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northern ireland health and social wellbeing survey 1997
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1. EFUSAL CODE ALL THAT APPLY SET OF Never Hardlynever sees GP Knows GP knows respondent s BP level No Does not want to bother GP OthRes Other GIVE FULL DETAILS CIRCLE CONSENT CODE 02 ON FRONT OF CONSENT BOOKLE COMPLETE BLOOD PRESSURE TO GP CONSENT FORM ADULT 16 FORM BP A ASK RESPONDENT TO READ SIGN AND DATE IT CHECK GP NAME ADDRESS AND PHONE NO ARE RECORDED ON CONSENT FORM CHECK NAME BY WHICH GP KNOWS RESPONDENT CIRCLE CONSENT CODE 01 ON FRONT OF CONSENT BOOKLET OFFER BLOOD PRESSURE RESULTS TO RESPONDENT ENTER ON THEIR MEASUREMENT RECORD CARD COMPLETE NEW RECORD CARD IF REQUIRED NURSE CHECK RESPONDENT 15 Age65 Aged 65 Age64 Aged 16 64 I would now like to measure the length of your arm Like height it is an indicator of size MEASURE DEMI SPAN ON RIGHT ARM TO THE NEAREST MM 1st measurement cms 0 00 200 0 Is the first measurement reliable 2nd measurement cms 0 00 200 0 Is the second measurement reliable NURSE CHECK WAS Both Both measurements obtained OnlyOne Only one measurement obtained BothRef Both asurements refused NotAttep Me
2. FULL TIME EDUCATION 1 00 Yes 2 00 No 1 00 Dont Know 3 00 Refused Question not asked AGE LEFT FULL TIME EDUCATION 1 00 Dont Know 3 00 Refused Question not asked HAVE ANY OF THE FOLLOWING QUALIFICATIONS 1 00 CSE Grade 2 00 CSE Grade 2 5 3 00 CSE ungraded DK grade 4 00 Junior certificate 5 00 GCSE Grades A C 6 00 GCSE Grades D G 7 00 GCE O level 1 6 pre 1975 8 00 GCE O level Grades A C 1975 or after 9 00 GCE A level or equivalent 10 00 Senior Certificate 11 00 Recognised trade apprenticeship complete 12 00 Clerical and commercial qualifications 13 00 National Council for Vocational Qualific 14 00 City and Guilds Certificate Part I 15 00 City and Guilds Certificate Part II 16 00 City and Guilds Certificate Part III 17 00 ONC or OND BECNTEC general certificate 18 00 HNC or HND BECNTEC higher certificate 19 00 Nursing qualifications eg SEN SRN SCM 20 00 Nursing degree 21 00 Teaching qualifications 22 00 University Polytechnic diploma 23 00 University or CNAA First Degree eg BA B 24 00 University or CNAA Higher Degree eg MSc 25 00 Other qualification inc other school ex 26 00 NONE OF THESE 1 00 Dont Know 3 00 Refused Question not asked HAVE ANY OF HE FOLLOWING QUALIFICATIONS HAVE ANY OF HE FOLLOWING QUALIFICATIONS HAVE ANY OF HE FOLLOWING QUALIFICATIONS HAVE ANY OF HE FOLLOWING QUALIF
3. ED E J PRESSURE ED ti SUMMARY Blood sample results to GP SUMMARY Blood presure for storage SUMMARY Blood sample results to GP Systolic blood pressure Diatolic blood pressure LEVEL OF SYSTOLIC BLOOD PRESSURE 1 00 NORMAL 2 00 MILDLY RAISED 3 00 MODERATELY RAIS 4 00 CONSIDERABLY RAIS LEVEL OF DIASTOLIC BLOOD 1 00 NORMAL 2 00 MILDLY RAISED 3 00 MODERATELY RAIS 4 00 CONSIDERABLY RAIS Body Mass Index BODY MASS INDEX GROUPINGS 1 00 20 AND UNDER 2 00 21 25 2 400 26 30 4 00 30 CHOLESTEROL LEVEL 00 00 00 00 PWN DPA Ischaemic 00 1 00 Cardiovas 00 1 00 ESIRABLE RANGE I D lt mt GM ED 6 5 7 8 DES MILDLY RAISED 5 MODERATELY RAIS SEVERELY RAISED heart Disease no IHD 1 84 Angina or Heart Attack Ischaemic disease cular Disease Angina Heart Attack or Stroke no CVD cardio disease SELFPER TEETOT NSMOK1 SYSTGP1 DIATGRP1 BMIGRP1 DIATGRP2 ILLNESS ILLNESS1 ILLNESS2 self perception of height 1 00 WEIGHT A LOT LESS THAN SHOULD 2 00 WEIGHT A LITTLE LESS THAN SHOULD 3 00 WEIGHT JUST ABOUT RIGHT 4 00 WEIGHT A LITTLE MORE THAN SHOULD 5s WEIGHT A LOT MORE THAN SHOULD all respondents drinking 1 00 never 2 00 used to 3 00 up to 7 unit
4. ED TUBE ESNO ned tained OOD SAMPLE Pl tempt necessary Some blood obtained but respondent felt Unable to use tourniquet Other GIVE ETAILS A I ASON WHY NO BLOOD WAS OB CODE NotSuit Anxious Fainted OthRsn APPLY SET No suitable or no palab AINI ED e veincollapsed veins Respondent was too anxi Respondent felt faintfa Other GIVE FULL D ETAILS CROSS OUT CONSENT CODES 03 05 AND FRONT OF CONSENT BOOK 08 AND 10 ON Would you lik analysis ousnervous inted 07 IF ALREADY CIRCLED ON EPLACE WI to be sent the resul RONT OF CONSENT BOOKLET TH CONSEN Cont T CODES 04 06 nue ts of your blood sample consbp consbld consblgp constore consresp SYSTOT DIATOT SYSTGP DIATGRP BMI BMIGRP FAT ISCHD CVDEASE SUMMARY Blo SUMMARY OF CONSENTS BLOOD PRESSURE od presure to GP OF CONSENTS SAMPLE OF BLOOD Sample of blood to be taken OF CONSENTS BLOOD SAMPLE RESULTS TO GP OF CONSENTS BLOOD STORAGE OF CONSENTS BLOOD SAMPLE RESULTS TO RESPONDENT
5. 1 00 3x00 1 66000 308 NUMEMPO HOW MANY 1 00 2 00 3 00 1 00 3 5 0 0 1 66000 308 1 10 ployees 14 24 25 49 90 249 250 499 500 or more Dont Know Refused Question not asked Yes No Dont Know Refused Question not asked OTHER PEOPLE EMPLOYED 1 5 employees 6 24 employees 25 or more Dont Know Refused Question not asked SOC2 1520 0 3 00 1 66000 308 OCCUPATION CODE Dont Refus Quest Know ed ion not asked h ths nths rs rs SICO INDUSTRY CODE 1 00 Dont Know 3 00 Refused 1 66000 308 Question not asked SEGO SOCIO ECONOMIC GROUP CODE 1 00 Employer govt industry 2 00 Manager govt industry 3 00 Professional self employed 4 00 Professional employee 5 00 Intermediate non manual 6 00 Junior non manual 7 00 Personal service 8 00 Foremen manual 9 00 Ski ed manual 10 00 Semi skilled manual 11 00 Unskilled manual 12 00 Own account workers 13 00 Farmer employer manager 14 00 Farmer own account 15 00 Agricultural worker 16 00 Armed forces 17 00 Inadequate definition 18 00 No gainful occupation 1 00 Dont Know 3 00 Refused 1 66000 308 Question not asked FLPT EMPLOYED FULLTIME OR PARTTIME 1 00 Full time 2 00 Part time 1 00 Dont Know 3 00 Refused 1 66000 308 Question not asked LNUNEMP HOW LONG OUT OF WORK
6. It will also allow us to monitor over time whether smoking habits change Avoid reminding respondents of the health risks of smoking in case it biases their replies We are interested in looking at ordinary tobacco which is smoked Ignore any references to snuff chewing tobacco or herbal tobacco Include hand rolled cigarettes By ever smoked we mean even just once in their life 87 DRINKING BEHAVIOUR Again those aged 16 17 have to complete the self completion section We are only interested in alcoholic drinks not in non alcoholic or low alcohol drinks Make sure that the respondent is aware of this This is why we exclude canned shandy which is very low in alcohol However shandy bought in a pub or made at home from beer and lemonade does have a reasonable alcohol content and so is included We are interested in the frequency of drinking all types of drink in a category so if someone says that they drink gin once a month vodka three or four times a week and bacardi breezers etc now and again ask them to tell you how often they drink any kind of spirit If the respondent says the amount they drink varies greatly ask them to think of the amount they would drink most often Again the amount refers to the whole group of drinks not to a particular drink within a group Spirits are recorded in singles A nip or a tot should be treated as singles If the answer is a glass of spirit you will be able to check using the sho
7. 1 00 ex non 2 00 1 19 3 00 20 5 WMNGRP 5 RFEALCO RELRESP CURRCIG Mens drinking statu 00 00 00 00 00 OP PN TP Ex non dri 0 TO MODERATE FAIRLY HIG HIGH Over Womens drinking sta 00 00 00 00 00 Q N P Revised femal Ex non dri LOW 0 TO s nk 10 UNITS gt 10 TO 21 UNITS H gt 21 TO 50 50 Cus nk 7 UNITS MODERATE FAIRLY HIG HIGH Over alco gt 7 TO 14 UNITS H 14 TO 35 35 hol units Religion of selected respondent 1 00 2 00 Catholic Protestant Current cigarette smokers Current ci Other Ex garette smoker and Non smokers NORTHERN IRELAND HEALTH AND WELLBEING SURVEY INTERVIEWER INSTRUCTIONS CONTENTS 1 Background 2 The survey 3 Summary of survey design 3 1 Survey outline 3 2 The interviewer visit 3 3 The nurse visit 4 Survey materials 5 Notifying the police 6 Introducing the survey T Liaising with your nurse partner 8 The Individual Questionnaire 1 BACKGROUND AND AIMS The Northern Ireland Health and Social WellBeing Survey is the first of in a series of surveys commissioned by the Department of Health and Social Services and the Nothern Ireland Health Boards It is planned to repeat the survey every 3 years The survey s objective is to monitor trends in the population s health over time It is very similar to the Health Sur
8. 3000 3999 58 77 per week 4 00 4000 4999 78 96 per week 5 00 5000 5999 97 115 per week 6 00 6000 6999 116 135 per week 7 00 7000 7999 136 153 per week 8 00 8000 9999 154 192 per week 9 00 10000 11999 193 230 per week 10 00 12000 14999 231 289 per week 11 00 15000 17999 290 346 per week 12 00 18000 19999 347 385 per week 13 00 20000 22999 386 442 per week 14 00 23000 and Over 443 per week or over 1 00 Dont Know 3 00 Refused 1 66000 308 Question not asked TIMEHERE LENGTH OF TIME AT ADDRESS 1 00 less than 6 months 2 00 6 months but less than 1 year 3 00 1 year but less than 2 years 4 00 2 years but less than 3 years 5 00 3 years but less than 5 years 6 00 5 years but less than 10 years 7 00 10 years or longer 8 00 Never lived at another address 1 00 Dont Know 3 00 Refused 1 66000 308 Question not asked TIMEPREV LENGTH OF TIME AT PREVIOUS ADDRESS 1 00 less than 6 months 2 00 6 months but less than 1 year 3 00 1 year but less than 2 years 4 00 2 years but less than 3 years 5 00 3 years but less than 5 years 6 00 5 years but less than 10 years 7 00 10 years or longer 8 00 Never lived at another address 21 00 Dont Know 3 00 Refused 1 66000 308 Question not asked RELIGI BELONG TO PARTICULAR REL
9. More More so than usual Same Same as usual Less Less so than usual MuchL Much less than usual Have you recently been able to face up to your problems More More so than usual Same Same as usual Less Less able than usual MuchL Much less able Depress Confid Worthles 01 tablets Nervill nave you recent nave you recent nave you recent Have you recent all things cons More More so Same About sa Less Less so Are you taking a Do you think tha worthless perso ly ly ly ly id th me th ny n been feeling unhappy and depressed been losing confidence in yourself been thinking of yourself as a been feeling reasonably happy ered an usual as usual an usual NuchL Much less than usual edicine or tablets for your nerves you have a nervous illness SOCIAL socl SHAPPY LOVE RELY TAKECARE ACCEPT FEELPART SUPENCOR SUPENend NOTEMETH SUPPORT SECTION Now I d like to ask you something about your family and friends those who don t heir family and friends he following statements hav will you pleas including those who live with you as well as b n made by people about read them and ell me how true they are for you CONTINUE The
10. Vigorous activities such as running lifting heavy objects participating in strenuous sports MODACT Does your health limit you in moderate activities such as oving a table pushing a vacuum cleaner bowling or playing golf GROCERY Does your health limit you in lifting or carrying groceries CLIMBSEV Does your health limit you in climbing several flights of stairs CLIMBONE Does your health limit you in climbing one flight of stairs BENDING Does your health limit you in bending kneeling or stooping WALKMILE Does your health limit you in walking more than a mile WALKHALF Does your health limit you in walking half a mile WALKYARD Does your health limit you in walking 100 yards BATHDRES Does your health limit you in bathing and dressing yourself PROBLEM During the past 4 weeks have you had any of the following problems with your work or other regular daily activities as a result of your physical health Have you cut down on the amount o or other activities as a result o time you spent on work your physical health Fh Fh ACCOMP During the past 4 weeks have you accomplished less than you would like as a result of your physical health LIMIT1 During the past 4 weeks were you limited in the kind of work or other activities you did as a result o
11. health check it is not One of the most common reasons given in England for respondents refusing to see the nurse is I don t need a medical check I have just had one Avoid getting yourself into this situation You are asking the respondent to help with a survey 10 2 Being persuasive It is essential to persuade reluctant people to take part if at all possible You will need to tailor your arguments to the particular respondent meeting his or her objections or worries with reassuring and convincing points This is a skill that will develop as you get used to visiting respondents If you would like to discuss ways of persuading people to take part speak to the interviewers or ring the office 10 3 Broken appointments If someone is out when you arrive for an appointment it may be a way of telling you they have changed their mind about helping you On the other hand they may have simply forgotten all about it or had to go out on an urgent errand In any case make every effort to re contact the person and fix another appointment Start by leaving a Broken Appointment Card at the house saying that you are sorry that you missed them and that you will call back when you are next in the area Try telephoning them and find out what the problem is Allay any misconceptions and fears Make them feel they are important to the success of the survey A chat with your interviewer partner might help She he might be able to give you an indication o
12. if there is an abnormal result Therefore the GP address should be as full as possible and the telephone number should include the local area code At the end of the interview thank the respondent for all their help We will be writing to thank them also Fill in the time that the interview ended at Q44 and work out the length of the interview Remember to fill in the date of the interview and your nurse number How to despatch the blood samples to the laboratory is described in section 21 14 ENTERING DATA ON THE COMPUTER AND RETURNING WORK 14 1 Record details of the Nurse Schedule on the laptop computer Details of procedures will be supplied in a separate document 14 2 Returning work to the office Post the the NRF Consent Forms and the Nurse Schedules back to the office the same day as you send the blood samples to the laboratory or in time the following day to catch that day s post Referral back to GPs and respondents in the event of any serious abnormalities can be seriously delayed if work is not returned promptly by nurses Before returning work check that you have all the documents you should have and that they are properly serial numbered and so on Check that they match with your NRF entries The documents you should return for each person are the Consent Booklet Nurse Schedule and NRF For confidentiality reasons NEVER send the Nurse Schedule back in the same envelope as its NRF or Consent Booklet Always post th
13. 1 5 Which organisations are you registered as disabled with please give all of them SET 4 OF Dept Department of Education taea Training and Employment Agency comt Community Trusts Other Other specify regists List all others USE OF HEALTH SERVICES SECTION GPtalk During the two weeks ending yesterday apart from any visit to a hospital did you talk to a doctor on your own behalf either face to face or by telephone Numtalk How many times did you talk to a doctor in these two weeks DocLst Apart from any visit to a hospital when was the last Time you talked to a doctor on your own behalf either face to face or on the telephone GPSpec Was the doctor GP GP or family doctor Spec Specialist Other Some other kind of doctor OthDoc What kind of doctor did you talk to on the last occasion trvtime When you visit your GP how long does it usually take you to get there from when you leave home less5 Less than 5 minutes t5tol0 5 minutes but not 10 minutes t10tol5 10 minutes but not 15 minutes t15to30 15 minutes but not 30 minutes t30to45 30 minutes but not 45 minutes t45tolh 45 minutes but not one hour tlhr One hour or longer never GP visits respondent work Don t usually go from home go from work etc Cr t CD trvtimw How long does it usually take you to get there from work etc less5 Less than 5 minutes t5tol0 5 minutes but not 10
14. APPLIES employer with an employer or on a project providing rience or practical training r at a college or training course RENT EMPLOYMENT STATUS 00 Dont ed last week from work last week ing to take up job ing for work looking sick omically inactive sed Know Question not asked LOOKING FOR WORK IN LAST 4 WEEKS Ts 24 00 Yes 00 No 00 Dont 00 Refu Know sed Question not asked IF WORK AVAILABLE START WITHIN 2 WEEKS Ty 2 L c 00 Yes 00 No 00 Dont 00 Refu Know sed Question not asked EVRWORK EVER HAD 1 00 2 00 1 00 3 00 1 66000 308 PAID JOB Yes No Dont Know Refused Question not asked OCCUPO OCCUPATION TITLEO JOB TITLE FULLYO FULLY DESCRIBE JOB INDUSTO INDUSTRY EMPSEMPO EMPLOYED 1 00 2 00 1 00 3 00 1 66000 308 OR SELF EMPLOYED An Employee Self Employed Dont Know Refused Question not asked ESESTATO LEVEL EMPLOYMENT 1 00 2 00 3 00 1 00 52400 1 66000 308 Manager Foreman Supervisor Employee Dont Know Refused Question not asked MANYEMPO NUMBER OF EMPLOYEES IN ESTABLISHMENT 00 00 00 00 00 6 00 cL 3 0 0 1 66000 308 Or WN EMPOTHO EMPLOY ANY OTHER PEOPLE 1 00 2 00
15. BENEFI RECEIVING ANY STATE BENEFI RECEIVING ANY STATE BENEFI RECEIVING ANY STATE BENEFI RECEIVING ANY STATE BENEFI RECEIVING ANY STATE BENEFI RECEIVING ANY STATE BENEFI RECEIVING ANY STATE BENEFI TOTAL ANNUAL GROSS HOUSEHOL 1 00 Less than 2000 2 00 2000 2999 3 00 3000 3999 4 00 4000 4999 5 00 5000 5999 6 00 6000 6999 7 00 7000 7999 8 00 8000 9999 9 00 10000 11999 10 00 12000 14999 11 00 15000 17999 12 00 18000 19999 13 00 20000 22999 14 00 23000 and Over 1 00 Dont Know 3 00 Refused 1 66000 308 Question not asked 5 ce National Insurance Allowance National In nsion amp any related Allowance Allowance Allowance it Jobseekers allowanc Seekers allowance received in a lump su Disablement Benefit 5 2 5 5 2 5 5 5 2 52 5 2 5r 5 S 5 5 5 5 D INCOM Pl 40 per week 40 57 per week 58 77 per week 78 96 per week 97 115 per week 116 135 per week 136 153 per week 154 192 per week 193 230 per week 231 289 per week 290 346 per week 347 385 per week 386 442 per week 443 per week or over ANNUAL TOTAL ANNUAL GROSS PERSONAL INCOME 1 00 Less than 2000 40 per week 2 00 2000 2999 40 57 per week 3 00
16. Home Work Vis Visiting family or friends leis Places where you go in your leisure time e g Pub club other OWRPSSM PLEASE SPECIFY EVDRNK Do you ever drink alcohol nowadays including drinks you brew or make at home TOTABS May I just check does that mean that you never have an alcoholic drink nowadays or do you have an alcoholic drink very occasionally perhaps for medicinal purposes or on Special occasions like Christmas or New Year VOcc Very occasionally Never ALWAYS Have you always been a non drinker or did you stop drinking for some reason Always Always a non drinker Stop Used to drink but stopped ILLSTP Did you stop drinking because of a particular health condition you had at the time or for some other reason IF STOPPED BECAUSE PREGNANT CODE AS SOME OTHER REASON Healthcd Because of health condition SomeOth Some other reason WYSTP About how often have you had an alcoholic drink of any kind in the last 12 months EvDay Almost every day Fivedays 5 or 6 days a week Thredays 3 or 4 days a week Oneweek Once or twice a week Onemonth Once or twice a month Months Once every couple of months Oneyear Once or twice a year NotDrink Not at all in the last 12 months DRTYPE 0 5 Will you please tell me which of these kinds of drink you have drunk at all in the last 12 months do not need to know about
17. Rating Systolic Diastolic NEW PAGE 11 March 1994 Normal lt 140 and lt 85 Mildly raised 140 159 or 85 99 Moderately raised 160 179 or 100 114 Considerably raised 180 or more or 115 or more Men aged 50 or over Normal lt 160 and lt 95 Mildly raised 160 169 or 96 104 Moderately raised 170 179 or 105 114 Considerably raised 180 or more or 115 or more NB lt less than gt greater than or equal to 16 6 Action to be taken by the nurse after the visit The chart below summarises what action you should take as a result of the knowledge you have gained from taking the blood pressure readings For this purpose you should only take into account the last two readings as the first reading from the Dinamap is prone to error for the reason stated above Contact details of the doctor responsible for dealing with queries regarding blood pressure readings will be sent to you shortly If for any reason you cannot speak to the Dr call the office Do not hesitate to contact the survey doctor whenever you feel you need advice about what to do after seeing a respondent BLOOD PRESSURE ACTION Normal mild moderate bp No further action necessary Systolic lt 180 mmHg and If you feel that the circumstances demand Diastolic lt 115 mmHg further action inform Dr lt gt who will then inform the respondent s GP immediately if he deems it necessary Severely raised bp Contact Dr lt gt at the earliest opportunity who wi
18. Schedules Consent Booklets Set of labels for blood sample tubes Drug coding booklet Appointment Diary Broken Appointment Cards Information leaflets Stage 2 Measurement Record Cards Equipment Pilot bag checklist Dinamap 8100 Thermometer and probe Insertion tape Spring Balance Vacutainer equipment for blood sample Other blood sample equipment see Protocol for taking blood British National Formulary BNF The equipment is described in more detail later in the sections on the measurement protocols 7 NOTIFYING THE POLICE The interviewer with whom you will be working is responsible for notifying the police about the survey and for informing them that the two of you will be working in the area Your interviewer partner will need to collect some details about your car so that he she can fill in the necessary details on the letter to be left with the police You can then tell respondents that the police know all about the survey Some respondents find this very reassuring and some will telephone the police to check that you are a genuine survey worker before agreeing to see you 8 LIAISING WITH YOUR INTERVIEWER PARTNER You and your interviewer partners will need to work very closely together so a good working relationship is essential In order to help forge this it is important that you contact each other and have a chat over the telephone before you start work The interviewers have been told to make this contact wi
19. Year 6 months but less than 1 year ago Have you ever had a cervical smear test Have you ever been invited or advised to have a cervical smear test ld you please tell me from this card why you didn t have a cervical smear test at that time SET OF Pain Emb Time Place Other Other reason Please specify what was Do you have your sight te sted INCLUDE TESTS IN HOSPITAL How often do you have you one Once a year or more o Two Less than once a year Less Less often than once e r sig ften but a very the reason regula ht tes t leas two ye DTrust I didn t think it would help me I was afraid it might be painful I was too embarrassed Male I would have had to be examined by a male I I couldn t go at a convenient time couldn t have it at a convenient place rly by an optician ted t once every two years ars May I just check have you still got some of your natural teeth DentVs Do you go to the dentist INCLUDE VISITS TO ORTHODONTIST Visits to dentist Regly for a regular check up Occly for an occasional check up Trouble or only when you are having trouble with your teeth Never SPONTANEOUS Never goes to dentist HowReg How often do you go to the dentist for a check up SixMth At least once every six months LessSix Less often than once every six months but at least once a ye
20. a visit If you get this wrong you will not only probably lose the respondent but you will irritate your nurse You will need to liaise frequently in order to update this information Ideally you will provide the nurse with an even spread of work and minimise the number of visits he or she has to make to the area But of course this might not always be possible Allow at least for a nurse visit You will know how long a nurse will need to get from one address to another if you are making appointments on the same day Do not under estimate these times otherwise this will cause problems to both nurses and respondents THE QUESTIONNAIRE 81 OVERALL STRUCTURE OF QUESTIONNAIRE Description Household grid General h hold details General health Lifetime incidence of common conditions Disabilities Use of health services Stress SF36 GHQ12 Social support Smoking Drinking Diet Caring Child disability Parenting problems Classification questions Consent to nurse visit 8 1 HOUSEHOLD GRID Name Record the first name only Age Children less than 1 year should be recorded as 00 82 INCIDENCE OF COMMON CONDITIONS Blood Doctors may use a variety of euphemisms to describe high blood pressure so code as higher than normal anything such as slightly raised moderately raised a little high etc We are only interested in blood pressure measurements taken by a doctor or nurse We do not want to know if people had their blood
21. about how the household was sampled Some points you might need to cover the following who you are working for CSU see section 3 who the survey is for for the Department of Health and Social Services and the N I Health Boards v why the survey is being carried out see sections 1 and 2 e what you are going to do see section 11 v how the household was selected for the survey their address was selected from the Valuation and Lands Agency list of addresses One respondent is selected at random at each address for the physical measures The way respondents are selected means that they form a true cross section of the population of adults aged 16 and over in Northern Ireland Once a respondent is selected we cannot substitute anyone else Otherwise we would no longer have a proper sample of the population of adults aged 16 and over 5 the confidential nature of the survey individual information is not released to anyone outside the research team v how much time you need this varies a bit but it is best to allow about 45 minutes including time to put equipment away and so on Only elaborate if you need to introducing one new idea at a time Do not give a full explanation right away you will not have learned what is most likely to convince that particular person to take part Do not quote points from the boxes except in response to questions raised by the respondent Be careful to avoid calling your visit a
22. all relevant signatures 19 5 Preparing the respondent Ask the respondent if they have had any problems having blood taken before 1 Explain the procedure to the respondent They should be seated comfortably in a chair or if they wish lying down on a bed or sofa Ask the respondent to roll up their left sleeve and rest their arm on a suitable surface Ask them to remove their jacket or any thick clothing if it is difficult for them to roll up their sleeve The antecubital fossae may then be inspected It may be necessary to inspect both arms for a suitable choice to be made and the respondent may have to be repositioned accordingly Do not ask the respondent to clench his her fist Select a suitable vein and apply the tourniquet around the subject s arm In certain cases the tourniquet may have to be applied to locate a reasonable vein However it is desirable to use the tourniquet applying minimal pressure and for the shortest duration of time Do not leave the tourniquet in place for longer than 2 minutes Ask the respondent to keep his her arm as still as possible during the procedure Put on your rubber gloves at this point Clean the venepuncture site gently with an alcohol swab Allow the area to dry completely before the sample is drawn 19 6 Taking the sample 5 Venepuncture is performed with a twenty one gauge vacutainer needle or butterfly Grasp the respondent s arm firmly at the elbow to control the natural
23. and efficient Fresh equipment is used for every sample over 30 000 people have already given blood samples on the Health Survey for England If a person is reluctant the interviewer is asked to stress the point that all they wish to do is to make an appointment for you to go along and explain exactly what is involved They point out that by agreeing to see you they are not necessarily agreeing to take part in all or any of the tests We hope your general professional approach will convince nervous respondents more effectively than can an interviewer At the end of the interview each respondent is given a Stage 1 Information Leaflet blue by the interviewer This leaflet briefly describes the purpose of your visit You have been given a copy of this leaflet You will be giving respondents a Stage 2 Information Leaflet salmon This describes in greater detail the measurements and tests involved at Stage 2 8 3 Appointment Record Card The interviewer will give each respondent an Appointment Record Card The respondent can use it to record the appointment time you agree with them it will also remind them that we would like them to avoid eating smoking and drinking alcohol for 30 minutes before you arrive It also asks them to wear light non restrictive clothing and to find their medicine containers A copy of this card is in your supplies for information You should remember to mention after the appointment has been agreed that would li
24. flight of 12 steps if you hold rests with some of bed with NOTE in and out of a chai ty or can you only to help you NOTE ne IF CONFINED TO toilet on your on you get in and ou IF CHAIRBOUND own with some of a chair with own with some the toilet with y of them apply 8 a volume other wearing a hearing aid if enough to recognise a yards away lenses if normally undress without difficulty difficulty understanding difficulty or can you only get to and use someone to help you You have told me you cannot What health condition has caused this these difficulty ies PROBE FOR FULL DETAILS INCLUDING Was it caused by anything else What does the doctor call this condition What does the doctor say causes this difficulty NOTE IF MORE THAN ONE HEALTH CONDITION SHOW CARD 6 CODE ALL THAT APPLY What about the things on this card do an to you NONE OF HESE CODE tv Cannot follow a TV programme at people find acceptable normally worn but not using teletext see Cannot see well friend across the road or four with glasses or contact worn Speak Cannot speak without difficulty dress Cannot dress and wash Cannot wash hands and face without difficulty feed Cannot feed including cutting up food without difficulty commun Have difficult
25. non alcoholic or low alcohol drinks Shandy Shandy exclude bottlescans Beer Beer lager stout cider INCLUDE BOTTLESCANS Spirit Spirits or liqueurs e g gin whisky rum brandy vodka advocaat cherry brandy Sherry Sherry or martini port vermouth cinzano dubonnet Wine Wine champagne baby cham OthDrnk Other alcoholic drink SHNDY How many pints of shandy do you drink in a typical week CONVERT1 MNYSHNDY CONVERT2 BEERPINT CONVERT3 MNYBEER CONVERT4 SPIRITS CONVERT5 MNYSING CONVERT6 SHERRY1 CONVERT7 MNYSHERY CONVERTS CHAMP CONVERT9 MNYCHAMP CONVER10 CONV E RT TO UNITS How many pints of shandy do you drink in a typical month CONV E RT TO UNITS How in a any pints of beer typical week lager stout or cider do you drink CONVERT TO UNITS How in a many pints of beer typical month lager stout or cider do you drink CONVERT TO UNITS Here is a picture to show you what a single measure of Spirits in a pub looks like in different glasses If you drink at home you may not pour out exactly the same amount but I d like you to estimate how many singles like this of Spirits or liqueur you drink in a typical week CONVERT TO UNITS Here is a picture to show you what a single measure of Spirits in a pub looks like in different glasses If you drink at home you may not p
26. o ECIAL HI ELP CONFIRM HAS NO SPECIAL RESPONSIBILITIES BECAUSE OF k after or help one sick is living with you or is it more than one person ENTER NUMBER OF D with you DEPEND Do you loo TOTDEP ENTER TOTA k after or help one sick person living elsewhe ENTER NUMBER OF D L NO OF DEPENDANTS disabled or elderly EPENDANTS IN HOUSEHOLD ne regular service or help for any sick r elderly relative friend or neighbour not living disabled or elderly RELATE THIS SECTION IS REPEATED FOR EACH DEP ENDANT Who is it that you look after or help Ask of those living in the household first living elsewhere Parent Parent Parentp Parent in law GParent Grandparent Spouse Spouse partner BroSis Brothersister Child Child incl stepchild OthRel Other related Friend Friendneighbour unrelated OthUnrel Other unrelated re or is it more than one person EPENDANTS NOT LIVING IN HOUSEHOLD then those OTHER Depname DPERSN AGE sex MAINC WRONG DEPTYP WHATDO OTHCAR HWLONG WHATHOUR NAME OR RELATIONSHIP BY WHICH DEPENDANT WILL Pl TO IN THE FOLLOWING QUESTIONS NO OF DEPNAME What is this person to yo
27. of classification These should be recorded in a six digit format using a leading zero where appropriate You have a copy of the BNF make sure it is the 1995 version in your Dinamap bag You also have a Drug Coding Booklet which lists the 200 most commonly used drugs in alphabetical order and gives their BNF classification code Taking Premarin as an example the alphabetic listing gives the entry 06 04 01 Enter this in the boxes provided on the Nurse Schedule headed BNF code Alternatively if you had looked up Premarin in the BNF itself you would have found it listed in section 6 4 1 1 It is classified down to a fourth level For our purposes we are only interested in the reference 6 4 1 With leading zeros this becomes 06 04 01 If you cannot find a drug in the BNF or it has more than one reference and you are not sure how to deal with it record its full name clearly and what it is being taken for If the respondent takes aspirin 97 or salazyopyrin 98 record the dosage as this can vary Any dietary supplements that are prescribed should be recorded at Q4 This is just asking about non prescribed diet supplements eg multi vitamins iron tablets etc The rest of this schedule is concerned with the various measurements you have to make and with obtaining blood samples The protocols for doing these are given separately The rest of this section describes how to introduce these how to record the measurements on the Nurse Sc
28. say causes this difficulty Can you dress and undress on your own with some difficulty or can you only dress and undress with someone to help you Can you wash your hands and face on your own with some difficulty or can you only wash your hands and face with someone to help you Can you feed yourself including cutting up food with some difficulty or can you only feed yourself with someone to help you Do you have any difficulty communicating with close members of your family that is difficulty with understanding close members of your family or making them understand you Are your communication difficulties to do with your speech Are your communication difficulties to do with your hearing Are your communication difficulties to do with your vision CONDIT1 You have told me you cannot What health condition has caused this these difficulty s PROBE FOR FULL DETAILS INCLUDING Was it caused by anything else What does the doctor call this condition What does the doctor say causes this difficulty NOTE IF MORE THAN ONE HEALTH CONDITION I HSS May I check have Health and Social Services made any recommendations about adaptations to your accomodation to ake things easier for you or to make it safer ADAPT Have any adaptations been carried out because of these recommendations REGIST May I check are you registered as disabled Reg
29. tendency for the respondent to pull the arm away when the skin is punctured Place your thumb an inch or two below the vein and pull gently to make the skin a little taut This will anchor the vein and make it more visible Ensure the needle is bevelled upwards enter the vein in a smooth continuous motion The vacutainers should be filled to capacity and inverted gently on removal to ensure complete mixing of blood and preservative Release the tourniquet if not already loosened as the blood starts to be drawn into the tube Remove the needle and place a dental roll firmly placed over the venepuncture site Ask the respondent to hold the pad firmly for three minutes to prevent haematoma formation 7 lfvenepuncture is unsuccessful on the first attempt make a second attempt on the other arm If a second attempt is unsuccessful do not attempt to try again unless the respondent is insistent that another attempt be made Under no circumstances should you make a fourth attempt Record the number of attempts on the Nurse Schedule 8 Remove the needle from the vacutainer holder by inserting it into the slot at the top of the needle disposal box Push it towards the narrow end of the slot until the hub fins are engaged Twist the holder anti clockwise to unthread the needle Then slide the holder towards the centre of the slot allowing the needle to drop into the container IMPORTANT WARNING Never re sheath the needle after use Do not
30. the Health Boards information on health trends and monitors how well the health targets set by the Health Boards are achieved It is used to help plan NHS services It is used to help plan private medical services Results will be published and reported in the press To get an accurate picture we must talk to all the sorts of people who make up the population the healthy and the unhealthy those who use the NHS and those who use private medicine and those who like the current government s policies and those who do not Young people might think that health services are not for them now but they will want them in the future and it is the future that is now being planned Each person selected to take part in the survey is vital to the success of the survey Their address has been selected not the one next door No one else can be substituted for them No one outside the research team will know who has been interviewed or will be able to identify an individual s results The Department of Health and Social Services and the Health Boards only get a statistical summary of everyone s answers 11 INTRODUCING YOUR MEASUREMENT TASK 11 1 The introduction The interviewer will have introduced your visit but has been told to give only a brief outline of what it is about She he will have told respondents that you are the best person to explain what your visit is about So before you make any measurement you will need to explain
31. the results The measurements carried out by the nurse are an integral part of the survey data and without them the interview data although very useful cannot be fully utilised 9 3 Health is interesting and important People are interested in health and are concerned about it This is a high profile survey on a topical issue Reports about the survey will receive wide press coverage In any case your respondents have already co operated with the first part of the survey and have agreed to see you Most of them will be looking forward to your visit and will be keen to help But some may have become reluctant to co operate perhaps because they have become nervous You will need to use your powers of persuasion to reassure and re motivate such people as it is vital that they take part 9 4 Respondents are not patients Your previous contact with the public as a nurse will normally have been in a clinical capacity In that relationship the patient needs the help of the professional Your contacts with people in the course of this survey will be quite different Instead of being patients they will be people who are giving up their leisure time to help us with this survey You need their help to complete your task The way you deal with them should reflect this difference They are under no obligation to take part and can decline to do so or can agree but can then decline to answer particular questions or provide particular measuremen
32. whole country Do your best to get hold of the phone number as well including the local area code Q13 You should then offer the respondent their blood pressure readings If they would like them enter them on the respondent s Measurement Record Card The interviewer should have given them one of these with their height and weight recorded on it If the respondent has lost it or claims never to have had one make out a new one entering their name on the front of the card etc It is not the purpose of this survey to provide respondents with medical advice Nevertheless many respondents will ask you what their blood pressure readings mean Section 17 5 contains detailed guidelines on how to inform respondents about their blood pressure readings Make sure you are very familiar with this guidance We want it to be strictly followed Itis very important that as little anxiety as possible is caused but at the same time we have a duty to advise people to see their GPs if their blood pressure is raised 14 18 Demi span Demi span measurements are taken from all person aged 65 or older Q19 Q21 Height and Weight Height and weight measurements are to be taken of all respondents except those who are chairbound unsteady on their feet find it painful to stand or are pregnant Q22 Q25 Waist and hip circumferences Waist and hip measurements are taken from all respondents except those who are pregnant Each measurement is taken twice
33. 0 LOW 0 5 TO 7 UNITS 3 00 MODERATE 7 TO 14 UNITS 4 00 FAIRLY HIGH gt 14 TO 21 5 00 HIGH gt 21 TO 28 6 00 ERY HIGH gt 28 to 35 7 00 EALLY HIGH gt 35 to 50 8 00 EALLY really HIGH OVER 50 UNITS UNITS MENGRPS WMNGRPS WMNSEN1 MENSEN1 DRINKER PHYSNI Pregn Pills Names HowMany BrandNm BNFCode TakeSev Cuff AirTemp ALL MALE DRINKING 1 00 NEVER OR EX DRINKER 2 00 ESS THAN 1 UNIT 3 00 LOW 1 10 UNITS 4 00 MODERATE 10 21 5 00 FAIRLY HIGH 21 35 6 00 HIGH 35 50 7 00 VERY HIGH OVER 50 ALL FEMALE DRINKING CATEGORIES 1 00 NEVER OR EX DRINKER 2 00 ESS THAN 1 UNIT 3 00 LOW 1 7 4 00 MODERATE 7 14 5 00 FAIRLY HIGH 14 21 6 00 HIGH 21 35 7 00 VERY HIGH OVER 35 Womens se nsible drinking levels Mens sensible drinking levels Drinker or non drinker 1 00 drinker 2 00 non drinker Physical weight Can I check are you pregnant at the moment Are you taking or using any medi puffers or Could injections prescribed rups ointments puff for you by a doctor ENT ER DETAI SEE THE CON BEING TAKEN cines pills ointments for you by a doctor I take down the names of the medicines including tablets sy prescribed ers or injections 9 FOR EACH DRUG IN GRID BELOW ASK IF YOU CAN PLEASE ENT
34. 00 Refused 1 66000 308 Question not asked NUMADULT NUMBER OF ADULTS IN HOUSEHOLD NUMCHILD NUMBER OF CHILDREN IN HOUSEHOLD BOARD AREA BOARD 1 00 Northern Board 2 00 Southern Board 3 00 Eastern Board 4 00 Western Board 1 00 Dont Know 3 00 Refused 1 66000 308 Question not asked PERSCHK Interviewer code level of individual cooperation 1 00 Now 2 00 Later 3 00 No longer resident 4 00 Take proxy as last resort 5 00 REFUSAL OR FINAL NON CONTACT for this person 1 00 Dont Know 3 00 Refused 1 66000 308 Question not asked TENURE TYPE OF TENURE 1 00 Owned outright 2 00 Being bought with mortgage loan 3 00 Co ownership 4 00 Rented from NI Housing Executive 5 00 Rented from the Housing Association 6 00 Rented privately 7 00 Rented from employer 8 00 Rent free 9 00 Squatting 10 00 Other 1 00 Dont Know 3 00 Refused 1 66000 308 Question not asked FURNISH RENTED FURNISHED OR UNFURNISHED 1 200 Furnished 2 00 Partly furnished 3 00 Unfurnished 1 00 Dont Know 3 00 Refused 1 66000 308 Question not asked SHELTER SHELTERED ACCOMMODATION 1 00 Yes 2 00 No 1 00 Dont Know 3 00 Refused 1 66000 308 Question not asked BEDRMS NUMBER OF BEDROOMS CHEAT ANY KIND OF CENTRAL HEATING 1 00 No central heating 2 00 Yes full central heating 3 00 Yes partial central heating 0 0 Dont K
35. 1 00 Less than a week 2 00 1 week but less than 1 mont 3 00 1 month but less than 3 mon 4 00 3 months but less than 6 mo 5 00 6 months but less than 12 months 6 00 12 months but less than 2 years 7 00 2 years but less than 3 yea 8 00 3 years but less than 5 yea 9 00 5 years or more 1 00 Dont Know 3 00 Refused 1 66000 308 Quest ion not asked ECONOMIC INACTIVITY STATUS 1 00 Going to school or College 2 00 Permanently unable to work 3 00 Retired Men 65 Women 60 4 00 Early Retirement 5 00 Looking after the home or family 6 00 Doing something else 1 00 Dont Know 3 00 Refused 1 66000 308 Question not asked IACTSP INACTIVE SPECIFY LJOBINT EVER HAD A PAID JOB 1 00 Yes 2 00 No 1 00 Dont Know 3 00 Refused 1 66000 308 Question not asked OCCUP1 OCCUPATION TITLE1 JOB TITLE FULLY1 FULLY DESCRIBE JOB INDUST1 INDUSTRY EMPSEMP1 EMPLOYED OR SELF EMPLOYED 1 00 An Employee 2 00 Self Employed 1 00 Dont Know 3 00 Refused 1 66000 308 Question not asked ESESTAT1 LEVEL OF EMPLOYMENT 1 00 Manager 2 00 Foreman Supervisor 3 00 Employee 1 00 Dont Know 3 00 Refused 1 66000 308 Question not asked MANYEMP1 NUMBER OF EMPLOYEES IN ESTABLISHMENT 1 00 1 10 ployees 2 00 11 24 3 00 25 49 4 00 50 249 5 00 250 499 6 00 500 or more 1 00 Dont Kn
36. 1 00 Yes 2 00 No O O Dont Know 3 00 Refused 1 66000 308 AGREE 1 00 2 00 1 00 3 00 1 66000 308 INDVNI 1 00 3 00 1 660004308 NEWSMK2 cigar 2 00 NEWSMK3 3 00 DRKALL AGEGRP1 1624 00 2534 00 3544 00 4554 00 5564 00 6574 00 75120 00 Question not asked FORM SIGNED FOR FOLLOWUP Signed consent form Did not sign consent form Dont Know Refused Question not asked INDIVIDUAL WEIGHTING FACTOR Dont Know Refused Question not asked smokers cigars pipe smokers pipe Drinking recode Age group of respondent 16 24 25 34 35 44 45 54 55 64 65 74 75 CTHPRD SOCIALC SOCIALCC SMOKAGG NUMSMK ACTIVE NONMAN NEVER EXSMKER NONSMKE religion 1 00 catholic 2 00 protestant 3 00 other Social Class 100 00 SCI 200 00 SCII 300 00 SCIIIn 400 00 SCIIIm 500 00 SCIV 600 00 SCV SOCIO ECONOMIC GROUP 100 00 PROFESSIONAL OCC 200 00 MANAGERIAL amp TECH 300 00 SKILLED NON MAN 400 00 SKILLED MANUAL 500 00 PARTLY SKILLED 600 00 UNSKILLED Smoking recode 1 00 Current Smokers 2 00 Ex Smokers 3 00 Never Smoked Average Cigarettes bands per day 100 00 1 9 200 00 10 19 300 00 20 ECONOMIC ACTIVITY 1 00 EMPLOYED 2 00 UNEMPLOYED 3 00 INACTIVE MANUAL NON MANUAL CLASSIFICATION 1 00 NON MANUAL 2 00 MANUAL SMOKING STA
37. ANT HIGHBLOD PILLS STILHIGH EVERTAKE WHYSTOP OTHERRSN ANYOTHER ADVT 1 5 OTHERAD DOCT 1 9 PASTANG PASTATAK PASTMURM AND ILL HEALTH SECTION You have told me about your general health Now I d like to ask you about some particular conditions First have you ever been told by a doctor or a nurse that you had high blood pressure May I just check you had high blood Have you ever had were pregnant Are you currently were you pregnant pressure high blood pressu taking any medici for high blood pressure Do you still have Have you EVER take blood pressure in Why did you stop t high blood pressu n medicines tabl the past aking medicines high blood pressure Doctor advised to stop because of improvement Just decided to other What other reason stop s do you have f when you were told that re APART from when you nes tablets or pills re ets or pills for high tablets or pills for or not taking medicines tablets or pills for high blood pressure STRING 50 Have you had any other kind of treatment or advice because of your high bloo W diet exercise smoking drinking oth oth What other kind o STRING 50 d pressure er hat other treatment or advice have you had SET 5 OF f treatment or advice have you had Have you ever been told by a doctor that you
38. ER TOTAL NUMBER OF DRUGS LISTED ON THE NURSE SCH EDULE AINERS FOR ALL PRESCRIBED MEDICINES CURRENTLY RECORD BRAND NAME IN BLOCK CAPITALS RECORD BNF CODE Fa Have you taken or used this drug 7 days SEL SAdult Adult Adult ELAdult ENT in the last ECT CUFFRECORD CUFF SIZE CHOS EN Small Adult Large adult ER AMBIENT AIR TEMPERATURE 17 25 cm Adult 23 33 31 40 cm Extra large adult 38 50 cm SYSTOL PULSE DIATOL MAP2 SYSTOL2 PULSE2 DIATOL2 MAP3 SYSTOL3 PULSE3 DIATOL3 NCheck4 WhyBlood OthBlood NCheck6 Cons Prob OthProbm TAKE THREE MEASUREMENTS FROM RIGHT ARM AND RECORD BELOW RECORD MAP mmHg RECORD SYSTOLIC mmHg RECORD PULSE bpm RECORD DIASTOLIC mmHg TAKE THREE MEASUREMENTS FROM RIGHT ARM AND RECORD BELOW RECORD MAP mmHg RECORD SYSTOLIC mmHg RECORD PULSE bpm RECORD DIASTOLIC mmHg TAKE THREE MEASUREMENTS FROM RIGHT ARM AND RECORD BELOW RECORD MAP mmHg RECORD SYSTOLIC mmH
39. GNA URE FOR PART II OF BLO IF R ESPOND P SIGNS ASK FOR CONS OD SAMPLE CONS ENT FORM NT IS 16 17 ENSURE PAR ENT PAR ENT ALSO ENT TO STORE ANY R Gl MAIN SAMPLE Co Co nRefd OBTAIN SIGNA FOR F nGiven UTURE ANALYSIS Storage consent give Consent refused URE AT PART III OF BLO IF RE SPOND EN ING BLOOD FROM TH OD SAMPLE CONS ENT FORM IS 16 17 ENSURE PAR ENT PARENT ALSO SIGNS CIRCLE CONS ENT CODE 07 ON FRONT OF Con tinue CIRCLE CONS CONSENT BOOKLE ENT CODE 08 ON FRONT OF TA A aN KING BLOO SIGNATURES E BLOOD SAMPLE D SAMPLE CH ECK YOU HAVE CONSENT BOOKLE ALL APPLICABL 22 FILL 2 tubes CODE B Ob No tain tObt RECO Rig Lef t CODI No Incomp PoorVein SecAttem Faint Unable OthBProb TUB LOOD SAMPLE RD WHICH ARM BLOOD TA E FILL ED INCLUDE PARTIA OUTCOME Blood sa NO blood ple obtai sample ob K EN FROM ECORD ANY PROBLEMS IN TAKING BL ALL THAT APPLY SET OF NO problem Incomplete sample Collapsingpoor veins Second at faintfainted LLY FILL
40. H 2 The Consent Booklet contains a despatch note that should be filled in and sent to the laboratory with the blood sample Be sure you use the correct despatch note use DESPATCH 2 for sending blood samples to the laboratory Enter the respondent s serial number very carefully This should both correspond to your entry on page 1 of the Consent Booklet and to the serial numbers you have recorded on the tube A Ringacode to tell the laboratory whether or not permission has been obtained to store part of the blood Your entry here should correspond to your entry at Item 9d on the front page of the booklet Enter your Nurse Number Tear off this despatch note and send with the blood to the laboratory Complete the Office Despatch Note DESPATCH 1 on the previous page of the Consent Booklet This tells us the date you sent samples to the lab and indicates what we should expect back from the laboratory Useful hints for analysis The dataset from the Northern Ireland Health and Social Wellbeing Survey 1997 contains 4236 full interviews WEIGHTING Analysis of the data requires weights to be applied due to the nature of the sampling Two weights were required Northern Ireland Weights Selecting equal samples from each of the four Health Boards means that overall the survey will not accurately reflect the Northern Ireland population This is because the Northern Ireland population is not equally dispersed over the four boards and
41. ICATIONS HAVE ANY OF HE FOLLOWING QUALIFICATIONS HAVE ANY OF HE FOLLOWING QUALIFICATIONS HAVE ANY OF HE FOLLOWING QUALIFICATIONS HAVE ANY OF HE FOLLOWING QUALIFICATIONS HAVE ANY OF HE FOLLOWING QUALIFICATIONS WHAT OTHER QUALIFICATIONS INCOME AND BENEFIT SECTION 00 1 66000 308 TYPEBEO1 TYPEBEO2 TYPEBEO3 04 TYPEBEO5 06 07 08 09 10 11 12 TYPEBE13 TYPEBE14 TYPEBE15 GROSS RECEIVING ANY STATE BENEFIT 1 00 Child Benefit 2 00 One Parent Benefit 3 00 Guardian s Allowan 4 00 Retirement Pension 5 00 Widows Pension or 6 00 War Disablement Pe 7 00 Severe Disablement 8 00 Disability Working 9 00 Disability Living 10 00 Unemployment Benef 11 00 Income Support Job 12 00 Family Credit not 13 00 Incapacity Benefit 14 00 Statutory Sick Pay 15 00 Industrial Injury 16 00 None of above 1 00 Dont Know 3 00 Refused Question not asked RECEIVING ANY STATE BENEFI RECEIVING ANY STATE BENEFI RECEIVING ANY STATE BENEFI RECEIVING ANY STATE BENEFI RECEIVING ANY STATE BENEFI RECEIVING ANY STATE BENEFI RECEIVING ANY STATE BENEFI RECEIVING ANY STATE
42. IGION 1 00 Yes 2 00 No 8 00 Refused 9 00 Dont Know 1 66000 308 Question not asked DENOMIN WHAT IS THE DENOMINATION 1 00 Catholic 2 00 Presbyterian 3 00 Church of Ireland 4 00 Methodist 5 200 Baptist 6 00 Free Presbyterian 7 00 Brethren 8 00 Protestant not specified 9 00 Other Christian 10 00 Jewish 11 00 Other Non Christian 1 00 Dont Know 3 00 Refused 1 66000 308 Question not asked RELBORN IN WHAT RELIGION WERE YOU BROUGHT UP 1 00 Catholic 2 00 Presbyterian 3 00 Church of Ireland 4 00 Methodist 5 00 Baptist 6 00 Free Presbyterian 7 00 Brethren 8 00 Protestant not specified 9 00 Other Christian 10 00 Jewish 11 00 Other Non Christian 12 00 None 1 00 Dont Know 3 00 Refused 1 66000 308 Question not asked FUNDGP IS GP A FUNDHOLDER 1 00 GP is a fundholder 2 00 GP is not a fundholder 3 00 Not sure if GP is a fundholder 8 00 Refused 9 00 Dont Know 1 66000 308 Question not asked GPADDR GP NAME AND ADDRESS PHYSICAL MEASURES SECTION NURSES VISIT STAGEA 1 00 1 00 300 1 66000 308 CNVST 1 00 2 00 1 00 3 00 1 66000 308 INTRODUCTION TO STAGE A CONTINUE Dont Know Refused Question not asked CONSENT TO VISIT YES NURSE VISIT ACCEPTED NO NURSE VISIT NOT ACCEPTED Dont Know Refused Question not asked STAGEB REASON FOR REFUSAL FOLLOWUP SYSTEM VARIABLE
43. LD 3 00 WEIGH A LI E LESS HAN YOU SHOULD 4 00 WEIGH A LO 1855 YOU SHOULD 5 00 WEIGH JUST ABOUT HE RIGHT AMOUNT 8 00 Refused 9 00 Dont Know Question not asked ANY TYPE OF DISABILITY Walk 200 yards 00 1 00 Not mentioned Mentioned Walk up 12 steps 00 Not mentioned 1 00 Mentioned Get in and out of bed 00 1 00 Not mentioned Mentioned Get in and out of chair 00 1 00 Not mentioned Mentioned Bend down 00 1 00 Not mentioned Mentioned DISABIL6 Get to and use toilet 00 Not mentioned 1 00 Mentioned DISABIL7 None of these 00 Not mentioned 1 00 Mentioned DISABILITY SECTION FURTHEST WALKSTIC WALKAID STAIRS BEDHELP CHARHELP TOILHELP CONDIT ABIL 1 8 What is the furthest you can walk on your own without stopping or discomfort used fewstep morestep notwalk May I just check Can you Only a few steps More than a few steps but not 200 yards Cannot walk at all with walking aid if normally do you use a walking stick or any other walking aid most of the time when walking walk 200 yards or more on your own without Stopping or discomfort without the walking stick or aid Can you on and take Can you get difficul someone ty or Can you get difficul Someone Can you get to help you to and use t in and out of bed on you can you only get in and out r own walk up and down a
44. NORTHERN IRELAND HEALTH AND SOCIAL WELLBEING SURVEY 1997 USER GUIDE Northern Ireland Health and Social Wellbeing Survey 1997 Questionnaire CASEID CASE NUMBER PLUS HOUSEHOLD NUMBER PERSN PERSON NUMBER SEX SEX OF PERSON 1 00 Male 2 00 Female 1 00 Dont Know 3 00 Refused 1 660004308 Question not asked AGE What was respondent s age last birthday AGEDOB under 20 check respondent s date of birth MST Marital status running prompt 1 00 Single that is never married 2 00 Married and living with husband wife 3 00 Married and separated from husband wife 4 00 Divorced 5 00 or Widowed 1 00 Dont Know 3 00 Refused 1 66000 308 Question not asked COHAB living with someone in household as couple 1 00 Yes opposite sex partner 2 00 No 3 00 Yes same sex partner 1 00 Dont Know 3 00 Refused 1 66000 308 Question not asked EDUC IS PERSON IN FULL TIME EDUCATION 1 00 Yes 2 00 No 1400 Dont Know 3 00 Refused 1 660004308 Question not asked RELHOH RELATION OF PERSON TO HOH Ne 10 Ll 12 135 14 15 e e 00 00 00 00 00 00 00 00 00 00 00 00 00 00 00 00 00 1 66000 308 Head of Household Partner Spouse Cohabitee Son daughter inc step adopted Foster child Son daughter in law Parent inc step adopted Foster parent Parent in law Brother sister Foster brothe
45. TUS 1 00 NON SMOKERS 2 00 EX REGULAR OR OCCASIONAL 3 00 CURRENT SMOKERS EX REGULAR OCCASIONAL SMOKER 1 00 EX SMOKER THOSE WHO NEVER SMOKED OR ONCE OR TWIC 1 00 NON SMOKERS UNITS ALLDRK MLEUNIT FMALUN1 WMNSENS MENSENS UNIT9 WEEK F E UNITS OF ALCOHOL lt 0 5 UNITS 0 5 TO 10 UNITS gt 10 TO 21 gt 21 TO 35 HIGH gt 35 TO 50 OVER 50 INTS DRINKING HABITS UNITS OF ALCOHOL PE 1 00 ERY LOW 2 00 LOW 3 00 MODERATE 4 00 FAIRLY HIGH 5 00 6 00 ERY HIGH QR DE 1 00 EVER DRANK 2 00 RANK NOT NOW 3 00 URRENTLY DRINK 1 00 ERY LOW 0 5 UNITS 2 00 LOW 0 5 TO 10 UNITS 3 00 MODERATE gt 10 TO 21 4 00 FAIRLY HIGH gt 21 TO 35 5 00 HIGH gt 35 TO 50 6 00 ERY HIGH OVER 50 UNITS 1 00 ERY LOW 0 5 UNITS 2 00 LOW 0 5 TO 7 UNITS 3 00 MODERATE gt 7 TO 14 UNITS 4 00 FAIRLY HIGH gt 14 TO 21 5 00 HIGH gt 21 TO 28 6 00 ERY HIGH OVER 28 ENS SENSIBLE DRINKING LEVELS 00 WITHIN SENSIBLE LIMIT 0 14 00 OVER SENSIBLE LIMIT 14 ENS SENSIBLE DRINKING LEVELS 00 WITHINSENSIBLE EVELS 0 21 00 OVER SENSIBLE EVELS 21 UNITS ALCOHOL PER WEEK 1 00 ERY LOW 0 5 UNITS 2 0
46. VE FULL DETAILS EXPLAIN NEED FOR WRITTEN CONSENT Before I can take any blood I have to obtain written consent from you Continue NURSE CHECK RESPONDENT IS Age Aged 16 17 Age2 Aged 18 IS A PARENT OR PERSON WITH LEGAL WILLING TO GIVE CONSENT PARENTAL RESPONSIBILITY RECORD DETAI 5 OF WHY CONSENT REFUSED FILL IN RESPONDENTS NAME AND YOUR NAME CONSENT BOOKLET ASK RESPONDENT TO READ IF RESPONDENT IS 16 17 ENSURE SIGNS CIRCLE CONSENT CODE 03 ON BOOKLET Continue AT TOP OF FORM BS IN SIGN AND DATE PARTI PARENT PARENT ALSO IHE FRONT OF THE CONSENT NURSE CHECK THE RESPONDENT IS RegGP Registered with GP NotReg NOT registered with GP May we send the results of your blood sample analysis to your GP blood sample results sent to your GP CODE ALL THAT APPLY SET OF Never Hardlynever sees GP Knows GP knows respondent s BP level No Does not want to bother GP OthBS Other GIVE FULL DETAILS CIRCLE CONSENT CODE 06 ON FRONT OF CONSENT BOOKLET NCheck17 Consent NCheck18 NCheck19 NCheck20 NCHK20B BlodOut WhichArm BlodPro 0 6 OtherPbl NoBlood 0 3 RECOR OtherRn NCheck21 SamObt OBTAIN SI
47. What other type s of drink have How many of this drink would you CONVERT TO UNITS 0 00 300 00 HI How many of this drink would you CONVERT TO UNITS 0 00 300 00 HI you had have in a typical week DDEN have in a typical month DDEN Could you tell me if you have had any other alcoholic drinks during the last 12 months ENTER TYPE OF DRINK How many of this drink would you CONVERT TO UNITS How many of this drink would you CONVERT TO UNITS have in a typical week have in a typical month EATING HABITS SECTION WEEKLY I d like to ask you somet About how often do you eat fried food chips cooked b NOTE IF SAY NEVER TO DIET QUESTIONS CODE reakfast etc hing about your eating habits such as fried fish CAKES How often do you eat cakes pastries or biscuits FRUIT How often do you eat any kind of fruit or vegetables apart from potatoes ONEPERS CARERS SECTION DO NOT ASK INTERVIEWER CODE IS THERE ONLY ONE PERSON LIVING IN THIS HOUSEHOLD CARERS SECTION ANYSICK May I ch help to IF PERSON IN HOUSEHOLD WHO NEEDS SP eck is there anyone living with you who is sick disabled or elderly whom you look after or give special HAT RESPONDENT THIS LIVEIN Do you loo person who LIVEOUT Do you provide so disabled
48. YOUR JOINTS ring the past 12 that you had apart from when you were pregnant k pain onths WH8 WH9 WH10 WH11 WH12 WH13 WH14 WH15 WH16 WH17 WH18 DOEST Right wrist 00 Not mentioned 1 00 Mentioned Left hand fingers 00 Not mentioned 1 00 Mentioned Right hand fingers 00 Not mentioned 1 00 Mentioned Left hip 00 Not mentioned 1 00 Mentioned Right hip 00 Not mentioned 1 00 Mentioned left Knee 00 Not mentioned 1 00 Mentioned Right knee 00 Not mentioned 1 00 Mentioned Left ankle 00 Not mentioned 1 00 Mentioned Right ankle 00 Not mentioned 1 00 Mentioned Left foot toes 00 Not mentioned 1 00 Mentioned Right foot toes 00 Not mentioned 1 00 Mentioned Any of these problems 00 Dont know refused DOES1 DOES2 DOES3 DOES4 DOES5 HEIGHT 1 66000 308 DISAB DISABIL1 DISABIL2 DISABIL3 DISABIL4 DISABIL5 Limits walking climbing of stairs 00 1 00 Not mentioned Mentioned Interferes with sleeping 00 Not mentioned 1 00 Mentioned Difficult to grip hold 00 Not mentioned 1 00 Mentioned ifficult to reach up 00 1 00 Not mentioned Mentioned None of these 00 Not mentioned 1 00 Mentioned IN RELATION TO YOUR HEIGHT DO YOU 1 00 WEIGH A LI E MORE HAN YOU SHOULD 2 00 WEIGH A LOT MORE HAN YOU SHOU
49. ain the written consent of a parent or guardian before blood can be taken We also need written consent to send the blood test results to the respondent s GP and to store a small sample of the blood for future analysis These consents are all contained on page three of the Consent Booklet Blood Sample Consent Form Sheet BS If the respondent agrees to all three he she will have to sign the Consent Form three times We ask for all the consents to be signed one after the other before we take the blood You will need to explain to the respondent the need for all these consents and how important they are Remember to enter your name at the top of this form Q26 Q27 Q27a Q27b If a respondent is aged 16 17 always obtain written consent from a parent or guardian in advance of taking blood If a respondent aged 16 17 does not live with a parent guardian then you_cannot take any blood from them in which case ring code 2 at Q26b go to Q42 and follow the instructions to ring consent codes 04 06 08 and 10 on the Consent Booklet You have then completed your interview with that respondent Explain the purpose and procedure for taking blood All persons aged 18 or over and all persons aged 16 or 17 living with a parent or guardian who gives consent are eligible for a blood sample to be taken except for pregnant women Check if the respondent has a clotting or bleeding disorder These are very uncommon If you do find someon
50. al numbers and check letters 12 3 Nurse Record Form NRF Carrying out the Interview 13 1 General tips on how to use the documents 13 2 Preparing the documents before you start your interview 13 3 Carrying out the interview 13 4 Coding the medicines Entering Nurse Schedule on the computer and returning work 14 1 Recording Nurse Schedule on the Laptop Computer 14 2 Returning work to the office THE PROTOCOLS 15 16 17 18 19 20 Recording ambient air temperature Blood pressure measurement and heart rate readings Height and weight measurement Hip and Waist measurement Blood sample collection Sending blood samples to the laboratory 1 BACKGROUND AND AIMS The Northern Ireland Health and Social WellBeing Survey is the first in a series of surveys commissioned by the Department of Health and Social Services It is planned to repeat the survey every 3 years The survey s objective is to monitor trends in the population s health over time It is very similar to the Health Survey for England which began in 1991 and is repeated every year The Regional Strategy for N I Health and Personal Social Services 1991 set out key health targets in a number of areas The aim in setting these targets is to increase people s life expectancy and to improve the quality of their lives It was recognised that a health strategy for improving life quality involved a variety of approaches designed not only to reduce the amount of ill healt
51. allow the disposal box to become overfull as this can present a potential hazard 9 Checkon the venepuncture site and affix an adhesive dressing if the respondent is not allergic to them If they are allergic use a dental roll secured with micropore 19 7 Fainting respondents If a respondent looks or feels faint during the procedure it should be discontinued The respondent should be asked to place their head between their knees They should subsequently be asked to lie down If they are happy for the test to be continued after a suitable length of time it should be done so with the respondent supine and the circumstances should be recorded They may wish to discontinue the procedure at this point but willing to give the blood sample at a later time 19 8 Disposal of needles The needle disposable box should be taken to your local hospital for incineration Telephone them beforehand if you are not sure where to go If you come across any problems with the disposal contact the office 19 9 Needle stick injuries Any nurse who sustains such an injury should seek immediate advice from their GP The nurse should inform his her nurse supervisor of the incident and the nurse supervisor should inform Rachel Tucker at UCL 19 10 Respondents who are HIV or Hepatitis B positive If a respondent volunteers that they are HIV or Hepatitis B positive do not take a blood sample Record this as the reason on the Schedule You should never of course
52. ar LessYear Less often than once a year but at least once every two years LessTwo Less often than once every two years dentlst When did you last go to a dentist Threem Less than 6 months ago Sixm 6 months but less than one year ago Ninem One year but less than 2 years ago Year 2 years but less than 5 years ago YearPl 5 years or longer ago STRESS SECTION Stress 1 9 WORK1 JOBB 1 7 LOSTJOB RETIRED WORRIED LEF THOME STRESS SECTION SHOW CARD 8 CODE ALL THAT APPLY I d like to ask you about your life generally in the last 12 months and about anything worrying or disruptive that may have happened to you Thinking of health issues first Will you please look at this card and tell me if you have had any of these difficulties in the past 12 months NONE OF HESE CODE 9 SE 8 OF illness Developed or found out that you had a serious illness or disability exist An existing health condition got worse accident Had a serious accident or injury an operation or spent a period in hospital trment Had painful or upsetting treatment for a health condition family A member of your family or a friend had a serious health condition famember A family member you were close to died friend A close friend or someone who was important to you died NONE None of these Have you done an
53. are not separately identified by the address Sometimes an interviewer will be making a selection of up to 3 households within an address for inclusion in the study The interviewer will send you details of any additional households that have been selected In some cases however the respondent will refuse to co operate with this second stage No one else in the household can be measured instead of the selected respondent The interviewer will provide you with full details of appointments made and of addresses at which no one has co operated with the survey 12 2 Serial Number and Check letter Each respondent interviewed by the interviewer has been given a unique identity number This number allows us to distinguish which documents relate to which person This number is called the Serial Number The serial number of the respondent must be recorded on all documents for that respondent Great care must be taken to ensure that the correct serial number has been used It is vital that the information the interviewer collects about someone is matched to the information you collect about them If the wrong serial numbers are entered on documents there is a danger that the data from one person will be matched with that from someone else To help avoid mistakes each serial number is also associated with a particular letter of the alphabet The interviewer will give you the serial number and check letter when passing you details of her progress at eac
54. ason give reason here re any problems xperienced measuring height roblems 51 measurement ightly reliable roblems weight is S weight is refused to tt Not attempted nter weight of person in kilograms Unreliable measured measured be measured to be measured 0 0 250 0 Give reasons for refusal if any given WREASON 0 3 Ring reason for not attempting weight OTHER SCALES 0 2 Whic WEIGH3 Unstead Respondent Respondent Respondent Some other If other give reaso h of these sur Uneven Uneven floor Carpet Carpeted su 5 2 her Neither of is unsteady on feet cannot stand upright is chairbound reason faces were the scales placed on d rface these there any problems experienced in taking the weight No reliab Problems b Problems S le measurement ut Reliable lightly reliable problems U nreliable MEASU1 HIP1 MEASU2 HIP2 NURSEC HREASON EXCUSE WAIST1 PROB2 HIP3 PROB4 OFFER NCheck11 I would he waist for assess firs nea Enter the ent nea Please to the Enter che Seco nea nt relative ing the d t wai to hip measurement is ve istribution of ircumference in centimetres rest mi etre 0 0 er rest m nd waist rest i hip 200 0 now like
55. asure the waist circumference over the waistband 3 Ensure the tape is horizontal Ask the participant to breathe out gently and to look straight ahead to prevent the respondent from contracting their muscles or holding their breath Take the measurement at the end of a normal expiration Measure to the nearest millimetre and record this on the Schedule 4 Repeat this measurement again 5 If you are of the opinion that clothing posture or any other factor is significantly affecting the waist measurement record this on the Schedule 18 7 Problems measuring the waist circumference If you have problems palpating the rib ask the respondent to breathe in very deeply Locate the rib and as the respondent breathes out follow the rib as it moves down with your finger If your respondent has a bow at the back of her skirt this should be untied as it may add a substantial amount to the waist circumference Female respondents wearing jeans may present a problem if the waistband of the jeans is on the waist at the back but dips down at the front It is essential that the waist measurement is taken midway between the iliac crest and the lower rib and that the tape is horizontal Therefore in this circumstance the waist measurement would be taken on the waist band at the back and off the waist band at the front Only if the waistband is over the waist all the way around can the measurement be taken on the waistband If there are belt loops the tap
56. asurement not attempted GIVE REASON FOR REFUSAL MEASUREMENT NOT ATTEMPTED Straight Cannot straighten arm OthReas Other GIVE FULL DETAILS NURSE CHECK Demi span was measured with the respondent CODE ALL THAT APPLY SET OF StandWal Standing against the wall NotStand Standing NOT against the wall Sitting Lying Lying down LeftArm Demi span measured on left arm due to Unsuitable right arm NCheck10 W Ncheckhw HEIGH1 HEIGH2 HREFUSE REASON 0 4 OTHER HEIGH3 WEIGH1 WEIGH2 WREFUSE ESULTS OF D EMI SPAN MEASUREMENT ON RESPONDENT S ENT RECORD CARD Continue There is in now like to height is nter height ECK Are height and weight part of your measurement responsibilities measure your height and weight terest in how people s weight given their is associated with health and other aspects of their daily lives Please enter if height is measured YesM Yes easured refused to be measured attempted to be measured of person in centimetres da EIGHT AND E NTER 0 0 300 0 Please give reasons for refusal Why was height measurement not attempted If other No reliabl roblems but Reliable Unstead Respondent Respondent Respondent were unsteady on their feet could not stand upright was chairbound Some other re
57. bout the respondent s blood pressure it is very IMPORTANT to remember that it is not the purpose of the survey to provide respondents with medical advice nor are you in a position to do so as you do not have the respondent s full medical history But you will need to say something It is very important that you make all the points relevant to the particular situation and that you do not provide a more detailed interpretation as this could be misleading Read the instructions below very carefully and make sure you always follow these guidelines To help you remember you have been given a Blood Pressure Guide Card which summarises these rules Base your comments on the last two of the three readings If the first reading is higher than the other two explain that the first reading can be high because people are nervous of having their pressure taken Definitions of raised blood pressure differ slightly It has been decided to adopt the ones given below for this survey It is important that you adhere to these definitions so that all respondents are treated in an identical manner These are shown overleaf Points to make to a respondent about their blood pressure Normal Your blood pressure is normal Mildly raised Your blood pressure is a bit high today Blood pressure can vary from day to day and throughout the day so that one high reading does not necessarily mean that you suffer from high blood pressure You are advised to vi
58. ch question in the Nurse Schedule you should go to next If there is no instruction beside a code continue with the question immediately below it Some questions take the form of a CHECK see Q5a for an example This is an instruction to you to find out something or to look back to an earlier response When you get a response to a question which makes you feel that the respondent has not really understood what you were asking or the response is ambiguous repeat the question If necessary ask the respondent to say a bit more about their response 13 2 Preparing the documents before you start your interview Immediately before you start to carry out measurements on a respondent complete the front page of the Nurse Schedule and the first half of page 1 of the Consent Booklet Never do this in advance of the visit to the household Check carefully that you have entered the respondent s correct serial number and check letter Do NOT prepare these documents in advance of your visit as there is a serious danger that you will use the wrong set of documents for the wrong person It is all too easy to do in the stress of the moment The Consent Booklet Use a black pen when completing the booklet and ensure that signatures are always in pen not pencil Use capital letters and write clearly Do not erase any of the personal information If necessary cross out errors and re write so that any corrections can be seen Write the address at wh
59. ch questions to ask and what action to take The Consent Booklet contains the forms the respondent has to sign to give written consent for their blood pressure readings to be sent to their GP asample of blood to be taken the results of the blood sample analyses to be sent to their GP asmall amount of blood to be stored for possible future analyses If the respondent is a minor ie aged 16 or 17 their parent or guardian also has to give written consent before a blood sample can be taken The Consent Booklet also contains the despatch note which accompanies the blood sample tube when it is despatched to the laboratory There are two notes Despatch Note 2 is used when blood samples are posted to the laboratory Despatch Note 1 is as an office copy The Nurse Schedule and the Consent Booklet work together and for that reason they are described together in this section 13 1 General tips on how to use the documents Follow the instructions in the Nurse Schedule precisely and in the order given Read out the questions exactly as worded This is very important to ensure comparability of answers You may think you could improve on the wording Resist the temptation to do so Ring the code beside the response appropriate to that respondent eg at Q1b if the respondent is pregnant you would ring code 1 indicating the answers received or the action you took Beside the codes you ring you may see a filter instruction This tells you whi
60. contact with close family or friends for some other reason none None of these HAPSEC 1 5 Have any of the things on this card happened to you in the past 12 months robbed Assaulted or robbed finance Had any major financial problems law Had any serious problems with officials or with the law other Had any other serious upsets or disappointments none None of these OTHSPEC What serious upsets or disappointments have you had EVTHING Thinking about everything that has happened to you in the past 12 months could you tell me how much worry or stress you have had over that time would you say you have had noworry No worry or stress little Just a little alot Quite a lot gooddeal A great deal of worry or stress EFF TROU I d like to ask you a few questions about the effects the Troubles have had Things change from time to time but thinking about the whole period since 1969 how much violence would you say there has been in this area because of the Troubles Effect of Troubles in your area NOTV Not very much at all jusl Just a little qbit Quite a bit alot A lot famtrou How much have the Troubles affected your own life and the lives of your immediate family NOTV Not very much at all jusl Just a little qbit Quite a bit alot A lot FeelNI Which of the following statements best describes the way you feel about the political present Situation in Northern Ireland at does
61. e wa rd whether problems decrease the hip measurement Unr OB No hip measurement obtained liable xperienced are likely ases measur ment DECR Decr Offer to write resul ases measur ment only one waist to increase hip to increase ts of waist and hip measurements where applicable onto respondent s measurement record card NURSE CHECK RESPONDENT IS Aged16 Aged 16 17 Aged18 Aged 18 NCheck12 Clot Sample SamRef OthRefl WritCons NCheck13 ParCons NoCons NCheck14 NCheck15 SampGP NotSamp 0 3 Why do you NOT want your OthBSR NCheck16 NURSE CHECK RESPONDENT Lives Lives with parent or person with legal parental responsibility parent NOTlive Does NOT live with parent or person with legal parental responsibility parent EXPLAIN PURPOSE AND PROCEDURE May I just check disorder FOR TAKING BLOOD do you have a clotting or bleeding Would you be willing to have a blood sample taken RECORD WHY BLOOD SAMPLE REFUSED CODE ALL THAT APPLY SET OF Venepunc Previous difficulties with venepuncture Fear Dislikefear of needles Health Respondent recently had bloodhealth check Refused Refused because of current illness HIV Worried about HIV or AIDS OthRef Other GI
62. e child s development FamDif A problem connected with relationships in the family Crime Child doing something against the law or getting in trouble with the police Troubl A problem connected with the Troubles HarmCh Someone else harming the child in some way Other Some other kind of problem What was the other problem STRING 60 EMPLOYMENT SECTION introwk anywork scheme empcoll EMPST 1 66000 308 ILOSEEK 1 66000 308 ILOREADY 1 66000 308 and now some questions about employment In the week ending last sunday were you RUNNING PROMPT May Las wer COD DETAILS OF J Y A J CHECK I just ch t week th e you on SICKNESSNINJURY LESS THAN 28 DAYS eck please at is in the 7 days ending last Sunday away from any of the following schemes E FIRST HAT APPLIES SK Jobskil TP Youth T CE Action TP Job T a F Enterp SCHEMES ls Training programme raining Programme for Community Employment ining Programme n La C CUR 9 00 Work 00 Away 00 Wait 00 Look 00 Not 00 Econ 00 Refu ther Other ise Ulster llowance one None o st week w government scheme excluding Enterprise f these ere you ODE FIRST work expe college o HAT
63. e should be threaded through these so they don t add to the measurement 18 8 Measuring hip circumference 1 The hip circumference is defined as being the widest circumference over the buttocks and below the iliac crest To obtain an accurate measurement you should measure the circumference at several positions and record the widest circumference 2 Check the tape is horizontal and the respondent is not contracting the gluteal muscles Pull the tape allowing it to maintain its position but not to cause indentation Record the measurement on the schedule to the nearest millimetre eg 095 3 3 If clothing is significantly affecting the measurement record this on the schedule 4 Repeat this measurement again 18 9 General points The tape should be tight enough so that it doesn t slip but not tight enough to indent clothing If clothing is baggy it should be folded before the measurement is taken If the respondent is large ask him her to pass the tape around rather than having to hug them Remember though to check that the tape is correctly placed for the measurement being taken and that the tape is horizontal all the way around If the measurement falls between two millimetres the measurement should be recorded to the nearest even millimetre 18 10 Recording problems We only want to record problems that will affect the measurement by more than would be expected when measuring over light clothing As a rough guide only record a pr
64. e two packages at the same time Pin together the NRF and Consent Booklet and return them in one envelope send the Nurse Schedule back in a separate envelope The weekly Nurse Schedule Backup Disk should always be posted back to the office every Friday It should ALWAYS be posted back in the same envelope as the Nurse Schedule or by its self As with the nurse schedule NEVER return the Nurse Schedule Backup Disk in the same envelope as its NRF or Consent Booklet At the end of your assignment check that you have accounted for all the household your allocation Check with each interviewer what their allocation for you is so you can confirm your total allocation size and the number you will be expecting from each interviewer Make sure that during the field period the interviewer gives you details of those household were no nurse visit was agreed This way you will be able to to ensure that the interviewers give you a spread of work over the monthly field period and that they don t leave all their interviewing until the last week THE PROTOCOLS 15 RECORDING AMBIENT AIR TEMPERATURE 15 1 The Thermometer You have been provided with a digital thermometer and probe This instrument is very sensitive to minor changes in temperature It is therefore important that you record temperature at the appropriate time in your routine It can also take a few minutes to settle down to a final reading if it is experiencing a large change in temperature eg comin
65. e with these problems do not attempt to take blood from them even if the disorder is controlled By clotting or bleeding disorders we mean conditions such as haemophilia and low platelets ie thrombocytopenia There are many different types of bleeding clotting disorders but they are all quite rare The reasons these respondents are excluded from blood sampling are that the integrity of their veins is extremely precious and we do not wish to cause prolonged blood loss For the purposes of blood taking those who have had for example a past history of thrombophlebitis a deep venous thrombosis a stroke caused by a clot a myocardial infarction an embolus are NOT considered to have clotting disorders Some respondents might be taking Warfarin which thins their blood so that they do not stop bleeding easily If this is the case then do not take a blood sample You will need to check this out particularly with elderly respondents Aspirin therapy is not a contraindication to blood sampling If you are uncertain whether a condition constitutes a contraindication to blood sampling the Survey Doctor will be happy to answer your queries Ask the respondent if they would be willing to have a blood sample taken Try to reassure respondents about the process and be prepared to answer their objections but do not coerce people into giving a sample If the respondent refuses record the reason why at c The pre codes cover the main reasons that
66. eed to ask for consent to store any remaining blood for future analysis Small quantities of blood are being stored in special freezers in order that further analysis may be undertaken in the future Future analysis will definitely not involve a test for viruses eg AIDS test Again follow the instructions on the schedule and get a signature at part III of sheet BS Ring consent code 07 if storage consent is given Ring consent code 08 if no storage consent is given Having checked that you have all the appropriate signatures and ringed the appropriate codes you are ready to take the blood sample See the protocol for how to proceed If you obtain a sample note any problems at Q39c If you do not manage to get any blood explain why not at Q40 If you do not get any blood ring consent code 10 on the Consent Booklet Ask respondents if they would like their blood test results sent to them If they would we will send them with a note explaining that the results are best interpreted by their GP Code 1 at Q41a if the respondent has asked for the results and also ring code 09 on the Consent Booklet If the respondent does not want the results ring code 10 on the front page of the Consent Booklet Ensure that you have five codes ringed on the front of the Consent Booklet If any results are to go to the GP either consent code 01 or 05 ringed check that you have details of the GP The GP details are needed so that we can telephone and write to the GP
67. een possible to say with any certainty whether people are getting generally healthier or less healthy or whether their lifestyles are developing in ways that are likely to improve or damage their health Good information is vitally needed for formulating health policies aimed not only at curing ill health but also at preventing it Prevention is from every point of view better than cure Good information is also essential for monitoring progress towards meeting health improvement targets Consequently the Department of Health and Social Services and the Regional Health Boards decided that a major health survey should be carried out in order to monitor the country s state of health so that trends over time could be noted and appropriate policies planned The Health and Social WellBeing Survey is that survey It will play a key role in ensuring that health planning is based on reliable information As well as monitoring the effectiveness of government policies and the extent to which targets are achieved the survey will be used to help plan NHS services to meet the health needs of the population 2 THE SURVEY The Northern Ireland Health and WellBeing Survey is a large survey involving interviews with approximately 5000 households Fieldwork is over a four month period and will include approximately 1 600 nurse visits to collect physical measurements This is the first in a series of surveys which are planned to be repeated every three years T
68. er 16 BLOOD PRESSURE MEASUREMENT AND HEART RATE READINGS High blood pressure is an important risk factor for cardiovascular disease During the first visit the interviewer will have asked the respondent if he she has ever had high blood pressure If this is the case more detailed information will have been collected However it is important that we look at the blood pressure of everyone in the survey using a standard method so we can see the distribution of blood pressure across the population This is vital for monitoring change over time and monitoring progress towards lower blood pressure The only people not eligible for blood pressure measurement are those who are pregnant However if a pregnant woman wishes to have her blood pressure measured you may do so but do not record the readings on the Nurse Schedule All other respondents are eligible unless they do not wish to give their permission 16 1 Equipment Dinamap 8100 blood pressure monitor Blue pneumatic hose Small adult cuff 17 25 cm Standard adult cuff 23 33 cm Large adult cuff 31 40 cm Power cord Operation Manual The Dinamap 8100 blood pressure monitor is an automated machine It is designed to measure systolic blood pressure diastolic blood pressure mean arterial pressure MAP and pulse rate automatically at pre selected time intervals On this survey three readings are collected at one minute intervals The Dinamap is equipped with a rechargeable bat
69. expect my health to get worse My health is excellent 12 Concent Sleep Useful decision Strain Diffcult Activitl Problems PLEASE READ THIS CAREFULLY I d like to know if you have had any medical complaints and how your health has been in general OVER THE PAST FEW WEEKS Please answer ALL the questions simply by pressing the key with the number against the answer which you think most nearly applies to you Remember I want to know about present and recent complaints not those you had in the past It is important that you try to answer ALL the questions Have you recently been able to concentrate on whatever you re doing GHQ Concentration Bet Better than usual Same Same as usual Less Less than usual MuchL Much less than usual Have you recently lost much sleep over worry Have you recently felt that you are playing a useful part in things More More so than usual Same Same as usual Less Less useful than usual MuchL Much less useful Have you recently felt capable of making decisions about things More More so than usual Same Same as usual Less Less so than usual MuchL Much less capable Have you recently felt under constant strain Have you recently felt you couldn t overcome your difficulties Have you recently been able to day to day activities njoy your normal
70. f what the particular respondent s fears might be and may have notes that would tell you when would be the most likely time to find the respondent at home Keep on trying until you receive a definite outcome of some sort 10 4 The number of calls you must make You are asked to keep a full account of each call you make at an address Note the serial number of the household and the exact time using the 24 hour clock you made the call and the date on which you made it Details of these calls should then be entered on to the computer You can also make a telephone call if you are having difficulty getting someone in Telephone calls do not have to be entered on to the computer You must make at least 4 personal visits per respondent before you can give up Each of these calls must be at different times of the day and on different days of the week However we hope you will make more than four calls to get a difficult to track down respondent If you fail to make contact after 4 visits keep trying anytime you are passing near the area What you might mention when introducing the survey It is a national government survey on behalf of the Department of Health and Social Services Itis a very important survey It will be the largest national survey to look at the health of the general population in Northern Ireland It provides the Health Boards with accurate and up to date information on the health of the population It gives
71. f your physical health DIFF During the past 4 weeks have you had difficulty performing the work or other activities that you did e g it took extra effort as a result of your physical health EMOTION During the past 4 weeks have you had any of the following problems with your work or other regular daily activities as a result of emotional problems such as feeling depressed or anxious Have you cut down on the amount o or other activities as a result o time you spent on work emotional problems ACCOMP1 During the past 4 weeks have you accomplished less than you would like as a result of emotional problems NOTWORK During the past 4 weeks did you not do work or other activities as carefully as usual as a result of emotional problems Fh T EMOTPROB During the past 4 weeks to what extent have your physical health or emotional problems interfered with your normal social activities with family friends neighbours or groups notall Not at all slightly moder moderately abit quite a bit xtrem xtremely BODYPAIN How much bodily pain have you had during the past 4 weeks none verymild very mild mild moderate severe vsever very severe PAINWORK FEELING NERVOUS FELTDOWN CALM ENERGY FELTLOW WORNOUT HAPPYOO TIRED SOCIAL DESCRIBE HEALTHY WORSE EXCELL During the past 4 weeks how much did pain interfere wit
72. formation The second stage of the survey is then introduced the visit by a nurse to ask a few more questions and to carry out some more measurements The interviewer arranges an appointment for the nurse to visit a few days later or if the nurse is making her own appointments the interviewer will attempt to find out the best time for the nurse to ring the respondent 5 3 The nurse visit The second stage of the survey is carried out by a qualified nurse The nurse calls on the respondent in their home and asks a few questions about prescribed medicines that are being taken and carries out blood pressure height weight hip and waist measurements If the respondent wishes to be given the results of these measurements the nurse enters the information onto their Measurement Record Card The nurse will then ask for written permission to take a small blood sample normally 8ml The sample is sent for analysis to the Royal Hospital With the respondent s permission the results of the blood test and blood pressure will be sent to their GP The respondent can also receive their blood test results if they request it Details of how to contact respondents and explain the purpose of the nurse visit are given in Section 10 6 SURVEY MATERIALS The following is a list of documents and equipment you will need for this survey Before starting work check that you have received the following supplies Nurse Identity Card Nurse Record Forms Nurse
73. g RECORD PULSE bpm RECORD DIASTOLIC mmHg NURSE CHECK BP MEASUREMENT OBTAINEDNOT OBTAINED Three Three valid readings Two Two valid readings One One valid reading Attempt Blood pressure measurement attempted but NOT obtained NoAttem Blood pressur asurement not attempted Refused Blood pressur asurement refused RECORD WHY READING NOT OBTAINEDNOT ATTEMPTEDREFUSED ONE OR TWO READINGS OBTAINED CODE ALL THAT APPLY SET OF Upset Respondent was upset Nanxious nervous Err Error 844 reading Other GIVE FULL DETAILS NURSE CHECK RECORD READINGS OBTAINED One One or two readings obtained NotAtt Blood pressure measurement not attempted attempted NOT obtained or refused CIRCLE CONSENT CODE 02 ON FRONT OF CONSENT BOOKLET Continue RECORD ANY PROBLEMS TAKING READINGS CODE ALL THAT APPLY No NO problems taking blood pressure LeftArm Reading taken on left arm because right arm not suitable Upset Respondent was upsetanxiousnervous OthProb Other problems GIVE FULL DETAILS GP ReadGP Refuse 1 4 SPECIFY REASON FOR R OthResn 51 ResGP PresOb NCheck7 LenArm FirstM NoFirst SecondM NCheck8 ResnRef OthReasn NCheck9 OBTAINING CONSENT TO S Are you registered wit END na RESULTS TO GP GP May we send your blood pressure readings to your GP
74. g tatus 4 band Single Never Married Married Living Together Separated Divorced Widowed lesterol sive nomic groups Professional managerial Skilled nonman Skilled man Partly skilled Unskilled roups 44 or less 45 or over Age band of respondent 1 00 2 00 3 00 sore join 1 00 sore join 1 00 2 00 sore join 1 00 2 00 employmen Number of 1 2 3 16 44 45 64 65 ts upper body Yes No ts lower body Yes No CS Yes No t status risk factors in groups No more than one Two risk factors Three or more factors REV10 TIMEPASS ACTIVE4 REV11 GHQ12FIN SUPPBAND CAREBAND MSTA SMKSTAT Number of risk factors in groups 1 None 2 One risk factor 3 Two risk factors 4 Three or more factors Time spent passive smoking 1 Every day 2 At least one hour per week 3 Less often than once a week Employment status 1 employed 2 unemployed 3 inactive 66 years 4 inactive gt 65 years Number of risk factors in groups 1 None 2 One risk factor 3 Two risk factors 4 Three or more factors GHO12 score in groups 0 Happy 1 Not Depressed 2 Depressed Social support score in bands 100 1 17 Severe Lack 200 18 20 Some Lack 300 21 No Lack Code respondent as a carer or non carer 1 00 Carer 2 00 Non carer MARITAL STATUS 1 00 Single 2 00 Maried cohab 3 00 Sep Div 4 00 Widowed smoking status
75. g into a warm house from a cold outside Immediately after you have settled the respondent down to rest for five minutes prior to taking their blood pressure set up the thermometer to take a reading Just prior to recording the blood pressure note the temperature and record it in the appropriate part of the nurse schedule Always switch it off after taking a reading to avoid battery problems The thermometer automatically switches off if you have left it on for more than 7 minutes Place the thermometer on a surface near the Dinamap Do not let the probe touch anything you can for example let it hang over the edge of a table Do not put it on top of the Dinamap as it will be warm 15 2 Instructions for using the thermometer 1 The probe plug fits into the socket at the top of the instrument 2 Press the completely white circle to turn the instrument on To turn off press the white ring 3 Before taking a reading off the display ensure that the reading has stabilised 4 Becareful of the probe it is quite fragile 5 When LO BAT is shown on the display the battery needs replacing take no further readings 6 The battery in your thermometer is a long life battery and should last at least one year However should it run low please purchase a new battery Take the old one with you to ensure it is the same type Claim in the usual way 7 Toremove old battery and insert a new one unscrew the screw on the back of the thermomet
76. h your normal work including both work outside the home and housework notatall not at all litbit a lrttle bit moderate moderately qbit quite a bit ext extremely These questions are about how you feel and how things have been with you during the past month For each question please indicate the one answer that comes closest to the way you have been feeling How much time during the past month did you feel full of life How much time during the past month have you been a very nervous person How much time during the past month have you felt so down in the dumps that nothing could cheer you up How much time during the past month have you felt calm and peaceful How much time during the past month did you have a lot of energy How much time during the past month have you felt downhearted and low How much time during the past month did you feel worn out How much time during the past month have you been a happy person How much time during the past month did you feel tired How much time during the past month has your health limited your social activities like visiting friends or close relatives Please choose the answer that best describes how true or false each of the following statements is for you I seem to get ill more easily than other people I am as healthy as anybody I know I
77. h Social Services and Public Safety for Northern Ireland A copy of the Health and Lifestyle Report can be obtained online at the following address http www dhsspsni gov uk publications archived 2001 revised_health 20_ lifestyle report pdf copy of the Informal Carers Report can be obtained online at the following address http www dhsspsni gov uk publications archived 2001 informal_carers_report pdf Or alternatively contact Pamela Robinson on 02890 522208
78. h through high quality health services healthier lifestyles and improved physical and social environments but also to alleviate the effects of ill health Little systematic information has hitherto been available about the state of the population s health or about the factors that affect it There are statistics on the number and causes of deaths Other statistics such as hospital admissions are derived from people s contacts with the National Health Service but these statistics are concerned only with very limited aspects of health For example they are likely to record the particular condition treated rather than the overall health of the patient While information is also available from other sources such as surveys it tends to deal with specific problems not with overall health And even the wider ranging surveys fail to provide measures of change over time We therefore do not have a clear picture of the health of the Northern Ireland population as a whole or of the way it may be changing It has not been possible to say with any certainty whether people are getting generally healthier or less healthy or whether their lifestyles are developing in ways that are likely to improve or damage their health Good information is vitally needed for formulating health policies aimed not only at curing ill health but also at preventing it Prevention is from every point of view better than cure Good information is also essential for monitoring p
79. h household 12 3 Nurse Record Form NRF The interviewer will ring you to provide you with details on each of the addresses contacted In particular the interviewer will provide you with details of those respondents which have agreed to a nurse visit This will include details of the serial number check letter addresss telephone number full name of respondent date of birth the date of the interview and any appointment details All this information must be carefully recorded on the NRF Although there may be nothing for you to do at some of the addresses see below the interviewer will contact you about each address so that you can check that they have all been dealt with by the interviewer nurse team and that none have been missed by either of you There is space for you to write in other information including the location of the household within the address if there is more than one household living there and any tips about the household location or the respondent that the interviewer feels you might find useful On your Nrf you should enter the serial number the date the details were phoned through by the interviewer and if a nurse visit was agreed 13 CARRYING OUT THE INTERVIEW You will use two documents plus an associated Drug Coding Booklet during your interview with a respondent the Nurse Schedule and the Consent Booklet You work through the Nurse Schedule systematically starting with Question 1 It tells you whi
80. had any of the conditions on this card ANGINA attack HEART ATTACK murmur HEART MURMUR trouble OTHER KIND OF HEART T STROKE diabl DIABETES DURING PREG diab2 DIABETES NOT DURING ASTHMA Have you had angi na during the pas ROUBLE NANCY PREGNANCY t 12 months Have you had a heart attack during the past 12 months Have you had a heart murmur during the past 12 months you had a stroke during the past 12 months you had asthma during the past 12 months kind of heart trouble was that PASTROKE Have PASTASMA Have OTHTROUB What PASTTROB Have you had that onths NOTPREG May I just check hav diabetes BACKPAIN Have you PASTPAIN Have you ALLCC RECURRENT TROUBLE 1 00 Yes 2 00 No 8 00 Refused 9 00 Dont Know 1 66000 308 WHT Total WH1 Neck 00 1 00 WH2 Back 00 1 00 WH3 00 1 00 WH4 Right 00 1 00 WH5 00 10 0 WH6 Right 00 1 00 WH7 00 1 00 Left wrist Question not asked No of problems Not mentioned Mentioned Not mentioned Mentioned Left shoulder Not mentioned Mentioned shoulder Not mentioned Mentioned Left elbow Not mentioned Mentioned elbow Not mentioned Mentioned Not mentioned Mentioned you ver b kind of heart trouble du n told ever consulted a doctor about bac had back pain during the past 12 IN ANY OF
81. he survey is being carried out by the Central Survey Unit on behalf on the Department of Health and Social Services and the Health Boards The survey will focus on a range different health issues each time it is carried out with topics repeated at suitable intervals to monitor changes over time One of the issues studied by the Survey is cardiovascular disease Cardiovascular disease including heart attacks and strokes is the largest single cause of death in Northern Ireland Even when it does not kill it brings ill health and disability to thousands of people every year Cardiovascular disease is thus an issue of great importance It is also an issue that lends itself to study in a survey because there are a number of measurable indicators of cardiovascular conditions and specific factors that put people at increased risk Action can be taken to reduce risk levels SUMMARY OF SURVEY PURPOSE The aim of the survey is to provide a baseline against which future trends in health can be measured Specific aims include estimating the proportion of adults in Northern Ireland who have particular health conditions estimating the prevalence of certain risk factors associated with these conditions and looking at the extent to which combinations of risk factors are found examining the variation in risk factors between population sub groups This will help to inform policy on preventive and curative health monitor change overall and a
82. hedule and how to fill in the relevant pages of the Consent Booklet Q5 13 Blood Pressure Everyone except pregnant women is eligible for blood pressure measurements The protocol section 17 explains how to take blood pressure readings You will be taking three readings Q7a Q7b Q7c Q8 Q9 010 Q11 Q12 Blood pressure can be higher than normal immediately after eating smoking or drinking alcohol This is why respondents are asked to avoid doing these for 30 minutes before you arrive But sometimes this will not be possible and you will have to take their blood pressure within this time period In which case ring all the codes that apply If none of these have been done within 30 minutes of reaching this question ring code 5 Record the Dinamap s SCPR serial number Look for the white label Sometimes we identify an equipment problem and we wish to track down all readings that have been taken using a particular piece of equipment Record chosen cuff size see section 17 2 The air temperature may affect blood pressure readings Record reading here Record the blood pressure readings in the boxes provided The layout corresponds to the Dinamap display panel Double check each entry as you make it to ensure you have correctly entered the reading Ring one code at Q12a to show the outcome of your attempt to get blood pressure readings Only ring code 1 if you got three valid readings If you fail to ge
83. ich you are interviewing in the box at the top of the Consent Booklet Write the survey month next to the box i e December and then fill in the serial number boxes Accuracy is vital Enter your Nurse Number at Item 1 and the date on which you are interviewing at Item 2 Complete Items 3 to 5 before you start using the Nurse Schedule to collect the information from the respondent At Item 3 record the full name of the respondent We will be using this to write a thank you letter to the respondent giving them their test results if they wish and to write to their GP with their permission to give him her their test results The name by which the GP knows the respondent is checked if appropriate during the interview This may for example be a maiden name Ask the respondent for their date of birth and enter this in the boxes provided at Item 5 The respondent may say they have already given it to the interviewer Explain that you have been asked to get it again as it will help ensure the right documents get put together Items 6 9 are completed during the course of your interview At item 6 write in the name of the respondent s parents if the respondent is aged 16 or 17 At Item 7 you write in the name address and telephone number of the respondent s GP if the respondent gives consent for their blood pressure lung function and or blood test results to be sent to their GP If a respondent does not know the name of their GP leave the
84. iewer can provisionally agree what time of the day or what days would be best for the nurse to visit This may not only be a help to the nurse but might also help a little to prevent the respondent from backing out You will need to discuss this in more detail with the interviewer The interviewers will do everything possible to provide you with an even flow of work and to minimise the number of visits you have to make to an area but this will be limited by respondent availability Discuss with the interviewer the time you will need to travel to the area so that he she can take account of this Plan together how best to make this appointment system work The interviewer is instructed to give you good warning of all nurse visits and will telephone through the details You should record the name of the respondent their serial number their age and telephone number and appointment details on the Nurse Record Form Make sure the interviewer knows the best times to reach you by telephone If you want more than two days notice tell the interviewer so that she he can phone through other appointments too 8 2 What the interviewer has told respondents about your visit The interviewer introduces your visit at the end of the interview by reading out the following There are two parts to this survey You have just helped us with the first part We hope you will also help us with the second part The second part of the survey is a visit by a qualified nurse t
85. is the largest single cause of death in Northern Ireland Even when it does not kill it brings ill health and disability to thousands of people every year Cardiovascular disease is thus an issue of great importance It is also an issue that lends itself to study in a survey because there are a number of measurable indicators of cardiovascular conditions and specific factors that put people at increased risk Action can be taken to reduce risk levels SUMMARY OF SURVEY PURPOSE The aim of the survey is to provide a baseline against which future trends in health can be measured Specific aims include estimating the proportion of adults in Northern Ireland who have particular health conditions estimating the prevalence of certain risk factors associated with these conditions and looking at the extent to which combinations of risk factors are found examining the variation in risk factors between population sub groups This will help to inform policy on preventive and curative health monitor change overall and among certain groups monitor progress towards the health targets set in the Regional Strategy for NI Health and Personal Social Services 1992 97 3 ABOUT CSU Central Survey Unit CSU is currently part of the Northern Ireland Statistics and Research Agency NISRA which provides services in social research statistics and policy analysis to government NISRA staff are employed in various Northern Ireland governme
86. ke them to avoid eating smoking and drinking alcohol for 30 minutes before you arrive 9 ACHIEVING HIGH RESPONSE RATE 9 1 The importance of a high response rate Your response rate will get better with practice and experience A high response rate at both stages of the survey is crucial if the data collected is to be worthwhile Otherwise we run the risk of getting findings that are biased and unrepresentative as people who do not take part are likely to have different characteristics from those who do Keeping respondent co operation through to this important second stage of the survey will therefore be vital to its success 9 2 You won t want to test me Some people think that they are not typical they are ill they are young and healthy and so on and that it is therefore not worth while from both your and their point of view to take part in the survey You will have to explain how important they are The survey must reflect the whole eligible population in Northern Ireland so we need information from all types of people whatever their situation If the young and healthy don t take part then the results of the survey may suggest that the population is more unhealthy than it actually is Similarily if the ill or elderly don t take part the results may suggest that the population is healthier than it actually is If someone suggests that you see someone else instead of them explain that you cannot do this as it would distort
87. l be resting at a level to bring the antecubital fossa elbow to approximately heart level They should be seated in a comfortable position with cuff applied legs uncrossed and feet flat on the floor Explain that before the blood pressure measurement we need them to sit quietly for five minutes to rest They should not smoke eat drink or read during this time Explain that during the measurement the cuff will inflate three times and they will feel some pressure on their arm during the procedure After five minutes explain you are starting the measurement Ask the respondent to relax and not to speak until the measurement is completed as this may affect their reading a Switch the monitor ON b Press the SILENCE button until the yellow triangle above it lights up Press the AUTO MANUAL button until the green triangle above it lights up cuff will now start to inflate and take the first measurement d Press the cycle SET button until the number 1 lights up in the minutes box Blood pressure will then be recorded at one minute intervals thereafter After each interval record the reading on the schedule NEW PAGE 11 March 1994 e It is possible to retrieve any of the three readings if they need to be checked or if you didn t record them for any reason To do this wait until the three readings have been taken then press the AUTO MANUAL button followed by the PRIOR DATA button This will display the previous reading ie the seco
88. leeve for the measurement Selecting the correct cuff Do not measure the upper arm circumference Instead choose the correct cuff size based on the acceptable range which is marked on the inside of the cuff You will note that there is some overlap between the cuffs If the respondent falls within this overlap range then use the standard cuff where possible The appropriate cuff should be connected via the blue pneumatic hose to the two cuff connectors at the bottom of the display It is important to ensure these screw connectors are properly connected to avoid any air leak However do not overtighten The pneumatic seal is not made by tightening the connector 16 3 Procedure Wrap the correct sized cuff round the upper right arm and check that the index line falls within the range lines Use the left arm only if it is impossible to use the right If the left arm is used record this on the schedule Locate the brachial pulse just medial to the biceps tendon and position the arrow on the cuff over the brachial artery The lower edge should be about 2 cm above the cubital fossa elbow crease Do not put the cuff on too tightly as bruising may occur on inflation Ideally it should be possible to insert two fingers between cuff and arm However the cuff should not be applied too loosely as this will result in an inaccurate measurement The respondent should be sitting in a comfortable chair with a suitable support so that the right arm wil
89. ling Record other amount of time looking after depname HOWLONG VISITS OTHVIS SECLNG OTHLNG RESPPICK About how long have you been looking after or helping depname Less6 Less than 6 months Oneyear 6 months but less than one year Threyear 1 year but less than 3 years FOURyear 3 years but less than 5 years Fiveyear 5 years but less than 10 years Tenyear 10 years but less than 15 years Fteen 15 years but less than 20 years Twnty 20 years or longer Does depname have regular visits at least once a month from any of these people SET OF Doctor Nurse Community or district nurse HVis Health visitor SocW Social worker HHelp Home Help HomeCare Other paid home carer MonW Meals on Wheels VolW Voluntary worker ComNurse Community psychiatric nurse MenNurs Community mental handicaplearning disability nurse physio Physiotherapist Speach Speach and language therapist occup Occupational therapist diet Dieticican cur Chiropodist Podiatrist OthV Any other regular professional visitor or service None None outside NOT IN HOUSEHOLD What other professional pe rson visits You have told me about how long you spend helping each of these people some of this time may overlap so could y
90. ll inform the respondent s GP Systolic 180 mmHg or Diastolic 115 mmHg If the respondent has any symptoms of a hypertensive crisis contact Dr lt gt immediately or call an ambulance Dr lt gt must be informed as soon as possible A hypertensive crisis is an extremely rare complication of high blood pressure Its signs and symptoms include diastolic bp gt 135 mmhg headache confusion sleepiness stupor visual loss seizures coma cardiac failure oliguria nausea amp vomiting All apparently high or unusual readings will be looked at by Dr Vincent McGovern when they reach the office If the reading is judged to be high then Dr Mcgovern will contact the respondent s GP drawing attention to the reading In cases where the respondent is not registered with a GP or has refused consent for us to contact their GP the respondent will be contacted directly 17 HEIGHT AND WEIGHT MEASUREMENTS Detailed protocols of how to take height and weight measurements are appended to these instructions It is vital that you learn to administer these protocols properly and systematically You are responsible for providing the official statistics on the populations height and weight If you have any problems in either administering the protocols or with the equipment contact the office immediately In this section we describe who is eligible the type of site required to take the measurements and how to complete this section of the que
91. loosely at their sides If possible kneel or sit on a chair to the side of the respondent Pass the tape around the body of the respondent To check the tape is horizontal you have to position the tape on the right flank and peer round the participant s back from his her left flank to check that it is level This will be easier if you are kneeling or sitting on a chair to the side of the respondent Hold the buckle flat against the body and flatten the end of the tape At the same time pull the spring balance to the mark around 600g and then read the measurement from the outer edge of the buckle Do not pull the tape towards you as this will lift away from the respondent s body affecting the measurement 18 6 Measuring waist circumference 1 The waist is defined as the point midway between the iliac crest and the costal margin lower rib To locate the levels of the costal margin and the iliac crest use the fingers of the right hand held straight and pointing in front of the participant to slide upward over the iliac crest Men s waists tend to be above the top of their trousers whereas women s waists are often under the waistband of their trousers or skirts 2 Do not try to avoid the effects of waistbands by measuring the circumference at a different position or by lifting or lowering clothing items For example if the respondent has a waistband at the correct level of the waist midway between the lower rib margin and the iliac crest me
92. lude people looking after someone who is temporarily sick but if in doubt code as YES and continue with the section Liveout Do not include professional caring 8 10 CHILD DISABILITY AND PARENTING These sections should be asked of the person best able to answer questions about the children in the household often the childrens mother If that person is not available when you first call and if there is some doubt that you will be able to interview her him complete the section with another adult such as the father or another responsible adult at least 20 years old You should be able to judge if this person could complete the section But if you are able to interview the the most appropriate person later complete the section with him her If necessary explain that you are going through the section again because they might be able to answer questions about the children a bit more easily than the first NORTHERN IRELAND HEALTH AND SOCIAL WELLBEING SURVEY NURSE INSTRUCTIONS Contents 1 2 10 11 12 13 14 Background and aims The survey Something about CSU 3 1 Contacts at CSU The Survey Doctor Summary of survey design 5 1 The sample 5 2 The interviewer visit 5 3 The nurse visit Survey materials Notifying the Police Liaising with your interviewer partner Achieving a high response rate Contacting and obtaining co operation Introducing your measurement task Your sample 12 1 Your sample 12 2 Seri
93. minutes t10tol5 10 minutes but not 15 minutes t15to30 15 minutes but not 30 minutes t30to45 30 minutes but not 45 minutes t45tolh 45 minutes but not one hour One hour or longer trnsport What kind of transport if any do you usually use Walk Bicycle mot Motorbike car Private Car Bus Taxi adap Transport adapted for disability Opr Other private transport opu Other public transport othtrns Please specify other kind of transport used InPYr During the past 12 months have you been in hospital as an inpatient staying overnight or longer OutPYr NumOP AEVISIT NumAE LstAE CervSm CerInv Nosmear 1 7 Cou csoth StTest Stoft Teeth During the past 12 months did you attend hospital as a casualty outpatient or day patient How many times in the past 12 months h Attended hospital as a casualty Did you on any of those occassions and Emergency or Casualty How many times in the past depar 12 mo tment nths h ave you outpatient or day patient attend the Accident of the hospital ave you attended the Accident and Emergency or Casualty department When was the last time you a ttende Emergency or Casualty department wo Less than 2 weeks ago d the Accident and Month 2 weeks but less than 1 month ago Three One month but less than 3 months ago Six 3 months but less than 6 months ago
94. mong certain groups monitor progress towards the health targets set in the Regional Strategy for NI Health and Personal Social Services 1992 97 3 SUMMARY OF THE SURVEY DESIGN 3 1 Survey Design The Health and WellBeing Survey is a survey of people aged 16 and over living in private residential accommodation in Northern Ireland The sample of approximately 5 000 addresses has been selected from the Valuation and Lands Agency list of addresses There are two parts to the survey an interviewer administered questionnaire using CAPI Stage 1 and a visit by a nurse to carry out measurements and take a blood sample on one selected respondent Stage 2 The selection of one respondent for the physical measures takes place once the household grids are completed Therefore every effort must be made to obtain an interview with this person as physical measures can only be carried out on this person if a completed interview not a proxy is achieved Co operation is entirely voluntary at each stage Someone may agree to take part at Stage 1 but decide not to continue to Stage 2 In England response to a similar survey has been very high at both stages and we expect this to apply equally in Northern Ireland The nurse and one or more interviewers will work together as a team to complete a list of addresses which they will be allocated each month An advance letter will be sent to each address explaining briefly the survey and its purpose Two o
95. n about what has caused the disability If there is more than one cause and more than one kind of disability indicate what disability is related to what cause Hss This should include any adaptations which have been carried out and any which have not been carried out It refers only to recommendations made since you moved in 84 USE OF SERVICES Gptalk Talking to a doctor can mean seeing him her at home at the surgery etc or speaking to him her on the telephone Enter details only if the respondent actually talked to the doctor but exclude social chats with a doctor who happens to be a friend or relative Include talking to a doctor at a district health authority clinic eg a family planning clinic or talking to a doctor while abroad OutPyr This asks about any visit to a hospital where the respondent did not stay overnight Include any visits to any hospitals or clinics eg for psychiatric treatment for minor operations to a private hospital or clinic or abroad If the respondent was taken to Casualty and kept in overnight record at Inpayr and not Outpayr InPayr An in patient stay must be for at least one night StTest If the respondent asks what is meant by regularly ask them if they think they have their eyes tested regularly 8 5 SF36 GHQ12 AND SOCIAL SUPPORT These are standard sets of questions which have to be asked in this form They are designed for self completion Use the example questions to show the
96. nd blood pressure Press the PRIOR DATA button again to display the first blood pressure reading and once again to return to the final reading The minutes display indicates how long ago the measurement was taken IT IS NOT POSSIBLE to retrieve the readings once the monitor has been switched off f After the three measurements are complete and recorded on the schedule switch the monitor OFF and remove the cuff If there are any problems during the blood pressure measurements or the measurement is disturbed for any reason press the red cancel button or the power OFF button and start the procedure again If the respondent has to get up to do something then ask them to sit and rest for five minutes again 16 4 Error readings The most common error reading is 844 This is displayed if one measurement exceeds 120 seconds This is usually caused by the respondent moving during the measurement Ask the respondent to sit as still as possible and take the measurement again Do not palpate the pulse and do not tell the respondent their pulse is erratic If you still get another 844 error reading record that it wasn t possible to get a reading and explain to the respondent that this sometimes happens Other error readings are detailed on the side of the Dinamap itself 16 5 Informing respondents of their blood pressure readings If the respondent wishes record details of the three readings on their Measurement Record Card In answering queries a
97. ndent can also receive their blood test results if they request it 4 SURVEY MATERIALS The following is a list of documents and equipment you will need for this survey Before starting work check that you have received the following supplies Nurse related documents Appointment Record Card Copy of nurses Stage 2 purpose leaflet Interview documents Advance letter Purpose Leaflet stage 1 Show cards for respondents Police forms 5 NOTIFYING THE POLICE You as the interviewer are responsible for notifying the police in your area about the work both you and your nurse partner will be undertaking on this survey You will need to obtain all the relevant details from your nurse partner eg make and registration number of car 6 INTRODUCING THE SURVEY The response rate achieved so far in the Health Survey for England has been very good and we expect the response in Northern Ireland to be equally high People are interested in health and are concerned about it This is a high profile survey on a topical issue 7 LIAISING WITH YOUR NURSE PARTNER You are responsible for making appointments for the nurse To do this you will need to be in close contact with your nurse partner so that you know when s he is available to visit You have both been given an Appointment Diary covering the relevant survey period Go through this together before you start work Note carefully the days and times on which the nurse is available to make
98. nes Do not probe for the contraceptive pill as this may be embarrassing or awkward for some respondents If it is mentioned record it Pills for hormone replacement therapy should be included Include suppositories injections eye drops and hormone implants if they are on prescription The interviewer will have told the respondents that you will be asking about prescribed medicines and will have asked the respondent to get their medicines ready prior to your visit The respondent may have forgotten this and so you may have to ask them if they can fetch the containers so you can have a look at them Q4 Check the name of the medicine very carefully and record it in BLOCK CAPITALS Record the brand name generic name so that you can code it One of your tasks is to code the drugs taken and to enter a six digit survey code for the drug in the space provided in the grid at Q3 Ideally do this drug coding during the interview such as when the person is waiting for the BP measurements to start as it will give you the chance to query any hard to find drugs But if it is likely to take up a lot of time and cause the respondent to lose patience then do it at home afterwards With practice you will get to know the more common drugs and will be able to code them quickly Remember to ask part b of Q3 13 4 Coding the medicines Drugs are to be coded using the British National Formulary BNF classification codes down to the third level
99. now 3 00 Refused 1 66000 308 Question not asked TELPHONE HAVE A TELEPHONE 1 00 Yes 2 00 No 1 00 Dont Know 3 00 Refused 1 66000 308 CAR 1 00 2 00 1 00 5200 1 66000 308 CAR OR VAN AVAITLABLI Question not asked EH Yes No Dont Know Refused Question not asked NUMCAR NUMBER OF CARS VANS 1 00 2 00 3 00 1 00 3 00 1 66000 308 One Two Three or more Dont Know Refused Question not asked GENERAL HEALTH SECTION CENSUS LStand Matter Limito Acute PREG Over the last 12 months would you say your health has on the whole been Census 2001 Good fair Fairly good notg Not good Do you have any long standing illness disability or infirmity By long standing I mean anything that has troubled you over a period of time or that is likely to affect you over a period of time Would you mind telling me what this illness or infirmity 15 Does this illness or disability limit your activities in any way Now I d like you to think about the two weeks ending yesterday During those two weeks did you have to cut down on any of the things you usually do about the house or at work or in your fr time because of some long standing illness or some other illness or injury We are asking slightly different questions for pregnant women so may I just check are you pregnant HEALTH BLOOD PREGN
100. nt It doesn t real I am a bit worried about it abit qlot vlot I worry about lly worry me it quite a lot I am very worri ied about it SF36 SECTION MOREQUES I d like to ask you some more questions about your general health but it may be quicker if you fill in the answers yourself on the computer SHOW INFORMANT HOW TO ENTER ANSWERS BY USING FOLLOWING EXAMPLES IF INFORMANT PREFERS NOT TO USE COMPUTER SHOW QUESTIONS AND ANSWERS ON CARD AND ASK FOR LETTER INDICATING CHOSEN ANSWER TO EACH QUESTION SFTIME1 EXPLAINING USE OF SELF COMPLETION STARTS TIMETYPE EXAMPL How often have you used a computer freq I use a computer very frequently haveused I have used a computer but don t use one very often never I have never used a computer GENERAL In general would you say your health is excell excellent verygood very good good fair poor RATE Compared to one year ago how would you rate your health in general now muchbet Much better now than one year ago somebet Somewhat better now than one year ago same About the same someworse Somewhat worse now than one year ago muchworse Much worse now than one year ago ACTIVITO The following questions are about activities you might do during a typical day Does your health limit you in these activities so how much
101. nt departments with CSU located in the Department of Finance and Personnel CSU offers a survey research service to all Northern Ireland government departments and to the wider public sector and collects information about the circumstances conditions behaviour and attitudes of members of the population 3 1 CONTACTS AT CSU If you need extra supplies of the blood sample packs or any other supplies such as purpose leaflets floppy disks etc please contact Sheila or Janice If you have any queries or problems with the equipment the protocols and the computers or any other difficulties or concerns please contact Michael 4 THE SURVEY DOCTOR A doctor is available to provide nurses with medical support The Survey Doctor will provide all non emergency back up to nurses he will also be available to answer any queries about the protocols measurements equipment and blood taking In the rare event that you find you may need medical assistance with one of the respondents e g in cases of severely raised blood pressure the survey doctor will be available to deal with medical emergencies Contact details for the doctor are outlined in the section on the the Blood Pressure Protocol 5 SUMMARY OF THE SURVEY DESIGN 5 1 The sample The Health and WellBeing Survey is a survey of people aged 16 and over living in private residential accommodation in Northern Ireland The sample of approximately 3 000 addresses has been selected from the Valua
102. nter the respondent s FIRST name Transfer the date of birth from the Consent Booklet front page writing the month in words This is just a check as sometimes numbers get transposed or look like other numbers Enter the time you start the interview 13 3 Carrying out the interview The question numbers below refer to those in the Nurse Schedule 051 8 QI In many cases the distinction between codes 1 and 2 will be obvious But if you assess someone to be in their forties or fifties ask them Can I check your age last birthday and use the information to ring the correct code Q1 b You need to check if the respondent is pregnant as this affects what you do You will not be taking any measurements or blood samples from pregnant women If the respondent is pregnant follow the filters through the questionnaire which take you past these measurements and tell you which consent codes to ring Q2 3 These are questions about prescribed medicines Ignore any non prescribed medicines that the respondent may be taking Record in the grid the brand name of all the prescribed medicines currently being taken by the respondent we are not interested in any medicines prescribed years ago and no longer being taken Medicines should be being taken now or be current prescriptions for use as required Keep checking Are you taking any other medicines pills ointments or injections prescribed for you by a doctor Try to see the containers for the medici
103. o ask a few more questions and to carry out some measurements I would like to make an appointment for the nurse to come round and explain some more about what is required May I suggest some dates and times and see when you are free The list overleaf shows the general points given to interviewers to help them answer questions about your visit General points to make when introducing the nurse visit it is an integral part of the survey the information the nurse collects will make the survey even more valuable the nurse is fully trained Grade E or above They have all had extensive experience of working in hospitals health centres or wherever and have also been especially trained for this survey if the respondent wants they will be given the results of the measurements carried out by the nurse including the results of their blood test If they like this information will also be sent to their GP we will not be testing for HIV or any other viruses the amount of blood usually 10m1 taken is tiny compared to the pint that blood donors give they are not committing themselves in advance to agreeing to everything the nurse wants to do Separate permission will be asked for each test so the respondent can decide at the time if they do not want to help with a particular one Written permission is needed from a respondent before a blood sample can be taken the equipment for taking blood is known as the Vacutainer system It is safe
104. oblem if you feel it affected the measurements by more than 0 5cm We particularly want to know if waist and hip are affected differently 19 BLOOD SAMPLE COLLECTION 19 1 Eligibility Do not take a blood sample from respondents who are a Pregnant b Have a clotting or bleeding disorder c Aged 16 or 17 and do not live with a parent or guardian d Not willing to give their consent in writing e Are currently on Warfarin therapy 19 2 Purpose The blood sample is being taken to obtain indicators of risk factors for cardiovascular disease 19 3 Equipment All nurses will have the following equipment Tourniquet Vacutainer holder Alcohol swabs Vacutainer needles 21G Dental roll Butterfly needles 23G Rubber gloves Needle disposal box Adhesive dressing Vacutainer plain tube Padded envelopes Sealable plastic bags Kitchen roll Micropore tape Set of labels for blood sample tubes 19 4 Getting consent Before taking blood from 16 17 year olds you must make sure that you always get both the respondent s own signature and the signature of their parent or person who has legal parental responsibility Remember that even if 16 17 year old respondents are married and not living with their parent or person who has legal parental responsibility you cannot take blood until you have their parent s consent In is not sufficient to simply have one signature at item I III on the BS page of the Consent Booklet You must make sure you have
105. ou please tell me how long you spend altogether on average each week looking after the twoall of them How long on average do you spend each week looking after or helping the twoall of them SELECT DEPENDANT THE RESPONDENT SPENDS MORE THAN 20 HOURS WITH IF NONE GREATER THAN 20 HOURS ENTER CODE 6 NONE IF SAME AMOUNT OF TIME GREATER THAN 20 HRS IS SPENT WITH MORE THAN ONE DEPENDANT SELECT THE DEPENDANT WHO IS AT HOME IF BOTH AT HOME PROBE WHICH ONE MOST TIME IS SPENT WITH ON AVERAGE IF STILL NO DIFFERENCE SELECT THE FIRST ELIGIBLE Dl TXT 1 Dos Ter Pay TXT 3 D4 TXT 4 D5 TXT 5 NONE NONE ELIGIBLE DAYintr The next section only applies to people who spend 20 hrs a week or more caring for their main dependant CONTINUE DAYOFF You have told me about the things you do for DNAME if you wanted a rest for a couple of days during the time when you usually look after himher is there anyone you could rely on to look after himher either at home or elsewhere Yes No LAlone Dependant could be left alone HWDIFF How difficult would it be for you to arrange for someone else to look after himher for a couple of days during the time when you usually look after himher BREAK Have you had a break of two days or more during the time when you usually look after this person since you started to look af
106. our out exactly the same amount but I d like you to estimate how many singles like this of Spirits or liqueur you drink in a typical month CONVERT TO UNITS This shows what a small glasss of sherry port martini or similar drinks look like The big glass is equal to two small glasses I d like you to estimate how many small glasses of sherry port martini or similar drinks you drink in a typical week CONVERT TO UNITS This shows what a small glasss of sherry port martini or similar drinks look like The big glass is equal to two small glasses I d like you to estimate how many small glasses of sherry port martini or similar drinks you drink in a typical month CONVERT TO UNITS This shows what we mean by one glass of wine champagne or babycham You may not use glasses of this size but I d like you to estimate how many glasses like this of wine champagne or babycham you drink in a typical week CONVERT TO UNITS This shows what we mean by one glass of wine champagne or babycham You may not use glasses of this size but I d like you to estimate how many glasses like this of wine champagne or babycham you drink in a typical month CONVERT TO UNITS othdrink drink1 OTDRW1 CONVER11 OTDRM1 CONVER12 othdrk2 drink2 OTDRW2 CONVER13 OTDRM2 CONVER14 Could you tell me if you have had any other alcoholic drinks during the last 12 months yesno
107. ow 3 00 Refused 1 66000 308 Question not asked PEOPLE EMPOTH1 EMPLOY ANY OTHER 1 00 Yes 2 00 No 13 0 0 Dont Kn 3 00 Refused 1 66000 308 Questio NUMEMP 1 1 66000 308 Ow n not as ked HOW MANY OTHER P EOPLE EMPLOYED 1 00 1 5 employees 2 00 6 24 employ 3 00 25 or more 1 00 Dont Know 3 00 Refused S Question not asked SOC3 OCCUPATION CODE 1 00 Dont Know 3 00 Refused 1 66000 308 Question not asked SIC1 INDUSTRY CODE 1 00 Dont Know 3 00 Refused 1 66000 308 Question not asked SEG1 SOCIO ECONOMIC GROUP CODE 1 00 Employer govt industry 2 00 Manager govt industry 3 00 Professional self employed 4 00 Professional employee 5 00 Intermediate non manual 6 00 Junior non manual 7 00 Personal service 8 00 Foremen manual 9 00 Skilled manual 10 00 Semi skilled manual 11 00 Unskilled manual 12 00 Own account workers 13 00 Farmer employer manager 14 00 Farmer own account 15 00 Agricultural worker 16 00 Armed forces 17 00 Inadequate definition 18 00 No gainful occupation 1 00 Dont Know 3 00 Refused 1 66000 308 Question not asked EDUCATION SECTION FTED 1 66000 308 1 66000 308 QUALO 1 66000 308 QUAL1 QUAL2 QUAL3 QUAL4 QUAL5 QUAL6 QUAL7 QUAL8 QUAL9 OTHQUAL
108. pressure taken by eg a fitness assessor at the sports centre a machine at the chemist a physiotherapist a dietician or any self testing It is only medical testing in which we are interested DocTold At these questions we are trying to find out whether the condition was medically diagnosed If the respondent had the condition diagnosed when still a small child then it might be the respondent s parents who were informed of the diagnosis rather than the actual respondent This should still be coded Yes Pasttrob etc Refers to the actual condition or event not to after effects Angina and other heart trouble is counted as continuing during the previous 12 months if the person has had the symptoms or if they have continued to have treatment for the condition Whystop If the respondent has stopped taking medication on several occasions take the last occasion It is known that many people do not take medicines that are prescribed for them First be sure who decided that the respondent should stop a medical advisor or the respondent and then code why Pastpain If the respondent questions what is meant by severe back pain say Have you had back pain that you felt was severe during the past 12 months All Here again the informant must decide if a pain swelling or stiffness is important enough to mention Doesit sorts out those who have the most limiting problems 8 3 DISABILITY Condit and conditl Get as much detail as you ca
109. r been at all breathless when th wheezing or whistling was present ChAsth Has a doctor or nurse said that he or she has asthma PARENTING SECTION CHKPAREN Childn FAMINTRO IS RESPONDENT THE BEST PERSON TO ANSWER QUESTIONS ON CHILDREN best Yes nobut No but questions asked nonot No questions not asked ASK OR RECORD IF CERTAIN OF ANSWER May I just check have you or your partner got any children aged under 19 who are either living here with you or living somewhere else Here Yes living here ElseWh Yes living elsewhere HandE Yes both living here and living elsewhere No Families often have problems when bringing up children for which they may seek outside help for example from the kinds of people shown on this card Thinking of your children and your partner s children have you or your partner asked for outside help to deal with problems any of your children have had in the past 3 years parprt 1 11 What sorts of problem have you asked someone to help you with Please choose your answer from this card and choose more than one answer if there has been more than one kind of problem Health Child s health SchBeh Child s behaviour at school WhHPr Learn OthSch Other problem at school HmBeh ChDev Child s progress in school work Child s behaviour at home A problem with th
110. r sister Brother sister in law Grandchild Grandparent Other relative Other non relativ Dont Know Refused Question not asked FAMU FAMILY UNIT OF PERSON POSU POSITION OF PERSON IN FAMILY UNIT 1 00 Head of Family Unit 2 00 Spouse 3 00 Dependants 1 00 Dont Know 3 00 Refused 1 66000 308 Question not asked INDOUT ENTER RESPONSE CODE FOR THIS PERSON 1 00 Full Personal response 2 00 Proxy response 3 00 Incomplete information 4 00 Outright refusal 5 00 Refusal after promise to co operate 6 00 Non Contact 7 00 This person is no longer resident 8 00 NOT YE INTERVIEWED 1 00 Dont Know 3 00 Refused 1 66000 4308 Question not asked NONCOP REASONS FOR INDIVIDUAL NON CO OPERATION 1 00 Doesn t believe in surveys 2 00 Anti Government 3 00 Can t be bothered 4 00 Too old 5 00 Previous bad experience 6 00 Sick 7 00 Disliked survey manner 8 00 Genuinely too busy 9 00 Put off by recordkeeping 10 00 Ran out of field time 11 00 Not interested 12 00 Circumstances unsuitable 13 00 Too much time involved 14 00 Avoided interview 15 00 Working 16 00 Other reason PARENT ENTER NUM OF ADULT RESPONSIBLE FOR respondent GRPARENT ENTER NUM OF ADULT GRANDPARENT OF respondent RESPAD ENTER NUM OF ADULT RESPONSIBLE FOR respondent FOSTER IS respondent A FOSTER CHILD 1 00 Yes 2 00 No 1 00 Dont Know 3
111. rately from those of other respondents The following procedures are designed to minimise accidental damage and should there be any damage any blood spillage 1 Place the filled tubes in the sample carrier provided and seal it 2 the serial number and check letter on the top right corner of the sample carrier form i e in the box labelled Hospital Number Put your nurse number in the Consultant box and the D O B in the D O B box 4 Place the sample carrier into the padded Jiffy bag inserting it so that the opening of the plastic bag goes in first ie away from the entrance to the envelope 5 Tearofthe back page of the consent book and Put the Blood Sample Despatch Note 2 in the jiffy bag 6 Fold over the end of the envelope and seal firmly with sellotape Wrap the tape right round the envelope Put the address label of the laboratoty on the Jiffy bag NEVER use staples to seal the envelope Staples can cut post office workers hands When blood is transported this can be dangerous 7 Post the envelope the same day If you do your interview too late to catch the last post post it to catch the next post If you miss the Saturday post collection take the envelope to a box that has a Sunday collection The blood should not be refrigerated 8 When you have posted the blood samples fill in the time and date of posting on the office copy of the Blood Sample Despatch Note 1 20 3 Completing the Blood Despatch Note DESPATC
112. re are people among my family or friends who do things to make me happy Is that nottrue Not true parttrue Partly true certtrue Or certainly true There are people among my family or friends who make me feel loved Is that nottrue Not true parttrue Partly true certtrue Or certainly true There are people among my family or friends who can be relied on no matter what happens Is that nottrue Not true parttrue Partly true certtrue Or certainly true There are people among my family or friends who would see that I was taken care of if I needed to be Is thats nottrue Not true parttrue Partly true certtrue Or certainly true There are people among my family or friends who accept me just as I am Is that nottrue Not true parttrue Partly true certtrue Or certainly true There are people among my family or friends who make me feel an important part of their lives Is that nottrue Not true parttrue Partly true certtrue Or certainly true There are people among my family or friends who give me support and encouragement Is that nottrue Not true parttrue Partly true certtrue Or certainly true This is the end of the self completion section DO NOT CONTINUE METHOD OF SELF COMPLETION computer by computer card Questions and answers shown on card OrdQues Ordinary questioning by interviewer last resort SMOKING AND DRINKING SECTION EvSmok May I j
113. respondent how to complete these sections on the computer If the respondent is having any difficulty in answering or does not understand a question just ask him her to choose the answer that is closest to being true for him her If the respondent prefers not to use the computer explain that he she can use the answer booklet instead Show the examples and read out the question number and ask the respondent to to tell you the number next to his her chosen answer The questions are numbered so you can take the respondent through the booklet question by question If the respondent is using the computer and gets tired of it part way through you may switch to using the booklet Only as a last resort should you ask the questions out loud for example if the respondent cannot see to read them In such a situation you will be asked to give the reason a self completion method was not used 8 6 SMOKING All except 16 17 year olds are routed to this section 16 17 year olds complete questions about smoking and drinking by self completion on the computer Smoking is an important risk factor in cardiovascular disease and the section on smoking will enable us to examine the relationship between smoking patterns cardiovascular symptoms and use of services The data collected here will allow us to discover what proportion of the population is exposed to this risk factor and how it relates to other risk factors such as heavy drinking or high blood pressure
114. rogress towards meeting health improvement targets Consequently the Department of Health and Social Services and the Regional Health Boards decided that a major health survey should be carried out in order to monitor the country s state of health so that trends over time could be noted and appropriate policies planned The Health and Social WellBeing Survey is that survey It will play a key role in ensuring that health planning is based on reliable information As well as monitoring the effectiveness of government s policies and the extent to which targets are achieved the survey will be used to help plan NHS services to meet the health needs of the population 2 THE SURVEY The Northern Ireland Health and WellBeing Survey is a large survey involving interviews with nearly 8 000 adults Fieldwork is over a four month period from January to April 1996 and will include approximately 1 600 nurse visits to collect physical measurements This is the first in a series of surveys which are planned to be repeated every three years The survey is being carried out by the Central Survey Unit on behalf on the Department of Health and Social Services and the Health Boards The survey will focus on a range different health issues each time it is carried out with topics repeated at suitable intervals to monitor changes over time One of the issues studied by the Survey is cardiovascular disease Cardiovascular disease including heart attacks and strokes
115. s 4 00 7 14 units 5 00 14 21 units 6 00 21 28 units 7 00 28 35 units 8 00 over 35 cigarette smokers 1 00 cigarettes LEVEL OF SYSTOLIC BLOOD PRESSURE 1 00 less than 120 2 00 120 less than 140 3 0 140 less than 160 4 0 160 and over LEVEL OF DIASTOLIC BLOOD PRESSURE 1 00 less than 60 2 00 60 less than 80 3 00 80 less than 100 4 00 100 and over BODY MASS INDEX GROUPINGS 1 00 less than 20 2 00 20 less than 25 3 00 25 less than 30 overweight 4 00 30 obese LEVEL OF DIASTOLIC BLOOD PRESSURE 1 00 less than 60 2 00 60 less than 80 3 00 80 less than 90 4 00 90 and over introduction to illnesses circulatory illnesses 1 00 circulatory diabetes 2 00 diabetes ILLNESS3 ILLNESS4 PASS1 PASS2 PASS5 PASS3 PASS4 DEATH11 asthma 3 00 asthma no illnesses 4 00 Passi Passi Other Passi Passi ve ve ve ve none smoking smoking smoking smoking Hypertension experienced experienced experienced experienced at home at work while visiting friends during leisure time DERIVED VARIABLE LIST MSTAT1 DEATH25 DEATH26 HYP1 CLASS AGEGRP2 AGEBAND1 JOIN JOIN1 JOINT ACTIVI REV9 Marital S 00 00 00 00 Obese High cho Hyperten socio eco 00 00 00 00 00 PN two age
116. seek this information 20 SENDING BLOOD SAMPLES TO THE LABORATORY The blood sample is to be sent to the Laboratory It is important that the blood is sent properly labelled and safely packaged and that it is despatched immediately after it has been taken 20 1 Labelling the Blood Tubes Label the tube immediately after you take the blood It is vital that you do not confuse respondents blood tubes Use the set of serial number check letter and date of birth labels to label the vacutainer tubes Attach a serial number label to every tube that you send to the lab Enter the serial number check letter and date of birth very clearly on each label the laboratory has had problems reading some nurses writing on the English survey Make sure you use black biro it will not run if it gets damp Check the date of birth with the respondent again verbally Stick the label over any label already on the tube The laboratory needs to be able to see on receipt how much blood there is in the tube We cannot stress too much the importance of ensuring that you label each tube with the correct serial number for the person from whom the blood was obtained Apart from the risk of matching up the findings of the blood analyses to the wrong person s data we will be sending the GP the wrong results Imagine if we detect an abnormality and you have attached the wrong label to the tube 20 2 Packaging the blood samples Pack the tube for each respondent sepa
117. sit your GP within 3 months to have a further blood pressure reading to see whether this is a once off finding or not Moderately raised Your blood pressure is a bit high today Blood pressure can vary from day to day and throughout the day so that one high reading does not necessarily mean that you suffer from high blood pressure You are advised to visit your GP within 2 3 weeks to have a further blood pressure reading to see whether this is a once off finding or not Considerably raised Your blood pressure is high today Blood pressure can vary from day to day and throughout the day so that one high reading does not necessarily mean that you suffer from high blood pressure You are strongly advised to visit your GP within 5 days to have a further blood pressure reading to see whether this is a once off finding or not Note Ifthe respondent is elderly and has severely raised blood pressure amend your advice so that they are advised to contact their GP within the next week or so about this reading This is because in many cases the GP will be well aware of their high blood pressure and we do not want to worry the respondent unduly It is however important that they do contact their GP about the reading within 7 to 10 days In the meantime we will have informed the GP of their result providing the respondent has given their permission SURVEY DEFINITION OF BLOOD PRESSURE RATINGS For men aged less than 50 and all women
118. stimate their height or weight You are given a choice of whether to enter their estimate in metric or imperial measurements You are asked to code whether you experienced problems with the measurement and if you did to indicate whether you felt the end result was reliable or unreliable As a rough guide if you think the measurement is likely to be more than 2 cms x inch from the true figure for height 1 kg 2 Ibs from the true figure for weight code as unreliable 18 MEASUREMENT OF WAIST AND HIP CIRCUMFERENCES 18 1 Purpose There has been increasing interest in the distribution of body fat as an important indicator of increased risk of cardiovascular disease The waist to hip ratio is a measure of distribution of body fat both subcutaneous and intra abdominal Analyses suggest that this ratio is a predictor of health risk like the body mass index weight relative to height 18 2 Equipment Insertion tape calibrated in mm with a metal buckle at one end which is connected to a spring balance 18 3 Eligibility The respondent is ineligible for the waist and hip measurement if s he is a Pregnant b Chairbound c Has acolostomy ileostomy If any of the above apply record this on the Schedule If there are any other reasons why the measurement was not taken record this on the Schedule and note down the reason 18 4 Preparing the respondent The interviewer will have asked the respondent to wear light clothing for yo
119. stionnaire You should be able to measure the height and weight of most of the respondents However in some cases it may not be possible or appropriate to do so Do not force a respondent to be measured if it is clear that the measurement will be far from reliable but whenever you think a reasonable measurement can be taken do so Examples of people who should not be measured are Respondents who are chairbound should not have their height weight taken If after discussion with a respondent it becomes clear that they too unsteady on their feet for these measurements do not attempt to take them If the respondent finds it painful to stand or stand straight do not attempt to measure height Pregnant women are not eligible for weight as this is clearly affected by their condition It is strongly preferable to measure height and weight on a floor which is level and not carpeted If all the household is carpeted choose a floor with the thinnest and hardest carpet usually the kitchen or bathroom Read the first question If further explanation is required say that although many people know their height and weight these measurements are not usually up to date or are not known with precision required for the survey The reason for wanting to know accurate heights and weights is in order to relate them to other health measures If the height or weight is refused or not attempted the respondent is asked to e
120. stions asked nonot No questions not asked CHDINTR The next section looks at any problems your childchildren may have DisCh Would you mind looking at this card Is there any child under 16 including babies and toddlers in your household to whom any of the things on this card applies YESNO OthDif Does any child in your household have other difficulties with daily activities because of disabilities or long term health or behaviour problems not mentioned so far NumDis ASK OR RECORD Is that just one child or is there more than one with some kind of difficulty I PersChO ENTER PERSON NUMBER OF SDTEXT CHILD Chdis 1 6 ASK or RECORD the type of difficulty S DTEXT child has Unable Unable to do things most children of same age can do Help Needs more help than usual SpSch Attends special school LimSch Limited in school activities without asistance Worry Worry that may have long term problem None None applies to any child in household SpChD What other difficulties does heshe hav if any ChWeez May I just check is there any child under 16 in your household who has wheezing or whistling in the chest when he or she does not have a cold NumWz Is that just one child or does more than one have wheezing without having a cold PersWz ENTER PERSON NUMBER OF SWTEXT CHILD ChBrLs Has SWTEXT child eve
121. t three valid readings ring code 2 or 3 or 4 as appropriate Ring code 5 if you did not attempt to take blood pressure for reasons other than a refusal If you get a refusal ring code 6 If you attempted a reading but failed to get it ring a code at Q9b to show what the problem was If necessary write in full details If you did not attempt a reading record the full reasons why this was so If you were unable to get any valid blood pressure readings ie Q9a codes 2 6 ring consent code 02 on the Consent Booklet If you did get one or more valid readings code whether these were obtained without problem or whether any problems were experienced If you obtained a blood pressure reading ask this question If the person agrees to the results going to their GP turn to the second page of the Consent Booklet Blood Pressure to GP Consent Form sheet BP Explain you have to get written consent in order to send the blood pressure readings to their GP fill in their name at the top of the form and ask them to sign and date the form Then turn to the front of the Consent Booklet and ring consent code 01 Ask the respondent for the name address and telephone number of their GP If possible obtain the postcode Record this at items 7 and 8 of the Consent Booklet If your respondent does not know their GP s full address and or postcode look it up in the relevant telephone directory later public libraries hold telephone directories for the
122. ter DNAME LASTBREK How long is it since you last had a break of two days o T longer LessYear Under 12 months MoreYear 1 year or longer NoBreak No break since started looking after dependant MTHS About how many months is it since you last had a break of two days or longer COD AS 0 IF LESS THAN MONTH YRS About how many years is it since you last had a break of two days or longer BREAK1 And how long was it between that break and the time befor that when you had a break of two days or longer LesslYr Under 12 months MoreYr 1 year or longer NoBrk No break since started looking after dependant MTHS1 About how many months was it between your last break and the previous one YRS1 About how many years was it between your last break and the previous one OUT2HRS If you wanted to go out for a couple of hours during the time when you usually look after this person could DNAM Pl be left alone or would someon lse have to look after himher Yes Someone else would have to look after himher No Dependant could be left alone HOWDIFF How difficult would it be to arrange for someone to look after himher for a couple of hours during the time when you usually look after himher CHILD DISABILITY SECTION CHKCHILD CHILD DISABILITY IS RESPONDENT THE BEST PERSON TO ANSWER QUESTIONS ON CHILDREN best Yes nobut No but que
123. tery which can run for a minimum of six hours when fully charged It is essential to keep the battery charged as fully as possible A yellow battery light will flash as a warning sign on the monitor to alert the user when the charge has fallen below 10 To recharge the battery connect the monitor to the mains and press the rear panel AC power switch to the ON position The green MAINS light will indicate that the battery is charging An overnight charge eight hours will provide about four hours of operation PLEASE REMEMBER TO CHARGE THE BATTERY When the Dinamap is switched on the monitor momentarily displays eights 888s in all the digital displays and all indicators will flash as a check for the operation of all LEDs The audio alarm is also sounded as a check for its operation If on turning on the monitor any of the displays fail to show the 888s contact the nurse supervisor immediately and inform them that there is a problem with the monitor 16 2 Preparing the respondent The respondent should not have eaten smoked or drunk alcohol in the 30 minutes preceding the blood pressure measurement Ask the respondent to remove outer garments eg jumper cardigan jacket and expose the right upper arm The sleeve should be rolled or slid up to allow sufficient room to place the cuff If the sleeve constricts the arm restricting the circulation of blood ask the respondent if they would mind taking their arm out of the s
124. th you to set this up The formal lines of communication between you are described in the next section The informal lines are just as important It has been stressed that an important part of the interviewer s job is to keep you fully informed about the outcomes of his her attempts to interview people We want to minimise the length of time between the interview and your visit You will therefore need to talk to each other frequently by telephone Make sure you let your interviewer know the best times to get in touch with you 8 1 WHEN THE NURSE MAKES THE APPOINTMENT When more than two or three interviewers are working with the same nurse it can become very difficult for the interviewers to find time slots to allocate work to the nurse It also becomes increasingly difficult to keep each other informed of any changes or problems with available time slots In this situation it would be better if the nurse organised her own appointments The interviewer will pass details of the respondent to the nurse including the telephone number The nurse would then ring the respondents to check when they would be free for the agreed visit and would arrange a visit at a time that suits them both To help the nurse contact the respondents the interviewer should attempt to determine when the nurse would be most likely to get the person in They should also prepare the respondent to expect a call from the nurse to arrange a visit It might also be useful if the interv
125. that probability of selection for the survey is therefore dependant on the population size of the particular Health Board In other words individuals living in a Health Board with a large population have a lower chance of being included in the sample than individuals from smaller Health Boards Before analysis of the data at the Northern Ireland level the data from each Board is weighted in relation to the population size This weighting process adjusts the results to those which would have been achieved from a random sample of Northern Ireland addresses The table below illustrates the scaled weight value to be applied under the variable name indvni in the dataset The data should be weighted by indvni during analysis Health Boards Weight Number Scaled weight Northern 1 1085 25 1 08 Southern 2 755 18 0 67 Eastern 3 1791 42 1 7 Western 4 638 15 0 6 Physical Appraisal Weights Only one adult was selected to take part in the Physical Appraisal of each selected address This means that the probability of selection for the survey is inversely related to the size of the household Therefore individuals living in large households have a lower chance of being included in the sample than individuals in small households Before analysis of the physical measurements the data are weighted in relation to the number of eligible adults at the address derived from details of the household structure recorded by inter
126. ther information leaflets to be given out by the interviewer and the nurse provide the respondent with greater detail 3 2 The interviewer visit The interviewer will attempt to interview each person aged 16 and over in the household Particular effort will need to be made to obtain an interview with the respondent selected for the physical measures The following topics are covered General health Lifetime incidence of common conditions Disabilities Use of the health services Stress SF36 12 Social Support Smoking and Drinking Caring for Others Child difficulties disabilities Parent problems General background information The second stage of the survey is then introduced the visit by a nurse to ask a few more questions and to carry out some more measurements 3 3 The nurse visit The second stage of the survey is carried out by a qualified nurse The nurse calls on the respondent in their home and asks a few questions about prescribed medicines that are being taken and carries out blood pressure measurements If the respondent wishes to be given the results of these measurements the nurse enters the information onto their Measurement Record Card The nurse will then ask for written permission to take a small blood sample normally 8ml The sample is sent for analysis to the Royal Hospital laboratory With the respondent s permission the results of the blood test and blood pressure will be sent to their GP The respo
127. tion and Lands Agency list of addresses There are two parts to the survey an interviewer administered questionnaire using computer assisted personal interviewing CAPI Stage 1 and a visit by a nurse to carry out measurements and take a blood sample Stage 2 Co operation is entirely voluntary at each stage Someone may agree to take part at Stage 1 but decide not to continue to Stage 2 In England response to a similar survey has been very high at both stages and we expect this to apply equally in Northern Ireland The nurse and one or more interviewers will work together as a team to complete a list of addresses which they will be allocated each month An advance letter will be sent to each address explaining briefly the survey and its purpose Two other information leaflets to be given out by the interviewer and the nurse to provide the respondent with greater detail 5 2 The interviewer visit The interviewer will attempt to interview each person aged 16 and over in the household Interviews will be carried out using computerised questionnaires All interviewers have their own laptop computer The following topics are covered General health Lifetime incidence of common conditions Disabilities Use of the health services Stress Social Support Smoking and Drinking Accidents Caring for Others Child difficulties disabilities Psycho social factors related to stress and anxiety Parenting problems General background in
128. to improve accuracy Fuller details of how to do this are given in the protocol section 18 Record measurements to the nearest mm If the two measurements that you get for waist or hip are very different eg they differ by 3cm or more you may need to take more measurements in order to work out which one is correct If an incorrect measurement has been recorded on the Nurse Schedule cross it out and write in the correct one by the side If anyone refuses to have these measurements taken record why At Q19 record how reliable the waist and hip measures are and whether any problems that were experienced were likely to increase or decrease the measurement This information is important for the analysis of the results As a general rule if you believe that the measurements you took are 0 5cm more or less than the true measurement because of problems you encountered this should be coded as unreliable Measurements are only coded as unreliable if you think that the clothing the respondent is wearing has affected the measurement by 0 5cm Unreliable does not refer to any measurement errors that you feel you may have made Offer to write the measurements on the Measurement Record Card You are given a conversion chart if the respondent wants to know their measurements in inches Q26 42 Blood Sample In order to take blood we need to obtain written consent from the respondent And if the respondent is a minor aged 16 or 17 we also have to obt
129. to measure your waist and hips ry useful weight over the body circumference i etre 0 0 200 0 circumference in centim i tre 0 0 200 0 t as NURSE BothOb Bot OneOnly On BothRe Bot NotAtt Measurements not Give measu ChairB Res OtherR Som reason Give other Were any p NOp NO REL Pro SLREL Pro UNREL Pro NONEOB No Reco or INCR Incr rs rest mi circumference in c LI Gs n centimetres ntimetres 0 0 200 0 K h measure ly one me h measur men asu ts obtained rement obtained 5 for ref pondent i e other r reason roblems ments refused attempted usal not attempting or why rement is obtained S chairbound eason reliable blems b blems S blems U xperienced in measuring the waist measurement taken ut Reliable lightly reliable waist mea rd whether problems decrease the waist nreliable surement obtained xperienced ar easurement likely DECR Decr ases measur nt Were any p NOp NO REL Pro SLREL P UNREL P NONI ro Gl Reco or INCR Incr ases measurement roblems reliable blems blems but roblems Slight rienced in measuring the ist measurement taken Reliable y reliabl
130. top line blank otherwise the computer will send out a nonsense letter like Dear Dr Ash Grove Practice At Item 8 record how complete you believe the GP address to be If you are sure that a letter posted out of the area to that address would arrive ring code 1 Item 9 is very important You record here the outcome of your requests for permission for a the blood pressure results to be sent to the GP b asample of blood to be taken c the blood sample results to be sent to the GP d asmall amount of blood to be stored for future use e their blood sample results be sent to them By the end of the interview every respondent should have FIVE codes ringed at Item 9 There are two Consent Sheets contained in this booklet Blood pressure information to GP consent form BS Blood sample consent form which is in three parts part I obtains consent to take blood part II obtains consent to give the results to the GP and part III obtains consent to store part of the blood The last two pages of this booklet are despatch notes for blood samples Despatch 1 is a copy of the samples sent to the laboratory this is returned to the office with the rest of the booklet Despatch 2 is a tear off sheet to go with the samples to the laboratory The Nurse Schedule Complete the front page of this schedule before you carry out the interview Again make sure you enter the correct codes in the serial number boxes and fill in the survey month Only e
131. ts But of course we want as few as possible to decline and we rely on your skills to persuade them to participate 10 WHAT TO DO ON INITIAL CONTACT 10 1 Keep your introduction short While you will need to answer queries that respondents may have you should keep your introduction short and concise As already noted some of the people you approach may be hesitant about continuing with the survey and if you say too much you may simply put them off The general rule is to keep your initial introduction short simple clear and to the immediate point Introduction Show your identity card Say who you I am a nurse called Say who you work for I work for the Central Survey Unit Remind respondents about your appointment A few days ago you saw an interviewer about the Health and Social WellBeing Survey and I rang to make an appointment to see you today For most people this will be enough They will invite you in and all you will have to do is to explain what your visit will cover and what you want them to do But others will be reluctant and need further persuading Build on what has gone before you Be prepared to answer questions about the survey and its purpose Some respondents may have forgotten what the interviewer told them about the survey s purpose or what your visit involves You should therefore be prepared to explain again the purpose of the survey You may also need to answer questions for example
132. u RECORD REFERED ENTER ASK OR RECORD What age is depname now ASK OR RECORD What sex is depname May I just check are you the main person who looks after depname or is there someon lse in your household who Spends more time than you do looking after himher Main Less Share I am the main person Someon lse spends more time SPONTANEOUS No one spends more time but someone else spends as much time What is the matter with depname May I just check how is depname affected is it CODE ALL THAT APPLY SET OF Phys A physical difficulty Sight A difficulty with sight or hearing Learn A learning difficulty or mental handicap MentHel A mental health difficulty NODIF Not affected What kinds of things do you usually do for depname will you please look at this card and tell me all the things that you usually do Pers Personal care Phys Physical help Paper Help with paperwork and financial matters Prac Other practical help shopping etc Comp Keeping company Take Taking out Med Giving medicines Eye Keeping an eye on OthThing What other things do you do for depname About how long altogether do you spend on average each week looking after or helping depname including any time when you just need to be there but apart from when you are asleep Please include any time you have to spend travel
133. ur visit Explain to the respondent the importance of this measurement and that clothing can substantially affect the reading If possible without embarrassing you or the respondent ensure that the following items of clothing are removed all outer layers of clothing such as jackets heavy or baggy jumpers cardigans and waistcoats shoes with heels tight garments intended to alter the shape of the body such as corsets lycra body suits and support tights If the respondent is wearing a belt ask them if it would be possible to remove it or loosen it for the measurement Pockets should be emptied If the respondent is not willing to remove bulky outer garments or tight garments and you are of the opinion that this will significantly affect the measurement record this on the Schedule at Q19b d If possible ask the respondent to empty their bladder before taking the measurement 18 5 Using the insertion tape All measurements should be taken to the nearest millimetre If the length lies half way between two millimetres then round to the nearest even millimetre For example if the measurement is halfway between 68 3 and 68 4 round up to 68 4 And if the measurement is halfway between 68 8 and 68 9 round down to 68 8 Ensure the respondent is standing erect in a relaxed manner and breathing normally Weight should be evenly balanced on both feet and the feet should be about 25 30cm 1 foot apart The arms should be hanging
134. ust check have you ever smoked a cigarette a cigar or a pipe Smok 1 4 Do you smoke cigarettes cigars or a pipe at all nowadays SmokCig Smokes cigarettes SmokCigr Smokes cigars SmokPipe Smokes pipe NoSmok Doesn t smoke at all numcigw About how many cigarettes a day do you usually smoke at weekends numcigD About how many cigarettes a day do you usually smoke on weekdays EvCig Have you ever smoked cigarettes regsmk Did you smoke cigarettes regularly that is at least once a day or did you smoke them only occasionally Reg Regularly Occ Occasionally Spon Just tried once or twice numprsmk About how many cigarettes did you smoke a day when you smoked regularly numyrsmk And for approximately how many years did you smoke regularly GPStop Has your GP ever advised you to give up smoking PassSm when you are not smoking yourself Do you spend any time regularly in enclosed places either in the home or lsewhere where other people are smoking or have been smoking TimPSm How much time do you spend in enclosed places where you breathe tobacco smoke when you are not smoking yourself Five At least 5 hours every day or most days One One to 4 hours every day or most days FiveWk At least 5 hours a week OneWk One to 4 hours a week RegLes Regularly but less often than that Other OTimPSM PLEASE SPECIFY Passmok 1 5 Where are you when you are exposed to tobacco smoke in this way CODE ALL THAT APPLY
135. vey for England which began in 1991 and is repeated every year The Regional Strategy for N I Health and Personal Social Services 1991 set out key health targets in a number of areas The aim in setting these targets is to increase people s life expectancy and to improve the quality of their lives It was recognised that a health strategy for improving life quality involved a variety of approaches designed not only to reduce the amount of ill health through high quality health services healthier lifestyles and improved physical and social environments but also to alleviate the effects of ill health Little systematic information has hitherto been available about the state of the population s health or about the factors that affect it There are statistics on the number and causes of deaths Other statistics such as hospital admissions are derived from people s contacts with the National Health Service but these statistics are concerned only with very limited aspects of health For example they are likely to record the particular condition treated rather than the overall health of the patient While information is also available from other sources such as surveys it tends to deal with specific problems not with overall health Wider ranging surveys fail to provide measures of change over time We therefore do not have a clear picture of the health of the Northern Ireland population as a whole or of the way it may be changing It has not b
136. viewers This weighting process adjusts the results to those which would have been achieved if the sample had been drawn as a random sample of the whole of Northern Ireland or of adults rather than addresses The following table illustrates the weight value to be applied in the variable physni in the dataset Health Adults in Weight Number Scaled Board area Household weight Northern 1 1 142 8 5 0 51 2 2 230 13 7 1 02 3 3 60 3 6 1 53 4 4 25 1 5 2 04 5 5 5 0 3 2 55 6 6 1 0 1 3 06 Southern 1 7 82 4 9 0 32 2 amp 138 8 2 0 65 3 9 45 2 7 0 97 4 10 13 0 8 1 29 5 11 14 0 8 1 61 6 12 3 0 2 1 94 Eastern 1 13 199 11 9 0 93 2 14 284 16 9 1 85 3 15 97 5 8 2 78 4 16 32 1 9 3 71 5 17 20 1 2 4 63 6 18 2 0 1 5 56 Western 1 19 78 4 6 0 26 2 20 134 8 0 53 3 21 37 2 2 0 79 4 22 23 1 4 1 05 5 23 10 0 6 1 32 6 24 4 0 2 1 58 In summary then any analysis the dataset will require a weight to be applied in SPSS using the variable INDVNI unless the analysis involves a variable contained in the physical measures section when the dataset should be weighted by the variable PHYSNI Reports produced from findings of the survey Two reports have been produced by NISRA on the findings of the 1997 survey firstly the Health and Lifestyle Report and secondly the Informal carers report These available from the Department of Healt
137. w card how many singles the person is drinking A normal bottle contains 20 singles half a bottle contains 10 singles For wine the answer is in glasses A carafe or 70cl standard bottle 06 glasses Half a bottle 03 glasses 1 3 or 1 4 bottle 2 glasses Litre bottle 08 glasses Half a litre bottle 04 glasses 1 3 of a litre bottle 03 glasses 1 4 of a litre bottle 02 glasses Sherry is usually drunk in small glasses but if it is drunk in schooners this counts as two glasses 1 bottle of fortified wine is 14 small glasses Alcoholic lemonades etc should be coded as other type of drink 8 8 DIET Diet is an important risk factor in cardiovascular disease For instance high fat intake can increase levels of cholesterol in the blood which increases the chance of getting heart disease In this survey we do not ask detailed questions about what people actually eat To obtain sufficient detail on diet would require a separate survey on diet alone However to get a general overview we are asking questions which focus on a few indicators of healthy versus less healthy eating habits As far as possible avoid mentioning the risks of eating less healthily in case it biases the replies If asked about the purpose of the section say that there is a lot of discussion about the effect of diet on health and that we are interested to see what effect this discussion is having on people s eating habits 8 9 CARING Anysick Do not inc
138. were given by respondents in previous health surveys Then go to Q42 and ring codes 04 06 08 and 10 on the Consent Booklet Q28 Q29 Q30 Q31 34 Q35 37 Q38 42 Explain to the respondent the need for written consent and that there are three things that you need consent for Explain that you will go through these things now before you take any blood If the respondent is aged 16 or 17 and has agreed to the blood sample you will need to get consent from their parent or guardian If the parent or guardian refuses consent write in why go to Q42 and code 04 06 08 and 10 on the Consent Booklet As blood taking is an invasive procedure we need to get written consent to take it Thus when your respondent agrees to a blood sample you will need to complete part I of the Blood Sample Consent Form sheet BS If they are 16 or 17 ask the parent or guardian to countersign You must not take any blood until this part of the Consent Form has been fully signed Ring consent code 03 on the Consent Booklet to show that this has been done Check if the respondent has a GP and ask if the results of the blood tests can be sent to their GP If so follow the instructions get a signature at part II of the Blood Sample Consent Form check the GP details are filled in on the front page and ring consent code 05 on the consent booklet If they do not want the results to go to their GP or they do not have a GP ring code 06 instead You then n
139. what you hope to do during your visit and to reassure nervous respondents that every stage is optional Respondents and their GPs if the respondent wishes will be given their blood pressure readings and the results of the blood tests 11 2 The Stage 2 Leaflet A copy of the leaflet must be given to all respondents before you start doing any measurements It describes what you will be doing and sets out the insurance implications of allowing the information to be passed to GPs Give the Stage 2 Leaflet to respondents after you have explained what you are going to do Ask them to read it while you get your equipment ready This will give them something to do give them time to read it and you time to sort yourself out Be prepared to answer any questions they may have at this point 12 YOUR SAMPLE 12 1 Your sample The sample for this survey is a random probability sample This means that all adults aged 16 and over in Northern Ireland have an equal chance of being selected The aim is to interview each person in the household and to carry out physical measurements on one randomly selected adult aged over 16 from each of the addresses Non residential addresses are excluded The interviewer s first task is to make contact at each sampled address and identify how many households are resident In most cases there will be one household but occasionally an address will contain two or more households eg a house may be split into flats that
140. y paid work in the past 12 months SHOW CARD 9 CODE ALL THAT APPLY Have any of the things on this card happened to you in the past 12 months SET 6 OF changed Changed jobs lost Lost your job thought Thought that you would soon lose your job illness Had to give up work because of illness disability other Had any other crisis or serious disappointment in your work or career Retired none None of these Has your husbandwife or partner lost a job or had a crisis or serious disappointment at work in the past 12 months May I just check has your husbandwife or partner retired or had to give up work because of ill health during the past 12 months Have you had any major worries about your housing in the past 12 months Has any member of your household left home or a new person moved int NOTE o your household in the past 12 months INCLUDES BABIES HAPFIR 1 7 Have any of the things on this card happened to you in the past 12 months divorced Divorced or started living apart disagree Had a serious disagreement with your spouse partner betray Felt betrayed or disappointed by your spouse or partner children Had serious difficulty with any of your children because of their health or behaviour or anything else fallout Fallen out or had a serious disagreement with a friend or relative or felt betrayed by someone contact Lost
141. ycommunicating with other people that is have them or being understood by them nonel None of these apply PROG1 HEARAID PROG2 HEARCOND RECOG1 GLASSES RECOG2 SEECOND DRESHELP WASHHELP FEEDHELP PROBCOMM TALKPROB HEARPROB VISPROB Can you but without the help of teletext if normally worn May I just check time Can you follow a TV programme at a volume t acceptable without your hearing aid What PROBE els What doc Can wi May FOR FULL D ETAILS INCL e does the doctor call t tor say causes this diff you see well enough to I just check most of the time Can you see well enough to recognise a The road four yards away orlenses Wha PROBE FOR FULL E tion has c ETAILS INC health condi D health condition has caused your heari UDING Wa his condi iculty recognise th glasses or contact lenses if normally do you wear glasses or follow a TV programme with the volume turned up with hearing aid do you wear a hearing aid most of the hat others find ng difficulty S it caused by anything tion What does the a friend one yard away worn contact lenses friend across without your glasses aused you jUDING W r sight difficulty as it caused by anything else What does the doctor call this condition What does the doctor
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