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Technoelectric Dependent Children
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1. Technoelectric Dependent Children Kazumi Sakashita MD Loren Yamamoto MD MPH MBA FAAP FACEP Wallace Matthews MD FAAP Pediatrics University of Hawai i John A Burns School of Medicine and Kapi olani Medical Center for Women amp Children Honolulu HI Background Table 1 The causes of electricity outage l l l 1 Attribute to electric power company Excessive demand for electric power Our research revealed most of CSHCN are unprepared for power failure We have several suggestions Children with special health care needs CSHCN are medically Unexpected cause e Natural disaster earthquakes lightning fire wind snow flooding tsunami 1 Having a back up battery kit For devices with rechargeable battery back up battery should be complex and often dependent on electrical technology devices e Man made outages vehicle and construction accidents with power poles and power lines maintenance available Battery itself usually does not cost much and is purchasable from each company It needs to technoelectric dependent for life support or maintenance If they from utilities and the occasional human error be charged in regular base otherwise power will be discharged Family needs to be aware how many cannot utilize these devices it would jeopardize their lives Natural e Breakdown of power plant or power distribution station hours it can be used when used alone disasters are not the only reason for electricity f
2. aap org family frk aapfrk 1 pdf su pport device User Manual of EnteraLite Infinity ZEVEX KANGAROO JOEY Feeding Pump KENDALL LTV Series Ventilator Pulmonetic Systems Inc DeVilbiss Suction Unit EverGo Portable Oxygen Concentrator RESPIRONICS State of Hawaii Emergency Alert System Plan http vww scd hawaii gov documents EAS_Plan pdf household electricity that can be used to power devices that normally plug into household outlet 19 Has anyone ever tested this to see if this can power your child s life support device
3. ailure There are e Animals coming into contact with power lines e g birds 2 Generator In the US electricity is provided at 110 or 120 volts 60Hz As a basic rule watts a unit of ee pecan elie ee a aula Expected cause e Elective or rolling blackout construction effort to avoid massive blackout due to excessive demand power Volts x Ampere Generators are useful but they can be difficult to manage appropriately technoelectric dependent CSHCN sometimes plan to utilize e Fuel deficiency secondary to economy weather political reason Te n mAN Saran Wane electricity at the hospital in such events this is unreliable rendering 2 Attribute to each facility or house e Breakdown of circuit breaker due to water dust age weather Home 2000 2000 5000 watts It can be used as 24 7 automatic Need experts to install them vulnerable because of traffic gridlock and hospital lockdown e Accidental unplugging standby 3000 power protection Runs on existing Expensive sei a ee or eer Ue ornare this ral is generator natural gas or LP fuel Need natural gas or LP fuel o survey or electrical power failure vulnerability in the 4 i ilabili 2 Q8 How long ago was the last time that battery back u event of electrical power failure Number of children was ERA T used to confirm the battery sore Portable a np Oooo wans AE Ona see compact ie le veguen reueg power eLess expensive eCarbon monoxide production E Everyday 22 gen
4. cable clamps connected directly to the battery Some humidifier m Back up battery Available 1 5 hrs products allow us to generate 2000 watts or more This method requires more technical expertise CSHCN who are in long term nursing facilities We collected data from Oxygen concentrator Q9 How long can your child survive if this device fails Et ee Age range 5 months to 25 years Male 29 58 female 21 42 Cough assist 6 and is more risky because there is the possibility of a battery short circuit which could melt wires a 94 of families felt that their children need an electrical medical Electric wheel chair Back up battery NOT available damage the life support device or cause a fire Car s engine should be running to prevent the aie device to maintain their lives We found many of devices did not pen Paani day battery depletion in non enclosed area to avoid carbon monoxide intoxication Thus theoretically Smmm have back up batteries 86 feel their most important device will eritoneal dialysis 6 we can run any medical devices which works on 240 watts or less by using cigarette lighter plug DieH not run more than 1 day without electricity Half did not have any Considering some devices require higher surge power to be started as well as the speed of power back up plan Three fourths did not have a generator Though consumption depends on the p
5. erator ePurchasable in most of places Need to store gasoline appropriately Oil lubricant is also required 2 E Once a week or more 2 0 10 20 30 40 50 Feeding pump G Asthma nebulizer 1 3 weeks ago 0 3 Car power inverter pz or ici i i A N0 1 2 months ago 10 This is the simplest safest and most economical way to generate electricity s Physicians caring for CSHCN who live at home were asked to Pulse oximeter plest y to generate electricity ori a acid pied UN W E gt 2months ago 10 Car generates 12 VDC with approximate max current flow 20A Inverter can questionnaire Table 2 via phone or personal interview We excluded Suction m Never been checked 42 supply AC power from any 12V battery or automotive DC source simply by Not applicable No back up by plugging jinto the cigarette lighter Most inverters can continuously supply 50 patients who daily depend on a medical electric device at home Ventilator battery 14 100 200 watts of 110 1 20V AC power to one or more AC outlets The prices range From 10 to 50 varying depending on the maximum surge capacity When we use a cigarette CRM lighter the power ratings of the 12 V inverters are limited up to 20A by the electrical current capacity Chest vest Don t know 1 hr or less of its wire which means we can get up to 240 watts 20A x 12VDC If we need more electricity we a 2 14 can use bigger inverter with heavy duty
6. erator works with gasoline light 2 14 Do you know what kind of oil not gasoline your generator requires 1 5 days 15 Do you have the oil that is needed 8 16 Do you have access to a car or van Don t know 4 Q18 Do you have a device that converts your car s electricity to household electricity an inverter Ow Staf a Go J ess f 17 Are you aware that car van can be used to generate electricity A Y gr i failure We pediatricians play an important role to address this aspect of disaster preparedness p p TE 60 Reference AAP Committee on Pediatric Emergency Medicine Council on Clinical Information Technology American College of Emergency Physicians and Pediatric Emergency 18 Do you have a device that converts your Cars electricity to YW a Medicine Committee Policy Statement Emergency Information Forms and Emergency Preparedness for Children With Special Health Care Needs Pediatrics Vol 125 No 4 April n 2010 125 829 837 www pediatrics org cgi doi 10 1542 peds 2010 0186 Q19 Has anyone ever tested this to see AAP Committee on Pediatric Emergency Medicine Committee on Medical Liability and the Task Force on Terrorism Policy Statement The Pediatrician and Disaster Preparedness To lt Pediatrics Vol 117 No 2 February 2006 pp 560 565 doi 10 1542 peds 2005 2751 of this can Bowel your child s life AAP Overview Booklet FAMILY readiness kit preparing to handle disaster http www
7. ower demand we must test in a drill to determine if each device will actually work almost 90 possessed automobiles half of them were not aware Q5 Which device is most important to maintain your child s life that a car can generate electricity Our research revealed that most Q6 How many hours per day does your child normally use this device Table 3 Examples of devices which theoretically can be operated by cigarette lighter plug inverter families are not prepared enough for electrical power failure N tmberotr chidren Q10 Do you have a back up plan Device TS Electrical Requirement Table 2 Questionnaire 0 5 10 15 20 EnteraLite Infinity ZEVEX J Lithium lon Battery Input 5VDC 2 4A Life 24 hours 125 ml hr 1 Enter your child age and gender Feeding pump eS os KANGAROO JOEY aY Operate on A C power or battery power Operates on 5V DC 2 4 A oan ETE EEEE E a J Q11 15 Do you have an electrical generator Feeding Pump KENDALL Life 2 18 hrs at 125 mL hr Does your child have any electrical medical devices that are require Ventilator I i i o manlain hie her liie i ira Has the generator ever been tested LTV Series Ventilator e Operate on 90 250 VAC 47 63 Hz or battery power Battery Run Time Asthma nebulizer N Yes 92 No 8 Pulmonetic Systems Inc 60mins 3 Which device your child requires Feeding pump Drug infusion pump a Does the generator work with gasoline _ Nominal Power Draw Startup 66 wa
8. tts Running 36 48 watts i i ena a ees ee ok ant Ba Seamer E 20 right DeVilbiss Suction Unit pew Operate on 100 240 VAC 50 60Hz 0 75A or battery power Battery Run ae i eA i i P 7 y T a TORT Suction me Yes 77 No or Don t know 13 J Time 60mins Power Consumption 33 Watts Max oil Sete a is Wel NES ona EVS l 5 Sul EAU t Biceeucer Do you know what kind of oil your EverGo Portable Oxygen Concentrator Operate on Lithium ion batteries 14 4 VDC nominal 5 Which device is most important to maintain your child s life ulse oximeter MEZ generator requires RESPIRONICS AC power 100 to 240 VAC 50 60 Hz 1 A Power Consumption 110 W 6 How many hours per day does your child normally use this device Humidifier B J ____ Yes 69 No 31 100 VAC while charging 70 W while not charging 7 How many hours can this device continue to run continuously if a Cias EE Do you v ne oe N mace DC power 12 18VDC 5 0A max DC power code included in the kit power failure occurs relying on battery power alone J 29 210 OCS o ae 4 Pediatricians role Peritoneal dialysis B D l 9 How long can you child survive if this devices fails keep essential medical devices running during power failures should be a part of discharge instruction and disaster 10 If Hawaiian Electric has a prolonged power failure more than a planning Hospitalists often have some advantage more face to face time over PCPs who have limited visit times day do
9. you have a back up plan on how to supply electrical power to Hospital care is where most CSHCN receive their medical care when they are more seriously ill which puts caretakers in a this device et How Hale hours can rhe eee to run continuously if power failure Hels serious a Pani disaster Aa o sa we all ees piel abe the emergency Hal of relying on battery power alone each area provided by local government such as the Emergency Alert system of each state the places to evacuate the 11 Do you have an electrical generator a A A on locations of emergency shelters and the information sources Prompt on site supports are crucial to help CSHCN We i need to be ones who can provide necessary information and care Conclusions Electricity is largely taken for granted but there are many situations when it can be difficult to obtain reliable power Most CSHCN who are vulnerable to power failure are found to be unprepared They should routinely drill for electricity power 8 How long ago was the last time that battery back up was checked or Hospitalists often encounter CSHCN in inpatient settings which is a great opportunity to convey to caregivers the used to confirm that the battery works number diaveraga hodis atuse perday Q16 Do you have access to a car or van importance of preparing for power failure In addition to a general emergency plan as AAP recommends concrete plans to 12 Has the generator ever been tested gt 5 days 13 This gen
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