Sudden Arrhythmia Death Syndrome (SADS) Database User Guide
Contents
1. NHS The Information Centre for health and social care Sudden Arrhythmia Death Syndrome SADS Database User Guide 1 To enter data from an N3 NHS based internet connection type ncasp1 ic nhs uk into the URL To enter data from a non NHS based internet connection www ncasp org uk should be used To login into the portal click onto the login button in the top right hand corner of the page 0845 300 6016 option 2 INHS helpdeski ncasp org uk j jia Contact Us NC ASP Portal Logged in as Guest Login Forgotten Password Request User Test Browser Compatibility Bookmark Portal NCASP Portal NCASP News DAHNO New User training sessions Leeds 23 September and London 1 October Expired Security Certificate Criteria for inclusion into 2007 8 DAHNG Annual Report First MBF reports go live OG Reports Version 1 0 Cardiac Rehap NWACR Annual Report Data and Training Dates DAHNG OG and MBER Search Changes OG Audit update 2 Once the login button has been clicked the following page is shown requiring the user to enter the correct username and password Click on Sign In to complete the login process User names Password 3 After logging into the NCASP portal the SADS database can be accessed by clicking the Sudden Arrhythmia Death Syndrome link as shown in the screenshot below 0845 300 6016 option 2 INHS helpdesk ncasp org uk Home Logout Contact Us H NICASP Portal Cees Logout Cha2. ccad org uk gt Home Welcome Page Database Records gt FAQs gt Downloads All Centres Renos A i Date of Death SADS kennis Patient b le 7 All Patents Dy nante 10 The screenshot below shows the first section of the New Records page SADS Database Home Logout Contact Us r Logged in 20 E 0845 300 6016 opt 2 nelpdesk ccad org uk Home Welcome Page Database Records FAQs Downloads All Centres Patient Information iciose save Forename mer OOO Poode OOOO Pecon E Pioessioralianegerisi i Surname Date of birth Sex 1 Male Height m 2 Female Weight kg es Hospital HH Harefield Hospital ba Circumstances Co existing illnesses ra 1 Died in bed 2 Died at rest 3 Died during mild exertion O4 Died during moderate exertion LJ 1 Epilepsy _ Asthma C13 Congenital heart disease 4 Liver disease 5 Died during severe exertion C18 Other 6 Died during emotional state C19 Unknown Died circumstancers unknown Other presenting symptoms 7 41 Syncope Family history 7 41 Premature sudden death 2 Seizures C12 Cardiomyopathy C13 Chest pain L13 Arrhythmia _ 4 Palpitations 4 Neuromuscular disease C19 Unknown 15 Daibetes LIJ6 Epilepsy CIF Alcoholic liver disease LJ 8 Other C19 Unknown 10 11 The screenshot below shows the continuation of the New Records page Medications including over the c
3. the term Sudden Arrhythmic Death Syndrome is now used It is thought that cot death Sudden Infant Death Syndrome or SIDS may be partly due to the same causes responsible for SADS The Central Cardiac Audit Database CCAD has been used to collect data since 1996 and was set up to harmonise a variety of contemporary data collection exercises in cardiovascular medicine They were responsible for establishing the highly successful Myocardial Infarction National Audit Project which is now used in every Coronary Care Unit in the country Their expert services have been contracted to set up and administer the SADS Once submitted can retrieve records to edit content Yes at any time What do do if forget my username and password oe rae i i PE OViIdin wo ave hee E ELETI N the SALIS plea 8 The screenshot below shows the Downloads page Home Logout Contact Us Logged in as SADS Database 0845 300 6016 apt 2 nelpdesk ccad org uk All Centres Home Welcome Page Database Records FAQs Please go to where you can download a leaflet on SADS By clicking on the Database Records tab the screenshot below is presented to the user The page shows the user which patients have been entered in addition to the ability to view patient details individually To enter a new patient record the New Record button should be clicked Home Logout Contact Us SADS Database ae ae a L ggeg s 0345 300 6016 opt 2 39 nelpdesk
4. ds of patients treated in their own institutions If a user detects what he or she believes is a breach of security or confidentiality then it is their responsibility not to disseminate the information obtained and to report the event ta CCAD immediately Clinical Enquiries Perry Elliott pelliott doctors org uk 0207 573 8888 E Technical Enquiries 6 The screenshot below shows the Welcome page SADS Database Home Pinoa Contact Us 0845 300 6016 opt 2 gg S helpdesk ccad org uk z Home Welcome Page gt Database Records gt FAQs Downloads All Centres Welcome to the SADS Database As a National audit project the SADS is supported by the Information Centre for Health and Social Care s National Clinical Audit Support Programme NCASP ons Privacy Policy 7 The screenshot below shows the Frequently Asked Questions FAQ s page SADS Database Homa rout Contact Us 0845 300 6016 opt 2 gg nelpdesk ccad org uk gt Home Welcome Page Database Records Downloads All Centres SADS Frequently asked questions What does SADS stand for Sudden Amhythmic Death Syndrome SADS In about 1 in every 20 cases of sudden cardiac death no definite cause of death can be found even after the heart has been examined by an expert cardiac pathologist This is then called Sudden Arrhythmic Death Syndrome In the past it has also been called Sudden Adult Death Syndrome or Sudden Death Syndrome but because it affects children too
5. nge Password Bookmark Portal NCASP Portal NCASP News Database Links DAHNO New User training sessions Leeds 23 September and Arrhythmia Audit London 1 October Cardiac REHAB Audit Expired Security Certificate Cardiac Rhythm Management Audit Criteria for inclusion into 2007 8 DAHNO Annual Report DAHNO Head amp Neck Audit First MBR reports go live Hip Fracture Database OG Reports Version 1 0 Mastectomy amp Breast Reconstruction Audit Cardiac Rehab NACR Annual Report Data and Training Dates MINAP BCIS Portal Demo DAHNO OG and MBR Search Changes Oesophago Gastric Audit OG Audit update Oesophago Gastric Audit Training Oesophado wic Feedba Sudden Arrhythmia Death Syndrome Audit 4 The warning message as shown below will appear If you agree with the terms and condition click the continue button gt NCASP Logout Dialog Windows Internet Explorer Gi https fwebsryv02 ncasp org uk ncaspportal nst wDisclaimer Openpage DBLhttps 34 2F 2Fww ncasp orc i Certificate Error Warning Please Read The Sudden Arrhythmia Death Syndrome Audit contains confidential medical information which ts available to the staff of Hospitals whose patient s have received investigations or treatment in other hospitals It is an offence to view this data if you are not authorised to do so It is an offence to make use of this database other than for the purpose it was created Under no circumstances should users pass their login details
6. or disclose their passwords to others If users believe that their password has been compromised they should inform the helpdesk team immediately If a user detects what he or she believes ts a breach of security or confidentiality then it ts their responsibility not to disseminate the information obtained and to report the event to the helpdesk team immediately Please be aware that you are subject to the requirements of the confidentiality agreement in your NHS contract in using this database Continue Cancel D Internet io0 g i 5 The screenshot below shows the SADS database homepage The 4 main pages of the SADS database are Home Welcome page Database records FAQ s and Downloads By clicking on the required tab you are able to access the corresponding page 0845 300 6016 opt 2 INHS we helpdesk ccad org uk hi ra on G Home Logout Contact Us Centre SADS Database Logged in as e Home Welcome Page Database Records gt FAQs Downloads All Centres This database contains confidential medical information tis an offence to view these data if you are not authorised to do so It is an offence to make use of this database other than for the purpose for which it was created Under no circumstances should users disclose their login details or password to others lf a user believes that their details have been compromised they should inform CCAD immediately Users should only be able to see personal identifiers in recor
7. ounter legal drug use Illegal drugs Alcohol 0 No Alcohol intake 1 Yes unifts week O 1 Current smoker smoking 2 Ex smoker sae 3 Never smoked Aipa O4 Smoking history unknown Toxicology screen 0 No Results O 1 Yes Spleen taken fresh 0 No Location stored 1 Yes Heart weight g fo Location stored Heart retained O0 No 31 Yes Number of tissue blocks Raa Location stored Tissue blocks slides 0 No O1 Yes retained 11 12 The screenshot below shows the continuation of the New Records page Coronary artery atheroma 0 No Details Flo O 1 Yes F 1 P2 C4 Els E6 C7 Fs Els Other coronary 1 Vasculitis Details abnormalities P12 Fistula RV 13 Fistula LV 14 Fistula Coronary sinus L15 Aneurysm L16 Dysplasia No significant disease Non critical disease lt 75 stenosis or gt 2 mm diameter Critical disease gt 75 stenosis or lt 1 mm dimeter Ostial stenosis Ostial anomaly Coronary artery anomaly Coronary bridging Coronary artery thrombus Coronary artery dissection Regional RV Oo No O1 Yes iz abnormalities F3 Fla C15 C6 Fir Cls C9 Fibrosis RV septum Fibrosis RV septum Fibrosis RV apex Fibrosis RV free wall Fibrosis RV outflow Transmural Subendocardial Subepicardial Intramural L111 Pathological adipose tissue replacement RV septum L112 Pathological adi
8. pose tissue replacement RV apex L113 Pathological adipose tissue replacement RV free wall 114 Pathological adipose tissue replacement RV outflow L115 Transmural L116 Subendocardial 117 Subepicardial LJ 18 Intramural L119 Pathological dilatation L120 Abnormal thinning Valvular abnormalities 0 No O1 Yes 12 13 The screenshot below shows the final section of the New Records page Regional LV abnormalities O 0 No Details L114 Fibrous scarring Anterior septum O1 Yes 2 Fibrous scarring Posterior septum 13 Fibrous scarring Posterior wall L14 Fibrous scarring Lateral wall C15 Transmural L16 Subendocardial CIF Subepicardial 18 Intramural L19 Pathological adipose tissue replacement Anterior septum 110 Pathological adipose tissue replacement Posterior septum 11 Pathological adipose tissue replacement Posterior wall L112 Pathological adipose tissue replacement Lateral wall L113 Transmural L114 Subendocardial L115 Subepicardial L116 Intramural L117 Acute infarction 118 Endocardial thrombus L119 Other focal abnormalities TEXT Final Diagnosis 00 Rheumatic fever without mention of heart involvement 00X Rheumatic fever without mention of heart involvement l01 Rheumatic fever with heart involvement 1010 Acute rheumatic pericarditis N Select files for upload Select files to delete pi Bowe Browse o o A Brewse _ Edit Histor
9. y Final Digonis other Created by Created on Last modified by On Modified on 30 07 2008 ey 30 07 2008 14 41 17 To submit an image file In the Select files for upload section click on the Browse button then navigate to your file and select it then click OK You can submit up to 4 files by repeating the process by clicking on each of the Browse buttons The images will be saved when you click on the Save button at the top of the form To delete a submitted image file The record must be in edit mode If it is not click on the Edit button at the top of the form In the Select files to delete section put a tick against any files you wish to delete The files will be deleted when you click on the Save button at the top of the form 14
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