning the ieresis and the duration
34. FU h i Eurotransplant Column header Explanation He txps Total heart transplants registered in ENIS for this recipient HeLu txps Total combined heart lung transplants registered in ENIS for this recipient TE Put on WL Previous Curren Match Official Waiting Time used in the ET Kidney Allocation System in days Current NT If NT urgency code number of continuous days the recipient is on the NT status in days Family txp Recipient waiting for live donor txp Yes No Dialysis Ctr Dialysis center name Address Ctr Address dialysis center Telephone Ctr Telephone number dialysis center Dialysis Physician Name of dialysis physician Telephone Physician Telephone number of dialysis physician Scr date Date of last screening Scr Invalid Is the last screening date within valid range of extract date i e 152 days Yes No Y valid N outdated R Current PRA screening Auto Auto antibodies DTT cross match DTT cross match needed Yes No H Highest PRA screening Unacceptable Unacceptable antigens Mismatch probability factor number of points scored for this allocation factor Recipient in Acceptable Mismatch program Yes No A B_Full_Phenotype HLA A B C in recipient full match phenotyping DR_Full_Phenotype HLA DR DQ in recipient full match phenotyping KI_PDC EDTA Primary disease code for kidney End stage renal disease Code table 1A Ki Disease K_POGICDT0 Hs Ag HBs AD HB rm HCV Ab CMV
35. Organ Left or right or both kidneys Donor Donor number Full match phenotype Type of HLA and Full match phenotype The end of the report shows the total number of recipients on the waiting list of the specified center 9 4 8 R_H_150 Screening History This report generates an overview of registrations concerning the screening for a single recipient or all recipients in your center during the given time of period Parameters for this report are Name Parameter Center Code of the center for which the report must be printed The code a must always end on TP ET Nr Possibility to run the report for a single recipient Leave blank all ee iepemsareseraga o o S SOS OPON 198e PN el Start date of report dd mm yyyy End date of report dd mm yyyy Page break on ET Nr Yes No If Y recipients are grouped by ET Nr If N all recipients will be reported by sorting order View changes by LOV A C R A All users C Central Eurotransplant R Remote ed The header contains the period selected and the center code The body contains the following recipient information Column heading Description ET Nr ET registration number Name Last name Sample date Sample date of last PRA screening PRA Current antibody screening of recipient in percentage Screen type Screenings type Auto Auto antibody testing DTT Cross match DTT cross match needed Yes No Curr Specifities Current
36. Other Reason no BSN tj Center Data j Local Hospital Reg Nr es 2 The recipient screen appears This screen contains three tab pages The screens opens with the first tab page Contact The field Registration Date Reg Date is automatically filled You can jump through the fields by using the Tab key The red fields are mandatory these must be entered to retrieve a Recipient number ET Nr If the other information is available please enter this information BSN is mandatory for Dutch recipients only If the BSN is not known the Reason no BSN is mandatory Note the country of residence must be entered in the field Country not the country of the registration center Use for Registration Center Reg Center the TP code You can use the arrow or F9 for the list of centers Use for Contact Center a center code with an organ abbreviation You can use the arrow or F9 for the list of centers For example XXXKI or XXXHE Enter all information After this screen go to the second tab page Insurance Consent Authorization Insurance Type is Company Name Insurance Code Address Insurance Nr Postcode City Insurance Type is a mandatory field It depends on the insurance type if the other fields must be entered also 30 Eurotransplant ENIS system user manual Note for the German centers if the Insurance Type is KF PF o
37. Other drug related specify A21 Subacute hepatitis Toxic non drug Eurotransplant B01 Cholestatic disease Secondary biliary cirrhosis B02 Cholestatic disease Primary biliary cirrhosis B03 Cholestatic disease Primary sclerosing cholangitis B04 Cholestatic disease Others specify C01 Congenital biliary disease Caroli disease c02 Congenital biliary disease Extrahepatic biliary atresia C04 Congenital biliary disease Congenital biliary fibrosis C05 Congenital biliary disease Choledocal cyst C06 Congenital biliary disease Alagille syndrome C07 Congenital biliary disease Others specify D01 Cirrhosis Alcoholic cirrhosis D02 Cirrhosis Autoimmune cirrhosis D03 Cirrhosis Virus B related cirrhosis D04 Cirrhosis Virus C related cirrhosis D05 Cirrhosis Virus BD related cirrhosis D06 Cirrhosis Virus BC related cirrhosis D07 Cirrhosis Virus BCD related cirrhosis D08 Cirrhosis Virus related cirrhosis Other viruses specify D09 Cirrhosis Post hepatitic cirrhosis Drug related D10 Cirrhosis Other cirrhosis specify D11 Cirrhosis Cryptogenic unknown cirrhosis E01 Cancers Hepatocellular carcinoma and cirrhosis E02 Cancers Hepatocellular carcinoma and non cirrhotic liver E03 Cancers Hepatocellular carcinoma Fibrolamellar E04 Cancer
38. cccecceseeeee esse ene eeeee tees eneeeneeeneeeneeeaes 196 9 11 1 HE_X_030 Recipient Questionnaire EXxtraCt cccccccccccccccsesscscsseseesesseeesceeseesesseseesesees 196 9 12 NOTR Extracts Dutch centers Only cceeeeeeee ee eee ee ee eee e eee ee teeta ee eaeaes 199 9 12 1 LI_X_1 NOTR Liver Recipient Extract c cccccccccccscccsseseesesseseeseseeseesesseseesesseseesesesseesesees 200 9 122 LI_X_2 NOTR Liver Donor Extract u cccccccccccccccsseseesesseseeseseeseescsesseeecsesseecseeseeecsesseeenees 201 9 12 3 LI X_3 NOTR Liver Transplant Extract c c ccccccccccscscssesesscsseseescsseseescseeseeeesecseeseseeseesenees 202 9 124 LIX 4 NOTR Liver Follow Up Extract ccccccccccescccsseseesesseseescsseseeseseeseeseseeseeseseeseeeesees 204 9 12 5 P_X_5 NOTR Pancreas Recipient EXxtraCt cc ccccccccccccsssecscsseseeseseeseeecseeseeeeseeseesesees 205 9 12 6 P_X_ 6 NOTR Pancreas Donor EXtraCt ccccceccccccescsseseseeseseseseceseeeeseseeeceseeseeesensneeaeees 205 9 12 7 P_X_7 NOTR Pancreas Transplant EXtraCt c ccccccccccccccccsseseesesseeesesseseesesseseeeeseeseesesees 206 9 12 8 P_X 8 NOTR Pancreas Follow Up EXtraCt cccccccccccccccssesecscsseseesessesesseseeseeeceeseesesees 208 9 12 9 HL_X_9 NOTR Thoracic Recipient EXtract cccccccccecsssscesesesseseseesesesenseseseeeescseeeeeaeees 209 9 12 10 HL_X_10 NOTR Thoracic Donor EXtraCt ccccccccccccesscsceescsseescsseescessescesccssesecssesestseseees
39. matching takes place All information entered of recipients and centers is used for these matches Here you must register new recipients and update all information concerning the recipients and your center Our education and testing environment Beta environment is a scrambled version of our production environment We use it to test all new changes to the system and to give our in house education This is the environment that you can use to train new employees or test new changes Our development environment is used to develop all new upgrades and changes of the system by the Eurotransplant IT department To make sure users work in the right environment we have tried to separate the types of environment as obvious as possible The production environment is placed under Applications and the Education environment is placed under Test and Education on the ET member site When you log into the Education environment a message appears educational purposes This enviroment should only be used for test and h 4 Furthermore the window includes two brightly colored blocks with text in them to warn users and prevent mix ups Eurotransplant Eurotransplant ENIS Beta Windows Internet Explorer Action Eolt New Select Recipient Donor IXP Center Reports Match Yindow Help Dae iA SxX RRI PPR t lt a NO CURRENT SELECTION Module MAIN This enviroment should only be used for test and fi educational purposes TES
40. x thorax ECG This is an option that is still under construction At this moment only JPEG files can be uploaded The tab Recipients contains the recipient s for who the offer was made The tab has the following lay out Eurotransplant 9 General data CENTER DATE DONOR Nr Cadaver type PHONE CONTACT NNYTP 06 03 2012 10 48 143513 Heartbeating 564503430 W Hordijk Recipients Browse result pages 1 Rank ET number Recipient name Sex Center Organ Age Waiting since Primary disease Status Txp details 1 220198 DIOCIE BLIMXE F NGRTP Liv Recipient report Waiting list overview Immunological overview ON 2 276974 SIQUMPEMT M NGRTP Liv Recipient report Waiting list overview Immunological overview ON 3 297484 G ULFALV F NGRTP WLiv Recipient report Waiting list overview Immunological overview A 1 401321 HODEH M AWGTP Lu Recipient report Waiting list overview Immunological overview ON 2 385576 PLUIBTULT M NGRTP Lu Recipient report Waiting list overview Immunological overview ON 3 226251 LUMUHAFUPELB F NUTTP Lu Recipient report Waiting list overview Immunological overview ON 4 250743 HAMPEKUR M NRDTP BLu Recipient report Waiting list overview Immunological overview A Legenda Status Of Offered ON Offered not accepted OS Acceptance withdrawn A Accepted C Confirmed T Transplanted F Filtered out on donor profile Age At time of transpla
41. you back to the first set of antigens in order to make changes Ok will save the set and you can return to the Lab Results tab page If the first and second set of antigens is not identical the system will give a message when you save the second set depending on the entered data or Eurotransplant ENIS system user manual The system will return to the first entry Save via F10 or the disk and you have to do the second entry again When the first en second set are entered correctly the following message appears depending on the entered data FRM 40400 Transaction complete 12 records applied and saved Choose OK and you can return to the Lab Results tab page The field Antigens is now filled with the just entered antigens This field is display only so no data can be changed or entered in this field After entering the antigens click the button Create Match Phenotype The following message appears Phenotype following antigens Al A2 B5 B12 B44 BY 4 DR1 DR5 DR12 DR52 D 1 DOS No i Cancel Choose Yes if you want to phenotype choose No or Cancel if you don t want to phenotype these antigens You can change the antigens After you selected Yes the fields Full Match Phenotype and Reduced Match Phenotype are now filled with the phenotype you have selected These fields are not updatable Note It is not possible to update
42. 0 B19 0 Acute and subacute hepatic failure Unspecified viral hepatitis hepatic with coma K72 0 B19 9 Acute and subacute hepatic failure Unspecified viral hepatitis without hepatic coma K72 0 Y45 5 Acute and subacute hepatic failure Aminophenol derivatives K72 0 Y57 9 Acute and subacute hepatic failure Drug or medicament unspecified K72 0 K71 2 Acute and subacute hepatic failure Toxic liver disease with acute hepatitis K72 0 K91 8 Acute and subacute hepatic failure Other postprocedural disorders of digestive system not elsewhere classified K72 0 T79 8 Acute and subacute hepatic failure Other early complications of trauma K72 0 Acute and subacute hepatic failure K74 3 Primary biliary cirrhosis K74 4 Secondary biliary cirrhosis K83 0 Cholangitis K83 1 Obstruction of bile duct K83 8 Other specified diseases of biliary tract Q44 0 Agenesis aplasia and hypoplasia of gallbladder Q44 1 Other congenital malformations of gallbladder Q44 2 Atresia of bile ducts Q44 3 Congenital stenosis and stricture of bile ducts Eurotransplant Q44 4 Choledochal cyst Q44 5 Other congenital malformations of bile ducts Q44 7 Other congenital malformations of liver K70 3 Alcoholic cirrhosis of liver K74 K75 4 Fibrosis and cirrhosis of the liver Autoimmune hepatitis K74 B18 0 Fibrosis and cirrhosis of the liver Chronic viral hepatitis B with delta agent K74 B18 1 Fibrosis and cirrhosis of the liver Chr
43. 2 4 1 How to search a recipient Go to Select paskui Reg Contact ETNr LastName FirstName DateofBirth Reg Date Center Center BSN a a L L ee A screen will open where on different items can be searched The following fields can be found ET number Every recipient has a unique number for identification The first field of the selection screens is ET number You must enter at least four digits in this field If the number is not complete a wildcard has to be added We call this a partial selection Eurotransplant Example 08551 will retrieve 10 records if all recipients between 085510 and 085519 are registered at your center 0855 will retrieve 100 records if all recipients between 085500 and 085599 are registered at your center Another wildcard which you can use is the _ underscore It replaces one number between 0 and 9 Example 24500_ will retrieve all the recipients with an ET number between 245000 and 245009 24__00 will retrieve all recipients with an ET number between 240000 and 249900 Name fields These are two name fields Last Name and First Name If you know the name type it in If the name is not complete a wildcard has to be added We call this a partial selection This wildcard can be added in front behind or in the middle of some characters you know Examples Jon will retrieve Jones Jonesy and Jonkers All last names whic
44. 3 Registration of a transplant after living CONMATION cccccccccesecseseeteeseseeseeeesseseeeeseeseeeenees 106 6 1 4 IMMUNO SUPPIESSION iiien nE E AERE EEN 107 6 1 5 Transplant organ informatiON essesi 108 6 1 6 HEA p n E E eer cere EE E cetreerererrererertreey ferret 111 6 2 Updating transplant records ccceceeeee ee eieiei ee eee ee ee a 111 6 2 1 Update transplant infOr mation n ccccccccccccccccsesscssssesscssssessescseesscecseesecesseeseessseeseesseeseeseseeaeees 111 6 2 2 Automatic updates after transplantation registration ccccccccccceceesceseeseeseeseesecseeeseneeaes 113 Center information registration and update ssssssss5s22555 114 7 1 Entering and updating the center registration SCreen ceeeeeeeeeeeeee eee 114 7 2 Registration and update Donor Center Profiles c eceeeee teens teens eeeees 115 7 1 1 KANEV ase e E E A E E tases atebeeets anaes 115 7 1 2 PANICIOAS iiien eiia a ieai ei a a a aE ii aiaei 117 7 1 3 EU EIEE TEA E A E A N E E A E A AAE teen eee ss 118 7 1 4 TOF ACI 2st ENEE ETA E S OE N EEE sme suaertartaes 119 7 3 Transplant Capacity Limitations ssssssssssrrsssrrrsrrrnsrrrnsrrnnerrnnnrrnnernnnnrnn 119 REPOSts rcu EEA 122 8 1 General INFOrmation scccciriviniiivinini inun EE 122 8 2 Reguest a ropot sche o hats crane Rabe Nua REER ae Ra 123 8 3 Status Of yo r reports 2 0 1 cece nena eee eee nee 124 8 4 Printing or SAVING your reports oo eee cc
45. 5790057 Eurotransplant Introduction Welcome to the Eurotransplant ENIS system If you are a new user this guide will help you through the first few sessions It explains the basic concepts and will provide step by step instructions on how to operate the Eurotransplant ENIS system Overview of the Eurotransplant ENIS system describes the features of our system briefly How to use the ENIS system explains the basic operations required to operate the system such as e connect and disconnect from the ENIS system how to navigate through the different forms pages e how to enter information how to search and display information e how to use the function keys Recipient registration and update gives step by step procedures on how to enter data about recipients including how to register new recipients This chapter also gives instructions how to use the fast screening input and processing Donor registration gives instructions on how to enter data about living donors Requesting donor information explains how donor information of received organs can be retrieved Transplant registration and update explains how to register transplants Center information registration and update explains how to enter details about transplant centers and donor profiles Reports gives instructions on how to generate and transfer reports to your local system and how to print or how to save reports waiting lists data extracts etc
46. 8 Chronic nephritic syndrome Other N03 9 Chronic nephritic syndrome Unspecified N04 0 Nephrotic syndrome Minor glomerular abnormality NO4 1 Nephrotic syndrome Focal and segmental glomerular lesions N04 2 Nephrotic syndrome Diffuse membranous glomerulonephritis N04 3 Nephrotic syndrome Diffuse mesangial proliferative glomerulonephritis N04 4 Nephrotic syndrome Diffuse endocapillary proliferative glomerulonephritis N04 5 Nephrotic syndrome Diffuse mesangiocapillary glomerulonephritis N04 6 Nephrotic syndrome Dense deposit disease N04 7 Nephrotic syndrome Diffuse crescentic glomerulonephritis N04 8 Nephrotic syndrome Other N04 9 Nephrotic syndrome Unspecified N05 0 Unspecified nephritic syndrome Minor glomerular abnormality NO5 1 Unspecified nephritic syndrome Focal and segmental glomerular lesions N05 2 Unspecified nephritic syndrome Diffuse membranous glomerulonephritis N05 3 Unspecified nephritic syndrome Diffuse mesangial proliferative glomerulonephritis N05 4 Unspecified nephritic syndrome Diffuse endocapillary proliferative glomerulonephritis N05 5 Unspecified nephritic syndrome Diffuse mesangiocapillary glomerulonephritis N05 6 Unspecified nephritic syndrome Dense deposit disease NO5 7 Unspecified nephritic syndrome Diffuse crescentic glomerulonephritis N05 8 Unspecified nephritic syndrome Other N05 9 Unspecified nephritic syndrome NO6 0 Isolated proteinuria with specified morphologica
47. Aanigns f fe frim DR Number of mismatches of DRantigens C Y table 2B PA Disease LI Disease 4B HE Disease Number of mismatches of B antigens R LU PDC ICD10 Primary ICD10 lung disease code of recipient Code table 5B Lu Disease Explanation of the Notes The sequence number for this transplant organ Thus if a transplant registration is the first such transplant registered in the ET computer system then the value is 1 if it is the second then the value is 2 etc In the K_X_002 report one of the columns T LKI T RKi or T Blki will most often be filled In case the recipient had a multi organ transplant i e more than one organ from the Eurotransplant same donor during the same transplant procedure then the corresponding columns will contain a transplant registration nr 9 10 2 P_X_003 Pancreas Transplant Extract This extract reports all pancreas transplants pancreas only or pancreas combined with other organ Sex of recipient F emale or M ale Blood group of recipient R Ki pdc edta Primary ET kidney disease of recipient Code table 1A Ki PARES impago eA R Pa pdc et Primary ET pancreas disease of recipient Code table 2A Pa RPS oenase On ee ore Soe R Li pdc etlr Primary ET liver disease of recipient Code table 3B Li ee tees R He pdc et Primary ET heart disease of recipient Code table 4A He BIR pimpa 1 OSO Sapan Ooa R Lu pdc et Primary ET lung disease of recipient Code table 5A Lu
48. Center which performed cross match Res Result of second cross match in transplant center Ctr Tissue Typing Center which performed cross match Mism Result of HLA mismatches Donor Telephone Donor HLA typing by donor center Phenotype Decision Decision after organ offer If not accepted reason why the organ was not accepted is shown 9 4 7 Report R_WL_137 Waiting List Immunological This special report generates an overview of all relevant immunological data including the donor HLA typing of previous transplants for all recipients or only one who are on a waiting list at the time of the report Eurotransplant Parameters for this report are TP Center s Code of the center for which the report must be printed The code must always end on TP Default filled with All this contains all center codes the user is authorized to see Single ET nr Possibility to run the report for a single recipient Leave blank all a fiegmems aresegar OP Toa Pan a Acc Unacc All LOV Acceptable Antigens Acc Unacceptable Antigens Unacc Both All Report by Choose in LOV None TP Center or ABO Sorting order Enter a number from 1 to 3 The following sorting orders will be applied 1 ET Nr 2 Last Name 3 Dialysis Center The header shows the center code and the selected parameters The body contains the recipient information in a horizontal and in a vertical line The horizontal line contains
49. Code of the center for which the report must be printed ALL The code must always end on TP All centers authorized to see Single recipient ET nr ET registration number Sorting order Enter a number from 1 to 2 The following sorting orders will be applied 1 ET Nr 2 Last Name Maximum rank position 10 default Include unfiltered Yes No occurrences The body contains the following recipient and donor information Eurotransplant Column heading Description Distance score Ranking position on match Decision code of allocation and reason At the bottom of every page is shown what the points are for HU status 9 7 5 R_M_180 Match filter report for recipient This report offers an overview of the reasons why a specific recipient was excluded from match activities Parameter for this report are Recipient ET nr ET registration number of recipient Match type ALL Kidney match Liver match Pancreas match Thoracic match Start date of repor Untill date End date of report Maximum rank unfiltered 10 default The header of this report shows the ET nr of the recipient and the selected period The body contains the following recipient and donor information Column heading Description Donor Et registration number of donor Match date Date of match Genter of recipient Unfilt Rank Rank on unfiltered match list Match Match type Behind the Item Match the profile criteria are shown If
50. Cold ischemic period additional number of minutes _ period 2 Warm ischemic Anastomosis time In minutes R ki pdc icd10 Primary ICD10 pancreas disease code of recipient Code table 1B ki Disease Maia alent table 2B pa Disease Mia Ft a L 3C LI Disease em ema 4B HE Disease Ma it lcci 5B Lu Disease a Current LAS score LAS score currently used in match LAS primary disease Primary disease entered in LAS request Explanation of the Notes The sequence number for this transplant organ Thus if a transplant registration is the first such transplant registered in the ET computer system then the value is 1 if it is the second then the value is 2 etc In the LU_X_005 report Lungs one of the columns T LLu T RLu or T BLu will most often be filled In case the recipient had a multi organ transplant i e more than one organ from the same donor during the same transplant procedure then the corresponding columns will contain a transplant registration nr 9 10 5 LI_X_006 Liver Transplant Extract This extract reports all liver transplants liver only or liver combined with other organ including split and partial transplants Column header Explanation Notes Date of ransplantation Loo Eurotransplant TOENE Transplant canter fat 3 osons of T cantercode J Retr ET vegatraion number ofrese Rename lastname ofrecer Ramm Fratname reopen i Sex of recipient F emale or M ale ooo C E i Ooo R K
51. Date Date After glucagon stim Unit __ Available ee es es ee I Comments a EPAC Approval On this tab page the C Peptide value of the recipient with the sample date must be entered It is mandatory When there is no C Peptide entered or the value is higher than 0 5 ng ml or 0 17 nmol l the recipient will automatically have the status NT Until the C Peptide is entered this status cannot be changed Comments on the C Peptide can be entered When the C Peptide is too high the staff of Eurotransplant contacts the center to obtain extra information and then contacts the EPAC If the EPAC approves the registration on urgency T ET enters Yes in the field EPAC Approval After this the urgency of the recipient can be changed to urgency T 7i Eurotransplant ENIS system user manual After entering all information go to the next tab page Donor Profile ETNr Recipient Name Date of Bith ABO Rh Sex HE LU LIV PA KI Special Reg Ctr 289180 fo pos wm J General C Peptide DA Listing Details Min Age Sepsis Max Age Meningitis Malignant Tumor HBsAg Drug Abuse HBcAb Domino Donor HCVAb Rescue Allocation Euthanasia Donor KA NHB Donor l Exclude Recipient From No Capacity On this tab page the recipient specific pancreas donor profile can be entered It is not mandatory Next to the items you can fill out you see the center pr
52. Disorders of plasma protein metabolism not elsewhere classified E74 0 Glycogen storage disease E78 0 Pure hypercholesterolaemia E70 2 Disorders of tyrosine metabolism E85 1 Neuropathic heredofamilial amyloidosis E74 8 Other specified disorders of carbohydrate metabolism E80 0 Hereditary erythropoietic porphyria E80 2 Other porphyria E80 5 Crigler Najjar syndrome E84 Cystic fibrosis E84 8 Cystic fibrosis with other manifestations E88 8 Other specified metabolic disorders 182 0 Budd Chiari syndrome D13 4 M8170 0 Liver Liver cell adenoma D13 4 D13 4 M8220 0 Liver Adenomatous polyposis coli D12 D18 0 Haemangioma any site K76 8 Other specified diseases of liver Q44 6 Cystic disease of liver B65 9 Schistosomiasis bilharziasis unspecified B67 5 Echinococcus multilocularis infection of liver B67 0 Echinococcus granulosus infection of liver B89 Unspecified parasitic disease Eurotransplant Code Table 4A Heart Disease ET codes Description Desert o omane DRE 1200 Coronary Artery Disease 1201 Hypertrophic Cardiomyopathy 1202 Valvular Heart Disease 1203 Congenital Heart Disease 1204 Cardiac Cancer specify 1497 Other Cardiac Disease specify 1498 Other specify Code table 4B Heart disease ICD10 codes Code Description 100 Rheumatic fever without mention of heart involvement 101
53. Donor Extract The data extract contains the following data items concerning donors in the selected transplants Sl eat Wg Sex of donor F emale or M ale 9 12 11 HL_X_11 NOTR Thoracic Transplant Extract The data extract contains the following data items concerning the selected transplants Columnheader Meaning i Eurotransplant Specification of graft fail cause left lung if the cause is Other Date of graft failure right lung Graft failure code right lung numeric code Graft failure cause right lung text translation of code Specification of graft fail cause right lung if the cause is Other The cold ischemic period of the heart min The cold ischemic period of the left lung min The cold ischemic period of the right lung min First warm ischemic period heart min First warm ischemic period left lung min First warm ischemic period right lung min Second warm ischemic period heart min Second warm ischemic period left min lung Second warm ischemic period right lung min The total ischaemic period of the heart min The total ischaemic period of the left lung min The total ischaemic period of the right lung min Organ transplanted Kidney Heart Liver Lung or Pancreas Organ detail Left right kidney left right lung etc All organs simultaneous transplanted i e same recipient and donor A locus broad mismatches B locus broad mismatches DR locus broad mismatches
54. E 22 Other malignancy Specify 3 Acute Liver Failure Drugs or toxins induced Specify 33 Acute Liver Failure Viral infection Specify 2 33 Vassar maano OO 57 Vascular Budd Chiari syndrome 59 Vascular Other Specify eo Other Specify Code Table 3B Liver disease ELTR codes Code Description A01 Acute hepatic failure Fulminant or Subfulm hepatitis Virus A A02 Acute hepatic failure Fulminant or Subfulm hepatitis Virus B A03 Acute hepatic failure Fulminant or Subfulm hepatitis Virus C A04 Acute hepatic failure Fulminant or Subfulm hepatitis Virus D A05 Acute hepatic failure Fulminant or Subfulm hepatitis Other known A06 Acute hepatic failure Fulminant or Subfulm hepatitis Other unknown A07 Acute hepatic failure Fulminant or Subfulm hepatitis Paracetamol A08 Acute hepatic failure Fulminant of Subfulm hepatitis Other drug related specify A09 Acute hepatic failure Fulminant of Subfulm hepatitis Toxic non drug A10 Acute hepatic failure Post operative A11 Acute hepatic failure Post traumatic A12 Acute hepatic failure Others specify A13 Subacute hepatitis Virus A A14 Subacute hepatitis Virus B A15 Subacute hepatitis Virus C A16 Subacute hepatitis Virus D A17 Subacute hepatitis Other known A18 Subacute hepatitis Other unknown A19 Subacute hepatitis Paracetamol A20 Subacute hepatitis
55. IgG CMV IgG status of recipient Pos Neg NT Date 1 dialysis Date of re institution of dialysis Dialysis Tech Address Address of recipient Past code Ciy Telephone home Telephone other Local hospital number Local hospital number of recipient gt o o Eurotransplant Column header Explanation Other relevant diseases Donor Win age Donor Max age Donor Accept en blo Donor NHB Donor Donor HBsAg Donor HBCAb Donor HOVAb Donor Sepsis Donor with sepsis accepted Yes No Recipient profile Donor ESP Accepted ESP donor Yes No Recipient profile Donor Meningitis Donor with meningitis accepted Yes No Recipient profile Donor Exclude Recipient Exclude Recipient from No Capacity Yes No Recipient profile from No Capacity CP Min age Minimum acceptable donor age Center profile CP Max age Maximum acceptable donor age Center profile CP Accept en bloc En bloc kidneys accepted Yes No Center profile CP Accept non Non heartbeating donors accepted Yes No Center profile heartbeating GP HBsAg CP HBCAb CP HOVAB CPESP OP Sepsis CP Meningi CP Malignant Tumor Donor with malignant tumor accepted Yes No Center profile CP Drug abuse Donor with drug abuse accepted Yes No Center profile OP Domino donor CP Rescue allocation Rescue allocation accepted Yes No Center profile CP Euthanasia donor Euthanasia donor accepted Yes No Center profile Match comment Match Comment Participating in ES D P
56. Mandatory If Comment mandatory is Yes a comment must be entered with the specification of the reason For all other reasons a comment is optional Once you entered or updated the information save the information via F10 or the disc button Note it is not possible to enter no capacity for HU recipients only If you don t have capacity to transplant elective and HU recipient select the elective recipients first Save the information you entered After you have saved it you can select the HU recipient in the field Category Eurotransplant 8 Reports 8 1 General information It is possible to request and print a number of different reports with recipient and donor information via the ENIS system Next to the reports several extract can be requested to provide information and offer the possibility to load the information into Excel or a different program so the information can be adapted for personal use All reports and extracts have an identification code and a short description The identification code starts always with one or two characters sometimes followed by another letter and at the end a number sometimes followed by a character This will be committed in the descriptions below The first characters have the following meaning B Exchange Balance C Center reports D Donor reports HE Heart reports HL Heart Lung reports K Kidney reports L Labels LI Liver reports LU Lung reports P Pancreas repor
57. NO7 4 Hereditary nephropathy not elsewhere classified Diffuse endocapillary proliferative glomerulonephritis NO7 5 Hereditary nephropathy not elsewhere classified Diffuse mesangiocapillary glomerulonephritis NO7 6 Hereditary nephropathy not elsewhere classified Dense deposit disease NO7 7 Hereditary nephropathy not elsewhere classified Diffuse crescentic glomerulonephritis NO7 8 Hereditary nephropathy not elsewhere classified Other NO7 9 Hereditary nephropathy not elsewhere classified Unspecified N08 0 Glomerular disorders in infectious and parasitic diseases classified elsewhere NO8 1 Glomerular disorders in neoplastic diseases N08 2 Glomerular disorders in blood diseases and disorders involving the immune mechanism N08 3 Glomerular disorders in diabetes mellitus N08 4 Glomerular disorders in other endocrine nutritional and metabolic diseases N08 5 Glomerular disorders in systemic connective tissue disorders N08 8 Glomerular disorders in other diseases classified elsewhere N10 Acute tubulo interstitial nephritis N11 0 Nonobstructive reflux associated chronic pyelonephritis N11 1 Chronic obstructive pyelonephritis N11 8 Other chronic tubulo interstitial nephritis N11 9 Chronic tubulo interstitial nephritis unspecified N12 Tubulo interstitial nephritis not specified as acute or chronic N13 0 Obstructive and reflux uropathy Hydronephrosis with ureteropelvic junction obstruction N13 1 Obstructive and reflux uro
58. Name fields There is a field named Identity This is a field where the name of the donor can be entered If you know the name simply type it in If the name is not complete a wildcard has to be added We call this a partial selection This wildcard can be added in front behind or in the middle of some characters you know Examples Jon will retrieve Jones Jonesy and Jonkers All last names which start with these first three characters and end with any number of characters ons will retrieve Buttons Brons and Filderons All last names which end with these three characters and start with any number of characters More specific is searching with underscores _ An underscore replaces one character or number in number fields If you are looking for names with a limited number of characters you can use underscores as wildcards Examples Jon__ will retrieve Jones and Jonda All last names with five characters beginning with Jon Jon_s if you do not know if itis spelled Jones or Jonas search with the underscore and you will get the names with the different possibilities for that position Date of birth In the field Date of birth a date with the format dd mm yyyy must be entered for example 20 03 1946 20 of March 1946 Center codes You can only see the donors of your own center unless your center has authorization to see the donors repo
59. Organ report HLA report In this screen you will see the recipient and donor number referring to the current offer All offers open to your center are shown Select the correct line by clicking on it Now you can open and print the available reports using the buttons at the bottom of your screen The buttons Donor report and Organ report redirect you to Donor reports Donor Data site The button HLA report opens the HLA overview Information can be printed via File Print or the printer icon in the screen Recipient centers can see a donor report organ report or HLA report if at least one organ of the donor concerned has been allocated to one of their own recipients Go to Recipient Donor Information Donors used ecipient Reg date ET Nr Identity Center Abo Rhe Date of birth Sex Weight Height Donor Nr Organ detail Donor Report Organ Report HLA Report 99 The screen opens in search mode Enter the recipient ET number in the field ET Nr press F8 and you will see all the transplantations of this recipient By selecting the desired transplantation you can open and print the available reports using the buttons at the bottom of your screen The buttons Donor report and Organ report redirect you to Donor reports Donor data site The button HLA report opens the HLA overview Information can be printed via File Print or the printer
60. Other relevant diseases can also be entered Eurotransplant ENIS system user manual A Match Comment can be entered This comment appears on the Eurotransplant match list if the recipient is selected In this comment additional profile information or requests can be entered Note if additional profile items are entered this may result in the fact that your recipient will not receive an offer For example if you entered that you will only receive an offer from a donor with a max weight of 50kg and the donor is 60kg your recipient will not receive an offer It is the responsibility of the center to check is the entered match comments are up to date The Date put on Waiting List will default to today and cannot be changed by remote users The field Approved Combined Organs ACO is a field that only can be entered by Eurotransplant If a recipient is approved for an ACO status the field will be put on Yes To request this status use the required forms and send them to Eurotransplant The fields IA 2 ICA and GAD are not mandatory Enter in these fields if the antibodies are Negative or Positive After entering all information go to the next tab page C Peptide za Recipient Waiting List Pancreas ETNr Recipient Name Date of Bith ABO Rh Sex HE LU LIV PA KI Special Reg Ctr 281890 lo Pom ITI General C Peptide Donor Profile Listing Details Entry Sample C Peptide Comment
61. Previous Finish If you want to enter a LAS score for your recipient click Thoracic Urgency Request A web application is opened automatically where a request for LAS score can be entered en send to ET There is a separate manual for this application The manual can be found on the ET member site under Library More information concerning the LAS score can be found on the ET website under Projects and Themes If you don t want to enter a LAS score click Finish This is the last screen of the Recipient Registration Wizard If you have entered the LAS core click Finish By clicking Finish the registration in Enis is completed 64 Eurotransplant ENIS system user manual 3 1 11 Liver specific screen Date of Bith ABO Rh Sex HE LU LIV PA KI Special Reg Ctr fororsse0 fo Poh S fer MELD Donor Profile _ Listing Details Urgency j Reason j Living Comment Indication for Transplantation Gr I IcD10 2 Comment Other Liver Disease ET j B Intestine IcD10 4 Ap d Combined Comment 4l Organs ACO Match Comment Other Relevant Date put on Diseases waiting List lt lt Previous 6 of 6 This is the last screen of the Recipient Registration Wizard Finish The Liver organ screen contains four tab pages General MELD Donor Profile and Listing Details General On this first screen the urgency code and the indication for transplantation have to be regi
62. R Address Address of recipient R Postcode Post code of recipient R City City of recipient R Cum txp Cumulative transplants number of transplants of the organ selected at the date put on waiting list Recipient waiting for living donor txp Yes No Initials of insurance holder Date of birth of insurance holder Adress of insurance holder Postal code of insurance holder City of insurance holder IHR Ins nr Insurance number of insurance holder 9 9 Donor organ used extracts These special extracts generate a data set which contains information on all donors of whom at least one organ has been used in a transplant during the given time period The data set is center specific The different extracts are e D_X_007 Donor Organs Transplanted This extract only shows donors from the own center with transplants in the own center D_X_013 Donor Organ Transplant Information This extract only shows donors from the own center with transplants in the own and other centers The other difference with X007 is the specific recipient information Eurotransplant All the extracts use the same input parameters in order to generate the the data set The parameters which should be entered are Name Parameter Format is dd mm yyyy 9 9 1 D_X_007 Donor Organs Transplanted This extract only shows donors from the own center with transplants in the own center Column header Explanation SFe ET regiavaton nunbarotdorer __
63. Rh Sex HE LU LIV PA KI Special Reg Ctr ar lo Ly General Dialysis Data Donor Profile ESE Special Listings Waiting Days Previous Date put on Waiting List Current h Date out of Waiting Room Match Cumulative Transplants Total KI AM Recipient All Organs Applied Bonuses Pediatric status Kidney after liver transplant This tab page shows the waiting list details It is an overview of waiting days and the cumulative transplants No data can be changed in this screen it is view only When waiting time has been returned this is shown in the field Previous The field Current shows the current waiting days The field Match shows the points that will be used in the match The Date put on Waiting List is shown The Date out of Waiting Room is the date all recipient data necessary for matching are completed The fields Cumulative Transplants show the number of previous Kidney and or other organ transplants The check box AM Recipient is checked if the recipient participates in the AM programm This check box is read only The section applied bonuses shows if the recipient receives an additional bonus The field Pediatric status shows if the recipient is considered a pediatric recipient This status has influence on the match pediatric recipient receive an additional bonus The field Kidney after liver transplant shows if the recipient receives this additional bonus For mo
64. Taalman Renate Taalman Modification following release 1 2011 DIN oje 1 0 1 1 1 2 1 3 1 4 1 4 1 5 1 6 1 7 1 8 1 8 1 9 2 0 2 0 5 O O Eurotransplant International Foundation All rights reserved Neither the whole nor any part of this document may be reproduced or distributed in any form or by any means electronic mechanical reprographic recording or otherwise without the prior written consent of the copyright owner Eurotransplant ENIS system user manual Contents Contents ienaa eee eee eee eee 3 FOFCWOPl ic ccicsceseesecwensecuaccacaucevcendsssscnscucewsocsucsecsncucusacsdccuedesdsssssexeucnusessscneusncuensnes 7 ENCFOCUCTION Pree E E 8 1 Overview of the Eurotransplant ENIS sSyStemM sss ss 5 9 2 The Eurotransplant information SyStemM s s sssssssrrsserrsrerrsrrrrurrrrsrnnnurnnenrnn 9 1 2 Ongoing changes of the system s ssssssrrsssrrssrrnssrrnnorrnurrrnnerrnnerrnnerrnuns 10 1 3 Direct connection via INternet cceeccecee eee eee eee e eee tenes eneeeneeenee eee nnna 10 2 How to use the ENIS System sssssss 515 55 5 5 555 5555 255 22u u5uuuunununnnnnnnnn 11 2 1 Getting stated srvess ccctiereseieerecetiseeneveneerind oE a E nerd aN 11 2 1 1 HOW t reQuest a password ssesroreintontiiirin eaan a ne anean NEEESE Il 2 2 How to connect to the ENIS SyStem cceceee eee ee ee eee ee eee teens eens tees tana 13 2 3 Sereen layoUt rninn ni
65. a recipient is excluded due to a specific criterium this is shown via a code The codes are shown and explained at the bottom of the report Eurotransplant 9 8 Waiting list extracts per organ This type of extract generates a data set which contains information on recipients on the waitinglist active and passive status at the time of the extract request Per organ is an extract available with organ specific information The different extracts are K_X_008 Kidney Waiting List Extract LI X_009 Liver Waiting List Extract HE_X_010 Heart Waiting List Extract P_X_011 Pancreas Waiting List Extract e LU_X_012 Lung Waiting List Extract All the extracts use the same input parameters in order to generate the the data set The parameters for these extracts are Default is the separator Format is woTP 9 8 1 K_X_008 Kidney Waiting List Extract The kidney waiting list extract reports all recipients who are on the kidney waiting list This report also includes the recipients awaiting a combined kidney transplant First name of recipient Be Date of ith otrecient ooo Country of recipient ET Resident Is recipient considered a match resident Yes No FU Current heart urgency code HU 1A 1B T NT R FU FU mooo eree Height of recipient in cms Total liver transplants registered in ENIS for this recipient tr Current lung urgency code HU T NT R
66. and the insulin levels Start by entering the date dd mm yyyy and then enter the numeric value for glucose Select the Unit via the LOV selection via F9 Enter the numeric value for insulin and select the correct unit via F9 Save all information via F10 or the Save button Lung This is the screen for the lungs Eurotransplant Fa LUNGS LEFT_LUNG 188380 Left Lung NGRTP 12 06 2009 Last seen date SPECIFIC TRANSPLANT INFORMATION Site of transplant Cold ischaemic period hours a minutes Warm ischaemic period 2 Center Date FOLLOW UP DETAILS In this screen the ET number and transplanted organ of the selected recipient is shown in the header as well as the registration center and transplant date The screen is divided in two parts Specific transplant information and Follow up details In the first part Specific transplant information enter the site of transplant selection via F9 and the duration of the ischemic periods In the second part Follow up details you can enter the quality per date Start by entering a date dd mm yyyy and then enter the quality selection via F9 Save all information via F10 or the Save button Liver This is the screen for the liver ra LIVER WHOLE_LIVER ate 188384 Whole Liver NLBTP 12 06 2009 Last seen date SPECIFIC TRANSPLANT INFORMATION Immediate performance of liver C Partial transplant Transplant technique Cold ischaemic
67. antibody specificities of recipient Entry date Date of entry new information Changed by Username of person who entered the information 9 5 Donor reports 9 5 1 Report D_244 Donor Report D_244 PB Donor report This report shows all your donors from your own center and the status of the organs over a specific period Eurotransplant Parameters for this report are Name Parameter Code of the center for which the report must be printed The code must always end on TP Default ALL Donor type LOV All all types C cadaver L livng Default All Cadaver type LOV HB NHB ALL The header shows the selected country center donor type and the selected period The body contains the following information Column heading Description Registration date of donor ET registration number of donor Type Type of donor HB NHB cat for cadaveric donors For living donors the code of the relation between donor and recipient is shown If the donor was a Euthanasia donor the text Euth is shown behind the catagory After this all organs appear with the status of that specific organ The status can be confirmed transplanted transplanted or reason not reported not offered not accepted or not transplanted The end of the report shows the total number of donors in the specified center over a specific period 9 6 Transplant reports 9 6 1 Report K_T_115 _R Kidney Transplants with Missing Follow Up This re
68. declares that this patient currently is a Resident having his her residency in a Eurotransplant country for at least 6 months Resident having his her residency in the country concerned for at least 6 months in one of the Eurotransplant This approval and registration is authorized by i Initial Registration Center The residence or non residence status of the recipient must be registered in this screen Whether the recipient is non resident or resident depends on the data registered in the tab page Contact and will be shown in the screen In the match the residency status of the recipient is used see ET Manual Chapter 2 1 5 Non resident patients Note the resident status cannot be changed after initial registration In case the current resident status in ENIS and the actual resident status of the recipient differ please contact Eurotransplant The screen contains an official consent amp authorization statement where the user has to confirm the physician in charge got consent from the recipient for data processing by stating the name of the physician in charge in this form Physician Name When all information is entered click F10 or the disk to save the information The following message appears g j Inserting a new recipient are you sure Select Yes if all information is entered correctly If not please select No and correct the information After Yes a message will appear that a
69. field Select the lab via F9 or the arrow It is only possible to use the TT code Sample Date is also mandatory This is the date the test sample was collected The Comments field can be used to enter extra information After you filled in laboratory and sample date the tab page Acceptable Antigens becomes available Before you inserted a laboratory and a sample date it is not possible to go to the Acceptable Antigens tab The Match Occurred box is display only If the recipient was present in a match the checkbox is checked This record cannot be updated The Acceptable Antigens fields are filled with the data you entered in the Acceptable Antigens tab page these fields are not updatable If you want to enter a new row you can use F6 or the green plus It is not possible to update or delete a record after a match is run where the recipient was included in Acceptable Antigens AM Protocol Acceptable Antigens Antigen In this tab page you can enter the acceptable antigens found for a recipient The scroll bar on the right side of the screen makes it possible to scroll to more antigens After you entered the acceptable antigens you can save them with F10 or the diskette button in your toolbar Default the acceptable antigens from the last result set are copied in a new set It is not possible to add change or remove an acceptable antigen from a lab result set after Eurotransplant E
70. header contains the country and an indication whether the options Cluster list Children only and HU only are selected The body contains the recipient information in a one line format for the short and a two line format for the long report In the first line printed in long and short reports Column header ET registration number of recipient Cast name of recent Dob 0 Date of birth of recipient Eurotransplant display only for recipients of your own center Second line only printed in the long report Highest antibody percentage Cum Specificities Cumulative antibody specificities Full match phenotype Full match phenotype The end of the report shows the total number of recipients on the waiting list of the specified country 9 1 10 Report LL WL_167C_R_ Liver Waiting List Center This report contains all recipients registered on the liver waiting list in your center Note Since implementation of MELD in the liver allocation on December 16 2006 the liver waiting list reports have changed their appearance The result is that they cannot be used or interpreted respectively as in the years before to determine the approximate time until transplantation The changes imply among others a Sorting Recipients are sorted on these reports according to their urgency o HU sorted by time in spent in HU longest waiting first o ACO sorted by time in spent in ACO longest waiting first o T sorted by MEL
71. hypoplasia of umbilical artery Q28 Other congenital malformations of circulatory system Q28 9 Congenital malformation of circulatory system unspecified T27 0 Burn of larynx and trachea T27 1 Burn involving larynx and trachea with lung T27 2 Burn of other parts of respiratory tract T27 3 Burn of respiratory tract part unspecified T27 4 Corrosion of larynx and trachea T86 3 Heart lung transplant failure and rejection T86 8 Failure and rejection of other transplanted organs and tissues Y96 Work related condition Code Table 6 Urgency codes Description High Urgent Heart Lungs Liver and Kidney 1A HU_ Unstable on inotropics Dutch Heart recipients only Stabilized on inotropics Dutch Heart recipients only Special Urgency Pancreas Vascularized only Transplantable allo PRA 0 5 Kidney Immunized allo PRA 6 84 Kidney Highly Immunized allo PRA 58 100 Kidney Not Transplantable All organs Transplanted All organs CEE D Removed from Waiting List All organs Deceased All organs Eurotransplant Code Table 7 Immuno suppression Nr Description SSCS 24 25 26 a7 x 5 70 ai a2 ss Omer SSOSCSCSOSSOSOSOSCSCSCSCSCSC C s Cst Y Code Table 8 Organ detail codes wooo po Rahira Heart and both lungs Pa Pancreas
72. icon in the screen Eurotransplant 6 Transplant registration and update 6 1 Registration of a new transplant 6 1 1 Registration of a new transplantation As soon as acenter knows a recipient is transplanted the registration of this transplant must be done in the ENIS system The centers are responsible for swift registration Before registering a transplant you need the following information 1 Date and time of transplantation 2 Recipient ET number 3 Donor ET number 4 Transplanted organ s in particular in case of a kidney split liver and or single lung transplantation left or right If you want to register the transplantation go to TXP New The following screen appears za Transplant Registration Module TXP_ 8_1 HEEL E EEL retort FX Date of Transplant Transplant Registration Center Time of Transplant Transplant At Center Recipient number gt Name Follow up Center Donor number gt Donor registration center Organ Transplant number Urgency at tp Waiting since C LKi CO RKI C Pa He Llu C RLu CI WLiv LLS Liv C ERL Liv CILL Liv RL Liv Enter the date of transplant in the field Date of transplant and the time in the field Time of transplant Enter the center codes of the transplant registration center the center where the transplantation was performed and the center where the follow up will be done All center codes must be entered like xxxT P Now enter the recipien
73. immunosuppression text text translation of code Initial immun 2 comment Specification in case of second immunosuppression other Initial immun 3 code Third initial immunosuppression code numeric code i ird i i i i i Initial immune 4 code Fourth initial immunosuppression code numeric code Initial immune 4 text Fourth initial immunosuppression text text translation of code i iti Initial immune 3 text Third initial immunosuppression text text translation of code Initial immun 4 comment Specification in case of fourth immunosuppression other i iti i Initial immun 3 comment Specification in case of third immunosuppression other ial i Fifth initial immunosuppression text text translation of code Bit_________ Asociated bone marrow vanspiant Yes No OT Associated transplant other than heart lung kidney pancreas an pancreatic islets cluster or small bowel Yes No Liv_type Indication of whether the liver is transplanted entirely whole or asin otherwise reduced or split The type of bypass that was applied The implantation site of the liver Liv_function Indication of whether the implanted liver coexists with the previous liver auxiliary non auxiliary Pathology of the explanted liver Disease 1 Primary hepatic disease leading to transplantation ELTR disease coding Disease 2 Second hepatic disease leading to transplantation ELTR disease coding HbsAg The viral HbsAg status o
74. is the last screen in the recipient registration wizard at the bottom is shown This is the last screen of the Recipient Registration Wizard The Next button has changed into a Finish button By clicking Finish the registration is completed When there are other Organ screens to fill out the recipient registration wizard will direct you to these screens 3 1 9 Heart specific screen The Heart organ screen contains three tab pages General Donor Profile and Listing Details Eurotransplant ENIS m user manual Recipient Waiting List Heart ETNr Recipient Name Date of Bith ABO Rh Sex HE LU LIV PA KI Special Reg Ctr BEB anual ens 01011998 fo PoM BANTP General Donor Profile Listing Details Urgency E Reason a Comment Hospitalized applicable Proof of Maturation jot applicable X Primary Disease Code ICD10 l B Comment on PDC Other Relevant Diseases Match Comment Foreign HU Approval Date put on Waiting List Approved Combined Organs ACO General On this first tab page the urgency code and primary disease code have to be registered The available urgency codes are T Transplantable NT Not Transplantable and R Removed When urgency R or NT are entered or changed to these statuses it is mandatory to enter a reason It is possible that the urgency doesn t change but the reason does E g a recipient is NT reason medical and
75. kidney urgency code HU HI T NT Current liver urgency code HU T NT R FU Current heart urgency code HU 1A 1B T NT R FU HU T FU Total heart transplants registered in ENIS for this recipient Current lung urgency code HU T NT R FU Current pancreas urgency code SU T NT R FU Reason for urgency NT A HeLu txps Total combined heart lung transplants registered in ENIS for this recipient Total lung transplants registered in ENIS for this recipient Date on WL Date put on lung waiting list Number of continuous days the recipient has been as T on the waiting list Total number of days the recipient has been on the waiting list as T active official waiting time used in the ET lung allocation system Eurotransplant Column header Explanation Current NT If NT urgency code number of contiguous days the recipient is on the NT status Lung requirement Type of txp required B oth R ight L eft or combinations Living Txp Recipient waiting for live donor txp Yes No Scr date Date of last screening R Current PRA screening H Highest PRA screening Unacceptable Unacceptable antigens A B_Full_Phenotype HLA A B C in recipient full match phenotyping a DR_Full_Phenotype HLA DR DQ in recipient full match phenotyping Lu pdc et Primary disease code ET for lung Code table 5A Lu disease l l Description Description of disease code Lu pdc icd10 Primary disease code ICD
76. match list if the center has no capacity No means that this recipient will not appear on the ET match list if the center has no capacity Sepsis Meningitis Malignant Tumor Drug Abuse Domino Donor Rescue Allocation These are a Yes No fields Yes means these donors are accepted No means they are not accepted for this recipient Accepted broad HLA mismatch criteria The accepted broad HLA mismatch criteria selection area contains six lines The first three lines contain the mismatch criteria shown in a vertical line A B and DR They must be read from top to bottom The fourth line is a selection Accept line where the criteria can be individually selected by checking the checkbox The fifth line is for your information it shows the total number of mismatches for the corresponding criteria The sixth line contains the center profile Criteria can be individually selected and deselected there are no limitations When you want a recipient to accept a different set of mismatch criteria than those specified in the center profile you must specify all desired mismatch criteria in the Accept line Note if a recipient has the Pediatric status the items Maximum donor age and Accepted HLA mismatches are mandatory After entering all information go to the next tab page Listing Details Eurotransplant ENIS system user manual a Recipient Waiting List Kidney ETNr Recipient Name Date of Bith ABO
77. of donor F emale or M ale pa e o O D pheno Fall phenotype of donor aiana LA Tas Date ast seen afer vanapantaion J eg Fare cate otgrat Eurotransplant Column header Explanation foes Te Faas OOO o Rad Death of date ofrecient SSCS R Cause of death ofreciient oo ooo Bwe Weme OOOO o Rhi Heightofrecipient CS Taurg at Urgency code of recipient at time of transplant Code table Twaitsince Date putonwatingiist f Ras Dateristdalsis ofreopient SSCS Dialysis center Dialysis centerofrecipent f rit mmsupp 1 First inital immuno suppression Code tae 7 iitimmsupp Second inal immuno suppression Code table 7 iitimmsupp S Third inital mmuno suppression Code abe iitimmsupp 4 Fourth iial immuno suppression Code tabe Maint immsupp 1 First maintenance immuno suppression Code tabe Maint Immsupp 2 Second maintenance immuno suppression Code tebe 7 Maint immsupp 3 Thi maintenance immuno suppression Code tabe Maint immsupp 4 Four maintenance immuno suppression Code tabe 7 Cold ischemic period Cold ischemic period total number of hours _ hours Cold ischemic period Cold ischemic period additional number of minutes e minutes Warm ischemic Anastomosis time In minutes period 2 Measurement period post transplant diuresis R Ki PDC ICD10 Primary ICD10 kidney disease code of recipient Code table 1B Ki Disease et a Lo mma Number of mismatches of
78. option Other Specify is chosen it is mandatory to register a comment Otherwise a comment is optional After filling in the Recipient Deceased screen all the waiting lists will be updated automatically and the recipient will not occur in the matching process anymore 3 4 4 View or update Unacceptable Antigens After registering a recipient it is always possible to view or update the unacceptable antigens Select Recipient Immunological Results Unacceptable Antigens Now you can see the data that has previously been entered If the data is used for matching the checkbox Match Occurred is checked It is not possible to change or add data to this row a new row must be entered Select an empty row The Entry Date will be filled automatically Now it is possible to insert new data For description see 3 1 6 Unacceptable Antigens 3 4 5 View or update HLA information After registering a recipient it is always possible to view an HLA typing Select Recipient Immunological Results HLA Now you can see the data that has previously been entered It is not possible to change or add an antigen of an excisting HLA typing You ll have to enter a new HLA typing by creating a new record and entering all results again After the HLA registration you have to create the match phenotype again It is possible to mix typing techniques from different test results records displayed in the Lab results tab page For every technique one
79. or delete the lab result data and the corresponding HLA antigens after the HLA typing is used for phenotyping This is shown by the last checkbox Used for phenotyping When you want to leave the screen without phenotyping the following message appears 40 Eurotransplant It also appears when you will leave the screen without phenotyping after you added or removed antigens Choose Yes if you don t want to phenotype This means after the first entry the recipient will not proceed in a match or after a chang possibly the wrong antigens are now used for matching Choose No if you want to phenotype first before leaving this screen Note v It is not possible to enter an antigen that is also in the recipients unacceptable antigens v You have to enter at least one antigen of each antigen group that has a technique defined v You can only delete a broad when there are no splits or alleles that belong to the broad v You can only delete a split when there are no alleles that belong to the split By using the Next button you will enter the next screen Antibody screening per recipient described in paragraph 3 1 5 3 1 5 Antibody screening per recipient This screen is used to register the antibody screening for the recipient Eurotransplant ENIS system user manual ETNr Recipient Name Date of Bith ABO Rh Sex HE LU LIV PA KI Special Reg Ctr or1g0 fo Psh if
80. period Warm ischaemic period 2 Center Date Quality FOLLOW UP DETAILS In this screen the ET number and transplanted organ of the selected recipient is shown in Eurotransplant ENIS system user manual the header as well as the registration center and transplant date The screen is divided in two parts Specific transplant information and Follow up details In the first part Specific transplant information enter the performance direct after transplantation and the transplant technique selection via F9 Enter the duration of the ischemic periods If the liver your recipient received was reduced please check Partial transplant In the second part Follow up details you can enter the quality per date Start by entering a date dd mm yyyy then enter the quality selection via F9 Save all information via F10 or the Save button Heart This is the screen for the heart Transplant ET Recipient Transplant Transplant TransplantLastfup Donor Donor number name date number Graft center center number center HEE He Immediate performance y Transplanttechnique j Cold ischaemic period hours minutes Warm ischaemic period2 minutes The screen for the heart differs from the other organs Enter the performance direct after transplantation and the transplant technique selection via the arrow Enter the ischemic periods Save the information via F10 or the disk button Now y
81. re in a screen in search mode via Cancel query this search screen is closed About the Next row button This button can be used to walk through the recipients or donors of your center Via the next button you ll go to the next recipient or donor About the Previous row button This button can be used to walk through the recipients or donors of your center via the previous button you ll go to the previous recipient or donor Keys When you press Ctrl F1 a window will pop up with a list of all the available keys and their function The following keys you will use often Save F10 see description on previous page List of values LOV F9 Enter Query F7 see description on previous page Execute Query F8 see description on previous page Next Record Page down Previous Record Page up Next Field Tab Enter Previous field Shift Tab Exit ENIS Ctrl Q 2 3 3 Fields In each screen you will find fields to enter data Each field has a name such as Name recipient or Address There are different sorts of fields which will be described below After you have entered data in a field the system checks if the entered data is of the right type and format Just numbers in a number field or a date in a date field If not a message will inform you about the right format for that field In the ENIS system are mandatory fields These fields must be filled in because this information is important for the match or registr
82. records if transplants between 175500 and 175599 registered at your center Another wildcard which you can use is the _ underscore It replaces one number for any between 0 and 9 Example 12541_ will retrieve transplants with an ET number between1 25410 and 125419 if registered in your center 12__00 will retrieve all recipients with an ET number between 120000 and 129900 Name fields There is a field named Recipient name If you know the name simply type it in If the name is not complete a wildcard has to be added We call this a partial selection This wildcard can be added in front behind or in the middle of some characters you know Examples Jon will retrieve Jones Jonesy and Jonkers All last number names which start with the first three characters you gave in and end with any number of characters Ons will retrieve Buttons Brons and Filderons All last names which end with the three characters you gave in and start with any number of characters More specific is searching with underscores _ An underscore replaces one character or number in number fields If you are looking for names with a limited number of characters you can use underscores as wildcards Examples Jon__ will retrieve Jones and Jonda All last names with five characters beginning with Jon Jon_s if you do not know if it is spelled Jones or Jonas search with the und
83. report After you selected the printer button a screen opens where you can select a local printer 8 5 Save and process extracts Just click on Show Output for your extract The data will be shown in your screen By clicking on File Save as you can save the output as a text file in a folder of your own choice For example C Documents and Settings Users File name EXTRACT 001 Save as type Text File txt 2d Cancel Encoding western European 150 7 You can process this file with your favorite spreadsheet or database MsExcell MsAccess Quattro etc Most of these applications have the possibility to import ASCIl delimited files Eurotransplant 9 Overview of available reports and extracts In this chapter all reports and extract available for remote users will be described Reports contain information concerning recipient donor or transplant to provide overview of registration and changes made Extracts are special reports meant to be processed in a program like Excel DBF Access etc for readability After the first character in the name indicating the organ you will find the character X indicating that this is an extract The content covers several recipient donor and transplant items or parameters After downloading the file the output file can be viewed prepared and analyzed with the tool you prefer Per report is described what parameters can be selected The reports
84. screen the following message appears depending on the data entered in the Antibody Screening per Recipient screen You have two options OK and Cancel When you choose cancel you stay in the unacceptable antigens screen but the antigen has not been inserted This message appears for all antigens entered in the Antibody per recipient screen After Ok the antigen s appear in the unacceptable antigens screen Eurotransplant ENIS system user manual Registration of unacceptable antigens The screen contains two tab pages Lab Results and Unacceptable Antigens lolx ETNr Recipient Name Date of Bith ABO Rh Sex HE LU LIV PA KI Special Reg Ctr 402794 Lab Results _ Entry Sample Unacceptable Match Date Date Antigens Occurred gt es The data is automatically entered when a row is created If you want to enter a new row you can use F6 or the button with the green plus F The field Entry Date is filled automatically with the date of entry and cannot be changed The field Lab is mandatory Enter the code of the laboratory that determined the unacceptable antigens Use F9 or the LOV button to select the lab code It is only possible to use a center code ending with TT e g NLBTT The field Sample date is the date the sample is taken The field Unacceptable antigens is a view only field and will be filled when the unacceptable antigens a
85. second warm ischaemic period Organ detail Left right kidney left right lung etc R HbsAG HbsAg status of recipient R HCVAb HCVAb status of recipient Dial Center Dialysis center of recipient m Ki prd text Primary disease text of recipient text translation of code Secondary disease text of recipient Dial Date Date of first dialysis of recipient Ki prd id Primary disease code of recipient numeric code Renine PRD Primary renal disease code as registered in Renine database numeric code Dial Tech text Dialysis technique text of recipient text translation of code Renine Dial techn Dialysis technique as registered in Renine database Renine Dial days Number of dialysis days before this transplant registered in Renine Renee anmnage 7 8 O88 MS Renee see eee Date of highest Pra of recipient at time of transplant R HIVAb HIVAb status of recipient Current Pra of recipient at time of transplant A i i Dial Tech code Dialysis technique code of recipient numeric code R CMVIgG CMVIgG status of recipient Cumulative AB specificity Eurotransplant Column header Unacc complete Indicator if Unaccept ab is complete Yes if length of Unaccept ab is less then or equal 125 No if length of Unacceptable ab greater then 125 in which the first 125 positions are reported Height of recipient in cm Weight of recipient in kg Number of pregnancies before transplantation ormal bloodtransfusion before tran
86. to see the most important data of a selected recipient and it reflects the urgency codes on the various waiting lists The header includes ET number Recipient Name Date of Birth Blood group and Rhesus factor Sex Waiting List Status and the Registration Center This is the header displayed for donors Registration Date DonorNr Identity Donor Type Center ABO Rhe Date of Birth Sex 03 06 2009 10 36 126699 waNUAL ENIS Cadaver NLBTP f Pos o1 01 1980 TETE The header includes Registration date Donor Nr Identity Donor Type Center Blood group and Rhesus factor Date of Birth Sex Weight and Height The transplant screens don t have this type of header It is not possible to change or delete anything in the headers You can use the header to search for a recipient or donor With F7 or Enter Query the row becomes query able ETNr Recipient Name Date of Birth ABO Rh Sex HE LU LIV PA KI Special Reg Ctr SESSRAeAe insurance Consent Authorization Now you can search on a number of items like ET or Donor Nr Date of Birth or Center You can search on all orange items After you filled one or more of these fields use F8 or Execute Query to retrieve the data from the database Note You do not have to use the screens in the submenu Select See 2 3 7 By using the ID header to query recipients or donors you can stay in the same screen 2 4 How to search a recipient a donor or a transplantation
87. two days later the recipient is NT reason on request of recipient Holiday When the recipient is put on HU automatically due to pediatric status of manually by ET a reason is entered The reason belonging to the status NT R or HU is shown in Status and Events Recipient Status and events It is possible to enter a Comment on the urgency code The field Hospitalized is only access able for Eurotransplant and is entered after the center requested the Hospitalized status for a pediatric recipient recipients of lt 16 years or recipients proven in maturation The field shows if the request was accepted or not After the decision is registered this is shown in Recipient Status and event The field Proof of Maturation is only access able for Eurotransplant and is entered after the center requested the In Maturation status for a recipient of 16 years or older The field shows if the request was accepted or not After the decision is registered this is shown in Recipient Status and event Note for more information concerning the status In maturation and Hospitalized see ET manual chapter 6 Thoracic allocation You must enter the ET Disease Code If there is a corresponding ICD10 code the system will fill this in automatically If there are multiple corresponding options the LOV will be limited to these options Some ET codes need further specification The field Comment on PDC Primary Disease Code will then beco
88. you are certain that none of your colleague has registered the transplantation If this message appears 4 Transplant time must be later than time of confirmed W status of He 12 06 2009 11 35 a date time is not entered correctly Click Ok Please check if you entered the correct date Eurotransplant and time of the transplantation If this is correct please contact Eurotransplant to change the date and or time for the status Confirmed or the status Procured if this is shown in the message in the ENIS system If this message appe ars 4 When both kidneys have been accepted by one center D one of them must be confirmed call the ET office two kidneys of the same donor were accepted for recipients in your center Click Ok To ensure that all date is correct entered in the Eurotransplant ENIS system please contact Eurotransplant and confirm which recipient received which kidney Eurotransplant will add the Confirmed status for one of the transplantations so you can register the transplantations 6 1 2 Registration of a transplant after rescue allocation If your center accepted an organ offered via a rescue allocation a motivation must be registered why that particular recipient received the organ This motivation must be registered in ENIS at time of the transplant registration Go to TXP New and enter all date for description see 6 1 1 Registration of a new transplant
89. 10 for lung Code table 5B Lu disease Description Description of disease code HBs Ab HBs Ab status of recipient Pos Neg NT HBcAb HCV Ab CM oG HBs Ag Match comment Yes No Empty Address Post code Giy Telephone home Telephone other Local hospital number Other relevant diseases RP Min donor Age RP Max donor Age RP Donor HBsAg RP Donor HBcAb Accepted donor virology Neg Any Recipient profile RP Donor HCVAb Accepted donor virology Neg Any Recipient profile RP Donor CMV Accepted donor virology Neg Any Recipient profile RP Min Donor TLC Minimum acceptable donor Total Lung Capacity RP Max Donor TLC Maximum acceptable donor Total Lung Capacity RP Donor Meningitis Donor with meningitis accepted Yes No Recipient profile RP Donor Malignant Donor with malignant tumor accepted Yes No Recipient profile Tumor RP Donor Drug abuse Donor with drug abuse accepted Yes No Recipient profile RP Donor Domino donor Domino donor accepted Yes No Recipient profile RP Donor Rescue Rescue allocation accepted Yes No Recipient profile Allocation RP Donor NHB Donor NHB donor accepted Yes No Recipient profile RP Donor Sepsis Donor with sepsis accepted Yes No Recipient profile Eurotransplant Column header Explanation RP Donor Euthanasia Euthanasia donor accepted Yes No Recipient profile Donor RP Donor Exclude Exclude Recipient from No Capacity Yes No Recipient profile Recipient from No Capacity
90. 14 9 2 9 2 1 9 2 2 9 2 3 9 2 4 9 2 5 9 3 9 3 1 9 3 2 9 3 3 9 4 9 4 1 9 4 2 9 4 3 9 4 4 9 4 5 9 4 6 9 4 7 9 4 8 9 5 9 5 1 9 6 9 6 1 9 6 2 9 7 9 7 1 9 7 2 9 7 3 9 7 4 9 7 5 9 8 9 8 1 9 8 2 9 8 3 9 8 4 9 8 5 9 8 6 9 8 7 9 8 8 9 8 9 9 9 9 9 1 9 9 2 9 10 9 10 1 9 10 2 9 10 3 9 10 4 9 10 5 Report P_WL_168C_R Pancreas Waiting List Center Report P_WL_168N Pancreas Waiting List NatiOnall ccccccecceseeseeteeeeteeneeeeeneeeeens 143 Report K_IM_230 Recipients on Kidney WL with Invalid Incomplete Data 144 Recipient reports Gene radlisiciccivsceese iiite tiini naO EEE A tales Cen Pe 145 Waiting lst OVET Vio W sessirnir see a ahead a ged AEE 145 Report R_226 New and Re registrations on the Waiting LiSt 0000010000000000000000 145 R_H_151 Dialysis Data History 0 ccccccccceccesceseessesecseeececeeceseeseaeeseesecaeeecssenseeaeeneseeeeeees 146 R_H_152 Urgency HIStOIY ccccccesccseesceseesceseeseeseeseeseessesecuseeseaecsensecaseecsceeseeaeeseseeeeeees 147 R_H_153 Primary Disease Code Histoty sssesesessseeesseesnsesrssssesnsreresssrssrsssresesrssssese 147 Recipient profiles repOrts 2 00 cece eee ee ees eeeenee ean 148 Report K_P_231 Kidney Recipient Donor Provil s c ccccccccccccecsesesscseseesesseseesessssessees 148 Report P_P_238 Pancreas Recipient Donor Profiles c cccccccceseeeeteeeeteereeeeeneeneees 149 Report LI_P_255 Liver recip
91. 2 4 a A 212 DR 0 OOO OO jt OTO O T pS 2 2 A 2212121122 Accept vy vi rd rd rd ri rd rd rd vd rd rd rd 7d Td m m E oe oe et mca o 2 1 2 2 f2 f3 2 3 4 f2 4 2 f fafa fa fs 3 4 fs Ta 5 fe If you enter the screen for the first time all fields are empty For all the items except age there is a small list of values available click the arrow next to the field The mandatory fields are red The following requirements can be entered Min age Max age Minimum and maximum acceptable donor age Only whole numbers can be entered For both fields the minimum is 0 and maximum 999 Accept en bloc lt 5yr En bloc offers for donors of age 5 and younger accepted Yes No No automatic filtering is done on this item It appears on the match reports that are used by the allocation coordinators Accept NHB Non heartbeating donors accepted Yes No Accept ESP Donor ESP donors accepted Yes No HbsAg HbcAb HCVAb There are two possible entries Any and Neg selectable by a list of values arrow at end of field Any means HbsAg or HbcAb or HCVAb positive and negative donors are accepted When entering Neg only HbsAg or HbcAb or HCVAb negative donors will be accepted Sepsis Donors with sepsis accepted Yes No Meningitis Donors with meningitis accepted Yes No Malignant Tumor Donors with a malignant tumor accepted Yes No Drug Abuse Donors with drug abuse accepted Yes No Domino Donor Domino donors accep
92. 210 9 12 11 HL_X_11 NOTR Thoracic Transplant EXtraCt ccccccccccccccesecccsseseesesseseeseseesesecseeseesesees 210 9 12 12 HL_X_12 NOTR Thoracic Follow Up EXtraCt ccccccccccccccccccssssesesecscscsesscseseescscsesseseseess 213 9 12 13 K_X_020 NOTR Kidney Recipient Extract c cccccccccccsccccsseseescsseseesesseseesesseseeecseeseesesees 214 9 12 14 K_X_021 NOTR Kidney Donor EXxtraCt ccccccccccccccssssesscsseseescsseseescsesseeecseeseseeseeseesesees 215 9 12 15 K_X_022 NOTR Kidney Transplant EXtraCt c cccccccccccccsseseescsseseesesseseeseseeseesesesseeeesees 215 9 12 16 K_X_023 NOTR Kidney Follow Up Extract o ccccccccccccccccccssesesscsseseescsesseeecseesseessesseesenees 218 9 13 NOTR BSN Recipient Extract Dutch centers Only eceeeeeeee teen eee ees 219 10 Frequently asked Questions FAQ c cssceceseeceeeeeueeeeuseeeuaeeauaeenuaeeauaneauaes 221 How do I get MY OWN login CODE cccccsescsscssesessesseseeessssesscssssesecsessesecsesassecsessssecsesseecseeseeeeseeseeeesee 221 How can I change my pass word after receiving ONE from ET cccccscesecccsseseeserseeeseeeseeeeseeseesesees 221 What happens if you entered the wrong password five LIMOS ccccccesesccsseseeserseseeeesseseeeeseeseeeenees 221 How do you get return of waiting time for kidney recipient 00 0 cccccesessetseteeseseeseeecseeseeseseeseeeenees 222 How do I register a living transplantation prior to donor registration ccecc
93. 3 4 Update registration of recipient 3 4 1 Re registration of a recipient When a recipient is removed from a waiting list due to transplantation or another reason it is always possible to re register a recipient If the recipient is re registered for the same organ enter information concerning the failure of the transplant in the screen TXP update 82 Eurotransplant ENIS system user manual Go to TXP Update and select the correct transplant Date of failure Cause of failure Date of explantation on failure Date of death Cause of death Out of analysis Date last seen ear Enter the date of failure in the field Date of Failure and select a Cause of failure from the LOV by F9 Save the information by using F10 or via the disk Then go to Recipient Organ and select the correct organ Choose the correct urgency code and save the information The Date put on waiting list will be the date of re registration Note If a liver recipient is re registered on the liver waiting list anew MELD score must be entered If a lung only recipient is re registered on the lung waiting list a new LAS score should be entered When the re registration on the waiting list is saved a screen will appear where you can navigate to the Thoracic Urgency application where a new Las score can be requested Please note that a LAS score is necessary for international matching If you would like to enter a LAS request
94. 3 Specification of antihypertensive medication 3 text translation of code Spec_antihyp4 Specification of antihypertensive medication 4 text translation of code 9 12 16 K_X_023 NOTR Kidney Follow Up Extract The data extract contains the following data items concerning the selected follow up events Column header Meaning 0 Follow up frequency M3 3 month Y1 year 1 Yn E end Follow up date date seen Transplant center ollow up center Rejection treatment Yes No Number of rejection treatments Malignancies diagnosed Yes No Unknown The date on which the first malignancy was diagnosed First malignancy code numeric code First malignancy text text translation of code Specification of first malignancy other The date on which the second malignancy was diagnosed Second malignancy code numeric code Second malignancy text text translation of code Specification of second malignancy other Pregnancies in follow up period Yes No Unknown Children born in follow up period Yes No Creatinine concentration Unit of creatinine concentration umol Proteinuria concentration Unit of proteinuria concentration g I Height of recipient in cm Weight of recipient in kg Complications First immunosuppression code numeric code First immunosuppression text text translation of code Specification in case of first immunosuppression other Second immunosuppression code numeric code Second immunosup
95. 80 Mff General O Listing Details Min Age HBsAg Sepsis to MaxAge j HBcAb Meningitis Min Height Female Donor crm HCVAb Malignant Tumor E Max Height Female Donor em CMY any Drug Abuse Max Height Male Donor cm Min TLC liter Max TLC liter Min Height Male Donor cm Domino Donor Rescue Allocation Exclude Recipient From No Capacity Me The red fields are mandatory In case the not mandatory items are not entered the computer will use the Center Donor Profile for matching The recipient specific profile has always priority over the center specific profile Next to the items you can fill out you see the center profile in view only fields If the recipient has an active urgency status on the Heart and Lung waiting list the recipient specific heart donor profile cannot be entered The following requirements can be entered Min Age Max Age Minimum and maximum acceptable donor age Only whole numbers can be entered Min Height Male Female Donor cm Max Height Male Female Donor cm 56 Eurotransplant ENIS system user manual Mandatory minimum and maximum acceptable donor height in centimeters It must be entered for female and for male donors Only whole numbers can be entered e Min TLC liter Max TLC liter View only minimum and maximum acceptable donor TLC Total Lung Capacity This item can be entered in the specific lung donor profile
96. AINERE AAN 161 Report A_R_286 Post Allocation report to Transplant Ce ntel ccccccccccceseescseeeteees 161 Report A_R_287 Post Allocation report to Donor C Ntel cccccceseesccseseesesesesseeseseasees 161 Report HL_M_280 Thoracic Match Post Allocation to Transplant Center 162 Report K_M_224 Kidney Match Post Allocation to Transplant Center 162 R_M_180 Match filter report for FECIDIONE eccccccseccescsseseesesseseesesscessesescesecsessessesesaeaeees 163 Waiting list extracts per Organ ceceeeee eect eee e eee eee eee eee eee e teeta eas 164 K_X_008 Kidney Waiting List EXtraCta ccccccccccccccsscscsseseescsseseescsseseescseeseesesseseeseseeseeeesees 164 LI X_009 Liver Waiting List EXtraCt ccccccccececescsseccseeseseseeseseseeeeseseseeseseseeeeaeeeeeeseneeees 166 HE_X_010 Heart Waiting List EXtraCt c ccccccccccccesccscsseseesesseseescseeseeecseeseeecseeseeseseeseesenees 168 P_X_011 Pancreas Waiting List EXtraCt cc cccccccccccccssessesesseseesesseseeseseeseescsessessessseeaeees 171 LU_X_012 Lung Waiting List Extract ccccceccccccccseesceseeseeseeseesecacesecceeeeeaeeseeaeeneeeeenees 173 HL_X_034_R Thoracic Waiting List with donor profile EXtraCt ccccccccsceseteeerees 175 K_X_027 Tbase Kidney Waiting List EXtraCt c cccccccccccsccccsseseescsseseesceeseesesseseeeeseeseesenees 176 P_X_029 Tbase Pancreas Waiting List EXtr Ct ccccccsc
97. Ag accepted Any Neg HBc Ab HBc Ab accepted Any Neg HCV Ab HCV Ab accepted Any Neg NHB Non heart beating donor accepted Yes No Domino donor Domino donor accepted Yes No Expl liver Explanted liver accepted Yes No Sepsis Sepsis accepted Yes No Mng Meningitis accepted Yes No Malig tumor Malignant tumor accepted Yes No Drug abuse Drug abuse accepted Yes No Rescue Alloc Rescue allocation accepted Yes No Marg donor Marginal donors accepted Yes No Euth Donor Euthanasia Donor accepted Yes No Excl No Cap Exclude recipient from no transplant capacity Yes No 9 4 Immunological reports 9 4 1 Recipient Immunological Overview This report shows a complete overview of the relevant immunological data of the selected recipient and makes it possible to check the presence of the most important immunological data The overview can be used to verify if the initial registration of a recipient on the waiting list was sufficient Also it can be of great use whenever there is an organ offer for this specific recipient because the donor and the recipient immunological data can easily be compared this way Go to Recipient Immunological Results Immunological Overview to open the overview Example of an overview Eurotransplant 08 12 2011 08 42 04 Recipient Immunological Overview Database betal Urgency ET Nr Recipient Name Date Of Birth ABO Rh Sex KI PA LIV HE LU Reg Center 399983 MANUAL 01 01 1980 o Pos M HU NGRTP HLA A B DR C
98. B broad DR split PRA Latest antibody percentage when the screening is outdated Waiting since In the second line Country of recipient Home Telephone Home tel nr of recipient Other Telephone Other tel nr of recipient The end of the report shows the total number of recipients on the waiting list of the specified Eurotransplant center and the number of active recipients urgency HU T or HI that have van outdated screening vy without date of first dialysis or technique not on dialysis v waiting since date out of waiting room 9 1 4 Report HE_WL_164C_R Heart Waiting List Center This report contains all recipients registered on the heart waiting list in your center Parameters for this report are From center Code of the center for which the report must be printed The code ie must always end on TP Short or long list LOV L S Enter L or S to get a long or short report The description ee of the report body will show which items are included in each version Sort on Enter a number from 1 to 3 The following sorting orders will be applied 1 Last name 2 ET registration number 3 ABO Children only Yes No If Y only recipients younger than 16 years will be reported oe If N all recipients will be reported HU recipients only Yes No If Y only high urgency recipients will be reported If N all recipients will be reported Cluster list Yes No If Y ll recipients o
99. Children only HU only and Cluster list are selected The body contains the following recipient information Column heading Description ET Nr ET registration number Center Registration center code Name Last name Sex Sex Dob Date of birth PAIS Type of transplant pancreas or islets Organ s Organ requirement and organ combinations Urg Urgency code Cum Txp Cumulative transplants ABO Blood group Eurotransplant Wat Weight Hgt Height Match Comment Match Comment Scrn Date Date of last antibody screening R Latest antibody percentage Auto Auto antibody testing H Highest antibody percentage Curr Unacc Antigens Current unacceptable antigens Full Phenotype Full Match Phenotype Wait Days Days on the waiting list Waiting Since Date put on waiting list The end of the report shows the total number of recipients on the waiting list of the specified center 9 1 13 Report P_WL_168N Pancreas Waiting List National This report contains all recipients registered on the pancreas waiting list in your country a national pancreas waiting list using the same layout as for P_WL_168C Data for non local recipients are anonymous Parameters for this report are Children only Yes No If Y only recipients younger than 16 years will be reported If hii aa N all recipients will be reported SU recipients only
100. D in descending order same MELD scores sorted by ET numbers in ascending order o NT sorted by MELD in descending order same MELD scores sorted by ET numbers in ascending order b Waiting time Date of registration total waiting time and next date of recertification or Eurotransplant reconfirmation respectively is given The question where is my recipient now and when will he be transplanted can no longer be answered through these reports The reports are only a snapshot of the waiting list at the moment that they are generated But due to the MELD specific dynamics of the waiting list i e insertion of new MELD scores downgrades exceptions etc no prediction can be made with regard to the place of an individual recipient on the waiting list at time of any future matching procedures Additionally a further stratification in groups of recipients with the same MELD score only takes place at time of matching with a current donor In this stratification recipients within same MELD scores are stratified by a fraction of waiting time that calculates at time of matching the time spent v inthe current MELD v previously in a MELD equal to the current or any higher MELD v previously in HU In conclusion both reports can only serve as a snapshot of the current waiting list They can only serve as an indicator as to v where an individual recipient is at that moment v whether a recipient is in a group of recipients wi
101. Daa oeaass UTP Se Pa seq Pancreas transplant sequence number Wili seq Whole liver transplant sequence number oy Sy P LLSli seq Left lateral segment split liver transplant sequence number 1 ERLIi seq Extended right lobe split liver transplant sequence number LLli seq Left lobe split liver transplant sequence number i R_ Full phenotype PTR Transplant registration number Let kidney PERK Transplantregistation number Right kiny PEBK TransplantregisvationnumberBoth idneys f mm f Transplantregistaton number Whoever i P P Eurotransplant Column header Explanation os PELLSIv Transplant registration number Left Tateral segment Iver spit TER Transplant registration number Extended right Tobe iver spit Tav Transplant registration number Left Tobe iver spit TR f Transplant registration number Right Tobe iver spit THe Transplantregistration number Heat J THelu Transplant registration number Heat Lungs Tau Transpant registration number Letlung Tau Transplant registration number Rigtung Bu Transpant registration number Bohuns Dregr ET regstratonnumberordonor f D iype D rel Relation of donor to recipient D sex Sex of donor F emale or M ale Dzcod Dweighi D heigh D pheno Tds Tie Rede 7 ied Q oO R height Height of recipient T urg at Urgency code at transplant registration of recipient R weight Weight of r
102. EUROTRANSPLANT ENIS System User Manual Q Eurotransplant Change record Date Author Version Change reference Jeannet van der Deijl___ 0 1 Draft Renate Taalman Alinde Modifications to all chapters Modifications to Chapters 2 3 and 5 following release 5 2009 FAQ added Modifications to Chapter 9 BSN extract added following release 6 2009 Renate Taalman 14 Modification to Chapter3 O Renate Taalman 1 4 Additionto Chapters ____ 15 16 A7 i8 a 2 0 20 14 02 08 12 08 09 21 09 09 Renate Taalman 05 11 09 Help desk Renate Taalman 26 11 09 Renate Taalman 14 12 09 14 01 10 15 02 10 19 04 10 28 06 10 22 07 10 30 09 10 07 12 10 Renate Taalman Modification following release 2 2010 Renate Taalman Renate Taalman Renate Taalman Renate Taalman Modification following release 1 2010 MELD information added Modification following release 3 2010 Modification following release 4 2010 Renate Taalman Jeannette Grundman Modification following release 5 2010 LI listing details changed 28 12 10 Renate Taalman 01 03 11 14 04 11 22 06 11 30 09 11 08 12 11 07 01 12 22 03 12 Renate Taalman ifi i Renate Taalman 21 Modification following release 2 2011 Renate Taalman 2 2 Modification following release 3 2011 MININ wiN Renate Taalman 2 3 Modification following release 4 2011 __ Renate Taalman 2 4 Modification following release 52011 Renate
103. In case of an accepted organ via rescue allocation two extra fields become available in the screen These fields are mandatory to enter Eurotransplant za Transplant Registration Module TXP_ 8_1 Date of Transplant Transplant Registration Center Time of Transplant Transplant At Center Recipient number gt Name MANUAL ENIS Follow up Center Donor number gt Donor registration center NLBTP Organ Transplant number Urgency at tp Waiting since OLKi O RKI Pa C He ILLS Liv I ERL Liv CILL Liv ORL Liv Motivation for selection of recipient max 2000 characters Physician responsible for selection and motivation Enter the reason why this recipient received the organ in the field Motivation for selection of recipient and enter the physicians name in the field Physician responsible for selection and motivation After you entered these fields you can register the transplantation 6 1 3 Registration of a transplant after living donation After you registered the living donor incl the donated organ and the anatomy you can register the transplantation The registration of transplantation for a kidney does not differ from a regular transplantation For description see 6 1 1 Registration of a new transplant In case of a living LIVER transplantation always register a WHOLE Liver Then go to TXP Organ information and click the checkbox for Partial transplant
104. NIS system user manual an AM match has run where the recipient was included in It is not allowed to enter an antigen that is also in the recipients unacceptable antigens If antigens are removed a warning is given ff In the next AM match these antigens will not be present i as acceptable antigens anymore 3 2 3 Status and Events The screen Status and Events offers an overview of urgency changes updates and transplantations of the selected recipient In this screen you can only view data it is not possible to enter or change any information Select the recipient and go to Recipient Status and Events This screen contains three tab pages Status Overview Urgency Status and Transplant Events Recipient Status and Events Recipient Name _ _ Date ofBirth ABO Rh Sex HE LU LIV PA KI Special Reg Ctr e p PsM fr Status Overview Urgency Status Transplant Events ET Nr Pe Entry Event Comm Date Date Event Organ Urgency Avail 20 02 200819 48 Kidney Living flag set to No aa Ea A 20 02 2008 19 48 01 02 2008 Date of Re Institution of Dialysis updated j 20 02 2008 19 48 Dialysis technique updated 20 02 2008 19 48 Recipient registration on kidney waiting list 20 02 2008 19 48 Urgency changed l l 4j Kidney T 20 02 2008 19 48 Kidney resident flag setto Yes Comment a The Status Overview is updated automatically and gi
105. Other diseases of pulmonary vessels 130 Acute pericarditis 131 Other diseases of pericardium 132 Pericarditis in diseases classified elsewhere 132 0 Pericarditis in bacterial diseases classified elsewhere 132 1 Pericarditis in other infectious and parasitic diseases classified elsewhere 132 8 Pericarditis in other diseases classified elsewhere 133 Acute and subacute endocarditis 134 Nonrheumatic mitral valve disorders 135 Nonrheumatic aortic valve disorders 136 Nonrheumatic tricuspid valve disorders 137 Pulmonary valve disorders 138 Endocarditis valve unspecified I39 Endocarditis and heart valve disorders in diseases classified elsewhere 140 Acute myocarditis 141 Myocarditis in diseases classified elsewhere 142 0 Dilated cardiomyopathy 142 0 Dilated cardiomyopathy 142 1 Obstructive hypertrophic cardiomyopathy 142 2 Other hypertrophic cardiomyopathy 142 3 Endomyocardial eosinophilic disease 142 4 Endocardial fibroelastosis 142 5 Other restrictive cardiomyopathy 142 5 Other restrictive cardiomyopathy 142 6 Alcoholic cardiomyopathy 142 7 Cardiomyopathy due to drugs and other external agents 142 8 Other cardiomyopathies 142 9 Cardiomyopathy unspecified 143 Cardiomyopathy in diseases classified elsewhere 144 Atrioventricular and left bundle branch block 145 Other conduction disorders 146 Cardiac arrest 147 Paroxysmal tachycardia 148 Atrial fibrillation and flutter 149 Other cardiac arrhythmias 150 Hea
106. Rheumatic fever with heart involvement 102 Rheumatic chorea 105 Rheumatic mitral valve diseases 106 Rheumatic aortic valve diseases 107 Rheumatic tricuspid valve diseases 108 Multiple valve diseases 109 0 Rheumatic myocarditis 109 1 Rheumatic diseases of endocardium valve unspecified 109 2 Chronic rheumatic pericarditis 109 8 Other specified rheumatic heart diseases 109 9 Rheumatic heart disease unspecified 110 Essential primary hypertension 111 Hypertensive heart disease 112 Hypertensive renal disease 113 Hypertensive heart and renal disease 115 Secondary hypertension 120 Angina pectoris 121 Acute myocardial infarction 122 Subsequent myocardial infarction 123 Certain current complications following acute myocardial infarction 124 Other acute ischaemic heart diseases 125 0 Atherosclerotic cardiovascular disease so described 125 1 Atherosclerotic heart disease 125 2 Old myocardial infarction 125 3 Aneurysm of heart 125 4 Coronary artery aneurysm 125 5 Ischaemic cardiomyopathy 125 6 Silent myocardial ischaemia Eurotransplant 125 8 Other forms of chronic ischaemic heart disease 125 9 Chronic ischaemic heart disease unspecified 126 Pulmonary embolism 127 Other pulmonary heart diseases 127 8 Other specified pulmonary heart diseases 128
107. T EDUCATION In paragraph 2 2 How to connect to the ENIS system is described how the application can be started teq SINA 1 2 Ongoing changes of the system The ENIS application is subject to continuous development and improvement These changes and upgrades will be released for you to use in pre announced releases Every release is accompanied by an overview of the changes published on the member site and the ENIS helpdesk will be available for any questions After every release the manual is updated if applicable 1 3 Direct connection via Internet The ENIS application is accessible over the Internet This means that ENIS is accessible everywhere there is an internet connection You have to login to the Eurotransplant website http www eurotransplant org where you can find the login under the Members submenu in the right top corner of the screen On the member site in the left hand sidebar there will be a list of applications you will have access to One of them will be ENIS Another application that is available over the internet is Donor reports For description of Donor reports check 9 5 Donor Reports You can find the requirements for your PC and lots of more information on the right hand side of the homepage under the menu log in register Eurotransplant 2 How to use the ENIS system 2 1 Getting started 2 1 1 How to request a password Entry to the ENIS system is protected by personal passwo
108. T is needed for this recipient or not When there are Specificities you can enter them in this tab page Default the specificities from the most recent sample date are copied in a new set When your cursor is in the ET Nr field you can navigate to the previous or next recipient by using the up and down arrows or page up and page down Note you can save the data for each recipient but it is still possible to change the data until you haven processed It is recommended to periodically save the data that is entered to the database When you have entered all your recipients you can go to the tab page Status to process the data Note If the number of screenings to be processed is over 50 bulk PRA lab results may also be sent via email to Eurotransplant Instructions can be found on the ET Membersite Go to Library Specifications for bulk PRA file transfer a Antibody Screening per Center ili e e e e e e e r gr rr e e esses Center Organ Sorted By NGRTP Selection Antibodies Processing Recipients Processed Recipients Still To Process Recipients Still Empty Total Recipients Recipients on overview l Process Overview Break on Dial Ctr Sort Order B Print Overview In this tab page the status of the existing selection is shown Recipients Processed is the number of recipients in the selection that are already processed Recipients Still to Process is the number of recipien
109. TA1 08 031936 GNWOR 120239 70032009 poorisaseerat foeosaoat fonwor 126203 26 03 2009 P0011523 BETA1 30121948 GNWOR Donors will be displayed ordered by Donor number With the key down and key up buttons you can search for the one you need If the selection returned a lot of records you can scroll with the scrollbar and select the record by clicking on it 2 4 3 How to search a transplantation Go to Select Transplant Action Edit New igag Recipient Donor TXP Center Reports Help Window Be Ai emn RA PSM e 78 NO CURRENT 5 The following screen appears Execute F 9 Exit_Form Help Window 3 Select Transplant Transplant number Transplant date Transplant center Follow up center Donor number Donor center Recipient ET number Recipient name i In this screen can be searched on different items The following fields can be found Transplant Recipient or Donor number Every transplant has a unique number for identification The first field of the selection Eurotransplant screens is Transplant number The transplant can also be found by entering the donor number or recipient number You must enter at least four digits in this field If the number is not complete a wildcard has to be added We call this a partial selection Example 17551 will retrieve10 records if transplants between 175510 and 175519 were registered at your center 1755 will retrieve 100
110. V IgM Lues lt lt Previous Next gt gt The screen contains two tab pages General and Virology General On this screen the recipient s blood group ABO and Rh Rhesus weight and height have to be entered these are the mandatory items Note when a Thoracic HU or LAS request is send via TUR the heigt and weight of the recipient must be entered in that request If the height and weight entered in this request differs from the values in ENIS the height and weight in ENIS is updated automatically In case of a female recipient the number of pregnancies and children can be entered Enter the number of Pregnancies live births still births and spontaneous abortions and the number of children live births only If the ratio of pregnancies to live births is greater than one in six sextuplet the next prompt is given EN Business Rule iolations Message ET 71212 Number of children has to be smaller than 6 times the number of pregnancies EJ neieiet ennaa P E g when Nr of Pregnancies is two Nr of Children cannot be more than 12 You can register the transfusions before the first registration of the recipient on a waiting list and the transfusions after registration via the LOV No Yes In order to avoid mistakes on the entry of weight and height of a recipient a simple check has been implemented If the Body Mass Index i e BMI Weight Kg Height m 2 is out of proportion the next wa
111. Yes No If Y only high urgency recipients will be reported If N all on recipients will be reported Include NT recipients Yes No If Y transplantable and not transplantable recipients will be ee reported If N only transplantable recipients will be reported Choice between pancreas and islets The first and second parameters can be combined to show only SU pediatric recipients The header contains the country and an indication whether the options Children only and SU only or Pancreas Islets are selected In the first line Dob ate of inhofreapient SSCS t t r B Weight of recipient Height of recipient Match comment Match Comment Eurotransplant por Cartercode CS Be o o i feee O Do baeomp OOOO O O display only for recipients of your own center The end of the report shows the total number of recipients on the waiting list of the specified country 9 1 14 Report K_IM_230 Recipients on Kidney WL with Invalid Incomplete Data This special report generates an overview of all active or passive recipients on the kidney waiting list with invalid or incomplete data at the time of the report These recipients are not participating in the kidney match There are no parameters for this report This report contains four individual reports with a page break per report 1 Active recipients in the waiting room 2 Active or passive recipients with incomplete ABO HLA data 3
112. a E10 2 Insulin dependent diabetes mellitus With renal complications E11 2 Non insulin dependent diabetes mellitus With renal complications E72 0 Other disorders of amino acid metabolism Disorders of amino acid transport E74 8 Other specified disorders of carbohydrate metabolism E75 2 Disorders of sphingolipid metabolism and other lipid storage disorders Other sphingolipidosis G83 4 Other paralytic syndromes Cauda equina syndrome G95 8 Other specified diseases of spinal cord 112 0 Hypertensive renal disease with renal failure 113 0 Hypertensive heart and renal disease with congestive heart failure 113 1 Hypertensive heart and renal disease with renal failure 113 2 Hypertensive heart and renal disease with both congestive heart failure and renal failure 113 9 Hypertensive heart and renal disease unspecified 133 0 Acute and subacute infective endocarditis 170 1 Atherosclerosis of renal artery K76 7 Hepatorenal syndrome M31 0 Other necrotising vasculopathies Hypersensitivity angiitis M31 1 Other necrotising vasculopathies Thrombotic microangiopathy M31 3 Other necrotising vasculopathies Wegeners granulomatosis M32 1 Systemic lupus erythematosus with organ or system involvement M35 0 Other systemic involvement of connective tissue Sicca syndrome Sj gren M35 8 Other specified systemic involvement of connective tissue NO0 0 Acute nephritic syndrome Minor glomerular abnormality NOO 1 Acute nephritic syndrom
113. an be requested When an offer was accepted and transplanted the same organ information is available at any time without assistance of Eurotransplant Note it is not possible yet to request donor information concerning an intestine offer There is no Intestine match so no possibility for the duty officers to enter the Offered code for the recipient The offer must be done via fax There are two ways to request donor information via Donor data or via ENIS All you need is a username and password to ENIS or the site Donor data Note for running offers requesting the information via Donor data is faster Note it is possible to request a pass word only for the Donor data website How a pass word can be acquired is described in 2 1 1 How to request a pass word 5 1 Requesting donor recipient information via Donor Data Donor Reports If you want to retrieve the donor information of a donor go to the Eurotransplant member site log in and select Donor Reports form your list with applications or go the special website www donordata eu and enter your username and password An internet site will open where the donor number must be entered in section Getting started 0 Eurotransplant www donordata eu Donor Kidney Liver pancreas Thorax Recipients Consent Relation Medical Anamnesis NHBD Eurotransplant Donor Report Database environment betal Getting started Latest changes Start by
114. and extracts are described in categories to provide better overview 9 1 Waiting lists reports 9 1 1 Report K_ WL_099_R Kidney Waiting List This report contains all recipient registered on the kidney waiting list in your center Parameters for this report are Name Parameter Code of the center for which the report must be printed The code must always end on TP Enter a number from 1 to 4 The following sorting orders will be applied 1 ET registration number 2 Last name 3 ABO 4 Urgency Page break on dialysis Yes No If Y recipients are grouped by dialysis center If N all center recipients will be reported by sorting order Cluster list Yes No If Y all recipients of the participating centers will be Age range All 64 64 65 If 64 only 64 year old recipients will be selected If 64 only 64 year old and older recipients are selected If 65 only 65 year old and older recipients are selected Yes No If Y only recipients awaiting a living transplantation will be selected If N all recipients will be selected Active only on kidney Yes No If Y only recipients awaiting a kidney transplantation will waiting list be selected If N recipients awaiting a combined PA Ki transplantation will be selected The header contains the center code the dialysis center and an indication whether the option Cluster list is selected The body contains the following recipient informat
115. ansported by plane Select the checkbox Organ transported by plane if this was done For the rest of the update please move to the lower part of the screen The following updates can be entered Failure of the transplanted organ Both the Date of failure and Cause of failure should be entered Select the Cause of failure from a list F9 When the organ is explanted also fill in the Date of explantation on failure Save the information via F10 or the button Save Death of a Recipient If a recipient has died the Date of death and Cause of death must be registered in the screen Recipient Deceased For description see3 4 3 Register deceased Please complete the fields concerning graft failure if applicable and the Date last seen field The Date last seen should be equal to the Date of death Save the information via F10 or the button Save Pancreas transplant technique Pancreas only Here can be registered what the transplant technique for the pancreas was Enter the data via the list of values F9 for selection Save the information via F10 or the button Save Recipient Out of analysis If a recipient is lost to follow up the Date last seen should be entered and the checkbox Out of analysis should be marked Save the information via F10 or the button Save Update the date last seen Every time the recipient was seen at your clinic or upon
116. applied 1 Last name 2 ET registration number 3 ABO Children only Yes No If Y only recipients younger than 16 years will be reported mn eNatacponsvnloerepred ore PT HU recipients only Yes No If Y only high urgency recipients will be reported If N all eae recipients will be reported The last two parameters can be combined to show only HU pediatric recipients The header contains the country and an indication whether the options Children only and HU only are selected The body contains the recipient information in a one line format for the short and a two line format for the long report In the first line printed in long and short reports Dob baere SSCS Eurotransplant display only for recipients of your own center Second line only printed in the long report Description The end of the report shows the total number of recipients on the waiting list of the specified country 9 1 6 Report LU_WL_165C_L_R Lung Waiting List Center This report contains all recipients registered on the lung waiting list in your center Parameters for this report are From center Code of the center for which the report must be printed The code ere stahaysewon th Short or long list LOV L S Enter L or S to get a long or short report The description of 0o noT ie repor booy wi show wren tems anced in ecn version gt Enter a number from 1 to 3 The following sorting orders
117. are placed under Test amp Education Here you can find all available education environments It is recommended to first practice new data entry in the BETA 1 EDUCATION environment Here you can experiment as much as you like without disturbing the production process 2 3 Screen layout The ENIS system contains two types of screens The first type is a screen developed with the Oracle technology This is an example of a typical Oracle screen Eurotransplant ENIS system user manual Action Edit New Select Recipient Donor TXP Center Reports Match Window Help Dei AI SKIN PSRs ei a Recipient Registration ETNr Recipient Name Date of Bith ABO Rh Sex HE LU LIV PA KI Special Reg Ctr 279984 ENIS MANUAL 01 01 1980 o pos m fr INLBTP Contact Insurance Consent Authorization Recipient Data Reg Date MANUAL M 1234 AB 01 01 1980 Leiden Male v NL Netherlands NL Netherlands Tel Home Tel Other Reason no BSN Pati nt is het wettelijk identiteitsdocument vergeten Center Data NLBTP mE Local Hospital Reg Nr i mupki On top is the menu for navigation through the application Action Edit New Select Recipient Donor TXP Center Reports Match Window Help For an overview of the whole menu structure see paragraph 2 3 1 Menu structure Underneath the menu are the buttons to manipulate data Delia SeKRIRQRMI SSRs How to use these buttons is desc
118. ation This extract only shows donors from the own center with transplants in the own and other centers It also shows specific recipient information Registration date of donor Sex of donor F emale or M ale Registration center of recipient first 3 positions of ET center code Sex of recipient F emale or M ale RPA sd Registration center of transplant first 3 characters of ET center code 9 10 Organ Transplants extracts These extracts generate a data set which contains information on all transplants performed in the requesting center during the given time period The data sets are organ specific Eurotransplant The following extracts are available e K_X_002 Kidney Transplant Extract This extract reports all kidney transplants kidney only or kidney combined with other organ P_X_003 Pancreas Transplant Extract This extract reports all pancreas transplants pancreas only or pancreas combined with other organ e HE_X_004 Heart Transplant Extract This extract reports all heart transplants heart only or heart combined with other organ LU_X_005 Lung Transplant Extract This extract reports all lung transplants lung only or lung combined with other organ LI_X_006 Liver Transplant Extract This extract reports all liver transplants liver only or liver combined with other organ including split and partial transplants e K_X_026 Thbase Kidney Transplant Extract This extract reports all kidney transplants kidn
119. ation An example of a mandatory field is Date of birth which is used to identify a person These fields are marked in the old screens with the sign gt placed at the end of the field In the new screens the names of the fields are written in red Optional fields are not mandatory but give additional information When the information is Eurotransplant available please enter the information Date fields These are fields where you have to enter a date in the format lt dd mm yyyy gt day month year The date can be typed as the following example 131296 This will automatically be converted in 13 12 1996 when you leave the field Time fields Here you can enter the time in the format lt minutes gt lt seconds gt For example 15 45 Date and time fields These are combined fields where you have to enter date and time There are two ways to do this An easy way to enter date and time is to press F9 This displays a calendar with the current date selected You can select any date you like With the buttons on the above left you can select the months and with the buttons on the above right even switch year Underneath is the current time displayed With the buttons at the end of the hour and minute field you can select other numbers Another way is typing the date and time Example 23 of May 2008 09 40 type 23082008 0940 When leaving the field this will be converted in 23 08 2008 09 40 Code
120. avigate through the screen Registration Date Donor Nr Donor Type Center ees sek ell 19 04 2010 09 59 Living w f C f Clinical Data Past History Donor Data Cadaver Type NHB category Euthanasia 4 Brain Death Date Expl Planned on Permission Given German ESP subregion aj Register Checked BSN Contact Data f 7 E Doctor Hospital Tel Nr Contact Person Contact Tel Nr Hospital Department Contact Other Tel Nr Et Coordinators The following fields for living donors can be entered Registration date Date of registration of the donor The date is filled automatically when the screen is opened This field can not be updated Donor N The Donor number will be automatically generated after all information is entered and saved Living selection from LOV The donor center selection from LOV The blood group of the donor selection from LOV Rhesus factor P for Positive N for Negative selection from LOV f birt Date of birth of donor format lt dd mm yyyy gt 86 Eurotransplant ENIS system user manual Age Age of the donor this is automatically calculated after the date of birth is entered This can not be changed or updated Sex F for Female M for Male selection from LOV Weight Weight of the donor in kg Height Height of the donor in cm If the height and weight fall outside the normal values the following massage will appear
121. bar makes it possible to scroll to older lab results if present The first row presented is the most recent insert The red fields are mandatory The field Entry Date is default filled with date and time of entry and cannot be changed Enter the code of the laboratory that determined the HLA typing in the field Code Choose F9 or the arrow to select a laboratory It is only possible to use the center codes ending on TT e g NLBTT The field Sample Date is the date the test sample was collected Enter an ABC DR and or DQ Typing Technique via the LOV or arrow and check the checkboxes in front of the technique You can choose DNA or Serology as typing technique The checkboxes before every typing technique field is used for creating the match phenotype later on in the procedure By selecting the technique for an antigen in group ABC DR and or DQ you make it possible to register the antigens of this specific antigen group in the tab page Antigens Note When you enter the Lab Results for the first time it is mandatory to register the ABC Typing Technique and the DR Typing Technique You can use the Comments field for comments per lab result The checkbox Used for Phenotyping means the HLA typing has been used for Phenotyping and these results cannot be changed Antigens In this tab page you can enter the antigens ETNr Recipient Name Date of Bith ABO Rh Sex HE LU LIV PA KI Specia
122. c Cr CrerCeen EERE Ce mC oe CUCL UC MC ue ACB ar Cae eC BC aCe AE er ae a eer ae ee ee ae Pr ETNr Recipient Name Date of Bith ABO Rh Sex HE LU LIV PA KI Special Reg Ctr aU 2818901 Dnm General C Peptide Donor Profile BES ci DAES Waiting Days Date put on Waiting List Total Active Total NT Cumulative Transplants l Total PA Total IS All Organs e Previous Finish This tab page shows the waiting list details It is an overview of waiting days and the cumulative transplants No data can be changed in this screen it is view only When this is the last screen in the recipient registration wizard at the bottom is shown This is the last screen of the Recipient Registration Wizard The Next button has changed into a Finish button By clicking Finish the registration is completed Note it is NOT POSSIBLE to enter the recipient specific donor requirements in the recipient specific kidney profile when the recipient is on the combined kidney pancreas waiting list You can only enter these requirements in the recipient specific pancreas profile 3 1 13 Registration of an intestine recipient There is no specific screen for registration of intestine recipients available When an intestine only recipient has to be registered enter the recipient as all other recipients via New Recipient Registration After the first screen with recipient data choose Next The next screen is the Choose Organ s screen Do not
123. c eee eee eee e nents 126 8 5 Save and process CXtractS ccceceeee eee eee eee eee eee eee eee eee 126 Overview of available reports and extracts s ss s 1s 127 9 1 Waiting liStS repOrTS eicieeresteccd recede neta ndiamerentae renterne dedi oiii 127 9 1 1 Report K_WL_O099_R Kidney Waiting LISt uw ecccceccceceesceseeeeseeseeeeceseeeccenseeseeseeeeeseeens 127 9 1 2 Report K_WL_099A Kidney Waiting List HBSAg HOVAD ccseeseseeesetstseeneeees 128 9 1 3 Report K_WL_099B Kidney Waiting List ACCIT SS cceccscecceseeecseeseeeceenseeeeeneeseens 130 9 1 4 Report HE_WL_164C_R Heart Waiting List C Nter ccccccccccseceesesseeesessesetsesesseseees 131 9 1 5 Report HE_WL_164N Heart Waiting List NatiOnall cccccccccccscceceeeeseeeeseeneeeeenseeeees 132 9 1 6 Report LU_WL_165C_L_R Lung Waiting List Center c cccccccccccesseteesesseseeseseeseseees 133 9 1 7 Report LU_WL_165N_L Lung Waiting List NAtionall ccccccccceceescsseseeseseseesesessessees 134 9 1 8 Report HL_WL_165C_R Heart Lung Waiting List Center cccccecccccseteescsseetsessesesees 136 9 1 9 Report HL_WL_165N Heart Lung Waiting List National 0 ccccccsceseteeseeeeeseeeees 137 9 1 10 Report Ll_WL_167C_R_ Liver Waiting List C Ntel ccccccccccccccsseseeseseeteeeeeeseesesees 138 9 1 11 Report LI WL_167N Liver Waiting List_ National Eurotransplant 9 1 12 9 1 13 9 1
124. can search for the one you need If the selection returned a lot of records you can scroll with the scrollbar and select the record by clicking on it and than select Ok 2 5 Switching between recipient donor and transplants In the system relations between recipients donors and transplants are stored So when you re looking at recipient data you can easily move to the linked transplant data or information about the donor if a transplant occurred off course or vice versa An example You look at the Recipient Organ screen and you see that the urgency code is FU transplanted To see information about the transplant you perform the next action Select Txp Update Now the transplant selection screen is displayed and the recipient number is already filled Click on Execute or press F9 to confirm this pre selection If there is more than one transplant for this recipient you may choose from a list The transplant update screen with information about the related transplant will be shown 2 6 How to exit the ENIS system You should finish your session with the ENIS system as follows Save your changes There are three ways to save information 1 Click on the save button 2 Use the F10 key 3 Via the menu Action Save Close the window which displays the ENIS application Action Exit ENIS Close the window which displays the member site File Exit Eurotransplant 3 Recipient registrat
125. ceceseesessetesseseeseesesees 222 How to retrieve recipient information from recipients receiving an organ from your donor via D nordata eU pepene a a e a E E N E Aa 222 How do I register a pancreas recipient with a too high C peptide on the waiting list 223 Addendum A Code tables extracts ccsceeesceeeeeeeeeeeeeeeeeeaeeouaeesuaeeeeaeeaeeeeaueeeanae 224 Code Table 1A Kidney Disease ET Codes ceccecceceeceeee reenter e ene tnennnennenneea 224 Code Table 1B Kidney Disease ICD10 CodeS sssssssssssrrrrrssrrrrrrrnerrrnrrnnnerrrnnn 225 Code Table 2A Pancreas Disease ET codes ceeccceece eee e cent eee t eens een enennnennennees 230 Code Table 2B Pancreas Disease ICD10 codes 00 eee eee e eect eet ee eee eeeeeeeeneeaeenees 230 Code Table 3A Liver Disease Changed to ELTR coding system as of 01 07 2006 232 Code Table 3B Liver disease ELTR codeS s sssssrssssssrrrrrrssrrrrrntnsnrrnnnnnnerrrnnn 233 Code Table 3C Liver disease ICD10 codes 00 cceccecee eect eens eee t ee enetnatnnennees 235 Code Table 4A Heart Disease ET codes ccccecceceece cere ees 237 Code table 4B Heart disease ICD10 codes 20 icccecee cece e eee test eee e teeta eeaeenies 237 Code Table 5A Lung Disease ET codes ccceccece cece eee nn tenes 239 Code Table 5B Lung Disease ICD10 codeS ssssssssssssrrrrrrssrrrrrrrnsnrrnrnnnnerrrnnn 239 Code Table 6 Urgency COdES ecece eect Ene ene nena nnna 240 C
126. ch When entering the HLA specific antigens can be filtered by entering the query mode For example Look for DR12 by F7 or the query button The left block will go into query mode and you can give in a wildcard in the Antigen field DR the percent sign stands for an unlimited amount of characters found behind DR F8 execute query gives back a list with all DR antigens Look for an allele of A24 by F7 and choosing Allele from the pop list of the Type field and fill in the antigen A24 in the Part of field The execute query will give back a list of alleles which are part of A24 You can select one and with the gt button bring it to the list on the right Note Multiple selections can be made by holding the CTRL button while selecting the HLA Once you have entered the HLA typing save the information via F10 or the disk You will see that the list is complemented with the Splits and Broads belonging with the partial antigens you entered You can see in the Tab HLA Lab Results the Full Pheno Type Eurotransplant ENIS system user manual 4 4 Organ anatomy registration After procurement of the organ s you must fill in the information about the specific organ s in the next screens Living kidney donor Go to Donor Donor Organ Donor Kidneys This screen contains two tabs one for each kidney Select the kidney that was explanted EE EEE EEL EEE ELE EEL EEE EEE Registration Da
127. checkbox can be checked 3 4 6 View or update Antibody screening After registering antibody screening it is always possible to view or update the antibody screening Select Recipient Immunological Results Antibody Screening Register per Recipient Now you can see the data that has previously been entered If the data is used for matching the checkbox Match Occurred is checked It is not possible to change or add data to this row a new row must be entered Select an empty row The Entry Date will be filled automatically Now it is possible to insert new data For description see 3 1 5 Antibody screening per recipient Eurotransplant ENIS system user manual 4 Donor registration 4 1 Registration of a living donor If you want to register a living donor go to Donor Donor Registration The donor registration screen will appear The registration date and time are filled with the date and time of opening this screen First change Donor Type in Living Some fields in the Contact tab will now become gray and not enterable and other fields will become mandatory In Donor registration are 5 tab pages Contact Clinical Data Past History Reported Organs and Match Data For a living donor only the tabs Contact and Reported organs are important The tab Contact contains identification data like date of birth and Identity and information about the donor hospital Enter the information Use the Tab key to n
128. chosen See 3 1 13 for Intestine registration Depending on the organ s chosen the number of screens in the recipient registration wizard is altered It is not necessary to use F10 or the save button to save the data By using the Next button the data is automatically saved to the database You ll go to the next screen in the wizard Medical Note When you use the Previous button and you want to save your information you have to use F10 or the Save button to save your data Otherwise the data in that screen will not be saved The following message occurs amp Ifyou leave this screen without saving the data you just entered in this screen will be lost are you sure you want to proceed i Cancel Select OK if you want to go back without saving the information Choose Cancel if you want to save your data 3 1 3 Medical screen This screen is used to register the blood group and virology of the recipient as well as height and weight 34 Eurotransplant ENIS system user manual Ta Recipient Medical ETNr Recipient Name Date of Birth ABO Rh Sex HE LU LIV PA KI Special Reg Ctr 279984 jm ft tT Virology ABO gt Weight ka Nr of Pregnancies Rh gt Height crm Nr of Children Transfusions Before Registration After Registration m Virology Last known test result per virus HIVAb HBsAg HBcAb CMY IgG Toxo HE Imm HIVAg HBsAb HCVAb CM
129. cified N26 Unspecified contracted kidney N27 0 Small kidney unilateral N27 1 Small kidney bilateral N27 9 Small kidney unspecified N28 0 Other disorders of kidney and ureter not elsewhere classified Ischaemia and infarction of kidney N28 1 Cyst of kidney acquired N28 8 Other specified disorders of kidney and ureter N28 9 Disorder of kidney and ureter unspecified N29 0 Other disorders of kidney and ureter in diseases classified elsewhere Late syphilis of kidney Eurotransplant N29 1 Other disorders of kidney and ureter in infectious and parasitic diseases classified elsewhere N29 8 Other disorders of kidney and ureter in other diseases classified elsewhere N99 0 Postprocedural renal failure N99 9 Postprocedural disorder of genito urinary system unspecified Q61 0 Cystic kidney disease Congenital single renal cyst Q61 1 Cystic kidney disease Polycystic kidney infantile type Q61 2 Cystic kidney disease Polycystic kidney adult type Q61 3 Cystic kidney disease Polycystic kidney unspecified Q61 4 Cystic kidney disease Renal dysplasia Q61 5 Cystic kidney disease Medullary cystic kidney Q61 8 Other cystic kidney diseases Q61 9 Cystic kidney disease unspecified Q79 4 Congenital malformations of musculoskeletal system not elsewhere classified Prune belly syndrome Q87 8 Other specified congenital malformation syndromes not elsewhere clas
130. cssessensescusecsessecnsesecusesaesaeeseaecnseseenseeseeaeesesaesaeeeeentes 29 3 1 2 Choose organ S Waiting HISTS ccccccecesscsseseescssesessesesesscssssesescsssseseceeseesececsseseceesceaeeaesaeeeees 33 3 1 3 Medical SCOOT rrn nan r a r REN EE E O E REE T E NEE 34 3 1 4 ENt ring HLA VP erori r E O A EAER 37 3 1 5 Antibody screening per FECIDICNE c ecceccecessesceseeseesecssesecuceescsaeeseesecaeesecseeeseeaeeaeeseeneeereaees 41l 3 1 6 Unacceptable Antigens ssccccessccsciicesseicead cavisceoscescetie seid dacs e a i R a ESE 44 3 1 6 1 Registration via the recipient registration wizard s seesesessissisresisrisresirisrestsesrestsntsresrsesresess 44 3 1 6 2 Registration via the recipient Menu cee eeseseseeetceeeseseseneeeeeseseseseseseeeeeeseaeaeaeneetetsceeaeaeeeeeeeeeeaes 47 3 1 7 Organ screens 0 g eneral arseron rniii EE nE ENEE we ia 48 3 1 8 Kidney specio SCECIT irei area n E A E EE EO NTA 48 3 1 9 Heart specific SCLECN ccecccccescessesecsseescsseeseuseesessecsesecaeesecssesesaecseaecaesseseeseaeeaeesseaeeaeneesaeaes 54 3 1 10 Lung specific screen o eeececccccescesseseesseescssesecuseesesseesensecaeesecusesscaecsesaecaeesecaeseaeeaeesseaeeaeeeeesaeats 60 3 1 11 LIVEPr SDOCIIIC SCIE OR eicrsc s2cexchsechehexteetindhs ahtion viaighecstiher eee sivas hase eee 65 3 1 12 Pancreas specific SCFEON ccecesccsccssceseesceseeseeseeseesecaeesecssescsaeesesecaeesecaesecsaeeseeaeeaesaeeaeeereaees 70 3 1 13 Registration
131. ct the donated organ Save the information e For liver transplantation go to Donor Donor Organ Liver Enter the correct hepatectomy date and time this can be a historical date time Save the information For kidney transplantation go to Donor Donor Organ Kidney Go to the correct kidney tab and enter the correct nephrectomy date and time this can be a historical date time Save the information Now it is possible to register the transplantation even if the transplantation took place prior to the registration of the donor For further information or description see Chapter 4 Donor registration Question How to retrieve recipient information from recipients receiving an organ from your donor via Donordata eu Answer Go to the application www donordata eu on Membersite under Applications Enter the donor number and click Search The information of that donor appears e Go to the tab Recipients An overview of recipients with an offered accepted confirmed or transplanted status appears Three reports are available in this tab with all necessary information Eurotransplant Note The following restrictions have been implemented Users from donor center from recipients from your own center all information is visible All reports are accessible A recipient from another center will be shown after the center registered the transplantation From these recipients only
132. d e HbsAg HbcAb HCVAb There are two possible entries Any and Neg selectable by the arrow Any means that positive and negative donors are accepted When entering Neg only negative donors 67 Eurotransplant will be accepted Euthanasia donor This is a Yes No field Yes means euthanasia donors are accepted No means they are not accepted for this recipient e NHB Donor This is a Yes No field Yes means non heart beating donors are accepted No means they are not accepted for this recipient Min Weight Max Weight Mandatory minimum and maximum acceptable donor weight Only whole numbers can be entered For both fields the minimum is 0 and maximum 999 Domino Donor Explanted Liver These are Yes No fields indicating whether a domino donor or explanted liver is accepted or not Split Liver Mandatory these are Yes No fields indicating whether a split liver is accepted or not There are four possible splits LLS Left Lateral Segment ERL Extended Right Lobe LL Left Lobe RL Right Lobe For each one has to be entered if it is accepted or not Sepsis Meningitis Malignant Tumor Drug Abuse Rescue Allocation These are a Yes No fields Yes means these donors are accepted No means they are not accepted for this recipient e Marginal Donor This is a Yes No field indicating whether a marginal donor is accepted or not A donor is a marginal donor when one of the following item
133. d fields Pop up lists In these fields you have to select the information you want to enter form a list of possible entries a List of Values LOV In the old screens the field has an asterisk placed in front of it to indicate it has an LOV When the cursor is in that field press the F9 button and will open the LOV In the new screens there is an arrow sign behind the field to open the LOV A sort LOV is indicated like this There are only two options for this field Male Female A longer list is indicated like this Country nc You can type a value in this field without using the list The system will check this entry against the list and when the entry is not listed it will open the List of Values automatically for you to search the right value When you enter the first few characters of a value the system will check iel April 2008 s lt gt against the list When only one value matches the whole value will EUGEN be filled in automatically When multiple options are found the 323 4 141 2 3 4 5 LOV will show the choices found You have to choose the right 6 7 8 9 110 11 12 one 13 14 15 EJ 17 18 19 20 21 22 23 24 25 26 Comment fields or Free text boxes 27 28 29 W 1 2 3 In these fields you can enter free text for additional information It TO ee is possible to enter both letters and numbers If you would like to 16 APR 2008 have more overview of your text use the editor button or Ctrl E a
134. d liver Center profile CP Sepsis onor with sepsis accepted Yes No Center profile CP Drug abuse onor with drug abuse accepted Yes No Center profile CP Rescue allocation escue allocation accepted Yes No Center profile CP Marginal donor Marginal donor accepted Yes No Center profile R ardi CP min donor age Minimum acceptable donor age Center profile D D CP Malignant Tumor Donor with malignant tumor accepted Yes No Center profile D R aiai CP max donor age Maximum acceptable donor age Center profile CP Meningitis onor with meningitis accepted Yes No Center profile 9 8 3 HE_X_010 Heart Waiting List Extract The heart waiting list extract reports all recipients who are on the heart waiting list This report does not include the recipients who are also on the lung waiting list e g awaiting a heart lung transplantation This has been done since the lung waiting list parameters are used in the heart lung allocation program Eurotransplant Sex of recipient F emale or M ale bo Bate obi ofreciont SSS Organs for which recipient is on the active or passive waiting list s mo a od group otreapent J rah resteron oooO HeLu txps Total combined heart lung transplants registered in ENIS for this recipient Total lung transplants registered in ENIS for this recipient DateonWL o on WL Date put on Date put on kidney waiting list ssi waiting list pate one Number of contiguous Dae pro
135. d the field DTT Crossmatch will automatically be filled with Yes In all other instances the field DTT Crossmatch is not mandatory You can fill in Yes or No whether a crossmatch with DTT is needed for this recipient or not The field Specificities allows entry of HLA antibody specificities You can use the arrow F9 or type in the antigens directly When you entered all information click the Next button When there are no specificities the next screen will be the Organ screen When specificities are entered the next screen will be the Unacceptable Antigens screen 43 Eurotransplant 3 1 6 Unacceptable Antigens The unacceptable antigens are those HLA antigens that should be avoided in an organ offer Since these antigens are used in the kidney match program an organ from a donor who does not have these HLA antigens will be offered There are two ways to enter the unacceptable antigens screen via the recipient registration wizard or via the menu 3 1 6 1 Registration via the recipient registration wizard After you entered the HLA antibody specificities in the Antibodies per Recipients screen and used the Next button the following prompt appears f Go to entry of Unacceptable Antigens No ff Cancel If you want to go to the entry of the unacceptable antigens choose Yes If you don t want to enter unacceptable antigens choose No When you have chosen to go to the unacceptable
136. d with data of your selection Center Organ Sorted By NRDTP Kidney ET Nr UUTE Status ET Nr Recipient Name ABO Urg Dialysis Center 003894 pumeWUH o R m m Specificities Sereen Type p E Sample Date 20 02 2008 4 Ta E Auto NotTested DTT Crossmatch B i g g g OS Recipient 1 404 The tab page antibodies shows a recipient header For each recipient ET number name blood group urgency and dialysis center is shown Screen Type Sample Date PRA and Auto are mandatory When you have filled out the sample date and or screen type in the tab page selection they will be shown in this screen It is possible to change them Screen Type is the antibody screening method that has been used An LOV is available Sample Date is the date the test sample was collected PRA is the percentage of allo antibodies it is a numeric field which is validated to allow any whole number from 0 up to and including 100 Auto means weather there are auto antibodies present or not When Auto is positive DTT crossmatch has to be Yes An LOV is available The percentage of antibodies can change the urgency status if the recipient is registered on the kidney waiting list with urgency T or HI See organ screen for detailed information The next field DTT Crossmatch is not mandatory You can fill in Yes or No via the arrow Eurotransplant ENIS system user manual whether a crossmatch with DT
137. date and donor number Full match phenotype Type of HLA and Full match phenotype Dialysis Ctr Dialysis center Match Comment Match Comment The end of the report shows the total number of recipients on the waiting list of the specified center 9 4 4 Report K_IM_102_R Antibody Screening per Center Work List This report can be used to write down the results of the antibody screening Parameters for this report are Description TP center Beson of the center for which the report must be printed The code must always end on TP Sort By Enter a number from 1 to 6 The following sorting orders will be applied 1 ET Nr 2 Name 3 Dial ET Nr 4 Dial Name 5 Urg ET Nr 6 ABO Name Eurotransplant The header shows the center code and how the report is sorted The body contains the following recipient and screening information Column heading Description ET Nr ET registration number Recipient Name Last name Date of birth Date of birth ABO Blood group Cnet ctr Dial ctr Recipient center dialysis center DTT Crossmatch Has the serum have to be tested with DTT Urg Urgency of recipient Sample Date Date of the test sample PRA Antibody percentage Specificities Antibody specificities 9 4 5 Report R_IM_130 Transplantable Recipients with Outdated Screening This special report generates an overview of recipients with an outdated screening Parameters for this report are
138. date of start waiting time is displayed Now save the information via f10 or the Save button If No is selected the following prompt will appear Do you want to save the changes you have made D No Ji Cancel If Yes is selected the information is saved The ET transplant number will automatically be Eurotransplant generated and displayed in the appropriate field If No is selected the information will be deleted without saving the transplant The screen closes If Cancel is selected the screen remains open and you can re enter correct the data and continue with the registration of the transplantation Note for a combined transplantation all transplanted organs must be selected at once For example For a double lung transplant the organs Llu Rlu have to be selected For a heart lung transplant the organs He Llu Rlu have to be selected For an en bloc kidney transplant the organs Lki Rki have to be selected Problems at time of transplant registration At time of registration ENIS checks if the entered information corresponds with the information Eurotransplant has on the donor part If this does not match a message appears Below are the most common prompts If this message appears the incorrect recipient ET number is entered e g an ET number not registered at your center or from a recipient that didn t receive an offer Click O
139. de Second immunosuppression text text translation of code Specification in case of immunosuppression other Third immunosuppression code numeric code Eurotransplant Column header Meaning Immun 4 text Fourth immunosuppression text text translation of code Immun 4 comment Specification in case of mmunosuppression other Immun 5 code Fifth immunosuppression code numeric code Immun 5 text Fifth immunosuppression text text translation of code Immun 5 comment Specification in case of immunosuppression other Malign 1 code First malignancy code Malign 1 text First malignancy text Complications Complications Malignancies Malignancies diagnosed Malign 1 Diagdate The date on which the first malignancy was diagnosed Malign 1 comment Malign 2 Diagdate Malign 2 code Malign 2 text Malign 2 comment Nr of hospitalisation days Nr of outrecipient visits Number of outrecipient visits in follow up period 9 12 9 HL_X_9 NOTR Thoracic Recipient Extract The data extract contains the following 20 data items concerning recipients in the selected transplants Column header R Etnr ET registration number of recipient Rastra R Firstrame Fades Faddes 2 Eo Rcporcade county cod courte ik R sex Sex of recipient F emale or M ale abe Rhea Rimark pRera aod Rcod ahd R codiahttex Specification of the cause of death if the cause of death is Other Eurotransplant 9 12 10 HL_X_10 NOTR Thoracic
140. e 1997 Other Lung Disease 1998 Other specify Code Table 5B Lung Disease ICD10 codes Code Description D86 0 Sarcoidosis of lung D86 2 Sarcoidosis of lung with sarcoidosis of lymph nodes E84 Cystic fibrosis E84 0 Cystic fibrosis with pulmonary manifestations E88 0 Disorders of plasma protein metabolism not elsewhere classified 127 8 Other specified pulmonary heart diseases 128 9 Disease of pulmonary vessels unspecified J44 8 Other specified chronic obstructive pulmonary disease Eurotransplant J44 9 Chronic obstructive pulmonary disease unspecified J47 Bronchiectasis J68 4 Chronic respiratory conditions due to chemicals gases fumes and vapours J70 1 Chronic and other pulmonary manifestations due to radiation J70 9 Respiratory conditions due to unspecified external agent J81 Pulmonary oedema J84 1 Other interstitial pulmonary diseases with fibrosis J84 8 Other specified interstitial pulmonary diseases J98 4 Other disorders of lung M05 1 J99 0 Rheumatoid lung disease P27 8 Other chronic respiratory diseases originating in the perinatal period Q21 8 Other congenital malformations of cardiac septa Q25 Congenital malformations of great arteries Q26 Congenital malformations of great veins Q27 Other congenital malformations of peripheral vascular system Q27 0 Congenital absence and
141. e Focal and segmental glomerular lesions NO0 2 Acute nephritic syndrome Diffuse membranous glomerulonephritis NO0 3 Acute nephritic syndrome Diffuse mesangial proliferative glomerulonephritis NOO 4 Acute nephritic syndrome Diffuse endocapillary proliferative glomerulonephritis NOO 5 Acute nephritic syndrome Diffuse mesangiocapillary glomerulonephritis NO0 6 Acute nephritic syndrome Dense deposit disease NOO 7 Acute nephritic syndrome Diffuse crescentic glomerulonephritis NO0 8 Acute nephritic syndrome Other NO0 9 Acute nephritic syndrome Unspecified NO1 0 Rapidly progressive nephritic syndrome Minor glomerular abnormality NO1 14 Rapidly progressive nephritic syndrome Focal and segmental glomerular lesions NO1 2 Rapidly progressive nephritic syndrome Diffuse membranous glomerulonephritis N01 3 Rapidly progressive nephritic syndrome Diffuse mesangial proliferative glomerulonephritis N01 4 Rapidly progressive nephritic syndrome Diffuse endocapillary proliferative glomerulonephritis N01 5 Rapidly progressive nephritic syndrome Diffuse mesangiocapillary glomerulonephritis N01 6 Rapidly progressive nephritic syndrome Dense deposit disease NO1 7 Rapidly progressive nephritic syndrome Diffuse crescentic glomerulonephritis N01 8 Rapidly progressive nephritic syndrome Other Eurotransplant
142. e changed into Yes You must enter the ET Disease Code If there is a corresponding ICD10 code the system will fill this in automatically If there are multiple corresponding options the LOV will be limited to these options Some ET codes need further specification The field Comment on PDC Primary Disease Code will then become mandatory e g ET code 1610 Occupational lung disease specify For the German recipients it is mandatory to enter the ICD10 code A Match Comment can be entered This comment appears on the Eurotransplant match list if the recipient is selected In this comment additional profile information or requests can be entered Note if additional profile items are entered this may result in the fact that your recipient will not receive an offer For example if you entered that you will only receive an offer from a donor with a max weight of 50kg and the donor is 60kg your recipient will not receive an offer It is the responsibility of the center to check if the entered match comments are up to date Lung requirement is mandatory and specifies which lung s or part of the lung the recipient needs The Date put on Waiting List will default to today and cannot be changed by remote users Recipient TLC is automatically calculated for German recipients but the value is adjustable The field is not available for Non German recipient and the TLC is not calculated for these recipients The fields Fo
143. e Country No capacity to consider offers for the following Organ Copy row For an HU interval save an elective interval first Category Organ From Until Days Reason weight Weight Start by selecting your own center enter your center code XXXTP in the field Transplant center and select F8 Transplant Center NS Name Country No capacity to consider offers for the following Organ Copy row l Category Organ From Until Days Reason The first line is automatically filled with the name and Country of your center Select the organ by using the LOV arrow at end of field and select a Category of recipients The field organ is filled automatically Enter the start date for the capacity limitation in the field From and the finish date for the capacity limitations in the Until field dd mm jjjj hh mm The applications calculates the duration of the limitation and places the number of 120 Eurotransplant days in the field Days Select the reason why there is no capacity form the LOV arrow at end of field A pop up appears where the reason can be selected Valid values for Reason Reason it 0 No ICU capacity No organ transport capacity No transplant surgeon available Other personnel not available Specify in comment field Incomplete medical equipment Specify in comment field Other and specify lt x lt x lt 2Z2Z The pop up contains two columns Reason and Comment
144. e data extract contains the following data items concerning the selected transplants Column header T Date T Center T Etnr R Etnr D etnr Gfaildat Gfailcod Gfailcau Gfailcom CIPM T Organ T Organ detail T Simul mm A mm B mm DR R HbsAG R HCVAb R CMVIgG R HIVAb H Pra per H Pra date C Pra per C Pra date Ab spec Accept ab Unaccept ab Unacc complete weaning SSCS Specification of graft fail cause if the cause is Other The cold ischaemic period of the graft min This is the time between perfusion from donor and placement in recipient out of the ice Numeric First warm ischaemic period min Second warm ischaemic period min This is the time between placement in recipient out of the ice and recirculation The total ischaemic period cold and second warm ischaemic period Current Pra of recipient at time of transplant Indicator if Unaccept ab is complete Yes if length of Unaccept ab is less then or equal 125 No if length of Unacceptable ab greater then 125 in which the first 125 positions are reported Height Height in cm of recipient Weight in kg of recipient nr of hospitalisation days Number of hospitalisation days before transplantation after date put on waitinglist Eurotransplant Columnmeader Weaning nr of outrecipient visits Number of outrecipient visits before transplantation after date put on waitinglist i i itial i Initial immun 2 text Second initial
145. e mandatory These items have a in front of the item name There is a separate manual for this screen It can be found on the ET member site under Library When this is the last screen in the recipient registration wizard at the bottom is shown This is the last screen of the Recipient Registration Wizard The Next button has changed into a Finish button By clicking Finish the registration is completed 59 Eurotransplant ENIS system user manual 3 1 10 Lung specific screen ETNr Recipient Name Date of Birth ABO Rh Sex HE LU LIV PA KI Special Reg Ctr 399983 General Donor Profile Listing details Reason Comment chro tanapataton Comment on PDC Other Relevant Diseases Match Comment 4 Date put on Waiting List Foreign HU Approval Recipient TLC Approved Combined Organs ACO No lt lt Previous Next gt gt The Lung organ screen contains three tab pages General Donor Profile and Listing Details On this first tab page the urgency code primary disease code and lung requirement have to be registered The available urgency codes are T Transplantable NT Not Transplantable and R Removed When a German recipient is put on the waiting list for a living transplantation the urgency code must be transplantable at time of registration and transplantation according to the German law When urgency R or NT are entered or changed to these statuses it is mandatory to enter a reason It is possible that
146. e recipient has to be re evaluated for In maturation status Note for more information concerning the status In maturation and Hospitalized see the ET manual chapter 6 Thoracic allocation on the ET web site By choosing the NEXT button of the recipient registration wizard at the bottom of this screen you will automatically go to the Heart Waiting list Follow Up screen First you ll see the following screen as Register Recipient Results Questionnaire 4 Recipient 4 Date Collected Score hlaw ranin hlaw rannre Malata racard Drint Ceara Uintarn a Daramatar Uietan Parameter Result 4 Remark The data you just entered in the heart organ screen are saved Choose OK 58 Eurotransplant ENIS system user manual Action Edit New Select Recipient Donor TXP Center Reports Match Window Help DealisviFRIRAIY DZI tI Questionnaire WE Heart waiting list follow up 04 12 2009 13 46 25 Recipient 287047 MANUAL lens f Pos fo ot o11980 mM fo fizo Date Collected 0412 2009 13 46 Data NotAvailable New recip Newrecord Prit Parameter Result Unit C TS O r RR systolic Mmm He 4j RR diastolic imm He ventilation y 4 Haemofiltration j y 4 Dialysis y 4 Diabetes mellitus l y 4 Insulin dependent diabetes y 4 Apoplex v 4 PAD y Hr lt lt Previous Finish On this screen follow up data can be entered some items ar
147. e table 3 B Li Bee bigas Sepe ea Eurotransplant R He pdc et Primary ET heart disease of recipient Code table 4A He BIRR pimpa ee R Lu pdc et Primary ET lung disease of recipient Code table 5A Lu PS ata Sr eee T F FP TRK ET registration number of donor C afdonor Tas Daie ast seen after vansplantaion J frig Fale dete ofS e Paes Ra benoae oiron Transplant registration number Whole liver T LLSliv Transplant registration number Left lateral segment liver split Ro POT Po i Sy S ay Say oS FP P FP FP FP OF Eurotransplant Re Cause of death ofreciet O O Rw Weghtofrecpient SSCS Rri Heightofreopient CSCS C Turg at Urgency code at transplant registraton ofreciient Twaitsinoe Date puron waiting istot repen Irit immsupp 1 Firstinfial immuno suppression Code tae rit immsupp 2 Second infil immuno suppression Code abe Fiitimmsupp 8 Third initial immuno suppression Code tae rit mmsupp 4 Fourth ital immuno suppression Code tabe r Maint immsupp 1 First maintenance immuno suppression Code tabe Maint immsupp 2 Second maintenance immuno suppression Code tabe 7 Maint Immsupp 3 Third maintenance immuno suppression Code tabe Maint immsupp 4 Fourth maintenance immuno suppression Code tabe 7j Cold ischemic period Cold ischemic period total number of hours roe nr Cold ischemic period
148. ear Account locked due to too many login failures Click here to reset your password You will have to reset your password by clicking on Click here Your account will be unlocked by the IT Department and you will receive a new temporary password Change this pass word at first login see above Eurotransplant ENIS m user manual Question How do you get return of waiting time for kidney recipient Answer If the patient fulfils the criteria of return of waiting time after kidney graft failure kidney graft has failed within 90 days after transplantation re register the patient as follows on the kidney waiting list e Go to the transplantation screen in ENIS or the kidney follow up application e Enter the date and cause of failure Save the information e Re register the patient on the kidney waiting list with the current date of re institution of dialysis must be after transplantation e Previous waiting time will automatically be returned the next day after 00 00 hours Note When the recipient transferred to another center after the transplantation it will not be possible for you to enter the date and cause of failure of the transplantation In that case return of waiting time must be requested by form F1 59 see www eurotransplant org section forms Question How do register a living transplantation prior to donor registration Answer Register the donor in ENIS description in section 5 and sele
149. ecipient T wait since Date put on waiting list of recipient int mmsupp 7 int mmsupp 2 int mmsupp 3 intmmeupp 4 Maint Immsupp 2 Second maintenance immuno suppression Code table 7 Maint Immsupp 3 Third maintenance immuno suppression Code table 7 CEEE Maint Immsupp 4 Fourth maintenance immuno suppression Code table 7 hours minutes period 2 eee a Performance LaF table1B ki Disease pean a monroe table 2B pa Disease Eurotransplant Column header header Explanation o O Do 7 3C LI Disease Peres ae ae 4B HE Disease EE lcci Lu Disease Number Explanation of the Notes The sequence number for this transplant organ Thus if a transplant registration is the first such transplant registered in the ET computer system then the value is 1 if it is the second then the value is 2 etc In the P_X_003 report Pancreas the column T Pa will be filled In case the recipient had a multi organ transplant i e more than one organ from the same donor during the same transplant procedure then the corresponding columns will contain a transplant registration nr 9 10 3 HE_X_004 Heart Transplant Extract This extract reports all heart transplants heart only or heart combined with other organ Column header Explana on hoe Fae sde __ TOENE Transplant cener irst postions oT ET enro Rem ET reisvaton number oireen o Rame tastname ofreciient Ramm Fstname ofeapint a Se
150. ecretion of glucagon E16 4 Abnormal secretion of gastrin E16 8 Other specified disorders of pancreatic internal secretion E16 9 Disorder of pancreatic internal secretion unspecified E84 0 Cystic fibrosis with pulmonary manifestations E84 1 Cystic fibrosis with intestinal manifestations E84 8 Cystic fibrosis with other manifestations E84 9 Cystic fibrosis unspecified K85 Acute pancreatitis K86 0 Alcohol induced chronic pancreatitis K86 1 Other chronic pancreatitis K86 2 Cyst of pancreas K86 3 Pseudocyst of pancreas K86 8 Other specified diseases of pancreas K86 9 Disease of pancreas unspecified K87 0 Disorders of gallbladder and biliary tract in diseases classified elsewhere K87 1 Disorders of pancreas in diseases classified elsewhere K90 Intestinal malabsorption K90 3 Pancreatic steatorrhoea Q45 0 Agenesis aplasia and hypoplasia of pancreas Q45 1 Annular pancreas Q45 2 Congenital pancreatic cyst Q45 3 Other congenital malformations of pancreas and pancreatic duct S36 Injury of intra abdominal organs 36 2 Injury of pancreas Code Table 3A Liver Disease Changed to ELTR coding system as of 01 07 2006 Description Primary Biliary Cirrhosis Secondary biliary cirrhosis Cryptogenic cirrhosis Eurotransplant Other cirrhosis Specify z Sclerosing cholangitis Hepatocellular carcinoma
151. ed for all adult liver recipients For all recipients younger than 12 the PELD score is calculated but the score will not be shown used for research purposes only b E foozras ems manua oase a pos TTT er fe of 6 This is the last screen of the Recipient Registration Wizard The red fields are mandatory The sample date can be filled by using F9 which shows a calendar list or simply type the date All labvalues and units are mandatory including Renal replacement therapy Yes No and MARS therapy Yes No except for Albumin Albumin is only mandatory fot pediatric recipients The field MARS Therapy indicates if the recipient is currently on Molecular Adsorbents Recirculation System therapy or not This field is added on request of the ELIAC committee Eurotransplant ENIS system user manual to be able to evaluate the use of MARS therapy in liver recipients It has no influence on the MELD score itself The fields Na CHE and Ferritin are added on request of the ELIAC committee to be able to investigate the influence of these Lab values on the MELD score It has no influence on the MELD score itself There can now be chosen between two different units for Creatinin Bilirubin Sodium and Cholinesterase CHE mg dl umol For Albumin g dl or g l can be chosen For Ferritin the units are ng ml or ug l If the values for Sodium Cholinesterase of Ferriti
152. ee irii id Re Gause of death ofecient J weight Weightofreciirt id Rie Height ofresient ooo Tuga Uigenoy code at wanspiantregiaton reopen __ TTovaitaice Date putonwalingTatafreciert Tint immsupp 1 Fst inital immuno suppression Code able J Fink msuop2 Second nial immuno suppression Code ble 7 Tint mmsupp 3 Pira inital immuno suppression Cade te Fink mmsuop 4 Fourth ial immuno suppression Gode e Maint mmsupp 1 First maintenance immuno suppression Code ae 7 Maint mmsupp 2 Second maintenance uno suppression Code ee iain mmsype 3 Third maintenance immuno suppression Code be 7 Cold ischemic period Cold ischemic period total number of hours foie jn Cold ischemic period Cold ischemic period additional number of minutes nme eee Warm ischemic Anastomosis time In minutes p Immediate Immediate performance or liver after transplantation Performance Lab MELD MELD based on Lab values ooo Exc MELD Exceptional MELD score ooo Ped MELD Pediatric MELD score ooo Number Explanation of the Notes 1 The sequence number for this transplant organ Thus if a transplant registration is the first such transplant registered in the ET computer system then the value is 1 if it is the second then the value is 2 etc Eurotransplant In the LI_X_006 report Liver one of the columns T Wliv T Lsliv or T Rsliv will most often be filled In case the recipient had a multi organ t
153. ement is specified in the recipient specific profile the corresponding center profile requirement will be ignored When the recipient requirement is empty the center profile requirement is used We advise to enter a recipient specific profile to make sure the offer you get will fits the requirement for that recipient To enter or update the center profile select Center Donor Profiles Other organs in the menu you can see Thoracic This leads to an old screen which is not in use anymore A search screen opens Center Hospital Name 2 x ii Accepted broad HLA mismatch criteria A B DR Accept Mismatch Type your own center code XXXTP and press F8 Now the screen becomes accessible and can be entered or updated The screen contains tabs for the separate organs Only the profile for the thoracic organs is a combined profile Below all tabs will be described per organ 7 1 1 Kidney The tab Kidney contains the Kidney Center Profile KS Eurotransplant Min Age HBsAg Sepsis Yes gt Max Age HBcAb X Meningitis Any Yes Accept en bloc lt 5yr X HCVAb Malignant Tumor No Neg Yes Accept NHB X Drug Abuse lt Yes Yes Accept ESP Donor Yes X Domino Donor Yes X Rescue Allocation yes v road HLA mismatch criteria Accepted b A 0 ea E K 2 OVA 2 E 4 2 Ost 20 4 2 Ot 2 04 e 1 2 B jo E LEE TT YO yO O22 24 a PT PO A e 2 2
154. ency code HU T NT R FU Ki txps Total kidney transplants registered in ENIS for this recipient He urg Current heart urgency code HU 1A 1B T NT R FU Pa txps Total pancreas transplants registered in ENIS for this recipient Liv txps Total liver transplants registered in ENIS for this recipient He txps Total heart transplants registered in ENIS for this recipient HeLu txps Total combined heart lung transplants registered in ENIS for this recipient eee Date on WL Lab MELD Ped MELD intestine Living txp Recipient waiting for living donor txp Yes No AB _Full Phenotype DR_Full_ Phenotype Indication for Primary disease code for End stage liver disease Code table 3 Li Transplantation Disease Hs Ag HBs AD Hm HCV Ab CM oG Maich commer RP min donor age RP max donor age RP HBa RP HCVAb RP HBcAb RP min weight RP max weigh RP Domino iver Eurotransplant 3 RP Drug Abuse onor with drug abuse accepted Yes No Recipient profile RP Rescue Allocation escue allocation accepted Yes No Recipient profile RP Marginal donor Marginal donor accepted Yes No Recipient profile RP Euthanasia Donor Euthanasia donor accepted Yes No Recipient profile CP HBsAg Accepted donor virology Neg Any Center profile CP HCVAb Accepted donor virology Neg Any Center profile CP HBc Ab Accepted donor virology Neg Any Center profile CP Domino liver Accepted domino liver Center profile CP explanted liver Accepted explante
155. endo oir Eniri ER i ea E TAANE 14 2 3 1 Menu structure ENIS ccccccccceecessesesesenseseseseesesencecesesescesensscesesesseaeseeaeseaeeeeaeaeaeaseeeseseeeaeatees 16 2 3 2 Buttons and Function KOYS 0 eccccceccecseseessesecesessceseesessecseesecasesecsseeseaecsessecaaeeseceeseeaseseeeeeaeeaes 18 2 3 3 Fields eee E erence ere E E E E E 19 2 3 4 Messages and promptsS s eseeeeeeeeeeeeeeeeeeseseeeetsesesestereressssesestesesesssseseseetsessesestseeneseseeses 21 2 3 5 ID Header ceereune terre ee tere ype a E E A E E eee ere 21 2 4 How to search a recipient a donor or a transplantation ecceeeeeee eee 22 2 4 1 HOW to search a FECIDIONE eseeccsseseesenseseeseseeseeecsseseecseaesecaeeaeeecaeeaeeeeaeeaeeeeateaseeeneeaseeeneeaes 22 2 4 2 FHOW to search a COMOLK ue seecescsceseseseesesesessesesesessesenessssesesscensscaesessceenssaeseseeseaeaeeaeseseeseseaeeaeatees 24 2 4 3 How to search a trANSPlAantAatiOn ceccecescscesseseecesseeeecseseeecseeaeeecseeaeeecseeaeeecaeeaeeeeaeeaeeneneeaes 26 2 5 Switching between recipient donor and transplants ccccceeeeeeeeeeeaeeneeas 28 2 6 How to exit the ENIS SyYSUEMi vseen ais a aE eenne nib eae E E tice Meena kare 28 3 Recipient registration and update ccccsceeesceeeeeeeeeeeeueeeeueeeeuaeeeueeeauseeauas 29 3 1 Registration of a NEW reCiPieNt cece cece eee eee eee eee teeta eee eee ee eee eae 29 3 1 1 Recipient registration oo ee cececccescessesecsess
156. ent iver spit_ TER Transplant registration number Extended rignt lobe Iver spit Ta Transplant registration number Leftiobe iverspit Tain Transplant registration number Right Tobe iver spt THelu Transplant registration number Heat Luns Tau Transplant registration number Leung Tau Transplant registration number Ritung Tu Transplant registration number Bohunas Dren ET regjstration number ofdonor o Dye Dooren o Dri Relation ofdonortorecipient o Das eddo SSCS Dao Boodoo Ci D sex Sex of donor F emale or M ale Dea Cause of death ofdoner i o Dwe Wmo OOOO o Drion f hemoidonr ooo o o D pheno Fulmatch phenotype idon O O Tas Dae lastseen after ransplantation J Ta amedeo OOOO Ooo me Faasoa OOOO o Roa Demode orep O oo R Caseodahoireopen o ooo Rwet Weightofrecipiet O Oo ooo Rre Heightofrecipiet O OoOO o o Targat Urgency code at transplant registration ofrecipient Twaitsines Date puton waiting istofrecipient o Finitimmsupp Fret initial immuno suppression Code tabie7 Finitimmsupp 2 Second initiat immuno suppression Gode tabe Third initial immuno suppression Code table 7 nt Immsupp4 Fourth inita immuno suppression Code tabe Maint Immsupp 1 First maintenance immuno suppression Code tabe 7 Eurotransplant Column header Explanation hos Maint immsupp 2 Second maintenance immuno suppression Code Table
157. ent visits in follow up period Spec_antihyp2 Specification of antihypertensive medication 2 text translation of Spec_antihyp3 Specification of antihypertensive medication 3 text translation of Specification of antihypertensive medication 4 text translation of code Specification of medication 1 statine 2 other medication Diab_ins Insulin medication given Yes No Unknown 9 13 NOTR BSN Recipient Extract Dutch centers only The BSN Recipient extract shows a relation table for ET nr BSN per recipient for the center of the user The parameters which should be entered are Name Parameter Default is the separator Eurotransplant The extract contains the following data items for recipients with a BSN number in Enis Columnheader Meaning First name of recipient Date of birth of recipient R sex Sex of recipient F emale or M ale All recipients a center has authorization to see are shown except the recipients without a BSN number in Enis Eurotransplant 10 Frequently asked Questions FAQ In this chapter you ll find a number of frequently asked questions These questions are gathered by the Eurotransplant Help desk Question How do I get my own login code Answer Go to the website of Eurotransplant http www eurotransplant org Select Eurotransplant at bottom of page An online registration form appears where you can enter the applicable data Enter all data and c
158. er from 1 to 3 The following sorting orders will be applied 1 ET registration number 2 Last name 3 Center Report by The header contains an indication whether the options unacceptable antigens acceptable antigens or both are selected and whether the report options blood group center or full list are selected The body contains the recipient information in a horizontal and in a vertical line Eurotransplant The horizontal line contains Column heading Description ET Nr ET registration number Recipient Name Name Date of birth Date of birth ABO Blood group Rh Rhesus Sex Male or female Urg Urgency Waiting since Start of waiting time Reg Center Registration center code The vertical line contains Column heading Description Full match Phenotype Full match phenotype Reduced match phenotype Reduced match phenotype Current Acceptable Antigens Current acceptable antigens Current Unacceptable Current unacceptable antigens Antigens PRA Current Latest antibody percentage PRA Highest Highest antibody percentage Current Antibody Specifities Current antibody specificities Cumulative Antibody Cumulative antibody specificities Specifities In case of a previous transplantation s the next line contains Column heading Description Transplant Amount of transplants Transplant number transplant
159. ere classified N15 0 Other renal tubulo interstitial diseases Balkan nephropathy N15 1 Other renal tubulo interstitial diseases Renal and perinephric abscess N15 8 Other specified renal tubulo interstitial diseases N15 9 Renal tubulo interstitial disease unspecified N16 0 Renal tubulo interstitial disorders in infectious and parasitic diseases classified elsewhere N16 1 Renal tubulo interstitial disorders in neoplastic diseases N16 2 Renal tubulo interstitial disorders in blood diseases and disorders involving the immune mechanism N16 3 Renal tubulo interstitial disorders in metabolic diseases N16 4 Renal tubulo interstitial disorders in systemic connective tissue disorders N16 5 Renal tubulo interstitial disorders in transplant rejection N16 8 Renal tubulo interstitial disorders in other diseases classified elsewhere N17 0 Acute renal failure with tubular necrosis N17 1 Acute renal failure with acute cortical necrosis N17 2 Acute renal failure with medullary necrosis N17 8 Other acute renal failure N17 9 Acute renal failure unspecified N18 0 End stage renal disease N18 8 Other chronic renal failure N18 9 Chronic renal failure unspecified N19 Unspecified renal failure N20 0 Calculus of kidney and ureter Calculus of kidney N20 1 Calculus of kidney and ureter Calculus of ureter N20 2 Calculus of kidney and ureter Calculus of kidney with calculus of ureter N20 9 Calculus of kidney and ureter Urinary calculus unspe
160. ers only NOTR Extracts generate a data set which contains information on all transplants performed in the requesting center during the given time period The data sets are organ specific and only available for Dutch transplant centers The following extracts are available LI X_1 NOTR Liver Recipient Extract This extract reports recipient details from all liver transplants liver only or combined with other organ kidney only or kidney combined with other organ LI_X_2 NOTR Liver Donor Extract This extract reports donor details from all liver transplants liver only or combined with other organ LI X_3 NOTR Liver Transplant Extract This extract reports transplant and initial follow up details from liver transplants liver only or combined with other organ LI X_4 NOTR Liver Follow Up Extract This extract reports follow up details from all liver transplants liver only or combined with other organ P_X_5 NOTR Pancreas Recipient Extract This extract reports recipient details from all pancreas transplants pancreas only or combined with other organ P_X_ 6 NOTR Pancreas Donor Extract This extract reports donor details from all pancreas transplants pancreas only or combined with other organ P_X_7 NOTR Pancreas Transplant Extract This extract reports transplant and initial follow up details from all pancreas transplants pancreas only or combined with other organ P_X_8 NOTR Pancreas Follow Up Extract Euro
161. erscore and you will get the names with the different possibilities for that position Transplant Date In the field Transplant date a date with the format lt dd mm yyyy gt must be entered for example 20 03 1946 20 of March 1946 Center codes You can only see the transplants of your own center unless your center has access to transplants of multiple centers For example BLMTP and BLETP Always enter the code that ends with TP like BLMTP When the screen opens it is already in query mode It is possible to search ona combination of all fields To make the selection as quick as possible enter enough information to identify a unique transplant Note The easiest way to retrieve a transplant is by entering only the full unique Transplant number When you are ready entering the search criteria you start the search by pressing the F9 key When more than one transplant matching the specification is found you are presented a list Eurotransplant from which you can select the correct one Execute F 9 Exit_Form Help Window 9 Select Transplant TXP DATE ORGAN 29 11 2001 H y 29 11 2001 i 123508 085160 103802 08 12 1989 i 123509 078977 162479 29 11 2001 123510 085174 160512 29 11 2001 j 123511 085162 128749 05 10 2001 i 123512 084375 123450 26 11 2001 123513 085122 162365 Lan AA ANNA Aias 4 aa on 1a AATA AN 4l Transplants will be displayed ordered by transplant number With the key down and key up buttons you
162. ete a row in screens like Antibody screening per recipient or Unacc Antigens This can not be done if the information is used for a match at Eurotransplant In that case a warning will appear Eurotransplant About the Clear row button This button empties the row you added The information entered disappears but the row still exists so different information can be entered About the Clear all button This button empties an entire screen so new information can be entered It does not delete information that has been saved For example if you are in the Donor registration screen of donor 1 via the button Clear all the fields become empty and a new donor can be entered About the Enter query and Execute query button the Enter query button empties a screen and turns the screen in a search mode After entry of search criteria the button Execute query completes the search and the requested recipient donor is shown If you are in a specific recipient for example and you want to enter information of a different recipient put your cursor in the header and click the enter query button Enter the search criteria of that recipient ET number and click Execute query The requested recipient appears Note this way of searching a recipient or donor is only possible in the recipient or donor screens and can only be used to request 1 specific recipient or donor About the Cancel query button This button cancels a query If you
163. ey only or kidney combined with other organ P_X_028 Tbase Pancreas Transplant Extract This extract reports all pancreas transplants pancreas only or pancreas combined with other organ All the reports use the same input parameters The parameters which should be entered are This is the indicator which separates the values in the rows Default is the separator Genter code XXT Start date of the period reported Format is dd mm yyyy End date of the period reported Format is dd mm yyyy Yes No For reasons of standardization the lay out of all transplant data sets is the same irrespective of the organ transplant requested This choice had to be made due to changes of the database structure over time and in order to allow the identification of multi organ transplants The description however is per organ extract 9 10 1 K_X_002 Kidney Transplant Extract This extract reports all kidney transplants kidney only or kidney combined with other organ Cotumnheader Explanation OO os Tate Date oftranspiantaton SSCS SC TENTER Transplant center frst S postions of ET centercode kem E registration number ofreden Rename l tnar OOO Remm Firstname ofreoipent O oO o o oo Sex of recipient F emale or M ale Eurotransplant Column header Explanation Notes Date of bih oi racipieni m R R abo gt Blood Blood group of recipient of Blood group of recipient R Ki PDC EDTA Primary ET kid
164. f Unaccept ab is i at time of transplant Current Pra of recipient Eurotransplant Column header less then or equal 125 No if length of Unacceptable ab greater then 125 in which the first 125 positions are reported Length in cm of recipient Weight in kg of recipient Asskltxp Indication whether when there was an associated kidney transplant SPKT combined pancreas and kidney transplant PAKT pancreas transplant after kidney transplant PTA pancreas only transplant Nr of pregnancies Number of pregnancies before transplantation nr of hospitalisation days Number of hospitalisation days before transplantation after date put nr of outrecipient visits Number of outrecipient visits before transplantation after date put on First initial immunosuppression code numeric code First initial immunosuppression text text translation of code Specification in case of first immunosuppression other Second initial immunosuppression code numeric code Second initial immunosuppression text text translation of code Specification in case of second immunosuppression other Third initial immunosuppression code numeric code Third initial immunosuppression text text translation of code Specification in case of third immunosuppression other Fourth initial immunosuppression code numeric code Fourth initial immunosuppression text text translation of code Specification in case of fourth immunosuppression other
165. f the participating centers will be icine reported If N only recipients of the own center will be reported The fourth and fifth parameter can be combined to show only HU pediatric recipients The header contains the center code and an indication whether the options Cluster list Children only and HU only are selected The body contains the recipient information in a one line format for the short and a two line format for the long report In the first line printed in long and short reports Center code Dob D mon O Eurotransplant Days on NT Days on status NT not transplantable Match Comment Match comment Second line only printed in the long report Cum specificities Cumulative antibody specificities Full match phenotype Full match phenotype The end of the report shows the total number of recipients on the waiting list of the specified center 9 1 5 Report HE_WL_164N Heart Waiting List National This report contains all recipients registered on the heart waiting list in your country a national heart waiting list using the same layout as for HE_WL_164C Data for non local recipients are anonymous Parameters for this report are Description Short or long list LOV L S Enter L or S to get a long or short report The description of the report body will show which items are included in each version Sort on Enter a number from 1 to 3 The following sorting orders will be
166. f the recipient at the time of transplant P N HBVDNA The viral HBV DNA status of the recipient at the time of transplant P N Bdelta The viral anti Delta status of the recipient at the time of transplant P N AntiHCV The viral anti HCV status of the recipient at the time of transplant P N Domino Indication whether the type of donor used for the transplant was a living unrelated domino donor Yes No Unknown Initial immune 5 code Fifth initial immunosuppression code numeric code Eurotransplant 9 12 4 LI X_4 NOTR Liver Follow Up Extract The data extract contains the following data items concerning the selected follow up events Column header Meaning OOOO ET registration number of recipient immun 4 ommen immun 5 code immun Sex immun 5 eam Reject Did the recipient receive rejection treatments during the last follow up IS_change Has the immunosuppressive regimen changed during the last follow Chreason Malignancies Valion 1 diagdate Valion T code Valion Text Maign 1 comment Valion 2 diagdate Valion 2 code Valion 2 text Malign 2 comment Creatinine conc Unit creatinine Nr of hospitalisaton days Nr of outrecipient visits Eurotransplant 9 12 5 P_X_5 NOTR Pancreas Recipient Extract The data extract contains the following data items concerning recipients in the selected transplants Column header Meaning Sex of recipient F emale or M ale Recipient speci
167. fication of the cause of death if the cause of death is Other 9 12 6 P_X_6 NOTR Pancreas Donor Extract The data extract contains the following data items concerning donors in the selected transplants cc Sex of donor F emale or M ale Eurotransplant D type text Type of donor text text translation of code D relation code Relation of donor to recipient code numeric code D relation text Relation of donor to recipient text text translation of code Cause of death text of donor text translation of code Specification of the cause of death if the cause of death is Other Cause of death code of donor numeric code ICD 10 9 12 7 P_X_7 NOTR Pancreas Transplant Extract The data extract contains the following data items concerning the selected transplants Columnheader Meaning Cid Specification of graft fail cause if the cause is Other The cold ischaemic period of the graft min This is the time between perfusion from donor and placement in recipient out of the ice First warm ischaemic period min Second warm ischaemic period min This is the time between placement in recipient out of the ice and recirculation iP Tre total senaemio period cod ard second warm ischaemic porodi i i Highest Pra percentage of recipient at time of transplant H Pra date Date of highest Pra of recipient at time of transplant Rb spec Indicator if Unaccept ab is complete Yes if length o
168. fields the minimum is 0 and maximum 999 HbsAg HbcAb HCVAb There are two possible entries Any and Neg Any means HbsAg or HbcAb or HCVAb positive and negative donors are accepted When entering Neg only HbsAg or HbcAb or HCVAb negative donors will be accepted Sepsis Donors with sepsis accepted Yes No Meningitis Donors with meningitis accepted Yes No Malignant Tumor Donors with a malignant tumor accepted Yes No Drug Abuse Donors with drug abuse accepted Yes No Domino Donor Domino donors accepted Yes No Rescue Allocation Rescue allocation accepted Yes No Once you entered or updated the information save the information via F10 or the disc button Eurotransplant 7 1 3 Liver The tab Liver contains the Liver Center Profile Kidney _ Pancreas Min Age fl Domino Donor Yes Rescue Allocation Yes X Max Age 100 Explanted Liver Yes p Marginal Donor Yes X HBsAg Sepsis Yes v if one or more of the following is met Feet IC with mechanical ventilation gt 7 days HBcAb Any X Meningitis Yes BMI gt 30 HCVAb Neg X Malignant Tumor Yes Steatotic liver gt 40 Biopsy proven Branca ves Serum Sodium gt 165 mmol l 2 veo SGPT ALAT gt 105 U I NHB SGOT ASAT gt 90 U l Serur Bilirubin 3 mg dl For all the items except age there is a small list of values available click the arrow next to the field The mandatory fields are red The following requirements can be entered
169. h start with the first three characters you gave in and end with any number of characters Ons will retrieve Buttons Brons and Filderons All last names which end with the three characters you gave in and start with any number of characters More specific is searching with underscores _ An underscore replaces one character If you are looking for names with a limited number of characters you can use underscores as wildcards Examples Jon__ will retrieve Jones and Jonda All last names with five characters beginning with Jon Jon_s if you do not know if it is spelled Jones or Jonas search with the underscore and you will get the names with the different possibilities for that position DATES In fields like Date of birth and Registration date a date with the format lt dd mm yyyy gt must be entered for example 20 03 1946 20 of March 1946 Center codes You can only see the recipients of your own center unless your center has authorization to see recipient of other centers For example BLMTP and BLETP There are two different kinds of centers e Registration centers where the code ends with TP like BLMTP e Contact centers where the code ends with an organ abbreviation like BLMKI BLMHE BLMPA BLMLI or BLMLU When the screen opens it is already in query mode All fields that can be queried are turned orange It is possible to search on a combination of all fie
170. he Current Specificities and the Cumulative Specificities These fields are not used in the ETKAS match When all information is entered go to the second tab page Antibodies 42 Eurotransplant ENIS system user manual Ya Antibody Screening per Recipient PEP POP COUT PSPV LO COLO UP LP AP LF CD PCP O P LOAD AP LO COLO UP ED a LV LD Ne COLD PEP EP AP A Oe LF OP N o e PS PAP ED ETNr Recipient Name Date of Bith ABO Rh Sex HE LU LIV PA KI Special Reg Ctr 279988 lo Psom Lab Results Antibodies Pee Specificities DTT nf E NotTested DTT Crossmatch lt Previous Next gt gt Screen Type is the antibody screening method that is used this is mandatory Select the method via the LOV arrow The list of values contains DTT Elisa CDC Other and Virtual PRA The field PRA is a numeric field enter the percentage of antibodies Note the percentage of antibodies can automatically change the urgency status if the recipient is registered on the kidney waiting list with urgency T or HI The field Auto can be filled to indicate whether a recipient has auto antibodies selection via the LOV Available are Positive Negative and Not Tested If Auto is Positive the following message appears Fi lf auto antibodies are Positive or Default Positive DTT crossmatch must be Yes Click OK an
171. henotype recorded gt The screen contains two tabs HLA Lab Results and Pheno Typing The second tab is not available when you open this screen for the first time HLA lab results On this tab page you will find a block with multiple records When earlier records exist the most recent one is shown on top Lab Type Match Center Ref DNA selection from LOV Match is used for the entry of HLA to be used in the match Center is used by the donor center in case of a re typing Ref is used by the reference laboratory in Leiden and DNA is used by the donor center to register DNA typing TT Lab The code of the Lab that determined the donor tissue typing selection from LOV Typing Material The material that was used for the HLA typing selection from LOV If Other is selected please specify the material in the Comments field Entry Date Date and time of entering the HLA typing automatically generated ABC Typing Date Date and time of ABC typing format dd mm yyyy hh mm DR DQ Typing Date Date and time of DR DQ typing format dd mm yyyy hh mm DNA Typing DNA typing selection from LOV Used for x match This field will be filled automatically after the matching has taken place A match can be made for domino donors cross over donors or altruistic donors The match is done by Eurotransplant Once you have filled out all necessary items you must save the information by F10 or the disk The tab Pheno Typing wi
172. i pd Primary ET kidney disease of recipient Code table 1A Ki Da A eee R Pa pd Primary ET pancreas disease of recipient Code table 2A Pa a ee R Li pd Primary ET liver disease of recipient Code table 3B Li pee e R He pd Primary ET heart disease of recipient Code table 4A He Di cc R Lu pd Primary ET lung disease of recipient Code table 5A Lu LKi seq Left Kidney transplant sequence number RKi seq Right Kidney transplant sequence number BIKi seq Kidney en block transplant sequence number Pa seq Pancreas transplant sequence number Wili seq Whole liver transplant sequence number LSpifL seq RSpliLsed Ee FALL seq ie a o a we Te Bo R Pheno TIK TRK TEK TPa TWiv TLSpmIN r i 2 TRSpIiLi TILS TERU z Tiv TRL THe T HeLu Transplant registration number Heart Lungs PO PO f j f x j j f j Eurotransplant Cells Transplanegiavaton rumbertetung id Tau Transplant egisvaton number Fight tung Teu Transplant regisaton number Boh ues __ Bron ET vegtraton number of donor J Donor type C adaveric or L iving Det Relation o donoro repen o b eismo id Dabo Blood group ofdonor Sex of donor F emale or M ale Bed Gause of death of donor Dweight Weight of donor Bren Height of donor Bahero Ful maich penoype of donor _ F Dae ast seen afer vanspiantafon i Harare dete otra id Pee Facause frat O ooo Ra f Death of d
173. ia Code Ma Enter the code of your own transplant program You can enter the code of your center of lab TP of TT or of a specific organ department KI LI HE LU PA You can also search on Name or city After you entered the search criteria click Select F9 It is not possible to enter other codes then your own The following screen will appear za Centers Code Type Member of Region Ea MAIN ADDRESS Name Address Postcode City Country Netherlands POSTAL ADDRESS Address Postcode O O _ eee MAIN CONTACT TXP CONTACT Name Faxnr Comment Debtor In this screen you can enter or update the information of your own transplant program e g address phone and fax number and contact person It is possible to do this per organ type transplant program by selecting the correct organ Place the cursor in the field Type and select the organ via F9 Eurotransplant ENIS system user manual The field Member of Region is for Dutch centers only After you entered or changed the data select F10 or select Save The information is saved into the ENIS database The buttons More and Person are for Eurotransplant use only 7 2 Registration and update Donor Center Profiles In the center profile screen the donor requirements for all organ matches can be entered and changed at any time All Profiles will be available as tab pages per organ Note When the requir
174. icon in the screen Note the information on this tab can be written in the language of the Donor center Some fields in the application used to report donors are in English and some in the language used in the Donor country 5 1 1 Advanced search donor In Donor reports is an option to search on Registration date If you select the Advanced search option the following screen opens Eurotransplant Advanced search Registration date From dd mm yyyy Until dd mm yyyy Donor Type All v Search Enter both dates format dd mm yyyy and select the type of donors you are searching for All Living Cadaveric After you entered the search criteria click Search The donors you re center is authorized to see in this period are displayed Advanced search Registration date From 01 02 2012 dd mm yyyy Until 01 02 2012 dd mm yyyy Donor Type All v Search 17 results Browse result pages 1 Donor No CtrCode Reg Date Date of Birth Sex Weight kg Height cm Type Actions 143159 GBvor 01 02 2012 21 04 1942 F 7s 165 Cadaveric view Download 1431 58 BLATP 01 02 2012 25 11 1976 M 64 165 Living View Download 1431 57 BBRTP 01 02 2012 05 09 1973 M 85 175 Cadaveric View Download 143156 NAWTP 01 02 2012 09 12 1940 F 69 167 Living View Download 143155 BLMTP i 01 02 2012 14 04 2010 F 10 82 Cadaveric View Down
175. ields The following requirements can be entered Min Age Max Age Minimum and maximum acceptable donor age Only whole numbers can be entered e Min TLC liter Max TLC liter Minimum and maximum acceptable donor TLC Total Lung Capacity Note there is a resctriction on min and max TLC for German recipients not below 10 and not more than 20 of the recipients TLC The restriction on max TLC disappears if the field Size reduction planned is set to Yes Min Height Male Female Donor cm Max Height Male Female Donor cm View only minimum and maximum acceptable donor height in centimeters for male and female donors This item can be entered in the specific heart donor profile if the recipient is also on the waiting list for a heart e Size Reduction planned Only available for German recipients This is a Yes No field Yes means that a size reduction of the accepted lungs is planned e HbsAg HbcAb HCVAb There are two possible entries Any and Neg selectable by the arrow Any means that positive and negative donors are accepted When entering Neg only negative donors will be accepted 62 Eurotransplant CMV This is a mandatory item automatically Any is filled in There are two possible entries Any and Neg selectable by the arrow Any means that positive and negative donors are accepted When entering Neg only negative donors will be accepted Sepsis Meningitis Malign Tumor D
176. ient Donor Prosiles ccccecccceeeseeeceseeeceeeseeseeaeeseeeeeees 150 Immunological repOrts 0 cceeee eee eee eee eee tees a neta teeta NDA 151 Recipient IMMUunological OVErViOW cccccccccccseseeseseseescssesessessssesscssssessesescesecsseseseeasaeatees 151 Report REP_032_F Antibody Screening per Center OV rViGW c cccccceceeecseeesees 152 Report K_AM_129 AM Program Waiting LISt cccecccceteeseeseereeeececeeeceseeseeseeseeeeeeeeeees 153 Report K_IM_102_R Antibody Screening per Center Work LiSt ccccccccceeceteeeees 154 Report R_IM_130 Transplantable Recipients with Outdated Screening 155 Report K_IM_241 Immunological Monitoring REPOFt ecscccceseeeeceeseteceeeceeeeeeneeseees 155 Report R_WL_137 Waiting List IMMIMUNOIOGICAL cccecceceeeeseeeenseeeeeeeseeaeeateeeeeeees 156 R_H_150 Screening HIStOY c ccececcsesseceseeeeseseseecesesesececseneesesesececaeeeeaeseececaeeeeaeeceeeeeateees 158 Donor FEPONES aerer erreen eeen EE EEA 158 Report D_244 Donor Report D_244 PB Donor report ccccceecceceeseeteeseeeeseeeeeneeeeees 158 Transplant reports enasna a ends E TE TANEN 159 Report K_T_115 _R Kidney Transplants with Missing Follow Up cceeeeeee 159 Report T_243 Transplant Repott s eeeeeeeeeneeeeeeseesesesseesessesesteresessssesesresesesssseseseeresese 160 Match reports issii sass ia ves ie sesh eae aAa ANNA EANAN EENAA AARNE E
177. ient ETnr ET registration number of recipient Registration Center Registration center of recipient OM Diabetes Metis eso om stn Dependant Dabetes Matus Yeso Smoking in packyears Nicotine packyears Unit of heart beat frequency minutes STAY Whereabout of recipient Home Intensive Care or Ward Eurotransplant Column header SHOCKS CUNT SODIUM CREAT Unit of creatinine concentration mg dl or umol l BILI Bilirubine concentration Brain Natriuretic Peptide NORADR Unit Unit of bilirubine concentration mg dl or umol l EJFRACLV Left ventricular ejection fraction Unit Unit of left ventricular ejection fraction percentage LVEDD Left Ventricular End Diastolic Diameter Unit of Left Ventricular End Diastolic Diameter mm LVESD Left Ventricular End Systolic Diameter Unit Unit of Left Ventricular End Systolic Diameter mm Fractional shortening Unit Unit of fractional shortening percentage iastoli 1 n gt LVEDP Unit Unit POWE Unit Unit of Central Venous Pressure mmHg or cm H20 CARDIX Cardiac Index Unit Unit of Cardiac Index I min m2 Sv Uni Unit Unit Unit of Noradrenalin pg ml PRA Panel Reactive Antibodies Unit of PRA percentage i ing Unit Unit of Brain Natriuretic Peptide pg ml gt O lt U D v lt D svoz Unit PAO Uni MAXOX Eurotransplant Unit of Maximum Oxygen uptake ml min Kg 9 12 NOTR Extracts Dutch cent
178. if the recipient is also on the waiting list for lungs HbsAg HocAb HCVAb There are two possible entries Any and Neg selectable by the arrow Any means that positive and negative donors are accepted When entering Neg only negative donors will be accepted e CMV This is a mandatory item automatically Any is filled in There are two possible entries Any and Neg selectable by the arrow Any means that positive and negative donors are accepted When entering Neg only negative donors will be accepted Sepsis Meningitis Malignant Tumor Drug Abuse Domino Donor Rescue Allocation These are a Yes No fields Yes means these donors are accepted No means they are not accepted for this recipient e Exclude Recipient from No Capacity This is a Yes No field Yes means that this recipient will appear on the ET match list if the center has no capacity No means that this recipient will not appear on the ET match list if the center has no capacity Listing Details This tab page shows the waiting list details Ta Recipient Waiting List Heart ETNr _ Recipient Name Date of Bith ABO Rh Sex HE LU LIV PA KI Special Reg Ctr _ General Donor Profile FSET POZIE Waiting Days Totaly Current HU bo TotalNT h Current U bo Cumulative Transplants pS Total He Date put on Waiting List ooo All Organs Date Last Re evaluation Date Next Reevaluation Print Letter Date Request Hospitalized
179. ile is accessible as a tab page via the organ screens All changes on the Urgency are monitored and stored in the database You can look at these changes on the screen Recipient Status and Events tab page Urgency Status Note only Eurotransplant has the authorization to register the next urgency codes and special statuses HU Heart Lung liver and kidney recipients e 1A HU only for Dutch heart recipients 1B HU only for Dutch heart recipients e SU Pancreas Vascularized international and IS national only not applicable for German recipients ACO approved by ET audit committee Please send the right application form to Eurotransplant to request for one of these urgency codes The forms can be downloaded from the Eurotransplant member site Go to Forms Here you can select the form needed for the urgency request the form can be printed and send to Eurotransplant Please note HU status for the thoracic organs both national and international HU must be requested via the Thoracic urgency request application This application is access able via the Eurotransplant member site 3 1 8 Kidney specific screen ra Recipient Waiting List Kidney an o pooh ITITI her General The Kidney organ screen contains five tab pages General Dialysis Data Donor Profile Listing Details and Special Listings Eurotransplant EI m user manual General The urgency code has
180. ion In the first line Column header Living only ET registration number of recipient Eurotransplant Column header C S Ba b ir OOOO Combination of organ requirements Cum Txp Previous kidney transplants this includes transplants combined with other organs Scrn Date Date of last antibody screening The date will be followed by an Waiting time Prev Previous waiting time Curr Current waiting time Match Total of previous and current waiting time At the bottom of the page the actual waiting time is explained Part In ETKAS ES D P Indication whether recipient is participating in the a ES D P program or the ETKAS program German recipients only Dialysis Ctr Dialysis center Unacc Antigens HLA unacceptable antigens In the second line Column header Mmp Brd Mismatch probability allocation factor calculated on HLA DR broad level Highest antibody percentage The end of the report shows the total number of recipients on the waiting list of the specified center and the number of active recipients urgency HU T or HI that have van outdated screening vy without date of first dialysis or technique not on dialysis v waiting since date out of waiting room 9 1 2 Report K_ WL_099A Kidney Waiting List HBsAg HCVAb This report contains all recipient registered on the kidney waiting list in your center incl the HBsAg and HCVAb status Parameters for this report are Description Cen
181. ion and update 3 1 Registration of a new recipient The registration of a recipient is done via a registration wizard This wizard will lead you step by step through the registration screens When the first screen is entered and the information is saved the registration wizard appears at the bottom of the screen with a Previous and a Next button Also is shown how many screens can be entered and what the next screen in the wizard is ee Previous fi of 5 Next Choose Organs Next gt The screens in the wizard are Choose Organs Waiting lists Medical Entry of HLA Antibody Screening per recipient Unacceptable Antigens only if Specificities are entered in the Antibody screen Organ screen s including recipient specific donor profile Heart Follow Up screen for heart recipients only Thoracic Urgency request application for Lung recipients only All screens can also be accessed via the individual submenus described in text with the individual screens For the description of the menu structure and submenus see 2 3 1 Menu structure ENIS 3 1 1 Recipient registration If you want to register a new recipient select New Recipient Registration Eurotransplant ENIS system user manual a Recipient Registration ETNr Recipient Name Date of Bith ABO Rh Sex HE LU LIY PA KI Special Reg Ctr Consent Authorization Recipient Data Reg Date x 4 it Tel Home Tel
182. ional This report contains all recipients registered on the liver waiting list in your country a national liver waiting list using the same layout as for LL WL_167C Data for non local recipients are anonymous Note Since implementation of MELD in the liver allocation on December 16 2006 the liver waiting list reports have changed their appearance The result is that they cannot be used or interpreted respectively as in the years before to determine the approximate time until transplantation The changes imply among others a Sorting Recipients are sorted on these reports according to their urgency o HU sorted by time in spent in HU longest waiting first o ACO _ sorted by time in spent in ACO longest waiting first o T sorted by MELD in descending order same MELD scores sorted by ET numbers in ascending order o NT sorted by MELD in descending order same MELD scores sorted by ET numbers in ascending order b Waiting time Date of registration total waiting time and next date of recertification or reconfirmation respectively is given The question where is my recipient now and when will he be transplanted can no longer be answered through these reports The reports are only a snapshot of the waiting list at the moment that they are generated But due to the MELD specific dynamics of the waiting list i e insertion of new MELD scores downgrades exceptions etc no prediction can be made with regard to the place of an
183. isease that caused the recipient to be registered on the waiting list for an organ When you enter an EDTA code the complementary ICD10 codes are listed in the LOV of that field The same applies the other way around when you choose an ICD10 code first the complementary EDTA codes are listed in the LOV For German recipients the ICD10 code is mandatory Other relevant diseases can also be entered The Date put on Waiting List is automatically filled with the date of registration on the waiting list This field is not updatable A Match Comment can be entered This comment appears on the Eurotransplant match list if the recipient is selected In this comment additional profile information or requests can be entered Note if additional profile items are entered this may result in the fact that your recipient will not receive an offer For example if you enter that you will only receive an offer from a donor with a max weight of 50kg and the donor is 60 kg your recipient will not receive an offer It is the responsibility of the center to check if the entered match comments are up to date After entering all information go to the next tab page Dialysis Data In this tab page the dialysis data can be entered Eurotransplant ENIS system user manual 2 Recipient Waiting List Kidney ETNr Recipient Name Date of Bith ABO Rh Sex HE LU LIV PA KI Special Reg Ctr 301719 o Pos DETE General Dialysis Data Donor P
184. ith coma E13 1 Other specified diabetes mellitus with ketoacidosis E13 2 Other specified diabetes mellitus with renal complications E13 3 Other specified diabetes mellitus with ophthalmic complications E13 4 Other specified diabetes mellitus with neurological complications E13 5 Other specified diabetes mellitus with peripheral circulatory complications E13 6 Other specified diabetes mellitus with other specified complications E13 7 Other specified diabetes mellitus with multiple complications E13 8 Other specified diabetes mellitus with unspecified complications E13 9 Other specified diabetes mellitus without complications E14 0 Unspecified diabetes mellitus with coma Eurotransplant E14 1 Unspecified diabetes mellitus with ketoacidosis E14 2 Unspecified diabetes mellitus with renal complications E14 3 Unspecified diabetes mellitus with ophthalmic complications E14 4 Unspecified diabetes mellitus with neurological complications E14 5 Unspecified diabetes mellitus with peripheral circulatory complications E14 6 Unspecified diabetes mellitus with other specified complications E14 7 Unspecified diabetes mellitus with multiple complications E14 8 Unspecified diabetes mellitus with unspecified complications E14 9 Unspecified diabetes mellitus without complications E15 Nondiabetic hypoglycaemic coma E16 0 Drug induced hypoglycaemia without coma E16 1 Other hypoglycaemia E16 2 Hypoglycaemia unspecified E16 3 Increased s
185. itis HCVAb Neg gt Y Malignancy Yes Y Drug Abuse Yes X Rescue Allocation Yes Domino Donor For all the items except age there is a small list of values available click the arrow next to the field The following requirements can be entered Min age Max age Minimum and maximum acceptable donor age Only whole numbers can be entered For both fields the minimum is 0 and maximum 999 HbsAg HCVAb HbocAb There are two possible entries Any Neg Any means HbsAg HbcAb or HCVAb positive and negative donors are accepted When entering Neg only HbsAg HbcAb or HCVAb negative donors will be accepted Sepsis Donors with sepsis accepted Yes No Meningitis Donors with meningitis accepted Yes No Malignancy Donors with a malignant tumor accepted Yes No Drug Abuse Donors with drug abuse accepted Yes No Domino Donor Domino donors accepted Yes No Rescue Allocation Rescue allocation accepted Yes No Once you entered or updated the information save the information via F10 or the disc button 7 3 Transplant Capacity Limitations If there is no capacity in your center to transplant an organ you must register this in the ENIS system so you will not receive any offers in that period The recipients for the organ you entered will be excluded from the match Go to Center Transplant Capacity Limitations The following screen appears Eurotransplant ENIS system user manual Transplant Center Nam
186. k and enter the correct ET number If this message appears the organ you selected does not have the Procured status in ENIS Check if you entered the correct donor number If the number is correct please contact Eurotransplant to check the information in the ENIS system It is possible the donor coordinator did not add the procured status in their system Eurotransplant will contact the coordinator or you can contact the coordinator with this request If this message appears Eurotransplant Organ has not been allocated the organ you selected is not correct or you entered the incorrect donor number Click Ok Please check if you selected the organ transplanted in your center for your recipient or entered the correct donor number If you entered the correct information please contact Eurotransplant to check the information in the ENIS system the donor number or ET number of the recipient might not be correct Click Ok Please check if you entered the correct number If you entered the correct data please contact Eurotransplant It is possible that not all information is in the ENIS system yet If this message appears FOMMS creer TTT Organ not free the organ you selected has already a Transplanted status Click Ok Please check if you selected the organ transplanted in your center for your recipient If you selected the right organ please contact Eurotransplant if
187. l Reg Ctr 279984 ENIS MANUAL for c11ge0 fo ros w NLBTP LabResults UOS Antigen Type Part of Broad Part of Split e A S E J E FJ T H ES G 2 aE MO S eee p rs EEE a as M o To a i O lt lt Previous 4 of 6 Next Antibody Screening Next gt gt You can enter Antigens by using F9 or the arrow or type them in directly It is also possible to fill in the first character e g A click Enter and the list of antigens will appear When you enter an allele or a split the corresponding split if applicable and broad on higher level is automatically selected shown on the right side of the inserted antigen and included in the HLA Note when you have chosen a Typing Technique for e g DQ and you go to the tab page Antigens you have to enter at least one DQ antigen If you realize at that moment that you made a mistake and don t want to insert any DQ antigens go back to the tab page Lab Results and empty the typing technique for the DQ antigens After you entered your set of antigens save via F10 or the disk The following message appears In order to make sure the antigens are typed in correctly you have to enter the same set of antigens for the second time and save When you save the second set the following message appears depending on the entered data When you do not want to save this set of antigens use the Cancel button This will bring
188. l lesion Minor glomerular abnormality NO6 1 Isolated proteinuria with specified morphological lesion Focal and segmental glomerular lesions N06 2 Isolated proteinuria with specified morphological lesion Diffuse membranous glomerulonephritis Eurotransplant N06 3 Isolated proteinuria with specified morphological lesion Diffuse mesangial proliferative glomerulonephritis NO6 4 Isolated proteinuria with specified morphological lesion Diffuse endocapillary proliferative glomerulonephritis NO6 5 Isolated proteinuria with specified morphological lesion Diffuse mesangiocapillary glomerulonephritis NO6 6 Isolated proteinuria with specified morphological lesion Dense deposit disease NO6 7 Isolated proteinuria with specified morphological lesion Diffuse crescentic glomerulonephritis N06 8 Isolated proteinuria with specified morphological lesion Other N06 9 Isolated proteinuria with specified morphological lesion Unspecified NO7 0 Hereditary nephropathy not elsewhere classified Minor glomerular abnormality NO7 1 Hereditary nephropathy not elsewhere classified Focal and segmental glomerular lesions NO7 2 Hereditary nephropathy not elsewhere classified Diffuse membranous glomerulonephritis NO7 3 Hereditary nephropathy not elsewhere classified Diffuse mesangial proliferative glomerulonephritis
189. l number of recipients on the waiting list of the specified center and the number of active recipients urgency HU T or HI that have van outdated screening vy without date of first dialysis or technique not on dialysis v waiting since date out of waiting room Eurotransplant 9 1 3 Report K_ WL_099B Kidney Waiting List Address This report contains all recipient registered on the kidney waiting list in your center incl the address data Parameters for this report are Center Code of the center for which the report must be printed The code must always end on TP Sort Enter a number from 1 to 2 The following sorting orders will be applied 1 Last name 2 Dialysis center and Last name Page break on dialysis Yes No If Y recipients are grouped by dialysis center If N all recipients will be reported by sorting order Cluster list Yes No If Y all recipients of the participating centers will be er reported If N only recipients of the own center will be reported Only living Yes No If Y only recipients awaiting a living transplantation will be selected If N all recipients will be selected The header contains the center code the dialysis center and an indication whether the option Clusterlist is selected The body contains the following recipient information In the first line Bob beomon SSCS Reduced match phenotype Reduced match phenotype A and
190. lds To make the selection as quick as possible enter enough information to identify a unique recipient BSN The BSN number search option is for Dutch centers only The BSN number can be used to search recipients Enter the complete BSN number If the number is not complete a wildcard can be entered All recipients of your center with the corresponding part of the Eurotransplant Note The easiest way to retrieve a recipient donor or transplant is by entering only the full unique identification number resp ET number Donor number or Transplant number BSN number will be shown When you have entered the search criteria you start the search by pressing the F8 key or clickingon Execute Query When more than one recipient matching the specification is found you are presented a list from which aui can select the correct one n Select Recipient Contact ETNr LastName First Name Date of Birth Reg Date Center A E ENIS 01 01 1980 10 07 2009 na PeR 281915 MANUAL ENIS 01 01 1971 28 07 2009 GHGTP GHGHE 281886 MANUAL ENIS 01 011980 10 07 2009 eLaTP BLAHE 281888 MANUAL ENIS 01 011980 10 07 2009 nietre nieki 281891 MANUAL TEST 01 1980 10 07 2009 Nete Neki 2 as ae es a ee ef Recipients will be displayed ordered by search criteria For example if you saach on ET Nr The recipients are ordered on ET number The first record is highlighted With the key do
191. lect No if the information needs to be corrected Click Next for the next screen in the wizard the HLA screen 3 1 4 Entering HLA typing This screen makes it possible to enter lab test data and the HLA antigens that were found Furthermore this screen is used for creation of a reduced match phenotype from the registered HLA antigens For all recipients on the kidney waiting list a Human Leukocyte Antigens HLA typing is required It is optional for recipients on other waiting lists If you don t want to enter an HLA typing you can use the Next button Note A recipient registered on the kidney waiting list stays in the waiting room and is not active on the kidney waiting list until a valid HLA typing is registered and the full and reduced match phenotypes have been deduced The screen contains two tab pages Lab Results and Antigens phenotyping in order to create a full match phenotype ETNr Recipient Name Date of Bith ABO Rh Sex HE LU LIV PA KI Special Reg Ctr 279984 Lab Results Entry ABC Typing DR Typing DQ Typing Used for Date Technique Technique Technique Phenotyping o A f j m 7 Comments ee n o O Create Match Phenotype Full Match a Phenotype Reduced Match Phenotype lt lt Previous f4 ed ntiboc i Next gt Eurotransplant The test data can be entered and the history is shown Three rows with entered test data are visible and the scroll
192. led after the donor center is entered The field can be changed 87 Explantation planned on Date and time the explantation of the organ is planned format lt dd mm yyyy hh mm gt BSN BSN number of donor for Dutch donors only Donor Hospital Name of the hospital where the donor is explanted Selection from LOV Alternatively free text can be entered Hospital Tel nr The telephone number of the donor hospital numeric format Contact person Name of the contact person in the donor hospital The red fields are mandatory If one of these fields is empty the information can not be saved and no donor number is generated After all these items have been entered save the donor by F10 or the Save button The following message box will appear FORMS creer eee eee ee ee eee ee eee x and saved FRM 40400 Transaction complete 1 records applied After Ok the donor will receive a donor number and the tab Reported organs becomes available Now register the organ that will be donated to the recipient see 4 2 Entry of donated organ for description Note Domino donors are registered by Eurotransplant only If there is a domino procedure in your center inform Eurotransplant and send the information The duty officers will register this domino donor and give you the ET donor number With this number you can register the transplantation Cadaveric donors are registered by Eurotransplant or the transplant coordinators via special pr
193. lick Submit The request is send to Eurotransplant You will receive a login code after 1 5 working days via e mail For further information or description see 2 1 1 How to request a pass word Question How can change my pass word after receiving one from ET Answer Go to the website of Eurotransplant htto www eurotransplant org 1 Click on Members A log in screen appears Enter the username and Pass word provided by the IT department Click on Login 2 On first login the change password screen will be opened 3 Enter the current password password provided by Eurotransplant IT department 4 Enter a new password you can make up a new pass word yourself minimal length 6 characters and two digits Example mypas34 5 Confirm your new password by entering it a second time Remember do not tell anyone your password Each 6 months you will be asked to change your password Instructions will appear automatically on screen Note This password can t be the same as the password you used earlier After 6 months of no activity your account will be disabled With your username you get access to the member site All requested applications are available via the member site For further information or description see 2 1 1 How to request a pass word Question What happens if you entered the wrong password five times Answer Your account will be locked In the login screen the next message will app
194. ligomeganephronic hypoplasia Congenital renal dysplasia with without urinary tract malformation 66 Syndrome of agenesis of abdominal muscles Prune Belly syndrome 70 Renal vascular disease Type unspecified Renal vascular disease due to malignant hypertension 2 Renal vascular disease due to hypertension i 5 Ischemic renal disease cholesterol embolism Bo Babess Type a S Goms OOOO 7 S Mysen desease Oerset me o poete Traumatic or Surgical loss of kidney 99 Other identified renal disorders Specify Code Table 1B Kidney Disease ICD10 Codes Code Description A18 1 Tuberculosis of genito urinary system C64 Malignant neoplasm of kidney except renal pelvis C65 Malignant neoplasm of renal pelvis C88 0 Malignant immunoproliferative diseases Waldenstroems macroglobulinaemia C90 0 Multiple myeloma and malignant plasma cell neoplasms Multiple myeloma Eurotransplant D41 0 Neoplasm of uncertain or unknown behaviour of urinary organs Kidney D41 1 Neoplasm of uncertain or unknown behaviour of urinary organs Renal pelvis D59 3 Acquired haemolytic anaemia Haemolytic uraemic syndrome D69 0 Purpura and other haemorrhagic conditions Allergic purpura D89 1 Other disorders involving the immune mechanism not elsewhere classified Cryoglobulinaemi
195. ll become available If you click on this tab a new screen will appear which is used for the entry of the donor HLA typing 90 Eurotransplant Pheno typing tab Registration Date DonorNr Identity Donor Type Center ABO Rhe Date of Birth Sex 01 03 2011 13 42 137391 ENIS MANUAL Living NeRTP o Pos l or o1 1981 Eos Pheno Typing a Type Partof Public Antigen Type Partof Public A 01 01 Allele EW J 1 aron 02 Allele Jk z E y 1 ao XX Allele v at 7 fe 5 A a2 Broad v i wW To A 02 02 Allele A2 wo J To ar02 03 Allele a2 wo S Too ar02 05 Allele a2 E T a02 06 Allele v a2 wW J To aro2 07 i Allele v a2 BE J7 1 a020 Allele r a2 O E AS mT e0211 Allele v a2 fe i jarozt7 aee A E HLA can be entered directly through typing in the Antigens column on the right side of the screen Another way is to scroll through the list of Antigens on the left and select the one needed With the gt button you can move this antigen to the list on the right side Repeat this for all antigens in your set The lt lt button will remove all antigens in the list on the right while the lt button will only remove the selected antigen from the right list When a split antigen or an allele DNA is entered the system will automatically select the corresponding broad and split antigen Publics still have to be entered manually HLA type entry advanced sear
196. ll information is saved 32 Eurotransplant ENIS system user manual FRM 40400 Transaction complete 1 records applied and saved Select OK Now the registration wizard appears at the bottom of the screen By using the Next button the screen appears where the organ s has have to be chosen Note It is possible that a recipient with the same last name first letter of first name sex and date of birth already exists in ENIS The following message appears A recipient with the same last name first letter of first F name sex and date of birth already exists with ET Nr i 279979 Do you want to continue to save this recipient In this case please select No and contact Eurotransplant They can check the data in ENIS to verify that not the same recipient is registered twice in ENIS 3 1 2 Choose organ s Waiting lists This screen is used to register the recipient on the waiting lists for the individual organs 33 Eurotransplant ENIS system user manual ETNr Recipient Name Date of Bith ABO Rh Sex HE LU LIV PA KI Special Reg Ctr broaedj fw Waiting lists Choose Organ s Kidney Pancreas Heart Lung s Liver lt Previous Next gt gt Select the organ by checking the box in front of it You can select multiple organs at the same time if the recipient needs a combined transplantation When the recipient is only awaiting an intestine transplantation no organ must to be
197. load 1431 54 GHOTP 01 02 2012 I 12 11 1946 F 61 8 168 Living View Download 143153 GBMTP 01 02 2012 27 01 1952 F 80 167 Living View Download 143152 GFRTP 01 02 2012 02 11 1953 M 70 192 Living View Download 143151 NLBTP 01 02 2012 23 09 1962 F 70 168 Living View Download 143149 GHGTP 01 02 2012 06 05 1958 F 73 169 Living View Download 1431 50 GHATP 01 02 2012 07 02 1959 M f 70 176 Living View Download 143148 NRDTP 01 02 2012 01 07 1946 F 70 165 Living View Download Via the option View you can see the donor information Via the option Download you can download the information 5 2 Requesting donor information via ENIS If you want to retrieve the donor information of a donor via ENIS go to the Eurotransplant member site and log in in our ENIS system In ENIS there are two possibilities to request donor information request information from a current offer Donors offered or request Eurotransplant ENIS system user manual information of a donor from which an organ was transplanted in your center Donors used If you wish to see the donor information of a donor at the moment of an offer go to Recipient Donor Information Donors offered The following screen opens Offered Etnr Recipient Donor Organ Organ detail Decision 89 ENIS Right_Kidney Accepted Regular Allocation gt Donor report
198. lowing recipient information Column heading Description ET Nr ET registration number Name Last name Item Type of information entered Old value Information entered prior to update New value New entered information Entry date Date of entry new information Changed by Username of person who entered the information 9 2 5 R_H_153 Primary Disease Code History This report generates an overview of registrations concerning the primary disease code for a single recipient or all recipients in your center during the given time of period Parameters for this report are Center Code of the center for which the report must be printed The code cal must always end on TP ET Nr Possibility to run the report for a single recipient Leave blank all EN ee KI HE LI LU PA or ALL Eurotransplant Center Code of the center for which the report must be printed The code must always end on TP ET Nr Possibility to run the report for a single recipient Leave blank all recipients are selected KI HE LI LU PA or ALL Start date of report dd mm yyyy End date of report dd mm yyyy Page break on ET Nr Yes No If Y recipients are grouped by ET Nr If N all recipients will be reported by sorting order The header contains the period selected the selected organ and the center code The body contains the following recipient information Column headi
199. me mandatory e g ET code 1204 Cardiac Eurotransplant ENIS system user manual cancer specify For the German recipients it is mandatory to enter the ICD10 code A Match Comment can be entered This comment appears on the Eurotransplant match list if the recipient is selected In this comment additional profile information or requests can be entered Note if additional profile items are entered this may result in the fact that your recipient will not receive an offer For example if you entered that you will only receive an offer from a donor with a max weight of 50kg and the donor is 60kg your recipient will not receive an offer It is the responsibility of the center to check if the entered match comments are up to date The Date put on Waiting List will default to today and cannot be changed by remote users The fields Foreign HU Approval and Approved Combined Organs ACO are fields that only can be entered by Eurotransplant If a recipient is accepted for international HU or is approved for an ACO status the field will be put on Yes To request these statuses use the required forms and send them to Eurotransplant After entering all information go to the next tab page Donor Profile On this tab page the recipient specific heart donor profile can be entered g Recipient Waiting List Heart ETNr Recipient Name Date of Bith ABO Rh Sex HE LU LIV PA KI Special Reg Ctr 2891
200. n New on the site Teele gt ENIS Remote ae tead more gt Kidney Screening gt The monthly Statistics of gt MELD November are online Task Li December 07 2011 i 2 Re Statistics New Eurotransplant Ethical Charter a Thorac Uroency Request gt The monthly balances of The Board has adopted the ET Ethical Charter that reflects Eurotransplant s Registry October are online key ethical principles The Ethical Charter offers transparency on the gt HeartFollowUp November 15 2011 principles that guide Eurotransplant s practices and makes Eurotransplant gt KidneyFollowUp Statistics accountable for it gt LiverFollowUp gt The monthly Stavistics of gt LiverFollowUp Pilot October are online ay read more 3 Py hk ees gt Registry November 10 2011 f Statistics s n gt SurvivalCurves Eurotransplant Liver Registry delayed f of TOA E Due to organizational problems the Liver Registry Project will not meet the Lipid Oktober 5 2011 Library 9 a PTA gt Overview gt Issue 221 of the deadline of October 13 2011 The implementation of the application and the training for users will be postponed until December 2011 Eurotransplant newsletter is dnline ER read more Because of the different environments see 1 1 the Eurotransplant information system you will find multiple links to ENIS in the list of applications The production environment of the ENIS system is placed under Applications The test and education environments
201. n Key wn San To the recipient has been as T on the waiting list Total T Total number of days the recipient has been on the waiting list as active official waiting time used in the ET heart allocation nie Current NT If NT urgency code number of contiguous days the recipient is on the NT status Current PRA screening H Highest PRA screening Eurotransplant Column header Explanation Match comment Match comment committee Yes No Empt RP Female Donor Min Minimum acceptable height for female donor Recipient profile O RP Female Donor Max Maximum acceptable height for female donor Recipient profile ho ee RP Male Donor Min Minimum acceptable height for male donor Recipient profile heft ee height RP Donor Sepsis Donor with sepsis accepted Yes No Recipient profile RP Donor Meningitis Donor with meningitis accepted Yes No Recipient profile RP Donor Malignant Donor with malignant tumor accepted Yes No Recipient profile Tumor RP Donor Drug abuse Donor with drug abuse accepted Yes No Recipient profile RP Donor Domino donor Domino donor accepted Yes No Recipient profile RP Donor rescue Rescue allocation accepted Yes No Recipient profile tucson RN eapon aoe RP Exclude Recipient Exclude Recipient from No Capacity Yes No Recipient profile mmng ee Eurotransplant 9 8 4 P_X_011 Pancreas Waiting List Extract The pancreas waiting list extract reports all recipients who are
202. n are not available select the checkbox N A A Comment can be entered for each row of results Note If the recipient needs to be Recertified you must use the MELD application on the ET member site Reconfirmation is not possible in the ENIS screens After entering all information go to the next tab page Donor Profile a Recipient Waiting List Liver ETNr Recipient Name Date of Birth ABO Rh Sex HE LU LIV PA KI Special Reg Ctr 289180 General MELD VOW u Listing Details Min Age In Domino Donor gt f Rescue Allocation i Max Age Explanted Liver Marginal Donor HBsAg Split liver HBcAb 5 us Yes l 1 HCVAb a ves 7 LL Yes Euthanasia lt jli Yes 7 Donor Sepsis v NHB Donor Re Meningitis Malignant Tumor MIM ENE Drug Abuse Max Weight Exclude Recipient No From No Capacity On this tab page the recipient specific liver donor profile can be entered The red fields are mandatory In case the not mandatory items are not entered the computer will use the Center Donor Profile for matching The recipient specific profile has always priority over the center specific profile Next to the items you can fill out you see the center profile in view only fields The following requirements can be entered Min Age Max Age Minimum and maximum acceptable donor age Only whole numbers can be entere
203. ncerning the selected follow up events ET registration number of recipient ET registration number of transplant Date of transplant Follow up frequency M3 3 month Y1 year 1 Yn E end ollow up date date seen Transplant center Follow up center Height of recipient in cm Weight of recipient in kg Secundary enteric drainage Yes No Unknown Dateconv In case of conversion to enteric drainage the date on which the oo conversion was performed Convtechn In case of conversion to enteric drainage the technique used for the drainage Code Duct management only enteric drainage with or without Roux en Y Glucose The concentration of fasting serum glucose of the recipient if The unit in which the glucose concentration is expressed mmol l or mg dl The percentage of glycosylated serum hemoglobin of the recipient Rebalbiop Was a renal biopsy taken Yes No Unknown Nephropat Diabetic nephropathy documented by renal biopsy Yes No Othrendiag Diagnosis of other renal diagnosis in case of a renal biopsy and no es a diabetic nephropathy Reject Did the recipient receive rejection treatments during the last follow up ice period Yes No Unknown Rejectnr Number of rejection treatments the recipient received during the last First inmunosuppression code numeric code First inmunosuppression text text translation of code Specification in case of immunosuppression other Second immunosuppression code numeric co
204. ney disease code of recipient Code table 1 Ki rane A R Pa pd Primary pancreas disease of recipient Code table 2 Pa poe eet Fired Primary ver disease of eopiant Cade abe 3 iD Fred Primary heart disease of recipient Code table 4 He Disease Rua Priman ung dseae of reopen Code abe 5 Lu Disease Left Kidney transplant sequence number P17 Right Kidney transplant sequence number Kidney en block transplant sequence number Pancreas transplant sequence number Whole liver transplant sequence number Left liver split transplant sequence number Rsli seq Right liver split transplant sequence number Heart transplant sequence number Heart Lungs transplant sequence number Left lung transplant sequence number Right lung transplant sequence number F Fui phenoiype Full phenoiype of recipient al anigens HN rik Taeplantrestaton number et karey J Transplant registration number Right kidney 2 Tea ranspani regan numborParreas wiv Transplant egisvaton number Whoever J ely Transplant reisvaion number Leh verapi Ta Transplant egisaton number Fight ver spit He Transplant region number Heat J Fe Transplant reisvaion number Henn Pitty Transplant registration number Leng J Fau Transp reisvaion number Fight ung o Bl Transplant registration umber Bath ungs J Breon E region rareori J Donor type Cladaveric or r L iving f o Be Reaion of donortoreaivent Da meoo o Bao eor e Oooo OOo Sex
205. ng Description ET Nr ET registration number Name Last name Item Type of information entered Old value Information entered prior to update New value New entered information Entry date Date of entry new information Changed by Username of person who entered the information 9 3 Recipient profiles reports 9 3 1 Report K_P_231 Kidney Recipient Donor Profiles The recipient specific kidney profile report prints all recipients that have a recipient specific profile So not identical to the center specific profile and or unacceptable antigens The default center specific kidney donor profile is also shown on the report Parameters for this report are Center s Code of the center for which the report must be printed The code must always end on TP To simply list all centers under your authorization enter ALL The recipients are grouped by center Sorting order Enter a number from 1 to 2 The following sorting orders will be applied 1 ET registration number 2 Name Only recipients on waiting Yes No If Y only recipients with urgency HU HI T and NT will be listed If N also recipients with urgency R D and FU will be included Children only Yes No If Y only recipients younger than 15 years will be reported The header contains the center code and an indication whether the options Only recipients on kidney waiting list or Children only are selected The body contai
206. nor organ Donor Kidney Donor HLA Donor Pancreas Donor Liver Donor clinical results Donor Heart Donor report Donor Lungs Donor Kidneys report Donor Liver Pancreas report Donor Thorax report HLA Registration HLA Overview TXP Center Reports Help Window New Center Submit Jobs List of values Cascade Update Donor profiles Thorax Monitor Jobs Window help Tile horizontally Immuno Other organs Keyboard help Tile vertically Suppression Display error Organ Information About HLA Heart follow up 2 3 2 Buttons and Function keys Buttons found under the menu on top of the forms The next list shows which buttons play an important role wher work in an ENIS screen H Fal Save Clear all Exit form Enter query Editor l Execute query Insert row Cancel query m Delete row Next row 4 Clear row X Previous row t About the Save button This button can be used to save changes About the Exit form button This button can be used to exit a screen If changes were made to the information the application will ask if the information has to be saved About the Editor button A free text box may contain more characters then you can see on your screen By clicking on the Editor Button the complete text will be shown in a separate text box About the Insert row button This button is used to insert a row in screens like Antibody screening per recipient or Unacc Antigens About the Delete row button This button is used to del
207. ns the following information Column heading Description ET Nr ET registration number Eurotransplant Name Last name Dob Date of birth Center and recipient profile Name item Description Min age Minimum age of donor Max age Maximum age of donor En bloc En bloc kidneys accepted lt 5 years Yes No Non H B Non heart beating donor accepted Yes No HBs Ag HBs Ag accepted Any Neg HBc Ab HBc Ab accepted Any Neg HCV Ab HCV Ab accepted Any Neg ESP ESP kidneys accepted Yes No Sepsis Sepsis accepted Yes No Mng Meningitis accepted Yes No Malig tumor Malignant tumor accepted Yes No Drug abuse Drug abuse accepted Yes No Domino donor Domino donor accepted Yes No Rescue allocation Rescue allocation accepted Yes No Euthanasia Donor Euthanasia Donor accepted Yes No Accepted broad HLA mismatch Number of accepted HLA A B DR mismatches 9 3 2 Report P_P_238 Pancreas Recipient Donor Profiles The recipient specific pancreas profile report provides a list of all recipients who are present on the pancreas transplant waiting list and who have a recipient specific pancreas donor profile which deviates from the default center specific pancreas donor profile The default center specific pancreas donor profile is also shown on the report Parameters for the report are Center s Code of the center for which
208. nt Extract Kidney Transplant Extract K_X_008 Kidney Waiting List Extract v ALL for all centers Ce E Sorting order 1 ETNR 2 Name L Only patients on waiting list YIN chien on eee The parameters must be selected in the fields under Values If there is a list of values to choose from for that parameter the arrow button behind the Parameter values field is enabled If not you can type in a value To start the report or extract click Submit Job A message will be shown incl the selected report and the job number For example this is the message for the K_P_231 Kidney recipient Donor profile report Job for K_P_231 has number 319995 This job number can be used to find your report in the next screen Monitor jobs Click Ok 8 3 Status of your reports After you requested a report or extract the screen Monitor Jobs offers the possibility to see the progress of the report or extract Via this screen the report or extract can be printed or saved Go to Reports Monitor Jobs Eurotransplant ENIS system user manual Ia Job Monitor ee e e ere ee e ee e e e e e e e e e e e eE e E r re e eee E rrr e E e e ee e eese Name Description Status AM Program Waiting List RUNNING 4 gt Parameters Name Value ANTIGEN p_antigen 1 All CENTER_CODE p_center_code ALL ORDER_ p_order 1 ET Nr REPORT_BY p_report_by
209. nt if registered otherwise current age A header with the basic data of the donor incl donor number and center is shown Under the header the information of the recipient is shown What information is shown depends on the donor center and your center If a recipient from your own center received an offer or accepted an organ all information of this reipients and spare recipients if present is shown If your center is part of a cluster recipients in cooperation centers are also shown in this tab if they received an offer The donor center will not see all the information just rank organ and status Next to ET number name and registration center is the rank on the match list and the offered organ For more detailed information of the recipient like age waiting time and primary disease 3 reports are available via this tab Recipient report Waiting list overview and Immunological overview These reports give all information registered in ENIS for detailed description of the reports see Chapter 9 Overview of available Reports and extracts Status shows the status of the recipient if the organ is offered accepted or confirmed transplanted TXP details gives details concerning the transplantation if the recipient was transplanted The information of donor and recipient is available via one website Even if you re not in the hospital but you have access to Internet all information needed is available The tab NHBD contain
210. o Uno Auto_anti Did the recipient have auto antibodies against lymphocytes Pos Oe egin ne MOSM Sean mone Mech_device Did the recipient receive any mechanical device immediately post ae operative Yes No Unknown Is the recipient lost to follow up Yes No Unknown Lastseen The date on which the recipient was last seen known to be alive in Soo case of lost to follow up Aircomp Has the recipient suffered from airway complications lung ae transplants only Yes No Unknown Eurotransplant Colummheader Weaning i Initial immun 4 comment Specification in case of fourth immunosuppression other Initial immun 5 code Fifth initial immunosuppression code numeric code Initial immun 4 code Fourth initial immunosuppression code numeric code F Initial immun 5 text Fifth initial immunosuppression text text translation of code i i i Initial immun 3 comment Specification in case of third immunosuppression other Initial immun 4 text ourth initial immunosuppression text text translation of code Initial immun 5 comment Specification in case of fifth immunosuppression other Blindtrial Did the recipient participate in a blind trial for immunosuppression Yes No Unknown IStrial If the blind trial was stopped which immunosuppressive drug was given 9 12 12 HL_X_12 NOTR Thoracic Follow Up Extract The data extract contains the following data items concerning the selected follow up events
211. o Donor Center This report shows the selected recipients per organ match for a specific donor including the factors which determine the recipient s position on the allocation list It shows the decisions of the centers to provide an overview of the allocation sequence This is a basic report Eurotransplant organ specific information will be added in time Parameter for this report is Name Parameter Start date of Tapori Include all recipients until 15 default rank The header of this report shows the donor number donor center code and some basic information of the selected donor age ABO sex weight height and registration date The body contains the following recipient information Column heading Description F emale or M ale Urgency of recipient Decision Decision code of allocation and reason 9 7 3 Report HL_M_280 Thoracic Match Post Allocation to Transplant Center This report contains information on the allocation procedures during a specified period including the factors which determine the recipient s position on the allocation list The report is under construction and not available at the moment 9 7 4 Report K_M_224 Kidney Match Post Allocation to Transplant Center This report contains information on the allocation procedures during a specified period including the factors which determine the recipient s position on the allocation list Parameter for this report are
212. o start Or you can search for a specific report Press F7 Start Search or the button The available reports now disappear and the columns Name and Description turn orange indicating that you can search in both fields The fastest way to search is enter the entire identification code then click F8 or the Execute button The requested report extract appears If you don t know the code you can use the character as a wildcard to search for reports If you would like to find all Kidney reports and extracts type K Name Description Now click on F8 or the B button to find the reports you are looking for All reports and extracts starting with the letter K will appear You can scroll through the list Select the wanted reports or extract Underneath the list with reports you will find a list with parameters These are a number of specifications for the requested report or extract For example if you request a recipient report you have to enter the ET recipient number Depending on the report selected this list will change Each report requires different parameters Next screen is an example for a recipient report Eurotransplant escriptio Kidney Recipient Donor Profiles Ae Kidney Transplants with Missing Follow Up K_VWYL_0994 Kidney waiting List HBsAg HCVAb K_WWL_099B KWLO099B Kidney Waiting List Address Waiting List Address J K_WL_099_R n List K_X_002 Kidney Transpla
213. ode Table 7 IMMUNO SUPPFeSSION e cece eee eee tenet ne ees 241 Code Table 8 Organ detail COdES iicccc cece rennet 241 Eurotransplant Foreword The Eurotransplant ENIS system is subject to continuous development and improvements This guide provides all the necessary information to work with ENIS In several releases during a year ENIS is remodeled and updated to serve each country and its legislation around organ donation Off course this guide will be updated with each release when necessary The information contained in this User Guide is provided in good faith However Eurotransplant does not warrant the accuracy of that information and does not accept any liability for loss damage or injury resulting from its use or from omissions from this manual Please take note of the following Any change in the configuration of your personal computer system may jeopardize the functionality of the communications with the ENIS system We advise you to consult our computer staff beforehand As with any computer system problems may occur and usually do so unexpectedly We advise you to frequently make back up copies of your data Our computer staff will be happy to advise you copyright August 2009 Eurotransplant International Foundation All correspondence should be addressed to Eurotransplant International Foundation P O Box 2304 2301 CH Leiden The Netherlands Phone 31 71 5795700 Fax 31 71
214. of an intestine reCiDICN ccccsceeceseeeeseseeseseseeescsescceseseeeceeeceaeseeeescaeneeeeatees 73 3 2 Other ScreeNS wiceiccsistoacetdswacvdsieniwiedaviinbieresaneiaewsdsaudvaadeedaivuanimrnaa esas 74 3 2 1 Antibody Screening per Centert cccccccecccccsseseescsseseescssesesecssssesecsessesecsessesecsssseeecseeseaecsesaeaeees 74 3 2 2 Acceptable ANIG ONS 0 cccceceecceseesceseescesecssessenseescusecsesaecasesesasesaesseeseaecssesecssesseeaeeaeeaeesesaesneeeee 78 3 2 3 STATUS ANA Events sec sics te scadeteecasncseecie aussi su ches E EnaA EEES EE A SEE EEEE E EAE EE ES 81 3 4 Update registration of recipient cecee cece eee eee e eee eee eee tenets 82 3 4 1 FRe registration of a FOCIDICIIE cecccsccesceceesceseeseeseeseesecseesecuceecesaeesessecaesscceseesseaeeaenaeeaeerenees 82 3 4 2 Change Of urgency of FECIDICNE c ccccccccsesessesseseesesseseescsssesecsssesecsessesecseeseecsesseesesesseeeenee 84 3 4 3 Register CECCASEA ee ceeeecceseesceseeseeseescesecssessensesscssecseesecseesecueeeaessecsensecseeseesseesceaeeaeeaesnesereness 84 Eurotransplant 7 3 4 4 View or update Unacceptable Antigens ccccccccccccccsseesceeesceseeseeseeaeesecacenseeseeaesaeeneeneentes 85 3 4 5 View or update HLA InfOri mation ccccecceceecceseescesecseeseesseececeeeesaeeseesecaeesecsseesceaeeaeeaeeneeeeeaaes 85 3 4 6 View or update Antibody screening cecccccescesceseessesecssessceseeseceeseesecaeeseca
215. of the ischemic periods can be entered The site of implantation can be entered using a LOV selection via F9 You can also select the AM protocol box if the recipient was transplanted via the AM protocol The other boxes are not available anymore In the second part Follow up details you can enter the creatinine levels Start by entering the date dd mm yyyy then enter the numeric value Select the Unit via the LOV selection via F9 Save all information via F10 or the Save button Pancreas This is the screen for the pancreas Eurotransplant zg PANCREAS PANCREAS 188382 Pancreas NLBTP 12 06 2009 Last seen date SPECIFIC TRANSPLANT INFORMATION Immediate performance of pancreas Pancreatic duct drainage enous drainage Comments Cold ischaemic period hours fa minutes Warm ischaemic period 2 Center Date Glucose Units Insuline Units a ag ia Ba In this screen the ET number and transplanted organ of the selected recipient is shown in the header as well as the registration center and transplant date The screen is divided in two parts Specific transplant information and Follow up details Enter the performance direct after transplantation selection via F9 in the first part Specific transplant information After that information concerning the drainage and the duration of the ischemic periods can be entered In the second part Follow up details you can enter the glucose
216. ofile in view only fields The recipient specific profile has always priority over the center specific profile When there is no data filled out the computer will use the center donor profile for matching The following requirements can be entered e Min Age Max Age Minimum and maximum acceptable donor age Only whole numbers can be entered e HbsAg HbcAb HCVAb There are two possible entries Any and Neg selectable by the arrow Any means that positive and negative donors are accepted When entering Neg only negative donors will be accepted Euthanasia donor This is a Yes No field Yes means euthanasia donors are accepted No means they are not accepted for this recipient NHB Donor This is a Yes No field Yes means non heart beating donors are accepted No means they are not accepted for this recipient Sepsis Meningitis Malignant Tumor Drug Abuse Domino Donor Rescue Allocation These are a Yes No fields Yes means these donors are accepted No means they are not accepted for this recipient e Exclude Recipient from No Capacity This is a Yes No field Yes means that this recipient will appear on the ET match list if the center has no capacity No means that this recipient will not appear on the ET match list if the center has no capacity Te Eurotransplant ENIS system user manual Listing Details TAIRECiPianiuvalungeioh tallerecl smc rcocyCeercr
217. ograms 4 2 Entry of the donated organ The next step before a living transplant can be registered is the entry of the donated organ To do this go to the tab Reported Organs Reported Organs tab Eurotransplant za Donor Registration 01 03 2011 13 42 is7aai Living vjere o Pos Jjo1o11981 a0 fm ro firs 1s Living donor z Living donor bad Living donor x In this screen all organs are set default to Reported No with the reason Living donor Enter Yes for the donated organ If the relation between donor and recipient was not in the list of the field Relation to recipient enter the relation in the Other Comments field After this save the information by F10 or the disk After the information is saved the procured status is automatically entered in the ENIS system This makes registration of the transplantation possible 4 3 HLA entry If you want to enter the HLA typing of the living donor select the donor and go to Donor Donor HLA HLA Registration The following screen opens Eurotransplant ENIS system user manual Registration Date DonorNr Identity Donor Type Center ABO Rhe Date of Bith Sex Wt Ht le Nerte fao Pos 1 M vfo fizi 01 03 20 Typing DR DA DNA Used for Material Date Date Typing Date Typing match ABC Typing ee 03 2011 13 43 m E E T E fz f E E 7 Full Pheno Type PARRA p
218. on t change this at time of registration of the transplantation should be registered it was a partial transplant Save the information via F10 or the disk Now the transplantation can be registered For description see 6 1 3 Registration of a transplant after living donation Note By entering Hepatectomy at for the liver it is possible to register the transplantation even if the donor was registered after the transplant At time of registration of the transplantation this is the time the system sees as actual explantation time and not the procured time that was created when the donated organ was selected 93 Eurotransplant 5 Requesting donor recipient information Since most donors are reported electronically to Eurotransplant by the coordinators there is a new way to receive the donor information All donor information available to the Eurotransplant Duty officers is directly available for the centers receiving an offer In stead of receiving the reports by fax all information is available via the internet on secured pages This means that as soon as new values or the anatomy is available this can be requested directly So no more unreadable faxes and no more delay During the allocation process recipient centers can see the Donor Organ or HLA report when an organ is offered to one of their own recipients As soon as the Eurotransplant allocation office has given the recipient an Offered code the donor information c
219. on resident recipient will be selected N all recipients will be selected Yes No If Y only recipients registered for family txp will be reported If N all recipients will be reported The report has a page break per organ The body contains the following recipient information Column heading Description ET Nr ET registration number Name Last name Sex Sex Male female Dob Date of birth Postcode Postal code of recipient Country Country of recipient Center Center code ABO Blood group Reg date Registration date Dowl Date on the waiting list Organ s Organ requirement and organ combinations Prev Txp Number of transplantations Res Resident Yes No Fam Family transplant Yes No PDC Primary disease code ET or Primary disease code ICD 10 Reduced match Reduced match phenotype phenotype 9 2 3 R_H_151 Dialysis Data History This report generates an overview of registrations concerning the dialysis data for a single recipient or all recipients in your center during the given time of period Parameters for this report are Name Parameter Center Code of the center for which the report must be printed The code Osta tonto ne PIES TE 90 ET Nr Possibility to run the report for a single recipient Leave blank all a iepemsare seaga o S SOS OWON Veee Man al Start date of report dd mm yyyy End date of report dd mm yyyy Page break on ET Nr Yes No If
220. on the pancreas waiting list This report also includes the recipients awaiting a pancreas kidney transplant Last name of recipient Sex of recipient F emale or M ale Be omen SSS County o i i tr x e County Total liver transplants registered in ENIS for this recipient Total heart transplants registered in ENIS for this recipient HeLu txps Total combined heart lung transplants registered in ENIS for this recipient Total number of days the recipient has been T on the waiting list Scr Invalid Is the last screening date within valid range of extract date i e 152 days Current PRA screening Highest PRA screening AB Full_ Phenotype DR Ful Phenotype Eurotransplant Column header Explanation PA PDC ET Primary disease code ET for pancreas Code table 2A Pa disease Description Description of Primary Disease Code PA PDC ICD10 Primary disease code ICD 10 for pancreas Code table 2B Pa disease Description Description of Primary Disease Code HBs Ag HBs Ag status of recipient Pos Neg NT HBs Ab HBs Ab status of recipient Pos Neg NT HB immunization Yes No HCV Ab HCV Ab status of recipient Pos Neg NT Post code ci Telephone home Telephone oiher Local hospital number Other relevant diseases No of pa txp in other Number of pancreas transplantations in other center center Transplant type The type of transplant the recipient needs Islets IS or whole pancreas PA Donor Win age Dono
221. one of the following prompts appears ra Antibody Screening per Center Center Organ Sorted By Antibodies Status Make a new selection or use existing selection Sample Date x New Selection Entry Date Screen Type X Make Selection Selection does not exist You can make a new selection When the second prompt appears click OK When the first prompt appears choose New Selection if you want to make a new selection or choose Existing Selection if you want to use a selection that already exists If you choose to make a New Selection the following message appears 74 Eurotransplant ENIS system user manual Delete current selection wey Total recipients 14 i Total processed 0 Still to process 0 Still empty 14 In this message the status of the recipients is shown Choose Yes if you want to delete the current selection and choose No if you don t want to delete the current selection The screen contains three tab pages Selection Antibodies and Status On the top of the screen the Center Organ and Sort order Sorted By of the selection made in the tab page Selection are shown Center Organ Sorted By Sample Date Enty Date 10 07 2009 14 55 ETNI een T Screen Type X Make Selection In this screen a selection can be made of recipients per center and organ for whom antibody screenings have to be determined and entered Fo
222. onic viral hepatitis B without delta agent K74 B18 2 Fibrosis and cirrhosis of the liver Chronic viral hepatitis C K74 B18 8 Fibrosis and cirrhosis of the liver Other chronic viral hepatitis K71 7 Toxic liver disease with fibrosis and cirrhosis of liver K74 6 Other and unspecified cirrhosis of liver C22 0 M8170 3 Liver cell carcinoma Hepatocellular carcinoma NOS C22 0 C22 0 M8171 3 Liver cell carcinoma Hepatocellular carcinoma fibrolamellar C22 0 C22 1 M8162 3 Intrahepatic bile duct carcinoma Klatskin s tumour C22 1 C22 0 M8180 3 Liver cell carcinoma Combined hepatocellular carcinoma and cholangiocarcinoma C22 0 C22 2 M8970 3 Hepatoblastoma Hepatoblastoma C22 0 C22 7 M9133 3 Other specified carcinomas of liver Epithelioid haemangioendothelioma malignant C22 3 M9120 3 Angiosarcoma of liver Haemangiosarcoma C78 7 E34 0 Secondary malignant neoplasm of liver Carcinoid syndrome C78 7 Secondary malignant neoplasm of liver C78 7 C18 9 Secondary malignant neoplasm of liver Colon unspecified C78 7 C26 0 Secondary malignant neoplasm of liver Intestinal tract part unspecified C78 7 C80 Secondary malignant neoplasm of liver Malignant neoplasm without specification of site C22 7 Other specified carcinomas of liver E83 0 Disorders of copper metabolism E83 1 Disorders of iron metabolism E88 0
223. ou can click the Follow Up button to enter more heart post transplant follow up in the separate database See for instructions the Web Follow Up Manual 6 1 6 HLA The option HLA in the TXP menu navigates to the HLA registration screen of the recipient for description see 3 1 2 Entering HLA typing 6 2 Updating transplant records 6 2 1 Update transplant information The transplant registration screen can be updated with the date last seen or data concerning failure of the organ This must be done before the recipient can be placed back on the waiting list If you want to update the data select the transplantation and go to TXP Update ETL Eurotransplant 7a Update Transplantation Module TXP_78_2 e r e r ee oe oot 188383 Right Kidney NLBTP 12 06 2009 Date last seen Save Transplant Registration Center INLET Pitas Transplant number 188383 Transplant at Center Date of Transplant 12 06 2009 gt Time of Transplant Organ Transplanted Right_Kidney gt Waiting since 01 01 2005 Urgency at Transplant T Transplantable allo PRA 0 5 Transpl Destination L Organ Transported by Plane Recipient number 281322 Name MANUAL ENIS Donor number 127300 Donor registration center NLBTP Follow up Center NLBTP gt Date of failure Cause of failure Date of explantation on failure Ar S Date of death Cause of death C Out of analysis Date last seen You can enter if the organ was tr
224. own per recipient 20 02 2008 19 35 41 NY Antibody Screening per Center Overview Database betai For center NRDTP Sorted by ET nr Page Break No Processed by JVANDERDEIS Show all recipients Organ Kidney Nr P ET Nr Recipient Dial ABO Urg Entry Lab Sample Specificities Name Center Date Date z N 003894 PUIMKWUE DD A NT 20 02 08 NRDIT 20 02 2008 0 Pos 2 N 005789 ITPEVIM RC o f 20 02 08 NRDIT 20 02 2008 T 3 N 005790 TRUOFULV DD O T 20 02 08 NRDIT 20 02 2006 NT 4 N 007004 G EH P RC O I 20 02 08 NRDIT 20 02 2008 NT 5 N 012966 LEYI PI vv B NT 20 02 09 NRDIT 20 02 2008 NT N 015963 HEILUE LEHILOE RF O NT 20 02 08 NRDIT 20 02 2008 NT You can exit ENIS at any time and start the same selection at any time Note we recommend processing data already entered before leaving ENIS Remember if you change or remove the old selection it cannot be used again 3 2 2 Acceptable antigens There is a screen for the registration of acceptable antigens for a recipient The acceptable antigens are only entered for recipients on the kidney waiting list who participate in the AM program of the Eurotransplant Reference Laboratory ETRL Eurotransplant ENIS system user manual To enter the acceptable antigens select Recipient Immunological Results Acceptable Antigens Only the Eurotransplant Reference Laboratory ETRL is allowed to enter information in this screen For the other users this screen is view only ETNr Recipien
225. parameters which should be entered are Name Parameter Description Default is the separator Center in format XXXTP Start date of the period reported Format is dd mm yyyy End date of the period reported Format is dd mm yyyy For reasons of standardization the lay out of all transplant data sets is the same irrespective of the organ transplant requested This choice had to be made due to changes of the database structure over time and in order to allow the identification of multi organ transplants However the extracts are described per organ and per extract 9 12 1 LI X_1 NOTR Liver Recipient Extract The data extract contains the following data items concerning recipients in the selected transplants Column header ET registration number of recipient Lasi rame of espe Eurotransplant First name of recipient Country of recipient from address text translation of code Date of birth of recipient Sex of recipient F emale or M ale Specification of the cause of death if the cause of death is Other 9 12 2 LI_X_2 NOTR Liver Donor Extract The data extract contains the following data items concerning donors in the selected transplants Stun ee Sex of donor F emale or M ale Specification of the cause of death if the cause of death is Other Eurotransplant D cod code ICD Cause of death code of donor numeric code ICD10 9 12 3 LI X_3NOTR Liver Transplant Extract Th
226. pathy Hydronephrosis with ureteral stricture not elsewhere classified N13 2 Obstructive and reflux uropathy Hydronephrosis with renal and ureteral calculous obstruction N13 3 Obstructive and reflux uropathy Other and unspecified hydronephrosis N13 4 Obstructive and reflux uropathy Hydroureter N13 5 Obstructive and reflux uropathy Kinking and stricture of ureter without hydronephrosis Eurotransplant N13 6 Obstructive and reflux uropathy Pyonephrosis N13 7 Obstructive and reflux uropathy Vesicoureteral reflux associated uropathy N13 8 Obstructive and reflux uropathy Other obstructive and reflux uropathy N13 9 Obstructive and reflux uropathy unspecified N14 0 Drug and heavy metal induced tubulo interstitial and tubular conditions Analgesic nephropathy N14 1 Drug and heavy metal induced tubulo interstitial and tubular conditions Nephropathy induced by other drugs medicaments and biological substances N14 2 Drug and heavy metal induced tubulo interstitial and tubular conditions Nephropathy induced by unspecified drug medicament or biological substance N14 3 Drug and heavy metal induced tubulo interstitial and tubular conditions Nephropathy induced by heavy metals N14 4 Drug and heavy metal induced tubulo interstitial and tubular conditions Toxic nephropathy not elsewh
227. pient D DNA S serum HLAtype_2 The sort of typing that is used for the HLA class II typing of the e recipient D DNA S serum EBV serology of the recipient Pos Neg NT Evaluation The general evaluation of the recipient as transplantation candidate G M P good moderate poor Hospital Place where the recipient stayed H IAWW Home Intensive care Ward IV_inotr Did the recipient receive IV inotropes before transplantation Yes No ICD Did the recipient have an ICD before the transplant heart transplants ee only Yes No Unknown Did the recipient have IABP before transplantation Yes No VAD Did the recipient have a VAD before transplantation Yes No a Fe Ventilat Was the recipient on ventilator support before transplantation Yes No Unknown The forced expiratory volume in one second lung transplants only Prev_HE_surg Did the recipient undergo previous open heart surgery Yes No Unknown Diabet Did the recipient suffer from diabetes mellitus type or II at the time of Pe renspinnen ver No Untown on TeS Bidtransf Did the recipient receive any previous blood transfusions Yes No EL thio Ne Seb enson ee Dialysis Was the recipient dialysis dependent at the time of transplantation es ver NovUneon en Level of serum creatinine of the recipient at the time of transplant Unit Creatinine Unit of the creatinine value Was bone marrow administered as part of the initial PN Fnmuresopessve teamen Yer N
228. pient Name Organis Dat otarh ABO Rh Sex Reg Center 281642 ENIS MANUAL KI 01 01 1560 A Pos M NLBTP Kidney Waiting List Urgency History last 10 updates Entry Oste Urgency Reason Comment om Urgency 22 06 2008 Tx Primary Disease Code Oste Coce Description Comment an PDC EDTA 22 05 2008 10 Glomeruiomepniitis histologically not examined Ico 10 Dialysis Center Current Date Reyrstitution 01 01 1999 Technique HD Heemodisiyss Center Center Tel Nr Adress Ciy Physician Country Physician TeL Nr Recipient Donor Profile Mn Mer Enbicc Malignant Orug Domino Rescue Age Age e lt Syr NHE HBsAg HBcAb HCVAb Sepsis Meningitis Tumor Abuse Donor Alocation HLA mismatches A O 12012012012012 0120120142 12 s o 0041141100022241 10002224141141222 ox 9 0000011100044423 232111222222 Acc x Mam o 12 412341423234234234345 345456 Other Uvieg No Walting Days Previous o Date put on Waiting List 22 05 2009 Current 3825 Date cut of Waiting Room 22 05 2003 Match 2225 Cumulate Transplants Ko o All o Match Comment Center Comment The report van be printed or saved as PDF file For description see chapter 8 Reports 9 2 2 Report R_226 New and Re registrations on the Waiting List This report generates an overview of all new registered recipients during the given time of Eurotransplant period in your center Parameters for this report are Name Parameter Organs From date To date Non residents only Living only Yes No Y only n
229. please click on the Thoracic Urgency Request button below If you choose not to enter a LAS request please click on the Finish or Exit button Thoracic Urgency Request Exit Select the button Thoracic Urgency Request if you want to request a new LAS score Select Exit if you don t want to enter a new request immediately For more information concerning LAS scores and requests see the section Projects amp Themes on the ET member site or the Thoracic Urgency request manual under the section Library Check other screens to see if the information is up to date weight height HLA antibody screening donor profile etc in case of re registration If a Dutch recipient is re registered the ENIS system checks if the BSN number is 83 Eurotransplant registered If there is no BSN number or reason why this number is not registered this number must be entered first before the recipient can be placed back on the waiting list 3 4 2 Change of urgency of recipient In case of an urgency change you will have the possibility to enter a comment e g infection or holiday of recipient On certain urgency changes like NT and R it is mandatory to fill in the reason for this urgency change The urgency of a heart recipient or heart lung recipient will be automatically changed to HU if the recipient is lt 16 years of age at time of registration or re registration after TXP and after change of urgenc
230. please specify here Your supervisor name e mail Applications Do you also want access to ENIS yes no www donordata eu yes no MELD yes no centercode department hospital telephone mobile fax e mail address Eurotransplant After entering the information select Submit The request is send to the Eurotransplant IT department If the request is valid the IT department will provide the username and a password The system will ask you the first time you logon to create a new password with a minimum length of 6 characters and at least two digits For example et2tx4 With your username you will get access to the member site where you can find all the applications you are entitled to use Each 6 months you will be asked to change your password To protect the privacy of your recipients and of the donors we cannot stress enough to be careful with your username and password Note after 6 months of no activity your account will be disabled and 3 months later the disabled accounts will be removed If you have a pass word for ENIS and you need a pass word for another application you can request access following the same steps 2 2 Howto connect to the ENIS system Go to the website of Eurotransplant www eurotransplant org Click on the Members link You will now be routed to the screen where username and password must be entered Ente
231. plications E10 7 Insulin dependent diabetes mellitus with multiple complications E10 7 Insulin dependent diabetes mellitus with multiple complications E10 7 Insulin dependent diabetes mellitus with multiple complications E10 7 Insulin dependent diabetes mellitus with multiple complications E10 8 Insulin dependent diabetes mellitus with unspecified complications E10 8 Insulin dependent diabetes mellitus with unspecified complications E10 8 Insulin dependent diabetes mellitus with unspecified complications E10 9 Insulin dependent diabetes mellitus without complications E10 9 Insulin dependent diabetes mellitus without complications E10 9 Insulin dependent diabetes mellitus without complications E12 0 Malnutrition related diabetes mellitus with coma E12 1 Malnutrition related diabetes mellitus with ketoacidosis E12 2 Malnutrition related diabetes mellitus with renal complications E12 3 Malnutrition related diabetes mellitus with ophthalmic complications E12 4 Malnutrition related diabetes mellitus with neurological complications E12 5 Malnutrition related diabetes mellitus with peripheral circulatory complications E12 6 Malnutrition related diabetes mellitus with other specified complications E12 7 Malnutrition related diabetes mellitus with multiple complications E12 8 Malnutrition related diabetes mellitus with unspecified complications E12 9 Malnutrition related diabetes mellitus without complications E13 0 Other specified diabetes mellitus w
232. port shows all missing transplant follow up information over a specific period Parameters for this report are Description LOV TP ctr transplant center or FUP ctr follow up center Code of the center for which the report must be printed or ALL only with authorization The code must always end on TP Date of today dd mm yyyy Start date Start date of report End date End date of report The header contains the period selected and the center code Column heading Description Etnr ET registration number Date of birth Date of birth Eurotransplant F emale or Male WiP2IAnas Immunosuppressive Short codes shown at bottom of report therapy 9 6 2 Report T_243 Transplant Report This report shows all transplantations of your own center over a specific period Parameters for this report are Start date of reponi End date of repor Center s Code of the center for which the report must be printed The code must always end on TP AIIV KI PA HE LU LI Donortype Cadaver or L iving or ALL The header contains the selected organ and the selected period Column heading Description Ret Recipient registration center Date of txp Transplantation date Be oen Heartbeating or NHBD cat relationship of donor and recipient Type In case of Cadaveric donors HB Heartbeating or Non HB non heartbeating Relationship In case of a living donor relationship of donor and recipient
233. ports Match Window Help Under each of the items shown in the main menu a submenu is hidden By selecting the item a submenu rolls down Where the titles in the submenu have a little black triangle behind them there is another submenu available Eurotransplant The following scheme shows the ordering of the menu and submenu s Action Edit Menu Cut Save Copy Print Paste Exit form Editor Exit ENIS Insert row Delete row Clear Duplicate Find o Go To Recipient Recipient registration Medical Organ New Recipient registration Clear field Clear row Clear block Clear all Field Row Find Enter query Execute query Cancel query Show last criteria Count matching rows Next field Next row Next block Previous field Previous row Previous block Kidney Immunological results Pancreas Status and Events Recipient Deceased Recipient report Pre waiting list Donor information Questionnaires Questionnaire report Missing heart waiting list follow up dates Liver Heart Lung Waiting list overview Select Recipient Donor Transplant Center HLA Antibody screening Unacceptable antigens Acceptable antigens Immunological overview Register per recipient Register per center Recipients with outdated screening Donors Offered Donors used Dutch centers only Eurotransplant Donor Donor registration Do
234. pression text text translation of code ill 2 p e y ry 5 a Q i y ee QD gt ee ee 2 a lee 2 Eurotransplant Column header Weaning Specification in case of third immunosuppression other Fourth immunosuppression code numeric code Immun 4 text Fourth immunosuppression text text translation of code Specification in case of fourth immunosuppression other Fifth inmunosuppression code numeric code Specification in case of fifth immunosuppression other Nr of hospitalisation days Number of hospitalisation days in follow up period Reji_dd Date of first rejection in follow up period Biop_dd1 Date of first biopsy in follow up period Smoking during follow up period Yes No Unknown Cardiac Vasc Event Yes No Unknown Hv_klachtl Cardiac Vasc Complaints Yes No Unknown RRoffice_systolic Blood pressure systolic office measurement RRoffice_diastolic Blood pressure diastolic office measurement Rrdyna_systolic RR Dynamap Systolic blood pressure systolic dynamap Bemesees easement Rrdyna_diastolic RR Dynamap diastolic blood pressure diastolic dynamap Reese nessient PO S Antihyp Antihypertensive medication during the last year before a transplantation Yes No Unknown Specification of antihypertensive medication 1 text translation of code Immun 5 text Fifth immunosuppression text text translation of code i Nr of outrecipient visits Number of outrecipi
235. r Max age Donor HBsAg Donor HBCAb Donor HOVAb CMV IgG CMV IgG status of recipient Pos Neg NT Match comment Any Relevant Comment for the match which cannot be entered on the recipient specific pancreas donor profile Address Address of recipient Donor Sepsis Donor with meningitis accepted Yes No Recipient profile Donor Meningitis Donor with malignant tumor accepted Yes No Recipient profile D Donor Drug abuse Domino donor accepted Yes No Recipient profile Donor Domino donor Rescue allocation accepted Yes No Recipient profile D CP Min Age Minimum acceptable donor age Center profile CP Max Age GP HBsAg CP HBcAb OP HOVAb CP Sepsis Donor with sepsis accepted Yes No Center profile OP Meningitis OP Malignant Tumor Donor Rescue Allocation onor with meningitis accepted Yes No Recipient profile Donor NHB Donor Donor Euthanasia Donor from No Capacity Donor Malignant Tumor onor with drug abuse accepted Yes No Recipient profile Eurotransplant Column header Explanation explanation CP Drug abuse CP Domino donor CP Rescue Alocation CP NHB Donor CP Euthanasia Donor C Peplide Unit 9 8 5 LU_X_012 Lung Waiting List Extract The lung waiting list extract reports all recipients who are on the lung waiting list This report also includes the recipients awaiting a heart lung transplant First name of recipient Sex of recipient F emale or M ale Dob Date orbit otrecivent oooO Current
236. r RF the part of the screen named Insurance Holder becomes available and has to be entered Contact Insurance Consent Authorization Insurance Type pf a 7 i Company Name Insurance Code 4j Address Insurance Nr Postcode e City Insurance Holder fl Next gt If you want to search an Insurance Code use the arrow behind the field The following pop up is shown 7X Address Postcode v Ea Ex The pop up opens in search mode All the fields can be used for searching There are several ways to search the insurance code you need E g fill out City and use F8 all the insurance codes in the city are shown Search again if necessary with F7 If you only know a partial item e g the first two numbers of the Insurance Code type the numbers in with e g 12 en use F8 Now all the insurance codes starting with these two numbers are shown If you have found the correct insurance code select the line by clicking it with the cursor and click OK You will return automatically to the insurance screen and the insurance code is entered If you want to return without selecting an insurance code click Cancel Enter all information and go to the third tab page Consent amp Authorization al Eurotransplant ENIS system user manual Contact Insurance Beis nee E ti Patient Name Date of Birth The undersigned formally
237. r each recipient laboratory test data antibody screening percentages and specificities are registered Center Lab and Organ are mandatory fields for which an LOV is available F9 or arrow Lab is the antibody screening laboratory and default filled with the laboratory for which you are authorized When you are authorized for more than one center it is not filled automatically Organ is automatically filled with KI Sample Date is the date the test sample was collected When this date is entered this date will be updated in all recipient records but is changeable per recipient in the tab page Antibodies 73 Eurotransplant The Entry Date is default filled with the current date and time and cannot be changed Screen Type is the antibody screening method that has been used An LOV is available with the following values DTT Elisa CDC Other and Virtual PRA Sort By is a mandatory field and is automatically filled with ET Nr With the LOV you can choose the sorting order you want By clicking the button Make Selection or Change Selection if you chose to use an existing selection the system navigates to the Antibodies tab page to show the first recipient record of your selection Antibodies In this tab page the recipients of the existing selection are shown one recipient at a time For each recipient the antibody screening data can be entered The fields Center Organ and Sorted By on top of the screen are now fille
238. r the username and password provided by the Eurotransplant IT department Click Login Users with rights to enter the ENIS system will see a number of applications on the right side Eurotransplant J EUROTRANSPLANT Member Site Home Applications Library Renate Taalman Logout Change password Statistics Board amp Committees Projects amp Themes Public site Sitemap Address book Search Q News Helpdesk Latest News Alert gt ETRL forms f you dial our regular phone number and there ts no reply please call 31 6 452 63 788 Applications Eurotransplant s new After November 1 phone number The new phone number comes with a new telephone system that for Eurotransplant Dial 31 71 5795 700 gt Allocation Log gt Donor Media Files E Aeman E ai sie improves the accessibility of for Eurotransplant s duty desk Donordata November 25 201 Eurotransplant Dial 31 71 5795888 2 2 gt Eurotransplant starts ENIS preliminary cooperation with gt ENIS Lab Hungary gt ENIS Remote November 8 2011 Intern i i Eurotransplant E gt Eurotransplant Liver Registry Winter aek 2012 January 25 27 ERTE user workshops g Alpbach Austria gt jus en October 28 2011 i ing 5 ctober The Eurotransplant Winter Meeting T Kanie handbok ty an excellent opportunity to meet colleagues and discuss the latest Recipient developments in the field of organ gt ENIS transplantatio
239. ransplant i e more than one organ from the same donor during the same transplant procedure then the corresponding columns will contain a transplant registration nr 9 10 6 K_X_026 Tbase Kidney Transplant Extract This extract reports all kidney transplants kidney only or kidney combined with other organ R Pa pd Primary ET pancreas disease of recipient Code table 2B Pa Disease Donor type C adaveric or L iving Ra Deano ofresient OOS Number of mismatches of B antigens Eurotransplant Number of mismatches of DR antigens 9 10 7 P_X_028 Tbase Pancreas Transplant Extract This extract reports all pancreas transplants pancreas only or pancreas combined with other organ Column header Tale T CENTER Reetnr Rename Rsurnm R sex Sex of recipient F emale or M ale R dob Frabo RKipd R Pa pd Primary ET pancreas disease of recipient Code table 2A Pa Disease R Pheno TIK TRK TEK TPa Dreg nr Dype Del D abo Dh D sex Sex of donor F emale or M ale Drood Daweh D height D pheno Tid Tic Fedo Reweight Feheight Turg ai 9 10 8 T_X_024 Transplants with Insurance Data Extract This extract generates a data set which contains information on all transplants performed in the requesting center during the given time period including the insurance data of the Eurotransplant transplanted recipients The parameters which should be entered are Description Default is ALL which means all
240. rder Enter a number from 1 to 2 The following sorting orders will be applied 1 ET Nr 2 Last Name Maximum rank position to Highest ranking number selected in the report report Recipient s must Yes No If Y only recipients currently on the waiting list will be currently be on the wl reported If N all recipients will be reported LOV ALL POS NEG all results only negative only positive results LOV ALL POS NEG all results only negative only positive results The header contains the center code and the period for which the report is selected The body contains the recipient information and the match results with one or several donors The recipient information contains Column heading Description ET Nr ET registration number Name Last name Sex Male or female DOB Date of birth Full Phenotype Recipient full HLA typing Unacc Antigens per Date of entry and unacc Antigens The match results contains Column heading Description Match date Date of match results Donor ET registration number of donor Detr Donor center ABO Blood group of donor M Type Type of match recipient appeared on Rank Rank position on match list PRA Latest antibody percentage Auto Auto antibody testing DTT DTT cross match needed Yes No Serum date Date of cross match serum in donor center Res Result of first cross match in donor center Ctr Tissue Typing
241. rds If you don t have a password to access our system you can retrieve a password by registering as a member Go to the Eurotransplant website http Awww eurotransplant org and select Members or go to the Donor data website www donordata eu A screen appears where a password and username must be entered Enter your username and password to logon Username Password Case sensitive Forgot password New users can apply for an account at e Eurotransplant e BIS Foundation e Nederlandse Transplantatie Stichtin If you want to request a password select Eurotransplant at the bottom of this screen A registration form will appear where you can register as a member In this form next to the basic information such as name center and function you have to mark the applications you need to gain access to The name of your supervisor has to be entered as a reference This must be done to prevent that everyone will get access to our ENIS system If you are not registered as a member yet you can apply to get a membership account This account is available for affiliates of the Eurotransplant International Foundation e g o Transplant physicians surgeons o Transplant coordinators o Committee members o Immunologists back To apply fill in the following information Please complete the entire form fields labeled red are essential first name last name function if other
242. re entered in the tab page Unacceptable Antigens The checkbox Match Occurred will be checked if the result set is used in an ETKAS ESP or Cross over match The Comments field can be uses for any comment 45 Eurotransplant ENIS system user manual z3 Recipient Unacceptable Antigens 281915 MANUAL ENIS 00r ja fos jr Joor Lal Unacceptable Antigens UT When an earlier entered result set exists this will automatically be copied in a new set for you to edit If not the fields are empty for you to enter the first set You can use the arrow F9 or type in the antigens directly It is not possible to enter an antigen which is also in the recipient s Acceptable Antigens The following message will appear Forms Note it is not possible to enter an antigen which is also in the recipient s full match phenotype The following message will appear 46 Eurotransplant ENIS system user manual a Business Rule Violations Message Code gt ET 71106 Itis not allowed to enter an unacceptable antigen that is Ss already in the recipient s full match phenotype RUH_IERO05A 4 gt 4 gt 4 gt Click OK and the entered antigen can be changed Click Print if you want to print this message It is possible to enter a split able broad HLA antigen but you cannot enter a split able broad antigen and one of the splits simultaneously The follo
243. re information concerning this bonus For details see ET Manual chapter 04 ETKAS 52 Eurotransplant ENIS system user manual za Recipient Waiting List Kidney GEM ens ano oronsae0 fo osm fuse Listing Details ESTAS The fields Recipient proven to be in maturation Maturation Confirmed on and Valid until can only be entered by Eurotransplant These fields offer the possibility go give the recipient an extended pediatric status For details see ET Manual chapter 04 ETKAS In the section Minimum Creatinine clearance for Kidney after Liver the sample date and value of the Creatinine clearance can be entered These fields are only available if the recipient is eligible for the Kidney after Liver transplant bonus 53 Eurotransplant The field Participating in is for the German recipients as of the age of 64 years and older Participating in 4 Meaning en gt fein oK cancer In this field can be entered whether the recipient wants to participates in the ETKAS or in the ES D P match In case ETKAS is chosen the recipient will be excluded out for the ES D P match and vice versa For German recipients as of the age of 65 years it is mandatory to enter this tab page If no selection was made the recipient will automatically participate only in the ETKAS match This field has no effect for recipients under 65 years and non German recipients and can remain empty When this
244. reign HU Approval and Approved Combined Organs ACO are fields that only can be entered by Eurotransplant If a combined heart lung recipient is accepted for international HU or a LU recipient is approved for an ACO status the field will be put on Yes To request these statuses use the required forms or and send them to Eurotransplant Eurotransplant or send the request via the Thosracic urgency request application After entering all information go to the next tab page Donor Profile ENIS system user manual Date of Bith ABO Rh Sex HE LU LIV PA KI Special Reg Ctr ETNr Recipient Name 399983 General Donor Profile Listing details Min Age Max Age Min TLC liten Max TLC liter Min Height Fernale Donor cm Max Height Female Donor cm Min Height Male Donor cm Max Height Male Donor cm Size Reduction Planned HBsAg m Sepsis HBcAb v Meningitis HCVAb Malign Tumor CMY any Drug Abuse Domino Donor Rescue Alloc NHB Donor Euthanasia Exclude Recipient From No Capacity No Thoracic Urgency Request On this tab page the recipient specific lung donor profile can be entered The red fields are mandatory In case the not mandatory items are not entered the computer will use the Center Donor Profile for matching The recipient specific profile has always priority over the center specific profile Next to the items you can fill out you see the center profile in view only f
245. reservation Liver Anatomy Liver Quality Liver Heparin volume U Heparin at Cold perfusion start Perfusion solution Perfusion volume ml WIP 1 min 92 Eurotransplant ENIS system user manual Registration Date DonorNr Identity Donor Type Center ABO Rhe Date of Birth Sex vt HE 11 02 2010 14 37 131 NLeTe If 80 M ro Preservation Liver Quality Liver vena cava oy lliac veins enclosed Normal arterial anatomy Sup mesenteric artery T lliac veins length Gallbladder flushed E Aorticpatch gt Weighttotal liver 9 Bile duct flushed r J Portal veins length Weight right split g Hepatic dut tC Cholecystectomy Weight left split 9 Coeliac axis lliac arteries enclosed Hemostasis Hepatic artery j lliac arteries length Arteriosclerosis Morpholog variations Comments 7a Donor Register AEE ELLE EADIE ELLIE EDAD EEE EEL LEELA EEE EEL LEELA E EEE LLL Ea PE Registration Date DonorNr Identity Donor Type Center ABO Rhe Date ofBirth Sex Wt Ht 03 06 2009 09 55 M NLeTP 2 Pos lfo mM io Preservation Liver Anatomy Liver Perfusion quality Hepatectomy at Split start time Split end time Reason not used Quality of liver Procurement center Surgeon Enter the information concerning anatomy and explantation There is one mandatory field in the tab Anatomy liver Liver Type This field is automatically filled with Whole liver D
246. rgency Data for non local recipients are anonymous Parameters for this report are Description Short or long list LOV L S Enter L or S to get a long or short report The description of the report body will show which items are included in each version Eurotransplant Sort on Enter a number from 1 to 3 The following sorting orders will be applied 1 Last name 2 ET registration number 3 ABO 4 LAS score Children only Yes No If Y only recipients younger than 16 years will be reported If oe N all recipients will be reported HU recipients only Yes No If Y only high urgency recipients will be reported If N all Nesp teopensuiibergotes The last two parameters can be combined to show only HU pediatric recipients The header contains the country and an indication whether the options Children only and HU only are selected The body contains the recipient information in a one line format for the short and a two line format for the long report In the first line printed in long and short reports Gr Be aeaeo SSS Ser wa FEO ue Days on status HU high urgent Days on status T transplantable Days on status NT not transplantable displayed only for recipients of your own center If the recipient has no valid LAS score the field remains empty For children gt 12 the date of their ie birthday is shown Second line only printed in the long report
247. ribed in 2 3 3 Buttons and Function keys Another feature of the screens is the tab structure Every tab is a screen stacked on another screen look at the Insurance and Consent Authorization tabs in the picture above By clicking on the tab you can open that screen This is a nice feature to organize the screens and give more overview for the user The second type of screens are screens build with a different technology than the Oracle technology These screens are old build in former standard technology can be found at the Transplant part of ENIS Here is an example of an old screen i Eurotransplant z4 Transplant Registration Module TXP_ 8_1 Date of Transplant Transplant Registration Center Time of Transplant Transplant At Center Recipient number gt Name Follow up Center Donor number gt Donor registration center Organ Transplant number Urgency at tp Waiting since OLki RKI OPa He Llu C RLu WLiv OLLS Liv L ERL Liv CLL Liv CRL Liv C sae The old screen looks flat and without the fancy graphics of the newer versions In the application there are updatable screens and read only screens Per screen is described how to enter the information and if information can be changed 2 3 1 Menu structure ENIS Moving around the ENIS system is made easy through the use of menus which are displayed at the top of your screen Action Edit New Select Recipient Donor TXP Center Re
248. rning is given depending on the entered data 35 Eurotransplant ENIS system user manual Are body weight 180kg and height 80cm of this recipient correct Select Yes if the entered information is correct Select No if the information needs to be corrected The most recent entered virology results are shown on this screen You can not enter results here this can be done on the next tab page Virology In this screen the results of the virology tests can be entered Enter the Sample Date first Enter the results of the virology test via the LOV or arrow Pos Neg NT Typing the first one or two characters is enough to fill the fields You can also enter whether the recipient is HB immunized or not Yes No Unknown The date with the most recent Sample Date is shown on the General tab page Fa Recipient Medical ETNr Recipient Name Date of Bith ABO Rh Sex HE LU LIV PA KI Special Reg Ctr 279984 Le E General J lt lt Previous Next gt By using the Next button the following prompt appears depending on the entered data 36 Eurotransplant ENIS system user manual Name ENIS MANUAL will be changed into O Pos Are you sure if gt The ABO Rhesus of the following recipient Etnr 279984 Select Yes if the entered information is correct Se
249. rofile Listing Details Special Listings Physician Tel Number Physician Dialysis Center Address City Country Tel Number Center If the recipient is on dialysis enter the information concerning the dialysis such as Dialysis Center the address and country and the name and number of the Physician of the recipient When the recipient is not on dialysis enter the value ND Recipient not on dialysis in the field Technique After this the Date of Re Institution of Dialysis will automatically change to not enterable After entering all information go to the next tab page Di or F rotile In this tab page the recipient specific kidney donor profile can be entered a Recipient Waiting List Kidney ETNr Recipient Name Date of Bith ABO Rh Sex HE LU LIY PA KI Special Reg Ctr 301719 o Poem If General Dialysis Data Donor Profile Listing Details Special Listings Min Age HBsAg Sepsis ves Max Age a HBcAb Meningitis Accept en bloc lt Syr vita HOVAb Neg Malignant Tumor vos NHB Donor vive No Drug Abuse es Euthanasia Donor eee Domino Donor vac ESP donor 65 yr Ves Rescue Allocation e Accepted broad HLA mismatch criteria ENEE l A goa REREERERREEGI DR Accept Mismatch 1 f2 1 2 3 1 2 3 2 3 4 2 3 4 2 3 4 3 4 s 3 4s
250. rotransplant The second part shows the parameters per report you enterer to define this report The button Show Output will open the selected report as a PDF file for you to view and print The button Save Output let s you specify a directory to save the report to The button Show Log file lets you view the history of the processing of the report This could be handy if an error occurred during processing of the report The helpdesk or DBA could ask you for information in this file 125 Eurotransplant The screen shows the overview at time of opening Clicking the refresh button or F8 will refresh the screen Some reports take longer and you will have to wait and refresh the screen now and then before the status Succeeded appears You can manually refresh the Job Status or turn on the Automatic refresh is On Off on this will refresh the job s status every 5 seconds 8 4 Printing or saving your reports Printing or saving reports is made very easy in ENIS As soon as the report has the status Succeeded click Show Output The report appears in PDF format You can now save the report via the disk or print the report via the printer button we amp https beta 1 eurotransplant ni GetOutput GetOutpu 1 zs 121 Eurotransplant Rep 129 AM Waiting List After you selected the disk a search screen opens so you can select a folder where you can save the
251. rt failure 151 Complications and ill defined descriptions of heart disease 151 9 Heart disease unspecified 152 Other heart disorders in diseases classified elsewhere 199 Other and unspecified disorders of circulatory system Q20 Congenital malformations of cardiac chambers and connections Q21 Congenital malformations of cardiac septa Q21 8 Other congenital malformations of cardiac septa Q22 Congenital malformations of pulmonary and tricuspid valves Q22 Congenital malformations of pulmonary and tricuspid valves Q23 Congenital malformations of aortic and mitral valves Eurotransplant Q23 Congenital malformations of aortic and mitral valves Q24 Other congenital malformations of heart Q24 8 Other specified congenital malformations of heart Q24 9 Congenital malformation of heart unspecified Q25 Congenital malformations of great arteries Q26 Congenital malformations of great veins Q27 Other congenital malformations of peripheral vascular system Q27 0 Congenital absence and hypoplasia of umbilical artery Q28 Other congenital malformations of circulatory system Q28 9 Congenital malformation of circulatory system unspecified T86 2 Heart transplant failure and rejection Code Table 5A Lung Disease ET codes Description 1500 Eisenmenger s Syndrome Eemer saone OO Oner Pamor Fes e O 1613 Other Pulmonary Fibrosis specify 1614 Pulmonary Vascular Diseas
252. rted by other centers for example BLMTP and BLETP Enter the code that ends with TP like BLMTP When the screen opens it is already in search mode All fields that can be used for search are turned orange It is possible to search on a combination of all fields To make the selection as quick as possible enter enough information to identify a unique recipient BSN The BSN number search option is for Dutch centers only This BSN number can be used to search donors Enter the complete BSN number If the number is not complete a wildcard can be entered All donors of your center with the corresponding part of the BSN number will be shown When you have entered the search criteria you start the search by pressing the F8 key or clicking on Execute Query When more than one donor matching the specification is found you are presented a list from which you can select the correct one Eurotransplant za Select Donor A 126406 08 04 2009 P0011904 BETA1 06 03 1959 LC 126397 07 04 2009 P0011091 BETA1 10 091949 GNWOR 12833 7042008 fpoonoraeera firoanose fonwor 120373 06042009 poorzost serat fozonagsr fonwor 126370 06 04 2009 P0012124 BETA1 29 0341933 GNWOR 126334 03 04 2009 P0012123 BETA 2406 1994 GNWOR 126326 03 04 2009 P0011108 BETAT 01 091942 GNWOR 120205 3 032009 poorzrzoeerat fosoanoae fonwor 126282 31 03 2009 P0011902 BETA1 06 021940 GNWOR 126280 31 03 2009 P0011918 BE
253. rug Abuse Domino Donor Rescue Allocation These are a Yes No fields Yes means these donors are accepted No means they are not accepted for this recipient Rescue Alloc e This is a Yes No field Yes means rescue allocation offers center offers are accepted No means they are not accepted for this recipient NHB Donor This is a Yes No field Yes means non heart beating donors are accepted No means they are not accepted for this recipient Euthanasia donor This is a Yes No field Yes means euthanasia donors are accepted No means they are not accepted for this recipient e Exclude Recipient from No Capacity This is a Yes No field Yes means that this recipient will appear on the ET match list if the center has no capacity No means that this recipient will not appear on the ET match list if the center has no capacity Listing Details 4 ETNr Recipient Name Date of Bith ABO Rh Sex HE LU LIV PA KI Special Reg Ctr 399983 General Donor Profile Listing details Waiting Days TotalT Current HU Current Match LAS Tote Tota active wating daye urrent U Cumulative Transplants Total LU Date put on Waiting List All Organs Datelastevaluationil o7 12 2011 l Print Letter Date next Re evaluation Thoracic Urgency Request This tab page shows the waiting list details It is an overview of waiting days in the different urgency
254. ry 14 days Date last Re evaluation shows the date of the last evaluation of the HU status Date next Reevaluation shows the date the HU status has to be evaluated More information can be found in the ET manual under Library on the ET Membersite No data can be changed in this screen it is view only When this is the last screen in the recipient registration wizard at the bottom is shown This is the last screen of the Recipient Registration Wizard The Next button has changed into a Finish button By clicking Finish the registration is completed 69 Eurotransplant 3 1 12 Pancreas specific screen a Recipient Waiting List Pancreas ETNr Recipient Name Date of Bith ABO Rh Sex HE LU LIV PA KI Special Reg Ctr BEE enuan OOOO OOO onaco fo osm fuse C Peptide Donor Profile Listing Details Urgency j Reason j Type of Transplant O y Comment Primary Disease Code qt ff e G Comment on PDC Other Relevant Diseases Match Comment Date put on Waiting List Approved Combined Organs ACO No a a lt lt Previous 6 of 6 This is the last screen of the Recipient Registration Wizard Finish The Pancreas organ screen contains four tab pages General C Peptide Donor Profile and Listing Details General On this first tab page the urgency code type of transplant and primary disease code have to be registered these are mandatory items The available urgency codes are T Tran
255. s Biliary tract carcinoma Klatskin E05 Cancers Hepatic cholangiocellular carcinoma E06 Cancers Hepatoblastoma E07 Cancers Epithelioid hemangioendothelioma E08 Cancers Angiosarcoma E09 Cancers Secondary liver tumors Carcinoid E10 Cancers Secondary liver tumors Other neuroendocrine E11 Cancers Secondary liver tumors Colorectal E12 Cancers Secondary liver tumors GI non colorectal E13 Cancers Secondary liver tumors Non gastrointestinal E14 Cancers Other liver malignancies specify F01 Metabolic diseases Wilson disease F02 Metabolic diseases Hemochromatosis F03 Metabolic diseases Alpha 1 Antitrypsin deficiency F04 Metabolic diseases Glycogen storage disease F05 Metabolic diseases Homozygous Hypercholesterolemia FO6 Metabolic diseases Tyrosinemia FO7 Metabolic diseases Familial amyloidotic polyneuropathy F08 Metabolic diseases Primary hyperoxaluria F09 Metabolic diseases Protoporphyria F10 Metabolic diseases Other porphyria F11 Metabolic diseases Crigler Najjar F12 Metabolic diseases Cystic fibrosis F13 Metabolic diseases Byler disease Eurotransplant F14 Metabolic diseases Others G Budd Chiari H01 Benign liver tumors or Polycystic dis Hepatic adenoma H02 Benign liver tumors or Polycystic dis Adenomatosis H03 Benign liver tumors or Polycystic dis Hemangioma H04 Benign liver tumors or Polyc
256. s detailed information about a NHB donor procedure Eurotransplant 9 General data CENTER DATE DONOR Nr Cadaver type PHONE CONTACT NNYTP 06 03 2012 10 48 143513 Heartbeating 564503430 W Hordijk ABO Rh NHBD category Reason for Non heartbeating 0 Pos Geen hersendooddiagnostiek mogelijk door instabiliteit donor Course Switch Off at 03 06 2012 10 30 Diuresis total ml 164 Circulation stopped at 06 03 2012 11 02 Explantation preservation data DBTL catheter inserted laparotomy executed at 03 06 201 2 10 35 Carried out by r a ers Kootstra signs left Positive Catheter insertion checked with rontgen No right Positive Perfusion technique Double balloon triple lumen catheter Clinical data Date Sys bloodpressure Dia bloodpressure Heart freq Saturation Diuresis Breath freq Comments mm HG ram HG min mi min 06 03 2012 10 30 125 80 80 85 100 79 06 03 2012 10 35 100 lso Jz o s 06 03 2012 10 45 50 23 40 26 lio 30 06 03 2012 10 55 25 9 15 23 lo 5 06 03 2012 11 02 o lo lo lo lo 0 Cardiac arrest The report shows a header with the basic data of the donor incl donor number and center Under the header the information concerning the NHB procedure incl the reason for NHB donation details of the explantation and an overview of the clinical data is displayed Information can be printed via File Print or the printer
257. s is met Age gt 65 years ICU stay with ventilation gt 7 days BMI gt 30 Steatotic liver gt 40 Biopsy proven Serum Sodium gt 165 mmol l SGPT ALAT gt 105 U I SGOT ASAT gt 90 U I Serum Bilirubin gt 3 mg dl e Exclude Recipient from No Capacity This is a Yes No field Yes means that this recipient will appear on the ET match list if the center has no capacity No means that this recipient will not appear on the ET match list if the center has no capacity Note The entered donor profile is ignored when a recipient has the status HU Eurotransplant ENIS system user manual 2 Reciplentyvalting ISTENEN eee eea ESES SESE ENEE eric er ne ae SENESTE oe oe SY oP ar ee Bee Ue Ua Bae Ba Be a Be a Ba eee ECC CeCe eC EC eC er EC Er aC ereCereCereCELeC ene ETNr Recipient Name Date of Birth ABO Rh Sex HE LU LIV PA KI Special Reg Ctr 298833 o BDA General MELD Donor Profile Date put on Waiting List MELD used in match National Donor International Donor Waiting days Cumulative Transplants Current HU Total Liver Current ACO All Organs Re evaluation Date Last Re jevaluation Ea Print Letter Date Next Reevaluation This tab page shows the waiting list details It is an overview of waiting days for HU ACO MELD scores National International and the cumulative transplants If the recipient has the HU status for Liver this HU status must be re evaluated eve
258. select an organ but click the Next button Enter the fields you want to enter The Medical screen is mandatory blood group other data as HLA can be entered After this is done send a fax to Eurotransplant with all the relevant recipient information Ask Eurotransplant to put the recipient on the intestine waiting list Give the urgency code transplantable or not transplantable and send a recipient donor profile The Medical Administration of Eurotransplant will put these data in ENIS and on a special manually intestine waiting list Note when the recipient needs an intestine in combination with any other organ register the recipient and put the recipient for the other organ s on the waiting list Then send a fax to Eurotransplant with the specific Intestine data urgency and donor profile 73 Eurotransplant ENIS system user manual 3 2 Other Screens 3 2 1 Antibody Screening per Center For all recipients on the kidney waiting list an actual antibody screening has to be available Every three months the antibody screening must be repeated for all recipients of a transplant center XXXTP on urgency T or NT on the kidney waiting list These repeated antibody screenings are arranged simultaneously for all recipients in a center The results can be registered simultaneously too in the screen Antibody screening per Center Go to Recipient Immunological Results Antibody screening Register per center When you open the screen
259. senseeseeseeaeeneeeeentes 85 Donor reGiStration ccccseeeeeceeeeeeeeeeeeeeeeeeeeeeueeeauaseeuaseeuaseauaseauaseauaeeauageanags 86 4 1 Registration of a living dONOF sssssssssrssssrrssrrnsrrrnsrrnunrrrnunrnnnernnnrrnnernnnns 86 4 2 Entry of the donated Organ arasriecmisio narena E E E a 88 4 3 HLA ENUY sitesi tericers terieeenieeneeeniedaeeeneesteeenaesaeere deri cerederieerederi cere deri cere eerie 89 4 4 Organ anatomy reqistratho Nw ecnoinciceeuebsveigecee E EE E Ep a 92 Requesting donor recipient information s sssss1s 94 5 1 Requesting donor recipient information via Donor Data Donor Reports 94 5 1 1 Advanced search DOMOS 0 cescescescescessesecsceesceseescaecseesecaacsecacecesseesenaecaessecaeeeseaseaeeaeeseneeeaeeaeee 97 5 2 Requesting donor information via ENIS ccceeeceee eee ee ee ee eee teens ee eeeeaeees 98 5 2 1 Donors oloro resin en En wean E caveats au cd vasna ven wearay E E 99 5 2 1 DONOS USC ses sicesites EE EE EEEE EEEE ENO EERE 99 Transplant registration and Update cccsceeesceeesceeeseeeeeeeeeeeeeuseeeneeeeneees 101 6 1 Registration of a new transplant ssssssssrsssrrssrrrsrnrnsrnnnsrnnnnrnrnurnrnnrrnns 101 6 1 1 Registration of a new transplantation cccccccccecccscsseseesesseseesessesesscsesseseeseesesesseseesessseeaeees 101 6 1 2 Registration of a transplant after rescue allocation ceccccccceseescsseseescseeseeceensesscseeeaeees 105 6 1
260. sified Q89 9 Congenital malformation unspecified 37 0 Injury of urinary and pelvic organs Injury of kidney T79 1 Certain early complications of trauma not elsewhere classified Fat embolism traumatic Code Table 2A Pancreas Disease ET codes Description Diabetes Mellitus type 20 e Diabetes Mellitus type with nephropathy Diabetes Mellitus type II 6 Diabetes Mellitus type II with nephropathy Code Table 2B Pancreas Disease ICD10 codes Code Description B25 2 Cytomegaloviral pancreatitis B26 3 Mumps pancreatitis C25 0 Malignant neoplasm of pancreas Head of pancreas C25 1 Malignant neoplasm of pancreas Head of pancreas C25 2 Malignant neoplasm of pancreas Tail of pancreas C25 3 Malignant neoplasm of pancreas Pancreatic duct C25 4 Malignant neoplasm of pancreas Endocrine pancreas C25 7 Malignant neoplasm of pancreas Other parts of pancreas C25 8 Malignant neoplasm of pancreas Overlapping lesion of pancreas C25 9 Malignant neoplasm of pancreas Pancreas unspecified D13 6 Benign neoplasm of pancreas D13 7 Benign neoplasm of endocrine pancreas E10 0 Insulin dependent diabetes mellitus with coma E10 0 Insulin dependent diabetes mellitus with coma E10 0 Insulin dependent diabetes mellitus with coma Eurotransplant
261. splant Addendum A Code tables extracts Code Table 1A Kidney Disease ET Codes 1 10 11 12 13 15 16 17 19 20 21 22 23 24 25 9 30 31 2 33 4 9 0 1 2 3 49 5 5 5 5 Description Chronic renal failure etiology uncertain irra ae oreen O Fo erener neooaoe OO n foe sarena goresen wi tesore saonenn a Fs Dense past anease PON TT Membranous nephropathy 15 Membrano proliferative glomerulonephritis Type Rapidly progressive Glomerulonephritis without systemic disease 7 Feral eqnental gonensoacis wih repvoteomaanein ails Fo C c e a pereema reon Teronen 22 Preonepiristesia repite CorgeialobsTaivewepey A Preoepiristsia rents Requred obswave mopar A Preonepiristesia reps VU etx winoomarueion 25 Preepnristnearrepnie Wom Pyelonephritis Interstitial nephritis Other cause 30 Tubulo interstitia nephritis not Pyelonephritis 3o Nephropathy due to analgesic drugs Nephropathy due to Cisplatinum ss Nephropathy due to Cyclosporin A Lead induced interstitial nephropathy Nephropathy caused by other specific drug Cystic kidney disease Type unspecified Polycystic Kidneys Adult type dominant Polycystic Kidneys Infantile type recessive Medullary Cystic Disease including nephronophthisis Cystic kidney disease Other specified type 4 Fabry s disease Eurotransplant Hereditary Nephropathy Other Congenital renal hypoplasia Type unspecified e1 O
262. splantable NT Not Transplantable and R Removed When urgency R or NT are entered or changed to these statuses it is mandatory to enter a reason It is possible that the urgency doesn t change but the reason does E g a recipient is NT reason medical and two days later the recipient is NT reason on request of recipient Holiday This is shown in the screen Status and Events Recipient Status and events It is possible to enter a Comment on the urgency code Type of Transplant is mandatory Has the recipient to be put on the waiting list for a vascularized Pancreas PA or only islets IS Living transplantation is mandatory For non German recipients the urgency will change automatically to NT By entering the screen No is automatically entered This can be changed into Yes When a German recipient is put on the waiting list for a living transplantation the urgency code must be transplantable at time of registration and transplantation according to the German law The ET code is mandatory An LOV list of values is available and a comment can be entered If there is a corresponding ICD10 code the system will fill this in automatically If there are multiple corresponding options the LOV will be limited to these options Some ET codes need further specification The field Comment on PDC will then become mandatory e g ET code 4 other For the German recipients it is mandatory to enter the ICD10 code
263. splantation Yes No Graft function after transplantation Direct Delayed Never Last dialysis date after transplantation in case of delayed graft functioning First initial immunosuppression code numeric code First initial immunosuppression text text translation of code Specification in case of first immunosuppression other Second initial immunosuppression code numeric code Second initial immunosuppression text text translation of code Specification in case of second immunosuppression other Third initial immunosuppression code numeric code Third initial immunosuppression text text translation of code Specification in case of third immunosuppression other Initial immun 4 code Fourth initial immunosuppression code numeric code Initial immun 4 text Fourth initial immunosuppression text text translation of code Initial immun 4 comment Specification in case of fourth immunosuppression other Initial immun 5 code Fifth initial inmunosuppression code numeric code Initial immun 5 text Fifth initial immunosuppression text text translation of code Initial immun 5 comment Specification in case of fifth immunosuppression other Nr of hospitalisation days Number of hospitalisation days before transplantation after date put on waitinglist Nr of outrecipient visits Number of outrecipient visits before transplantation after date put on waitinglist Smoking at time of transplant Yes No Unknown Don_st Donorstatus Cadaveric Cada
264. sssssesecesseseseeeeseseneeeeseeeeeeseneeees 177 R_X_025 Waiting List With Insurance Data Extract c ccccccccccesessesseeesessesessesseseesees 178 Don r organ USE EXEPACS sii civeceiecatedasemtareld canes seat Reces need cel cents 179 D_X_007 Donor Organs Transplant d ccccccccccccsesecsesseseesesseseescssssessesseseecsseseeeessseeseees 180 D_X_013 Donor Organ Transplant Information s ssseesssesessnesereeresesessrsesrsesrseeese 181 Organ Transplants xthactS cis ccevstentiecudeian sae eeneites cu AE S 181 K_X_002 Kidney Transplant EXxtract cccccccccccccccssesesscsseseescseeseescsseseeecsesseescsecseeeeseeseeeenee 182 P_X_003 Pancreas Transplant EXtract cccccccccccccseccesessceeeseeeeseeecseeecseeseeaeesesaeeneeeeees 185 HE_X_004 Heart Transplant Extract c cccccccscssesessesescsenseseseeeescseneeseseeeeeceeneeeeseeeeeeeeneeees 187 LU_X_005 Lung Transplant Extra0t seasainn ara EE 189 LI X_006 Liver Transplant EXtract cccccccccccccsssessssscssesecssesseeseeseesecseeseceeeeeeeaeeseeaeeneeeeeaaes 191 Eurotransplant 9 10 6 K_X_026 Tbhase Kidney Transplant EXxtract c cccccccccccssccscsseseescssessescseeseeseseeseeecsesseesesees 194 9 10 7 P_X_028 Tbase Pancreas Transplant EXtraCt c cccccccccccccsseseescsseeesesssseescseeseseeeeseesesees 195 9 10 8 T_X_024 Transplants with Insurance Data EXtraCt ccccccccccscseescsseseseesseteeseseeseesesees 195 9 11 Recipient Questionnaire Extracts
265. statuses and the cumulative transplants This screen also shows the LAS score currently used in the match If no LAS score has been entered the Current LAS score is 0 No data can be changed in this screen it is view only When the urgency code of the selected recipient is HU for combined HE LU the fields Date Last Re evaluation and Date next Re evaluation are filled If the recipient has the national Eurotransplant ENIS system user manual HU status for LU only only the field Date Last Re evaluation is filled If a HU HE LU re evaluation is accepted Eurotransplant will change the Date Last Re evaluation Then the field Date next Re evaluation will be updated automatically The Button Print Letter is also used by Eurotransplant These are the letters send to the transplant centers with the date the recipient has to be re evaluated for HU At the bottom is shown Next Data belonging to waiting list lung The button Next navigates to a screen offering you the possibility to enter data for the LAS score l ETNr Recipient Name Date of Bith ABO Rh Sex HE LU LI PA KI Special Reg Ctr 397847 Please note that a LAS score is necessary for international matching If you would like to enter a LAS request please click on the Thoracic Urgency Request button below If you choose not to enter a LAS request please click on the Finish button Thoracic Urgency Request lt lt
266. stered The available urgency codes are T Transplantable NT Not Transplantable and R Removed When urgency R or NT are entered or changed to these statuses it is mandatory to enter a reason It is possible that the urgency doesn t change but the reason does E g a recipient is NT reason Medical and two days later the recipient is NT reason on request of recipient Holiday This is shown in the screen Status and Events Recipient Status and events It is possible to enter a Comment on the urgency code Living transplantation is mandatory By entering the screen No is automatically entered This can be changed into Yes For non German recipients the urgency will change automatically to NT When a German recipient is put on the waiting list for a living transplantation the urgency code must be transplantable at time of registration and transplantation according to the German law The indication for transplantation is mandatory A list of values is available ELTR coding system and a comment can be entered For the German recipients it is also mandatory to enter the ICD10 code Other liver diseases and other relevant diseases can also be entered The field Intestine is for Eurotransplant only If you have a combined live intestine recipient register all information for the liver Send a fax to the Eurotransplant help desk with all recipient information and the request to register this recipient for inte
267. stine transplantation Note when the recipient only needs an intestine not in combination with any other organ register the recipient and then send a fax to Eurotransplant because there is no waiting list Eurotransplant registration for intestine only See 3 1 13 for more information A Match Comment can be entered This comment appears on the Eurotransplant match list if the recipient is selected In this comment additional profile information or requests can be entered Note if additional profile items are entered this may result in the fact that your recipient will not receive an offer For example if you entered that you will only receive an offer from a donor with a max height of 170 cm and the donor is 180 cm your recipient will not receive an offer It is the responsibility of the center to check is the entered match comments are up to date The field Approved Combined Organs ACO is a field that only can be entered by Eurotransplant If a recipient is approved for an ACO status the field will be put on Yes To request this status use the required forms and send them to Eurotransplant After entering all information go to the next tab page MELD This screen must be used for registration of the initial MELD score It is mandatory to enter lab results related to the MELD score Without the MELD score it is not possible to register a liver recipient on the waiting list The Meld score is calculat
268. t Name Date of Birth ABO Rh Sex HE LU LIV PA KI Special Reg Ctr 298833 AM Protocol Lab Results AM Request Date Status Date The acceptable antigens screen contains three tab pages AM Protocol Lab Results and Acceptable Antigens This is a screen to register that a request to participate in the AM program is accepted or declined By entering the acceptance status for the AM Program a recipient will participate in the AM matching process a Recipient Acceptable Antigens foie e e e e e e e e eee ETNr Recipient Name Date of Bith ABO Rh Sex HE LU LIY PA KI Special Reg Ctr 266289 AM Protocol Lab Results Entry Acceptable Match Date Antigens Occurred Comments Acceptable Antigens The technical data of the acceptable antigen registration are entered and the history is shown in this tab page The acceptable antigen registrations are sorted chronologically with the actual on top On entry of the screen the acceptable antigen registration with the most recent sample date is automatically selected Depending on the lab result record selected 72 Eurotransplant the Comments and Acceptable Antigens fields will show the data corresponding to the selected record The field Entry Date is default filled with the current date and time and cannot be changed The field Lab is mandatory The laboratory that determined the unacceptable antigens should be entered in this
269. t number of the recipient The next prompt appears Eurotransplant A Recipient etnr 281320 name MANUAL ENIS Continue No Cancel J If this is the correct recipient select Yes If it is the wrong recipient then select No and re enter the correct ET number and continue entering the rest of the data If you select Cancel you can also re enter the correct ET number Enter the donor number and select the transplanted organs by marking the check box es for the appropriate organ s For each individual organ a unique transplant number will be assigned When a kidney is accepted of an ESDP donor the field ESDP patient consent must be entered at time of transplant registration Select N o or Y es 3 Transplant Registration Module TXP_78_1 roret ete Cero e Ce retetecerete terete cecere Date of Transplant Transplant Registration Center Time of Transplant Transplant At Center Recipient number gt Name PXHTPLI DIRK Follow up Center Donor number gt Donor registration center NLBTP Organ Transplant number Urgency at tp Waiting since LKI ESDP patientconsent When all the data is correct save the information via F10 or Action Save The following prompt will appear If Yes is selected the ET transplant number will automatically be generated and displayed in the field Transplant number The urgency at time of transplant and the
270. te DonorNr Identity Donor Type Center ABO Rhe Date of Birth Sex Vt Ht 11 02 2010 14 37 NLBTP 2 m 7o Right Kidney Heparin volume U Heparin at Cold perfusion start Perfusion solution Perfusion volume ml WIP 1 min Mechanical Perfusion Number of arteries Artery patch Number of veins Vein patch Ureter Arteriosclerosis x J Arterioscler remark Morpholog variations Perfusion quality Nephrectomy at Reason not used Quality of kidney Procurement center Surgeon Comments Enter the information concerning anatomy and explantation Save the information via F10 or the disk button Now the transplantation can be registered For description see 6 1 3 Registration of a transplant after living donation Note By entering Nephrectomy at for the kidney that was donated it is possible to register the transplantation even if the donor was registered after the transplant At time of registration of the transplantation this is the time the system sees as actual explantation time and not the procured time that was created when the donated organ was selected Living liver donor Go to Donor Donor Organ Donor liver This screen contains three tabs Preservation Liver Anatomy Liver and Quality liver Registration Date DonorNr Identity Donor Type Center ABO Rhe Date of Birth Sex Wt Ht 03 06 2009 09 55 neete f Pos mM fo P
271. ted Yes No Euth Donor Euthanasia Donor accepted Yes No 9 3 3 Report LL_P_255 Liver recipient Donor profiles The recipient specific liver profile report provides a list of all recipients who are present on the liver transplant waiting list The default center specific liver donor profile is also shown on the report Parameters for the report are Center s Sorting order Code of the center for which the report must be printed The code must always end on TP To simply list all centers under your authorization enter ALL The recipients are grouped by center Enter a number from 1 to 2 The following sorting orders will be applied 1 ET registration number 2 Name The header contains the center code and the center name The body contains the following information Column heading Description ET Nr ET registration number Name Last name Dob Date of birth Recipient profile Name item Description Min Wgt Minimum donor weight Max Wgt Maximum donor weight LLS Liver split Left Lateral Segment Yes No ERL Liver split Extended Right Lobe Yes No LL Liver split Left Lobe Yes No RL Liver split Right Lobe Yes No Center and Recipient profile Name item Description Eurotransplant Min age Minimum age of donor Max age Maximum age of donor HBs Ag HBs
272. ted Yes No Rescue Allocation Rescue allocation accepted Yes No In the lower part of the screen enter the broad HLA mismatches that are accepted The Accepted broad HLA mismatch criteria selection area contains five lines The first three lines contain the mismatch criteria shown in a vertical line A B Dr They must be read from top to bottom The fourth line is the selection accept line where the criteria can be individually selected Criteria can be individually selected and deselected there are no limitations Only 000 cannot be deselected The fifth line is for your information It shows the total number of mismatches in the corresponding criteria Eurotransplant Once you entered or updated the information save the information via F10 or the disc button 7 1 2 Pancreas The tab Pancreas contains the Pancreas Center Profile Pancreas For all the items except age there is a small list of values available click the arrow next to the field Whether a requirement is applicable to a certain recipient depends on this recipient s specific profile When the requirement is specified in the recipient specific profile the corresponding center profile requirement will be ignored When the recipient requirement is empty the center profile requirement is used The following requirements can be entered Min age Max age Minimum and maximum acceptable donor age Only whole numbers can be entered For both
273. ter Code of the center for which the report must be printed The code must always end on TP Eurotransplant Sort Enter a number from 1 to 2 The following sorting orders will be applied 1 ET registration number 2 Last name Report per dialysis center Yes No If Y Recipients are grouped by dialysis center If N all RnR STS perte wibe reponea py ETNE o NS Cluster list Yes No If Y all recipients of the participating centers will be a reported If N only recipients of the own center will be reported Only reps gt 65 years Only livin Yes No If Y only recipients awaiting a living transplantation If N y g all recipients will be reported The header contains the center code and an indication whether the option Cluster list is selected The body contains the following recipient information Column header ETN Name ex Wot Weight of recipient Organ s Organ requirement and organ combinations Urgency code Cum Txp Previous kidney transplants this includes transplants combined with other organs Date of birth of recipient Hgt Height of recipient B Blood group of recipient Full Phenotype Scrn Date Date of last antibody screening The date will be followed by an R Auto Auto antibody testing DTT DTT cross match needed Yes No H Highest antibody percentage Unacs Antigens HBsAg HBsAg status of recipient The end of the report shows the tota
274. th the same MELD score v how many recipients have a higher or lower MELD score at that moment Parameters for this center specific report are From center Code of the center for which the report must be printed The code ee must always end on TP Children only Yes No If Y only recipients younger than 16 years will be reported If ie N all recipients will be reported HU recipients only Yes No If Y only high urgency recipients will be reported If N all e recipients will be reported Cluster list Yes No If Y all recipients of the participating centers will be e reported If N only recipients of the own center will be reported Sort on Enter a number from 1 to 2 The following sorting orders will be applied 1 ABO 2 ET registration number The second and third parameter can be combined to show only HU pediatric recipients The header contains the center code and an indication whether the options Children only HU only and Cluster list are selected The body contains the following recipient information for e code SOS Date of birth C S W sex E tr ex gt Weight Height Eurotransplant The end of the report shows the total number of recipients on the waiting list of the specified center The footer shows the highest number of points for Urgency Waiting time in this cluster per blood group 9 1 11 Report LL WL_167N Liver Waiting List_ Nat
275. the report must be printed The code must always end on TP To simply list all centers under your authorization enter ALL The recipients are grouped by center Sorting order Enter a number from 1 to 2 The following sorting orders will be applied 1 ET registration number 2 Name Only recipients on waiting Yes No If Y only recipients with urgency SU T and NT will be listed If N also recipients with urgency R D and FU will be included The header contains the center code and an indication whether the options Recipients on pancreas waiting list or All recipients are selected The body contains the following information Column heading Description Etnr ET registration number Name Last name PA IS Type of transplant Pancreas PA or Islets IS Dob Date of birth Abo Blood group Eurotransplant Urg Urgency code Center and recipient profile Name item Description Min age Minimum age of donor Max age Maximum age of donor HBs Ag HBs Ag accepted Any Neg HBc Ab HBc Ab accepted Any Neg HCV Ab HCV Ab accepted Any Neg Sepsis Sepsis accepted Yes No Meningitis Meningitis accepted Yes No Malignant tumor Malignant tumor accepted Yes No Drug abuse Drug abuse accepted Yes No Domino donor Domino donor accepted Yes No Rescue allocation Rescue allocation accepted Yes No NHB Donor NHB Donor accep
276. the standard information is visible and the reports are not available For users not belonging to the donor center or belonging to a cluster with the donor center only the standard recipient information will be shown and the reports are not available For further information or description see 5 1 Requesting donor recipient information Question How do register a pancreas recipient with a too high C peptide on the waiting list Answer A recipient can only be registered on a transplantable T urgency on the pancreas waiting list if the pancreas does not function properly This has to be proven by the value of the C peptide This value has to be 0 50 ng ml or 0 17 nmol If the value is higher you can only put these recipients on a not transplantable NT urgency The comment C peptide is too high is entered automatically In these cases you can sent the filled in form F1 29 3 Waiting List Registration request form pancreas to the Administration HelpDesk of Eurotransplant The HelpDesk wil foreward your request to members of the Pancreas Advisory Committee EPAC The request is sent to two members in case of a split decision to a third member The HelpDesk will inform you about the decision If the decision is Yes the HelpDesk will set the field EPAC approval to Yes and you can set the urgency on transplantable T For further information or description see 3 1 12 Pancreas specific screen Eurotran
277. the urgency doesn t change but the reason does E g a recipient is NT reason medical and two days later the recipient is NT reason on request of recipient Holiday This is shown in Status and Events Recipient Status and events It is possible to enter a Comment on the urgency code Note if a lung only recipient is re registered on the lung waiting list or placed on an active status a new LAS score should be entered When the re registration on the waiting list is saved a screen will appear where you can navigate to the Thoracic Urgency application where a new LAS score can be requested 60 Eurotransplant Please note that a LAS score is necessary for international matching If you would like to enter a LAS request please click on the Thoracic Urgency Request button below If you choose not to enter a LAS request please click on the Finish or Exit button Thoracic Urgency Request Exit Select the button Thoracic Urgency Request if you want to request a new LAS score Select Exit if you don t want to enter a new request immediately For more information concerning LAS scores and requests see the section Projects amp Themes on the ET member site or the Thoracic Urgency request manual under the section Library Living transplantation is mandatory For non German recipients the urgency will change automatically to NT By entering the screen No is automatically entered This can b
278. to be registered in this screen The available urgencies are T HI and NT When you point with your cursor in the field Urgency urgency code will be adjusted to the level of the most recent PRA screening T or HI If there are no entries the urgency code is set as T_KI Transplantable When later on the Antibodies screen is completed the urgency code will then change accordingly to the antibodies percentage HI Highly Immunized Allo PRA 85 100 Allo PRA 6 84 The urgency NT Not Transplantable or R Removed can be entered In these cases the field Reason becomes mandatory A reason for the urgency Not transplantable or Removed must be entered It is possible to enter a Comment on the urgency code When a recipient needs a living transplantation it can be entered here For non German recipients the urgency will change automatically to NT with Reason On waiting list for living donor When a German recipient is put on the waiting list for a living transplantation the urgency code must be active T HI or HU at time of registration and transplantation according to the German law When Living is Yes and the urgency is NT the following message will appear p za Business Rule Violations Message Code ET 71262 If recipient is German then living can only be set to Yes a when urgency is active T HI or HU l WLKI_MOD002 b a The Primary Disease Code is mandatory This is the d
279. transplant This extract reports follow up details from all pancreas transplants pancreas only or combined wtith other organ HL_X_9 NOTR Thoracic Recipient Extract This extract reports recipient details from all thoracic transplants thoracic organ only or combined with other organ HL_X_10 NOTR Thoracic Donor Extract This extract reports donor details from all thoracic transplants thoracic organ only or combined with other organ HL_X_11 NOTR Thoracic Transplant Extract This extract reports transplant and initial follow up details from all thoracic transplants thoracic organ only or combined with other organ HL_X_12 NOTR Thoracic Follow Up Extract This extract reports follow up details from all thoracic transplants thoracic organ only or combined with other organ K_X_020 NOTR Kidney Recipient Extract This extract reports recipient details from all kidney transplants kidney only or combined with other organ K_X_021 NOTR Kidney Donor Extract This extract reports donor details from all kidney transplants kidney only or combined with other organ K_X_022 NOTR Kidney Transplant Extract This extract reports transplant and initial follow up details from all kidney transplants kidney only or combined with other organ K_X_023 NOTR Kidney Follow Up Extract This extract reports follow up details from all kidney transplants kidney only or combined with other organ The parameters for all NOTR extracts are the same The
280. transplants from the centers the userhas authorization to see are shown If the center to do name begins with G the column header for the insurance company is filled with VK nr otherwise it is filled with R ins comp Sex of recipient F emale or M ale Type of donor C adaver of L iving IHR name Name of insurance holder ae ee Sex of insurance holder F emale or M ale Multiple transplants are separated by 9 11 Recipient Questionnaire Extracts 9 11 1 HE_X_030 Recipient Questionnaire Extract This special report generates a data set which contains information on the transplant Eurotransplant candidates who are on the heart waiting list The parameters which should be entered are Default is the separator FWE Registration from date Start date of the period reported Registration date of recipient a Format is dd mm yyyy Registration to date End date of the period reported Registration date of recipient Format ET nr Possibility to run extract for a single recipient via ET Nr Enter ALL e O for all recipients Recipient name Possibility to run extract for a single recipient via name Enter ALL e for all recipients Center code Default is ALL which means all transplants from the centers the user has authorization to see are shown Please select this option for this extract the other options refer to non available questinonniares Column header Explanation Recip
281. ts Q ITRF reports R Recipient reports T Transplant reports The second characters after the underscore _ have the following meaning AM AM recipients HU HU recipients IM Immunological data M Match P Donor profiles T Transplant data WL Waiting list X Extract Sometimes there s a character at the end indicating the sort order C Center C_R Remote per center N National PB Page breaks For example HE_WL_164C is the Heart HE waiting list WL report number 164 164 ordered per center C In chapter 9 all available reports and extracts are described sorted per type report or extract Eurotransplant 8 2 Request a report If you want to request a report or extract start ENIS and select Reports Submit Job The screen for starting a report extract submitting jobs appears a Submitdob oii eee oie PIPESE ar IE pt SIUC UC ICC Br Sr CI iC iC uC SBC UC Ca ar BB aC ee a E AN Name Description D_045 Remote Donor Registration Report D244 Donor Report 2 Dm 81 maten filter report for donor i D_x 007 Donor Organs Transplanted D xo 3 Donor Organ Transplant Information HEWL_164C_R Heart Waiting List Center 00 HE wL 64N Heart waiting List National Parameter Value Registering center number a Donor number 4 Submit Job The upper part of the screen contains all available reports and extracts You can scroll through this list and select the report that you want t
282. ts in the selection that still have to be processed Please note the difference between records saved and records processed as explained on the top of this page The button Process is to start processing All recipients with saved antibody screening data are processed You will get the following message 7 Eurotransplant Recipients Still Empty is the number of recipients for whom antibody screening data still have to be entered The entered antibody screening data is saved in a temporary set The data is only transferred to the recipient antibody screening results in ENIS after the Process button in the Status tab is clicked The progress of the registration process can be monitored online using a status view An overview report can be shown on screen and can be printed to show the status of antibody screening data entry of the individual recipients With the field Recipients on overview you can choose which recipients you want to print all recipients recipients who have processed or recipients who haven t been processed An LOV is available With the fields Break on Dialysis Center and Sort Order you can influence the way the data is shown on the report which you can print with the Print Overview button First you have to choose if you want a Break on Dialysis Center Yes or No Then you can sort on different items an LOV is available On this report the entered data is sh
283. typing a donor registration number in the search Aliquam nec lorem odio Ut mauris urna volutpat a dapibus ac volutpat ut box mi Donor Registration No fo Quisque tempor pellentesque augue At malesuada dolor dignissim porta Advanced search e Ligula eget hendrerit dictum Nascetur ridiculus mus About Donordata eu Most recent donor information 24 hours a day 7 days a week e All necessary information on offered organs Combined recipient and donor data in one application Information on the anatomy and most recent lab values Accessible on a mobile phone or PDA Donordata eu Eurotransplant www eurotransplant org Enter the 6 numbers of the donor number and click Search The requested donor information is shown On this website several reports are available such as the donor report and all organ reports Every report is placed in a separate tab the tab Donor contains the Donor report The tab Kidney contains the Kidney organ report The Tab Liver pancreas contains the liver pancreas organ report just like the tab Thorax contains the organ report of heart and lungs Next to these reports are tabs with additional information All reports can be downloaded as PDF file or in HTML format or openend in PFD format Download report full in XML format J Download report page as PDF Open report page as PDF The tab Media Files offers the possibility to watch media files e g
284. veric donor type Heartbeating non heartbeating Don_rel Relation donor recipient Card Cardiologic event Yes No Unknown CVA Yes No Vascular event Yes No Claudicatio symptoms before transplantation Yes No Unknown Angina Pectoris Yes No Unknown Left ventricular hypertrophy Pos Neg Diabetes before transplantation Yes No Unknown Duration of diabetes years Cholesterol Last value of cholesterol before transplantation A_chol Cholesterol reducing medication Yes No Unknown Spec_chol Specification of medication 1 statine 2 other medication Antihyp Antihypertensive medication during the last year before transplantation Yes No Unknown Spec_antihyp1 Specification of antihypertensive medication 1 text translation of Height Weight Nr of pregnancies Formal transfusion Graft function Last dialysis date after Initial immun 1 code Initial immun 1 text Initial immun 1 comment Initial immun 2 code Initial immun 2 text Initial immun 2 comment Initial immun 3 code Initial immun 3 text Initial immun 3 comment gt SN fae 7 lt n lt a lt s lt Roken 1 A lt Vaat event Claudic Diabetes Diab_duur T gt O p S 0 lt S S S S o Eurotransplant a ooo fo S Spec_antihyp2 Specification of antihypertensive medication 2 text translation of code Spec_antihyp
285. ves a history of important events concerning registration and update of information of the recipient The ET Medical administrators are authorized to enter new records and comments 81 Eurotransplant ENIS system user manual a Recipient Status and Events ETNr Recipient Name Date of Birth ABO Rh Sex HE LU LI PA KI Special Reg Ctr 266289 Jo Pos fw DA Status Overview Urgency Status Transplant Events Urgency Urgency reason Comment on Urgency Status U eS Comment with reason for change of urgency This tab page shows all the changes made in the urgency statuses of the selected recipient and all comments and reason of urgency change if applicable a Recipient staus and Evens roar al al hd AS a EA a oS AS a E ARRA E a AORE E E EAEE ETNr Recipient Name Date of Bith ABO Rh Sex HE LU LIV PA KI Special Reg Ctr 266289 o ros mw Ir Status Overview Urgency Status Transplant Events Transplant Urg at Entry date Date Organ Transplant TransplantNr DonorNr Donor Type Date of Failure This tab page shows all the transplants of the selected recipients including basic information of the donor After registration of a transplantation the Transplant Events screen will show Entry date Transplant Date Organ Urgency at Transplant Transplant number Donor number Donor Type and in case of a failed transplant Date of Failure
286. w DQ Publics Full Match Phenotype Al A3 B12 B45 B22 DR4 DRS DR12 BSS Reduced Match Al 33 B12 B22 DR4 DR12 Phenotype Current Unacceptable B2 A66 B77 Cw6 Antigens Antibody Screening PRA Current Auto DTT Crossmatch PRA Highest vVPRA 27 Previous Transplants 0 Participating in AM Protocol Dialysis Center Match Comment On this report are the HLA Typing of the recipient the antibody screening of the recipient and the previous transplants of a recipient The report van be printed or saved as PDF file For description see chapter 8 Reports 9 4 2 Report REP_032_F Antibody Screening per Center Overview This report offers an overview of the antibody screening for your entire center It can only be printed when a selection has been made via the antibodies per center screen Go to Recipient Immunological results Antibody screening Register per Center Make the selection See Section 4 for instructions on antibodies registration per center In the screen Status the parameters for the overview must be selected When this is done click on the button Print Overview to run the report The report will appear as a pop up ready to be printed Parameters for this report are Eurotransplant Sorting order Enter a number from 1 to 6 The following sorting orders will be applied ET registration number Name Abo Etnr Dial Etnr Dial Name Urg Etnr Selected records Y N Yes No
287. will be applied 1 Name 2 ET registration number 3 ABO 4 LAS score Children only Yes No If Y only recipients younger than 16 years will be reported n ent al teopions wat bereponen oo n OS HU recipients only Yes No lf Y only high urgency recipients will be reported If N all recipients will be reported Cluster list Yes No If Y all recipients of the participating centers will be fon reported If N only recipients of the own center will be reported The fourth and fifth parameter can be combined to show only HU pediatric recipients The header contains the center code and an indication whether the options Cluster list Children only and HU only are selected The body contains the recipient information in a one line format for the short and a two line format for the long report Eurotransplant In the first line printed in long and short reports bo oes If the recipient has no valid LAS score the field remains empty For children gt 12 the date of their io birthday is shown Second line only printed in the long report Cumulative antibody specificities 9 1 7 Report LU_WL_165N_L Lung Waiting List National This report contains all recipients registered on the lung waiting list in your country a national lung waiting list using the same layout as for LU_WL_165C including the Tot NT Total days waiting time on not transplantable u
288. wing prompt appears Message Code ET 71107 Itis not allowed to enter a splitable broad HLA antigen and A one of it s splits simultaneously RUH_IERO06 Click Print if you want to print this message Click OK and the entered antigen can be changed When an antigen is entered twice the following message appears Row exists already with same Antigen Number Lab Number Click OK and the entered antigen can be changed By using the X button on the above right corner of the window to exit the screen you will return to the recipient registration wizard The next screen in the wizard is the Organ screen Which organ screen depends on the organ s you have chosen in the second screen of the wizard the Choose Organs screen 3 1 6 2 Registration via the recipient menu Go to Recipient Immunological Results Unacceptable Antigens The screen opens For description how to register the unacceptable antigens see Registration via the recipient registration wizard 3 1 6 1 47 Eurotransplant 3 1 7 Organ screens in general When more organs have been chosen the system first shows one organ and after filling in the data the other organ s is are shown The system also checks which donor profile s must be entered For example with a Kidney Pancreas recipient only the pancreas profile can be entered The kidney profile cannot be entered the tab page is not accessible The donor prof
289. wn and key up buttons you can search for the one you need If the selection returned a lot of records you can scroll with the scrollbar and select the record by clicking on it 2 4 2 How to search a donor Go to Select Donor Acon Edit New Select Recipient Donor TXP Center Reports Match Window Help Hai Asie XIN ORI t fea Geleck Donon AAAA AAAA AAAA AAAA AAAA AAAA AAAA A IAA AAAA Donor Nr Reg Date Identity A screen will open where on different items can be searched The following fields can be found Unique Donor number Every donor has a unique number for identification The first field of the selection screen is Donor number You must enter at least four digits in this field If the number is not complete a wildcard has to be added We call this a partial selection Example 12345 will retrieve 10 records if all recipients between 123450 and 123459 are registered at your center 1234 will retrieve 100 records if all recipients between 123400 and 123499 are registered at your center Another wildcard which you can use is the _ underscore It replaces one number for any between 0 and 9 Note The easiest way to retrieve a donor is by entering only the full unique donor number Eurotransplant Reg Date You can search a donor via the date the donor was registered Enter the date with format dd mm yyyy and a sign All donor registered on this date from your center will be shown Identity
290. x of recipient F emale or M ale Fedo ae of bh ofrecient R Bod group ofreopient a a a R Ki pdc edta Primary ET kidney disease of recipient Code table 1A Ki D LO R Pa pdc et Primary ET pancreas disease of recipient Code table 2A Pa Da ee R Li pdc etlr Primary ET liver disease of recipient Code table 3B Li BAe e Soin R He pdc et Primary ET heart disease of recipient Code table 4A He Pres Beam en emeeeren serine R Lu pdc et Primary ET lung disease of recipient Code table 5A Lu oa a aaa Left Kidney transplant sequence number Right Kidney transplant sequence number Kidney en block transplant sequence number Pancreas transplant sequence number Whole liver transplant sequence number P17 LLli seq Left lobe split liver transplant sequence number Eurotransplant Column header Explanation Notes Right lobe split liver transplant sequence number a He seq o He seq o Heart transplant sequence number HeLu seq Heart Lungs transplant sequence number 1 LLu seq Left lung transplant sequence number 1 RLu seq Right lung transplant sequence number ae aa RPheno Fullmatch phenotype ofrecipient O OoOo o Tak Transplant registration number Left kidney PrRK Transplantregiswation nomber Rightkidney Tew Transplantregistaon nomber Boh kidneys f TPa Transplant registration number Pancreas rww Transplant registration number Whoever Tars Transplant registration number Left lateral segm
291. y from NT to T status An event line will be added in the Status and Event screen after automatic upgrade of th urgency Note It is not possible to change the urgency for recipients for whom an organ has been accepted for transplantation pending the registration of the transplant The following message appears Message Code ET 71404 The urgency may not be updated except for change to FU B i ifthe recipient has an Accepted or Confirmed status on one ofthe _ WLHE_IER005 match results Please register the transplantation or inform Eurotransplant if the transplantation was not done The organ screens are accessible via the menu Go to Recipient Organ and select the correct organ The organ screen will open and information can be changed After the information is updated save the changes by F10 or via the disk 3 4 3 Register deceased When a recipient is deceased a registration in ENIS is needed Select Recipient Recipient Deceased The following screen appears Eurotransplant ETNr Recipient Name Date of Bith ABO Rh Sex HE LU LIV PA KI Special Reg Ctr EEE fenis menu ftzozgea fo Pom F fror Date of Death p Code C Comments This screen contains the following fields Date of Death Code and Comments Enter the date of death and a cause of death Code The cause of death can be selected from a list of values Whenever from the list of values Cause of Death the
292. ystic dis Focal nodular hyperplasia H05 Benign liver tumors or Polycystic dis Polycystic disease H06 Benign liver tumors or Polycystic dis Nodular regenerative hyperplasia H07 Benign liver tumors or Polycystic dis Other benign tumors specify 101 Parasitic disease Schistosomia Bilharzia 102 Parasitic disease Alveolar echinococcosis 103 Parasitic disease Cystic hydatidosis 104 Parasitic disease Others specify J Other liver diseases Code Table 3C Liver disease ICD10 codes Code Description K72 0 B15 0 Acute and subacute hepatic failure Hepatitis A with hepatic coma K72 0 B15 9 Acute and subacute hepatic failure Hepatitis A without hepatic coma K72 0 B16 0 Acute and subacute hepatic failure Acute hepatitis B with delta agent coinfection with hepatic coma K72 0 B16 1 Acute and subacute hepatic failure Acute hepatitis B with delta agent coinfection without hepatic coma K72 0 B16 2 Acute and subacute hepatic failure Acute hepatitis B without delta agent with hepatic coma K72 0 B16 9 Acute and subacute hepatic failure Acute hepatitis B without delta agent and without hepatic coma K72 0 B17 0 Acute and subacute hepatic failure Acute delta super infection of hepatitis B carrier K72 0 B17 1 Acute and subacute hepatic failure Acute hepatitis C K72 0 B17 8 Acute and subacute hepatic failure Other specified acute viral hepatitis K72

ENIS System User Manual title]

Contents

Download Pdf Manuals

Related Search

Related Contents