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4431.0.55.001 Disability, Ageing and Carers, Australia: User Guide

1. E Australian Bureau of Statistics www abs gov au 4431 0 55 001 Information Paper Disability Ageing and Carers Australia User Guide 2003 New SSUc Information Paper Disability Ageing and Carers Australia User Guide 2003 Dennis Trewin Australian Statistician AUSTRALIAN BUREAU OF STATISTICS EMBARGO 11 30AM CANBERRA TIME MON 20 DEC 2004 ABS Catalogue No 4431 0 55 001 Commonwealth of Australia 2004 This work is copyright Apart from any use as permitted under the Copyright Act 1968 no part may be reproduced by any process without prior written permission from the Commonwealth Requests and inquiries concerning reproduction and rights in this publication should be addressed to The Manager Intermediary Management Australian Bureau of Statistics Locked Bag 10 Belconnen ACT 2616 by telephone 02 6252 6998 fax 02 6252 7102 or email lt intermediary management abs gov au gt In all cases the ABS must be acknowledged as the source when reproducing or quoting any part of an ABS publication or other product Produced by the Australian Bureau of Statistics INQUIRIES For further information about these and related statistics contact the National Information and Referral Service on 1300 135 070 CONTENTS eovovoeveveeeeeeeeeeeee eee eee eee eee eee eee ee eee em eee eee eo eee eee eee em em eee eC ec eC eC em em em ec el ele page CHAPTERS Hodo 2 82 ot e
2. AIDS COMMUNICATION LABEL Whether uses a fax machine to communicate with others because of condition POPULATION All persons aged 5 or over with a disability living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES CoCo ooo oOo HEHEHE HEHEHE HEHEHE EEE EEE HEHE HHH HEHEHE EHH ETE HE HHH H HEHEHE HEHEHE HHH HHH HHH HHH HOH HEHEHE HEHEHE HOHE HEHEHE OOOO OS ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 29 APPENDIX DATA ITEM LIST continued eovovoeveeveeeeeeeeeee eee eee eee eee eee eee ee ee eo ee ee ee em ee eee mee em mem Oe em em oO em oO eo em em em ee elt AIDS COMMUNICATION 0 Not applicable continued 1 Uses fax machine to communicate 2 Does not use fax machine to communicate LABEL Whether uses a mobile or cordless phone to communicate with others because of condition POPULATION All persons aged 5 or over with a disability living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses a mobile or cordless phone 2 Does not use a mobile or cordless phone LABEL Whether uses aid s to assist with hearing multiple response POPULATION All persons with a loss of hearing excludes persons with a non restricting disfigurement or deformity only CATEGORIES 1 Uses a hearing aid Has cochlear implant Uses other aid s to assist with hearing Does not use aid s for hearing WR W
3. 0 Not applicable All of the time Most of the time A good bit of the time Some of the time A little of the time None of the time NW KR WON e LABEL How often had a lot of energy during last four weeks POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 All of the time 2 Most of the time CoCo eee ooo HOHE HEH OOH OHHH EHH EEE HEHEHE HEHEHE HEHEHE EHH HEHEHE HEH HEHE SESE SESH HEHEHE HEHEHE HEHE HEHE HHH HHH HEHEHE HOES ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 183 APPENDIX DATA ITEM LIST continued eovovoeveveeveeeveeeeeeeee eee eee eee eee eee eee eee oe eee ee eee eee em ee em eo em meee mee eC ee oO oO ee Oe SELF PERCEIVED HEALTH STATUS SF 12 ITEMS A good bit of the time Some of the time WW aR Od continued A little of the time 6 None of the time LABEL How often physical health or emotional problems interfered with social activities during last 4 wks POPULATION All primary carers living in households CATEGORIES 0 Not applicable All of the time Most of the time Some of the time RO NM A little of the time 5 None of the time LABEL Whether accomplished less than would like during last four weeks because of emotional problems POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Accomplished less than would like because of emotional problems 2 Did not accomplish less than would li
4. APPENDIX DATA ITEM LIST continued eovovoeeveeveeeeeeeeeeee ee eee eee eee eee eee eee eee eee eee ee eee eee meee eee em ee eee ee ee Oe EMPLOYMENT LABOUR 2210 Accountants Auditors and Corporate Treasurers nfd FORCE ITEMS continued 2211 Accountants 2212 Auditors 2213 Corporate Treasurers 2220 Sales Marketing and Advertising Professionals nfd 2221 Marketing and Advertising Professionals 2222 Technical Sales Representatives 2230 Computing Professionals nfd 2231 Computing Professionals 2290 Miscellaneous Business and Information Professionals nfd 2291 Human Resource Professionals 2292 Librarians 2293 Mathematicians Statisticians and Actuaries 2294 Business and Organisation Analysts 2295 Property Professionals 2299 Other Business and Information Professionals 2300 Health Professionals nfd 2310 Medical Practitioners nfd 2311 Generalist Medical Practitioners 2312 Specialist Medical Practitioners 2320 Nursing Professionals nfd 2321 Nurse Managers 2322 Nurse Educators and Researchers 2323 Registered Nurses 2324 Registered Midwives 2325 Registered Mental Health Nurses 2326 Registered Developmental Disability Nurses 2380 Miscellaneous Health Professionals nfd 2381 Dental Practitioners 2382 Pharmacists 2383 Occupational Therapists 2384 Optometrists 2385 Physiotherapists 2386 Speech Pathologists 2387 Chiropractors and Osteopaths 2388 Podiatrists 2391 Medical Imaging Professionals 2392 Veterinarians 2393 Di
5. LABEL Number of persons aged 60 64 in family POPULATION All families living in households in private dwellings CATEGORIES Continuous LABEL Number of persons aged 60 64 in household POPULATION All households CATEGORIES Continuous LABEL Number of persons aged 65 69 in family POPULATION All families living in households in private dwellings CATEGORIES Continuous CoCo ooo ooo EHEHHE HEHEHE HEHEHE EEE HHH HEHEHE HEHEHE HHH HHH HHH HHH HHH HHH HHH HEHEHE HEHE EEE OOOO OS 104 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeceveveveeeeeeeeeeee eee eee eee eee eee eee eee ee eee ee em ee em ee mee mee ee em em eC hm eC oO em me em ee ele DEMOGRAPHICS continued eo eee eeseee ee eeseeeeeeeeeeeeee LABEL Number of persons aged 65 69 in household POPULATION All households CATEGORIES Continuous LABEL Number of persons aged 70 74 in family POPULATION All families living in households in private dwellings CATEGORIES Continuous LABEL Number of persons aged 70 74 in household POPULATION All households CATEGORIES Continuous LABEL Number of persons aged 75 79 in family POPULATION All families living in households in private dwellings CATEGORIES Continuous LABEL Number of persons aged 75 79 in household POPULATION All households CATEGORIES Continuous LABEL Number of persons aged 80 84 in family POPULATION All fam
6. LABEL Whether carer provides assistance with cognitive or emotional tasks POPULATION All carers of in scope co residents living in households CATEGORIES 0 Not applicable 1 Usually assists with cognitive or emotional tasks 2 Does not usually assist with cognitive or emotional tasks 3 Not stated LABEL Whether carer provides assistance with communication tasks POPULATION All carers of in scope co residents living in households CATEGORIES 0 Not applicable 1 Provides assistance with communication tasks 2 Does not provide assistance with communicaton tasks LABEL Whether carer provides assistance with health care tasks POPULATION All carers of in scope co residents living in households CATEGORIES 0 Not applicable 1 Provides assist health care tasks 2 Doesn t provide assist health care tasks ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeveeveeeveeeeeeeee eee eee eee eee eee eo eee ee oe eee ee em eee ee eee eee eee em eC em eo eC em oO ee el ele CARERS ASSISTANCE LABEL Whether carer provides assistance with home maintenance or gardening tasks PROVIDED continued POPULATION All carers of in scope co residents living in households CATEGORIES 0 Not applicable 1 Provides assistance with home maintenance or gardening tasks 2 Does not provide assistance with home maintenance or gardening tasks LABEL Whether carer provides assistance with ho
7. LABEL Whether primary carer s main source of assistance is a co resident POPULATION All primary carers living in households CATEGORIES 0 Not applicable Co resident 1 2 Notaco resident 3 Has no main source of assistance PRIMARY CARERS TYPE OF LABEL Duration of care provision number of years of primary care provided to main ASSISTANCE PROVIDED recipient of care POPULATION All primary carers living in households CATEGORIES 0 Not applicable Does not know Less than one year 1 4 years 5 9 years 10 14 years 15 19 years 7 20 years or more NWN KR WwW N LABEL Length of time caring because of condition POPULATION All primary carers living in households CATEGORIES Continuous 0 Not applicable 99 Not known CoCo ooo ooo EHO HHHHEHEHEH HEHEHE HEHEHE HH HEHEHE HEHEHE HHH HHH HHH HHH HEH HHH HEH HOHE EOE OEE OOS 178 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevoveveveeveeeeeeeeeeeeee eee eee eee eee eee eee eee eee ee eee ee eo eee mee eee eee ee em em oO ee ee PRIMARY CARERS TYPE OF LABEL Whether main recipient of care needs episodic or continuous care from primary ASSISTANCE PROVIDED carer continued POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Needs continuous care 2 Needs episodic care LABEL Whether primary carer usually accompanies main recipient of care when going out POPULATION All
8. 166 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeveveveveeeeeeeeeeeeeeee ee eee eee eee eee eee eee eee eee eee eee eee e eee eee eee eee eeee PRIMARY CARERS EFFECTS OF THE CARING ROLE PERSONAL continued Brought closer together Less time to spend with them Relationships strained Relationships affected in another way NWN KR WwW N Has no other co resident family members 7 Not stated LABEL Main effect of caring role on primary carer s relationship with spouse or partner POPULATION All primary carers living in households whose main recipient of care is not their spouse or partner CATEGORIES 0 Not applicable Relationship unaffected Brought closer together Lack time alone together Relationship strained WR WN FR Has no spouse or partner 6 Not stated LABEL Main effect of caring role on the primary carer s friendships POPULATION All primary carers living in households CATEGORIES 0 Not applicable Friendships unaffected Circle of friends has increased Circle of friends has changed A WO Ne Lost or losing touch with existing friends 5 Not stated LABEL Number of hours per week primary carer spends actively caring or supervising POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Less than 20 hours 2 20 to less than 40 hours 3 40 hours or more 4 Not stated LABEL Type of support or improveme
9. 311 312 Bachelor Honours Degree Bachelor Pass Degree 400 Advanced Diploma and Diploma Level not further defined 410 Advanced Diploma and Associate Degree Level not further defined 411 413 Advanced Diploma Associate Degree 420 Diploma Level not further defined 421 Diploma 500 Certificate Level not further defined 510 Certificate III IV Level not further defined 511 Certificate IV 514 Certificate III 520 Certificate I II Level not further defined 521 Certificate II CoCo ooo oO HEH HSE HEHEHE EHH EEE HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HHH HEHEHE HEHEHE HEHEHE OEE OE ABS gt DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 117 EDUCATION EDUCATIONAL ATTAINMENT continued APPENDIX DATA ITEM LIST continued eovovoeeveeeeeeeeeeeee eee ee ee eee eee eee eee eee ee eee eee eee eee eee eee eee ee eeeeeeeeee 524 611 613 621 622 623 998 LABEL Certificate I Year 12 Year 11 Year 10 Year 9 Year 8 or below No educational attainment Level of highest non school qualification POPULATION All persons aged 15 or over living in households who have completed a non school qualification CATEGORIES 000 011 100 110 111 112 113 114 120 121 122 123 200 210 211 212 213 220 221 222 300 310 311 312 400 410 411 413 420 421 500 510 511 514 520 521 524 LABEL No non school qualification Level not determined Post
10. 0 Not applicable 1 No shortness of breath or breathing difficulties 2 Has shortness of breath or breathing difficulties and is limited 3 Has shortness of breath or breathing difficulties but is not limited LABEL Whether is limited or restricted in physical activities or doing physical work POPULATION All persons CATEGORIES 0 No applicable 1 Limited or restricted in physical activities or in doing physical work 2 Not limited or restricted in physical activities or in doing physical work LABEL Whether needs help or supervision in doing things because of a mental illness POPULATION All persons CATEGORIES 0 Not applicable 1 Needs help or supervision in doing things due to a mental illness or condition CoCo ooo oOo HHHEHEHEH HEHEHE HEHEHE HHH EEE HEHEHE HHH HHH HHH HHH HEHEHE HEHEHE HEHEHE OOOO OS 114 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeeveeveeeeeeeeeeeeeeee ee eee eee eee eo eee ee oe eee ee em ee ee eee em ee eee em oO he eC eo em oO eo eel ele DISABILITY IDENTIFICATION IMPAIRMENTS AND LIMITATIONS continued DISABILITY IDENTIFICATION SUPERVISION eo eee eesreee ee ceseeeeeeeeeeeeees 2 Does not need help or supervision in doing things due to a mental illness or condition LABEL Whether receiving treatment for a nervous or emotional condition POPULATION All persons who have a nervous or emotional condition CATEGORIES 0 Not
11. 2002 2002 2003 2003 CoCo ooo oO EH HEHEHE HEH HEHEHE HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HEHEHE HEHEHE HOHE HEHEHE OOOO EE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 121 APPENDIX DATA ITEM LIST continued eovovoeeveeveeeeeeeeeeee eee eee eee eee eee eee eee oe eee eo eme eee eee meee meee meee eee eC eC em Oe eo ee ele EDUCATION IMPAIRMENTS LABEL Level of non school educational restriction AND RESTRICTIONS POPULATION All persons aged 15 or over with a disability living in households currently studying excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Severe 2 Moderate 3 Mild 4 No educational restrictions LABEL Level of schooling restrictions POPULATION All persons aged 5 20 with a disability living in households currently attending school or not attending school because of disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable Profound Severe Moderate Mild 5 No schooling restrictions BRO NM LABEL Non school education restriction status multiple response POPULATION All persons aged 15 or over with a disability living in households who have left school excludes persons with a non restricting disfigurement or deformity only CATEGORIES 1 Has difficulty at non school institution Has special assistance from a person at institution Uses special equi
12. 3 Has not had other brain damage LABEL Whether has had head injury and has resulting limitation or restriction POPULATION All persons CATEGORIES 0 Not applicable 1 Has had head injury that interferes with doing everyday activities 2 Has had head injury that does not interfere with everyday activities 3 Has not had a head injury LABEL Whether has had stroke and has resulting limitation or restriction POPULATION All persons CATEGORIES 0 Not applicable 1 Has had stroke that interferes with doing everyday activities 2 Has had stroke that does not interfere with everyday activities 3 Has not had a stroke LABEL Whether has hearing loss and or speech difficulties only POPULATION All persons CATEGORIES 0 Not applicable 1 Hearing loss and or speech difficulty only 2 Has other disability or long term health condition also only 3 Has no disability or long term health condition LABEL Whether has hearing loss and or speech difficulties only excluding a non restrictive disfiguremen POPULATION All persons CATEGORIES 0 Not applicable 1 Hearing loss and or speech difficulty only 2 Has other disability or long term health condition also only 3 Has no disability or long term health condition LABEL Whether has limited use of arms and or fingers POPULATION All persons CATEGORIES 0 Not applicable 1 Has limited use of arms or fingers 2 Has full use of arms and fingers Coe eee ooo ooo EEE HOHE OHHH EEE EEE EEE HHH HHH HEHEHE HEHEHE H
13. 9992 Freight and Furniture Handlers 9993 Handypersons 9999 Other Miscellaneous Labourers and Related Workers LABEL Occupation broad groupings POPULATION All persons aged 15 or over living in households and employed CATEGORIES 00 Not applicable 01 Managers and Administrators 02 Professionals 03 Associate Professionals 04 Tradespersons and Related Workers 05 Advanced Clerical and Service Workers 06 Intermediate Clerical Sales and Service Workers 07 Intermediate Production and Transport Workers 08 Elementary Clerical Sales and Service Workers 09 Labourers and Related Workers 10 Inadequately described CoCo ooo ooo HEHEHE HEHEHE HEHEHE EEE EEE HEHEHE SESH H HEHEHE EHH EH HEHEHE HEHEHE HEHEHE HHH HHH HHH HHH HEHE HHS EHH HEHEHE EOE OOOO OEE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 137 APPENDIX DATA ITEM LIST continued eoevovoeeveeveeeeeeeeeeee eee eee eee eee eee eee eee oe eee ee em ee meee mee em ee ee em em eC em eC eC ec em ee el elt EMPLOYMENT LABOUR LABEL Period since last worked FORCE ITEMS continued POPULATION All persons aged 15 or over living in households and not in the labour force CATEGORIES 000 Not applicable 001 260 998 Never worked for two weeks or more 999 Don t know LABEL Status in employment POPULATION All persons aged 15 or over living in households and employed CATEGORIES 0 Not applicable 1 Employee 2 Employer 3 Own account worker 4 Contributing f
14. All persons CATEGORIES 1 Parent with child ren aged under 15 years 2 Not in this population LABEL All parents with oldest children aged under 15 years POPULATION All persons CATEGORIES 1 Parent with oldest child aged under 15 years 2 Not in this population LABEL All persons aged 15 years and over living in households POPULATION All persons CATEGORIES 1 Persons aged 15 years and over living in households 2 Persons not in this population CoCo ooo ooo EEEHEEH HEHE HEHEHE HEHEHE HEHEHE HEHEHE HEHEHE HEHEHE HHH HHH HHH HHH HEH HEHEHE HHO HEHEHE EEO EEO ES 160 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeeveeveeeveeeeeeeeeee eee eee eee eee eee eee eee eee ee em eo eee eee em ee eee em eC em Oe oO eC oO oO ee ele POPULATIONS continued eo eres esreeeereceseeeeeeeeeeees LABEL All persons aged 15 64 in households POPULATION All persons CATEGORIES 1 Person aged 15 64 living in a household 2 Not in this population LABEL All persons aged 40 years and over living in a household and attending an educational institution POPULATION All persons CATEGORIES 1 Persons aged 40 years and over living in a household and attending an educational institution 2 Notin this population LABEL All persons aged 5 18 with a disability living in a household and attending school POPULATION All persons CATEGORIES 1 Aged 5 18 with a disability living in
15. Australia cat no 6203 0 CoCo eee ooo ooo EH HEHEHE HEHEHE HEHEHE HEHEHE ESE SEE HEHEHE HHH HEHEHE HEHEHE HEHEHE HHH HEHEHE HOHE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 25 SURVEY OUTPUT AND DISSEMINATION continued eovovoeveveeveeeeeeeeeeeeeeee ee eee eee eee eee eee eee eee ee eee eee ee meee eee eee eee ee eee ee SPECIAL DATA SERVICES STATISTICAL CONSULTANCY SERVICES As well as releasing publications and standard products the ABS can make available special tabulations Subject to confidentiality and standard error constraints tabulations can be produced from the survey incorporating data items populations and geographic areas selected to meet individual requirements These can be provided in printed form or in spreadsheets sent by e mail or on CD ROM Each request is costed individually and quotes are provided prior to completion All special tabulations attract a service charge in addition to charges arising from the table production For further information and requests for unpublished data contact the Health Statistics Section in the ABS Central Office on Canberra 02 6252 7430 or 02 6252 5544 Copies of SDAC questionnaires can be requested by calling these numbers The ABS offers a specialist consultancy service to assist users with more complex statistical information needs Users may wish to have the unit record data analysed according to their own needs or may require informati
16. Centrelink 06 Wife Pension 07 Carer Payment 08 Sickness Allowance 09 Widow Allowance Widow B Pension Centrelink 10 Special Benefit 11 Partner Allowance 12 Youth Allowance 13 War Widow s Pension DVA 14 Disability Pension DVA 15 Carer Allowance Child Disability Allowance Centrelink 16 Overseas Pension benefits 17 Parenting Payment 18 Other n e s 19 None of these 20 Don t know 21 Not applicable CoCo ooo oO EHEEHEHH HEHEHE HEHEHE HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HEHEHE HEHEHE HEHEHE EEO EEO OE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 145 APPENDIX DATA ITEM LIST continued eoevoveveveeveeeeeeeeeeee eee eee eee eee eee ee eee eo eee eee em ee eee eee eee ee em em ee eo eo em em eee ele INCOME PERSON LEVEL LABEL Total weekly cash income deciles person continued POPULATION All persons aged 15 or over living in households CATEGORIES 00 Not applicable 01 1st decile 02 2nd decile 03 3rd decile 04 4th decile 05 5th decile 06 6th decile 07 7th decile 08 8th decile 09 9th decile 10 10th decile 11 Not known LABEL Total weekly cash income person POPULATION All persons aged 15 or over living in households CATEGORIES Continuous 99996 Not applicable 99997 Refusal 99998 Not known 99999 No source of income LABEL Whether currently receives any pension allowances or other forms of assistance multiple response POPULATION All persons aged 15 or over living i
17. Communication services Finance and insurance Property and business services Government administration and defence Education Health and community services Cultural and recreational services Personal and other services Unemployed Not applicable Unpaid voluntary workers Industry sector in which employed POPULATION All persons aged 15 or over living in households and employed CATEGORIES 0 Not applicable 1 Government 2 Private 9 Not known LABEL Labour force status and full time or part time status of members of couple or lone parent family POPULATION All couples and lone parent families living in households CATEGORIES 00 11 12 13 14 Not applicable Lone parent employed full time Lone parent employed part time Lone parent unemployed Lone parent not in the labour force CoCo eo ooo OOOOH EEE OOOOH HEHEHE EEE EEE HEHEHE HEHEHE ETE HH HEHEHE HEHEHE HEHEHE HHH HHH HHH HHH HEHEHE HEHEHE HEHEHE EEE OOOO EE DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 APPENDIX DATA ITEM LIST continued eoevovoeeveeveeeeeeeeeeee eee eee eee eee eee ee eee eee ee eee em ee em ee mee mee em em em eC em oO he em ee ee ele EMPLOYMENT LABOUR 21 Both parents employed full time FORCE ITEMS continued 31 Male partner employed full time female partner employed part time 32 Male partner employed full time female partner unemployed 33 Male partner employed full time female partner not in the labour force 34 Fem
18. Has disability and severely limited in core activities Has disability and moderately limited in core activities A OW N Has disability and mildly limited in core activities 5 Has disability and not limited in core activities but restricted in schooling or employment 6 Has disability and not limited in core activities or restricted in schooling or employment 7 Has a long term health condition without disability 8 No long term health condition LABEL Number of people with a disability in income unit POPULATION All income units in households CATEGORIES Continuous OS ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 107 APPENDIX DATA ITEM LIST continued eovovoeeveeveeeveeeeeeeeeee eee eee ee ewe eee eo eee eee eee eee em ee em ee mee mee ee em em oO em eC oe eC em eo he el et DISABILITY IDENTIFICATION DISABILITY STATUS continued DISABILITY IDENTIFICATION IMPAIRMENTS AND LIMITATIONS eo eres esreeeeesreseeeeeeeeeeeeeees LABEL Number of persons with a disability in family POPULATION All families living in households CATEGORIES Continuous LABEL Number of persons with a disability in household POPULATION All households CATEGORIES Continuous LABEL Whether family with children under 15 years has a parent with a disability POPULATION All families living in households CATEGORIES 0 Not applicable No parent in the family has a disability Both parents in couple fa
19. SURVEY CONTENT continued eeoeovoeveeveveeeveeeeeeseeeeeeeeeee eee eee eee ee eee ee oem eee ee ee eee eee eC oO ee em eC em eC he ec em he hh hele Disability populations All persons 19 811 100 With disability Without disability 3 958 300 15 852 800 20 0 80 0 Without specific With specific limitations With health Without health limitations or restrictions or restrictions condition condition 570 500 2 9 3 387 900 17 1 4 149 000 20 9 11 703 800 59 1 With schooling or employment With core activity restrictions only limitation a 385 900 1 9 3 002 000 15 2 Profound limitation Severe limitation Moderate limitation Mild limitation 594 100 3 0 650 400 3 3 700 300 3 5 1 057 100 5 3 Living in Living in Living in Living in Living in Living in Living in Living in households b cared households b cared households b cared households b cared 441 600 2 2 accomm 632 700 3 2 accomm 697 700 3 5 accomm 1 054 200 accomm odation odation odation 5 3 odation Private 152 500 Private 17 700 Private 2 600 2 900 dwellings 0 8 dwellings 0 1 dwellings 0 01 Private 0 01 427 500 613 700 672 900 dwellings 2 2 3 1 3 4 1 022 700 5 2 Other Other Other non private non private non private Other dwellings c dwellings c dwelling c non private 14 100 0 1 19 000 0 1 24 900 0 1 dwellings c 31 500 0 2 a Includes 1 373 500 persons with core activity limitations and sch
20. Wide Bay Burnett Darling Downs South West Fitzroy Central West Mackay Northern Far North North West Off Shore Areas amp Migratory Adelaide Outer Adelaide Yorke and Lower North Murray Lands South East Eyre Northern Off Shore Areas amp Migratory Perth esecoscoscooooooooooooooooooooocsococoooooooooooooooooocoocoooooooooooocoooooooooooooooooooooooooooooooooooooooooo ABS gt DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 APPENDIX DATA ITEM LIST continued eovovoeeveeveeeeeeeeeeeeee eee eee eee eee eee ee eee eee eee em eo ee ee eee em ee eee eee eC oO em eC eo ee ee BACKGROUND GEOGRAPHY 510 South West continued 515 Lower Great Southern 520 Upper Great Southern 525 Midlands 530 South Eastern 535 Central 540 Pilbara 545 Kimberley 585 Off Shore Areas amp Migratory 605 Greater Hobart 610 Southern 615 Northern 620 Mersey Lyell 685 Off Shore Areas amp Migratory 705 Darwin 710 Northern Territory Bal 785 Off Shore Areas amp Migratory 805 Canberra 810 Australian Capital Territory Bal 910 Other Territories LABEL Index of advantage disadvantage deciles POPULATION All households CATEGORIES 00 Not applicable 01 1st decile 02 2nd decile 03 3rd decile 04 4th decile 05 5th decile 06 6th decile 07 7th decile 08 8th decile 09 9th decile 10 10th decile 11 Not known LABEL Index of disadvantage deciles POPULATION All households CATEGORIES 00 Not applicable 01 1st d
21. eovovoeveeveeeeeeeeeee eee ee ee eee eee eee eee eee eee eee ee ee eee meee em eo em ee mem ee eC ee em oO ee Oe 10 Could provide better care than someone else 11 Family responsibility 12 No other family or friends available 13 No other family or friends willing 14 Emotional obligation 15 Alternative care too costly 16 No other care arrangements available 17 Had no other choice 18 Other reason 19 Not stated PRIMARY CARERS EFFECTS LABEL Effect on weekly hours worked in all jobs by primary carer since commencing OF THE CARING ROLE WORK caring role POPULATION All primary carers living in households who are employed CATEGORIES 0 Not applicable 1 Weekly hours worked are unchanged 2 Weekly hours worked are reduced 3 Weekly hours worked are increased LABEL Increase in weekly hours worked since commencing caring role POPULATION All primary carers living in households who are employed and have to work more hours since commencing caring role CATEGORIES Continuous LABEL Main perceived barrier to re entering workforce while caring POPULATION All primary carers living in households who are unemployed or not in the labour force and are not retired and would like to work while caring for main recipient of care CATEGORIES 0 Not applicable No alternative care arrangements available Disruption to main recipient of care Difficulty in arranging working hours Loss of skills from being out of workforce Age Other difficulty 7
22. independently in a profession or trade and hires one or more employees An employment restriction is determined for persons with one or more disabilities if because of their disability they are permanently unable to work are restricted in the type of work they can or could do need or would need at least one day a week off work on average are restricted in the number of hours they can or could work require or would require an employer to provide special equipment modify the work environment or make special arrangements require assistance from a disability job placement program or agency need or would need to be given ongoing assistance or supervision would find it difficult to change jobs or get a preferred job This information was collected for persons aged 15 64 years with one or more disabilities living in households Gross household income adjusted using an equivalence scale For a lone person household it is equal to gross household income For a household comprising more than one person it is an indicator of the gross household income that would need to be received by a lone person household to enjoy the same level of economic wellbeing as the household in question The scale allocates 1 0 point for the first adult aged 15 years and over in a household 0 5 for each additional adult and 0 3 for each child aged less than 15 years Equivalised household income is calculated by dividing total hou
23. level of care to a co resident recipient identified by recipient Informal providers of any level of care to a person in another household identified by ARA As for 1981 However persons living in independent dwellings in retirement villages which had a cared facility onsite moved from the cared accommodation component to other non private dwellings in the household component As for 1981 but using computer assisted interviewing CAI As for 1993 eevee ee eee wee eeeeeeeeeeeeeereoweHveHoHveHovevenvneeveevnevneevneenvnevneevoeevneeewneeveeenene CCC ooo eo EHHE HEHEHE HEHEHE HEHEHE HHH HEHE SHH HEH HHH HHH HHH HHH HHH HEHEHE HEHEHE HEHEHE EEO EEO ES 4 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 SURVEY CONTENT eoeovoevveeveeeeeeeeeeeeee eee eee eee we eee eo eee eee em eee eee eee eee eee eee eee eee eee eee eee MAJOR TOPICS The household component of the survey was designed to collect basic information from COLLECTED a responsible adult about all persons in the selected household age sex marital Household component status country of birth as well as information to identify people with a disability or long term health condition and potential primary carers Personal interviews were then conducted with older people people with a disability and people with long term health conditions on the following topics impairments long term health conditions and cause
24. selected represented neighbouring LGAs of similar geographical characteristics Coo eee ooo ooo HEHEHE HSE HOE HEHEHE HEE EEE HEHEHE HEHEHE HEHEHE HEHEHE HEHEHE SESE SESE HEHEHE HEHEHE HEHEHE HEH HHH HHH HOHE HOH OOS ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 13 SURVEY DESIGN AND OPERATION continued eovovoeveveeveeeeeeeeeeee eee eee eee eee eee eo eee eee eee eee eee eee eee eee eee eeeeeeeeeeeee Cared accommodation and other non private dwelling selection DATA COLLECTION Data collection for the household component The sample of non private dwellings was selected separately from the sample of private dwellings to ensure they were adequately represented Non private dwellings including cared accommodation establishments in each State and Territory were listed and sampled directly from these lists Each non private dwelling was given a chance of selection proportional to the average number of persons it accommodated In order to identify the occupants to be included in the survey all the occupants in each non private dwelling were listed and then a random selection technique was applied Different approaches were used to collect data from the household and cared accommodation components Data for the household component of the survey were collected by trained interviewers mainly using personal computer assisted interviewing CAI There were a number of stages First an interviewer co
25. 3911 Police Officers 3990 Miscellaneous Associate Professionals nfd 3991 Primary Products Inspectors 3992 Safety Inspectors 3993 Sportspersons Coaches and Related Support Workers 3994 Senior NonCommissioned Defence Force Officers 3995 Senior Fire Fighters 3996 Retail Buyers 3997 Library Technicians 3999 Other Miscellaneous Associate Professionals 4000 Tradespersons and Related Workers nfd 4100 Mechanical and Fabrication Engineering Tradespersons nfd 4110 Mechanical Engineering Tradespersons nfd 4111 General Mechanical Engineering Tradespersons 4112 Metal Fitters and Machinists 4113 Toolmakers 4114 Aircraft Maintenance Engineers 4115 Precision Metal Tradespersons 4120 Fabrication Engineering Tradespersons nfd 4121 General Fabrication Engineering Tradespersons 4122 Structural Steel and Welding Tradespersons 4123 Forging Tradespersons 4124 Sheetmetal Tradespersons 4125 Metal Casting Tradespersons 4126 Metal Finishing Tradespersons 4200 Automotive Tradespersons nfd 4210 Automotive Tradespersons nfd 4211 Motor Mechanics 4212 Automotive Electricians Coe ee eee esses eseeeeeeeeseseeeeeeeeEeeEeEeEEEEEEF EEE EEE HEHEHE HEHEHE HEE EEE E TELE E OES 132 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeeveeveeeeeeeeeeeeeeee ee eee eee eee ee eee eee eee ee meee em ee eee mee eee em Oe eC oO em em em ee el et EMPLOYMENT LABOUR FORCE ITEMS con
26. 4431 0 55 001 2003 GLOSSARY continued eovovoeeveeveeeveeeeeeeee eee eee eee eee eee eee eee oe eee ee em ee em ee mee mee meee em eC em eo he em oO oO ee ele Housing tenure continued Impairment Income Income unit Industry Informal assistance Internet use Labour force status Level of highest non school qualification Limitation Living arrangements Coe eee ere reeeseeseeseeeeeeeeeeeeeeesee EF ELeeeeEH EEE HELE EEE EEE HEHEHE EEE EOOE boarder rent free other includes persons occupying the dwelling under a life tenure scheme persons purchasing under a rent buy or shared equity scheme and any other housing arrangements In the context of health experience an impairment is defined by the the International Classification of Functioning Disability and Health ICF as a loss or abnormality in body structure or physiological function including mental functions Abnormality is used to refer to a significant variation from established statistical norms Examples of impairment are loss of sight or a limb disfigurement or deformity impairment of mood or emotion impairments of speech hallucinations loss of consciousness and any other lack of function of body organs See Gross current personal income and Gross household income per week Two or more people who live together are related by either a couple or a parent dependent child relationship and are assumed to be pooling income and sharing co
27. APPENDIX DATA ITEM LIST continued eovovoeeveeveee eee eeeeee eee eee ee ASSISTANCE RECEIPT OF LABEL eeoeoevoevoeveveeveeeeeeeeeee eee eee eee eee eee em eee eee eee eee Extent to which need for paperwork assistance received met ASSISTANCE WITH POPULATION All persons aged 15 or over with a disability or aged 60 or over living in PAPERWORK households who receive assistance with paperwork because of disability or old age CATEGORIES 0 1 2 3 LABEL Not applicable Fully Partly Not at all How became aware of main source of paperwork assistance POPULATION All persons aged 15 or over with a disability or aged 60 or over living in households who receive assistance with paperwork because of disability or old age CATEGORIES 0 o N AVN KW NY 9 LABEL Not applicable Friend or relative Phone book newspaper or advertisement Local health centre or clinic Government department Local council General practitioner Counsellor social worker or welfare officer Other health worker Other Main reason has unmet need for formal paperwork assistance POPULATION All persons aged 15 or over with a disability or aged 60 or over living in households who receive assistance with paperwork because of disability or old age CATEGORIES 0 o NAV KW DY e 9 Not applicable Did not know of service Need not important enough Wont ask because of pride Unable to arrange service No service available Not elig
28. AUSTRALIA USER GUIDE LATION All primary carers living in households GORIES Not applicable Unmet need for assistance on weekdays No unmet need for assistance on weekdays Whether primary carer has unmet need for assistance on weekends LATION All primary carers living in households GORIES Not applicable Unmet need for assistance on weekends No unmet need for assistance on weekends Coc eee eeeeeeeseseeeeeeeeeeeeeeeeeeeeeeeeeeEH EEE EEE HELE OEE EEE EEE EES 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeveveveevee eee eeeeeeeeee ee eee eee ee eee eee eee eee eee eee eee eee eee eee ee eeeeeeeeee PRIMARY CARERS SUPPORT LABEL Whether primary carer has unmet need for assistance on weeknights ACCESS continued POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Unmet need for assistance on weeknights 2 Nounmet need for assistance on weeknights LABEL Whether primary carer has unmet need for respite care on short notice or on an irregular basis POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Needs respite care at short notice or on irregular basis 2 Needs respite care but not at short notice or on irregular basis 3 Does not need or want respite care LABEL Whether primary carer has unmet need for respite care on week nights at least once a month POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1
29. EEE EOE HEHEHE HEHEHE HEHEHE HHH H HHH HEHEHE HEHEHE HEHEHE EEE EEE OE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 163 APPENDIX DATA ITEM LIST continued eovovoeveveeveeeeeeeeeeeeeeee ee eee eee eee eee eee eo eee eee eee eee meee meee eee eee eC ee em ee eee PRIMARY CARERS LABEL Whether primary carer usually assists main recipient of care to get into or out of ASSISTANCE PROVIDED a bed or chair continued POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Usually assists with getting into or out of a bed or chair 2 Does not usually assist with getting into or out of a bed or chair LABEL Whether primary carer usually assists main recipient of care with bathing or showering POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Usually assists with bathing or showering 2 Does not usually assist with bathing or showering LABEL Whether primary carer usually assists main recipient of care with cognitive or emotional tasks POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Usually assists with cognitive or emotional tasks 2 Does not usually assist with cognitive or emotional tasks 3 Not stated LABEL Whether primary carer usually assists main recipient of care with communication tasks POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Usually assists with communication t
30. HEHEHE EEE EEO OS 90 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoevveeveeeeeeeeeeeeeeee ee eee eee eee eee eee ee eee eee eee eee eee ee eee meee eee ee ee eee CORE ACTIVITY LIMITATION MOBILITY eo cece eereee ce eeseseeeeeeeeeeees LABEL Ability to walk 200 metres POPULATION All persons aged 5 or over with a disability excluding those with a hearing or speech loss only living in households and all persons with a disability living in healthestablishments excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Cannot walk 200 metres 2 Can walk 200 metres but would take longer than other people the same age 3 Can easily walk 200 metres 4 Does not leave place of residence households only LABEL Ability to walk up down stairs without a handrail POPULATION Persons aged 5 years and over with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Notable to walk up and down stairs without a handrail 2 Has difficulty walking up and down stairs without a handrail 3 Has no difficulty walking up and down stairs without a handrail 4 Does not move about place of residence LABEL Level of assistance needed to use public transport because of disability POPULATION All persons aged 5 or over with a disability or aged 60 years or over living in hou
31. HEHEHE HEHEHE EEE EEE HHS HHEHHEHEH HEHEHE HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HHH HEHE HHH EHH HOHE HEHE OEE OEE 88 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoeovoecveveveeeeeeeeeeeeeeee ee eee eee eee eo eee eee eee eee em eee ee eee eee meme em ee oO oO em em eo ee ele CORE ACTIVITY LIMITATION COMMUNICATION continued eo cece eereee ce eeseseeeeeeeeeeees 2 Sometimes needs assistance understanding family and friends 3 Does not need assistance understanding family and friends but has difficulty 4 Does not need assistance understanding family and friends and has no difficulty 5 Too young LABEL Level of assistance needed understanding someone does not know because of disability POPULATION Persons with a disability living in households where interview is conducted by proxy who are slow at learning understanding have a mental illness hearing loss loss of speech nervous or emotional condition head injury or brain damage and all persons with a disability living in health establishments CATEGORIES 0 Not applicable 1 Always needs assistance understanding someone does not know 2 Sometimes needs assistance understanding someone does not know 3 Does not need assistance understanding someone does not know but has some difficulty 4 Does not need assistance understanding someone does not know and has no difficulty 5 Too young LABEL Level of commu
32. LIST continued eoevovoeveeveeeveeeeeeee eee eee eee eee eee eee eee eee eee ee em ee eee ee em ee eee em ee eC ee em oO ee Oe WEIGHTS continued LABEL Replicate Weights 08 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 08 Household POPULATION All households CATEGORIES Continuous LABEL Replicate Weights 09 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 09 Household POPULATION All households CATEGORIES Continuous LABEL Replicate Weights 10 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 10 Household POPULATION All households CATEGORIES Continuous LABEL Replicate Weights 11 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 11 Household POPULATION All households CATEGORIES Continuous LABEL Replicate Weights 12 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 12 Household POPULATION All households CATEGORIES Continuous LABEL Replicate Weights 13 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 13 Household POPULATION All households CATEGORIES Continuous CoCo oo ooo EHH HOHE HEHEHE HEHEHE EEE HEHEHE HEHEHE HEHEHE HEHEHE HEHEHE HHH HEHE HEHEHE HHH HHH HH HHH HHH HHH HEHEHE EHH HE HOHE EOE EOE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 APPENDIX DATA ITEM LIST continue
33. No difficulties expected NW KR WN e LABEL Main reason had to leave work to care for main recipient of care POPULATION All primary carers living in households who are unemployed or not in the labour force and whose main reason for leaving work was to commence caring role CATEGORIES 0 Not applicable No alternative care arrangements available Financial considerations cost of alternative care arrangements Unable to change working arrangements Emotional obligations NR Ww Ne Preferred to care full time 6 Other LABEL Main reason left work just before commencing caring role POPULATION All primary carers living in households who are unemployed or not in the labour force and who worked just prior to commencing the caring role CATEGORIES CoCo ooo oo EHEHHES HEHEHE HEHEHE HEHEHE HHH H HHH HEHEHE HEHEHE HHH HHH HHH HHH HEHEHE HEHEHE HOHE EOE LOOSE 170 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovoveeveveveeeeeeeeeeeeeee eee eee eee eee eee ee eee eee eee eee eee eee ee eee eee eeeeeeeeee PRIMARY CARERS EFFECTS OF THE CARING ROLE continued WORK 0 Not applicable 1 To commence care 2 To increase care 3 Retired 4 Became eligible for pension benefit 5 Other LABEL Number of weekly hours primary carer was employed before commencing care for main recipient of care POPULATION All primary carers living in households who are employed CATEG
34. Not stated CROCCO EHH EEE OHH HEHEHE EEE EEE EEE HHS HE HEHEHE ETE HEHEHE HHH HHH HEHEHE HHH HHH HHH HHH HHH HEHEHE HEHEHE HEHE EEO OES 168 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevovoeeveeeveeeeeeeeeeee ee ee ee eee eee eee eee eee ee eee ee eee eee mee meee meee eC he Oe em ee he el ele LABEL Whether primary carer needs improvement or more support to assist in caring role POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Needs an improvement or more support 2 Does not need an improvement or more support 3 Not stated LABEL Whether primary carer usually pays significant proportion of living costs of main recipient of care POPULATION All primary carers living in households whose main recipient of care lives elsewhere CATEGORIES 0 Not applicable 1 Regularly pays a large part of living costs 2 Does not regularly pay a large part of living costs 3 Not stated LABEL Whether primary carer s interrupted sleep interferes with normal daily activities POPULATION All primary carers living in households CATEGORIES 0 o N AAN KW DY Be O Not applicable Sleep interrupted frequently interferes with normal daily activities Sleep interrupted frequently does not interfere with normal daily activities Sleep interrupted frequently interference with normal daily activities not stated Sleep interrupted occasio
35. Number of tasks for which main recipient of care requires assistance due to disability or age POPULATION All primary carers living in households whose main recipient of care is a co resident with a disability or aged 60 or over CATEGORIES 00 01 02 03 04 05 06 07 08 09 10 11 12 13 14 15 16 17 18 19 20 21 22 23 99 MAIN RECIPIENTS OF CARE LABEL ASSISTANCE RECEIVED care None One Two Three Four Five Six Seven Eight Nine Ten Eleven Twelve Thirteen Fourteen Fifteen Sixteen Seventeen Eighteen Nineteen Twenty Twenty one Twenty two Twenty three Not applicable Extent to which need for communication assistance met for main recipient of POPULATION All primary carers living in households whose main recipient of care is a co resident who needs assistance with communication due to disability CATEGORIES 0 Not applicable 1 Need for communication assistance met fully 2 Need for communication assistance met partly 3 Need for communication assistance not met at all LABEL Extent to which need for mobility assistance met for main recipient of care POPULATION All primary carers living in households whose main recipient of care is a co resident who needs assistance with mobility due to disability CATEGORIES 0 Not applicable 1 Need for mobility assistance met fully 2 Need for mobility assistance met partly 3 Need for mobility assistance not met at all eee eee eserereeeseeseeee
36. Three to five times a day Six or more times a day ASSISTANCE BROAD 2 One to three times a month ACTIVITIES REPEATING 3 Once a week DATASET continued 4 Two to six times a week 5 Once a day 6 Twice a day 7 8 9 Not known establishments only LABEL Main reason not receiving more formal assistance with broad area of activity POPULATION All broad areas of activity except public transport where more formal assistance is needed excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable Did not know of service Need not important enough Won t ask or pride Unable to arrange service o service available Not eligible for service Service costs too much Service does not provide sufficient hours mAN NW KR HW NW Other reason LABEL Main reason not receiving more informal assistance with broad area of activity POPULATION All broad areas of activity except public transport where more informal assistance is needed excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Has not asked family or friends 2 Needs more help than family or friends can provide 3 Family or friends not available or too far away 4 Other reason LABEL Number of times per day week or month needs assistance or supervision POPULATION All broad areas of activity except public transport where some assistance is required households only excludes pers
37. Used the Internet at home only 2 Used the Internet away from home only 3 Used the Internet both at home and away from home 4 Did not use the Internet in the last 12 months LABEL Which government service accessed via the Internet for private use multiple response POPULATION All persons aged 15 or over with a disability or aged 60 years or over living in households who used the Internet in the last 12 months excludes persons with COC ooo EEEHEHHEH HEHEHE HEHEHE HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HEHEHE HEHEHE HOH HOHE OEE OOOO OE 86 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeeveeeeeeeve eee eee ee eee eee eee eee eee eee eee eee ee eee ee eee ome eee em eee eee eee Oe Oe COMMUNITY PARTICIPATION a non restricting disfigurement or deformity only COMPUTER USE continued CATEGORIES 01 Tax returns 02 Applications or claims for benefits 03 Applications for permits etc 04 Bill payments e g rates and car registration 05 Taxation 06 Pensions or other benefits 07 Employment unemployment 08 Other 09 Don t know 10 Did not access government service for private use 11 Not applicable CORE ACTIVITY LIMITATION LABEL Ability to be understood by family and friends COMMUNICATION POPULATION Persons with a disability living in households where interview is conducted by proxy who are slow at learning understanding have a mental illness h
38. and Diploma Level not further defined 410 Advanced Diploma and Associate Degree Level not further defined 411 413 Advanced Diploma Associate Degree 420 Diploma Level not further defined 421 Diploma 500 Certificate Level not further defined 510 Certificate III IV Level not further defined 511 Certificate IV 514 Certificate III 520 Certificate I II Level not further defined 521 Certificate II 524 Certificate I LABEL Level of post school educational qualification POPULATION All persons aged 15 or over living in households who have completed a non school qualification CATEGORIES 0 SO AN DNDWN KR WN Be Not stated Higher degree Post graduate diploma Bachelor degree Undergraduate diploma Associate diploma Skilled vocational qualification Basic vocational qualification Uncodable Inadequately described Out of scope Not applicable CoCo ooo ooo HEHEHE EEE EOE OEE EEE HEHEHE EEE HEHEHE HEHEHE EHH EH EHE HEH HHH HHH HEHEHE HHH HHH HHH HHH HHH HEHEHE HOSE HEHEHE HHO EEO EEO EE DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 119 APPENDIX DATA ITEM LIST continued eovovoeeveeeeeeeeeeeeee eee eee eee eee eee eee eee ee eee ee em eo e eee eee meee eee mee eee em ee ee ee EDUCATION EDUCATIONAL LABEL Level of qualification currently studying for ABSCQ ATTAINMENT continued POPULATION All persons aged 15 or over living in households currently studying CA
39. applicable 1 Has a nervous or emotional condition and is receiving treatment 2 Has a nervous or emotional condition and is not receiving treatment LABEL Whether receiving treatment for any long term condition that limits or restricts POPULATION All persons CATEGORIES 0 Not applicable 1 Not receiving treatment for any long term condition 2 Receiving treatment for long term condition and is limited or restricted by condition 3 Receiving treatment for long term condition but not limited or restricted by condition LABEL Whether restricted by a disfigurement or deformity POPULATION All persons who have a disfigurement or deformity CATEGORIES 0 Not applicable 1 Has a disfigurement or deformity and is restricted 2 Has a disfigurement or deformity and is not restricted LABEL Whether restricted by a nervous or emotional condition POPULATION All persons who have a nervous or emotional condition CATEGORIES 0 Not applicable 1 Has a nervous or emotional condition and is restricted 2 Hasa nervous or emotional condition and is not restricted LABEL Ability to look after self at home when other household member s are away for a few days POPULATION All persons with a profound or severe core activity limitation living in households with others CATEGORIES 0 Not applicable 1 Could manage alone for a few days without difficulty 2 Could manage alone for a few days with difficulty 3 Could not manage alone for a few days LABEL Abili
40. assistance with self care tasks CARERS CARER STATUS LABEL Carer status POPULATION All persons living in households CATEGORIES 0 Not applicable 1 Primary carer and other carer 2 Primary carer only 3 Unconfirmed primary carer 4 Carer but not a primary carer CoCo oo ooo OOOOH EEE SEDO HOE EEE HEHEHE EEE HEHEHE HEHE HEHEHE EEE HEHE HHH HHH HEHEHE HEH HHH HHH HHH HHH HEHEHE HEHEHE HEHEHE OEE EEE OOS ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 79 APPENDIX DATA ITEM LIST continued eovovoeeveeveeeeeeeeeeee ee eee eee eee eee eee ee ee oe eee eee ee eee em emo mee ee meme em eC eC eC oO oO ee ele CARERS CARER STATUS 5 Principal carer only continued 6 Notacarer LABEL Carer status derived using 1998 rules POPULATION All persons living in households CATEGORIES 0 Not applicable 1 Primary carer and other carer 2 Primary carer only 3 Carer but not a primary carer 4 Nota carer LABEL Methods of primary carer identification POPULATION All persons living in households CATEGORIES 00 Not applicable 01 Primary carer of a UR ARA self and recipient of care identified 02 Primary carer of a UR ARA and self identified recipient of care unconfirmed 03 Possible primary carer of a UR ARA self denied and recipient of care identified 04 Possible primary carer of a UR ARA no self confirmation possible and recipient of care identified 05 Principal carer of a UR ARA denied recipient of car
41. at an ordinary school need at least one day a week off school on average have difficulty at school Self care This activity comprises the following tasks showering or bathing dressing eating toileting bladder or bowel control Severe core activity limitation See Core activity limitation Sparsely settled Sparsely settled areas are defined as all Statistical Local Areas SLAs with a dwelling density less than 0 06 per square kilometre They exclude smaller islands off the coast of northern Australia asmall number of sparsely settled SLAs which are not contiguous with any other sparsely settled SLAs and would have provided too small a sample in a region certain Western Australian towns in sparsely settled SLAs with populations of 5 000 or more people CoCo Oooo oO HE HHH HEH HEHEHE HEHEHE HHH HEHEHE HEHEHE HEHEHE HHH HHH HHH H EEE HEHEHE EEE OOOO ES 202 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 GLOSSARY continued eovovoeeveeeveeeeeeeeeee eee ee ee eee eee eee eee eee eo eee eee em eo ee ee eee mem eee ee he eo eC em oO he ee ele Specific limitation or restriction Task Transport Unemployed Unemployment rate A limitation in core activities or a restriction in schooling and or employment This corresponds with the concept of handicap used in previous ABS publications on disability A task is a component of an activity and represents the specific level at
42. based systems were used to process the data from the survey It was necessary to employ a range of processing systems which reflected the different methods used to collect data from the household and cared accommodation components of the survey These processing systems are outlined below Most data were collected by trained interviewers using a specially programmed laptop computer CAI instrument Internal system edits were applied in the CAI instrument to ensure the completeness and consistency of the questionnaire The interviewer could not proceed from one section of the interview to the next until responses had been appropriately completed A number of range and consistency edits were programmed into the CAI collection instrument Edit messages appeared on screen automatically if the information entered was either outside the permitted range for a particular question or contradicted information already recorded These edit queries were resolved on the spot with respondents Completed questionnaires were either downloaded from the laptops in ABS offices in each State or Territory or transmitted to the ABS from the interviewers homes via telephone lines Checks were made to ensure interviewer workloads were fully accounted for and that returns for each household and respondent were obtained Problems were resolved by office staff where possible based on other information contained in the schedule or on the comments provided by interv
43. botanic gardens 06 Took part in sport or physical recreation 07 Attended sporting event as spectator 08 Visited relatives or friends 09 Went to restaurant or club 10 Church activities 11 Voluntary activities 12 Performing Arts group activity 13 Art or craft group activity 14 Other special interest group activities 15 None of the above LABEL Person usually accompanying respondent to main activity outside of home POPULATION All persons aged 5 or over with a disability or aged 60 years or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 00 Not applicable CoCo ooo ooo OOOH EEE EOE HEHEHE HEHEHE EEE HEHEHE HEHEHE HEHEHE HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HEH HEHEHE HEHEHE HOHE EEE OBES ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 83 APPENDIX DATA ITEM LIST continued eoevovoeveveeveeeeeeeeeeeeeewee ee ee eee eee eee eee eee eee ee eee eee eee meee eee em eee eee eee ee COMMUNITY PARTICIPATION 01 Noone ACTIVITIES AWAY FROM 02 Male partner HOME continued 03 Female partner 04 Father 05 Mother 06 Son 07 Daughter 08 Other male relative 09 Other female relative 10 Family members 11 Friend or neighbour male or female 12 Organised group 13 Service provider 14 Other person 15 No activities reported 16 Does not leave home LABEL Social or community participation away from home in the last three months mul
44. d 1706 Pain n f d 1708 Unspecified speech difficulties 1709 Malaise and fatigue 1710 Blackouts fainting convulsions n e c 1711 Insomnia n f d Establishments only 1799 Other symptoms and signs n e c 1801 Head injury acquired brain damage eee eee eee eseeeeseseeeeeeeeeeeeEeeeEeeeeeeeFeEEF ELE EEE EEE EOE OEE EEE EES DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 37 APPENDIX DATA ITEM LIST continued eoeovoeeveveeeeeeeeeeeeeee eee eee eee wee eee eee eee eee eee em ee eee eee em ee ee ee eo he em oO em ee ee ele ALL CONDITIONS REPEATING 1802 Arm hand shoulder damage from injury accident DATASET continued 1803 Amputation of the finger thumb hand arm 1804 Leg knee foot hip damage from injury accident 1805 Amputation of toe foot leg 1806 Poisoning toxic side effects 1807 Allergies food 1808 Complications consequences of surgery and medical care n e c 1899 Other injury poisoning and consequences of external causes 1901 Limited use of arms or fingers 1902 Difficulty gripping or holding things 1903 Limited use of feet or legs 1904 Restriction in physical activity or physical work 1905 Has disfigurement or deformity 1906 Receiving treatment medication for other long term condition 1907 Has other long term condition LABEL Whether reported condition is main condition POPULATION All reported conditions CATEGORIES 0 Not applicable 1 Main condition 2 Not main condition ASSISTANCE BROAD LABEL B
45. day with difficulty 3 Could not manage alone for one day EDUCATION EDUCATIONAL LABEL Age left school categories ATTAINMENT POPULATION All persons aged 15 or over living in households CATEGORIES 00 Not applicable 01 Never attended school 05 Left school at 5 06 Left school at 6 07 Left school at 7 08 Left school at 8 09 Left school at 9 10 Left school at 10 11 Left school at 11 12 Left school at 12 13 Left school at 13 14 Left school at 14 15 Left school at 15 16 Left school at 16 17 Left school at 17 18 Left school at 18 19 Left school at 19 20 Left school at 20 21 Left school at 21 or older 99 Still at school LABEL Current educational institution attended POPULATION All persons aged 15 or over living in households CATEGORIES 0 Not applicable Secondary School Higher Education TAFE Business college Industry skills centre Other 7 Not studying NW KR WN e LABEL Full time or part time study status POPULATION All persons aged 15 or over living in households not attending school and currently studying CATEGORIES CoCo ooo ooo H HEHEHE HEHEHE HEHE HHH HEHEHE HHH EHH HHH HHH HHH HHH HHH HHH EHH HEHE OEE OOOO OS 116 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeeveeveeeeeeeeeee eee eee eee EDUCATION EDUCATIONAL 0 ATTAINMENT continued 1 2 LABEL eeoeovoevoeeveeeeeeeeeeeeee eee eee eee eee ee eee w
46. difficulty with household chores 2 Does not need assistance or have difficulty with household chores LABEL Whether needs assistance with housework because of disability or age POPULATION All persons aged 15 or over with a disability or aged 60 years or over living in households excludes persons with a non restricting disfigurement or deformity only CoCo oo ooo OHHH EE HEHEHE HEHEHE EEE EEE HEHEHE EHH HHHEH HEHEHE HEHEHE HHH H HEHEHE HEHEHE HEHEHE HHH HHH HHH HHH HHH HEE HEHEHE HOHE EEE OOOO OS 48 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 eovovoeveveveveeeeeeeeeee eee ee ASSISTANCE NEED FOR ASSISTANCE WITH HOUSEWORK continued ASSISTANCE NEED FOR ASSISTANCE WITH MEAL PREPARATION ASSISTANCE NEED FOR ASSISTANCE WITH MOBILITY ASSISTANCE NEED FOR ASSISTANCE WITH PAPERWORK eo eee eesreeereeeseeeeeeeeeeeeeeeeee APPENDIX DATA ITEM LIST continued eeoeoeoeoeeeveeeeeeeee eee eee eee eee ewe eee eee eee ee eee eee eeee CATEGORIES 0 Not applicable 1 Needs assistance with housework 2 Does not need assistance with housework LABEL Whether needs assistance or has difficulty with meal preparation because of disability or age POPULATION All persons aged 15 or over with a disability or aged 60 years or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Needs assistance or has difficulty with meal pr
47. eee ee eee eee eee eee eo eee e eee em ee mee em ee ee em eo oO em em ee eel CORE ACTIVITY LIMITATION LABEL Level of assistance needed with eating because of disability SELF CARE continued POPULATION All persons with a disability CATEGORIES 0 Not applicable 1 Always needs help or supervision with eating 2 Sometimes needs help or supervision with eating 3 Needs no help with eating but has difficulty 4 Has no difficulty with eating LABEL Level of assistance needed with showering or bathing because of condition POPULATION All persons with a disability CATEGORIES 0 Not applicable 1 Always needs help or supervision with showering or bathing 2 Sometimes needs help or supervision with showering or bathing 3 Needs no help with showering or bathing but has difficulty 4 Has no difficulty with showering or bathing LABEL Level of assistance needed with toileting because of disability POPULATION All persons with a disability CATEGORIES 0 Not applicable Always needs help or supervision with toileting Sometimes needs help or supervision with toileting Needs no help or supervision but has difficulty with toileting A WO Ne Has no difficulty with toileting 5 Does not use toilet LABEL Level of self care limitation POPULATION All persons with a disability CATEGORIES 0 Not applicable 1 Profound 2 Severe 3 Moderate 4 Mild 5 No self care limitation DEMOGRAPHICS LABEL Age last birthday in years POPULATION All persons CA
48. eee eee eee eee eee emo em meee eee eee ee ee ele Results for states continued In addition three Excel spreadsheets are available that contain versions of tables for the major topics of disability Tables 1 20 ageing Tables 21 26 and carers Tables 27 33 for all states and the Australian Capital Territory Tables by topic for all States excl NT Tables 1 20 disability 25 Tables 21 26 older persons 10 Tables 27 33 carers 10 Microdata Disability Ageing and Carers Australia Basic Confidentialised Unit Record File cat no 4430 0 30 002 8 000 Provides confidentialised unit record data on disability status need for assistance and provision of care Details are provided on difficulty with or need for assistance in 10 common activities of daily living education and employment restrictions receipt of assistance specific impairments and underlying health conditions the ability of older people to carry out activities such as housework meal preparation and transport and the experience and impact of caring for people with severe or profound restrictions All records have relevant standard demographic labour force and other socio economic details Secondary table sets There will be some secondary table sets released similar to tables contained in the two thematic publications released from the 1998 SDAC Disability and Long Term Health Conditions Australia 2003 cat no 4433 0 and Caring in the Community Austral
49. households CATEGORIES 0 Not applicable 1 Feels weary or lacks energy due to caring role 2 Does not feel weary or lack energy due to caring role 3 Not stated LABEL Whether primary carer frequently feels angry or resentful due to caring role POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Frequently feels angry or resentful due to caring role 2 Does not frequently feel angry or resentful due to caring role 3 Not stated LABEL Whether primary carer frequently feels worried or depressed due to caring role POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Frequently feels worried or depressed due to caring role 2 Does not frequently feel worried or depressed due to caring role 3 Not stated LABEL Whether primary carer has difficulty meeting everyday costs as a result of caring role POPULATION All primary carers living in households whose financial situation has been negatively affected by the caring role CATEGORIES 0 Not applicable 1 Has difficulty meeting everyday living costs 2 Does not have difficulty meeting everyday living costs 3 Not stated LABEL Whether primary carer has had a stress related illness due to caring role POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Has been diagnosed with a stress related illness due to caring role 2 Has not been diagnosed with a stress related illness due to caring role 3
50. individuals 3412 One parent family with non dependent children and no other related individuals 9429 Other family 9999 Outside scope of classification LABEL Household structure POPULATION All households in private dwellings CATEGORIES 0 Not applicable 1 Person living alone 2 Married or defacto couple only 3 Married or defacto couple living only with their unmarried child ren aged 15 or 4 Married or defacto couple living only with their child ren aged 0 14 CoCo ooo ee ooo HD oH EEE EHO HHO H HEHEHE HEHEHE OEE E TELE E EES 102 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeceveveveeeeeeeeeeeeeeee ee eee eee eee ee ee eee eee eee eee ee eee emo ee eee eee eee eeeeee DEMOGRAPHICS continued eo eee eeseee ee eeseeeeeeeeeeeeee 5 Married or defacto couple living only with their child ren aged 0 14 and their unmarried child re 6 One person living with his her unmarried child ren aged 15 or over 7 One person living with his her child ren aged 0 14 8 One person living with his her child ren aged 0 14 and his her unmarried child ren aged 15 or ov 9 All other households LABEL Household type POPULATION All households in private dwellings CATEGORIES 11 One family household 12 Two family household 13 Three or more family household 21 One family household with non family members present 22 Two family household with non family members presen
51. interviewer training to ensure such cases were kept to a minimum In this survey response errors may have arisen from three main sources deficiencies in questionnaire design and methodology deficiencies in interviewing technique and inaccurate reporting by respondents For example errors may be caused by misleading or ambiguous questions inadequate or inconsistent definitions of terminology used or by poor questionnaire sequence guides causing some questions to be missed In order to overcome problems of this kind individual questions and the overall questionnaire were thoroughly tested before being finalised for use in the survey Lack of uniformity in interviewing standards will also result in non sampling errors Thorough training programs and regular supervision and checking of interviewers work were used to achieve and maintain uniform interviewing practices and a high level of accuracy in recording answers on the electronic survey collection instrument Processing errors may occur at any stage between initial collection of the data and final compilation of statistics Specifically in this survey processing errors may have occurred at the following stages in the processing system clerical checking and coding errors may have occurred during the checking of questionnaires and during coding of various items by office processors data transfer errors may have occurred during the transfer of data from the original
52. more help from family or friends 2 Has not asked family or friends CoCo ooo eo HEESHS HEHEHE EHH HE EE HEHE HHH H HEHEHE HEHEHE HHH HHH HHH HHH HHH HHH HEHEHE HOHE HOHE EOE EO OS 62 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeeveeveeeeeeeeeeee ee eee eee eee eee eee eee eee eee eee eee eee eee eee eee eee eee eee eee ASSISTANCE RECEIPT OF ASSISTANCE WITH MEAL PREPARATION continued ASSISTANCE RECEIPT OF ASSISTANCE WITH MOBILITY eo eres esreeeeeeeseeeeeeeeeeeeeeee 3 Needs more help than family friends can provide 4 Family friends not available too far away 5 Other LABEL Number of formal sources of meal preparation assistance POPULATION All persons aged 15 or over with a disability or aged 60 or over living in households who need assistance with meal preparation because of disability or old age CATEGORIES 0 None 1 One 2 Two 9 Not applicable LABEL Number of informal sources of meal preparation assistance POPULATION All persons aged 15 or over with a disability or aged 60 or over living in households who need assistance with meal preparation because of disability or old age CATEGORIES 0 None 1 One 2 Two 3 More than two 9 Not applicable LABEL Type of meal preparation assistance received POPULATION All persons aged 15 or over with a disability or aged 60 or over living in households who receive assistance with meal preparat
53. nervous or emotional condition IMPAIRMENTS AND POPULATION All persons who have a nervous or emotional condition living in LIMITATIONS continued households CATEGORIES See Type of long term condition reported LABEL Number of impairment types POPULATION All persons with a disability CATEGORIES Continuous LABEL Whether had head injury stroke or other brain damage that limits or restricts everyday activities multiple response POPULATION All persons CATEGORIES 1 Has not had head injury stroke or any other brain damage Had head injury with resulting limitation or restriction Had stroke with resulting limitation or restriction Had other brain damage with resulting limitation or restriction Had head injury but no resulting limitation or restriction NN KR WwW N Had stroke but no resulting limitation or restriction 7 Had other brain damage but no resulting limitation or restriction LABEL Whether has a disfigurement or deformity POPULATION All persons CATEGORIES 0 Not applicable 1 Has a disfigurement or deformity 2 Does not have a disfigurement or deformity LABEL Whether has a nervous or emotional condition POPULATION All persons CATEGORIES 1 Has a nervous or emotional condition 2 Does not have a nervous or emotional condition LABEL Whether has blackouts fits or loss of consciousness POPULATION All persons CATEGORIES 0 Not applicable 1 Has blackouts fits or loss of consciousness 2 Does not have black
54. non school qualification eescosoosoooocooooooooooooooocoocsococooooooocoooooooooooocooooooooooooooooocooooooooooooooooooooooooooooooooooooo 118 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovoevoeeveeveeeeeeeeeee eee eee eee EDUCATION EDUCATIONAL 011 eoovoeveeveeveeeeeeeeeeee eee eee eee ee eee wee eee eee eeee Level not determined ATTAINMENT continued 100 Postgraduate Degree Level not further defined 110 Doctoral Degree Level not further defined 111 112 113 Higher Doctorate Doctorate by Research Doctorate by Coursework 114 Professional Specialist Qualification at Doctoral Degree Level 120 Master Degree Level not further defined 121 122 123 Master Degree by Research Master Degree by Coursework Professional Specialist Qualification at Master Degree Level 200 Graduate Diploma and Graduate Certificate Level not further defined 210 Graduate Diploma Level not further defined 211 212 213 Graduate Diploma Graduate Qualifying or Preliminary Professional Specialist Qualification at Graduate Diploma Level 220 Graduate Certificate Level not further defined 221 222 Graduate Certificate Professional Specialist Qualification at Graduate Certificate Level 300 Bachelor Degree Level not further defined 310 Bachelor Degree Level not further defined 311 312 Bachelor Honours Degree Bachelor Pass Degree 400 Advanced Diploma
55. number of questions on computer access and use and for SURVEY the first time collected information regarding access to and use of the Internet at home and elsewhere New items relating to disability populations and older persons include Whether used a computer or the Internet at home in last 12 months Purpose of use of computer or the Internet in last 12 months Where used computer or the Internet in last 12 months Activities performed using the Internet Need for and receipt of assistance with cognition or emotion disability populations only a Although collected in the 1993 and 1998 surveys Year of arrival in Australia was not collected for those in cared accomodation in 2003 Experience showed that many health establishments did not keep this information about residents in their records and therefore it was not accurately reported There have been a number of changes made to the previously used SDAC output terminology to improve alignment with concepts and definitions used in the International Classification of Functioning Disability and Health They are core activity restriction is now referred to as core activity limitation specific restrictions is now referred to as specific limitations or restrictions a restricting impairment is now referred to as disability type restricting impairment group is now referred to as disability group guidance is now referred to as cognition or emo
56. of consciousness 07 Slow at learning or understanding 08 Incomplete use of arms or fingers 09 Difficulty gripping or holding things 10 Incomplete use of feet or legs 11 Nervous or emotional condition 12 Restriction in physical activities or work 13 Disfigurement or deformity 14 Mental illness 15 Other disability LABEL Main disabling condition of main recipient of care POPULATION All primary carers living in households whose main recipient of care is a co resident CATEGORIES See Type of long term condition reported CoCo ooo ooo EOE EES EOE HEHEHE EEE EEE EEE HEHEHE HHHHEH HEHEHE ETE HH HEHEHE HEHEHE HEHEHE HHH HHH HHH HHH HHH HEHEHE HHH HEHEHE EEO EE EOS ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 153 APPENDIX DATA ITEM LIST continued eovovoeveveeeeveeveeeeeeeeeeeee ee eee eee eee eee eee oe eee eee eo ee ee meee mee eee ee em ee em oO eo ee ee MAIN RECIPIENTS OF CARE LABEL Main recipient of care all reported conditions multiple response CONDITIONS IMPAIRMENTS POPULATION All primary carers living in households whose main recipient of care is AND LIMITATIONS continued a co resident CATEGORIES See Type of long term condition reported LABEL SF12 of main recipient mental component summary POPULATION All primary carers living in households whose main recipient of care is a co resident CATEGORIES Continuous LABEL SF12 of main recipient physical component summ
57. ooo ooo EOE HOHE EEO EEE EEE EEE HEHEHE HEHEHE HEHEHE HEHEHE HEHE HHH HES EEE HEHEHE HHH HHH HHH HHH HEHEHE HEHEHE HEHEHE EEO EEO ES 174 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeeveeveeeeeeeeeeeeeeeee eee eee eee eee eee eee eee ee em eee ee eee em ee eee meme mC ee Oem ee oe PRIMARY CARERS SUPPORT LABEL Primary carer awareness of Carer Payment ACCESS continued POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Receives Carer Payment 2 Does not receive Carer Payment but has looked at eligibility 3 Does not receive Carer Payment and has not looked at eligibility LABEL Primary carer need and receipt of assistance to care for main recipient of care POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Receives assistance and does not need further assistance 2 Receives assistance and needs further assistance 3 Does not receive assistance and needs assistance 4 Does not receive assistance and does not need assistance LABEL Primary carer need and receipt of respite care for main recipient of care POPULATION All primary carers living in households CATEGORIES 0 Not applicable Received respite care in last 3 months and does not need it further Received respite care in last 3 months but needs it further Did not receive respite care in last 3 months and does not need it Did not receive respite
58. or aged 60 or over living in households who need assistance with a non personal activity because of disability or old age CATEGORIES 0 None 1 Informal only non personal activity 2 Formal only non personal activity 3 Informal and formal non personal activity 4 Not applicable LABEL Type of non personal activity assistance received cognition and emotion included POPULATION All persons with a disability or aged 60 or over living in households who need assistance with a non personal activity because of disability or old age CATEGORIES 0 None 1 Informal only non personal activity 2 Formal only non personal activity 3 Informal and formal non personal activity 4 Not applicable CoCo ooo ooo OOOH HOHE SEDO HEHEHE EEE EEE EHH HEHE HEHEHE HEHEHE HEHEHE HEHEHE HEHEHE HHH HHH HHH HHH HEHE HHH HEHEHE HEHEHE EEE EOE OE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 55 APPENDIX DATA ITEM LIST continued eoevovoeveveeveeeeeeeeeeeeeee eee eee eee eee eo eee eee eee eee eee eee eee eeeeeee ee eeeeeeeeee ASSISTANCE RECEIPT OF ASSISTANCE SUMMARY continued ASSISTANCE RECEIPT OF ASSISTANCE WITH COGNITION OR EMOTION eo eee eesreeereeeseeeeeeeeeeeeees LABEL Type of personal activity assistance received excluding cognitive and emotional support POPULATION All persons with a disability living in households who need assistance with a personal activity excluding cognition and emotio
59. or aged 60 or over living in households who receive assistance with property maintenance because of disability or old age CATEGORIES 0 Not applicable 1 Did not know of service COC ooo Heo HEHEHEH HEHEHE HEHEHE HHH HEHEHE HHH HHH HHH HHH HHH HOES HEHEHE HEHEHE HOHE OEE OOOO OS 66 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeveeveeeeeeeeeeeeeee eee eee eee eee eee eee eo eee eee meee em ee meee em ee eee me em Ohm eC em oO ee ele ASSISTANCE RECEIPT OF ASSISTANCE WITH PROPERTY MAINTENANCE continued Need not important enough Wont ask because of pride Unable to arrange service No service available Not eligible for service Service costs too much o NAv KR W Ww Service does not provide sufficient hours 9 Other LABEL Main reason has unmet need for informal property maintenance assistance POPULATION All persons aged 15 or over with a disability or aged 60 or over living in households who receive assistance with property maintenance because of disability or old age CATEGORIES 0 Not applicable 1 Does not need more help from family or friends 2 Has not asked family or friends 3 Needs more help than family friends can provide 4 Family friends not available too far away 5 Other LABEL Number of formal sources of property maintenance assistance POPULATION All persons aged 15 or over with a disability or aged 60 or over living in households
60. or over with a disability and a non school qualification living in households excluding persons whose main condition was present at birth or aged less than 15 years when condition first appeared excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Completed non school qualification before onset of main condition 2 Did not complete non school qualification before onset of main condition LABEL Whether needs at least one day off school each week because of condition s POPULATION All persons aged 5 or over with a disability living in households and currently attending school or studying excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Needs time off school because of condition s 2 Does not need time off school because of condition s EMPLOYMENT EMPLOYMENT LABEL Employment restrictions 15 64 years multiple response RESTRICTIONS POPULATION All persons aged 15 64 with disability living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 01 Restricted in type of job 02 Restricted in number of hours 03 Difficulty changing jobs or getting a preferred job 04 Need for time off from work at least one day per week 05 Need for employer provided equipment and or special arrangements 06 Need for support person at work 07 Need for ongoing supervision or assistance 08 Is receiving a
61. or over with a disability or aged 60 or over living in households who need assistance with housework because of disability or old age CATEGORIES 0 None 1 One 2 Two 9 Not applicable LABEL Number of informal sources of housework assistance POPULATION All persons aged 15 or over with a disability or aged 60 or over living in households who need assistance with housework because of disability or old age CATEGORIES 0 None 1 One 2 Two 3 More than two 9 Not applicable LABEL Type of housework assistance received POPULATION All persons aged 15 or over with a disability or aged 60 or over living in households who receive assistance with housework because of disability or old age CATEGORIES CoCo ooo ooo OOOH EEE EEE HHEHEHEH HEHEHE EHH HHH H HHH HEHEHE HEHEHE HHH HHH HHH HOH HEH HEHEHE HEHEHE HEHE EEO OEE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 61 APPENDIX DATA ITEM LIST continued eovovoeveveeveeeveeeeeeeee ee ee eer eee eee eee eee eee ee eee ee em eo ee ee em ee meee eee em ee Oe oO em oO ee el ele ASSISTANCE RECEIPT OF 0 Not applicable ASSISTANCE WITH 1 None HOUSEWORK continued 2 Informal only 3 Formal only 4 Informal and formal ASSISTANCE RECEIPT OF LABEL Extent to which need for meal preparation assistance received met ASSISTANCE WITH MEAL POPULATION All persons aged 15 or over with a disability or aged 60 or over living in PREPARATION households who receive assistan
62. origin of the goods is unknown 0005 Unidentified for use in economic statistics the country reported on import export documentation is not recognised 0006 Australian Protected Person 0007 British Dependant Territory Person 0008 British Overseas Person 0009 UN Convention Refugee 0010 Unknown 0011 United Nations Agency 0012 United Nations Organisation 0013 Neutral Zone 0014 British Subject 0601 Asia Pacific Economic Co operation APEC 0602 Association of South East Asian Nations ASEAN CoCo EHO EEE HEHEHE HEHEHE EEE EEE HEHE HEHE HEHEHE HEHEHE HHH HHH HEHEHE HHH HEH HHH HHH HHH HHH HEH HHH HEHEHE HOHE HEE EEE EEO OS 94 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeceveveveeeveeeeeeeeeeeee ee eee eee eee ee eee eee eee ee em ee eee eee eee me oO ee eo em eo oO em em ee el ele DEMOGRAPHICS continued eo cece eereee ce eeseseeeeeeeeeeees 0603 European Economic Area 0604 European Union EU 0605 Organisation for Economic Co operation and Development OECD 0606 Organisation of Petroleum Exporting Countries OPEC 0607 South Pacific Regional Trade and Economic Co operation Agreement SPARTECA 0608 The Commonwealth 0611 Europe 0612 Europe and the former USSR 0613 Former USSR 0614 Asia 0615 East Asia 0616 Africa 0701 Africa nec 0702 Americas nec 0703 Asia nec 0704 Belgium and Luxembourg 0705 Central America and the Caribbean exclud
63. purpose of the Remoteness Structure is to classify CDs which share common characteristics of remoteness into broad geographical regions called Remoteness Areas RAs The structure defines six RAs Major Cities of Australia Inner Regional Australia Outer Regional Australia Remote Australia Very Remote Australia and Migratory The delimination criteria for RAs are based on the Accessibility Remoteness Index of Australia ARIA which measures the remoteness of a point based on the physical road distance to the nearest Urban Centre ASGC 1996 in each of five size classes For this survey the ASGC 2001 CDs were used The RAs were derived by calculating the average ARIA index value for each CD and applying the ASGC 2001 RA criteria The Migratory category is outside the scope of this survey and has been excluded The exclusion of sparsely settled areas from the scope of this survey reduced the size of the Very Remote Australia category refer to the definition of Sparsely settled in this Glossary As a result remoteness data for this survey is presented as Major Cities Inner Regional and Other The Other category combines Outer Regional Australia Remote Australia and the remainder of Very Remote Australia Schooling restriction A schooling restriction is determined for persons aged 5 20 years who have one or more disabilities if because of their disability they are unable to attend school attend a special school attend special classes
64. s CATEGORIES 0 Not applicable 1 Main condition expected to improve totally 2 Main condition expected to improve partially 3 Main condition expected to worsen 4 Main condition not expected to change 5 Don t know whether main condition will change MAIN RECIPIENTS OF CARE LABEL Number of activities for which main recipient of care always needs help due to ASSISTANCE NEEDED disability or age POPULATION All primary carers living in households whose main recipient of care is a co resident with a disability or aged 60 or over CATEGORIES 00 None 01 One 02 Two 03 Three 04 Four 05 Five 06 Six 07 Seven 08 Eight 09 Nine 10 Ten 99 Not applicable LABEL Number of activities for which main recipient of care needs assistance due to disability or age POPULATION All primary carers living in households whose main recipient of care is a co resident with a disability or aged 60 or over CATEGORIES 00 None 01 One 02 Two 03 Three 04 Four 05 Five 06 Six 07 Seven 08 Eight COC ooo ooo OHHH EE HEHEHE HEHEHE EEE HEHEHE HHH HEHEHE HEHEHE HEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HOES HEHEHE HEHEHE HOHE OEE OOOO OE 150 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeeveeveveeeeeeeeeeeee eee eee eoovoeveeveeveeeeeeeeeee eee eee eee eee eee wee eee eee eeee MAIN RECIPIENTS OF CARE 09 Nine ASSISTANCE NEEDED continued 10 Ten 99 Not applicable LABEL
65. students non dependent children and other related individuals 1212 Couple family with dependent students non dependent children and no other related individuals 1221 Couple family with dependent students no non dependent children and with Coe eee eee eee aoe OEE HEED HEHE OHHH EEE HEHEHE EHH HEH HHH HOHE HEHEHE HEE HELE OEE EEE EEE EEE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 101 APPENDIX DATA ITEM LIST continued eoeovoeeveveveeeeeeeeeee eee eee eee eee eee eee eee eee eee eee eee eee wee eee eee e eee eeeeeeeee DEMOGRAPHICS continued eo eee eesreeeeeeeseeeeeeeeeeeeee other related individuals 1222 Couple family with dependent students no non dependent children and with no other related individuals 1311 Couple family with children under 15 dependent students non dependent children and other related individuals 1312 Couple family with children under 15 dependent students non dependent children and no other related individuals 1321 Couple family with children under 15 dependent students no non dependent children and with other related individuals 1322 Couple family with children under 15 dependent students no non dependent children and no other related individuals 1411 Couple family with non dependent children and other related individuals 1412 Couple family with non dependent children and no other related individuals 2421 Couple family with no children and with other relat
66. the SDAC this population is restricted to persons aged 15 64 years A registered married or de facto partner These include self care mobility communication health care and cognition or emotion tasks Persons who during the reference period were neither employed nor unemployed They include persons who were keeping house unpaid retired voluntarily inactive permanently unable to work persons in institutions members of contemplative religious orders and persons whose only activity during the reference period was jury service or unpaid voluntary work A primary carer is a person who provides the most informal assistance in terms of help or supervision to a person with one or more disabilities The assistance has to be ongoing or likely to be ongoing for at least six months and be provided for one or more of the core activities communication mobility and self care In this survey primary carers only include persons aged 15 years and over for whom a personal interview was conducted Persons aged 15 to 17 years were only interviewed personally if parental permission was granted Refers to that source from which the greatest amount of cash income is received If total income is nil or negative principal souce of income is undefined Houses flats home units garages tents and other structures used as private places of residence at the time of the survey See Core activity limitation This includes light maintenance and g
67. the table in the Survey Content chapter for a summary of restrictions activities and tasks m cognition or emotion communication health care housework meal preparation mobility paperwork property maintenance self care transport Any devices used by persons with one or more disabilities to assist them with performing tasks but not help provided by another person or an organisation The ASCED is a national standard classification which includes all sectors of the Australian education system that is schools vocational education and training and higher education From 2001 ASCED replaced a number of classifications used in administrative and statistical systems including the ABS Classification of Qualifications ABSCQ The ASCED comprises two classifications Level of Education and Field of Education See Australian Standard Classification of Education ASCED 2001 cat no 1272 0 Cared accommodation includes hospitals homes for the aged such as nursing homes and aged care hostels cared components of retirement villages and other homes such as children s homes A person of any age who provides any informal assistance in terms of help or supervision to persons with disabilities or long term conditions or older persons i e aged 60 years and over This assistance has to be ongoing or likely to be ongoing for at least six months Assistance to a person in a different household relates to eve
68. understood by strangers A person who works without pay in an economic enterprise operated by a relative Core activities are communication mobility and self care Four levels of core activity limitation are determined based on whether a person needs help has difficulty or uses aids or equipment with any of the core activities communication mobility or self care A person s overall level of core activity limitation is determined by their highest level of limitation in these activities The four levels of limitation are profound the person is unable to do or always needs help with a core activity task severe the person sometimes needs help with a core activity task has difficulty understanding or being understood by family or friends a can communicate more easily using sign language or other non spoken forms of communication moderate the person needs no help but has difficulty with a core activity task mild the person needs no help and has no difficulty with any of the core activity tasks but uses aids and equipment cannot easily walk 200 metres cannot walk up and down stairs without a handrail cannot easily bend to pick up an object from the floor cannot use public transport can use public transport but needs help or supervision needs no help or supervision but has difficulty using public transport In the context of health experience the International Classification of Functioning Disability and Hea
69. were completed by staff of the health establishments Information provided was based on staff members knowledge of the selected residents and on medical nursing and administrative records Details of data collected and the relevant populations are in the Appendix Data item list The personal questionnaire was field tested to ensure m that there was minimum concern about the sensitivity or privacy aspects of the information sought the questions could be answered by the contact officer named on the CIF on behalf of the residents in the sample the information from the questionnaires could be processed into the data required The range of data collected in this component was smaller than in the household component Topics such as income or responses based on self perception were not suitable for collection Others such as home help were not relevant to those living in cared accommodation Low response rates in a sample survey lead to error in survey results because people who fail to respond may have different characteristics to those who do The ABS sought the cooperation of all households and cared accommodation establishments selected in the survey and provided respondents with assistance in answering queries about the survey In instances where it was not possible to interview all people within scope and coverage in a selected household or special dwelling unit on the interviewer s first visit arrangements were made to con
70. 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevovoeveveeveeeeeeeeeee eee eee eee eee wee eee eee eee em eee eee eee eee eee ee eee eee eeeeeeeeee ASSISTANCE RECEIPT OF ASSISTANCE WITH HOUSEWORK continued Local health centre or clinic Government department Local council General practitioner Counsellor social worker or welfare officer Other health worker 9 Other AN HWW KR Q LABEL Main reason has unmet need for formal housework assistance POPULATION All persons aged 15 or over with a disability or aged 60 or over living in households who receive assistance with housework because of disability or old age CATEGORIES 0 Not applicable Did not know of service Need not important enough Wont ask because of pride Unable to arrange service No service available Not eligible for service Service costs too much o N AVN KW DY Service does not provide sufficient hours 9 Other LABEL Main reason has unmet need for informal housework assistance POPULATION All persons aged 15 or over with a disability or aged 60 or over living in households who receive assistance with housework because of disability or old age CATEGORIES 0 Not applicable 1 Does not need more help from family or friends 2 Has not asked family or friends 3 Needs more help than family friends can provide 4 Family friends not available too far away 5 Other LABEL Number of formal sources of housework assistance POPULATION All persons aged 15
71. 0 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevovoeveveeveeeveeeeeeeee eee e ee eee eee eee eee eee eee eee eee eee eee eee e eee eeeeeeeeeeeee AIDS HOME MODIFICATIONS LABEL Type of change s made to dwelling because of condition s multiple response POPULATION All persons with a disability living in households whose dwelling has been changed because of disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 01 Structural changes 02 Ramps 03 Toilet bath or laundry modifications 04 Doors widened 05 Handgrab rails 06 Remote controls 07 New or changed heating or airconditioning 08 Home automation system 09 Telemonitoring system 10 Other change to dwelling 11 Not applicable LABEL Whether dwelling has been modified because of condition POPULATION All persons with a disability living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Dwelling modified 2 Dwelling not modified AIDS MEDICAL LABEL Whether uses medical aid s other than medication to help manage condition POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses medical aid s 2 Does not use medical aid s but uses other aid s 3 Does not use aid s AIDS MOBILITY LABEL Whether uses
72. 200 South Eastern Europe nfd 3201 Albania 3202 Bosnia and Herzegovina 3203 Bulgaria 3204 Croatia 3205 Cyprus 3206 Former Yugoslav Republic of Macedonia FYROM 3207 Greece CoCo ooo ooo OHHH HE HEHEHE HEHEHE HEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HHH HEHEHE HEHEHE HEHEHE EEO EOE OS ABS gt DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 APPENDIX DATA ITEM LIST continued eovovoeceveveveeeeeeeeeeee eee eee eee eee eee eee eee oe eee eee ee eee eee eee ee eee eee eeeeeeee DEMOGRAPHICS continued 3208 Moldova 3211 Romania 3212 Slovenia 3213 Serbia and Montenegro 3300 Eastern Europe nfd 3301 Belarus 3302 Czech Republic 3303 Estonia 3304 Hungary 3305 Latvia 3306 Lithuania 3307 Poland 3308 Russian Federation 3311 Slovakia 3312 Ukraine 4000 North Africa and the Middle East nfd 4100 North Africa nfd 4101 Algeria 4102 Egypt 4103 Libya 4104 Morocco 4105 Sudan 4106 Tunisia 4107 Western Sahara 4199 North Africa nec 4200 Middle East nfd 4201 Bahrain 4202 Gaza Strip and West Bank 4203 Iran 4204 Iraq 4205 Israel 4206 Jordan 4207 Kuwait 4208 Lebanon 4211 Oman 4212 Qatar 4213 Saudi Arabia 4214 Syria 4215 Turkey 4216 United Arab Emirates 4217 Yemen 5000 South East Asia nfd 5100 Mainland South East Asia nfd 5101 Burma Myanmar 5102 Cambodia 5103 Laos 5104 Thailand 5105 Viet Nam 5200 Maritime South East Asia nfd 5201 Brunei Darussalam 5202 Indonesia 5203 Malaysia 5204 Philippines CoCo
73. 215 Uruguay 8216 Venezuela CoCo ooo oOo HHHEH HEHEHE HEHE HEHE HHH HHH HEHEHE HHH HHH HHH HHH HHH HEHEHE HEHEHE HEHEHE EEO EEO OS ABS gt DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoeovoeeveeveeeeeeeeeeeeee eee eee ee ewe eee eee eee ee eee eee eee eee eee ee eeee eee ee eee eeee DEMOGRAPHICS continued 8299 South America nec 8300 Central America nfd 8301 Belize 8302 Costa Rica 8303 El Salvador 8304 Guatemala 8305 Honduras 8306 Mexico 8307 Nicaragua 8308 Panama 8400 Caribbean nfd 8401 Anguilla 8402 Antigua and Barbuda 8403 Aruba 8404 Bahamas 8405 Barbados 8406 Cayman Islands 8407 Cuba 8408 Dominica 8411 Dominican Republic 8412 Grenada 8413 Guadeloupe 8414 Haiti 8415 Jamaica 8416 Martinique 8417 Montserrat 8418 Netherlands Antilles 8421 Puerto Rico 8422 St Kitts and Nevis 8423 St Lucia 8424 St Vincent and the Grenadines 8425 Trinidad and Tobago 8426 Turks and Caicos Islands 8427 Virgin Islands British 8428 Virgin Islands United States 9000 Sub Saharan Africa nfd 9100 Central and West Africa nfd 9101 Benin 9102 Burkina Faso 9103 Cameroon 9104 Cape Verde 9105 Central African Republic 9106 Chad 9107 Congo 9108 Congo Democratic Republic of 9111 Cote dIvoire 9112 Equatorial Guinea 9113 Gabon 9114 Gambia 9115 Ghana 9116 Guinea 9117 Guinea Bissau 9118 Liberia CO Coo ooo oO HE HEHEHE HEHEHE HHH HEHEHE SESE HEHEHE HHH HHH HHH HHH HHH EOH
74. 290 Miscellaneous Specialist Managers nfd 1291 Policy and Planning Managers 1292 Health Services Managers 1293 Education Managers 1294 Commissioned Officers Management 1295 Child Care Coordinators 1296 Media Producers and Artistic Directors 1299 Other Specialist Managers 1300 Farmers and Farm Managers nfd 1310 Farmers and Farm Managers nfd 1311 Mixed Crop and Livestock Farmers 1312 Livestock Farmers 1313 Crop Farmers 1314 Aquaculture Farmers 2000 Professionals nfd 2100 Science Building and Engineering Professionals nfd 2110 Natural and Physical Science Professionals nfd 2111 Chemists 2112 Geologists and Geophysicists 2113 Life Scientists 2114 Environmental and Agricultural Science Professionals 2115 Medical Scientists 2119 Other Natural and Physical Science Professionals 2120 Building and Engineering Professionals nfd 2121 Architects and Landscape Architects 2122 Quantity Surveyors 2123 Cartographers and Surveyors 2124 Civil Engineers 2125 Electrical and Electronics Engineers 2126 Mechanical Production and Plant Engineers 2127 Mining and Materials Engineers 2128 Engineering Technologists 2129 Other Building and Engineering Professionals 2200 Business and Information Professionals nfd Coe eee ooo ooo EOE EHO HOHE HEHEHE EEE EEE EEE HEHEHE HHH HEHEHE HEHEHE HEHE HHH SESE SESE SESE HEHE HEHE HHH HEHEHE HEHEHE HHH HHH HOHE HOS ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003
75. 3 APPENDIX DATA ITEM LIST continued eovovoeveveeveeeveeeeeeeee eee e eer eee eee eee eee eee eee eee eee eee eee eee eee ewe ee eee eee eee COMMUNITY PARTICIPATION 02 Cost can t afford to ACTIVITIES AWAY FROM 03 Own disability condition HOME continued 04 Another person s disability condition 05 Difficulty using transport 06 Difficulty obtaining transport 07 Children too young 08 Old age too old 09 Not enough time 10 No carer to go with 11 No one to go with as a companion 12 Fear anxiety 13 Other LABEL Main reason does not leave home at all POPULATION All persons aged 5 or over with a disability or aged 60 years or over living in households who do not leave the home at all excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable Does not want to Prevented by own disability condition Difficulty using transport Difficulty obtaining transport Old age too old Fear anxiety 7 Other NWN KRW DN e LABEL Main social or community activity participated in away from home POPULATION All persons aged 5 or over with a disability or aged 60 years or over living in households excluding those who do not leave the home excludes persons with a non restricting disfigurement or deformity only CATEGORIES 00 Not applicable 01 Visited museum or art gallery 02 Visited library 03 Attended theatre or concert 04 Attended cinema 05 Visited animal or marine parks or
76. 50 Main recipients of care Conditions impairments and limitations 151 Main recipients of care Other 156 Main recipients of care Social participation 158 Populations 159 Primary carers Assistance provided 162 Primary carers Effects of the caring role Personal 165 Primary carers Effects of the caring role Work 169 Primary carers Recipient information 171 Primary carers Support access 173 Primary carers Type of assistance provided 177 Restriction repeating dataset 181 Self perceived health status SF 12 items 182 Self perceived health status Summary items 184 Transport Private 184 Transport Public 184 Transport Travel in previous fortnight 186 Weights 188 AIDS LABEL Type s of activity for which aid s or equipment used multiple response POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 01 Showering or bathing 02 Toileting 03 Managing incontinence 04 Dressing 05 Eating 06 Meal preparation 07 Getting into or out of a bed or chair CoCo oo eo oOo EEEHEEH HSH HHHEHEHE HEHEHE HEHE HHH HEHEHE HHH HHH HHH HHH HHH HHH HEHEHE HEHEHE HOHE HEE EEO EEO ES 28 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevoveeveeeeeeeeeeeeee eee eee eee eee wee eee eee eee eee eee eee em ee eee em oem ee eee em ee eC oO ee eel AIDS continued 08 Moving about the house 09 Moving
77. 55 001 2003 189 APPENDIX DATA ITEM LIST continued eoevovoevveeveeeeeeeeeeeeeee eee eee eee eee eo eee ee eo em eee ee em ee em ee eee em ee eee em em Oe eC em oO ee eel et WEIGHTS continued LABEL Replicate Weights 02 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 02 Household POPULATION All households CATEGORIES Continuous LABEL Replicate Weights 03 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 03 Household POPULATION All households CATEGORIES Continuous LABEL Replicate Weights 04 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 04 Household POPULATION All households CATEGORIES Continuous LABEL Replicate Weights 05 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 05 Household POPULATION All households CATEGORIES Continuous LABEL Replicate Weights 06 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 06 Household POPULATION All households CATEGORIES Continuous LABEL Replicate Weights 07 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 07 Household POPULATION All households CATEGORIES Continuous CoCo Sooo eo HHEHEHE HEHEHE HEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HOES HEHEHE HHH HEHEHE EEE OOO EE 190 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM
78. 59 APPENDIX DATA ITEM LIST continued eovovoeeveeeveeeeeeeeeee eee eee eee eee eee eee eee ee eee ee eee ee eee eee eee eee eee eeeeeeee MAIN RECIPIENTS OF CARE 0 Not applicable SOCIAL PARTICIPATION 97 Less than 1 hour no hours continued LABEL Main reason main recipient of care does not leave home at all POPULATION All primary carers living in households whose main recipient of care is a co resident aged 5 years or over with a disability or aged 60 years or older CATEGORIES 0 Not applicable Does not want to Prevented by own disability or condition Difficulty using transport Difficulty obtaining transport Old age or too old NW KR WN Fear or anxiety 7 Other reason LABEL Whether main recipient of care is attending school POPULATION All primary carers living in households whose main recipient of care is a co resident aged 5 20 years CATEGORIES 0 Not applicable 1 Attending school 2 Not attending school LABEL Whether main recipient of care is currently studying and educational institution attended POPULATION All primary carers living in households whose main recipient of care is a co resident aged 15 or over and not attending school CATEGORIES 0 Not applicable 1 Secondary school 2 University or other higher education 3 TAFE or technical college 4 Business college 5 Industry skills centre 6 Other educational institution 7 Not studying POPULATIONS LABEL All parents with children under 15 years of age POPULATION
79. 7 17 18 18 19 19 20 20 21 21 22 22 23 23 24 24 99 Not applicable CoCo ooo ooo HOHE HEHEHE HOHE HEHEHE EEE EEE HEHEHE HEHEHE EH EEE HEHE H EHH HHH SHH HHH HHH HHH HHH HHH HHH HEHEHE EEE HEHEHE HEE EOE EOS ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 81 APPENDIX DATA ITEM LIST continued eovovoeeveeveeeeeeeeeeee eee eee eee eee eee eee eee ee eee ee eee eee eee mee ee em em oO eo Oe em oO eee ele COMMUNITY PARTICIPATION LABEL Social or community participation at home in the last three months multiple ACTIVITIES AT HOME response POPULATION All persons aged 5 or over with a disability or aged 60 years or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 1 Visits from family friends Telephone calls with family friends Art Craftwork for with other people Church special community activities Voluntary work including advocacy None of the above N WW KR W LD Not applicable COMMUNITY PARTICIPATION LABEL Culture or leisure participation away from home in the last 12 months multiple ACTIVITIES AWAY FROM response HOME POPULATION All persons aged 5 or over with a disability or aged 60 years or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 01 Visited museum art gallery 02 Visited library 03 Attended theatre concert 04 Attended cinema 05 Visited animal mari
80. 9 Church or other place of worship 10 Other activity 11 Does not leave home LABEL Main form of transport used on last trip taken in last fortnight POPULATION All persons with a disability or aged 60 or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Passenger in a motor vehicle 2 Driver of a motor vehicle 3 Public transport 4 Walked 5 Other 6 Did not make a journey in the last fortnight 7 Does not leave home LABEL Main reason used motor vehicle as main form of transport on most recent journey POPULATION All persons with a disability or aged 60 or over living in households who used a motor vehicle as the main form of transport on last trip excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Quicker or easier or more convenient 2 More comfortable 3 No public transport available eee eee eseeereeeseseeeeeeeeeeeeeeeeeeeee Coe eee eee seeeeseeseeeeeeseeseeeeeeeeeeeeeEeeEeEH EEE EEE ETE HE OEE EEE EERE EES DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 187 APPENDIX DATA ITEM LIST continued eovovoeeveeveeeveeeeeeeee eee eee eee eee eee eee eee eee eee eee ee eee eee eee eee ee eeeeeeeeee TRANSPORT TRAVEL IN PREVIOUS FORTNIGHT continued eo eee eesreeeeereseeeeeeeeeeeeeeee 4 Difficulty due to disability or age 5 Other problems with public transp
81. 900 2003 9999 Don t know CoCo oe eo eo HEHEHEHEH HEHEHE HEHE HHH HEHEHE HEH H HHH HHH HHH HHH HEHEHE HEHEHE HEHEHE EEO EEO OE 140 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeeveeveeeeeeeeeeeeeeee ee eee eee eee eee eee eee eee eee eee eee eee eee eee eee eeeeeeee INCOME FAMILY LEVEL LABEL Total weekly cash income family POPULATION All families living in households CATEGORIES Continuous 99998 Not known 99999 Not applicable LABEL Total weekly equivalised cash income family POPULATION All families living in households CATEGORIES Continuous 99998 Not known 99999 Not applicable LABEL Total weekly equivalised cash income deciles family POPULATION All families living in households CATEGORIES 00 Not applicable 01 1st decile 02 2nd decile 03 3rd decile 04 4th decile 05 5th decile 06 6th decile 07 7th decile 08 8th decile 09 9th decile 10 10th decile 11 Not known LABEL Whether anyone in family receives Carer Allowance Centrelink POPULATION All families living in households CATEGORIES 0 Not applicable 1 A person or persons in family receives the Carer Allowance Centrelink 2 No one in the family receives the Carer Allowance Centrelink LABEL Whether anyone in family receives Disability Pension DVA POPULATION All families living in households CATEGORIES 0 Not applicable 1 A person or persons in family do receive Disab
82. A person or persons in family receives the Parenting Payment 2 Noone in the family receives the Parenting Payment INCOME HOUSEHOLD LEVEL LABEL Total weekly cash income deciles household POPULATION All households CATEGORIES 00 Not applicable 01 1st decile 02 2nd decile 03 3rd decile 04 4th decile 05 5th decile 06 6th decile 07 7th decile 08 8th decile 09 9th decile 10 10th decile 11 Not known LABEL Total weekly cash income household POPULATION All households CATEGORIES Continuous 99998 Not known 99999 Not applicable LABEL Total weekly equivalised cash income household POPULATION All households CATEGORIES Continuous 99998 Not known 99999 Not applicable LABEL Total weekly equivalised cash income deciles household POPULATION All households CATEGORIES 00 Not applicable 01 1st decile 02 2nd decile 03 3rd decile 04 4th decile 05 5th decile 06 6th decile 07 7th decile 08 8th decile CoCo oe ooo OOOOH EEO HOE HEHEHE EEE EEE HEHEHE HEHEHE HEHEHE EEE HEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HHH HEHEHE HEHEHE EEE EEE OOS 142 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevovoeveveeveeeeeeeeeeeeeeee ee eee eee eee eee eee eee eee ee eee eee eo meee eee em ee meee meee ee HOUSEHOLD LEVEL 09 9th decile INCOME continued 10 10th decile 11 Not known LABEL Whether anyone in household receives Carer Allowance Centr
83. APHY LABEL Accessibility and remoteness Index of Australia ARIA POPULATION All persons CATEGORIES 1 Major cities 2 Inner regional 3 Outer regional 4 Remote Very remote LABEL Capital city or balance of state POPULATION All persons CATEGORIES 0 Not applicable 1 Capital city 2 Balance of state COC COSHH HEHEHE EHD HOES HEHEHE EEE EEE EEE H HSH HEHEHE HEHEHE HEHEHE HHH H HSE HEHEHE HHH HHH HHH HHH HHH HHH HOHE HEHEHE HEHEHE OEE OS 72 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeveveeveeeeeeeeeeee eee e ee eee eee ee eee eee eee eee ee eee eee meee em eO em eee meme eC em em em ee ele BACKGROUND GEOGRAPHY LABEL Collection district continued POPULATION All persons CATE GORIES Continuous LABEL Geographic region POPULATION All persons CATE 105 110 115 120 125 130 135 140 145 150 155 160 185 205 210 215 220 225 230 235 240 245 250 255 285 305 310 315 320 325 330 335 340 345 350 355 385 405 410 415 420 425 430 435 485 505 GORIES Sydney Hunter Illawarra Richmond Tweed Mid North Coast Northern North Western Central West South Eastern Murrumbidgee Murray Far West Off Shore Areas amp Migratory Melbourne Barwon Western District Central Highlands Wimmera Mallee Loddon Goulburn Ovens Murray East Gippsland Gippsland Off Shore Areas amp Migratory Brisbane Moreton
84. ARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeeveeveveeeeeeeeeeee eee eee eee eee eee eo eee eee eee eee em ee em ee meee meme eee eee eee oO ee ee et DISABILITY IDENTIFICATION LABEL Disability type s 1 multiple response IMPAIRMENTS AND POPULATION All persons with a disability LIMITATIONS continued CATEGORIES 01 Loss of sight 02 Loss of hearing 03 Speech difficulties 04 Breathing difficulties 05 Chronic or recurring pain or discomfort 06 Blackouts fits or loss of consciousness 07 Slow at learning or understanding 08 Incomplete use of arms or fingers 09 Difficulty gripping or holding things 10 Incomplete use of feet or legs 11 Nervous or emotional condition 12 Restriction in physical activities or work 13 Disfigurement or deformity 14 Mental illness 15 Head injury stroke or other brain damage 16 Other disability type s 17 Not applicable LABEL Disability type s Exhaustive multiple response POPULATION All persons with a disability CATEGORIES 01 Loss of sight 02 Loss of hearing 03 Speech difficulties 04 Breathing difficulties 05 Chronic or recurring pain or discomfort 06 Blackouts fits or loss of consciousness 07 Slow at learning or understanding 08 Incomplete use of arms or fingers 09 Difficulty gripping or holding things 10 Incomplete use of feet or legs 11 Nervous or emotional condition 12 Restriction in physical activities or work 13 Disfigu
85. All persons with a disability living in households who need assistance with cognitive or emotional support tasks CATEGORIES 0 None 1 One 2 Two 3 More than two 9 Not applicable LABEL Type of cognitive emotional support assistance received POPULATION All persons with a disability living in households who need assistance with cognitive or emotional support tasks CATEGORIES 0 Not applicable 1 None 2 Informal only 3 Formal only 4 Informal and formal LABEL Extent to which need for communication assistance is met POPULATION All persons with a disability living in households who received assistance with communication CATEGORIES 0 Not applicable 1 Fully 2 Partly 3 Notatall CoCo ooo ooo EHO EEE HEHEHE HEHEHE HEHEHE EEE HEHEHE HEHEHE HEHEHE HEHEHE HEHEHE HHH HHH HHH HEHEHE HHH HHH HHH HH HEH HEHEHE HHH HEHEHE EEE EO OE DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 57 APPENDIX DATA ITEM LIST continued eovovoevveveveeeeeeeeeeee eee eee eee eee eee eee eee oe eee ee eee eee mee emo em eee eee eee meee ee ASSISTANCE RECEIPT OF LABEL How became aware of main source of communication assistance ASSISTANCE WITH POPULATION All persons with a disability living in households who received COMMUNICATION continued assistance with communication CATEGORIES 0 Not applicable Friend or relative Phone book newspaper or advertisement Local health centre or clinic Government department L
86. Assistance Need for assistance with Health care Assistance Need for assistance with Healthcare Assistance Need for assistance with Housework Assistance Need for assistance with Meal preparation Assistance Need for assistance with Mobility Assistance Need for assistance with Paperwork Assistance Need for assistance with Property maintenance Assistance Need for assistance with Self care Assistance Need for assistance with Transport Assistance Providers repeating dataset Assistance Receipt of assistance summary Assistance Receipt of assistance with Cognition or emotion Assistance Receipt of assistance with Communication Assistance Receipt of assistance with Health care Assistance Receipt of assistance with Housework Assistance Receipt of assistance with Meal preparation Assistance Receipt of assistance with Mobility Assistance Receipt of assistance with Paperwork Assistance Receipt of assistance with Property maintenance Assistance Receipt of assistance with Self care Assistance Receipt of assistance with Transport Assistance Specific activities repeating dataset Background Dwelling information Background Geography Background Identifiers Background Interview Carers Assistance provided Carers Carer status Carers Family level Carers Household level Carers Income unit level Carers Recipient information Community participation Activities at home Community partici
87. CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 103 APPENDIX DATA ITEM LIST continued eovovoeceveveveee eee eee eee ee ee eee eee ewe eee eo eee eee eee eee em ee em ee eee em ee ee ee eC ee eC em oO eee ele DEMOGRAPHICS continued LABEL Number of children in family aged 15 24 neither a full time student or full time employed POPULATION All families living in households in private dwellings CATEGORIES Continuous LABEL Number of children in family aged 25 or over POPULATION All families living in households in private dwellings CATEGORIES Continuous LABEL Number of children in family aged under 15 POPULATION All families living in households in private dwellings CATEGORIES Continuous LABEL Number of children under 15 in household POPULATION All households CATEGORIES Continuous LABEL Number of persons aged 15 and over in family POPULATION All families living in households in private dwellings CATEGORIES Continuous LABEL Number of persons aged 15 and over in income unit POPULATION All income units in private dwellings CATEGORIES Continuous LABEL Number of persons aged 15 years and over in household POPULATION All households CATEGORIES Continuous LABEL Number of persons aged 55 59 in family POPULATION All families living in households in private dwellings CATEGORIES Continuous LABEL Number of persons aged 55 59 in household POPULATION All households CATEGORIES Continuous
88. D CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 91 APPENDIX DATA ITEM LIST continued eovovoeveveeveeeveeeeeeeee ee eee eee eee eee eee eee eee eee ee em eee ee eee eee ee ee eo em oO oO em oO eo eel ele CORE ACTIVITY LIMITATION MOBILITY continued Sometimes needs help or supervision moving about place of residence Needs no help moving about place of residence but has difficulty wR OW N Has no difficulty moving about place of residence 5 Does not move about place of residence LABEL Level of assistance needed with mobility away from place of residence because of disability POPULATION All persons with a disability excluding those with a hearing or speech loss only living in households and all persons with a disability living in health establishments CATEGORIES 0 Not applicable 1 Always needs help or supervision with mobility away from place of residence 2 Sometimes needs help or supervision with mobility away from place of residence 3 Does not need help or supervision with mobility away from place of residence but has difficulty 4 Has no difficulty with mobility away from place of residence 5 Does not leave place of residence LABEL Level of mobility limitation POPULATION All persons with a disability CATEGORIES 0 Not applicable Profound Severe Moderate Mild 5 No mobility limitation A WO Ne LABEL Whether can bend and pick up objects off floor without assistance POPULATION All persons aged 5 or over with
89. DATA ITEM LIST continued eovoveeveeveeeeeeeeeeeeeeee eer eee eee eee eo eee eee eee eee em ee eee eee em ee eee meee eC ee em eee ee ASSISTANCE RECEIPT OF LABEL Type of core activity assistance received ASSISTANCE SUMMARY POPULATION All persons with a disability living in households who need assistance continued with a core activity because of disability CATEGORIES 0 Not applicable 1 None 2 Informal only core activity 3 Formal only core activity 4 Informal and formal core activity LABEL Type of non core activity assistance received POPULATION All persons with a disability or aged 60 or over living in households who need assistance with a non core activity because of disability or old age CATEGORIES 0 Not applicable 1 None 2 Informal only non core activity 3 Formal only non core activity 4 Informal and formal non core activity LABEL Type of non personal activity assistance received cognition and emotion excluded POPULATION All persons with a disability or aged 60 or over living in households who need assistance with a non personal activity excluding cognition and emotion because of disability or old age CATEGORIES 0 None 1 Informal only non personal activity 2 Formal only non personal activity 3 Informal and formal non personal activity 4 Not applicable LABEL Type of non personal activity assistance received cognition and emotion included POPULATION All persons with a disability
90. Does not know whether needs more informal assistance LABEL Whether needs assistance or has difficulty with broad activity area POPULATION All broad areas of activity where assistance is required or difficulty experienced excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Needs assistance with activities 2 Does not need assistance but has difficulty with activities LABEL Whether needs assistance or supervision daily weekly or monthly POPULATION All broad areas of activity except public transport where some assistance is required households only excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable Daily Weekly Monthly Less than once a month Wom WW NY e Not stated establishments only LABEL Whether receives formal or informal assistance with broad activity area POPULATION All broad areas of activity except public transport where some assistance is required excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Receives formal assistance only 2 Receives formal and informal assistance 3 Receives informal assistance only 4 Receives no assistance ASSISTANCE NEED FOR LABEL Number of activities for which assistance is always needed because of disability ASSISTANCE SUMMARY or age establishments POPULATION All persons living in a health establishment who need assistance CA
91. E E EEE EES 156 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevoveeveeeveeeeeeeeeeeeeee eee eee eee eee eee eee ee eee ee eee eee eee meee eee meee eee meee ee MAIN RECIPIENTS OF CARE LABEL Age of non usual resident main recipient of care OTHER POPULATION All primary carers living in households whose main recipient of care is not a co resident CATEGORIES Continuous LABEL Age of principal carer POPULATION All principal carers living in households as identified by a co resident with a disability CATEGORIES Continuous LABEL Age of usual resident main recipient of care POPULATION All primary carers living in households whose main recipient of care is a co resident CATEGORIES Continuous LABEL Labour force status and full time or part time status of main recipient of care POPULATION All primary carers living in households whose main recipient of care is a co resident aged 15 or over CATEGORIES 0 Not applicable Employed working full time Employed working part time Unemployed looking for full time work A OW N Unemployed looking for part time work 5 Not in the labour force LABEL Main source of income of main recipient of care POPULATION All primary carers living in households whose main recipient of care is a co resident aged 15 or over CATEGORIES 00 Not applicable 01 Wages or salary including from own incorporated busines
92. E E a E T RE EEE eae aaa Bina a Baten a lees BA ee A 1 Survey content erse e a Bhat we 8 Mena has wags Sa ies a ea ae a Bona les as Bal ata le aah ayer a A 5 Survey design and operation anri seie cee ee ee ee ee ee eee ee 11 Dataquality Aaa ranee See ads Bede oan aly Goad ap ene tok E SAG uaa 18 Survey output and dissemination seses eserse soser e eueou eee eee 22 ADDITIONAL INFORMATION Appendix Dataiitemi list 2 d xdra aid a riaa E tie Diels 30S amp OO SG e a 26 GIOSSARYH dite aa ae Be eS RTE Saale Ged se ane Rite eae Dae Hats Sed el uaa eee as 194 CoCo ooo ooo EHH EEE HODES EEE HEHEHE HEHEHE HEHEHE HEHEHE HEHEHE ETE H EHH H HEHEHE HEHEHE HHH HHH HHH HHH HEHEHE SEE HEHEHE HEHE OEE EOS ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 iii INTRODUCTION eoevovoevveeveeeveeeeeeeeeeewe eee eee eee eee eee eee ee eee eee eee eee eee eee eee eee eee eee eee INTRODUCTION This User Guide is intended to assist with the use and interpretation of data from the 2003 Survey of Disability Ageing and Carers 2003 SDAC which was conducted from 23 June 2003 to 1 November 2003 It contains information on a the objectives and content of the survey the concepts methods and procedures underlying the collection of the data the derivation of estimates The 2003 SDAC was the fifth comprehensive national survey conducted by the Australian Bureau of Statistics ABS to measure disability following similar surv
93. EE EEO HHHHEHEH HEHEHE HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HHH HHH HEHEHE HEHEHE EOE EO EEO EE 68 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovoveeveeeveee eee eee eee ee ee ee eee eee eee ee eee eee eee ee eee eee eee eee eee e ee eeeeeeeeee ASSISTANCE RECEIPT OF 2 Two ASSISTANCE WITH SELF CARE 9 Not applicable continued LABEL Number of informal sources of self care assistance POPULATION All persons with a disability living in households who need assistance with self care CATEGORIES 0 None 1 One 2 Two 3 More than two 9 Not applicable LABEL Type of self care assistance received POPULATION All persons with a disability living in households who received assistance with self care CATEGORIES 0 Not applicable 1 None 2 Informal only 3 Formal only 4 Informal and formal ASSISTANCE RECEIPT OF LABEL Extent to which need for transport assistance received met ASSISTANCE WITH POPULATION All persons aged 16 or over with a disability or aged 60 or over living in TRANSPORT households who receive assistance with transport because of disability or old age CATEGORIES 0 Not applicable 1 Fully 2 Partly 3 Notatall LABEL How became aware of main source of transport assistance POPULATION All persons aged 16 or over with a disability or aged 60 or over living in households who receive assistance with transport because of disability or old
94. EHE EOE EHH OHHH HOHE HEHEHE HEHE EHH HEHEHE HEHE HEHEHE HEHEHE EEO EEE E TELE EES 158 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevovoeeveeveeeveeeeeeeeeeeeee eee eee eee eee eee eee eee ee eee eee meee em ee eee eee eC oO eC Oe ee ele MAIN RECIPIENTS OF CARE OTHER continued MAIN RECIPIENTS OF CARE SOCIAL PARTICIPATION eo cece eereee ce eeseseeeeeeeeeeees LABEL Whether main recipient of care able to care for self at home if left on own for less than 1 hour POPULATION All primary carers living in households whose main recipient of care is a co resident with a profound or severe core activity limitation CATEGORIES 0 Not applicable 1 Could manage alone for less than an hour without difficulty 2 Could manage alone for less than an hour with difficulty 3 Could not manage alone for less than an hour LABEL Whether main recipient of care able to care for self at home if left on own for one day POPULATION All primary carers living in households whose main recipient of care is a co resident with a profound or severe core activity limitation CATEGORIES 0 Not applicable 1 Could manage alone for one day without difficulty 2 Could manage alone for one day with difficulty 3 Could not manage alone for one day LABEL Whether main recipient of care lives alone POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Main recip
95. EHE HEHEHE HEHEHE HEHEHE HEHEHE HEHEHE HEHEHE HHH HHH HEHEHE HOOD ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 113 APPENDIX DATA ITEM LIST continued eovoveeveeveeeeeeeeeeeeeeeee eee eee eee eee eee eee eee ee eee eee mee em ee meee meme OO em oO oO ee ele DISABILITY IDENTIFICATION LABEL Whether has limited use of legs or feet IMPAIRMENTS AND POPULATION All persons LIMITATIONS continued CATEGORIES 0 Not applicable 1 Has limited use of feet or legs 2 Has full use of feet and legs LABEL Whether has loss of hearing POPULATION All persons CATEGORIES 1 No loss of hearing 2 Partial loss of hearing 3 Total loss of hearing LABEL Whether has loss of sight POPULATION All persons CATEGORIES 1 No loss of sight 2 Loss of sight corrected by wearing glasses or contact lenses 3 Partial loss of sight not corrected by wearing glasses or contact lenses 4 Total loss of sight LABEL Whether has loss of speech POPULATION All persons CATEGORIES 1 No loss of speech 2 Partial loss of speech 3 Total loss of speech LABEL Whether has other long term condition that limits or restricts POPULATION All persons CATEGORIES 0 Not applicable 1 Does not have other long term condition 2 Has other long term condition that limits or restricts 3 Has other long term condition but is not limited or restricted LABEL Whether has shortness of breath or difficulty breathing POPULATION All persons CATEGORIES
96. EHE HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HHS HHH HEHEHE HEHEHE EOE EEE OS ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 87 APPENDIX DATA ITEM LIST continued eoeovoecveeeeeeeeeeeeee eee e ee eee eee eee eee eee eee eee eee eee eee eee e eee eee eee eee eeee CORE ACTIVITY LIMITATION LABEL Ability to understand someone does not know COMMUNICATION continued POPULATION Persons with a disability living in households where interview is conducted by proxy who are slow at learning understanding have a mental illness hearing loss loss of speech nervous or emotional condition head injury or brain damage and all persons with a disability living in health establishments CATEGORIES 0 Not applicable 1 Cannot understand at all because of disability 2 Understands with difficulty 3 Understands without difficulty 4 Too young LABEL Level of assistance needed being understood by someone does not know because of disability POPULATION Persons with a disability living in households where interview is conducted by proxy who are slow at learning understanding have a mental illness hearing loss loss of speech nervous or emotional condition head injury or brain damage and all persons with a disability living in health establishments CATEGORIES 0 Not applicable 1 Always needs assistance being understood by someone does not know 2 Sometimes needs assistance being understood by someone does not know 3 Does
97. EHEHE HHH HEHEHE HEHEHE HEHEHE HHH HHH HHH HHH HHH HOHE HEHEHE HEHEHE EEE OOS 58 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 ASSISTANCE RECEIPT OF ASSISTANCE WITH COMMUNICATION continued ASSISTANCE RECEIPT OF ASSISTANCE WITH HEALTH CARE APPENDIX DATA ITEM LIST continued eoevovoeeveeveeeeeeeeeeee eee eee eee eee eee eo eee eee eee eee eee eee eee eee eee eee eee eee eee e 2 3 9 LABEL Two More than two Not applicable Type of communication assistance received POPULATION All persons with a disability living in households who received assistance with communication CATEGORIES 0 Not applicable None 2 Informal only 3 Formal only 4 Informal and formal LABEL Extent to which need for health care assistance met POPULATION All persons aged 5 years and over with a disability living in households who receive assistance with health care CATEGORIES 0 Not applicable 1 Fully 2 Partly 3 Notatall LABEL How became aware of main source of health care assistance POPULATION All persons aged 5 years and over with a disability living in households who receive assistance with health care CATEGORIES 0 Not applicable 1 Friend or relative 2 Phone book newspaper or advertisement 3 Local health centre or clinic 4 Government department 5 Local council 6 General practitioner 7 Counsellor social worker or welfare officer 8 Other health worker 9 Other LABEL Main rea
98. EL Recipient of care identified principal carer POPULATION All persons living in households CATEGORIES 0 Not applicable 1 Recipient identified principal carer of a co resident LABEL Relationship of primary carer to main recipient of care POPULATION All primary carers living in households CATEGORIES 00 Not applicable 01 Spouse or partner CoCo Oooo oOo H HEHEHE EHH HEHEHE HEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HHH HEHEHE HHO HEHEHE EEE EEO OS ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeveveeveeeeeeeeeeee ee eee eee eee eee eee eee eee eee ee em ee em ee eee em ee eee em ee eC oO he oO eo ee ele PRIMARY CARERS 02 Father RECIPIENT INFORMATION 03 Mother continued 04 Son 05 Daughter 06 Son in law 07 Daughter in law 08 Other male relative 09 Other female relative 10 Male friend or neighbour 11 Female friend or neighbour LABEL Relationship of primary carer to main recipient of care primary carer aged lt 15 or 15 17 proxy POPULATION All possible primary carers under 15 years or aged between 15 and 17 years living in households and for whom a personal interview was not conducted CATEGORIES 00 Not applicable 01 Male partner 02 Female partner 03 Father 04 Mother 05 Son 06 Daughter 07 Son in law 08 Daughter in law 09 Other male relative 10 Other female relative 11 Male friend 12 Female friend 13 Not determined recip didn t ID
99. ET POPULATION All reported disabilities caused by brain damage CATEGORIES 00 Not applicable 01 Present at birth 02 Just came on or old age 03 Illness 04 Accident 05 Substance abuse 06 Poisoning 07 Drug overdose 08 Oxygen loss 09 Head injury 10 Stroke 11 Other LABEL Main condition s causing disability multiple response POPULATION All reported disabilities CATEGORIES See Type of long term condition reported LABEL Types of disability POPULATION All reported disabilities CATEGORIES 00 Not applicable 01 Loss of sight 02 Loss of hearing 03 Speech difficulties 04 Breathing difficulties 05 Chronic or recurrent pain or discomfort 06 Blackouts fits or loss of consciousness 07 Learning or understanding difficulties 08 Incomplete use of arms or fingers 09 Difficulty gripping or holding things 10 Incomplete use of feet or legs 11 Nervous or emotional condition 12 Restricted in physical activities or work 13 Disfigurement or deformity 14 Mental illness 15 Receiving treatment 16 Other type of restriction LABEL Whether disability was caused by brain damage POPULATION All reported disabilities CATEGORIES 0 Not applicable 1 Disabilty was caused by brain damage 2 Disability not caused by brain damage LABEL Whether this disability causes the most problems for the person POPULATION All reported disabilities in households CATEGORIES 0 Not applicable 1 This disability causes the most problems 2 This disability doe
100. H HEHEHE HHH E OOOO OS ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoevceveeveeeeeeeeeeee ee eee eee eee eee eee eee eee eee ee eee eee em em eo em ee em eee ee eC em em ee oe ASSISTANCE NEED FOR ASSISTANCE SUMMARY continued ASSISTANCE NEED FOR ASSISTANCE WITH COMMUNICATION ASSISTANCE NEED FOR ASSISTANCE WITH COGNITION OR EMOTION eo eee eesreee eee eseseeeeeeeeeeee 15 Fifteen 16 Sixteen 17 Seventeen 18 Eighteen 19 Nineteen 20 Twenty 21 Twenty one 22 Twenty two 23 Twenty three 99 Not applicable LABEL Whether needs assistance or has difficulty with broad activities POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Needs assistance or has difficulty with any activity 2 Does not need assisance or have difficulty with any activity 3 Other Too young for activity not undertaken or not assessed LABEL Number of communication tasks for which assistance is needed because of disability POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 None One Two Three Four Five Six O Aav KW DY Not applicable LABEL Whether needs assistance or has difficulty with oral communication because of disability POPULATION All persons with a disability exclu
101. H HH EHH EEE EEE HE HEHEHE HEHEHE HEHEHE HEHEHE HHH HHH HHH HEHEHE HEHEHE HEHEHE OOOO OS 84 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeeveeeeeeeeeeeeee ee eee eee ee ewe eee eee eee oe eee eee eee eo eee em ee eee meee eee eee eee COMMUNITY PARTICIPATION 7 Not known COMPUTER USE continued 8 Not applicable LABEL Purposes for Internet use at home in the last 12 months multiple response POPULATION All persons aged 15 or over with a disability or aged 60 years or over living in households who used the Internet in the last 12 months excludes persons with a non restricting disfigurement or deformity only CATEGORIES 1 Work business 2 Education study 3 Volunteer community groups 4 Personal private 5 Other 6 Not applicable LABEL Purposes for computer use at home in the last 12 months multiple response POPULATION All persons aged 15 or over with a disability or aged 60 years or over living in households who used a computer in the last 12 months excludes persons with a non restricting disfigurement or deformity only CATEGORIES 1 Work business 2 Education study 3 Volunteer community groups 4 Personal private 5 Other 6 Not applicable LABEL Where Internet used in the last 12 months multiple response POPULATION All persons aged 15 or over with a disability or aged 60 years or over living in households who used the Internet in the
102. H OHO HEHEHE OOOO OE 100 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeceveeveeeeeeeeeeeeeeee ee eeo eee eee eee eee eee eee eee eee eee eee eee e ewe eee eee eee eee DEMOGRAPHICS continued eo eee eeseee ee eeseeeeeeeeeeeeee 9121 Mali 9122 Mauritania 9123 Niger 9124 Nigeria 9125 Sao Tome and Principe 9126 Senegal 9127 Sierra Leone 9128 Togo 9200 Southern and East Africa nfd 9201 Angola 9202 Botswana 9203 Burundi 9204 Comoros 9205 Djibouti 9206 Eritrea 9207 Ethiopia 9208 Kenya 9211 Lesotho 9212 Madagascar 9213 Malawi 9214 Mauritius 9215 Mayotte 9216 Mozambique 9217 Namibia 9218 Reunion 9221 Rwanda 9222 St Helena 9223 Seychelles 9224 Somalia 9225 South Africa 9226 Swaziland 9227 Tanzania 9228 Uganda 9231 Zambia 9232 Zimbabwe 9299 Southern and East Africa nec 9998 Not Applicable LABEL Family type POPULATION All families living in households in private dwellings CATEGORIES 1111 Couple family with children under 15 non dependent children and other related individuals 1112 Couple family with children under 15 non dependent children and no other related individuals 1121 Couple family with children under 15 no non dependent children and with other related individuals 1122 Couple family with children under 15 no non dependent children and with no other related individuals 1211 Couple family with dependent
103. HE HEHEHE EE OOOO OS ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeveveeveeeeeeeeeeee eee eee eee eee eee eo eee eee eee eee meee meee meee em ee meee meee eC ee em oO ee ele ASSISTANCE NEED FOR ASSISTANCE WITH TRANSPORT continued ASSISTANCE PROVIDERS REPEATING DATASET eo cece eereee ce eeseseeeeeeeeeeees CATEGORIES 0 Not applicable 1 Needs assistance or has difficulty with private transport 2 Does not need assistance or have difficulty with private transport 3 Does not leave home LABEL Whether needs assistance or has difficulty with public transport because of disability or age POPULATION All persons aged 5 or over with a disability or aged 60 years or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Needs assistance or has difficulty with public transport 2 Does not need assistance or have difficulty with public transport 3 Does not leave home LABEL Whether needs assistance with private transport because of disability or age POPULATION All persons aged 16 or over with a disability and persons aged 60 or over living in households excluding those who do not leave the home excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Needs assistance with private transport 2 Does not need assistance with private tra
104. HHH HHH HHH HHH EHH HEHEHE HEHEHE OEE EEE OOS 80 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeeveeveeeeeeeeeeee ee eee eee eee eee eee eee eee eee eee eee eee eee eee eee ee eee eeeeeee CARERS HOUSEHOLD continued CARERS INCOME UNIT LEVEL CARERS RECIPIENT INFORMATION LEVEL 3 Household contains primary carer s of co resident s and primary carer s of non co resident s 4 Household does not contain a primary carer LABEL Whether income unit contains a primary carer POPULATION All income units in households CATEGORIES 0 Not applicable 1 Income unit contains primary carer s of co resident s only 2 Income unit contains primary carer s of non co resident s only 3 Income unit contains primary carer s of co resident s and primary carer s of non co resident s 4 Income unit does not contain a primary carer LABEL Age of recipient s of care POPULATION All carers of in scope co residents living in households CATEGORIES 001 120 LABEL Mapped sex of recipient s of care POPULATION All carers of in scope co residents living in households CATEGORIES 0 Not applicable 1 Male 2 Female LABEL Person number of recipient s of care POPULATION All carers of in scope co residents living in households CATEGORIES 00 00 01 01 02 02 03 03 04 04 05 05 06 06 07 07 08 08 09 09 10 10 11 11 12 12 13 13 14 14 15 15 16 16 1
105. ION All primary carers living in households whose main recipient is aged 5 or over personal interview CATEGORIES 0 Not applicable 1 Usually assists with transport tasks 2 Does not usually assist with transport tasks 3 Transport tasks not performed LABEL Whether usually assists main recipient of care to communicate with family and friends POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Usually assists to communicate with family and friends 2 Does not usually assist to communicate with family and friends PRIMARY CARERS EFFECTS LABEL Main effect of caring role on primary carer s financial situation OF THE CARING ROLE POPULATION All primary carers living in households PERSONAL CATEGORIES 0 Not applicable Income not affected Income has increased Income has decreased BR WO N Has extra expenses 5 Not stated LABEL Main effect of caring role on primary carer s relationship with main recipient of care POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Relationship unaffected 2 Brought closer together 3 Relationship strained 4 Not stated LABEL Main effect of caring role on primary carer s relationship with other co resident family members POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Relationships unaffected CoCo ooo ooo EHHHEHEH HEHEHE HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HHH HHH HEHEHE HHH HOHE EOE OO OS
106. ION All primary carers living in households whose main recipient of care is a co resident CATEGORIES 0 Not applicable Has disability and profoundly restricted in core activities Has disability and severely restricted in core activities Has disability and moderately restricted in core activities Has disability and mildly restricted in core activities 5 Has disability and not restricted in core activities but restricted in schooling or BR WO N employment 6 Has disability and not restricted in core activities schooling or employment 7 Has a long term health condition without disability 8 No long term health condition LABEL Disability type that causes most problems for main recipient of care POPULATION All primary carers living in households whose main recipient of care is a co resident CATEGORIES 00 Not applicable 01 Loss of sight 02 Loss of hearing 03 Speech difficulties 04 Breathing difficulties 05 Chronic or recurring pain or discomfort 06 Blackouts fits or loss of consciousness 07 Slow at learning or understanding 08 Incomplete use of arms or fingers 09 Difficulty gripping or holding things 10 Incomplete use of feet or legs 11 Nervous or emotional condition COCO oo ooo H HEHEHE EEE ETH HH HHH H HEHEHE HEHEHE HHH HHH HHH HHH HHH HHH HEHEHE EHH HOHE HOHE EEO OOO ES 152 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevoveveveeveeeeeeeeeeee ee ee
107. LATION All persons with a disability or aged 60 or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 00 01 02 03 04 esecsooocsooooooooooooooooooooocoooocooooooooo None One Two Three Four eecooocooooooooooooooooocoocoooooooooooooooooooooooooooooooooooooooo ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 41 APPENDIX DATA ITEM LIST continued eovovoevveeeveeeeeeeeeeeeeeee eer eee eee eee eee eee oe eee eee eee eo eee emo eee eee mee ee meee ee ASSISTANCE NEED FOR 05 Five ASSISTANCE SUMMARY 06 Six continued 07 Seven 08 Eight 09 Nine 10 Ten 11 Eleven 12 Twelve 13 Thirteen 14 Fourteen 15 Fifteen 16 Sixteen 17 Seventeen 18 Eighteen 19 Nineteen 20 Twenty 21 Twenty one 22 Twenty two 23 Twenty three 99 Not applicable LABEL Number of core activities for which assistance is always needed because of disability POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 None One Two Three Four Five Six DHNN KRW DY Not applicable LABEL Number of core activities for which assistance is needed because of disability POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 None One Two Three Four Five Six O An KRW DN e Not applicable LABEL Number of c
108. NY ONIFZDV ALITIGVSIG YadVd NOILVWUYOSINI VITVUYULSNYV AJqing wasn
109. Needs respite care on weeknights at least once a month 2 Needs respite care on weeknights less than once a month 3 Needs respite care but not on weeknights 4 Does not need or want respite care LABEL Whether primary carer has unmet need for respite care on weekdays at least once a month POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Needs respite care on weekdays at least once a month 2 Needs respite care on weekdays less than once a month 3 Needs respite care but not on weekdays 4 Does not need or want respite care LABEL Whether primary carer has unmet need for respite care on weekends at least once a month POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Needs respite care on weekends at least once a month 2 Needs respite care on weekends less than once a month 3 Needs respite care but not on weekends 4 Does not need or want respite care LABEL Whether primary carer used a day care centre in the last three months POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Used a day care centre in the last three months 2 Has used respite care in the last three months but not a day care centre 3 Has used respite care but not in the last three months 4 Has never used respite care CoCo oo ooo OOOOH HEHEHE OEE EEE EEE EEE HEHEHE HEHEHE HEHEHE HEHEHE HHH HH HH HEHEHE HEHEHE HHH HHH HHH HHH HHH HEHEHE HEHEHE HOHE EEE OOOO ES ABS DISABILI
110. Niue 1505 Samoa 1506 Samoa American 1507 Tokelau 1508 Tonga 1511 Tuvalu 1512 Wallis and Futuna 1599 Polynesia excludes Hawaii nec CoCo ooo ooo HEHEHE HEHEHE EEE EEE EEE EEE H HSE HEHEHE HEHEHE HHH HHH HHH HEHEHE HEHEHE HHH HHH HHH HSH HEHEHE HEHEHE HOHE EEO EEO OS 96 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoeovoecveeveeeeeeeeeeeeeee eee eee eee eee eee eee eee eee em em eo e em ee mee eee em eee em eC ee oO em oO oO ee ele DEMOGRAPHICS continued 1600 Antarctica nfd 1601 Adelie Land France 1602 Argentinian Antarctic Territory 1603 Australian Antarctic Territory 1604 British Antarctic Territory 1605 Chilean Antarctic Territory 1606 Queen Maud Land Norway 1607 Ross Dependency New Zealand 2000 North West Europe nfd 2100 United Kingdom nfd 2101 Channel Islands 2102 England 2103 Isle of Man 2104 Northern Ireland 2105 Scotland 2106 Wales 2201 Ireland 2300 Western Europe nfd 2301 Austria 2302 Belgium 2303 France 2304 Germany 2305 Liechtenstein 2306 Luxembourg 2307 Monaco 2308 Netherlands 2311 Switzerland 2400 Northern Europe nfd 2401 Denmark 2402 Faeroe Islands 2403 Finland 2404 Greenland 2405 Iceland 2406 Norway 2407 Sweden 3000 Southern and Eastern Europe nfd 3100 Southern Europe nfd 3101 Andorra 3102 Gibraltar 3103 Holy See 3104 Italy 3105 Malta 3106 Portugal 3107 San Marino 3108 Spain 3
111. No employment restriction LABEL Type of leave arrangements used multiple response POPULATION All persons aged 15 64 with disability living in households who are employed wage or salary earners excludes persons with a non restricting disfigurement or deformity only CATEGORIES 1 Sick leave Flexible hours Recreation annual leave Leave without pay Other Does not need time off work at least one day per week NWN KR WwW N 7 Not applicable LABEL Whether person has an employment restriction POPULATION All persons aged 15 64 with disability living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Has employment restriction 2 Does not have employment restriction LABEL Whether receives assistance from a job placement support scheme for people with disabilities POPULATION All persons aged 15 64 with disability living in households who are unemployed excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Receiving assistance with job placement 2 Not receiving assistance with job placement EMPLOYMENT LABOUR LABEL Duration of unemployment FORCE ITEMS POPULATION All persons aged 15 or over living in households and unemployed CATEGORIES 000 Not applicable 001 260 998 Never worked for two weeks or more 999 Don t know LABEL Home based employment POPULATION All persons aged 15 or over living in house
112. ON All persons aged 5 20 with a disability living in households currently attending school excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Attends special school 2 Does not attend special school CoCo oo ooo EHEHHE HEHEHE HEHEHE HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HH HEHEHE HEHEHE HEHEHE EEO EOE ES ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 123 APPENDIX DATA ITEM LIST continued eovovoeveveeveeeeeeeeeeeeee eee eee eee eee eee eee eee eee eee eee eee eee ee eee e eee eeeeeeeee EDUCATION IMPAIRMENTS LABEL Whether attends special school or classes or receives other special support AND RESTRICTIONS continued multiple response POPULATION All persons aged 5 or over with a disability living in households and currently attending school excludes persons with a non restricting disfigurement or deformity only CATEGORIES 01 Attends a special school 02 Attends special classes 03 School provides special equipment 04 School provides special tuition 05 School provides special assessment procedures 06 School provides counsellor disability support person 07 School provides special access arrangements 08 School provides special transport arrangements 09 Other support provided by school 10 No support received 11 Not applicable LABEL Whether completed non school qualification before onset of main condition POPULATION All persons aged 15
113. ORIES 00 Not applicable 01 98 99 Did not have job prior to caring role LABEL Reduction in weekly hours worked since commencing caring role POPULATION All primary carers living in households who are employed and have to work fewer hours since commencing caring role CATEGORIES Continuous LABEL Whether has ever had to leave work for at least 3 months to care for main recipient of care POPULATION All primary carers living in households who are employed CATEGORIES 0 Not applicable 1 Has had to leave work for at least three months 2 Has not had to leave work for at least three months LABEL Whether primary carer needs time off work at least once a week because of caring for main recipient POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Needs time off work at least once a week 2 Needs time off work but not once a week 3 Does not need time off work 4 Unemployed or not in the labour force excluding those permanently unable to work 5 Permanently unable to work LABEL Whether worked just before commencing caring for main recipient of care POPULATION All primary carers living in households who are unemployed or not in the labour force CATEGORIES 0 Not applicable 1 Worked prior to caring role 2 Did not work prior to caring role 3 Primary carer permanently unable to work LABEL Whether would like to be employed while caring for main recipient of care POPULATION All primary carers living
114. OUTPUT AND DISSEMINATION eoevoveveveeeeeeeeeeeeee eee eee eee eee eee eo eee eee em eee ee eee ee ee mee meee em eee ee eC ee em em em el ole DATA AVAILABILITY Publications Results for states eo eres esreeeereceseeeeeeeeeeees Results from the 2003 SDAC will be available in the form of publications and other catalogued releases a aConfidentialised Unit Record File tables produced on request to meet specific information requirements from the survey This chapter outlines the products and services that are available and those that are proposed to be made available The program of publications and other releases and the prices quoted in this publication are subject to change Products may be obtained by visiting the ABS web site lt www abs gov au gt or by telephoning Information Services on 1300 135 070 Disability Ageing and Carers Australia Summary of Findings 2003 cat no 4430 0 28 The Summary of Findings contains a broad selection of national estimates relating to disability older persons and caring in Australia It contains estimates of the number and demographic characteristics of persons with disabilities limitations or restrictions persons aged 60 years or more and carers Information is also included on socio economic characteristics levels of limitation or restriction and need for or receipt of help by activity and social participation of people with disabilities or people aged 60 and over carer s
115. PULATION All persons with a disability or aged 60 or over living in households who need assistance with a non core activity because of disability or old age CATEGORIES 0 Not applicable 1 Need fully met for non core activities Ce ee eee eeeseeeeeseeeeseseeeeeeeeeseeeeEeeeeeEeFEeEEeEEEE HEE EEE ETE TELE EEO EEE EEE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 53 APPENDIX DATA ITEM LIST continued eovoevoeeveeveeeeeeeeeeeeeewe eee eee eee eee eee eee ee eee eee eee eee eee eee eee eee eeeeeeeee ASSISTANCE RECEIPT OF ASSISTANCE SUMMARY continued eo eee eesreeeeereeeeeeeeeeeeeeees 2 Need partly met for non core activities 3 Need not met at all for non core activities LABEL Extent to which need for non personal activity assistance met cognition and emotion excluded POPULATION All persons with a disability or aged 60 or over living in households who need assistance with a non personal activity excluding cognition and emotion because of disability or old age CATEGORIES 0 Not applicable 1 Need fully met for non personal assistance 2 Need partly met for non personal assistance 3 Need not met at all for non personal assistance LABEL Extent to which need for non personal activity assistance met cognition and emotion included POPULATION All persons with a disability or aged 60 or over living in households who need assistance with a non personal activity because of disability or o
116. PULATION All persons with a disability who need aid s for moving around excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses other mobility aid s 2 Does not use other mobility aid s LABEL Whether uses braces belts or corsets for moving around POPULATION All persons with a disability who need aid s for moving around excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses braces belts or corsets 2 Does not use braces belts or corsets LABEL Whether uses built up shoe s for moving around POPULATION All persons with a disability who need aid s for moving around excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses built up shoe s 2 Does not use built up shoe s LABEL Whether uses calipers or splints for moving around POPULATION All persons with a disability who need aid s for moving around excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses calipers or splints 2 Does not use calipers or splints LABEL Whether uses cane for moving around POPULATION All persons with a disability who need aid s for moving around excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses cane e g sonar 2 Does not use cane e g sonar LABEL Whether uses crutches f
117. RS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeeveeeeeeee eee eee eee eee eee eee eee eee eee eee eee ee eee ee em em em ee eee eee eC ee em oO ee Ole EMPLOYMENT LABOUR 9000 Labourers and Related Workers nfd FORCE ITEMS continued 9100 Cleaners nfd 9110 Cleaners nfd 9111 Cleaners 9200 Factory Labourers nfd 9210 Process Workers nfd 9211 Engineering Production Process Workers 9212 Product Assemblers 9213 Meat and Fish Process Workers 9214 Other Food Factory Hands 9215 Wood Products Factory Hands 9219 Other Process Workers 9220 Product Packagers nfd 9221 Hand Packers 9222 Packagers and Container Fillers 9900 Other Labourers and Related Workers nfd 9910 Mining Construction and Related Labourers nfd 9911 Mining Support Workers and Driller s Assistants 9912 Earthmoving Labourers 9913 Paving and Surfacing Labourers 9914 Survey Hands 9915 Railway Labourers 9916 Construction and Plumber s Assistants 9917 Concreters 9918 Electrical and Telecommunications Trades Assistants 9919 Other Mining Construction and Related Labourers 9920 Agricultural and Horticultural Labourers nfd 9921 Farm Hands 9922 Nursery and Garden Labourers 9929 Other Agricultural and Horticultural Labourers 9930 Elementary Food Preparation and Related Workers nfd 9931 Kitchenhands 9932 Fast Food Cooks 9933 Food Trades Assistants 9990 Miscellaneous Labourers and Related Workers nfd 9991 Garbage Collectors
118. SER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevovoeveveeeeeeeeeeeeeeeeee ee eee eee eee eee eee ee eee eee eee ee ee eo mee eee mee eC ee oO eee Ole PRIMARY CARERS TYPE OF ASSISTANCE PROVIDED continued eo eres eseeereceeeeeeeeeeeeeeeeee 1 Usually assists with letter writing 2 Does not usually assist with letter writing LABEL Whether primary carer usually assists main recipient of care with light housework POPULATION All primary carers living in households whose main recipient is aged 15 years or over personal interview CATEGORIES 0 Not applicable 1 Usually assists with light housework 2 Does not usually assist with light housework LABEL Whether primary carer usually assists main recipient of care with manipulating limbs or exercising POPULATION All primary carers living in households whose main recipient is aged 5 or over personal interview CATEGORIES 0 Not applicable 1 Usually assists with manipulating or exercising muscles and limbs 2 Does not usually assist with manipulating or exercising muscles and limbs LABEL Whether primary carer usually assists main recipient of care with meal preparation POPULATION All primary carers living in households whose main recipient is aged 15 years or over personal interview CATEGORIES 0 Not applicable 1 Usually assists with meal preparation 2 Does not usually assist with meal preparation LABEL Whether primary carer usually assists or guides ma
119. TEGORIES 00 Not applicable 01 Higher degree 02 Post graduate diploma 03 Bachelor degree 04 Undergraduate diploma 05 Associate diploma 06 Skilled vocational qualifications 07 Basic vocational qualifications 08 Uncodable or Inadequately described 09 Certificate of less than one semester 10 Secondary school certificate post school qual 99 Not stated LABEL Main field of highest educational attainment ASCED POPULATION All persons aged 15 or over living in households with educational attainment CATEGORIES 00 Not applicable 01 Natural and physical sciences 02 Information technology 03 Engineering and related technologies 04 Architecture and building 05 Agriculture environmental and related studies 06 Health 07 Education 08 Management and commerce 09 Society and culture 10 Creative arts 11 Food hospitality and personal services 12 Mixed field programmes 13 Field not determined LABEL Main field of highest non school qualification POPULATION All persons aged 15 or over living in households who have completed a non school qualification CATEGORIES 00 Not applicable 01 Natural and physical sciences 02 Information technology 03 Engineering and related technologies 04 Architecture and building 05 Agriculture environmental and related studies 06 Health 07 Education 08 Management and commerce 09 Society and culture 10 Creative arts 11 Food hospitality and personal services 12 Mixed field programmes 13 Field not dete
120. TEGORIES 001 120 LABEL Age of person POPULATION All persons CATEGORIES Continuous LABEL Age of youngest dependent child in family POPULATION All families living in households in private dwellings CATEGORIES 00 00 01 01 02 02 03 03 04 04 05 05 Coo ooo ooo OOOOH HEHEHE HEHEHE EEE EEE EEE HEHEHE HEHEHE HEHEHE HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HEHEHE SESH HOHE HEE EEE EEO OE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 APPENDIX DATA ITEM LIST continued eovovoeceveveveeeveeeeeeeeeeeee ee ee eee eee eee ee eee eee eee eee eee eee eee eee eee eee ee eeeee DEMOGRAPHICS continued 06 06 07 07 08 08 09 09 10 10 11 11 12 12 13 13 14 14 15 15 16 16 17 17 18 18 19 19 20 20 21 21 22 22 23 23 24 24 99 Not applicable LABEL Characteristics of child in family POPULATION All children in families living in households in private dwellings CATEGORIES 0 Not applicable Child under 15 Child aged 15 24 Full time employed not in full time study Child aged 15 24 Full time student not in full time employment Child aged 15 24 Full time employed and full time student WR Ww Ne Child aged 15 24 Neither full time student or full time employed 6 Child aged 25 or over LABEL Country of birth POPULATION All persons CATEGORIES 0000 Inadequately Described 0001 At Sea 0002 Not Elsewhere Classified 0003 Not Stated 0004 Unknown for use in economic statistics the destination or
121. TEGORIES 0 None 1 One 2 Two 9 Not applicable LABEL Number of informal sources of health care assistance POPULATION All persons aged 5 years and over with a disability living in households who need assistance with health care CATEGORIES 0 None 1 One 2 Two 3 More than two 9 Not applicable LABEL Type of health care assistance received POPULATION All persons aged 5 years and over with a disability living in households who receive assistance with health care CATEGORIES 0 Not applicable 1 None 2 Informal only 3 Formal only 4 Informal and formal ASSISTANCE RECEIPT OF LABEL Extent to which need for housework assistance received met ASSISTANCE WITH POPULATION All persons aged 15 or over with a disability or aged 60 or over living in HOUSEWORK households who receive assistance with housework because of disability or old age CATEGORIES 0 Not applicable 1 Fully 2 Partly 3 Notatall LABEL How became aware of main source of housework assistance POPULATION All persons aged 15 or over with a disability or aged 60 or over living in households who receive assistance with housework because of disability or old age CATEGORIES 0 Not applicable 1 Friend or relative 2 Phone book newspaper or advertisement CoCo ooo ooo HEHEHE EEE HEHEHE EEE EEE HEHEHE HEHEHE HEHEHE HEHEHE HEHE HEHE HHH HEHEHE HEH HHH HHH HHH HHH HHH HEHEHE HEHEHE HHO EEO EOE ES 60 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431
122. TEGORIES 0 None 1 One 2 Two 3 Three 4 Four 5 Five 6 Six 9 Not applicable COCO o ooo HE HEHEHE HEHEHE HEHE HHH HEHE HEHEHE HHH HHH HHH HHH HOES HEHEHE HEHEHE HEHEHE OOOO OE 40 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevovoeeveeveeeeeeeeeeee eee eee eee eee eee eee eee eo eee em ee em ee ee eee eC mee ee em ee em em eo eC em ee he hele ASSISTANCE NEED FOR LABEL Number of activities for which assistance is always needed because of disability ASSISTANCE SUMMARY or age households continued POPULATION All persons with a disability or aged 60 or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 00 01 02 03 04 05 06 07 08 09 10 11 12 13 14 15 16 17 18 19 20 21 22 23 99 None One Two Three Four Five Six Seven Eight Nine Ten Eleven Twelve Thirteen Fourteen Fifteen Sixteen Seventeen Eighteen Nineteen Twenty Twenty one Twenty two Twenty three Not applicable LABEL Number of activities for which assistance is needed because of disability or age establishments POPULATION All persons living in a health establishment who need assistance CATEGORIES 0 O Auv KRW DN e None One Two Three Four Five Six Not applicable LABEL Number of activities for which assistance is needed because of disability or age households POPU
123. TEGORIES 0 Not applicable 1 Household has a child with a disability 2 Household does not have a child with a disability LABEL Whether a household has a person with a disability POPULATION All households CATEGORIES 0 Not applicable 1 Household has a person with a disability 2 Household does not have a person with a disability CoCo ooo ooo HOHE EEE EEEHEHHSEHHEHHEH HEHEHE ET OHHH EHH HEHEHE HEHEHE HEHEHE HHH HHH HHH HHH HEH HHH HEHEHE HEHEHE EOE OOS 162 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeceveveveeeeeeeeeeeeeeee eer eee eee ee eee ee eee eee eee eee eee meee em ee meee eee eC he eC em oO ee ele POPULATIONS continued PRIMARY CARERS ASSISTANCE PROVIDED eo eres esreeeereceseeeeeeeeeeees LABEL Whether an income unit has a person with a disability POPULATION All income units in households CATEGORIES 0 Not applicable 1 Income unit has a person with a disability 2 Income unit does not have a person with a disability LABEL Whether primary carer s main recipient of care is their spouse partner POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Primary carers whose main recipient of care is their spouse partner 2 Primary carers whose main recipient of care is not their spouse partner LABEL Place of residence of recipient s of care POPULATION All carers living in households CATEGORIES 0 Not applicab
124. TY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 177 APPENDIX DATA ITEM LIST continued eoevovoeveveveveeeeeeeeeeee ee eee eee eee eee eee eee eee eee ee eee eee meee em eo em eee em ee eee em eee Ole PRIMARY CARERS SUPPORT LABEL Whether primary carer used in home respite in the last three months ACCESS continued POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Used in home respite in the last three months 2 Has used respite care in the last three months but not in home respite 3 Has used respite care but not in the last three months 4 Has never used respite care LABEL Whether primary carer used other respite service in the last three months POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Used respite service other than day care centre in home or residential in the last three months 2 Has not used respite service other than day care centre in home or residential in the last three months 3 Used respite care but not in the last three months 4 Has never used respite care LABEL Whether primary carer used residential respite care in the last three months POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Used residential respite in the last three months 2 Has used respite care in the last three months but not residential respite 3 Has used respite care but not in the last three months 4 Has never used respite care
125. Uses modified car or car aid s 2 Does not use modified car or car aid s LABEL Whether uses scooter for moving around POPULATION All persons with a disability who need aid s for moving around excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses scooter 2 Does not use scooter LABEL Whether uses seating or bedding aid s POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses seating or bedding aid s 2 Does not use seating or bedding aid s but uses other aid s 3 Does not use aid s LABEL Whether uses walking frame for moving around POPULATION All persons with a disability who need aid s for moving around excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses walking frame 2 Does not use walking frame LABEL Whether uses walking stick for moving around POPULATION All persons with a disability who need aid s for moving around excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses walking stick 2 Does not use walking stick CoCo ooo ooo OHHH H HEHEHE HEHEHE HEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HOHE HEHEHE HEHEHE HOHE HEE EEO EEO EE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 33 APPENDIX DATA ITEM LIST continued eoevovoevev
126. Whether visited relatives or friends during last fortnight POPULATION All persons with a disability or aged 60 or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Visited relatives or friends 2 Did not visit relatives or friends 3 Does not leave home LABEL Whether went shopping during last fortnight POPULATION All persons with a disability or aged 60 or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Went shopping 2 Did not go shopping 3 Does not leave home LABEL Whether went to restaurant or club during last fortnight POPULATION All persons with a disability or aged 60 or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Went to restaurant or club 2 Did not go to restaurant or club 3 Does not leave home LABEL Household weight POPULATION All households CATEGORIES Continuous LABEL Person weight POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 01 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 01 Household POPULATION All households CATEGORIES Continuous Cee e ee eeeseseeeeseeeeseseeeeeeeeeeeEeeEEEeEEFEE EEE EEE HEHEHE HEHEHE EEO EEO EEE E EEE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0
127. a disability excluding those with a hearing or speech loss only living in households and all persons with a disability living in healthestablishments excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Able to bend and pick up an object from the floor without assistance 2 Unable to bend and pick up an object from the floor without assistance CORE ACTIVITY LIMITATION LABEL Level of assistance needed with bladder or bowel control because of condition SELF CARE POPULATION All persons with a disability CATEGORIES 0 Not applicable 1 Always needs help or supervision with bladder or bowel control 2 Sometimes needs help or supervision with bladder or bowel control 3 Needs no help with bladder or bowel control but has difficulty 4 Has no difficulty with bladder or bowel control LABEL Level of assistance needed with dressing because of disability POPULATION All persons with a disability CATEGORIES 0 Not applicable 1 Always needs help or supervision with dressing 2 Sometimes needs help or supervision with dressing 3 Needs no help with dressing but has difficulty 4 Has no difficulty with dressing CoCo ooo ooo OHHH HOE ESE HOSE HEHEHE EEE EEE HEHE HHS HEHEHE HEHEHE HEHEHE HHH HHH HEHEHE HHH HHH HHH HHH HHS HEHHHE EHH E OOOO EE 92 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeeveeveeeeeeeeeeeeeeee ee eee
128. a household and attending school 2 Notin this population LABEL All persons aged 5 18 years POPULATION All persons CATEGORIES 1 Aged 5 18 years 2 Notin this population LABEL All persons aged 5 20 with a disability living in a household and attending school POPULATION All persons CATEGORIES 1 Aged 5 20 with a disability living in a household and attending school 2 Notin this population LABEL All persons aged 65 years and over POPULATION All persons CATEGORIES 1 Aged 65 years and over 2 Notin this population LABEL All persons aged under 15 years POPULATION All persons CATEGORIES 1 Aged under 15 years 2 Notin this population LABEL All persons living in establishments POPULATION All persons CATEGORIES 1 Living in an establishment 2 Notin this population LABEL All persons with a disability POPULATION All persons CATEGORIES 1 Has a disability 2 Notin this population CoCo eo eee eee eae H HOH HHO HEHEHE HHH HEHEHE EHH HEHE HHH HEHEHE HHH HHH HEHEHE HEHEHE EOE E EEE EEE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 161 APPENDIX DATA ITEM LIST continued eovovoeceveeveeeveeeeeeeeeeeee ee eee eee eee eo eee eee eee eee eee eee eee meee mee em meee meee mem ee Oe POPULATIONS continued LABEL Persons aged 65 years and over living in households POPULATION All persons CATEGORIES 1 Persons aged 65 years and over living in households 2 Persons not in this populati
129. a main recipient The assistance has to be ongoing or likely to be ongoing for at least six months and be provided for one or more of the core activities of communication mobility and self care Meal preparation includes preparing ingredients cooking food The median value is that value which divides the population into two equal parts one half having values lower than the median and one half having values higher than it See Core activity limitation Mobility comprises the following tasks getting into or out of a bed or chair moving about the usual place of residence going to or getting around a place away from the usual residence walking 200 metres walking up and down stairs without a handrail bending and picking up an object from the floor using public transport The first three tasks contribute to the definitions of profound and severe core activity limitation See Core activity limitation A person with one or more disabilities or aged 60 years and over is identified as having a need for assistance with an activity if because of their disability or age they report that they need help or supervision with at least one of the specified tasks constituting that activity Need is not identified if the help or supervision is required because the person has not learned or has not been accustomed to performing that activity The person is considered to need assistance whether or not assistance is actual
130. able to answer the survey for themselves understanding family friends or strangers being understood by family friends or strangers Carer identification Scope Persons in private dwellings Persons in cared accommodation Persons in other non private dwellings Collection Household component method Personal interview Cared accommodation component Personal interview 1988 Communication as in 1981 For people restricted in communication use of sign language as a severity criterion People who received help with self care mobility or communication activities identified their principal care provider if in the same household confirmed by carer Some information collected from care recipients on informal providers of any level of care As for 1981 As for 1981 As for 1981 1993 Communication as in 1988 Co resident principal carers identified as in 1988 Principal carers for someone in another household were identified ARA and confirmed by carer As in 1988 As for 1981 As for 1981 Mail back form completed by establishment 1998 2003 Communication as in 1988 For people restricted in communication other non spoken communication as a severity criterion ARA identification of principal carers for recipients either in the same or another household confirmed by carer name changed to primary carer to indicate non comparable population Informal providers of any
131. age CATEGORIES 0 Not applicable Friend or relative Phone book newspaper or advertisement Local health centre or clinic Government department Local council General practitioner Counsellor social worker or welfare officer Other health worker 9 Other ANA W KW DY e LABEL Main reason has unmet need for formal transport assistance POPULATION All persons aged 16 or over with a disability or aged 60 or over living in households who receive assistance with transport because of disability or old age CATEGORIES 0 Not applicable Did not know of service 2 Need not important enough 3 Wont ask because of pride 4 Unable to arrange service Coo oo ooo OOOOH HOHE HEHEHE EEE EEE EEE HEHEHE HHH HHH HEHEHE EEE HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HHH HEHEHE SHH HEHEHE EEO EEO OE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 69 APPENDIX DATA ITEM LIST continued eovovoeveeeveeeeeeeeeeee eee eee eee eee eee eee eee eee eee eee eee eee eee eee ewe ee eee eee eeee ASSISTANCE RECEIPT OF 5 No service available ASSISTANCE WITH 6 Not eligible for service TRANSPORT continued 7 Service costs too much 8 Service does not provide sufficient hours 9 Other LABEL Main reason has unmet need for informal transport assistance POPULATION All persons aged 16 or over with a disability or aged 60 or over living in households who receive assistance with transport because of disability or old age CATEGORIES 0 Not a
132. aid s for moving around place of residence POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses aid s for moving around residence 2 Does not use aid s for moving around residence but uses other aid s 3 Does not use aid s LABEL Whether uses aid s for moving around places other than place of residence POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses aid s for moving around places other than residence 2 Does not use aid s moving around places other than residence but uses other aid s 3 Does not use aid s CoCo oo ooo OOOOH EEE HSE HEHEHE HEHEHE EEE HEHEHE HEHEHE HEHEHE HEHEHE HEHEHE HEHEHE HH HH HHH HHH HHH HEH HEHEHE EHH HEHEHE EEO EEE OE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 31 APPENDIX DATA ITEM LIST continued eoevovoeveveveveeeveeeeeeeee ee eee eee eee eee eee eee eee eee ee eee eee eee mee eee mee meee em eee eee AIDS MOBILITY continued LABEL Whether uses an ejector chair for moving around POPULATION All persons with a disability who need aid s for moving around excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses an ejector chair 2 Does not uses an ejector chair LABEL Whether uses any other aid s for moving around PO
133. ain source of self care assistance POPULATION All persons with a disability living in households who received assistance with self care CATEGORIES 0 Not applicable Friend or relative Phone book newspaper or advertisement Local health centre or clinic Government department Local council General practitioner Counsellor social worker or welfare officer Other health worker 9 Other o N AVN KW NY LABEL Main reason has unmet need for formal self care assistance POPULATION All persons with a disability living in households who received assistance with self care CATEGORIES 0 Not applicable Did not know of service Need not important enough Wont ask because of pride Unable to arrange service No service available Not eligible for service Service costs too much o NAV KW DY e Service does not provide sufficient hours 9 Other LABEL Main reason has unmet need for informal self care assistance POPULATION All persons with a disability living in households who received assistance with self care CATEGORIES 0 Not applicable 1 Does not need more help from family or friends 2 Has not asked family or friends 3 Needs more help than family friends can provide 4 Family friends not available too far away 5 Other LABEL Number of formal sources of self care assistance POPULATION All persons with a disability living in households who need assistance with self care CATEGORIES 0 None 1 One CoCo ooo ooo EOE E
134. al assistance from a person at school 07 Uses special equipment or modifications at school 08 Uses special arrangements at school or institution 09 Not attending school for reasons other than disability 10 Attending and no educational restriction 11 Not applicable LABEL Type of difficulty experienced at school or institution because of condition multiple response POPULATION All persons aged 5 or over living in households currently attending school or studying excludes persons with a non restricting disfigurement or deformity only CATEGORIES 01 Access difficulties 02 Difficulty sitting 03 Hearing problems 04 Sight problems 05 Communication difficulties 06 Learning difficulties 07 Intellectual difficulties 08 Fitting in socially 09 Sports participation 10 Other 11 No difficulties 12 Not applicable LABEL Type of support or special arrangements provided at school or institution multiple response POPULATION All persons aged 5 or over with a disability living in households and currently attending school or studying excludes persons with a non restricting disfigurement or deformity only CATEGORIES 1 Special equipment including computer Special tuition Special assessment procedure Counsellor disability support person Special access arrangements Special transport arrangements Other No support received o NAVN KW DY 9 Not applicable LABEL Whether attends special school because of condition POPULATI
135. ale partner employed full time male partner employed part time 35 Female partner employed full time male partner unemployed 36 Female partner employed full time male partner not in the labour force 41 Both partners employed part time 51 Both partners unemployed 61 Both partners not in the labour force 71 Male partner employed part time female partner unemployed 72 Male partner employed part time female partner not in the labour force 73 Female partner employed part time male partner unemployed 74 Female partner employed part time male partner not in the labour force 81 Male partner unemployed female partner not in the labour force 82 Female partner unemployed male partner not in the labour force 99 Not stated LABEL Labour force status and full time part time status POPULATION All persons aged 15 or over living in households CATEGORIES 0 Not applicable Employed working full time Employed working part time Unemployed looking for full time work A WO Ne Unemployed looking for part time work 5 Notin the labour force LABEL Main reason for not looking for work POPULATION All persons aged 15 or over living in households and not working and not seeking work CATEGORIES 00 Not applicable 01 Retired 02 Study or returning to study 03 Own ill health or disability 04 Children too young or prefers to look after them 05 Too old 06 Does not need or want to work 07 Someone else s ill health or disability 08 Other family considerations 09 Pen
136. amily worker LABEL Whether has more than one job POPULATION All persons aged 15 or over living in households and employed CATEGORIES 0 Not applicable 1 Has more than one job 2 Has one job FAMILY LEVEL LABEL Flag to indicate whether family contains person s out on scope or coverage POPULATION All families living in households CATEGORIES 0 Not in this population 1 Person s from this level out on scope or coverage LABEL Record level identifier for SuperCROSS Family level POPULATION All families living in households CATEGORIES Identifier HOUSEHOLD LEVEL LABEL Flag to indicate whether hhold contains person s out on scope or coverage POPULATION All households CATEGORIES 0 Not in this population 1 Person s from this level out on scope or coverage LABEL Record level identifier for Households for SuperCROSS POPULATION All households CATEGORIES Identifier HOUSING FAMILY LEVEL LABEL House moves because of age or condition family POPULATION All families living in households containing person s with a disability or aged 60 or over CATEGORIES 0 Not applicable 1 Had to move house once 2 Had to move house more than once 3 Have not had to move house CoCo ooo ooo H HEHEHE HEHEHE HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HEH HHH HEHEHE HEHEHE OOOO OS 138 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevovoeveveeeveveeeeeeeeeeeeeeee eee e
137. ant enough 1 2 3 Wont ask because of pride 4 Unable to arrange service 5 No service available CoCo eee eee eae Heo EOE OOH EH HEHEHE HOHE HEHEHE HEH HHH HHH HHH HHH HEHEHE HEHEHE EEE EEE EEE OES 56 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 ASSISTANCE RECEIPT OF ASSISTANCE WITH COGNITION OR EMOTION continued ASSISTANCE RECEIPT OF ASSISTANCE WITH COMMUNICATION APPENDIX DATA ITEM LIST continued eovovoeeveeveeeveeeeeeeee ee eee eee eee eee eee eee eee eee eee eee eee eee eee eee eee eee eeeeee o N A 9 LABEL Not eligible for service Service costs too much Service does not provide sufficient hours Other Main reason has unmet need for informal cognitive emotional support assistance POPULATION All persons with a disability living in households who need assistance with cognitive or emotional support tasks CATEGORIES 0 Not applicable 1 Does not need more help from family or friends 2 Has not asked family or friends 3 Needs more help than family friends can provide 4 Family friends not available too far away 5 Other LABEL Number of formal sources of cognitive emotional support assistance POPULATION All persons with a disability living in households who need assistance with cognitive or emotional support tasks CATEGORIES 0 None 1 One 2 Two 9 Not applicable LABEL Number of informal sources of cognitive emotional support assistance POPULATION
138. applicable 1 No loss of sight 2 Loss of sight corrected by glasses or contact lenses 3 Partial loss of sight not corrected by glasses or contact lenses 4 Total loss of sight Ce eee eee sreseeeeeseeeeseseeeeeeeeEeeeeEEEE EEF E LEH EHH OEE HEHEHE EEE EEO ESE EEO ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 155 APPENDIX DATA ITEM LIST continued eovoveeveeeveeeeeeeeeeee eee eee eee eee eee eo eee eee eee eee eee em em eee em eo em ee ee ee eC eC eC oO eo ee ee MAIN RECIPIENTS OF CARE CONDITIONS IMPAIRMENTS AND LIMITATIONS continued eo eee eeereeeeesreseeeeeeeeeeeeees LABEL Whether main recipient of care has shortness of breath or difficulty breathing POPULATION All primary carers living in households whose main recipient of care is a co resident CATEGORIES 0 Not applicable 1 No shortness of breath or difficulty breathing 2 Has shortness of breath or difficulty breathing and is limited or restricted 3 Has shortness of breath or difficulty breathing but is not limited or restricted LABEL Whether main recipient of care has speech difficulties POPULATION All primary carers living in households whose main recipient of care is a co resident CATEGORIES 0 Not applicable 1 No loss of speech 2 Partial loss of speech 3 Total loss of speech LABEL Whether main recipient of care is limited or restricted in everyday activities by hearing loss POPULATION All primary carers living in househo
139. ardening tasks such as Coe eee eee eesreeeeeseeseseeeeeeeeeeEeFEeEEE EL ELEL ETE HEHEHE ETE EEE HEE E DESEO EO EE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 201 GLOSSARY continued eoevovoeeveeveeeeeeeeeeeeeee eee eee eee eee eee eee ee eee eee eee eee eee eee eee eee eee eee eee Property maintenance changing light bulbs tap washers car registration stickers continued making minor home repairs mowing lawns watering pruning shrubs light weeding planting removing rubbish Quintile When persons or any other units are ranked from the lowest to the highest on the basis of some characteristic such as their household income they can then be divided into equal sized groups When the population is divided into five equally sized groups the groups are called quintiles Receipt of assistance Receipt of assistance is applicable to persons with one or more disabilities or aged 60 years and over who reported that they needed help or supervision with at least one of the specified tasks comprising an activity The source of assistance may be informal or formal but does not include assistance from the use of aids or equipment Remoteness The ABS has defined Remoteness within the Australian Standard Geographical Classification ASGC The ASGC Remoteness Structure is defined only in census years commencing with the census year 2001 and includes all Collection Districts CDs across Australia The
140. around places away from home 10 Communication 11 Managing health conditions using medical aids 12 Does not use aids or equipment 13 Not applicable LABEL Type s of communication aid s used multiple response POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 01 Hearing aid 02 Cochlear implant 03 Other hearing aid s 04 Low technology reading or writing aids 05 Low technology speaking aids 06 High technology reading or writing aids 07 High technology speaking aids 08 Mobile or cordless telephone 09 Fax machine 10 Reading writing or speaking aid not specified 11 Does not use a communication aid 12 Not applicable LABEL Type s of mobility aid s used multiple response POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 01 Canes Sonar canes etc 02 Crutches 03 Walking frame 04 Walking stick 05 Wheelchair Manual 06 Wheelchair Electric 07 Scooter 08 Specially modified car or car aid s 09 Braces or belts or corsets 10 Built up shoe s 11 Calipers or splints 12 Ejector chair 13 Other mobility aid s 14 Does not use a mobility aid 15 Not applicable LABEL Whether uses any aid s or equipment POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses aid s 2 Does not use aid s
141. ary POPULATION All primary carers living in households whose main recipient of care is a co resident CATEGORIES Continuous LABEL Whether main recipient of care has a disfigurement or deformity POPULATION All primary carers living in households whose main recipient of care is a co resident CATEGORIES 0 Not applicable 1 Has a disfigurement or deformity 2 Does not have a disfigurement or deformity LABEL Whether main recipient of care has a nervous or emotional condition POPULATION All primary carers living in households whose main recipient of care is a co resident CATEGORIES 0 Not applicable 1 Has a nervous or emotional condition and is limited or restricted 2 Has a nervous or emotional condition but is not limited or restricted 3 Does not have a nervous or emotional condition LABEL Whether main recipient of care has additional long term conditions POPULATION All primary carers living in households whose main recipient of care is a co resident CATEGORIES 0 Not applicable 1 Does not have any other long term condition 2 Has other long term condition s and is limited or restricted 3 Has other long term condition s but is not limited or restricted LABEL Whether main recipient of care has blackouts fits or loss of consciousness POPULATION All primary carers living in households whose main recipient of care is a co resident CATEGORIES 0 Not applicable 1 Has blackouts fits or loss of consciousness 2 Does not have
142. asks 2 Does not usually assist with communication tasks LABEL Whether primary carer usually assists main recipient of care with dressing POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Usually assists with dressing 2 Does not usually assist with dressing LABEL Whether primary carer usually assists main recipient of care with eating or feeding POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Usually assists with eating or feeding 2 Does not usually assist with eating or feeding LABEL Whether primary carer usually assists main recipient of care with health care tasks POPULATION All primary carers living in households whose main recipient is aged 5 or over personal interview CATEGORIES 0 Not applicable 1 Usually assists with health care tasks 2 Does not usually assist with health care tasks CoCo ooo eo EHEHEHEHEHEHEHE HEHEHE HHH HHS HEHEHE HHH HHH HHH HHH HHH HEHEHE HEHEHE HOHE HEHEHE OOOO OS 164 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeveveeveeeeeeeeeeee eee eee eee eee eee eee ee eee eee eee eee eee eee eee eee eee eee eee eee PRIMARY CARERS ASSISTANCE PROVIDED continued eo eres esreeeereceseeeeeeeeeeees LABEL Whether primary carer usually assists main recipient of care with household tasks POPULATION All primary carers living in households whose main recipient
143. ate places of residence at the time of the survey including dwellings in retirement villages which had no nursing home or hospital care on site non private dwellings such as hotels motels boarding houses educational and religious institutions guest houses construction camps short term caravan parks youth camps and camping grounds staff quarters and self care components of retirement villages which had a cared accommodation component The cared accommodation component covered residents of hospitals nursing homes aged care and disability hostels and other homes such as children s homes who had been or were expected to be living there for at least three months The survey included people in both urban and rural areas in all States and Territories except for those living in remote and sparsely settled parts of Australia For most individual States and Territories the exclusion of these people has only a minor impact on any aggregate estimates that are produced because they only constitute a small proportion of the population However this is not the case for the Northern Territory where such persons account for over 20 of the population The survey included people in both private and non private dwellings including people in cared accommodation establishments but excluding those in gaols and correctional institutions The scope of the survey was all persons except m visitors to private dwellings certain diplomatic personnel o
144. ative in same dwelling 06 Landlord is other person in same dwelling 07 Landlord is owner manager of caravan park 08 Landlord is employer Defence Housing Authority 09 Landlord is employer Government 10 Landlord is other employer 11 Landlord is housing co operative community church group 12 Landlord is other LABEL Main reason for moving house POPULATION All persons with a disability or aged 60 or over living in private dwellings who moved because of disability or old age excludes persons with a non restricting disfigurement or deformity only CATEGORIES 00 Not applicable 01 Due to own age or condition 02 To improve own health CoCo ooo ooo OOOH EEE HEHEHE EEE HEHEHE EEE HEH HSH HEHEHE EHH HEHEHE HHH HHH HEHEHE HEHEHE HHH HHH HHH HHH HEHEHE EHH HEHEHE EEO E OEE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 139 APPENDIX DATA ITEM LIST continued eoeovoeveveveveeeeeeeeeeee ee eee eee eee eee eee eee eee eee eee eee eee eee ee eee eee eee eee eeee HOUSING PERSON LEVEL 03 To save money or cheaper continued 04 To live with family or friends 05 To live closer to family 06 For more or better personal care at new home 07 To be closer to medical or support services or facilities 08 To be closer to other services or facilities eg work services leisure 09 Safer environment 10 Toa dwelling more suitable for condition s 11 Family changes or house too big 12 Carer moved or different carer 13 For oth
145. blackouts fits or loss of consciousness LABEL Whether main recipient of care has chronic or recurrent pain or discomfort POPULATION All primary carers living in households whose main recipient of care is a co resident CATEGORIES 0 Not applicable 1 Has no chronic or recurrent pain or discomfort CoCo ooo oO EEHEHH SESH HEH HEHEHE HEHEHE HHH HEHEHE HEHEHE HEHEHE HHH HHH HHH HEHEHE HEHEHE OHHH EEE OEE EES 154 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevoveeveeeveeeveeeeeeeee ee ee ee eee eee eee eee eee ee ee eee em eo eee em eee eee eee ee em oO oO em em eo ee ele MAIN RECIPIENTS OF CARE CONDITIONS IMPAIRMENTS AND LIMITATIONS continued eo eres eseeereceeeeeeeeeeeeeeeeee 2 Has chronic or recurrent pain or discomfort and is limited or restricted 3 Has chronic or recurrent pain or discomfort but is not limited or restricted LABEL Whether main recipient of care has difficulty gripping or holding things POPULATION All primary carers living in households whose main recipient of care is a co resident CATEGORIES 0 Not applicable 1 Has difficulty gripping or holding things 2 Has no difficulty gripping or holding things LABEL Whether main recipient of care has difficulty learning or understanding things POPULATION All primary carers living in households whose main recipient of care is a co resident CATEGORIES 0 Not applicable 1 Does have diffic
146. ble and are preceded by a symbol Additional sources of error which are not related to sampling variability are referred to as non sampling errors This type of error is not specific to sample surveys and can occur in a census The main sources of non sampling error are errors related to scope and coverage a response errors such as incorrect interpretations or wording of questions interviewer bias etc m processing errors such as mistakes in the recording or coding of the data obtained and non response bias Each of these sources of error is discussed in the following paragraphs Some dwellings may have been incorrectly included or excluded from this survey An example of this form of error might be an unclear distinction concerning the private and non private status of dwellings All efforts were made to overcome such situations by constant updating of lists both before and during the survey Ce ee eee eeeeeeeeeseeeeseseeeeeeeEeEee Ee EEeEE FETE LEH HEHEHE HEHEHE HEHEHE HOE EEE EEOE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 19 DATA QUALITY continued eoeovoeeveeeveeeeeeeeeeee eee eee eee eee eee eee eee eee eee eee eee eee eee eee eee eee eee eeeee Errors related to scope and coverage continued Response errors Processing errors Non response bias There are also difficulties in applying the coverage or scope rules Particular attention was paid to questionnaire design and
147. cable 1 Usually assists with healthcare other than footcare 2 Does not usually assist with healthcare other than footcare LABEL Whether primary carer usually assists main recipient of care with heavy housework POPULATION All primary carers living in households whose main recipient is aged 15 years or over personal interview CATEGORIES 0 Not applicable 1 Usually assists with heavy housework 2 Does not usually assist with heavy housework LABEL Whether primary carer usually assists main recipient of care with home maintenance POPULATION All primary carers living in households whose main recipient is aged 15 years or over personal interview CATEGORIES 0 Not applicable 1 Usually assists with home maintenance 2 Does not usually assist with home maintenance LABEL Whether primary carer usually assists main recipient of care with laundry POPULATION All primary carers living in households whose main recipient is aged 15 years or over personal interview CATEGORIES 0 Not applicable 1 Usually assists with laundry 2 Does not usually assist with laundry LABEL Whether primary carer usually assists main recipient of care with letter writing POPULATION All primary carers living in households whose main recipient is aged 15 years or over personal interview CATEGORIES 0 Not applicable Ce ee eee eeeeeseeeseeeeseseseeeeeeeeeeeeEeEEeFEeFEeeEEEEE HEHEHE EEE HELE EEE EEE EEE EES 180 ABS DISABILITY AGEING AND CARERS AUSTRALIA U
148. care in last 3 months but needs it WN mR CW Ne Has never received respite care and does not need or want it 6 Has never received respite care but needs it LABEL Primary carer use of respite care POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Used respite care in the last three months 2 Used respite care but not in the last three months 3 Never used respite care LABEL Relationship of fall back carer to main recipient of care POPULATION All primary carers living in households CATEGORIES 00 Not applicable 01 Spouse or partner 02 Father 03 Mother 04 Son 05 Daughter 06 Son in law 07 Daughter in law 08 Other male relative 09 Other female relative 10 Friend or neighbour male 11 Friend or neighbour female 12 Does not have a fall back carer or Does not know LABEL Relationship of main source of assistance to primary carer POPULATION All primary carers living in households CATEGORIES 00 Not applicable COC eee ooo oOo HH HEHEHE HEHEHE HE THEH EHH HHH HEHEHE HEHEHE HHH HHH HHH HOES HEHEHE EEE HEHEHE HEHEHE OOOO ES ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 175 APPENDIX DATA ITEM LIST continued eovoveeveeveeeeeeeeeeee eee eee eee eee eee eee eee ee eee ee em ee em ee meee em ee Oe em em Ohm oO oe em em oO em eee PRIMARY CARERS ACCESS continued SUPPORT 01 02 03 04 05 06 07 08 09 10 11 12 13 Spouse or partner Fat
149. carer LABEL Weekly hours of care main recipient of care receives from primary carer POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Less than 20 hours 2 20 to less than 40 hours 3 40 hours or more 4 Not stated LABEL Whether primary carer usually speaks to main recipient of care in English POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Usually speaks in English 2 Does not usually speak in English LABEL Whether principal carer was nominated by more than one recipient of care in the same household POPULATION All principal carers living in households as identified by a co resident with a disability CATEGORIES 0 Not applicable 1 One recipient of care identified the principal carer 2 More than one recipient of care identified the principal carer CoCo ooo ooo EHO EE EEE HOES EEE EEE EE HEHEHE HHH HEHEHE HEHEHE HEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HEHEHE EEE HEHEHE OEE OEE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 173 APPENDIX DATA ITEM LIST continued eovovoeveveeveee eee eeeeee ee eee eee eee eee eee eee eee eee eee eee eee eee eee eee ee eee eee eeee PRIMARY CARERS SUPPORT LABEL Main reason looking at eligibility by primary carer did not lead to receipt of Carer ACCESS Payment POPULATION All primary carers living in households CATEGORIES 0 Not applicable Did not meet requirements for eligibility Dual eligib
150. ce with meal preparation because of disability or old age CATEGORIES 0 Not applicable 1 Fully 2 Partly 3 Notat all LABEL How became aware of main source of meal preparation assistance POPULATION All persons aged 15 or over with a disability or aged 60 or over living in households who receive assistance with meal preparation because of disability or old age CATEGORIES 0 Not applicable 1 Friend or relative 2 Phone book newspaper or advertisement 3 Local health centre or clinic 4 Government department 5 Local council 6 General practitioner 7 Counsellor social worker or welfare officer 8 Other health worker 9 Other LABEL Main reason has unmet need for formal meal preparation assistance POPULATION All persons aged 15 or over with a disability or aged 60 or over living in households who receive assistance with meal preparation because of disability or old age CATEGORIES 0 Not applicable 1 Did not know of service 2 Need not important enough 3 Wont ask because of pride 4 Unable to arrange service 5 No service available 6 Not eligible for service 7 Service costs too much 8 Service does not provide sufficient hours 9 Other LABEL Main reason has unmet need for informal meal preparation assistance POPULATION All persons aged 15 or over with a disability or aged 60 or over living in households who receive assistance with meal preparation because of disability or old age CATEGORIES 0 Not applicable 1 Does not need
151. classification of the population aged 15 years and over into employed unemployed or not in the labour force Non school qualifications are awarded for educational attainments other than those of pre primary primary or secondary education They include qualifications at the Postgraduate Degree Level Master Degree Level Graduate Diploma and Graduate Certificate Level Bachelor Degree Level Advanced Diploma and Diploma Level and Certificates I II II and IV levels Non school qualifications may be attained concurrently with school qualifications Responses have been coded according to the ABS Australian Standard Classification of Education ASCED 2001 cat no 1272 0 A person has a limitation if they have difficulty doing a particular activity need assistance from another person or use an aid Living arrangements refer to whether a person lives in a private dwelling cared accommodation or other non private dwelling For those living in private dwellings the survey determines whether a person lives alone with other family members or with other unrelated individuals eee eeeeessesreeesresreseseeeeeeeseeeeeee ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 199 GLOSSARY continued eovovoeveveeveeeeeeeeeeeeeeeee eee eee wee eee eee eee eee eo eee eee eee eee eee eee meee eee eee Living in households Long term health condition Main health condition Main job Main recipient of care Meal pre
152. commodation for the retired or aged self care 06 Hostel for the homeless night shelter or refuge 07 Hotel motel or other short term accommodation 08 Retired or aged accommodation self care 09 Religious and educational institution 10 Staff quarters guest house boarding house or other long term accommodation 11 Aboriginal settlement 12 Short term caravan park youth camp or camping ground 13 Other special dwelling LABEL Whether person is in accommodation for the retired or aged self care POPULATION All persons CATEGORIES 0 Not applicable Person is in a hospital general Person is in a hospital other Person is in home for the aged Person is in a home other Person is in accommodation for the retired or aged Person is in accommodation for the retired or aged self care special dwelling Person is in a accommodation for the retired or aged self care private dwelling o N AAN KW NY e Person is in other special dwelling S Person is in other private dwelling LABEL Whether private dwelling is in accommodation for the retired or aged self care POPULATION All private dwellings CATEGORIES 0 Not applicable 1 Private dwelling is in accommodation for the retired or aged self care 2 Private dwelling is not in accommodation for the retired or aged self care LABEL Whether private or special dwelling POPULATION All households CATEGORIES 0 Not applicable 1 Private dwelling 2 Special dwelling BACKGROUND GEOGR
153. ct of differential non response bias at the specific levels of disaggregation and also reduces sampling error This survey was also designed to produce estimates of numbers of households Only respondents living in private dwellings were given household weights The estimation procedures developed for the household estimates ensure that survey estimates of the Australian population of households conform to independent benchmarks of the Australian population of households as at June 2003 at state by part of state or territory by household composition level where household composition is determined by the number of adults and children in a household The benchmark used was all private dwelling households in Australia excluding those households in sparsely settled areas of the Northern Territory Expansion factors or weights were added to each respondent s record to enable the data provided by each household to be expanded to provide estimates relating to the whole household population within the scope of the survey The first step of the weighting procedure was to assign an initial household weight to each fully responding household The initial household weight was calculated as the inverse probability of the household s selection in the sample Then the initial household weights were calibrated to the set of household level benchmarks 22 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 SURVEY
154. d eovovoevveeveeeveeeeeeeeeeeee ee ee eee we ee eee ee ee oe eee ee em oO ee ee meee mee eee ee em eC oO em oe eo ee ee WEIGHTS continued LABEL Replicate Weights 14 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 14 Household POPULATION All households CATEGORIES Continuous LABEL Replicate Weights 15 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 15 Household POPULATION All households CATEGORIES Continuous LABEL Replicate Weights 16 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 16 Household POPULATION All households CATEGORIES Continuous LABEL Replicate Weights 17 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 17 Household POPULATION All households CATEGORIES Continuous LABEL Replicate Weights 18 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 18 Household POPULATION All households CATEGORIES Continuous LABEL Replicate Weights 19 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 19 Household POPULATION All households CATEGORIES Continuous CoCo Oooo EEH HEHEHE HEHEHE HEHE HHH H HEHEHE EHH EHH HHH HHH HHH HH HEHEHE HEH HEHEHE HEE EEE OOS 192 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevovoecveeveeeeeeeeeeeeee eee eee eee
155. d together for classification purposes Occupation was classified according to Australian Standard Classification of Occupations ASCO Second Edition 1997 cat no 1220 0 Older person in this survey refers to a person aged 60 years and over Information on the need for and receipt of assistance for housework meal preparation paperwork property maintenance and transport and on community participation is available from the survey for all persons aged 60 years and over regardless of whether they have a disability Non private dwellings other than cared accommodation are defined for this survey as hostels for the homeless hotels motels educational and religious institutions construction camps boarding houses staff quarters guest houses short stay caravan parks youth camps and camping grounds and self care units in a retirement village which may have cared accommodation on site An own account worker is a person who operates his or her own unincorporated economic enterprise or engages independently in a profession or trade and hires no employees This includes reading or writing tasks such as checking bills or bank statements writing letters filling in forms In the context of labour force statistics the participation rate for any group is the number of persons in the labour force i e employed persons plus unemployed persons expressed as a percentage of the population aged 15 years and over in the same group In
156. des Liechtenstein CeCe eee eee eee Heo HEHEHE EHH HEH HOE HEHEHE HEHEHE HHH HHH HOHE HHH HEHEHE HOHE E EOE EEE EEE EES ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 95 APPENDIX DATA ITEM LIST continued eoeovoeeveveveeeveeeeeeeeeeeee ee eee eee eee eee eee oe eee ee eee eee meee meee eee eee eC eee eee el DEMOGRAPHICS continued 0744 United States Miscellaneous Islands 0745 Wake Island 0746 Unallocated 0747 Zone of Coop A Timor Gap economic cooperation zone in the Timor Gap administered jointly by Australia and Indonesia 0901 New South Wales 0902 Victoria 0903 Queensland 0904 South Australia 0905 Western Australia 0906 Tasmania 0907 Northern Territory 0908 Australian Capital Territory 0909 Other Territories Ninth State 0911 Europe nfd 0912 Former USSR nfd 0913 Former Yugoslavia nfd 0914 Czechoslovavia nfd 0915 Kurdistan nfd 0916 East Asia nfd 0917 Asia nfd 0918 Africa nfd 1000 Oceania and Antarctica nfd 1100 Australia includes External Territories nfd 1101 Australia 1102 Norfolk Island 1199 Australian External Territories nec 1201 New Zealand 1300 Melanesia nfd 1301 New Caledonia 1302 Papua New Guinea 1303 Solomon Islands 1304 Vanuatu 1400 Micronesia nfd 1401 Guam 1402 Kiribati 1403 Marshall Islands 1404 Micronesia Federated States of 1405 Nauru 1406 Northern Mariana Islands 1407 Palau 1500 Polynesia excludes Hawaii nfd 1501 Cook Islands 1502 Fiji 1503 French Polynesia 1504
157. des persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Needs assistance or has difficulty with oral communication 2 Does not need assistance or have difficulty with oral communication 3 Too young to perform oral communication activity LABEL Number of cognitive emotion tasks for which assistance is needed because of disability POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 None One Two Three Four Wom WN eR Five CoCo eee ee ooo ae Heo HoH OHHH HEHE HHH HEHEHE HEHEHE HHH HEHEHE HHH HEHEHE HOHE EEO E EEE EE EES 46 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeeveeveeeeeeeeeeeeeeee ee eee eee eee ee eee eee eee ee em ee em ee meee mee eee ee ee eo eC oO oO ee ele ASSISTANCE NEED FOR 6 Six ASSISTANCE WITH 9 Not applicable COGNITION OR EMOTION A a F LABEL Whether needs assistance or has difficulty with cognitive or emotional tasks ee POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Needs assistance or has difficulty with cognitive or emotional tasks 2 Does not need assistance or have difficulty with cognitive or emotional tasks 3 Too young to measure the need for cognitive or emotional support 4 Assessment of cognitiv
158. duct the outstanding interviews at a later date People who were still unavailable for interview at subsequent contacts were classified as individual non contacts If all members of the household were absent many visits were made to attempt contact before these were treated as non contact dwellings There were instances in which respondents were willing to answer some but not all of the questions asked The survey instrument was programmed to accept refusals on sensitive topics such as income and employer s name and address Respondents who only refused to answer these parts of the questionnaire or the carer s questionnaire were classified as adequate complete Those who refused to participate in any aspect of Coe eee eee eeseseseeeseeseeseseeeeeeeeEeeEEeEEeEEEEE ESET EEE HEHEHE HEHEHE EEO EEE EEE OEE 16 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 SURVEY DESIGN AND OPERATION continued eoevovoeveeveeeeeeeeeeee ee ee ee eee eee eee eo eee eee eee eee eee ee eee emo em eee meee eC em em eee ee Refusals continued DATA PROCESSING Processing of household component Processing of cared accommodation component eo eee eeseeeceseeseeeeeeeeeeeeeeeeees the survey were followed up by letter and a visit from the supervisor responsible for their collection area In the event that a completed questionnaire was not obtained these respondents were classified as refusals Computer
159. e EMPLOYMENT LABOUR 6191 Inquiry and Admissions Clerks FORCE ITEMS continued 6192 Library Assistants 6193 Personnel Clerks 6194 Intermediate Inspectors and Examiners 6199 Other Intermediate Clerical Workers 6200 Intermediate Sales and Related Workers nfd 6210 Intermediate Sales and Related Workers nfd 6211 Sales Representatives 6212 Motor Vehicle and Related Products Salespersons 6213 Retail and Checkout Supervisors 6300 Intermediate Service Workers nfd 6310 Carers and Aides nfd 6311 Education Aides 6312 Children s Care Workers 6313 Special Care Workers 6314 Personal Care and Nursing Assistants 6320 Hospitality Workers nfd 6321 Hotel Service Supervisors 6322 Bar Attendants 6323 Waiters 6324 Hospitality Trainees 6390 Miscellaneous Intermediate Service Workers nfd 6391 Dental Assistants 6392 Veterinary Nurses 6393 Prison Officers 6394 Gaming Workers 6395 Personal Care Consultants 6396 Fitness Instructors and Related Workers 6397 Travel and Tourism Agents 6399 Other Intermediate Service Workers 7000 Intermediate Production and Transport Workers nfd 7100 Intermediate Plant Operators nfd 7110 Mobile Plant Operators nfd 7111 Mobile Construction Plant Operators 7112 Forklift Drivers 7119 Other Mobile Plant Operators 7120 Intermediate Stationary Plant Operators 7121 Engine and Boiler Operators 7122 Crane Hoist and Lift Operators 7123 Engineering Production Systems Workers 7124 Pulp and Paper Mill Operators 7129 Other Intermediate Statio
160. e conditions LABEL Where accident happened POPULATION All persons with one or more long term condition s living in households whose main condition was caused by an accident CATEGORIES 0 Not applicable Accident happened on street road or highway Accident happened at work OW Ne Accident happened at own home Coo ooo ooo OOOOH EDO HOE HEHEHE EEE EEE HEHE HEHEHE HEHEHE HEHEHE HHH HHH HEHEHE EHH HHH HHH HHH HHO HEHEHE HEHEHE HHO HHH EEE OEE EOE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 149 APPENDIX DATA ITEM LIST continued eoevovoevveeveeeveeeeeeeeeee eee eee eee eee eee eee eee eee ee em ee em ee em ee em ee eee eee em oO em oO eo ee ele LONG TERM HEALTH 4 Accident happened at sporting venue CONDITIONS CONDITIONS 5 Accident happened at school college or university continued 6 Accident happened at other place NES 7 Dont know where accident happened LABEL Whether has further conditions not identified by screen questions POPULATION All persons with one or more long term condition s living in households excluding personal interviews or proxies who were also the ARA CATEGORIES 0 Not applicable 1 Has further conditions in addition to those identified in screen questions 2 Does not have further conditions additional to those identified in screen questions LABEL Whether main condition is expected to change over the next two years POPULATION All persons with one or more long term condition
161. e eee eee eee eee eee eee ee eee meee eee eee eee eee eeee INCOME INCOME UNIT 1 A person or persons in income unit receives overseas pensions or benefits LEVEL continued 2 Noone in the income unit receives overseas pensions or benefits LABEL Whether anyone in income unit receives parenting payment POPULATION All income units in private dwellings CATEGORIES 0 Not applicable 1 A person or persons in income unit receives the Parenting Payment 2 Noone in the income unit receives the Parenting Payment INCOME PERSON LEVEL LABEL Main source of cash income POPULATION All persons aged 15 or over living in households CATEGORIES 00 Not applicable 01 Wages or salary including from own incorporated business 02 Profit or loss from own unincorporated business or share in a partnership 03 Profit or loss from rental property 04 Dividends or interest 05 Any Government pension or allowance 06 Child support or maintenance 07 Superannuation or annuity 08 Workers compensation 09 Other main source 10 No sources of income 11 Not known 12 Nil or negative income LABEL Pensions benefits or allowances received all multiple response POPULATION All persons aged 15 or over living in households who reported income from any Government pension or cash benefit CATEGORIES 01 Australian Age Pension 02 Newstart Allowance 03 Mature Age Allowance 04 Service Pension DVA exclude Superannuation eg DFRDB 05 Disability Support Pension
162. e g food climate medication environment CONDITIONS CONDITIONS 11 Medication or medical procedure continued 12 Smoking 13 Own pregnancy or childbirth 14 Overweight 15 Other cause 16 Don t know LABEL Length of time since accident happened main condition occurred POPULATION All persons with one or more long term condition s living in households CATEGORIES Continuous 0 Not applicable 121 Not known LABEL Main cause of other brain damage POPULATION All persons who have other brain damage CATEGORIES 0 Z ot applicable Other brain damage present at birth Other brain damage just came on old age Other brain damage due to illness e g meningitis encephalitis Other brain damage due to an accident Other brain damage due to substance abuse e g alcohol glue Other brain damage due to poisoning Other brain damage due to drug overdose o Ny An KR WNY e Other brain damage due to oxygen loss e g near drowning 9 Other brain damage due to other causes NES LABEL Main condition POPULATION All persons with one or more long term condition s CATEGORIES See Type of long term condition reported LABEL Number of conditions POPULATION All persons with one or more long term condition s CATEGORIES 0 Not applicable Has one condition Has two conditions Has three conditions Has four conditions Has five conditions Has six conditions Has seven conditions o N An KW DY e Has eight conditions 9 Has nine or mor
163. e identified 06 Possible primary carer of a UR ARA identified self and recipient of care denied 07 Primary carer of a non UR ARA and self identified 08 Possible primary carer of a non UR ARA identified self denied 09 Possible primary carer of a non UR ARA identified no self confirmation possible 10 Other method LABEL Primary carer populations POPULATION All persons living in households CATEGORIES 0 Not applicable 1 Primary carer aged 15 years or over 2 Unconfirmed primary carer aged over 17 years for whom a personal interview could not be conducted 3 Unconfirmed primary carer aged 15 17 years for whom a personal interview could not be conducted 4 Unconfirmed primary carer aged 14 years or under 5 Nota primary carer CARERS FAMILY LEVEL LABEL Whether family contains a primary carer POPULATION All families living in households CATEGORIES 0 Not applicable 1 Family contains primary carer s of co resident s only 2 Family contains primary carer s of non co resident s only 3 Family contains primary carer s of co resident s and primary carer s of non co resident s 4 Family does not contain a primary carer CARERS HOUSEHOLD LEVEL LABEL Whether household contains a primary carer POPULATION All households CATEGORIES 0 Not applicable 1 Household contains primary carer s of co resident s only 2 Household contains primary carer s of non co resident s only CoCo ooo ooo HH HEHEHE EET OHHH EHH H HEHEHE HEHEHE HHH
164. e or emotional support tasks not performed establishments only LABEL Whether needs assistance to cope with feelings or emotions because of disability POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Needs assistance to cope with emotions 2 Does not need assistance to cope with emotions 3 Too young to measure the need for assistance to cope with feelings or emotions 4 Activity not performed establishments only LABEL Whether needs assistance to make decisions or think through problems because of disability POPULATION All persons aged 15 or over with a disability living in households excludes persons with a non restricting disfigurement or deformity only and persons with a disability living in health establishments CATEGORIES 0 Not applicable 1 Needs assistance to make decisions or think through problems 2 Does not need assistance to make decisions or think through problems 3 Activity not performed establishments only LABEL Whether needs assistance to manage own behaviour because of disability POPULATION All persons aged 0 14 with a disability living in households excludes persons with a non restricting disfigurement or deformity only and persons with a disability living in health establishments CATEGORIES 0 Not applicable Needs assistance to manage behaviour N Does not need assistance to manage behaviour Qe Too youn
165. e service No service available Not eligible for service Service costs too much o N ANN KW NY Service does not provide sufficient hours 9 Other LABEL Main reason has unmet need for informal mobility assistance POPULATION All persons with a disability living in households who received assistance with mobility CATEGORIES 0 Not applicable 1 Does not need more help from family or friends 2 Has not asked family or friends 3 Needs more help than family friends can provide 4 Family friends not available too far away 5 Other LABEL Number of formal sources of mobility assistance POPULATION All persons with a disability living in households who need assistance with mobility because of disability CATEGORIES 0 None 1 One 2 Two 9 Not applicable LABEL Number of informal sources of mobility assistance POPULATION All persons with a disability living in households who need assistance with mobility because of disability CATEGORIES 0 None 1 One 2 Two 3 More than two 9 Not applicable LABEL Type of mobility assistance received POPULATION All persons with a disability living in households who received assistance with mobility CATEGORIES 0 Not applicable 1 None 2 Informal only 3 Formal only 4 Informal and formal CoCo o ooo oOo H HEHEHE HEHEHE HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HHH HEHEHE HEHEHE HOHE EEO OOS 64 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003
166. earing loss loss of speech nervous or emotional condition head injury or brain damage and all persons with a disability living in health establishments CATEGORIES 0 Not applicable 1 Cannot be understood at all because of disability 2 Can be understood with difficulty 3 Can be understood without difficulty 4 Too young LABEL Ability to be understood by someone does not know POPULATION Persons with a disability living in households where interview is conducted by proxy who are slow at learning understanding have a mental illness hearing loss loss of speech nervous or emotional condition head injury or brain damage and all persons with a disability living in health establishments CATEGORIES 0 Not applicable 1 Cannot be understood at all because of disability 2 Can be understood with difficulty 3 Can be understood without difficulty 4 Too young LABEL Ability to understand family and friends POPULATION Persons with a disability living in households where interview is conducted by proxy who are slow at learning understanding have a mental illness hearing loss loss of speech nervous or emotional condition head injury or brain damage and all persons with a disability living in health establishments CATEGORIES 0 Not applicable 1 Cannot understand at all because of disability 2 Understands with difficulty 3 Understands without difficulty 4 Too young CoCo oo ooo OOOH EES EOE HEHEHE EEE EEE HEHEHE HEHEHE HEH HEH
167. eceives overseas pensions or benefits INCOME INCOME UNIT LABEL Flag to indicate whether income unit contains person s out on scope or LEVEL coverage POPULATION All income units in households CATEGORIES 0 Not in this population 1 Person s from this level out on scope or coverage LABEL Total weekly cash income income unit POPULATION All income units in private dwellings CATEGORIES Continuous CoCo ooo ooo OHHH EHO EHEHHHHE HEHEHE HEHEHE HEHE HHH HEHEHE HHH HHH HHH HHH HHS O EEO ES ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 APPENDIX DATA ITEM LIST continued eoevovoeveveeveeeeeee eevee eee eee eee eee eee eee eee ee eee ee eee em ee em ee mee eee em eC he Oe oO em oO eo ee ele INCOME INCOME UNIT 99998 Not known LEVEL continued 99999 Not applicable LABEL Total weekly equivalised cash income income unit POPULATION All income units in private dwellings CATEGORIES Continuous 99998 Not known 99999 Not applicable LABEL Total weekly equivalised cash income deciles income unit POPULATION All income units in private dwellings CATEGORIES 00 Not applicable 01 1st decile 02 2nd decile 03 3rd decile 04 4th decile 05 5th decile 06 6th decile 07 7th decile 08 8th decile 09 9th decile 10 10th decile 11 Not known LABEL Whether anyone in income unit receives Carer Allowance Centrelink POPULATION All income units in private dwellings CATEGORIES 0 Not applicable 1 A person o
168. ech difficulties 13 Breathing difficulties 14 Chronic or recurring pain or discomfort 15 Blackouts fits or loss of consciousness 16 Slow at learning or understanding 17 Incomplete use of arms or fingers 18 Difficulty gripping or holding things 19 Incomplete use of feet or legs 20 Nervous or emotional condition 21 Restriction in physical activities or work 22 Disfigurement or deformity 23 Mental illness 24 Other disability type s LABEL Disability type s as a result of stroke multiple response POPULATION All persons who had a stroke and have a disability as a result CATEGORIES 00 Not applicable 10 Loss of sight 11 Loss of hearing 12 Speech difficulties 13 Breathing difficulties 14 Chronic or recurring pain or discomfort 15 Blackouts fits or loss of consciousness 16 Slow at learning or understanding 17 Incomplete use of arms or fingers 18 Difficulty gripping or holding things 19 Incomplete use of feet or legs 20 Nervous or emotional condition 21 Restriction in physical activities or work 22 Disfigurement or deformity 23 Mental illness 24 Other disability type s LABEL Main condition causing blackouts fits or loss of consciousness POPULATION All persons who have blackouts fits or loss of consciousness CATEGORIES See Type of long term condition reported LABEL Main condition causing chronic or recurrent pain or discomfort POPULATION All persons who experience pain or discomfort CATEGORIES See T
169. ecile 02 2nd decile 03 3rd decile 04 4th decile 05 5th decile 06 6th decile 07 7th decile 08 8th decile 09 9th decile 10 10th decile 11 Not known CoCo ooo oO EEHEHHE HEHEHE EEE HEH HEHEHE HEHEHE EHH HHH HHH HHH HHH HHH HEHE HHH HEHEHE EEE EEO OEE 74 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovoveeveeveeeeeeeeeeeeee eee eee eee we eee eee eee oe eee ee eee eee eee eee eee wee ee eeeeeeeee BACKGROUND GEOGRAPHY LABEL Index of economic resources deciles continued POPULATION All households CATEGORIES 00 01 02 03 04 05 06 07 08 09 10 11 Not applicable 1st decile 2nd decile 3rd decile 4th decile 5th decile 6th decile 7th decile 8th decile 9th decile 10th decile Not known LABEL Index of education and occupation deciles POPULATION All households CATEGORIES 00 01 02 03 04 05 06 07 08 09 10 11 Not applicable Ist decile 2nd decile 3rd decile th decile 5th decile 6th decile 7th decile 8th decile 9th decile 10th decile Not known LABEL Section of state POPULATION All persons CATEGORIES 0 Not applicable 1 Major urban 2 Other urban 3 Bounded locality 4 Rural balance 5 Migratory LABEL State or Territory of usual residence POPULATION All persons CATEGORIES 1 ANAM KW DY New South Wales Victoria Queensland South Australia Western Australia Tasmania Northern Territory A
170. ed assistance or have difficulty with paperwork CoCo eee ooo eee OOOOH HEHEHE HOH HHH HOHE HEHEHE HEHEHE HHH HHH HEHEHE HEHEHE OE OEE TELE E EEE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 49 APPENDIX DATA ITEM LIST continued eovovoeveveeveeeeeeeeeeee ee ee ee eee eee ee eee eee eee eee ee eee eee mee eo em ee meee meee ee em Oo ee ee ASSISTANCE NEED FOR ASSISTANCE WITH PAPERWORK continued ASSISTANCE NEED FOR ASSISTANCE WITH PROPERTY MAINTENANCE ASSISTANCE NEED FOR ASSISTANCE WITH SELF CARE ASSISTANCE NEED FOR ASSISTANCE WITH TRANSPORT LABEL Whether needs assistance with paperwork because of disability or age POPULATION All persons aged 15 or over with a disability or aged 60 years or over living in households excludes persons with a non restricting disfigurement or deformity only and persons with a disability living in health establishments CATEGORIES 0 Not applicable 1 Needs assistance with paperwork 2 Does not need assistance with paperwork LABEL Whether needs assistance or has difficulty with home maintenance or gardening because of disability POPULATION All persons aged 15 or over with a disability or aged 60 years or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Needs assistance or has difficulty with home maintenance or gardening 2 Does not need assistance or have difficulty with
171. ed individuals 2422 Couple only family 3111 One parent family with children under 15 non dependent children and other related individuals 3112 One parent family with children under 15 non dependent children and no other related individuals 3121 One parent family with children under 15 no non dependent children and with other related individuals 3122 One parent family with children under 15 no non dependent children and with no other related individuals 3211 One parent family with dependent students non dependent children and other related individuals 3212 One parent family with dependent students non dependent children and no other related individuals 3221 One parent family with dependent students no non dependent children and with other related individuals 3222 One parent family with dependent students no non dependent children and with no other related individuals 3311 One parent family with children under 15 dependent students non dependent children and other related individuals 3312 One parent family with children under 15 dependent students non dependent children and no other related individuals 3321 One parent family with children under 15 dependent students no non dependent children and with other related individuals 3322 One parent family with children under 15 dependent students no non dependent children and no other related individuals 3411 One parent family with non dependent children and other related
172. ee ee eee eee eeee TABLE OF LIMITATIONS RESTRICTIONS ACTIVITIES AND TASKS eo eee ereeeeeeeee eee ee eee eeeeeeeeeeeeeeeeeeeee LIMITATION OR RESTRICTION ACTIVITY Specific limitation or restriction Core activity limitations Communication Mobility Self care Schooling or employment restrictions Schooling Employment Without specific limitation or restriction Other activities Health care Paperwork Transport Housework Property maintenance Meal preparation Cognition or emotion eee eee eeeeeeeseeeeeeeeeeerereeeeereseereeeeees Coo ee eres rere e seer e eee eee eeeeeeeseseseeeeeeeeesereses TASKS Understanding family or friends Being understood by family or friends Understanding strangers Being understood by strangers Getting into or out of a bed or chair Moving about usual place of residence Moving about a place away from usual residence Walking 200 metres Walking up and down stairs without a handrail Bending and picking up an object from the floor Using public transport Showering or bathing Dressing Eating Toileting Bladder or bowel control Unable to attend school Attends a special school Attends special classes at an ordinary school Needs at least one day a week off school on average Has difficulty at school Permanently unable to work Restricted in the type of work they can or could do Need or would need at least one day a week off work on average Restricted in the numb
173. ee eee eee eee Not applicable Studying full time Studying part time Highest year of school completed POPULATION All persons aged 15 or over living in households CATEGORIES 0 WR CW Ne 6 LABEL Not applicable Year 12 or equivalent Year 11 or equivalent Year 10 or equivalent Year 9 or equivalent Year 8 or lower Never attended school Level of highest educational attaintment POPULATION All persons aged 15 or over living in households CATEGORIES 000 Not applicable 011 Level not determined 100 Postgraduate Degree Level not further defined 110 Doctoral Degree Level not further defined 111 112 113 Higher Doctorate Doctorate by Research Doctorate by Coursework 114 Professional Specialist Qualification at Doctoral Degree Level 120 Master Degree Level not further defined 121 122 123 Master Degree by Research Master Degree by Coursework Professional Specialist Qualification at Master Degree Level 200 Graduate Diploma and Graduate Certificate Level not further defined 210 Graduate Diploma Level not further defined 211 212 213 Graduate Diploma Graduate Qualifying or Preliminary Professional Specialist Qualification at Graduate Diploma Level 220 Graduate Certificate Level not further defined 221 222 Graduate Certificate Professional Specialist Qualification at Graduate Certificate Level 300 Bachelor Degree Level not further defined 310 Bachelor Degree Level not further defined
174. ee eee eee eee eee eee ee eee eee eee eee eee e ee eeeeeeeeee HOUSING FAMILY LEVEL LABEL Whether parents have a child with a disability continued POPULATION All families living in households CATEGORIES 0 Not applicable 1 Parents have a child with a disability 2 Parents do not have a child with a disability HOUSING PERSON LEVEL LABEL House moves person made because of condition or age POPULATION All persons with a disability or aged 60 or over living in private dwellings excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Had to move house once 2 Had to move house more than once 3 Has not had to move house LABEL Housing tenure POPULATION All persons aged 15 or over living in private dwellings CATEGORIES 0 Not applicable Owner without a mortgage Owner with a mortgage Life tenure scheme Participant of rent buy or shared equity scheme Renter State Territory Housing Authority Renter private Renter boarder o Ny An KRWN e Living rent free 9 Other LABEL Landlord type POPULATION All persons living in private dwellings who pay rent or board or who are in a rent to buy scheme or have other housing arrangements CATEGORIES 00 Not applicable 01 Landlord is real estate agent 02 Landlord is State or Territory Housing Authority 03 Landlord is parent other relative not in same dwelling 04 Landlord is other person not in same dwelling 05 Landlord is parent other rel
175. ee eee eee eee eee eee ee eee eee eee eee eee eee ee eee eee eee eeee MAIN RECIPIENTS OF CARE 12 Restriction in physical activities or work CONDITIONS IMPAIRMENTS 13 Disfigurement or deformity AND LIMITATIONS continued 14 Mental illness 15 Other limitation or restriction LABEL Disability type s 1 of main recipient of care multiple response POPULATION All primary carers living in households whose main recipient of care is a co resident CATEGORIES 00 Not applicable 01 Loss of sight 02 Loss of hearing 03 Speech difficulties 04 Breathing difficulties 05 Chronic or recurring pain or discomfort 06 Blackouts fits or loss of consciousness 07 Slow at learning or understanding 08 Incomplete use of arms or fingers 09 Difficulty gripping or holding things 10 Incomplete use of feet or legs 11 Nervous or emotional condition 12 Restriction in physical activities or work 13 Disfigurement or deformity 14 Mental illness 15 Head injury stroke or other brain damage 16 Other disability type s LABEL Disability type s 2 of main recipient of care multiple response POPULATION All primary carers whose main recipient of care is a co resident with a disability which was not identified by the ARA excluding PI s or proxies who were also the ARA of HF CATEGORIES 00 Not applicable 01 Loss of sight 02 Loss of hearing 03 Speech difficulties 04 Breathing difficulties 05 Chronic or recurring pain or discomfort 06 Blackouts fits or loss
176. eee eee ee eee em eee ee em ee em ee em em em em em eee em ee ee em em eo ee ele WEIGHTS continued LABEL Replicate Weights 20 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 20 Household POPULATION All households CATEGORIES Continuous LABEL Replicate Weights 21 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 21 Household POPULATION All households CATEGORIES Continuous LABEL Replicate Weights 22 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 22 Household POPULATION All households CATEGORIES Continuous LABEL Replicate Weights 23 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 23 Household POPULATION All households CATEGORIES Continuous LABEL Replicate Weights 24 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 24 Household POPULATION All households CATEGORIES Continuous LABEL Replicate Weights 25 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 25 Household POPULATION All households CATEGORIES Continuous CoCo ooo ooo EHEHH HEHEHE HEHEHE HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HEH HEHEHE HEHEHE HOO EEO EEE ES ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 APPENDIX DATA ITEM LIST continued eovovoeveeveeeeeeeeeeeeee eee eee eee eee eee ee ee eo ee eee em ee eee meee
177. eeeeeeeeeeeeeeeee Cece ee eeeeeeeseeseeeeeeeeeeeeeeeeeeeeeeeeeEe EEE EE EEE EEE E EEE EEE EEE EES DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 151 APPENDIX DATA ITEM LIST continued eovoveeveeeeeeeeeeeeeeeeeee eee eee eee eee eee eee eee eee eee eee eee eee eee ee eeeeeeeeee MAIN RECIPIENTS OF CARE LABEL Extent to which need for self care assistance met for the main recipient of care ASSISTANCE RECEIVED POPULATION All primary carers living in households whose main recipient of care is continued a co resident who needs assistance with self care due to disability CATEGORIES 0 Not applicable 1 Need for self care assistance met fully 2 Need for self care assistance met partly 3 Need for self care assistance not met at all LABEL Type of assistance received by main recipient of care POPULATION All primary carers living in households whose main recipient of care is a co resident with a disability or aged 60 or over CATEGORIES 0 Not applicable Informal only Formal only Informal and formal BR WO N No assistance received MAIN RECIPIENTS OF CARE LABEL Condition s producing main recipient s main disability multiple response CONDITIONS IMPAIRMENTS POPULATION All primary carers living in households whose main recipient of care is AND LIMITATIONS a co resident CATEGORIES See Type of long term condition reported LABEL Disability status 1 of main recipient of care POPULAT
178. een 20 Twenty 21 Twenty one CoCo oo ooo OHHH HOHE ESO HEHEHE HEHEHE EEE EEE EEE HEHE HEHEHE HEHEHE HEHEHE HHH HHH HEHEHE HHH HHH HHH HHH HHH HEHEHE HEHEHE HOHE EEE OOOO OE 44 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeeveveveeeeeeeeeeee eee eee eee eee eee eee eee ee eee eee eee eee wee eee eee eee eee eee eeee ASSISTANCE NEED FOR ASSISTANCE SUMMARY continued 22 Twenty two 23 Twenty three 99 Not applicable LABEL Number of tasks for which assistance is needed because of disability or age establishments POPULATION All persons living in a health establishment CATEGORIES 00 None 01 One 02 Two 03 Three 04 Four 05 Five 06 Six 07 Seven 08 Eight 09 Nine 10 Ten 11 Eleven 12 Twelve 13 Thirteen 14 Fourteen 15 Fifteen 16 Sixteen 17 Seventeen 18 Eighteen 19 Nineteen 20 Twenty 21 Twenty one 22 Twenty two 23 Twenty three 99 Not applicable LABEL Number of tasks for which assistance is needed because of disability or age households POPULATION All persons with a disability or aged 60 or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 00 None 01 One 02 Two 03 Three 04 Four 05 Five 06 Six 07 Seven 08 Eight 09 Nine 10 Ten 11 Eleven 12 Twelve 13 Thirteen 14 Fourteen CoCo oo eo oOo EEEHEEHHE SHH HEHEHE HEHEHE HEHEHE HEHEHE HEHEHE HHH HHH HHH HH
179. elationship in household POPULATION All persons living in households in private dwellings CATEGORIES 00 Not applicable 10 Husband wife or partner not further defined 17 Male same sex partner 18 Female same sex partner 21 Lone parent 30 Child under 15 not further defined 40 Dependent student not further defined 50 Non dependent child not further defined 60 Other related individual not further defined 71 Unrelated individual living in a family household 72 Group household member 73 Lone person 99 Visitor LABEL Year of arrival in Australia POPULATION All persons born overseas living in households CATEGORIES Continuous DISABILITY IDENTIFICATION LABEL Disability status 1 DISABILITY STATUS POPULATION All persons CATEGORIES 0 Not applicable Has disability and profoundly limited in core activities Has disability and severely limited in core activities Has disability and moderately limited in core activities BR WO NM Has disability and mildly limited in core activities 5 Has disability and not limited in core activities but restricted in schooling or employment 6 Has disability and not limited in core activities or restricted in schooling or employment 7 Has a long term health condition without disability 8 No long term health condition LABEL Disability status of the recipient s of care POPULATION All persons CATEGORIES 0 Not applicable Has disability and profoundly limited in core activities
180. elink POPULATION All households CATEGORIES 0 Not applicable 1 A person or persons in household receives the Carer Allowance Centrelink 2 Noone in the household receives the Carer Allowance Centrelink LABEL Whether anyone in household receives Disability Pension DVA POPULATION All households CATEGORIES 0 Not applicable 1 A person or persons in household receives the Disability Pension 2 Noone in the household receives the Disability Pension LABEL Whether anyone in household receives Parenting Payment POPULATION All households CATEGORIES 0 Not applicable 1 A person or persons in household receives the Parenting Payment 2 Noone in the household receives the Parenting Payment LABEL Whether anyone in household receives War Widow s Pension DVA POPULATION All households CATEGORIES 0 Not applicable 1 A person or persons in household receives the War Widow s Pension DVA 2 No one in the household receives the War Widow s Pension DVA LABEL Whether anyone in household receives other minor pensions or benefits POPULATION All households CATEGORIES 0 Not applicable 1 A person or persons in household receives other minor pensions or benefits 2 Noone in the household receives other minor pensions or benefits LABEL Whether anyone in household receives overseas pensions benefits POPULATION All households CATEGORIES 0 Not applicable 1 A person or persons in household receives overseas pensions or benefits 2 Noone in the household r
181. em ee eee me eC em eC oO em em ee el ele WEIGHTS continued LABEL Replicate Weights 26 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 26 Household POPULATION All households CATEGORIES Continuous LABEL Replicate Weights 27 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 27 Household POPULATION All households CATEGORIES Continuous LABEL Replicate Weights 28 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 28 Household POPULATION All households CATEGORIES Continuous LABEL Replicate Weights 29 POPULATION All persons CATEGORIES Continuous LABEL Replicate Weights 29 Household POPULATION All households CATEGORIES Continuous LABEL Replicate Weights 30 POPULATION All persons CATEGORIES Continuous CoCo eee ooo H HEHEHE HEHEHE HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HOHE HEHEHE HEHEHE HOHE EEO EEO ES 194 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 GLOSSARY eovovoeeveeeeeeee eevee ee eee eee eee eee eee eo eee eee eee eee meee em eee meee em ee em ee em eC eC em em hm em el ele Activity Aids and equipment Australian Standard Classification of Education ASCED Cared accommodation Carer Child Cognition or emotion Communication An activity comprises one or more tasks In this survey tasks have been grouped into the following ten activities See
182. empted to make the survey results as accurate as possible while remaining within operational and cost constraints sample size the larger the sample on which the estimate is based the smaller the sampling error will be population variability the extent to which people differ on the characteristics being measured The smaller the population variability of a particular characteristic the more likely it is that the population will be well represented by the sample and therefore the smaller the sampling error One measure of sampling variability is the standard error SE The SE is based on the normal distribution and allows predictions about the accuracy of data For example there are about two chances in three that a sample estimate will differ by less than one SE from the figure that would have been obtained if the population were fully enumerated The relative standard error RSE is the SE expressed as a percentage of the estimate to which it relates Very small estimates may be subject to such high RSEs as to detract seriously from their value for most reasonable purposes Only estimates with RSEs less than 25 are considered sufficiently reliable for most purposes Estimates with RSEs between 25 and 50 are included in Australian Bureau of Statistics ABS publications but are preceded by the symbol as a caution to indicate that they are subject to high RSEs Estimates with RSEs greater than 50 are considered highly unrelia
183. eparation 2 Does not need assistance or have difficulty with meal preparation LABEL Whether needs assistance with meal preparation because of disability or age POPULATION All persons aged 15 or over with a disability or aged 60 years or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Needs assistance with meal preparation 2 Does not need assistance with meal preparation LABEL Number of mobility tasks for which assistance is needed because of disability POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 None One Two Three Four Five Six ON KR WN Not applicable LABEL Whether needs assistance or has difficulty with mobility because of disability POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Needs assistance or has difficulty with mobility 2 Does not need assistance or have difficulty with mobility 3 Mobility activity not performed LABEL Whether needs assistance or has difficulty with paperwork because of disability or age POPULATION All persons aged 15 or over with a disability living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Needs assistance or has difficulty with paperwork 2 Does not ne
184. er LABEL Record level identifier for SuperCROSS Income unit level POPULATION All income units in households CATEGORIES Identifier LABEL Record level identifier for SuperCROSS Person level POPULATION All persons CATEGORIES Identifier LABEL Record level identifier for SuperCROSS Recipient level POPULATION All carers living in households CATEGORIES Identifier LABEL Record level identifier for SuperCROSS Restriction level POPULATION All reported disabilities CATEGORIES Identifier CoCo ooo OOOOH OEE H HEHEHE HEHEHE HHH HHH HEHEHE HHH HHH HHH HHH HHH HEHEHE HHH EHH HOHE HOE EEO EEO OS 76 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevovoeveveveveeeeeeeeeeee ee ee ee ee eee eee eee eee eee eee eee eee eee eee ee eee em ee eee meee ee BACKGROUND IDENTIFIERS LABEL Record level identifier for SuperCROSS Specific activities level continued POPULATION All specific activities reported where some assistance is required or difficulty is experienced excludes persons with a non restricting disfigurement or deformity only CATEGORIES Identifier BACKGROUND INTERVIEW LABEL How personal interview was obtained POPULATION All persons living in households who had a personal interview CATEGORIES 0 Not applicable Fully in English easily Fully in English with difficulty due to communication problems excl language Fully in English with difficu
185. er activity during last fortnight POPULATION All persons with a disability or aged 60 or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Went to other activity 2 Did not go to other activity 3 Does not leave home LABEL Whether travelled to school or educational institution during last fortnight POPULATION All persons with a disability or aged 60 or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable Went to school or educational institution Did not go to school or educational institution QW Ne Not asked or does not leave home Ce eee esos eseseeeseeseeseseeeeeeeeeeeeeeeEeeeeEeEEEEE HEE EEE EEE HELE EEE TELE EEE EE 188 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeveveeeeeeeeeeeeeeee eee eee eee wee eee eee eee ee eo eee em eo em eee eee mee eee em eC em Oe oO em oO eo ee ele TRANSPORT TRAVEL IN PREVIOUS FORTNIGHT continued WEIGHTS eo eres esreeeeeeeseeeeeeeeeeeeeeee LABEL Whether travelled to work during last fortnight POPULATION All persons with a disability or aged 60 or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Went to work 2 Did not go to work 3 Not asked or does not leave home LABEL
186. er of hours they can or could work Requires special equipment or modified work environment Needs ongoing assistance or supervision Would find it difficult to change jobs or get a preferred job Needs assistance from a disability job placement program or agency Foot care Taking medications or administering injections Dressing wounds Using medical machinery Manipulating muscles or limbs Reading or writing tasks such as checking bills or bank statements writing letters and filling in forms Going to places away from the usual place of residence Household chores such as washing vacuuming and dusting Changing light bulbs taps washers or car registration stickers Making minor home repairs Mowing lawns watering pruning shrubs light weeding or planting Removing rubbish Preparing ingredients Cooking food Making friendships interacting with others or maintaining relationships Coping with feelings or emotions Decision making or thinking through problems Coo eeeerereeeseeeeeeeeeeeeeeereeeeeeeesesece OS 10 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 SURVEY CONTENT continued eovoveeveeveeeeeeeeeee eee e eee eee eee eee eo eee eee ee eee ee ee eee em ee em eo em ee meee ee em em ee el ele OTHER KEY POPULATIONS The survey collected a range of information about the assistance needs and participation Older persons of older people in everyday activities and use of computers and the I
187. er reasons NES LABEL Tenure type POPULATION All persons aged 15 or over living in private dwellings CATEGORIES 0 Not applicable 1 Owner without a mortgage 2 Owner with a mortgage 3 Life tenure scheme 4 Participant of rent buy or shared equity scheme 5 Renter excludes boarders 6 Boarder 7 Rent free 8 Other LABEL Time since someone moved in because of disability or age of respondent POPULATION All persons with a disability or aged 60 or over living in private dwellings excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable Less than one year 1 year to less than 3 years 3 years to less than 5 years wR OW N 5 years or more 5 No one has moved in because of disability or age LABEL Whether someone had to move in because of disability or age of respondent POPULATION All persons with a disability or aged 60 or over living in private dwellings excluding those in lone person households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable Paid nurse moved in Other paid carer moved in Family member moved in BRO N Friend moved in 5 Has not been necessary for anyone to move in LABEL Year in which last house move POPULATION All persons with a disability or aged 60 or over living in private dwellings excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0000 Not applicable 1
188. erent health conditions Coe e eee ees eseeeseeeseseseeeeeeeeeeeeeeeeEEeeEEEEEH EEE EEE EEE EEE OEE EERE EES ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 17 SURVEY DESIGN AND OPERATION continued eoevovoeveveeveeeeeeeeeeee eee eee eee eee eee eee eee ee eee ee em ee em ee em ee emo em eee em eC em Oe eC oO eo ee ele Editing An extensive range of computer edits was applied to each questionnaire during data entry and to the aggregated data file after data entry was complete These checked that logical sequences had been followed in the questionnaires that all applicable questions had been answered that specific values lay within valid ranges that there were no contradictory responses and that relationships between items were within acceptable limits The edits were also designed to identify cases which although not necessarily errors were sufficiently unusual or close to specified limits as to warrant examination A detailed set of instructions was developed to help data entry staff solve problems as they arose during clerical checking or data entry itself Coding Coding for the cared accommodation component of the survey was similar to that of the household component in that the CADE system made use of pick lists and trigram coders Fewer items required special coding however country of birth and health conditions only Employment education and relationship details were not collected in the cared acc
189. erm condition other than already mentioned Modified wording Restricted in everyday activities replaced restricted in any way Difficulty learning or understanding things Difficulty gripping or holding things replaced Difficulty gripping or holding small objects Restricted in doing every day physical activity or physical work A not any disfigurement or deformity Self care Self care as in 1981 Self care as in 1988 Self care as in 1988 showering or bathing plus dressing toileting eating bladder bowel control Mobility Mobility as in 1981 Mobility as in 1988 Mobility as in 1993 moving about the plus plus house transferring from bending and picking going to or getting bed or chair up something from around a place the floor away from home walking 200 metres climbing stairs without a handrail using public transport CoCo ooo ooo H HEHEHE HEHEHE HHH HHH HHH HEHEHE HEHE HHH HHH HHH HHH HOES HEHEHE HEHEHE HEHEHE EEE EEO OS ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 3 INTRODUCTION continued eovovoevveeveeeveeeeeeeeeee eee eee eee eee eee eee eee eee ee eee eee eee meee eee meee eee eee ee eo Oe COMPARISON OF ABS DISABILITY SURVEYS continued eeeee meee eeeweewe wee wwe wwe wwe mew www e ewe eeweeweweewwwweeeeweeweweewweweeewenweene 1981 Areas of Communication specific relates to people who restriction have proxy interviews continued un
190. erm conditions resulting in a restriction CoCo ooo ooo EHEHHHHHHEHHEHEH EEE HEHEHE HHH HH HEHEHE HHH HHE HHH HHH HH HHH HEHEHE HEHEHE HEHEHE EEE OEE 196 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 eovovoeeveeveveeveeeeeeee eee ee Disability rate Disability status Employed Employee Employer Employment restriction Equivalised gross household income per week Equivalised gross household income quintiles Establishment Fall back carer eo eee eesreeereeeseeeeeeeeeeeeeeeeee GLOSSARY continued eeoeoevoeveeeveveeeeeee ee eee eee ee eee eo eee eee eee em ee eee eee eee The proportion of people with a reported disability in any given population or sub population e g age group Whether has a disability the level of core activity limitation and whether has a schooling or employment restriction Persons who reported that they had worked in a job business or farm during the reference week the full week prior to the date of interview or that they had a job in the reference week but were not at work A person who works for a public or private employer and receives remuneration in wages Salary a retainer fee by their employer while working on a commission basis tips piece rates or payment in kind or a person who operates his or her own incorporated enterprise with or without hiring employees A person who operates their own unincorporated economic enterprise or engages
191. es Mexico 0706 Christmas Island 0707 Cocos Keeling Islands 0708 Country Conf Alumina a secondary International Trade specific confidentiality restriction for exports of alumina to specific countries 0711 Denmark includes Greenland and Faeroe Islands 0712 Eurodollar Market 0713 Europe nec 0714 Falkland Islands includes South Georgia and South Sandwich Islands 0715 France includes Andorra and Monaco 0716 French Antilles Guadeloupe and Martinique 0717 French Southern and Antarctic Territories 0718 International Capital Markets 0721 International Institutions 0722 International Waters goods placed in the ocean outside any territorial waters or exclusive economic zone 0723 Italy includes Holy See and San Marino 0724 Johnston and Sand Islands 0725 Midway Islands 0726 Morocco includes places under Spanish sovereignty 0727 No Country Details overseas country detail for exports not available due to a confidentiality restriction 0728 Oceania nec 0731 Other ASEAN 0732 Other Asia nec excludes ASEAN 0733 Other EU 0734 Other Europe 0735 Other Europe excludes EU and OECD 0736 Other OECD 0737 Other OECD in Europe 0738 Pitcairn Island 0741 Reserve Bank Gold gold held by the Reserve Bank of Australia as part of reserve assets that cannot be allocated by country 0742 Ships and Aircraft Stores stores including fuel loaded onto foreign registered ships and aircraft 0743 Switzerland inclu
192. etitians 2394 Natural Therapy Professionals 2399 Other Health Professionals 2400 Education Professionals nfd 2410 School Teachers nfd 2411 PrePrimary School Teachers 2412 Primary School Teachers 2413 Secondary School Teachers 2414 Special Education Teachers 2420 University and Vocational Education Teachers nfd 2421 University Lecturers and Tutors 2422 Vocational Education Teachers 2490 Miscellaneous Education Professionals nfd 2491 ExtraSystemic Teachers 2492 English as a Second Language Teachers CoCo oo eo oOo HEEH HSH HHEH HEHEHE HEHEHE HHH HHH HEHEHE HEHEHE HHH HHH HHH HHH HHH HHH HEHEHE HEHE OEE OEE 130 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeeveeeeeeeeeeeee eee ee ee eee eee eee eo eee eee eee eee eee eee em ee meee eee eee eC ee ee ee ele EMPLOYMENT LABOUR FORCE ITEMS continued eo cece eereee ce eeseseeeeeeeeeeees 2493 Education Officers 2500 Social Arts and Miscellaneous Professionals nfd 2510 Social Welfare Professionals nfd 2511 Social Workers 2512 Welfare and Community Workers 2513 Counsellors 2514 Psychologists 2515 Ministers of Religion 2520 Miscellaneous Social Professionals nfd 2521 Legal Professionals 2522 Economists 2523 Urban and Regional Planners 2529 Other Social Professionals 2530 Artists and Related Professionals nfd 2531 Visual Arts and Crafts Professionals 2532 Photographers 2533 Designer
193. eveveeeeeeeeeeeeeeee ee eee eee eee eee eee ee eee ee em ee eee em ee em ee meee eee eC eC em em eo ee ele AIDS SELF CARE LABEL Whether uses aid s for dressing POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses aid to dress 2 Does not use aid to dress uses other aids 3 Does not use aids LABEL Whether uses aid s for eating POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses aid s for eating 2 Does not use aid s for eating but uses other aid s 3 Does not use aid s LABEL Whether uses aid s for incontinence POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses incontinence aid s 2 Does not use incontinence aid s but uses other aid s 3 Does not use aid s LABEL Whether uses aid s for meal preparation POPULATION All persons with a disability living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses aid s for meal preparation 2 Does not use aid s for meal preparation but used other aid s 3 Does not use aid s LABEL Whether uses aid s for showering bathing POPULATION All persons with a disability excludes persons with a non restricting disfiguremen
194. eys in 1981 1988 1993 and 1998 It collected detailed information on people with disabilities older people a those who provided care for older people and people with disabilities Information was also collected on people who were not in these populations allowing for comparison of their relative demographic and socioeconomic situations A selection of data from the survey was published in Disability Ageing and Carers Summary of Findings Australia 2003 cat no 4430 0 Most people with a disability live in their own homes In instances where care requirements are not able to be met at home people may move into cared accommodation To gain a comprehensive picture of disability in Australia the 2003 survey collected information about people living in households as well as those in cared accommodation such as nursing homes This was achieved by conducting the survey in two separate parts the household component and the cared accommodation component using different methods for data collection and processing The survey was conducted under the authority of the Census and Statistics Act 1905 and details were tabled in Parliament The ABS sought the cooperation of selected households and cared accommodation establishments and the confidentiality of all information provided by respondents was guaranteed Under its legislation the ABS cannot release identifiable information about households or individuals OVERVIEW The first comp
195. f overseas governments customarily excluded from the Census and estimated resident population figures overseas residents in Australia members of non Australian defence forces and their dependants stationed in Australia Coverage rules were applied which aimed to ensure that each person eligible for inclusion in scope was associated with only one dwelling and thus had only one chance of selection The household component and the cared accommodation component of the survey each had their own coverage rules as follows Usual residents of selected private dwellings were included in the survey unless they were away on the night of enumeration and had been away or were likely to be away for four months or more This was designed to avoid multiple selection of a person who might be spending time for instance in a nursing home and be eligible for selection there Visitors to private dwellings were excluded as the expectation was that most would have their chance of selection at their usual residence Boarding school pupils were excluded from coverage but other persons in non private dwellings in the scope of the survey were included if they had lived there or were likely to live there for four months or more CeCe eee eee eee eee EHH HEHEHE HHH HOHE HEHEHE HHH HEHEHE HEHEHE HHH HEHEHE HEHEHE OE OSE TEESE EES DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 SURVEY DESIGN AND OPERATION continued eoeo
196. factors environment and personal factors In this survey a person has a disability if they have a limitation restriction or impairment which has lasted or is likely to last for at least six months and restricts everyday activities This includes loss of sight not corrected by glasses or contact lenses loss of hearing where communication is restricted or an aid to assist with or substitute for hearing is used speech difficulties shortness of breath or breathing difficulties causing restriction chronic or recurrent pain or discomfort causing restriction blackouts fits or loss of consciousness difficulty learning or understanding incomplete use of arms or fingers difficulty gripping or holding things incomplete use of feet or legs m nervous or emotional condition causing restriction a restriction in physical activities or in doing physical work disfigurement or deformity mental illness or condition requiring help or supervision long term effects of head injury stroke or other brain damage causing restriction receiving treatment or medication for any other long term conditions or ailments and still restricted a any other long term conditions resulting in a restriction CoCo ooo EOE HEHEHE OHHH HEHEHE EEE EEE EEE HEHE HEHEHE HEHEHE EEE HHH HEHEHE SESE HEHEHE HHH HHH HHH HHH HEH HHH HEHEHE HEHEHE EEE EOS 6 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003
197. ffset Printers 4913 Binders and Finishers 4914 Screen Printers 4920 Wood Tradespersons nfd 4921 Wood Machinists and Turners 4922 Cabinetmakers 4929 Other Wood Tradespersons 4930 Hairdressers nfd CoCo o ooo oOo H HH HHHEH HEHEHE HEHEHE HHH H HEHEHE HEHEHE HEHEHE HHH HHH HHH HHH E EE OS ABS gt DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 133 APPENDIX DATA ITEM LIST continued eovovoeveeeeeeeeeeeeee ee ee ee eee eee eee eee eee oe eee ee em ee em ee mee mee em em em em oO em eC oO em oO eee ele EMPLOYMENT LABOUR FORCE ITEMS continued eo eee eesreeeeesreseeeeeeeeeeeeees 4931 Hairdressers 4940 Textile Clothing and Related Tradespersons nfd 4941 Clothing Tradespersons 4942 Upholsterers and Bedding Tradespersons 4943 Footwear Tradespersons 4944 Leather Goods Canvas Goods and Sail Makers 4980 Miscellaneous Tradespersons and Related Workers nfd 4981 Marine Construction Tradespersons 4982 Glass Tradespersons 4983 Jewellers and Related Tradespersons 4984 Florists 4985 Fire Fighters 4986 Drillers 4987 Chemical Petroleum and Gas Plant Operators 4988 Power Generation Plant Operators 4991 Defence Force Members Not Elsewhere Included 4992 Performing Arts Support Workers 4999 Other Miscellaneous Tradespersons and Related Workers 5000 Advanced Clerical and Service Workers nfd 5100 Secretaries and Personal Assistants nfd 5110 Secretaries and Personal Assistants nfd 5111 Secretar
198. fit 11 Partner Allowance 12 Youth Allowance 13 None of these 14 Don t know LONG TERM HEALTH LABEL Condition s producing main disability multiple response CONDITIONS IMPAIRMENTS POPULATION All persons with a disability living in households AND LIMITATIONS CATEGORIES See Type of long term condition reported LABEL Disability type that causes most problems POPULATION All persons with a disability living in households CATEGORIES 01 Loss of sight 02 Loss of hearing 03 Speech difficulties 04 Breathing difficulties 05 Chronic or recurring pain or discomfort 06 Blackouts fits or loss of consciousness 07 Slow at learning or understanding 08 Incomplete use of arms or fingers 09 Difficulty gripping or holding things 10 Incomplete use of feet or legs 11 Nervous or emotional condition 12 Restriction in physical activities or work 13 Disfigurement or deformity 14 Mental illness 15 Other limitations and restrictions 16 Not applicable LABEL Extended disability list from head injury stroke or other brain damage multiple response POPULATION All persons with a head injury stroke or other brain damage that restricts activity CATEGORIES 01 Loss of sight 02 Loss of hearing 03 Speech difficulties 04 Breathing difficulties 05 Chronic or recurring pain or discomfort 06 Blackouts fits or loss of consciousness 07 Slow at learning or understanding 08 Incomplete use of arms or fingers 09 Difficulty gripping or holding th
199. fying the presence of a couple relationship lone parent child relationship or other blood relationship Some households will therefore contain more than one family Formal assistance Help provided to persons with one or more disabilities by organisations or individuals representing organisations whether for profit or not for profit government or private other persons excluding family friends or neighbours as described in informal assistance who provide assistance on a regular paid basis and who are not associated with any organisation Full time or part time worker Full time work is defined as working 35 hours or more per week in all jobs For employed persons full time or part time status is determined by the actual and or usual number of hours worked in all jobs during the reference period Gross current personal income Regular and recurring cash receipts including monies received from wages and salaries government pensions and allowances and other regular receipts such as superannuation workers compensation child support scholarships profit or loss from own unincorporated business or partnership and property income Gross income is the sum of current income from all these sources before income tax or the Medicare levy have been deducted Gross household income per The sum of the gross current personal incomes of each household resident aged 15 week years and over Households where income for at least one person is not know
200. g loss CATEGORIES See Type of long term condition reported LABEL Main condition causing loss of sight POPULATION All persons who have loss of sight not corrected by glasses or contacts CATEGORIES See Type of long term condition reported LABEL Main condition causing mental illness POPULATION All persons who need help or supervision due to mental illness or condition CATEGORIES See Type of long term condition reported LABEL Main condition causing restriction in physical activities or in doing physical work POPULATION All persons who have a restriction in physical activities or in doing physical work CATEGORIES See Type of long term condition reported LABEL Main condition causing shortness of breath or difficulty breathing POPULATION All persons who have shortness of breath or breathing difficulties CATEGORIES See Type of long term condition reported LABEL Main condition causing speech difficulties POPULATION All persons who have speech difficulties CATEGORIES See Type of long term condition reported CoCo oo ooo OOOOH HEHEHE HOE EEE HEHEHE EEE HEHEHE HEHEHE HEHEHE EHH HH HHH H HEHEHE HEHEHE HHH HHH HHH HHH HEHEHE HEHEHE HEHEHE HEHE EEO EEO OE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 111 APPENDIX DATA ITEM LIST continued eovovoeveveveveeeeeeeeeeee eee eee eee eee eee ee eee eee eee eee eee eee eee ee eeewe eee eee eee eee DISABILITY IDENTIFICATION LABEL Main
201. g to measure the need for assistance to manage own behaviour A Activity not performed establishments only LABEL Whether needs assistance with relationships because of disability POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Needs assistance with relationships 2 Does not need assistance with relationships 3 Too young to measure the need for assistance with relationships 4 Activity not performed establishments only OS ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 47 APPENDIX DATA ITEM LIST continued eoevovoeveveeveeeeeeeeeeeeee eee eee eee eee eee eee eee eee ee eee eee eee em ee eee eee eee ee ee Oe ASSISTANCE NEED FOR LABEL Number of health care tasks for which assistance is needed because of disability ASSISTANCE WITH HEALTH POPULATION All persons aged 5 or over with a disability living in households and CARE persons with a disability living in health establishments excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 None 1 One 2 Two 3 Three 4 Four 5 Five 6 Six 9 Not applicable LABEL Whether needs assistance with footcare because of disability POPULATION All persons aged 5 or over with a disability living in households and persons with a disability living in health establishments excludes persons with a non restricting disfigureme
202. graduate Degree Level not further defined Doctoral Degree Level not further defined Higher Doctorate Doctorate by Research Doctorate by Coursework Professional Specialist Qualification at Doctoral Degree Level Master Degree Level not further defined Master Degree by Research Master Degree by Coursework Professional Specialist Qualification at Master Degree Level Graduate Diploma and Graduate Certificate Level not further defined Graduate Diploma Level not further defined Graduate Diploma Graduate Qualifying or Preliminary Professional Specialist Qualification at Graduate Diploma Level Graduate Certificate Level not further defined Graduate Certificate Professional Specialist Qualification at Graduate Certificate Level Bachelor Degree Level not further defined Bachelor Degree Level not further defined Bachelor Honours Degree Bachelor Pass Degree Advanced Diploma and Diploma Level not further defined Advanced Diploma and Associate Degree Level not further defined Advanced Diploma Associate Degree Diploma Level not further defined Diploma Certificate Level not further defined Certificate III IV Level not further defined Certificate IV Certificate III Certificate I II Level not further defined Certificate II Certificate I Level of non school qualification currently studying for ASCED POPULATION All persons aged 15 or over living in households currently studying CATEGORIES 000 Not studying for a
203. hemist 08 Other health worker 09 Psychologist 10 Psychiatrist 11 Counsellor 12 Public guardian 13 Cleaner 14 Housekeeper 15 Gardener 16 Handyperson 17 Tradesperson 18 Landlord 19 Unit manager 20 Meals on wheels 21 Food retailer 22 Accountant 23 Financial adviser 24 Lawyer 25 Home care worker 26 Voluntary worker 27 Other formal provider 28 Male partner 29 Female partner 30 Father 31 Mother 32 Son 33 Daughter 34 Son in law 35 Daughter in law 36 Other male relative 37 Other female relative 38 Male friend neighbour 39 Female friend neighbour COC CCS HOES EEE SHS HHEHEH HEHEHE HEHEHE HEHEHE HEHEHE HEHEHE HHH HHH HHH HHH HEHEHE HEHEHE HEHEHE EEO OOO OS 52 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevovoeveveeveeeeeeeeeee eee eee eee eee eee eee ee ee oe eee ee em eee ee eee mee meme ee em oO eo em oO eo ee ele ASSISTANCE PROVIDERS REPEATING DATASET continued ASSISTANCE RECEIPT OF ASSISTANCE SUMMARY eo eres esreeeeeeeseeeeeeeeeeeeeeee LABEL Record level identifier for SuperCROSS Assistance providers level POPULATION All providers of formal or informal assistance excludes persons with a non restricting disfigurement or deformity only CATEGORIES Identifier LABEL Type of organisation that assistance provider belongs to POPULATION All providers of formal or informal assistance excludes persons with a non restricting disfigurement o
204. her Mother Son Daughter Father in law Mother in law Other male relative Other female relative Friend or neighbour male Friend or neighbour female Formal provider Has no main source of assistance LABEL Type of respite care used in last three months multiple response POPULATION All primary carers living in households CATEGORIES 1 Used a day care centre in the last three months 2 Used in home respite in the last three months 3 Used residential respite in the last three months 4 Used respite service other than day care centre in home or residential in the last three months 5 Has used respite care but not in the last three months 6 Has never used respite care 7 Not applicable LABEL Whether fall back carer lives with main recipient of care POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Fall back carer lives with main recipient 2 Fall back carer does not live with main recipient 3 Does not have a fall back carer Does not know LABEL Whether main recipient of care has a fall back informal carer POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Has a fall back informal carer 2 Does not have a fall back informal carer 3 Don t know LABEL Whether primary carer has unmet need for assistance on weekdays POPU CATE 0 1 2 LABEL POPU CATE 0 1 2 eo ee eeeeeeesresreseseeseeseeeeeeeeeeeeeeees ABS DISABILITY AGEING AND CARERS
205. holds and employed CATEGORIES 0 Not applicable 1 Usually works most hours at home 2 Usually works most hours away from home 3 Does not usually work any hours at home LABEL Hours usually worked POPULATION All persons aged 15 or over living in households and employed CATEGORIES 00 Not applicable 01 97 98 Less than one hour no hours CoCo ooo eo H HEHEHE HEHEHE HHH HHH HHH SHEE HEHEHE HHH HHH HHH HHH HEH HEHEHE HEHEHE HHO EEO EEO OS 126 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeeveeeeeeeeeeeeee ee eee eee eee eee eee eee eee eee eee eee eee wee eee eee e ee eeeeeeeeee EMPLOYMENT LABOUR FORCE ITEMS continued LABEL Hours usually worked in ranges POPULATION All persons aged 15 or over living in households and employed CATEGORIES 0 o N AN KW NY 9 LABEL Not applicable None or less than one hour 1 15 hours 16 24 hours 25 34 hours 35 39 hours 40 hours 41 48 hours 49 hours or more Hours not stated Industry of employment Input POPULATION All persons aged 15 or over living in households CATEGORIES 975 976 977 978 980 981 982 983 984 985 986 987 988 989 990 991 992 993 994 943 LABEL Agriculture forestry and fishing Mining Manufacturing Electricity gas and water supply Construction Wholesale trade Retail trade Accommodation cafes and restaurants Transport and storage
206. home maintenance or gardening LABEL Whether needs assistance with property maintenance because of disability or age POPULATION All persons aged 15 or over with a disability or aged 60 years or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Needs assistance with property maintenance 2 Does not need assistance with property maintenance LABEL Number of self care tasks for which assistance is needed because of disability POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 None One Two Three Four Five Six ON KR WN e Not applicable LABEL Whether needs assistance or has difficulty with self care because of disability POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Needs assistance or has difficulty with self care 2 Does not need assistance or have difficulty with self care LABEL Whether needs assistance or has difficulty with private transport because of disability or age POPULATION All persons aged 16 or over with a disability and persons aged 60 or over living in households excludes persons with a non restricting disfigurement or deformity only CoCo Oooo OOH HEE EEE EOE HEHEHE EEE EEE HEHEHE SHEHHEHEHEH HEHEHE HEHEHE HHH HEHEHE HHH HEHEHE HHH HHH HHH HOH HHH HEHE
207. ia 2003 cat no 4436 0 Web site address www abs gov au Releases from previous The following publications relate to the previous surveys conducted in 1981 1988 1993 surveys and 1998 CO CoCo ooo HH HEHEHE HEHEHE HEHEHE HHH ESSE HEHEHE HHH HHH HHH HHH HHH HEHEHE HHO HEHEHE EEE OOO ES 24 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 SURVEY OUTPUT AND DISSEMINATION continued eovovoeeveeveeeeeeeeeeee eee eee eee eee ee eee eee eee eee eee eee eee eee eee e eee eee e eee eeee Releases from previous Please note older publications may no longer be available through ABS bookshops but surveys continued are available through ABS libraries SURVEY OF HANDICAPPED PERSONS 1981 Handicapped Persons Australia 1981 cat no 4343 0 SURVEY OF DISABLED AND AGED PERSONS 1988 Disability and Handicap Australia 1988 cat no 4120 0 Domestic Care of the Aged Australia 1988 cat no 4121 0 Carers of the Handicapped at Home Australia 1988 cat no 4122 0 SURVEY OF DISABILITY AGEING AND CARERS 1993 Disability Ageing and Carers Australia Summary of Findings 1993 cat no 4430 0 Disability Ageing and Carers User Guide Australia 1993 cat no 4431 0 Disability Ageing and Carers Australia Disability and Disabling Conditions 1993 cat no 4433 0 Disability Ageing and Carers Australia Visual Impairment 1993 cat no 4434 0 Disability Ageing and Carers Australia Hearing Impairmen
208. ible for service Service costs too much Service does not provide sufficient hours Other LABEL Main reason has unmet need for informal paperwork assistance POPULATION All persons aged 15 or over with a disability or aged 60 or over living in households who receive assistance with paperwork because of disability or old age CATEGORIES 0 A WO Ne 5 Not applicable Does not need more help from family or friends Has not asked family or friends Needs more help than family friends can provide Family friends not available too far away Other LABEL Number of formal sources of paperwork assistance POPULATION All persons aged 15 or over with a disability or aged 60 or over living in house holds who need assistance with paperwork because of disability or old age CATEGORIES 0 1 eee esses sreeesreeeseseeeeeeeeeeeeeeeeeeeee ABS gt None One Coe eee eee eeeeseseeeeeeeeeeeeEEeEeEEEEEEEEE SEH EEE HEHE HEHEHE EEE E EEE EES DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 65 APPENDIX DATA ITEM LIST continued eoevovoeveveeveee eee eee eee ee ee ee eee eee eee eee eee ee eee eee eee eee eee eee eee eee eee eeeeee ASSISTANCE RECEIPT OF 2 Two ASSISTANCE WITH 9 Not applicable PAPERWORK continued A LABEL Number of informal sources of paperwork assistance POPULATION All persons aged 15 or over with a disability or aged 60 or over living in households who need assistance with pa
209. ided information about the purpose of the survey and how it would be conducted Both contained the ABS guarantee of confidentiality and the brochure also provided answers to some of the more commonly asked questions OVERVIEW The cared accommodation component completes the picture of the prevalence of health conditions disability and levels of specific limitation or restriction in Australia It also provides an indication of the balance between cared accommodation and community care for people with a disability by age In the 1981 and 1988 surveys interviews were held with residents of cared accommodation Many of these were not able to respond for themselves and it was necessary to try and arrange for family members who may not have been living nearby to come and provide proxy interviews Often it was not possible to find anyone who knew enough to provide the required information For the 1993 survey the approach changed A mail back paper form was used with a staff contact person as the respondent The data collected were limited to the information a staff member could be expected to know from records This method was also used for the 1998 and 2003 surveys QUESTIONNAIRES The administrators of selected cared accommodation establishments were sent a letter informing them of the selection of their establishment in the survey This letter also provided information on the purpose of the survey how the data would be used
210. ient of care lives alone 2 Main recipient of care does not live alone LABEL Whether primary carer lives with main recipient or care POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Lives with main recipient of care 2 Does not live with main recipient of care LABEL Frequency of attendance by main recipient of care at supervised activity program POPULATION All primary carers living in households whose main recipient of care is a co resident with a profound or severe core activity limitation or is slow at learning or understanding CATEGORIES 00 Not applicable 01 Does not attend supervised activity program 02 5 days a week or more for less than 4 hours a day 03 5 days a week or more for 4 hours or more a day 04 3 4 days a week for less than 4 hours per day 05 3 4 days a week for 4 hours or more per day 06 1 2 days a week for less than 4 hours per day 07 1 2 days a week for 4 hours or more per day 08 Once a fortnight for less than 4 hours 09 Once a fortnight for 4 hours or more 10 Attends supervised activity program occasionally LABEL Hours worked weekly by main recipient of care POPULATION All primary carers living in households whose main recipient of care is a co resident aged 15 or over CATEGORIES Continuous CoCo ooo eo ooo HOH HOHE HEHEHE HOE HEHEHE HEHEHE EH HEHEHE HEHEHE HEHEHE THEE HEHEHE EEE EOE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 1
211. ies and Personal Assistants 5900 Other Advanced Clerical and Service Workers nfd 5910 Advanced Numerical Clerks nfd 5911 Bookkeepers 5912 Credit and Loans Officers 5990 Miscellaneous Advanced Clerical and Service Workers nfd 5991 Advanced Legal and Related Clerks 5992 Court and Hansard Reporters 5993 Insurance Agents 5994 Insurance Risk Surveyors Investigators and Loss Adjusters 5995 Desktop Publishing Operators 5996 Travel Attendants 5999 Other Miscellaneous Advanced Clerical and Service Workers 6000 Intermediate Clerical Sales and Service Workers nfd 6100 Intermediate Clerical Workers nfd 6110 General Clerks nfd 6111 General Clerks 6120 Keyboard Operators nfd 6121 Keyboard Operators 6130 Receptionists nfd 6131 Receptionists 6140 Intermediate Numerical Clerks nfd 6141 Accounting Clerks 6142 Payroll Clerks 6143 Bank Workers 6144 Insurance Clerks 6145 Money Market and Statistical Clerks 6150 Material Recording and Despatching Clerks nfd 6151 Production Recording Clerks 6152 Transport and Despatching Clerks 6153 Stock and Purchasing Clerks 6190 Miscellaneous Intermediate Clerical Workers nfd Cee ee eee eee ee eee eeeeeseesEeeeeEeeEE EEE EEE HEHEHE HEHEHE HEHEHE HEHEHE OEE E TELE EEES 134 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovoeveveeveeeeee eee eee eee eee eee eee eee ee eee eee eo eee em eee ee em ee mem ee meee ee em oO oO ee el
212. iewers A high proportion of coding was able to be automated within the CAI instrument through the use of pick lists and trigram coders Post interview however further coding was needed for responses to questions on occupation industry and sector of employment country of birth educational qualifications health conditions and family relationships Confirmed primary carers completed a paper questionnaire at the time of interview Interviewers later entered these responses into the CAI instrument Prior to data entry all questionnaires underwent a thorough clerical check Staff checked that questionnaires were complete internally consistent and otherwise ready for entry Instructions were provided on how to edit questionnaires when this was not the case Occasionally it was necessary to telephone the health establishment to collect missing information or to clarify responses Questionnaire responses were then manually entered into a purpose built computer assisted data entry CADE system by trained data entry staff Considerable effort was made to capture and retain as many different reported health conditions as possible For example the main underlying health condition was requested for each screen question On forms where the same health condition was reported twice as the cause of two different impairments and another health condition was also listed as the cause of one of these impairments a decision was made to retain the two diff
213. ilies living in households in private dwellings CATEGORIES Continuous LABEL Number of persons aged 80 84 in household POPULATION All households CATEGORIES Continuous LABEL Number of persons aged 85 and over in family POPULATION All families living in households in private dwellings CATEGORIES Continuous LABEL Number of persons aged 85 and over in household POPULATION All households CATEGORIES Continuous LABEL Number of persons aged under 15 in family POPULATION All families living in households in private dwellings CATEGORIES Continuous LABEL Number of persons aged under 15 in household POPULATION All households CATEGORIES Continuous LABEL Number of persons aged under 15 in income unit POPULATION All income units in private dwellings CATEGORIES Continuous CoC eo eee eee eo HoH HOH HOHE EEE HEHE HHH HEHEHE HEHEHE HEHEHE HEHEHE HHH HEHEHE HOHE EEO EOE E EEE EEE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 105 APPENDIX DATA ITEM LIST continued eoeovoeceveveveeeveeeeeeeeeeeeee eee eee eee eee eee eee eee eee eee eee eee ee eeee ee eeeeeeeeee DEMOGRAPHICS continued LABEL Number of persons in family POPULATION All families living in households in private dwellings CATEGORIES Continuous LABEL Number of persons in household POPULATION All households CATEGORIES Continuous LABEL Number of persons in income unit POPULATION All income units in p
214. ility eligible for conflicting payment type 1 2 3 Changed mind or decided not necessary 4 Other 5 Currently receiving Carer Payment 6 Has not looked at eligibility LABEL Main reason primary carer did not use respite care in the last three months POPULATION All primary carers living in households CATEGORIES 0 Not applicable Does not need it Not available in area Available respite not suited to needs No affordable respite available 1 2 3 4 5 Main recipient of care does not want it 6 Carer prefers not to use it 7 Other reason 8 Used respite in the last three months 9 Has never used respite care LABEL Main reason primary carer has never used respite care POPULATION All primary carers living in households CATEGORIES 0 Not applicable Does not need service Respite care services not available in area Available services not suited to needs No affordable services available Recipient does not want service Carer does not want service NAVU KR WN Other reason 8 Has used respite care LABEL Main reason primary carer has not looked at eligibility for Carer Payment POPULATION All primary carers living in households CATEGORIES 0 Not applicable Not heard of it Pride Would not be eligible Dual eligibility eligible for conflicting payment type Not necessary Does not think of self as a carer Other Currently receiving it SO AN WDWN KR WN e Looked at eligibility but does not receive it CoCo
215. ility Pension DVA 2 No one in the family receives a Disability Pension DVA LABEL Whether anyone in family receives War Widow s Pension DVA POPULATION All families living in households CATEGORIES 0 Not applicable 1 A person or persons in family receives the War Widow s Pension DVA 2 Noone in the family receives the War Widow s Pension DVA LABEL Whether anyone in family receives other minor pensions or benefits POPULATION All families living in households CATEGORIES 0 Not applicable 1 A person or persons in family receives other minor pensions or benefits 2 Noone in the family receives other minor pensions or benefits CoCo ooo ooo HEHEHE SOOO OEE EEE EEE EEE HEHEHE HEHE HEHEHE EHH E HHH H HEHEHE HEHEHE HEHEHE HHH HHH HHH HOES HEHEHE HEHEHE HEHEHE EEE OOOO ES ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 141 APPENDIX DATA ITEM LIST continued eovovoeveveeveeeeeeeeeeee ee eee eee eee eee eee eee eee eee eee eee eee eee eee eee e eee eeeeeeee INCOME FAMILY LEVEL LABEL Whether anyone in family receives overseas pensions benefits continued POPULATION All families living in households CATEGORIES 0 Not applicable 1 A person or persons in family receives overseas pensions or benefits 2 No one in the family receives overseas pensions or benefits LABEL Whether anyone in family receives parenting payment POPULATION All families living in households CATEGORIES 0 Not applicable 1
216. in households who are unemployed or not in the labour force and are not retired CATEGORIES 0 Not applicable 1 Would like to work full time CoCo ooo ooo EHH EEE HEHEHE HEHEHE HEHEHE EEE HEHEHE HEHEHE HEHEHE HEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HOES HHH HEHEHE HEHEHE EEE OEE EOS ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 171 APPENDIX DATA ITEM LIST continued eoevovoeveveeveeeeeeeeeeeeeeee ee eee eee eee eee ee eee eee ee eee eee meee em eo em meee meme eC eee eee oe PRIMARY CARERS EFFECTS OF THE CARING ROLE WORK continued PRIMARY CARERS RECIPIENT INFORMATION 2 Would like to work part time 3 Would not like to work LABEL Number of recipients of care POPULATION All persons living in households CATEGORIES Continuous LABEL Person number of main recipient of care of a primary carer POPULATION All primary carers living in households CATEGORIES Continuous LABEL Person number of principal carer POPULATION All principal carers living in households as identified by a co resident with a disability CATEGORIES Continuous LABEL Person number s of principal care recipient s multiple response POPULATION All principal carers living in households as identified by a co resident with a disability CATEGORIES 00 Not applicable 01 01 02 02 03 03 04 04 05 05 06 06 07 07 08 08 09 09 10 10 11 11 12 12 13 13 14 14 15 15 16 16 17 17 18 18 19 19 20 20 LAB
217. in recipient of care to manage behaviour POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Usually assists or guides with management of behaviour 2 Does not usually assist or guide with management of behaviour 3 Not stated LABEL Whether primary carer usually assists or supervises main recipient of care in using public transpor POPULATION All primary carers living in households whose main recipient is aged 5 or over personal interview CATEGORIES 0 Not applicable 1 Usually supervises or assists with using public transport 2 Does not usually supervise or assist with using public transport 3 Main recipient of care does not use public transport LABEL Whether primary carer usually drives main recipient of care in private transport POPULATION All primary carers living in households whose main recipient is aged 5 or over personal interview CATEGORIES 0 Not applicable Usually has to drive main recipient of care Does not usually have to drive main recipient of care QW Ne Main recipient of care does not leave home Cee ee eeeeeseseeeeseeeeseseeeeeeeeeseeeeeeeEeeeeeEE EEE HEE EEE EEE EEE OEE EEE E TEE EES ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 181 APPENDIX DATA ITEM LIST continued eoevovoeeveeveeeeeeeeeeee ee ee eer ee eee eee eee eee eo ee eee eee e em eee ee em ee eee mee eC ee em eo ee Oe RESTRICTION REPEATING LABEL Cause of brain damage DATAS
218. ings 10 Incomplete use of feet or legs 11 Nervous or emotional condition 12 Restriction in physical activities or work 13 Disfigurement or deformity CoCo ooo ooo HEHEHE HSE OEE EEE EEE HEHEHE HEHEHE HEHEHE HEHEHE HEHEHE HHH HHH HEHEHE EHH HHH HHH HHH HHS HOHE HEHEHE EHH HEHEHE EEO EO EOE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 147 APPENDIX DATA ITEM LIST continued eovovoeveveeveeeeeeeeeeee eee eee eee eee eee eee eee ee ee em ee em ee eee eee me em ee eC em ee ee eC me em ee ele LONG TERM HEALTH 14 Mental illness CONDITIONS IMPAIRMENTS 15 Other disability AND LIMITATIONS continued 16 Not applicable LABEL Whether further condition s cause restriction POPULATION All persons who have further conditions not identified by the ARA excluding personal interviews or proxies who were also the ARA CATEGORIES 0 Not applicable 1 Restriction caused by further condition s 2 No restriction caused by further condition s LABEL Whether hearing loss makes it difficult to communicate POPULATION All persons with a hearing loss living in households who do not use a hearing aid or cochlear implant CATEGORIES 0 Not applicable 1 Hearing loss makes it difficult to communicate 2 Hearing loss does not make it difficult to communicate LABEL Whether limited or restricted by hearing loss POPULATION All persons with a loss of hearing CATEGORIES 0 Not applicable 1 Is limited or restricted by hearing los
219. ion because of disability or old age CATEGORIES 0 Not applicable 1 None 2 Informal only 3 Formal only 4 Informal and formal LABEL Extent to which need for mobility assistance received met POPULATION All persons with a disability living in households who received assistance with mobility CATEGORIES 0 Not applicable 1 Fully 2 Partly 3 Notatall LABEL How became aware of main source of mobility assistance POPULATION All persons with a disability living in households who received assistance with mobility CATEGORIES 0 Not applicable Friend or relative Phone book newspaper or advertisement Local health centre or clinic Government department Local council General practitioner NAV KR WN e Counsellor social worker or welfare officer Cee eee eee eseeeeeseeseeseseeeeeeeeeeEeeEeeEeEeEeEeEE EEE EH EEE HEHEHE HEE EOE E EEE EEO ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 63 APPENDIX DATA ITEM LIST continued eovovoevveeveeeveeeeeeeee ee eee eee eee eee eee eee eee eee eee eee eee ee eee ee ee ee eee eeeeeee ASSISTANCE RECEIPT OF 8 Other health worker ASSISTANCE WITH MOBILITY 9 Other continued LABEL Main reason has unmet need for formal mobility assistance POPULATION All persons with a disability living in households who received assistance with mobility CATEGORIES 0 Not applicable Did not know of service Need not important enough Wont ask because of pride Unable to arrang
220. is aged 15 years or over personal interview CATEGORIES 0 Not applicable 1 Usually assists with household tasks 2 Does not usually assist with household tasks LABEL Whether primary carer usually assists main recipient of care with managing incontinence POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Usually assists with managing incontinence 2 Does not usually assist with managing incontinence LABEL Whether primary carer usually assists main recipient of care with mobility tasks POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Usually assists with mobility tasks 2 Does not usually assist with mobility tasks LABEL Whether primary carer usually assists main recipient of care with moving about the house POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Usually assists with moving about the house 2 Does not usually assist with moving about the house LABEL Whether primary carer usually assists main recipient of care with moving around away from home POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Usually assists with moving around away from home 2 Does not usually assist with moving around away from home LABEL Whether primary carer usually assists main recipient of care with paperwork tasks POPULATION All primary carers living in households whose main recipient is aged 15 years or over perso
221. ital City Statistical Divisions metropolitan regions and into major urban centres as well as minor urban and rural parts in non metropolitan regions Each stratum contains a number of Population Census Collection Districts CDs containing on average about 250 dwellings The sample was selected to ensure that each dwelling within the same stratum had the same probability of selection In capital cities and other major urban or high population density areas the sample was selected in three stages asample of CDs was selected from each stratum with probability proportional to the number of dwellings in each CD a each selected CD was divided into groups of dwellings or blocks of similar size and one block was selected from each CD with the probability proportional to the number of dwellings in the block within each selected block a list of all private dwellings was prepared and a systematic random sample of dwellings was selected In strata with low population density each stratum was initially divided into units usually corresponding to towns or LGAs or combinations of both One or two units were then selected from each stratum with probability of selection proportional to the number of dwellings in each unit Within selected units the sample of dwellings was arrived at in the same manner as outlined for high population density areas The effect of this approach is that the sample was not necessarily selected from each LGA Rather those
222. k up an object from the floor or a cannot use public transport or can use public transport but needs help or supervision or needs no help or supervision but has difficulty using public transport Assistance is help or supervision in common activities of daily life such as showering or dressing moving around housework and gardening or using transport The need for help must be because of the person s disability health condition or old age Where people cannot cook meals or drive for instance because they have never learned these skills they are not included as having a need for assistance Need includes but is not limited to unmet need CoCo ooo ooo EEE H HEHEHE HEHEHE EEE HEHEHE HHH HEH HHH EHH HHH HHH HHH HHO HHHEHHHHEH HEHEHE OEE EEO OE 8 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 SURVEY CONTENT continued Limitation or restriction The activities associated with specific limitation or restriction and the tasks associated activities and tasks with core activities and with the other activities where need for assistance is measured are shown in the table on the following page CoCo ooo oO EHE HEHEHE HEH HEHEHE HEHEHE HHH HEHEHE HH HEH HHH HHH HHH HHH HEHEHE HES EHH HEHEHE EEE OEE EOE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 9 SURVEY C ONTENT continued eoevovoeeveeeeeeeeeeeeee ee eee eee eee eee eee eee eee eee eee eee eee eee eee e
223. ke because of emotional problems LABEL Whether accomplished less than would like during last four weeks because of physical health POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Accomplished less than would like because of physical health 2 Did not accomplish less than would like because of physical health LABEL Whether limited in climbing stairs POPULATION All primary carers living in households CATEGORIES 0 1 2 3 Not applicable Limited a lot Limited a little Not limited at all in climbing stairs LABEL Whether limited in kind of work or regular activities as result of physical health in last 4 weeks POPU CATE 0 1 2 LABEL POPU CATE 0 1 2 3 eee eee eeeeeresreseseeeeeeeeeeeeeeeeeeeees ABS gt DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE LATION All primary carers living in households GORIES Not applicable Limited in kind of work or regular activities Not limited in kind of work or regular activities Whether limited in moderate activities LATION All primary carers living in households GORIES Not applicable Limited a lot Limited a little Not limited at all in moderate activities Cece ee eeeeeseeseeseeeeeeeeeeeeeeeeeeeeeeeeeeEH EEE EEE HELE EEE TEE EEE EES 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevovoeveveeveeeeeeeeeeee eee eee eee eee eee eee eee ee eee ee em ee ee ee ee mee eee eee eC eC em oO ee el e
224. lances in the last 3 months POPULATION All persons aged 15 or over with a disability or aged 60 years or over living in households who used the Internet in the last 12 months excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Paid bills transferred funds or checked balances 2 Did not pay bills etc don t know LABEL Whether has access to a computer at home POPULATION All households CATEGORIES 0 Not applicable 1 Has access to a computer 2 Does not have access to a computer 3 Don t know uncertain LABEL Whether has access to the Internet at home POPULATION All households CATEGORIES 0 Not applicable 1 Has access to the internet 2 Does not have access to the internet 3 Don t know uncertain LABEL Whether used a computer in the last 12 months POPULATION All persons aged 15 or over with a disability or aged 60 years or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Used a computer at home only 2 Used a computer away from home only 3 Used a computer both at home and away from home 4 Did not use a computer in the last 12 months LABEL Whether used the Internet in the last 12 months POPULATION All persons aged 15 or over with a disability or aged 60 years or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1
225. last 12 months excludes persons with a non restricting disfigurement or deformity only CATEGORIES 01 Home 02 Work business 03 School 04 TAFE tertiary institution 05 Public library 06 Government agency department shopfront 07 Internet cyber cafe or similar 08 Community or voluntary organisation 09 Neighbour s friend s relative s house 10 Other 11 Not applicable LABEL Where computer used in the last 12 months multiple response POPULATION All persons aged 15 or over with a disability or aged 60 years or over living in households who used a computer in the last 12 months excludes persons with a non restricting disfigurement or deformity only CATEGORIES 01 Home 02 Work business 03 School 04 TAFE tertiary institution 05 Public library 06 Government agency department shopfront 07 Internet cyber cafe or similar CoC ooo ooo OOOOH ESO HOE HOE HEHEHE EEE EEE HEHEHE SEH HEHEHE HEHEHE HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HOHE HEHEHE EHH HO HEHEHE EE EOE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 85 APPENDIX DATA ITEM LIST continued eoeovoeveeveeeeeeeeeeee eee eee eee eee eee eo eee eee eee eee em ee em ee eee mee ee em em oO em eC oO em em ee el ele COMMUNITY PARTICIPATION 08 Community or voluntary organisation COMPUTER USE continued 09 Neighbour s friend s relative s house 10 Other 11 Not applicable LABEL Whether accessed the Internet to pay bills transfer funds or check account ba
226. ld age CATEGORIES 0 Not applicable 1 Need fully met for non personal assistance 2 Need partly met for non personal assistance 3 Need not met at all for non personal assistance LABEL Extent to which need for personal activity assistance met cognition and emotion excluded POPULATION All persons with a disability living in households who need assistance with a personal activity excluding cognition and emotion because of disability CATEGORIES 0 Not applicable 1 Need fully met for personal activities 2 Need partly met for personal activities 3 Need not met at all for personal activities LABEL Extent to which need for personal activity assistance met cognition and emotion included POPULATION All persons with a disability living in households who need assistance with a personal activity because of disability CATEGORIES 0 Not applicable 1 Need fully met for personal activities 2 Need partly met for personal activities 3 Need not met at all for personal activities LABEL Type of assistance received in broad areas of activity POPULATION All persons with a disability or aged 60 or over living in households who need assistance because of disability or old age CATEGORIES 0 Not applicable 1 None 2 Informal only 3 Formal only 4 Informal and formal seccooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooo 54 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX
227. lds whose main recipient of care is a co resident CATEGORIES 0 Not applicable 1 Is limited or restricted by hearing loss 2 Is not limited or restricted by hearing loss LABEL Whether main recipient of care is limited or restricted in physical activities or in physical work POPULATION All primary carers living in households whose main recipient of care is a co resident CATEGORIES 0 Not applicable 1 Limited or restricted in physical activities or in doing physical work 2 Not limited or restricted in physical activities or in doing physical work LABEL Whether main recipient of care is receiving treatment for long term condition s POPULATION All primary carers living in households whose main recipient of care is a co resident CATEGORIES 0 Not applicable 1 Not receiving treatment for any long term condition 2 Receiving treatment for long term condition s and is limited or restricted 3 Receiving treatment for long term condition s but is not limited or restricted LABEL Whether main recipient of care needs help or supervision due to a mental illness or condition POPULATION All primary carers living in households whose main recipient of care is a co resident CATEGORIES 0 Not applicable 1 Needs help or supervision doing things due to a mental illness or condition 2 Does not need help or supervision doing things due to a mental illness or condition Cee eee eee eee eeeeeeeseeseseeeeEeeeEEeEeEEEEEE EEE EEE EEE HEHEHE HEHEHE OEE EE
228. le 1 Carer lives with each recipient of care 2 Carer does not live with any recipient of care 3 Carer lives with at least one recipient of care and does not live with at least one recipient of care LABEL Whether possible primary carer usually assists main recipient of care with communication tasks POPULATION All possible primary carers aged 15 or over living in households personal interview CATEGORIES 0 Not applicable 1 Usually assists with communication tasks 2 Does not usually assist with communication tasks LABEL Whether possible primary carer usually assists main recipient of care with mobility tasks POPULATION All possible primary carers aged 15 or over living in households personal interview CATEGORIES 0 Not applicable 1 Usually assists with mobility tasks 2 Does not usually assist with mobility tasks LABEL Whether possible primary carer usually assists main recipient of care with self care tasks POPULATION All possible primary carers aged 15 or over living in households personal interview CATEGORIES 0 Not applicable 1 Usually assists with self care tasks 2 Does not usually assist with self care tasks LABEL Whether primary carer usually assists main recipient of care to communicate with strangers POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Usually assists to communicate with strangers 2 Does not usually assists to communicate with strangers Coe eee eee eee eae HHO HEHEHE
229. lt SELF PERCEIVED HEALTH LABEL Whether work or activities not done as carefully as usual due to emotional STATUS SF 12 ITEMS problems in last 4 weeks continued POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Did not do work or other activities as careful as usual because of emotional problems 2 Did work or activities as careful as usual SELF PERCEIVED HEALTH LABEL SF 12 Mental health scale range STATUS SUMMARY ITEMS POPULATION All primary carers living in households CATEGORIES Continuous LABEL SF 12 Physical health scale range POPULATION All primary carers living in households CATEGORIES Continuous TRANSPORT PRIVATE LABEL Driver status POPULATION All persons aged 17 or over with a disability and persons aged 60 or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable Licensed and drives daily Licensed and drives at least once a week Licensed and drives at least once a month Licensed and drives at least once a year Licensed but does not drive car at all AU KR WN e Not licensed 7 Notasked or does not leave home LABEL Extent of difficulty travelling because of disability or age POPULATION All persons aged 16 or over with a disability and persons aged 60 or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Alwa
230. lth ICF defines disability as an umbrella term for impairments activity limitations and participation restrictions It denotes the negative aspects of the interaction between an individual with a health condition and that individual s contextual factors environment and personal factors In this survey a person has a disability if they report that they have a limitation restriction or impairment which has lasted or is likely to last for at least six months and restricts everyday activities This includes loss of sight not corrected by glasses or contact lenses loss of hearing where communication is restricted or an aid to assist with or substitute for hearing is used speech difficulties shortness of breath or breathing difficulties causing restriction chronic or recurrent pain or discomfort causing restriction blackouts fits or loss of consciousness difficulty learning or understanding incomplete use of arms or fingers difficulty gripping or holding things incomplete use of feet or legs m nervous or emotional condition causing restriction restriction in physical activities or in doing physical work disfigurement or deformity mental illness or condition requiring help or supervision long term effects of head injury stroke or other brain damage causing restriction receiving treatment or medication for any other long term conditions or ailments and still restricted any other long t
231. lty due to other reasons BRO DN Partly in language other than English 5 Fully in language other than English LABEL Interview type POPULATION All persons living in households CATEGORIES 0 Not applicable 1 Any responsible adult ARA 2 Personal interview conducted with respondent 3 Interviewed by proxy age 4 Interviewed by proxy disab health cond 5 Interviewed by proxy other reasons LABEL Interview type full summary POPULATION All persons living in households CATEGORIES 0 Not applicable 1 Personal interview fully in English easily 2 Personal interview fully in English with difficulty because of communication problems excl lan 3 Personal interview fully in English with difficulty because of other reasons Personal interview partly in language other than English Personal interview fully in language other than English Proxy ARA interview as didnt require personal interview N AVA Proxy interview due to disability or health conditions 8 Proxy interview due to other reasons NES LABEL Screen question interview type POPULATION All persons living in households CATEGORIES 0 Not applicable 1 Any responsible adult self 2 Any responsible adult other CARERS ASSISTANCE LABEL Main condition of recipient s of care PROVIDED POPULATION All carers of in scope co residents living in households CATEGORIES See Type of long term condition reported LABEL Main disability of recipient s of care POPULATION All carers
232. ly received A restriction in employment and or schooling In this survey comprises Cared accommodation and Other non private dwelling If a disfigurement or deformity was reported and it was also reported that this did not limit the person s everyday activities it was considered to be a Non restricting disfigurement or deformity People in this group were not asked the full range of questions asked of people with a disability See Level of highest non school qualification eee ereereeeseseeesreeeseseeeeeeeeeeseees DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 GLOSSARY continued eovovoevveeveeeeeeeeeeeeeeee ee eee eee eee eo eee eee eee eee eee eee eee eee eee e ee eeeeeeeeee Occupation Older person Other non private dwelling Own account worker Paperwork Participation rate Partner Personal activities Persons not in the labour force Primary carer Principal source of personal income Private dwellings Profound core activity limitation Property maintenance eo eee eeseeesceceseeeeseeeeeeeeeees For people who worked as a wage or salary earner it was the occupation in their main job For those who worked in their own business it was their occupation in that business An occupation is a set of jobs with similar sets of tasks In practice an occupation is a collection of jobs sufficiently similar in their main tasks in terms of skill level and specialisation to be groupe
233. mily have a disability Father in couple family has a disability Mother in couple family has a disability WN mR BW NY FR Father in one parent family has a disability 6 Mother in one parent family has a disability LABEL Whether has a disability POPULATION All persons CATEGORIES 1 Has a disability 2 Does not have a disability LABEL Whether has a disability excluding a non restrictive disfigurement or deformity POPULATION All persons CATEGORIES 1 Has a disability 2 Does not have a disability LABEL Whether has a long term condition POPULATION All persons CATEGORIES 1 Has a long term health condition 2 Does not have a long term health condition LABEL Whether has schooling or employment restriction POPULATION Persons with a disability living in households aged 5 14 years and currently at school or not attending school because of disability or aged 15 to 64 years excludes persons witha non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Restricted in schooling or employment 2 Not restricted in schooling or employment LABEL Disability groups multiple response POPULATION All persons with a disability CATEGORIES 1 Sensory and speech Intellectual Physical restriction Psychological Other 2 3 4 5 Head injury stroke or brain damage 6 7 Not applicable Cee eee eee sees seeeseeseeseseeeeeeeeEeEeEeEEEEEEE EEE HEHEHE HEHE HEHEHE EEO EEE EEE EES 108 ABS DISABILITY AGEING AND C
234. n because of disability CATEGORIES 0 Not applicable 1 None 2 Informal only 3 Formal only 4 Informal and formal LABEL Type of personal activity assistance received including cognitive and emotional support POPULATION All persons with a disability living in households who need assistance with a personal activity because of disability CATEGORIES 0 Not applicable None 2 Informal only 3 Formal only 4 Informal and formal LABEL Extent to which need for cognitive emotional support assistance received met POPULATION All persons with a disability living in households who need assistance with cognitive or emotional support tasks CATEGORIES 0 Not applicable 1 Fully 2 Partly 3 Notat all LABEL How became aware of main source of cognitive emotional support assistance POPULATION All persons with a disability living in households who need assistance with cognitive or emotional support tasks CATEGORIES 0 Not applicable Friend or relative Phone book newspaper or advertisement Local health centre or clinic Government department Local council General practitioner Counsellor social worker or welfare officer Other health worker 9 Other AN AN KW NY LABEL Main reason has unmet need for formal cognitive emotional support assistance POPULATION All persons with a disability living in households who need assistance with cognitive or emotional support tasks CATEGORIES 0 Not applicable Did not know of service Need not import
235. n are excluded Health care This activity comprises foot care other tasks such as taking medication or administering injections dressing wounds using medical machinery manipulating muscles or limbs Household A group of two or more related or unrelated people who usually reside in the same dwelling and who make common provision for food and other essentials for living or a person living in a dwelling who makes provision for his or her own food and other essentials for living without combining with any other person Thus a household may consist of a one person one family one family and related individual s related families with or without unrelated individual s unrelated families with or without unrelated individual s unrelated individuals Housework This activity comprises household chores examples of which are washing vacuuming dusting Housing tenure Housing tenure is the nature of the legal right of a person to occupy a dwelling Housing tenure categories in the SDAC may not be comparable with other ABS output using these category names The categories used for the SDAC are owner without a mortgage owner with a mortgage state or territory housing authority renter other renter Coo ooo ooo OOH EES EOE OHHH EEE EEE EEE HEHEHE HEHEHE ETE H HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HEHEHE HEHEHE HHH HOHE EEE OOOO EE 198 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE
236. n households CATEGORIES 0 Not applicable War Widow s Pension DVA Disability Pension DVA Carer Allowance Child Disability Allowance Centrelink Overseas Pension benefits Parenting Payment Other NES None of these NXN AVU KR WN e 8 Don t know LABEL Whether person is covered by Department of Veterans Affairs treatment entitlement card POPULATION All persons aged 5 or over with a disability or aged 60 years or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Is covered by DVA treatment entitlement card 2 Is not covered by DVA treatment entitlement card LABEL Whether receives any government pensions allowances or benefits POPULATION All persons aged 15 or over living in households CATEGORIES 00 Not applicable 01 Australian Age Pension 02 Newstart Allowance 03 Mature Age Allowance CoCo ooo ooo EEEHEHHS HEHEHE HEHEHE HEHEHE HHH HEHEHE HHH HHH HHH HHH HHH HEHEHE HEHEHE HEHEHE EEE OOO EE 146 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeveeveeeveeeeeeeee ee eee eee eee wee eee eee eee eee eee eee ee eo meee meee eee meee em em em eee Oe INCOME PERSON LEVEL 04 Service Pension DVA continued 05 Disability Support Pension Centrelink 06 Wife Pension 07 Carer Payment 08 Sickness Allowance 09 Widow Allowance Widow B Pension Centrelink 10 Special Bene
237. nal interview CATEGORIES 0 Not applicable 1 Usually assists with paperwork tasks 2 Does not usually assist with paperwork tasks LABEL Whether primary carer usually assists main recipient of care with property maintenance tasks POPULATION All primary carers living in households whose main recipient is aged 15 years or over personal interview CATEGORIES 0 Not applicable 1 Usually assists with property maintenance tasks 2 Does not usually assist with property maintenance tasks Cee eee eee eee eeereeeeeeeseeseEeEeEeEeEEEEEEE EEE HEHEHE SEH HEHEHE HEHEHE HEHEHE EEE SEE EOOE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 165 APPENDIX DATA ITEM LIST continued eovoveeveeveeeeeeeeeeeeeeee ee eee eee eee eee eee eo eee eee em ee eee meee mee eee eee Oe em oO eo he eel et PRIMARY CARERS LABEL Whether primary carer usually assists main recipient of care with self care tasks ASSISTANCE PROVIDED POPULATION All primary carers living in households continued CATEGORIES 0 Not applicable 1 Usually assists with self care tasks 2 Does not usually assist with self care tasks LABEL Whether primary carer usually assists main recipient of care with toileting POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Usually assists with toileting 2 Does not usually assist with toileting LABEL Whether primary carer usually assists main recipient of care with transport tasks POPULAT
238. nally interferes with normal daily activities Sleep interrupted occasionally does not interfere with normal daily activities Sleep interrupted occasionally interference with normal daily activities not stated Sleep interrupted but frequency or interference not stated Sleep is not interrupted Not stated LABEL Whether primary carer s physical or emotional well being has changed due to caring role POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Physical or emotional well being has changed due to caring role 2 Physical or emotional well being has not changed due to caring role 3 Not stated LABEL Whether primary carer s sleep is interrupted frequently or occasionally due to caring role POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Sleep interrupted frequently due to caring role 2 Sleep interrupted occasionally due to caring role 3 Sleep is not interrupted due to caring role 4 Not stated 5 Sleep interrupted due to caring role but frequency not stated LABEL Why primary carer took on the caring role multiple response POPULATION All primary carers living in households CATEGORIES 00 Not applicable eee esses seeesreseesreseeeeeeeeeeeeeeeeeeeees ABS gt Coo eee eee reeesreseeeeeeeeeeeeeeeeeeeeeeeEeE HEE EEE HEE EEO EOE EEE EEE EES DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 169 APPENDIX DATA ITEM LIST continued
239. nary Plant Operators 7200 Intermediate Machine Operators nfd 7210 Intermediate Textile Clothing and Related Machine Operators nfd 7211 Sewing Machinists 7212 Textile and Footwear Production Machine Operators 7290 Miscellaneous Intermediate Machine Operators nfd 7291 Plastics Production Machine Operators 7292 Rubber Production Machine Operators 7293 Chemical Production Machine Operators 7294 Wood Processing Machine Operators 7295 Paper Products Machine Operators 7296 Glass Production Machine Operators Coo ooo ooo ooo HOHE HEH OHHH HEHEHE HEHEHE EEE HEHEHE HHH HHH EHH EHH HEHEHE HHH H ESE SESE EHS EH HEHEHE HEHEHE HEHEHE HEH HHH HEHEHE HEHE OS ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 135 APPENDIX DATA ITEM LIST continued eovovoeeveeveeeeee eee eee ee ee ee eee eee eee eee eee ee eee ee em ee eee eee mee ee em em eC he eo oO em oO oO ee ele EMPLOYMENT LABOUR FORCE ITEMS continued eo eee eesreeeeereseeseeeeeeeeeeeees 7297 Clay Stone and Concrete Processing Machine Operators 7298 Photographic Developers and Printers 7299 Other Intermediate Machine Operators 7300 Road and Rail Transport Drivers nfd 7310 Road and Rail Transport Drivers nfd 7311 Truck Drivers 7312 Bus and Tram Drivers 7313 Automobile Drivers 7314 Delivery Drivers 7315 Train Drivers and Assistants 7900 Other Intermediate Production and Transport Workers nfd 7910 Intermediate Mining and Construction Workers nfd 7911 Miner
240. nducted a computer assisted interview with any responsible adult ARA in the household to collect details of the composition of the household collect demographic information age sex birthplace social marital status relationship about household members and a identify people in the household who were of particular interest for this survey so that they could be personally interviewed These were people who a had long term health conditions a had a disability were aged 60 years and over or regularly provided informal care in core activities to someone who was older or had a disability and were considered to provide a greater level of care than others to that care recipient possible primary carers For those people in the household who were not in these particular groups a computer assisted interview was then conducted using ARA methodology to collect information on education labour force participation income and housing Personal computer assisted interviews were conducted with people aged 15 and over in the identified groups Proxy interviews were conducted with parents of children with disabilities or people aged 15 17 where parental consent for personal interview was not given People who were prevented by their disability from responding personally were also interviewed by proxy i e another person in the household who answered for them Where there were language differences including the need to use
241. ne parks or botanic gardens 06 Took part in sport or physical recreation 07 Attended sporting event as spectator 08 None of the above 09 Does not leave home 10 Not applicable LABEL Frequency of attendance at supervised activity program POPULATION All persons who have a profound or severe core activity limitation or are slow at learning or understanding living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 00 Not applicable 01 Does not attend 02 5 days a week or more for less than 4 hours a day 03 5 days a week or more for 4 hours or more a day 04 3 4 days a week for less than 4 hours per day 05 3 4 days a week for 4 hours or more per day 06 1 2 days a week for less than 4 hours per day 07 1 2 days a week for 4 hours or more per day 08 Once a fortnight for less than 4 hours 09 Once a fortnight for 4 hours or more 10 Attends occasionally LABEL Main reason does not go out as often as would like POPULATION All persons aged 5 or over with a disability or aged 60 years or over living in households who do not leave the home as often as they would like excludes persons with a non restricting disfigurement or deformity only CATEGORIES 00 Not applicable 01 Could not be bothered nowhere to go CoCo ooo ooo HEH HEHE HEHEHE EEE EEE HEHE HHH HHS HEHEHE HEH HHH HEHEHE HHH HEHEHE HHH EHH HOHE HEHEHE OOOO EE 82 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 200
242. nication limitation POPULATION All persons with a disability CATEGORIES 0 Not applicable 1 Profound 2 Severe 3 Moderate 4 Mild 5 Nocommunication limitation LABEL Type s of non spoken communication establishments multiple response POPULATION All persons living in a health establishment CATEGORIES 0 Not applicable 1 Sign language e g Auslan 2 Other gestures 3 Handwriting 4 Typed or computer messages 5 Other non spoken communication 6 None of these LABEL Type s of non spoken communication households and establishments multiple response POPULATION All persons aged 2 or over with a disability who have difficulty communicating living in households and all persons with a disability living in health establishments CATEGORIES 1 Sign language Handwriting Typed computer messages Other non spoken communication Does not use non spoken forms to communicate more easily NN RW N Not applicable CeCe eee eee eee Hoe oH HEHEHE HEHEHE HEHEHE HEHEHE HEHEHE HEHE HOHE HHH HEHEHE HEHEHE EEO E TELE E EES ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 89 APPENDIX DATA ITEM LIST continued eovovoeceveeveeeeeeeeeeee eee eee eee eee eee eee eee ee ee meee em eee eO em eee eee Oem em em oO em eo oO em eee el ele CORE ACTIVITY LIMITATION LABEL Types of non spoken forms of communication used households multiple COMMUNICATION continued response POPULATION All persons aged 2
243. not need assistance being understood by someone does not know but has some difficulty 4 Does not need assistance being understood by someone does not know and has no difficulty 5 Too young LABEL Level of assistance needed to be understood by family or friends because of disability POPULATION Persons with a disability living in households where interview is conducted by proxy who are slow at learning understanding have a mental illness hearing loss loss of speech nervous or emotional condition head injury or brain damage and all persons with a disability living in health establishments CATEGORIES 0 Not applicable 1 Always needs assistance to be understood by family or friends 2 Sometimes needs assistance to be understood by family or friends 3 Does not need assistance to be understood by family or friends but has difficulty 4 Does not need assistance to be understood by family or friends and has no difficulty 5 Too young LABEL Level of assistance needed understanding family and friends because of disability POPULATION Persons with a disability living in households where interview is conducted by proxy who are slow at learning understanding have a mental illness hearing loss loss of speech nervous or emotional condition head injury or brain damage and all persons with a disability living in health establishments CATEGORIES 0 Not applicable 1 Always needs assistance understanding family and friends CoCo ooo OOH EEE HSE
244. ns 1202 Skin allergies Dermatitis and Eczema 1203 Disorders of skin appendages 1204 Scars 1299 Other diseases of the skin and subcutaneous tissue 1301 Arthritis and related disorders 1302 Deformities of joints limbs acquired 1303 Back problems dorsopathies 1304 Repetitive strain injury occupational overuse syndrome 1305 Synovitis tenosynovitis 1306 Other soft tissue muscle disorders including Rheumatism 1307 Osteoporosis 1308 Other acquired deformities of the musculoskeletal system and connective tissue n f d eo eres ereeeereceseeeeeeeeeeeeeeeeeeeeee ABS gt 1399 Other disorders of the musculoskeletal system and connective tissue 1401 Kidney and urinary system bladder disorders except incontinence 1402 Stress urinary incontinence 1403 Prostate disorders 1404 Breast disorders 1405 Menopause disorders 1499 Other diseases of the genitourinary system 1501 Birth trauma injury 1502 Respiratory problems related to birth 1599 Other conditions originating in the perinatal period 1600 Congenital malformations deformations and chromosomal abnormalities 1601 Spina bifida 1602 Deformities of joints imbs congenital 1603 Down syndrome 1604 Other chromosomal abnormalities 1605 Congenital brain damage malformation 1699 Other congenital malformations and deformations 1701 Breathing difficulties shortness of breath 1702 Bowel faecal incontinence 1703 Headaches 1704 Memory loss n f d 1705 Incontinence n f
245. nse POPULATION All persons aged 15 64 with disability living in households who are permanently unable to work excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Own condition or disability 2 Ill health or disability of someone else 3 Too old 4 Other LABEL Requirements to enable workforce participation multiple response POPULATION All persons aged 15 64 with disability living in households who are permanently unable to work excludes persons with a non restricting disfigurement or deformity only CATEGORIES 1 Training Equipment Working at home Time off Assistance with work or personal care tasks Other Could not work at all ANAM KW DY Not applicable LABEL Severity of employment restriction POPULATION All persons aged 15 64 with disability living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable Profoundly restricted Severely restricted OW N e Moderately restricted esecsosooscooooooooooooooooooocoocsococsooooooooooooooooooocooooooooooooooooocoooooooooooooooooooooooooooooooooooooo ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 125 APPENDIX DATA ITEM LIST continued eoevovoeveveeveeeeeeeee eee eee eee eee eee eee eee eee oe eee ee eee eee em ee em oe ee meme eee em em oO ee ee EMPLOYMENT EMPLOYMENT 4 Mildly restricted RESTRICTIONS continued 5
246. nsport LABEL How did recipient find out about formal assistance provider POPULATION All formal assistance providers identified as providing main assistance excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable Friend or relative Phone book newspaper or advertisement Local health centre or clinic Government department Local council General practitioner Counsellor social worker or welfare officer Other health worker Other MAN HWDW KR WwW NW LABEL Person number providing main assistance POPULATION All persons CATEGORIES 00 Not applicable 01 01 02 02 03 03 04 04 05 05 06 06 07 07 08 08 09 09 10 10 11 11 sesccooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooo ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 51 APPENDIX DATA ITEM LIST continued eoeovoeveveveveeeeeeeeeee eee ee eer eee eee eee ee eee eee eee ee em ee eee em em em em ee ee em eee eC oO ee oO ee ele ASSISTANCE PROVIDERS 12 12 REPEATING DATASET continued 3 13 14 14 15 15 16 16 17 17 18 18 19 19 20 20 LABEL Provider of assistance for broad activity area POPULATION All broad areas of activity where assistance is received excludes persons with a non restricting disfigurement or deformity only CATEGORIES 00 Not applicable 01 Nurse 02 Speech therapist 03 Teacher 04 Chiropodist Podiatrist 05 Physiotherapist 06 Doctor 07 C
247. nsumption and savings or any other person who is assumed to have sole command over his or her income consumption and savings For people who worked as a wage or salary earner it was the industry of their employer in their main job For those who worked in their own business it was the industry of that business An industry is a group of businesses which carry out similar economic activities Each such grouping defines an industry and the economic activities which characterise the businesses connected are referred to as activities primary to that industry Industry was classified according to the Australian and New Zealand Standard Industrial Classification ANZSIC 1993 cat no 1292 0 Informal assistance is unpaid help or supervision that is provided to persons with one or more disabilities or persons aged 60 years and over living in households It includes only assistance that is provided for one or more of the specified tasks comprising an activity because of a person s disability or age Informal assistance may be provided by family friends or neighbours For this survey any assistance received from family or friends living in the same household was considered to be informal assistance regardless of whether or not the provider was paid Use of the Internet in the 12 months prior to the interview Includes access via mobile phones set top boxes connected to either an analogue or digital television and the latest games machines A
248. nt most desired by primary carer to assist in carer role POPULATION All primary carers living in households CATEGORIES 0 Not applicable More respite care More financial assistance More physical assistance More emotional support Improvement in own health Other Does not need an improvement or more support 8 Not stated N WNW KR WN e LABEL Whether primary carer able to use public transport when accompanied by main recipient of care POPULATION All primary carers living in households CATEGORIES 0 Not applicable CoCo ooo ooo EOE EEE HEHEHE EEE EEE HEHEHE HEHEHE HEHEHE HEHEHE HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HHH HEHEHE EHH H HHO EOE EOS ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 167 APPENDIX DATA ITEM LIST continued eovovoeveeveeeveeeeeeeeeeeee eer eee eee eee eee ee eee eee ee eee ee eo eee eee eee eee eee eeeeeee Not able to use public transport Able to use with difficulty Able to use without difficulty Able to use but difficulty not stated Does not need or want to use public transport Not stated NW BR WN e LABEL Whether primary carer feels satisfied due to caring role POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Feels satisfied due to caring role 2 Does not feel satisfied due to caring role 3 Not stated LABEL Whether primary carer feels weary or lacks energy due to caring role POPULATION All primary carers living in
249. nt or deformity only CATEGORIES 0 Not applicable 1 Needs assistance with footcare 2 Does not need assistance with footcare LABEL Whether needs assistance with health care other than footcare because of disability POPULATION All persons aged 5 or over with a disability living in households and persons with a disability living in health establishments excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Needs assistance with healthcare other than footcare 2 Does not need assistance with healthcare other than footcare ASSISTANCE NEED FOR LABEL Whether needs assistance or has difficulty with health care because of disability ASSISTANCE WITH POPULATION All persons aged 5 or over with a disability living in households and HEALTHCARE persons with a disability living in health establishments excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Needs assistance or has difficulty with health care 2 Does not need assistance or have difficulty with health care ASSISTANCE NEED FOR LABEL Whether needs assistance or has difficulty with household chores because of ASSISTANCE WITH disability or age HOUSEWORK POPULATION All persons aged 15 or over with a disability or aged 60 years or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Needs assistance or has
250. nternet To maintain consistency with the 1988 1993 and 1998 surveys the 2003 SDAC used a minimum age of 60 years for its older persons population Carers For caring the main concepts are carer and primary carer Any person who provides informal assistance in terms of help or supervision to an older person or a person with a disability because of their age or condition is defined as a carer The assistance has to be ongoing or likely to be ongoing for at least six months and on a regular unpaid basis The assistance may be to a person in the same or another household Assistance to a person in a different household relates to everyday types of activities without further information about what these activities are Where the care recipient lives in the same household the assistance is for one or more of the following activities m self care mobility communication a cognition or emotion health care paperwork transport housework m property maintenance meal preparation Two approaches were used to identify carers through a screening process at the beginning of the survey and m through information provided by recipients of care Where the carer and the recipient both live in the same selected household information provided by the recipient about the type of care received and some of their own personal details are copied to the record of the carer This was not possible for carers of per
251. ocal council General practitioner Counsellor social worker or welfare officer Other health worker 9 Other o NAV KW DY LABEL Main reason has unmet need for formal communication assistance POPULATION All persons with a disability living in households who received assistance with communication CATEGORIES 0 Not applicable Did not know of service Need not important enough Wont ask because of pride Unable to arrange service No service available Not eligible for service Service costs too much o N AN KW DY Service does not provide sufficient hours 9 Other LABEL Main reason has unmet need for informal communication assistance POPULATION All persons with a disability living in households who received assistance with communication CATEGORIES 0 Not applicable 1 Does not need more help from family or friends 2 Has not asked family or friends 3 Needs more help than family friends can provide 4 Family friends not available too far away 5 Other LABEL Number of formal sources of communication assistance POPULATION All persons with a disability living in households who need assistance with communication CATEGORIES 0 None 1 One 2 Two 9 Not applicable LABEL Number of informal sources of communication assistance POPULATION All persons with a disability living in households who need assistance with communication CATEGORIES 0 None 1 One CoCo ooo ooo HOHE HEE EEE HEHEHE HEHEHE HEHEHE HHH HEHEHE H
252. of in scope co residents living in households CATEGORIES 00 Not applicable Coe eee eee ooo HOHE HOHE OHH EEE HEHEHE EEE HEHEHE HEHEHE HEHEHE HEHEHE HEH H HSE HES E SESH SEH HEHEHE HEHEHE HEHEHE HHH HHH HEHEHE HOES ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 T7 eovovoeveeveeeeeeeeeeeeeeee ee eee eee eee ee eee eee eee eee eee eee eee eee eee eee eee eeeeee CoCo ooo eo HHE HEHEHE HEHEHE HEHE HHH HEHEHE HEHEHE HEH HEHEHE HHH HHH HHH HEHEHE HHH HEHEHE EOE EOS CARERS ASSISTANCE PROVIDED continued APPENDIX DATA ITEM LIST continued 01 Loss of sight 02 Loss of hearing 03 Speech difficulties 04 Breathing difficulties 05 Chronic or recurring pain or discomfort 06 Blackouts fits or loss of consciousness 07 Slow at learning or understanding 08 Incomplete use of arms or fingers 09 Difficulty gripping or holding things 10 Incomplete use of feet or legs 11 Nervous or emotional condition 12 Restriction in physical activities or work 13 Disfigurement or deformity 14 Mental illness 15 Other disability LABEL Relationship of carer to recipient of care POPULATION All carers of in scope co residents living in households CATEGORIES 00 Not applicable 01 Male partner 02 Female partner 03 Father 04 Mother 05 Son 06 Daughter 07 Son in law 08 Daughter in law 09 Other male relative 10 Other female relative 11 Male friend 12 Female friend 13 Not determined recip didn t ID carer
253. of main disabling condition difficulties experienced by people with a disability and help required in the activities of a self care mobility communication cognition or emotion health care difficulties experienced and help required both for people aged 60 years or more and people with disabilities in the further activities of paperwork transport housework property maintenance meal preparation a the type of assistance received for each of these activities other than cognition or emotion the providers of assistance the extent to which need was met and reasons for unmet need use of aids and equipment and a access to and use of computers and the Internet Personal interviews were also conducted with people identified as primary carers of people with a disability on a the type of care provided a the availability or use of support and a the effect of the caring role on their daily life Information was collected for the total population on education employment income housing and access to computers and Internet at home Confirmed primary carers were also asked to complete a self enumeration form which collected information about their attitudes to and experience of their caring role This form was completed by the carer during the interview Standard ABS definitions and classifications were used where possible to allow comparison with other collections which use these standards Ca
254. ome 02 Moving about the home 03 Getting in out of chair bed 04 Walking 200 metres 05 Walking up and down stairs without a handrail CoCo ooo oOo H HSH HEHEHE HEHEHE HEHEHE HHH HHS HEHEHE HHH HHH HHH HHH HHH HEHEHE HEHEHE HEHEHE EEO OOO ES 70 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeeveeeeeeeeeeeeee eee eee eee eee eee eo eee eee eee eee em ee eee eee eee ee em em eo em eo oO ec ee ee ele ASSISTANCE SPECIFIC ACTIVITIES REPEATING DATASET continued BACKGROUND INFORMATION DWELLING 06 Bending and picking up an object from the floor 07 Showering 08 Dressing 09 Eating 10 Going to the toilet 11 Controlling bladder 12 Understanding a stranger 13 Understanding family or friends 14 Being understood by a stranger 15 Being understood by family or friends 16 Health care tasks 17 Cognitive emotional support 18 Household chores 19 Home maintenance gardening 20 Meal preparation 21 Reading writing paperwork 22 Private transport 23 Public transport LABEL Whether assistance is always or sometimes required for each activity POPULATION All specific activities where some assistance is required excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Always 2 Sometimes LABEL Whether needs assistance supervision or has difficulty with each activity POPULATION All specific activitie
255. ommodation component Output file Data from the two components of the survey were merged into one file Factors or weights were inserted into each respondent s record to enable the data to be expanded to obtain estimates relating to the whole population within scope of the survey see Chapter 4 for details of weighting CoCo ooo ooo EOE HOE EEO HHHHHHEHHH HEHEHE HEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HHH HEHEHE HHH HOHE EEE OOO OS 18 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 DATA QUALITY eovovoeveveeveeeeeeeeeeee eee eee eee eee eee eo eee eee eee eee eee eee eee eee eee eee eee ee ee eee DATA QUALITY SAMPLING ERROR Standard error NON SAMPLING ERROR Errors related to scope and coverage eo eee eesreeeeeeeseeeeeeeeeeeeeeee All reasonable attempts have been taken to ensure the accuracy of the results of the survey Nevertheless two potential sources of error sampling and non sampling error should be kept in mind when interpreting results of the survey Since the estimates are based on information obtained from a sample of the population they are subject to sampling error or sampling variability Sampling error refers to the difference between the results obtained from the sample population and the results that would be obtained if the entire population were enumerated Factors which affect the magnitude of sampling error include sample design the design chosen att
256. on LABEL Persons aged 65 years or over receiving assistance living in households POPULATION All persons CATEGORIES 0 Persons not in this population 1 Persons aged 65 years or over receiving assistance living in households LABEL Persons with a disability aged 17 years and over living in households POPULATION All persons CATEGORIES 1 Persons with a disability aged 17 years and over living in households 2 Persons not in this population LABEL Persons with a disability who live in households POPULATION All persons CATEGORIES 1 Persons with a disability who live in households 2 Persons not in this population LABEL Primary carers whose main recipient of care lives in the same household and has a disability or is POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Primary carers whose main recipient of care lives in the same household and has a disability or is aged 60 years or over LABEL Whether a family has a child with a disability POPULATION All families living in households CATEGORIES 0 Not applicable 1 Family with a child with a disability 2 Family without a child with a disability LABEL Whether a family has a person with a disability POPULATION All families living in households CATEGORIES 0 Not applicable 1 Family has a person with a disability 2 Family does not have a person with a disability LABEL Whether a household has a child with a disability POPULATION All households CA
257. on card QW Ne Does not use a concession card CoCo ooo ooo H HEHEHE HEHEHE HHH H HEHEHE HEHEHE HHH HHH HHH HHH HOH HEHEHE HEHEHE HEE EE OOOO OS 186 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevovoeveveeveeeeeeeeeeeeeeee eer eee eee eee eee eee oe eee ee em ee em ee em ee mee eee eee eC oO em em eo ee ele TRANSPORT PUBLIC continued 4 5 Does not use public transport Does not leave home LABEL Whether uses other public transport concession card POPULATION All persons aged 5 or over with a disability or aged 60 years or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable Uses concession other than pension benefit related or Seniors Card 2 Has pension benefit concession and or Seniors Card but no other concession 3 Does not use a concession 4 Does not use public transport 5 Does not leave home TRANSPORT TRAVEL IN LABEL Destination of last trip made in last fortnight PREVIOUS FORTNIGHT POPULATION All persons with a disability or aged 60 or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 00 Not applicable 01 Work 02 School or educational institution 03 General practitioner 04 Medical specialist 05 Shopping 06 Visiting relatives or friends 07 Participation in sporting activities 08 Restaurant or club 0
258. on if they needed assistance had difficulty or used aids or equipment to do selected tasks relating to the core activities self care mobility and communication or if their participation in schooling or employment was restricted because of their condition Prior to the 1998 survey this population was referred to as having a handicap Four levels of limitation profound severe moderate and mild were determined based on whether a person needed help had difficulty with or used an aid or equipment for any of the tasks related to the core activities of self care mobility and communication A person s overall level of core activity limitation was determined by their highest level of limitation in these activities The four levels of limitation are profound the person is unable to do or always needs help or supervision with a core activity task m severe the person sometimes needs help or supervision with a core activity task or has difficulty understanding or being understood by family and friends or can communicate more easily using sign language or other non spoken form of communication moderate the person needs no help or supervision but has difficulty with a core activity task mild the person needs no help and has no difficulty with any of the core activity tasks but uses aids and equipment or cannot easily walk 200 metres or cannot walk up and down stairs without a handrail or cannot easily bend and pic
259. on not included in regular publications Services include assistance with the analysis of survey data and application of statistical techniques such as regression analysis factor analysis and hypothesis testing This consultancy attracts a service charge For further information contact our Client Services area on 1300 135 070 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST eovovoeeveeeeeeeeeeeeeee eee eee eee eee eee ee eee eee eee eee eee eee eee eee eee eee eee eee eee INTRODUCTION CONTENTS Coe ee ee rere eeeeeeseeeeeeeeeeeeeEee eee EE ee EE EEE HEE HEHE TORE HEHEHE EEE EEO OE Below is a comprehensive list of data items from the 2003 SDAC that are available for use in statistical tabulations Data items are grouped into broad topics for ease of use Each data item has a label a population and the available categories Data items which allow more than one response are indicated by the term multiple response in the label This data item list can be used to determine what specific information is available on each topic Aids Aids Communication Aids Home modifications Aids Medical Aids Mobility Aids Self care All conditions repeating dataset Assistance Broad activities repeating dataset Assistance Need for assistance Summary Assistance Need for assistance with Communication Assistance Need for assistance with Cognition or emotion
260. ons with a non restricting disfigurement or deformity only CATEGORIES Continuous LABEL Record level identifier for SuperCROSS Broad activities level POPULATION All broad activities reported except public transport excludes persons with a non restricting disfigurement or deformity only CATEGORIES Identifier LABEL Whether need more formal assistance with broad area of activity POPULATION All broad activities reported except public transport excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable Needs more formal assistance Does not need more formal assistance WO N e Does not know whether needs more formal assistance CoCo ooo ooo OHO HEHEHE OHH EEE HEHEHE EEE EEE SESE HEHEHE HEHEHE HEHEHE HHH HEHEHE HEHEHE HHH EHH HHH HHH HHH HEHEHE HEHEHE HOHE OEE OEE OOS ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 39 APPENDIX DATA ITEM LIST continued eovovoeveeveeeeeeeeeeeeee eee eee eee wee eee eee eee eee eee em ee em ee meee mee meme ee he oO oO em em oO ee el et ASSISTANCE BROAD LABEL Whether need more informal assistance with broad area of activity ACTIVITIES REPEATING POPULATION All broad activities reported except public transport excludes DATASET continued persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Needs more informal assistance 2 Does not need more informal assistance 3
261. ooling or employment restrictions b Living in households comprises all private dwellings and non private dwellings apart from cared accommodation c Other non private dwellings comprise non private dwellings apart from cared accommodation People with a If a disfigurement or deformity was reported and it was also reported that this did not non restricting restrict the person s everyday activities it was considered to be a non restricting disfigurement or deformity disfigurement or deformity Respondents with a non restricting disfigurement or only deformity only are defined as having a disability but if they had no further disabilities due to a sequencing error they were not asked the full range of questions asked of people with a disability Questions on assistance with self care mobility and communication aids used telephone and fax use changes made to dwelling schooling restrictions employment restrictions and employer provided arrangements were not asked of anyone in this group Questions on assistance with health care emotion or cognition household chores home maintenance meal preparation transport reading and writing and questions about driver s licence transport use social and community participation computer and Internet use moving house and whether carer needed to move in were only asked if the respondent was aged 60 years or more Where respondents with a non restricting disfigurement or deformity only were not asked
262. ooo ooo OOOH EEE EOE HEHEHE HEHEHE EEE HEHEHE HHH HEHEHE EEE HEHE HHH HEHE HSE H HEHEHE HHH HHH HHH HHH HHH HEHEHE HHO HEHEHE EEO EE OEE 98 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoeovoevceveveveeeeeeeeeeee ee eee eee eee eee eee ee eee eee eee eee eee eee eee eee eee eee eee eeee DEMOGRAPHICS continued 5205 Singapore 5206 East Timor 6000 North East Asia nfd 6100 Chinese Asia includes Mongolia nfd 6101 China excludes SARs and Taiwan Province 6102 Hong Kong SAR of China 6103 Macau SAR of China 6104 Mongolia 6105 Taiwan Province of China 6200 Japan and the Koreas nfd 6201 Japan 6202 Korea Democratic Peoples Republic of North 6203 Korea Republic of South 7000 Southern and Central Asia nfd 7100 Southern Asia nfd 7101 Bangladesh 7102 Bhutan 7103 India 7104 Maldives 7105 Nepal 7106 Pakistan 7107 Sri Lanka 7200 Central Asia nfd 7201 Afghanistan 7202 Armenia 7203 Azerbaijan 7204 Georgia 7205 Kazakhstan 7206 Kyrgyz Republic 7207 Tajikistan 7208 Turkmenistan 7211 Uzbekistan 8000 Americas nfd 8100 Northern America nfd 8101 Bermuda 8102 Canada 8103 St Pierre and Miquelon 8104 United States of America 8200 South America nfd 8201 Argentina 8202 Bolivia 8203 Brazil 8204 Chile 8205 Colombia 8206 Ecuador 8207 Falkland Islands 8208 French Guiana 8211 Guyana 8212 Paraguay 8213 Peru 8214 Suriname 8
263. or moving around POPULATION All persons with a disability who need aid s for moving around excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses crutches 2 Does not use crutches COCO ooo HEHEHE EHO HEHEHE EEE EEE HEHEHE HEHEHE HEHEHE HHH HEHE HEHEHE HHH HHH HHH HHH HHH HEHEHE HEHEHE HOE O OEE 32 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevovoeveveeveeeeeeeeeeeeeeee eer eee eee eee eo eee eee eee eee eee ee eee eee eeeee ee eee eee eeee AIDS MOBILITY continued LABEL Whether uses electric wheelchair for moving around POPULATION All persons with a disability who need aid s for moving around excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses electric wheelchair 2 Does not use electric wheelchair LABEL Whether uses manual wheelchair for moving around POPULATION All persons with a disability who need aid s for moving around excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses manual wheelchair 2 Does not use manual wheelchair LABEL Whether uses modified car or aid s POPULATION All persons with a disability who need aid s for moving around away from place of residence excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1
264. or over with a disability who have difficulty communicating living in households CATEGORIES 0 Not applicable 1 Sign language 2 Picture cards or boards 3 Handwriting 4 Typed or computer messages 5 Other non spoken forms of communication CORE ACTIVITY LIMITATION LABEL Number of income unit members who have a selected limitation or restriction COUNTS POPULATION All income units in households CATEGORIES Continuous LABEL Number of income unit members who have moderate to profound limitation POPULATION All income units in households CATEGORIES Continuous LABEL Number of persons in a family who have a selected limitation or restriction POPULATION All families living in households CATEGORIES Continuous LABEL Number of persons with a profound or severe core activity limitation in household POPULATION All households CATEGORIES 0 None 1 One 2 Two 3 Three 4 Four 5 Five 9 Not applicable LABEL Number of persons with a profound to moderate core activity limitation in family POPULATION All families living in households CATEGORIES Continuous LABEL Number of persons with a profound to moderate core activity limitation in household POPULATION All households CATEGORIES Continuous LABEL Number of persons with a restriction in household POPULATION All households CATEGORIES Continuous CoCo oo ooo OOOH EEE OHHH EEE HEHEHE EEE EEE HEHEHE HEHEHE HEHEHE HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HHH HHH HHH EHH
265. ore tasks for which assistance is needed because of disability POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 00 None 01 One 02 Two CoCo eee ooo OOH EEE HEHEHE HEHEHE EEE HEHEHE HEHEHE EHH EEE HEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HHH HEHEHE HHH HEHE OEE OOOO EE 42 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevovoeeveeveeeeeeeeeeeeeeee eer eee eee eee eee eee eee eee eee eee eee eee e eee meee eee ee ee Oe ASSISTANCE NEED FOR ASSISTANCE SUMMARY continued eo eee eeseee ee eeseeeeeeeeeeeeee 03 Three 04 Four 05 Five 06 Six 07 Seven 08 Eight 09 Nine 10 Ten 11 Eleven 12 Twelve 13 Thirteen 14 Fourteen 15 Fifteen 16 Sixteen 17 Seventeen 18 Eighteen 19 Nineteen 20 Twenty 21 Twenty one 22 Twenty two 23 Twenty three 99 Not applicable LABEL Number of personal activities for which aid needed due to disability excl cognition and emotion POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 None One Two Three Four Five Six O An KRW DN Ae Not applicable LABEL Number of personal activities for which aid needed due to disability incl cognition and emotion POPULATION All persons with a disability excludes persons with a non restricting disfigurement or def
266. ormity only CATEGORIES 0 None One Two Three Four Five Six ONDW KR WN Not applicable LABEL Number of personal tasks for which aid needed due to disability excl cognition and emotion POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CoCo oe eee eee Hao HEHEHE HOHE HEHEHE HHH HEHEHE HEHEHE HEHEHE HOHE HHH HEHEHE HEHEHE OEE E EEE EEE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 43 APPENDIX DATA ITEM LIST continued eovovoeceveeeveeeeeeeeeeeeeeee ee ee eee eee eee eee eee eee ee eee ee eee eee eee em ee eee ee meee ASSISTANCE NEED FOR CATEGORIES ASSISTANCE SUMMARY 00 None continued 01 One 02 Two 03 Three 04 Four 05 Five 06 Six 07 Seven 08 Eight 09 Nine 10 Ten 11 Eleven 12 Twelve 13 Thirteen 14 Fourteen 15 Fifteen 16 Sixteen 17 Seventeen 18 Eighteen 19 Nineteen 20 Twenty 21 Twenty one 22 Twenty two 23 Twenty three 99 Not applicable LABEL Number of personal tasks for which aid needed due to disability incl cognition and emotion POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 00 None 01 One 02 Two 03 Three 04 Four 05 Five 06 Six 07 Seven 08 Eight 09 Nine 10 Ten 11 Eleven 12 Twelve 13 Thirteen 14 Fourteen 15 Fifteen 16 Sixteen 17 Seventeen 18 Eighteen 19 Ninet
267. ort 6 Other LABEL Whether participated in sport during last fortnight POPULATION All persons with a disability or aged 60 or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Participated in sporting activities 2 Did not participate in sporting activities 3 Does not leave home LABEL Whether travelled to a general practitioner during last fortnight POPULATION All persons with a disability or aged 60 or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Visited general practitioner 2 Did not visit general practitioner 3 Does not leave home LABEL Whether travelled to a medical specialist during last fortnight POPULATION All persons with a disability or aged 60 or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Visited medical specialist 2 Did not visit medical specialist 3 Does not leave home LABEL Whether travelled to church or other place of worship during last fortnight POPULATION All persons with a disability or aged 60 or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Went to church or place of worship 2 Did not go to church or place of worship 3 Does not leave home LABEL Whether travelled to oth
268. ort when sitting exacerbates condition 10 Cognitive difficulties 11 Behavioural problems 12 Fear anxiety 13 Sight problems 14 Other 15 Has would have no difficulty with some forms of public transport 16 Does not leave home 17 Not applicable LABEL Whether public transport is available in respondent s area POPULATION All persons aged 5 or over with a disability or aged 60 years or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Available 2 Not available don t know 3 Does not leave home LABEL Whether uses a Seniors Card for public transport concession POPULATION All persons aged 15 or over with a disability or aged 60 years or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable Uses Seniors Card concession Does not use Seniors Card concession but uses another concession card Does not use a concession card A WO Ne Does not use public transport 5 Does not leave home LABEL Whether uses a pension or benefit related public transport concession card POPULATION All persons aged 5 or over with a disability or aged 60 years or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable Uses pension or benefit concession card Does not use pension or benefit concession but uses another concessi
269. outs fits or loss of consciousness LABEL Whether has chronic or recurrent pain or discomfort POPULATION All persons CATEGORIES 0 Not applicable 1 Has no chronic or recurrent pain or discomfort 2 Has chronic or recurrent pain or discomfort and is limited in activities 3 Has chronic or recurrent pain or discomfort but is not limited in activities LABEL Whether has difficulty in gripping or holding things POPULATION All persons CATEGORIES 1 Has difficulty gripping or holding things 2 Has no difficulty gripping or holding things CoCo oe eo oO H HEHEHE HEHEHE HEHEHE HEHEHE HH HEHE EHH HHH HHH HHH HHH HHH HEHEHE HEHEHE HEHEHE OOOO OE 112 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevoveeveeveeeeeeeeeeeeeee eee eee eee eee eo eee ee oe eee eee ee eee eee eee Oe ee eo hm eC oO em em em ee el et DISABILITY IDENTIFICATION LABEL Whether has difficulty learning or understanding things IMPAIRMENTS AND POPULATION All persons LIMITATIONS continued CATEGORIES 1 Has difficulty learning or understanding things 2 Does not have difficulty learning or understanding things LABEL Whether has had any other brain damage and has resulting limitation or restriction POPULATION All persons CATEGORIES 0 Not applicable 1 Has had other brain damage that interferes with doing everyday activities 2 Has had other brain damage that does not interfere with everyday activities
270. paration Median Mild core activity limitation Mobility Moderate core activity limitation Need for assistance Non core restriction Non private dwelling Non restricting disfigurement or deformity Non school qualification eo eee eeseeecsceeeseseeseeeseees Cee ee eereseseseseeesesreseseeeeeeeeseeeees 200 ABS For the SDAC living in households refers to those persons enumerated as part of the household component and includes those living in private dwellings and some non private dwellings such as motels boarding houses and self care units in retirement villages but excluding cared accommodation see entry for Other non private dwelling A disease or disorder which has lasted or is likely to last for at least six months or a disease disorder or event e g stroke poisoning accident etc which produces an impairment or restriction which has lasted or is likely to last for at least six months Long term health conditions have been coded to a classification based on the World Health Organisation s International Classification of Diseases version 10 ICD 10 The long term condition causing the most problems Where only one long term condition is reported this is the main long term condition The job in which a person usually works the most hours Where a primary carer is caring for more than one person the main recipient of care is the one receiving the most help or supervision A sole recipient is also classed as
271. pation Activities away from home Community participation Computer use ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 27 28 30 30 30 33 33 37 39 45 45 47 47 47 48 48 48 49 49 49 50 52 55 56 58 59 61 62 64 65 67 68 69 70 71 75 76 76 78 79 79 80 80 81 81 83 4431 0 55 001 2003 eo eres eeeeereeeeeeeseeeeeeeeeeeeeeeoes 27 APPENDIX DATA ITEM LIST continued eoeovoeeveeeveeeeeeeeeee eee eee eee eee eee eo eee eee eee eee meee eee em ee em eee eee eee em me em oO ee Ole CONTENTS continued Core activity limitation Communication 86 Core activity limitation Counts 89 Core activity limitation Mobility 90 Core activity limitation Self care 91 Demographics 92 Disability identification Disability status 106 Disability identification Impairments and limitations 107 Disability identification Supervision 114 Education Educational attainment 115 Education Impairments and restrictions 121 Employment Employment restrictions 123 Employment Labour force items 125 Family level 137 Household level 137 Housing Family level 137 Housing Person level 138 Income Family level 140 Income Household level 141 Income Income unit level 142 Income Person level 144 Long term health conditions Impairments and limitations 146 Long term health conditions Conditions 147 Main recipients of care Assistance needed 149 Main recipients of care Assistance received 1
272. perwork because of disability or old age CATEGORIES 0 None 1 One 2 Two 3 More than two 9 Not applicable LABEL Type of paperwork assistance received POPULATION All persons aged 15 or over with a disability or aged 60 or over living in households who receive assistance with paperwork because of disability or old age CATEGORIES 0 Not applicable 1 None 2 Informal only 3 Formal only 4 Informal and formal ASSISTANCE RECEIPT OF LABEL Extent to which need for property maintenance assistance received met ASSISTANCE WITH PROPERTY POPULATION All persons aged 15 or over with a disability or aged 60 or over living in MAINTENANCE households who receive assistance with property maintenance because of disability or old age CATEGORIES 0 Not applicable 1 Fully 2 Partly 3 Notat all LABEL How became aware of main source of property maintenance assistance POPULATION All persons aged 15 or over with a disability or aged 60 or over living in households who receive assistance with property maintenance because of disability or old age CATEGORIES 0 Not applicable Friend or relative Phone book newspaper or advertisement Local health centre or clinic Government department Local council General practitioner Counsellor social worker or welfare officer Other health worker 9 Other AN An KW DY LABEL Main reason has unmet need for formal property maintenance assistance POPULATION All persons aged 15 or over with a disability
273. pment or modifications Needs at least one day a week off 2 3 4 5 Uses special arrangements at institution 6 Not attending institution 7 Attending and has no non school restriction 8 Not applicable LABEL Reason for not attending school POPULATION All persons aged 5 20 with a disability living in households not attending school excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Condition s prevent s school attendance 2 Too young 3 Home schooling correspondence 4 Finished school LABEL Schooling restriction status multiple response POPULATION All persons aged 5 20 with a disability living in households currently attending school or not attending school because of disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 01 Cannot attend school because of disability 02 Attending special classes 03 Attending special school CoCo ooo ooo EOE EEO HEHEHE HEHEHE EEE EEE EHS HH HHH HEHEHE HEHEHE HHH HEHEHE HEHEHE HHH HHH H HH HHH HOES HHH HEHEHE HEHEHE EEO EEO ES 122 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeeveeveeeeeeeee eee eee e eer eee eee ee eee eee eee eee ee eee eee meee meee eee em em eC eee eee ee EDUCATION IMPAIRMENTS 04 Needs at least one day a week off school AND RESTRICTIONS continued 05 Has difficulty at school 06 Uses speci
274. pplicable 1 Does not need more help from family or friends 2 Has not asked family or friends 3 Needs more help than family friends can provide 4 Family friends not available too far away 5 Other LABEL Number of formal sources of transport assistance POPULATION All persons aged 16 or over with a disability or aged 60 or over living in households who need assistance with transport because of disability or old age CATEGORIES 0 None 1 One 2 Two 9 Not applicable LABEL Number of informal sources of transport assistance POPULATION All persons aged 16 or over with a disability or aged 60 or over living in households who need assistance with transport because of disability or old age CATEGORIES 0 None 1 One 2 Two 3 More than two 9 Not applicable LABEL Type of transport assistance received POPULATION All persons aged 16 or over with a disability or aged 60 or over living in households who receive assistance with transport because of disability or old age CATEGORIES 0 Not applicable None N eR Informal only Qo Formal only A Informal and formal ASSISTANCE SPECIFIC LABEL Specific types of activity where assistance is required or difficulty is experienced ACTIVITIES REPEATING POPULATION All specific activities reported where some assistance is required or DATASET difficulty is experienced excludes persons with a non restricting disfigurement or deformity only CATEGORIES 01 Getting around away from h
275. primary carers living in households whose main recipient is aged 5 or over personal interview CATEGORIES 0 Not applicable 1 Usually has to accompany main recipient 2 Does not usually have to accompany main recipient 3 Main recipient does not leave home LABEL Whether primary carer usually assists main recipient of care to make or maintain relationships POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Usually assists with making or maintaining friendships or relationships 2 Does not usually assist with making or maintaining friendships or relationships 3 Not stated LABEL Whether primary carer usually assists main recipient of care with coping with feelings or emotions POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Usually assists with coping with feelings or emotions 2 Does not usually assist with coping with feelings or emotions 3 Not stated LABEL Whether primary carer usually assists main recipient of care with decision making or problem solvin POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Usually assists with making decisions or thinking through problems 2 Does not usually assist with making decisions or thinking through problems 3 Not stated LABEL Whether primary carer usually assists main recipient of care with financial management POPULATION All primary carers living in households whose main recipient is aged 15 yea
276. questionnaire to the data file editing computer editing programs may have failed to detect errors which reasonably could have been corrected manipulation of data inappropriate edit checks inaccurate weights in the estimation procedure and incorrect derivation of data items from raw survey data can also introduce errors into the results A number of steps were taken to minimise processing errors at various stages of the cycle For example detailed coding instructions were developed and staff engaged in coding were trained in the various classifications and procedures used Edits were devised to ensure that logical sequences were followed in the questionnaires that necessary items were present and that specific values lay within certain ranges In addition at various stages during the processing cycle tabulations were obtained from the data file showing the distribution of persons for different characteristics These were used as checks on the contents of the data file to identify unusual values which may have significantly affected estimates and illogical relationships not previously picked up by edits Non response occurs when people cannot or will not provide information or cannot be contacted It can be total none of the questions answered or partial some of the questions may be unanswered due to inability to answer or recall information etc This can introduce a bias to the results obtained in that non respondent
277. questions they have been assigned the same category as a respondent without a disability usually Not applicable for all data items relating to those questions Coe ee SoSH HEHE SESE EEE EES ESHEETS ESE HEHE HEHEHE HEH EHH HHH HHH HHH HHH HHH HHH HHH HHH HHH HHH HOH HEH HOSES HEHEHE EEE OBOE OE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 7 SURVEY CONTENT continued eovovoevveeveeeeeeeeeee eee eee eee eee eee eee eee eee eee ee eee ee eee eee eee ewe ee eee eee eeee Long term health conditions Specific limitation or restriction Level of core activity limitation Need for assistance Some people are classified as having a long term health condition with a resulting disability Others not restricted in everyday activities by an impairment or condition have a long term health condition without a disability A long term health condition is a disease or disorder which has lasted or is likely to last for six months or more This includes damage from accidents or injuries lasting for at least six months The International Statistical Classification of Diseases and Related Health Problems 10th Revision ICD 10 was used in the 1998 and 2003 surveys as the basis for the coding of long term conditions The survey identified subsets of the disability population based on reported limitations see diagram on previous page People were identified as having a specific limitation or restricti
278. r deformity only CATEGORIES 0 Not applicable 1 Government 2 Private non profit organisation 3 Private commercial organisation 4 Informal provider LABEL Whether each informal provider is a usual resident POPULATION All providers of informal assistance excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Informal provider is a usual resident 2 Informal provider is not a usual resident LABEL Whether this provider supplies the main assistance POPULATION All providers of formal or informal assistance excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Provides the main assistance 2 Does not provide the main assistance LABEL Extent to which need for assistance met POPULATION All persons with a disability or aged 60 or over living in households who need assistance because of disability or old age CATEGORIES 0 Not applicable 1 Need for assistance fully met 2 Need for assistance partly met 3 Need for assistance not met at all LABEL Extent to which need for core activity assistance met POPULATION All persons with a disability living in households who need assistance with a core activity because of disability CATEGORIES 0 Not applicable 1 Need fully met for core activities 2 Need partly met for core activities 3 Need not met at all for core activities LABEL Extent to which need for non core activity assistance met PO
279. r persons in income unit receives the Carer Allowance Centrelink 2 Noone in the income unit receives the Carer Allowance Centrelink LABEL Whether anyone in income unit receives Disability Pension DVA POPULATION All income units in private dwellings CATEGORIES 0 Not applicable 1 A person or persons in income unit do receive Disability Pension DVA 2 Noone in the income unit receives a Disability Pension DVA LABEL Whether anyone in income unit receives War Widow s Pension DVA POPULATION All income units in private dwellings CATEGORIES 0 Not applicable 1 A person or persons in the income unit receives the War Widow s Pension DVA 2 Noone in the income unit receives the War Widow s Pension DVA LABEL Whether anyone in income unit receives other minor pensions or benefits POPULATION All income units in private dwellings CATEGORIES 0 Not applicable 1 A person or persons in income unit receives other minor pensions or benefits 2 Noone in the income unit receives other minor pensions or benefits LABEL Whether anyone in income unit receives overseas pensions benefits POPULATION All income units in private dwellings CATEGORIES 0 Not applicable CoCo ooo oO EEHEHE EHS HEH HHEHEH HEHEHE HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HOES HHH HOHE OHHH EEE EEO OEE 144 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovoveveveeeeeveeeeeeeee ee eee eee eee ee
280. red accommodation A subset of the data collected from the household component of the survey was component obtained about people in cared accommodation using a mail back form completed by an administrative staff member of the establishment This collection identified disability status and assistance needs The questions asked were similar to those included in the household component of the survey In some cases minor modifications were made to make them relevant to cared accommodation facilities CoCo ooo ooo OOOOH EE SEDO HOE HEHEHE EEE EEE EEE H HSH HEHEHE HEHEHE HEHE HHH HHS HEHEHE HHH HHH HHH HHH HEHEHE HEHEHE HEHEHE EEE EES ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 5 SURVEY CONTENT continued eovovoeeveeveeeeeeeeeeee eee eee eee eee eee eo eee eee eee eee eee ee eee eee eee ewe ee eee eee eee CONCEPTS AND The main concepts relating to disability are DEFINITIONS disability long term health conditions specific limitation or restriction a core activity limitation and levels of restriction need for assistance Disability In the context of each individual s health experience the International Classification of Functioning Disability and Health ICF defines disability as an umbrella term for impairments activity limitations and participation restrictions It denotes the negative aspects of the interaction between an individual with a health condition and that individual s contextual
281. rehensive survey on disability was conducted by the ABS in 1981 the International Year of Disabled Persons The survey titled Survey of Handicapped Persons identified people with a disability and addressed the nature and extent of related specific limitations or restrictions handicaps through their need for assistance in difficulty with or the use of aids to perform a range of everyday activities The survey also provided information on other characteristics of people with specific limitations or restrictions such as their living arrangements work education recreation and whether their need for assistance was met Prior to each disability survey the ABS conducts widespread consultation with its users of statistics As information needs altered over time in line with government policy and changed social attitudes new questions were introduced in later surveys to better identify disability From 1988 the scope of the survey was also expanded to collect information about informal carers of people with a disability CoCo ooo ooo EEE HEHEHE HEHEHE EEE HEE EE HEHEHE HEHEHE HEHEHE ETE HH HEHEHE HHS HEHEHE HHH HHH HHH HHH HHH HEHEHE HEHEHE HOHE EEE OOOO OE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 1 INTRODUCTION continued eovovoeeveeveeeeeeeeeeee eee eee eee eee eee eee eee ee ee eee em ee ee eee eee em me oO eC em eo em eo he em em eee elt CHANGES FOR THE 2003 The 2003 SDAC increased the
282. rement or deformity 14 Mental illness 15 Other limitations and restrictions 16 Not applicable LABEL Disability type s as a result of head injury multiple response POPULATION All persons how had head injury and have a disability as a result CATEGORIES 00 Not applicable 10 Loss of sight 11 Loss of hearing 12 Speech difficulties 13 Breathing difficulties 14 Chronic or recurring pain or discomfort 15 Blackouts fits or loss of consciousness 16 Slow at learning or understanding 17 Incomplete use of arms or fingers 18 Difficulty gripping or holding things CoCo ooo ooo OOOOH EES ODEO HEHEHE EEE EEE EEE HHH HHHEHEH HEHEHE HEHEHE HHH HEHEHE EHH EHH HHH HHH HHH HSH HEHEHE HEHEHE HEHEHE EEE EOE OE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 109 APPENDIX DATA ITEM LIST continued eovovoeeeveveeeveeeeeeeee eee e eer eee eee eee ee eee eee ee eee em ee em ee ee eee em ee em em eC em eo oO me em oO ee ele DISABILITY IDENTIFICATION 19 Incomplete use of feet or legs IMPAIRMENTS AND 20 Nervous or emotional condition LIMITATIONS continued 21 Restriction in physical activities or work 22 Disfigurement or deformity 23 Mental illness 24 Other disability type s LABEL Disability type s as a result of other brain damage multiple response POPULATION All persons who have other brain damage and a disability as a result CATEGORIES 00 Not applicable 10 Loss of sight 11 Loss of hearing 12 Spe
283. rivate dwellings CATEGORIES Continuous LABEL Proportion of people with a disability in group households POPULATION All group households CATEGORIES Continuous 999 Not applicable LABEL Registered marital status POPULATION All persons aged 15 or over living in households and persons with a disability living in health establishments CATEGORIES 0 Not applicable 1 Married 2 Separated 3 Divorced 4 Widowed 5 Never married 6 Don t know LABEL Sex POPULATION All persons CATEGORIES 1 Male 2 Female LABEL Social marital status POPULATION All persons aged 15 or over living in private dwellings CATEGORIES 0 Not applicable Married in a registered marriage Married in a defacto marriage opposite sex couple Married in a defacto marriage same sex couple male Married in a defacto marriage same sex couple female NR WW Ne Not married LABEL Social marital status SDs POPULATION All persons living in households in special dwellings CATEGORIES 0 Not applicable 1 Married in a registered marriage 2 Notina registered marriage CoCo ooo ooo H HEHE HEHEHE HEHEHE HHH H HEHEHE HEHEHE HEHEHE HHH HHH HHH HHH HHH HEHEHE HEHEHE EEE OOOO ES 106 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevovoeveveveveeeveeeeeeeee ee ee ee eee eee eee eee eee ee eee ee eee eee eee meee eee meee eee eee eee DEMOGRAPHICS continued LABEL Standard r
284. rmined CoCo oo ooo HHHEHHEHEHEHEH HEHEHE HEHE HHH HEHE HEHEHE HSH HHH HHH HHH HHH HHH HEHEHE EHH HEHEHE EEE OOOO ES 120 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeveveeveeeeeeeeeeee eee eee eee eee eee eee eee ee eee eo eee em em ee meee meee ee mee he eC oO em em oO ee ele EDUCATION EDUCATIONAL LABEL School attendance ATTAINMENT continued POPULATION All persons aged 5 20 living in households CATEGORIES 0 Not applicable 1 Attending school 2 Not attending school LABEL Whether attends primary or secondary school POPULATION All persons aged 5 20 living in households CATEGORIES 0 Not applicable 1 Attending primary school 2 Attending secondary school 3 Not attending school LABEL Whether completed Year 12 POPULATION All persons aged 15 or over living in households CATEGORIES 0 Not applicable 1 Completed Year 12 or equivalent 2 Didn t complete Year 12 or equivalent LABEL Year completed highest non school qualification POPULATION All persons aged 15 or over living in households who have completed a non school qualification CATEGORIES 0000 Not applicable 1111 Prior to 1980 1980 1980 1981 1981 1982 1982 1983 1983 1984 1984 1985 1985 1986 1986 1987 1987 1988 1988 1989 1989 1990 1990 1991 1991 1992 1992 1993 1993 1994 1994 1995 1995 1996 1996 1997 1997 1998 1998 1999 1999 2000 2000 2001 2001
285. road area of activity where assistance is required or difficulty is experienced ACTIVITIES REPEATING POPULATION All broad areas of activity where assistance is required or difficulty DATASET experienced excludes persons with a non restricting disfigurement or deformity only CATEGORIES 01 Mobility 02 Self care 03 Oral communication 04 Health care 05 Cognitive emotional support 06 Household chores 07 Home maintenance gardening 08 Meal preparation 09 Reading and writing 10 Private transport 11 Public transport LABEL Extent to which need for assistance is met POPULATION All broad areas of activity except public transport where some assistance is required excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Fully 2 Partly 3 Notatall LABEL Grouped frequency of need for assistance or supervision POPULATION All broad areas of activity except public transport where some assistance is required excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Less than once a month CoCo ooo oO HEHH HEHEHE EEE EEE HEHE HHH HHH HHH HEHEHE HHH HHH HHH HHH HHH HEHEHE HEHEHE HEHEHE OOOO EE 38 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeeveeveeeeeeeeeeee eee eee eee eee eee eee eee ee eee ee em ee em ee eee mee em ee em eo em eo oO em em eo ee ele
286. rs or over personal interview CATEGORIES 0 Not applicable 1 Usually assists with financial management 2 Does not usually assist with financial management CoCo eee ooo OHHH HOHE HEHEHE HEHEHE EEE EEE HEH HEHEHE HEHEHE HEHEHE HEHEHE HH EEE SESE EHH HEHEHE HEHEHE HEHEHE HEH HHH HHH HOHE HOHE OS ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 179 APPENDIX DATA ITEM LIST continued eovovoeveveeeeeeeeeeeeeeeeeeee eee eee eee eee eee eee eee eee eee eee ee eee eeee ee eee eee eeee PRIMARY CARERS TYPE OF ASSISTANCE PROVIDED continued eo eee eesreeeeeeeseeeeeeeeeeeeeeee LABEL Whether primary carer usually assists main recipient of care with footcare POPULATION All primary carers living in households whose main recipient is aged 5 or over personal interview CATEGORIES 0 Not applicable 1 Usually assists with footcare 2 Does not usually assist with footcare LABEL Whether primary carer usually assists main recipient of care with gardening POPULATION All primary carers living in households whose main recipient is aged 15 years or over personal interview CATEGORIES 0 Not applicable 1 Usually assists with gardening 2 Does not usually assist with gardening LABEL Whether primary carer usually assists main recipient of care with healthcare other than footcare POPULATION All primary carers living in households whose main recipient is aged 5 or over personal interview CATEGORIES 0 Not appli
287. ry to determine whether it has the ABS statistics you require or visit our web site for a list of libraries For current and historical Consumer Price Index data call 1902 981 074 call cost 77c per minute For the latest figures for National Accounts Balance of Payments Labour Force Average Weekly Earnings Estimated Resident Population and the Consumer Price Index call 1900 986 400 call cost 77c per minute INFORMATION SERVICE PHONE EMAIL FAX POST WHY NOT SUBSCRIBE PHONE EMAIL 7 AX POST Data already published that can be provided within five minutes will be free of charge Our information consultants can also help you to access the full range of ABS information ABS user pays services can be tailored to your needs time frame and budget Publications may be purchased Specialists are on hand to help you with analytical or methodological advice 1300 135 070 client services abs gov au 1300 135 211 Client Services ABS GPO Box 796 Sydney NSW 2001 ABS subscription services provide regular convenient and prompt deliveries of selected ABS publications and products as they are released Email delivery of monthly and quarterly publications is available 1300 366 323 subscriptions abs gov au 03 9615 7848 Subscription Services ABS GPO Box 2796Y Melbourne Vic 3001 Commonwealth of Australia 2004 Produced by the Australian Bureau of Statistics 00 TOO SS O TEVYD SYJYY A
288. ryday types of activities without specific information on the activities Where the care recipient lives in the same household the assistance is for one or more of the following activities cognition or emotion communication health care housework meal preparation mobility paperwork property maintenance self care transport A person of any age who is a natural step or foster son or daughter of a couple or lone parent usually resident in the same household and who does not have a child or partner of their own usually resident in the household This activity comprises the following tasks making friendships maintaining relationships or interacting with others coping with feelings or emotions decision making or thinking through problems Cognition or emotion was termed guidance in previous disability surveys This activity comprises the following tasks understanding family or friends CoCo ooo ooo OOOH EEE SEDO HEHHEH HEHEHE EHH HHH HHH HHH HEHEHE HHH HHH HHH HHH HHH HEHEHE HEHEHE EOE EO EEO EE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 195 GLOSSARY continued eovovoeeveeveveeeveeeeeeeeeeeeeee eee eee eee eee eee ee eee eee eee eee eee eee eee eee eeeeeeeee Communication continued Contributing family worker Core activities Core activity limitation Disability being understood by family or friends understanding strangers being
289. s 02 Profit or loss from own unincorporated business or share in a partnership 03 Profit or loss from rental property 04 Dividends or interest 05 Any Government pension or allowance 06 Child support or maintenance 07 Superannuation or annuity 08 Workers compensation 09 Other main source 10 No sources of income 11 Not known 12 Nil or negative income LABEL Relationship of principal carer to main recipient POPULATION All principal carers living in households as identified by a co resident with a disability CATEGORIES 00 Not applicable 01 Spouse partner 02 Father 03 Mother 04 Son 05 Daughter CoCo oo ooo OEE HHH ESOS H HHH HEHEHE HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HHH HHH HEHEHE HEHEHE HEHEHE EEO EEO OS ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 157 APPENDIX DATA ITEM LIST continued eoevovoeeveeveeeeeeeeeeeeeeee ee eee eee eee eee eee ee eee ee eee ee eee eee eee eee eee ee eee eee MAIN RECIPIENTS OF CARE OTHER continued eo eee eesreeeereeeseeeeeeeeeeeeeees 06 Son in law 07 Daughter in law 08 Other male relative 09 Other female relative 10 Male friend neighbour 11 Female friend neighbour 12 Not determined recip did not id carer LABEL Sex of non usual resident main recipient of care POPULATION All primary carers living in households whose main recipient of care is not a co resident CATEGORIES 0 Not applicable 1 Male 2 Female 9 Don t know lt incl
290. s 7912 Blasting Workers 7913 Structural Steel Construction Workers 7914 Insulation and Home Improvements Installers 7990 Miscellaneous Intermediate Production and Transport Workers nfd 7991 Motor Vehicle Parts and Accessories Fitters 7992 Product Quality Controllers 7993 Storepersons 7994 Seafarers and Fishing Hands 7995 Forestry and Logging Workers 7996 Printing Hands 8000 Elementary Clerical Sales and Service Workers nfd 8100 Elementary Clerks nfd 8110 Elementary Clerks nfd 8111 Registry and Filing Clerks 8112 Mail Sorting Clerks 8113 Switchboard Operators 8114 Messengers 8115 Betting Clerks 8116 Office Trainees 8119 Other Elementary Clerks 8200 Elementary Sales Workers nfd 8210 Sales Assistants nfd 8211 Sales Assistants 8290 Miscellaneous Elementary Sales Workers nfd 8291 Checkout Operators and Cashiers 8292 Ticket Salespersons 8293 Street Vendors and Related Workers 8294 Telemarketers 8295 Sales Demonstrators and Models 8296 Service Station Attendants 8297 Sales and Service Trainees 8299 Other Elementary Sales Workers 8300 Elementary Service Workers nfd 8310 Elementary Service Workers nfd 8311 Guards and Security Officers 8312 Ushers Porters and Related Workers 8313 Domestic Housekeepers 8314 Caretakers 8315 Laundry Workers 8319 Other Elementary Service Workers Cee ee eee esses eseeeseeeeseseeeeeeeEeEeeEeEeEEeEEEEEEEE EEE HEHEHE HEHEHE OEE EEE EEE EEE 136 ABS DISABILITY AGEING AND CARE
291. s 2 Is not limited or restricted by hearing loss LABEL Whether using a hearing aid or cochlea implant improves hearing POPULATION All persons with a hearing loss living in households who use a hearing aid or cochlear implant CATEGORIES 0 Not applicable 1 Can hear better using a hearing aid or cochlea implant but still not normally 2 Can hear normally using a hearing aid or cochlea implant 3 Hearing not improved by using a hearing aid or cochlea implant LONG TERM HEALTH LABEL Age when accident happened onset of main condition CONDITIONS CONDITIONS POPULATION All persons with one or more long term condition s living in households CATEGORIES Continuous 0 Not applicable 121 Not known LABEL Cause of main condition POPULATION All persons with one or more long term condition s CATEGORIES 00 Not applicable 01 Just came on 02 Disease or illness or hereditary 03 Accident or injury 04 Working conditions or work or overwork 05 Present at birth 06 Old age O07 Stress 08 War or peacekeeping service 09 Personal or family problems or death CoCo ooo ooo HEHEHE EHO HEHEHE EEE HEHEHE HEHEHE EHS HEHEHE HEHEHE HEHEHE HHH HHS HEHEHE HHH HHH HHH HHH HHH HEHEHE HEHEHE HHH EOE OOOO OOS 148 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevovoeveveeveeeveeeeeeeeeeeee ee ee eee eee eee eee eee eee eee eee eee eee ee eee meee eee eee eee LONG TERM HEALTH 10 Allergy
292. s and Illustrators 2534 Journalists and Related Professionals 2535 Authors and Related Professionals 2536 Film Television Radio and Stage Directors 2537 Musicians and Related Professionals 2538 Actors Dancers and Related Professionals 2539 Media Presenters 2540 Miscellaneous Professionals nfd 2541 Air Transport Professionals 2542 Sea Transport Professionals 2543 Occupational and Environmental Health Professionals 2549 Other Professionals 3000 Associate Professionals nfd 3100 Science Engineering and Related Associate Professionals nfd 3110 Medical and Science Technical Officers nfd 3111 Medical Technical Officers 3112 Science Technical Officers 3120 Building and Engineering Associate Professionals nfd 3121 Building Architectural and Surveying Associate Professionals 3122 Civil Engineering Associate Professionals 3123 Electrical Engineering Associate Professionals 3124 Electronic Engineering Associate Professionals 3125 Mechanical Engineering Associate Professionals 3129 Other Building and Engineering Associate Professionals 3200 Business and Administration Associate Professionals nfd 3210 Finance Associate Professionals nfd 3211 Branch Accountants and Managers Financial Institution 3212 Financial Dealers and Brokers 3213 Financial Investment Advisers 3290 Miscellaneous Business and Administration Associate Professional nfd 3291 Office Managers 3292 Project and Program Administrators 3293 Real Estate Associate Profe
293. s may have different CoCo HEHEHE EHD HOES EEE EES HEHEHE HEHEHE HEHEHE HEHEHE HEHEHE HEH H HH HHH HHH HHH HEHE HHH OHH HOHE HEHEHE OOOO EE 20 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 DATA QUALITY continued eovoeveveveeveeeeeeeeeeee eee eee eee eee ee eee eee eee eee ee eee eee em em em ee ee meme eee em em ee eee Non response bias characteristics from those persons who responded to the survey The size of the bias continued depends upon these differences and the level of non response It is not possible to accurately quantify the nature and extent of the differences between respondents and non respondents in the survey however every effort was made to reduce the level of non response bias through careful survey design and estimation procedures see Chapter 3 RESPONSE RATES Response rates for both the household and cared accommodation components were high Of the 16039 private dwellings and special dwelling units in the effective sample 89 were either fully responding or adequate complete Of the 592 health establishments in the cared accommodation component 542 92 were fully responding TABLE 4 1 HOUSEHOLD COMPONENT Response rates Coc eee eee rere ereeseseseeeeseresreeeeeeeeeeeeesereseseeeeeeeeeeoeseeeses No Fully or adequately responding Fully responding 12 071 75 3 Adequately complete 2251 14 0 Total 14 322 89 3 Non response Full refusal 276 1 7 Full non con
294. s not cause the most problems CoCo ooo eo HEH HEHEHE HEHEHE HEHEHE HHH HHH HHH SEH HEHEHE HHH HHH HHH HHH HEH HHH HEHEHE HOHE HEE EE OEE OE 182 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevovoeeveveveeeveeeeeeeee eee eee eee eee eee eo eee eee eee eee em eo ee ee eee eee eee em eo hm eo oO em em em ee ele RESTRICTION REPEATING LABEL Whether total loss of sight hearing speech DATASET continued POPULATION All reported disabilities involving sight hearing or speech CATEGORIES 0 Not applicable 1 Total loss 2 Partial loss 9 Not asked SELF PERCEIVED HEALTH LABEL Extent to which pain interfered with work during last four weeks STATUS SF 12 ITEMS POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Notat all 2 Slightly 3 Moderately 4 Quite a bit 5 Extremely LABEL General health assessment POPULATION All primary carers living in households CATEGORIES 0 Not applicable 1 Excellent 2 Very good 3 Good 4 Fair 5 Poor LABEL How often felt calm and peaceful during last four weeks POPULATION All primary carers living in households CATEGORIES 0 Not applicable All of the time Most of the time A good bit of the time Some of the time A little of the time None of the time NW KR WN e LABEL How often felt down during last four weeks POPULATION All primary carers living in households CATEGORIES
295. s reported where some assistance is required or difficulty is experienced excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Needs assistance or supervision 2 Does not need assistance or supervision but has difficulty LABEL Private dwelling structure POPULATION All private dwellings CATEGORIES 00 Not applicable 11 Separate house 21 Single storey semi detached row or terrace house or townhouse 22 Two or more storey semi detached row or terrace house or townhouse 31 Flat or apartment in a 1 or 2 storey block 32 Flat or apartment in a 3 storey block 33 Flat or apartment in a 4 or more storey block 34 Flat attached to a house 91 Long stay caravan park or houseboat in marina 92 Caravan not in a caravan park or houseboat not in marina 93 Improvised home or camps out 94 House or flat attached to shop or office LABEL Type of special dwelling POPULATION All special dwellings CATEGORIES 00 Not applicable CoCo ooo ooo OOH EEE HEHEHE HEHEHE EEE EEE HEHEHE HEHEHE HEHEHE HEHEHE HHH H HEHEHE HHH HHH HHH HH HHH HHH E OOOO EE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 71 APPENDIX DATA ITEM LIST continued eovovoeeveeveeeeeeeeeeeeee eee eee eee eee eee eee eee eee ee eee em ee meee em eo em meee eee eC ee em oO ee el BACKGROUND DWELLING 01 Hospital general INFORMATION continued 02 Hospital other 03 Home for the aged 04 Home other 05 Ac
296. sehold income by the sum of the equivalence points allocated to household members These are groupings of 20 of the total population of Australia when ranked in ascending order according to equivalised gross household income The population used for this purpose includes all persons in on scope and coverage for this survey living in private dwellings including children under the age of 15 years The quintile boundaries of the equivalised gross household income for the 2003 SDAC population were Lowest quintile Up to 277 per week Second quintile 278 to 452 per week a Third quintile 453 to 644 per week Fourth quintile 645 to 933 per week Highest quintile 934 or more per week See Cared accommodation A person identified by the primary carer as being able to take responsibility for the care of the main recipient of care should the primary carer become unavailable A fall back carer cannot be a formal provider Coo eee eee eo Heo H HHH HEHEHE HEHEHE SESE HEHEHE EE EOEE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 197 GLOSSARY continued eovovoeeveeveeeeeeeeeeeeeeeee eee eee eee eee ee eee eee eee eee ee eo ee eee eee ewe eee eeeeeeee Family Two or more persons one of whom is at least 15 years of age who are related by blood marriage registered or de facto adoption step or fostering and who are usually resident in the same household The basis of a family is formed by identi
297. seholds excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable Cannot use any form of public transport Can use public transport but needs help or supervision Can use public transport needs no help but has difficulty A WO Ne Can use public transport needs no help and has no difficulty 5 Does not leave home LABEL Level of assistance needed transferring to or from bed or chair because of disability POPULATION All persons with a disability excluding those with a hearing or speech loss only living in households and all persons with a disability living in health establishments CATEGORIES 0 Not applicable 1 Always needs help or supervision transferring to or from bed or chair 2 Sometimes needs help or supervision transferring to or from bed or chair 3 Does not need help or supervision transferring to or from bed or chair but has difficulty 4 Has no difficulty transferring to or from bed or chair 5 Does not get out of bed LABEL Level of assistance needed with mobility about place of residence because of disability POPULATION All persons with a disability excluding those with a hearing or speech loss only living in households and all persons with a disability living in health establishments CATEGORIES 0 Not applicable 1 Always needs help or supervision moving about place of residence Coe ooo ooo ooo HoH EOE HOES HHH H OHHH HEHEHE HEHEHE HEHEHE EE EEE OOE ABS DISABILITY AGEING AN
298. sign language another member of the household was asked to interpret on behalf of and with the permission of the respondent In some cases arrangements were made to supply an interviewer conversant in the respondent s preferred language People who were confirmed as primary carers in their personal interview were also asked to complete a short self enumerated paper questionnaire during the interview This method allowed them to provide information on more sensitive issues as the care recipient would often be present at the interview 14 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 SURVEY DESIGN AND OPERATION continued eovovoeveeveeeeeeeeeeee eee eee eee eee eee eee eee eee eee ee eee eee ee meee eee eee eee eee eeee Data collection for the household component continued Data collection for the cared accommodation component Interviewers for the household component of the survey were recruited from trained interviewers with previous experience in Australian Bureau of Statistics ABS household surveys They were required to participate in CAI training then in specific training for the survey using laptop computers Training emphasised understanding the survey concepts and definitions and the necessary procedures to ensure a consistent approach to data collection Prior to enumeration a letter and brochure were sent out to each household selected for the survey These documents prov
299. sion or welfare payments might be affected 10 Pregnancy 11 Lacks relevant schooling training or experience 12 Child care availability 13 Don t know 14 Other LABEL Occupation POPULATION All persons aged 15 or over living in households and employed CATEGORIES 0998 Inadequately described 0000 Not applicable 1000 Managers and Administrators nfd 1100 Generalist Managers nfd COC ooo ooo OEE EES EOE HEHEHE EEE HEHEHE HEHEHE HEHEHE HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HHH HHH HEHEHE HOHE HOHE ESOL E OES 128 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eoevoevoeeveeeeeeeeeeeeee ee ee ee eee eee ee eee ee eee eee eee eee eee meee mee eee meee ee em ee eo et EMPLOYMENT LABOUR FORCE ITEMS continued 1110 General Managers and Administrators nfd 1111 Legislators and Government Appointed Officials 1112 General Managers 1190 Miscellaneous Generalist Managers nfd 1191 Building and Construction Managers 1192 Importers Exporters and Wholesalers 1193 Manufacturers 1200 Specialist Managers nfd 1210 Resource Managers nfd 1211 Finance Managers 1212 Company Secretaries 1213 Human Resource Managers 1220 Engineering Distribution and Process Managers nfd 1221 Engineering Managers 1222 Production Managers 1223 Supply and Distribution Managers 1224 Information Technology Managers 1230 Sales and Marketing Managers nfd 1231 Sales and Marketing Managers 1
300. son has unmet need for formal health care assistance POPULATION All persons aged 5 years and over with a disability living in households who receive assistance with health care CATEGORIES 0 SO AN DWN KR WN e Not applicable Did not know of service Need not important enough Wont ask because of pride Unable to arrange service No service available Not eligible for service Service costs too much Service does not provide sufficient hours Other CoCo ooo EHO H HEHEHE HEHEHE HEHEHE HEHEHE HHH HEHE HHH HHH HHH HHH HHH HHH HHH HEHEHE HEHEHE HEHEHE OOOO ES DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 59 APPENDIX DATA ITEM LIST continued eovovoeveveeveeeeeeeeeeee ee eee eee eee eee eee eee eee eee eee eee eee eee eee eee ee eeeeeeeeee ASSISTANCE RECEIPT OF LABEL Main reason has unmet need for informal health care assistance ASSISTANCE WITH HEALTH POPULATION All persons aged 5 years and over with a disability living in households CARE continued who receive assistance with health care CATEGORIES 0 Not applicable 1 Does not need more help from family or friends 2 Has not asked family or friends 3 Needs more help than family friends can provide 4 Family friends not available too far away 5 Other LABEL Number of formal sources of health care assistance POPULATION All persons aged 5 years and over with a disability living in households who need assistance with health care CA
301. sons in different households A primary carer provides the most help or supervision with the core activities of self care mobility and or communication toa person who needs this assistance because of their older age or disability ona regular unpaid basis ina way that is ongoing or likely to be ongoing for at least six months When an older person needs assistance with core activities because of their age by definition they have a core activity limitation and therefore have a disability Primary carers for recipients in both the same household and in a different household were identified by an initial screening process They were then personally interviewed to confirm that they satisfied the criteria and to provide a range of further information about their caring role CoCo ooo oOo H HEHEHE HEHEHE HEHEHE HEHEHE HEHEHE HEHEHE HHH HH HHH HHH HEHEHE SEE HEHEHE EEE OEE OES ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 11 SURVEY DESIGN AND OPERATION eoevovoevcveeveeveeeeeeeeee eee eee eee eee eee eee eee eee eee eee eee eee ee eee eee eee eee eee eee INTRODUCTION SCOPE AND COVERAGE Scope of the survey Coverage The 2003 SDAC had two components the household component and the cared accommodation establishment component The household component covered people who lived in private dwellings such as houses flats home units townhouses tents and other structures used as priv
302. sorders Coo eee eeeeeeeeseseeeeeeeeseeeeeeeeeeeeeEeeeEEE ELE EE EEE EEE EEO EEE EEE DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 35 APPENDIX DATA ITEM LIST continued eovovoeeveveeeeeee eee eee eee eee eee eee eee eee eee eee eee ee ee ee eee em ee ee em ee em eo oO em oO ee eee ALL CONDITIONS REPEATING 0601 Meningitis and Encephalitis excluding viral DATASET continued 0602 Huntington s disease 0603 Motor neurone disease 0604 Parkinson s disease 0605 Alzheimer s disease 0606 Brain disease disorders acquired 0607 Multiple sclerosis 0608 Epilepsy 0609 Migraine 0610 Muscular dystrophy 0611 Cerebral palsy 0612 Paralysis 0613 Chronic postviral fatigue syndrome 0699 Other diseases of the nervous system including T 1 A s 0701 Corneal disorders defects 0702 Cataracts 0703 Retinal disorders defects 0704 Glaucoma 0705 Refraction and accommodation disorders 0706 Visual disturbances 0707 Sight loss 0799 Other diseases of the eye and adnexa 0801 Diseases of the external ear 0802 Diseases of the middle ear and mastoid 0803 Diseases of the inner ear except noise induced deafness 0804 Tinnitus 0810 Deafness hearing loss 0811 Deafness hearing loss noise induced 0812 Deafness hearing loss congenital 0813 Deafness hearing loss due to accident 0814 Deaf mutism 0819 Other deafness hearing loss 0899 Other diseases of the ear and mastoid process 0900 Diseases of the circula
303. ssionals 3294 Computing Support Technicians 3300 Managing Supervisors Sales and Service nfd 3310 Shop Managers nfd 3311 Shop Managers COSC ooo ooo aE H EHH HEHEHE EEO EEE EEO OE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 131 APPENDIX DATA ITEM LIST continued eovovoeeveeeeeeeeeeeeee eee eee eee eee eee ee eee eee eee eee ee em em meee meee eee em ee eC oO em he oO ee ele EMPLOYMENT LABOUR FORCE ITEMS continued eee eee esreeeceeeseeeeeeeeeeeeeees 3320 Hospitality and Accommodation Managers nfd 3321 Restaurant and Catering Managers 3322 Chefs 3323 Hotel and Motel Managers 3324 Club Managers Licensed Premises 3325 Caravan Park and Camping Ground Managers 3329 Other Hospitality and Accommodation Managers 3390 Miscellaneous Managing Supervisors Sales and Service nfd 3391 Sport and Recreation Managers 3392 Customer Service Managers 3393 Transport Company Managers 3399 Other Managing Supervisors Sales and Service 3400 Health and Welfare Associate Professionals nfd 3410 Enrolled Nurses nfd 3411 Enrolled Nurses 3420 Welfare Associate Professionals nfd 3421 Welfare Associate Professionals 3490 Miscellaneous Health and Welfare Associate Professionals nfd 3491 Ambulance Officers and Paramedics 3492 Dental Associate Professionals 3493 Aboriginal and Torres Strait Islander Health Workers 3494 Massage Therapists 3900 Other Associate Professionals nfd 3910 Police Officers nfd
304. ssistance from a disability job placement program or agency 09 Permanently unable to work 10 No employment restrictions 11 Not applicable CoCo ooo ooo EEEHH HEHEHE HEHEHE HEHEHE HHH HHS ESE HEHEHE HHH HH HHH HHH HEHEHE HHH HEHEHE HEHE OEE O EE 124 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeveveeveeeeee eee eee eee eee eee eee eee eo eee eee eee eee eee eee meee meee eee eee eC ee em oO em eee EMPLOYMENT EMPLOYMENT LABEL Number of reasons permanently unable to work RESTRICTIONS continued POPULATION All persons aged 15 64 with disability living in households who are permanently unable to work excludes persons with a non restricting disfigurement or deformity only CATEGORIES Continuous LABEL Other employer arrangements multiple response POPULATION All persons aged 15 64 with disability living in households excluding those who are permanently unable to work excludes persons with a non restricting disfigurement or deformity only CATEGORIES 01 A special support person to assist or train on the job 02 Provided help from someone at work 03 Provided special equipment 04 Modified buildings fittings 05 Provided special free transport or parking 06 Provided training retraining 07 Allocated different duties 08 Other 09 None of above arrangements required needed 10 Not applicable LABEL Reason s permanently unable to work multiple respo
305. t 1993 cat no 4435 0 Disability Ageing and Carers Australia Brain Injury and Stroke 1993 Cat no 4437 0 Focus on Families Caring in Families Support for Persons who are Older or have Disabilities cat no 4423 0 SURVEY OF DISABILITY AGEING AND CARERS 1998 Disability Ageing and Carers Australia Summary of Findings 1998 cat no 4430 0 Disability Ageing and Carers User Guide Australia 1998 cat no 4431 0 Caring in the Community 1998 cat no 4436 0 Disability and Long Term Health Conditions 1998 Cat no 4433 0 Other related publications Other ABS publications relating to disability ageing and carers Disability Australia Preliminary 2003 cat no 4446 0 Focus on Families Family Life 1995 cat no 4425 0 Other ABS publications which may be of interest include Australian Social Trends 2004 cat no 4102 0 General Social Survey Summary Results Australia 2002 cat no 4159 0 National Aboriginal and Torres Strait Islander Social Survey 2002 cat no 4714 0 National Health Survey Summary of Results 2001 cat no 4364 0 Education and Training Experience Australia 2001 cat no 6278 0 Private Hospitals Australia 2000 2001 cat no 4390 0 Income Distribution Australia 1999 2000 cat no 6523 0 Older People Australia A Social Report 1999 cat no 4109 0 Children Australia A Social Report 1999 cat no 4119 0 How Australians Use Their Time 1997 cat no 4153 0 Labour Force
306. t 23 Three or more family household with non family members present 31 Lone person household 32 Group household 90 Not classifiable not further defined 99 Outside scope of classification e g visitor resident of SD LABEL Income unit type POPULATION All income units in private dwellings CATEGORIES 0 Not applicable Couple income unit with children under 15 only Couple income unit with dependent students aged 15 to 24 only Couple income unit with children under 15 and dependent students Couple income unit with no dependent children One parent income unit with children under 15 only One parent income unit with dependent children aged 15 24 only NAVU KRW NY One parent income unit with children under 15 and dependent students 8 One person income unit LABEL Number of children in family aged 15 24 full time employed not in full time study POPULATION All families living in households in private dwellings CATEGORIES Continuous LABEL Number of children in family aged 15 24 full time employed and full time student POPULATION All families living in households in private dwellings CATEGORIES Continuous LABEL Number of children in family aged 15 24 full time student not in full time employment POPULATION All families living in households in private dwellings CATEGORIES Continuous CoCo eo eee eee HoH EOE HEHEHE HEHE HOH HEHEHE HEHEHE HEHEHE HHH HHH HEHEHE HEHEHE EEO E EEE EEE ABS DISABILITY AGEING AND
307. t or deformity only CATEGORIES 0 Not applicable 1 Uses showering bathing aid s 2 Does not use showering bathing aid s but uses other aid s 3 Does not use aid s LABEL Whether uses aid s to go to the toilet POPULATION All persons with a disability excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses toileting aid s 2 Does not use toileting aid s but uses other aid s 3 Does not use aid s ALL CONDITIONS REPEATING LABEL Type of long term condition reported DATASET POPULATION All reported conditions CATEGORIES CoCo ooo ooo HH HH HEHEHE HEHEHE HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HOHE HHEHHH EHH OHHH EEE OOOO OOS 34 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeeveeeveeeeeeeeeeee eee eee eee eee eee eee eee ee eee ee em oe em ee eee em ee meee em ee he oO em em oO ee ele ALL CONDITIONS REPEATING DATASET continued 0000 Not applicable 0101 Tuberculosis 0102 Poliomyelitis 0103 HIV AIDS 0199 Other infectious and parasitic diseases 0200 Neoplasms tumours cancers n e c 0201 Colon cancer 0202 Lung cancer 0203 Skin cancer 0204 Breast cancer 0205 Prostate cancer 0206 Brain cancer 0207 Hodgkin s disease 0208 Lymphoma 0209 Leukaemia 0210 Other malignant tumours 0299 Other neoplasms including benign tumours 0300 Diseases of the blood and blood forming organs and cer
308. tact 756 4 7 Other 685 4 3 Total 1717 10 7 Total 16 039 100 0 escesosooosooooooosoooooosooooo TABLE 4 2 CARED ACCOMMODATION COMPONENT Response rates eceocosososooooooooooooososooooooooooooooooosoooooooosooooooooooooooo No Fully responding establishments 542 91 6 Partly responding establishments 22 3 7 Non responding establishments 28 4 7 Total 592 100 0 ESTIMATION The estimation procedures developed for this survey ensure that survey estimates of the PROCEDURES PERSONS Australian population conform to independent benchmarks of the Australian population as at June 2003 at state by part of state or territory by age group by sex level For the calculation of person estimates one benchmark was used to weight both the household and cared accommodation components of the survey For the common questions the two components were combined to represent the whole population whereas for the differing questions each survey represented only its population eecosoocsooooooooooooooooooocoocsococooooooooooooooooooooooooooooooooooooocoooooooooooooooooooooooooooooooooooooo ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 21 DATA QUALITY continued eoevovoeveeveeeeeeeeeeeeeeeeee eee eee eee eee eee ee eee eee eee eee eee eee eee eee ee ee eeeee Benchmarks Weighting methodology ESTIMATION PROCEDURES HOUSEHOLDS Benchmarks Weighting methodology The benchmark used was all persons in Australia e
309. tain disorders involving the immune system n f d 0301 Anaemia 0302 Haemophilia 0303 Immunodeficiency disorder except AIDS 0399 Other diseases of blood and blood forming organs and certain disorders involving the immune system 0401 Disorders of the thyroid gland 0402 Diabetes 0403 Obesity 0404 High cholesterol 0499 Other endocrine nutritional and metabolic disorders 0500 Mental and behavioural disorders n f d 0511 Dementia 0512 Schizophrenia 0513 Depression mood affective disorders excluding postnatal depression 0519 Other psychoses 0520 Neurotic stress related and somatoform disorders n f d 0521 Phobic and anxiety disorders 0522 Nervous tension stress 0523 Obsessive compulsive disorder 0529 Other neurotic stress related and somatoform disorders 0530 Intellectual and developmental disorders n e c 0531 Mental retardation intellectual disability 0532 Autism and related disorders including Rett s syndrome and Asperger s syndrome eo eee eereeereceseeeeeeeeeeeeeeeeeeeeee ABS gt 0533 Developmental learning disorders 0539 Other developmental disorders 0591 Mental disorders due to alcohol and other psychoactive substance use 0592 Eating disorders 0593 Postnatal depression 0594 Adult personality and behavioural disorders 0595 Attention deficit disorder hyperactivity 0596 Speech impediment 0597 Other childhood adolescent onset mental and behavioural disorders 0599 Other mental and behavioural di
310. the ABS guarantee of confidentiality the two stage approach to data collection Three mail back paper forms were developed for the cared accommodation establishment component of the survey the Contact Information Form a the Selection Form a the Establishment Component Questionnaire referred to below as the personal questionnaire Coe eee ooo ooo H HEHEHE HEHEHE HEHEHE HEHEHE EEE E SESH HEHEHE HHH HEHEHE HEHEHE HH HHH HEHEHE HOHE OS ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 15 SURVEY DESIGN AND OPERATION continued eoevovoeeveeeeeeveeeeeeeee eee eee eee eee eee eo eee eee ee eee ee eee ee mee eO em oO em meee eee eC oO em oO oO ee ele Data collection for the cared accommodation component continued MEASURES TO MAXIMISE RESPONSE Non contacts Refusals CONTACT INFORMATION FORM The Contact Information Form CIF was sent with the initial letter to the administrators of selected cared accommodation establishments The purpose of the CIF was to confirm a a suitable contact officer a the type of health establishment the number of occupants in the establishment SELECTION FORM After receipt of the CIF the ABS dispatched the Selection Form and personal questionnaires to nominated contact officers The Selection Form provided instructions on how to list and select a random sample of residents from the establishment PERSONAL QUESTIONNAIRE Personal questionnaires
311. tinued 4213 Panel Beaters 4214 Vehicle Painters 4215 Vehicle Body Makers 4216 Vehicle Trimmers 4300 Electrical and Electronics Tradespersons nfd 4310 Electrical and Electronics Tradespersons nfd 4311 Electricians 4312 Refrigeration and Airconditioning Mechanics 4313 Electrical Distribution Tradespersons 4314 Electronic Instrument Tradespersons 4315 Electronic and Office Equipment Tradespersons 4316 Communications Tradespersons 4400 Construction Tradespersons nfd 4410 Structural Construction Tradespersons nfd 4411 Carpentry and Joinery Tradespersons 4412 Fibrous Plasterers 4413 Roof Slaters and Tilers 4414 Bricklayers 4415 Solid Plasterers 4416 Wall and Floor Tilers and Stonemasons 4420 Final Finishes Construction Tradespersons nfd 4421 Painters and Decorators 4422 Signwriters 4423 Floor Finishers 4430 Plumbers nfd 4431 Plumbers 4500 Food Tradespersons nfd 4510 Food Tradespersons nfd 4511 Meat Tradespersons 4512 Bakers and Pastrycooks 4513 Cooks 4519 Other Food Tradespersons 4600 Skilled Agricultural and Horticultural Workers nfd 4610 Skilled Agricultural Workers nfd 4611 Farm Overseers 4612 Shearers 4613 Wool Hide and Skin Classers 4614 Animal Trainers 4620 Horticultural Tradespersons nfd 4621 Nurserypersons 4622 Greenkeepers 4623 Gardeners 4900 Other Tradespersons and Related Workers nfd 4910 Printing Tradespersons nfd 4911 Graphic PrePress Tradespersons 4912 Printing Machinists and Small O
312. tion CoCo ooo SEE HOES EEE EHEH HEHE HEHEHE HEHEHE HEHEHE HHH HEHEHE HEH HEHEHE HHH HHH HHH HHH HHH HEHEHE HEHEHE EEE OOOO OE 2 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 COMPARISON eeneaaneaan Name of survey Populations of interest Disability criteria Areas of specific restriction eeeeveoanne INTRODUCTION continued eovovoeveveeveeeeeeeeeeee eee eee eee eee eee eo eee eee ee eee eee eee eee ee eee eee ee eee eee eeee OF ABS DISABILITY SURVEYS eeeeeeeeeeeeeeew eee weeeeweeewewwewwewewoeweenweweweweewewewowwwweseeweewenens 1981 1988 Survey of Handicapped Persons Survey of Disabled and Aged Persons Persons with a disability Persons with a specific restriction by severity level Older persons Co resident principal carers Persons with a handicap specific restriction in self care mobility and or communication activity or in schooling or employment by severity level Disability criteria Loss of sight not corrected by glasses Anything wrong with hearing speech Any condition that makes them slow at learning or understanding Has blackouts fits or loses conciousness Needs to be helped or supervised in doing things because of a mental disability Incomplete use of arms or fingers Incomplete use of legs or feet Treatment for nerves or an emotional condition Any condition that restricts them in physical activities or doing ph
313. tiple response POPULATION All persons aged 5 or over with a disability or aged 60 years or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 01 Visited relatives or friends 02 Restaurant or club 03 Church activities 04 Voluntary activity 05 Performing arts group activities 06 Art or craft group activity 07 Other special interest group activities 08 None of the above 09 Does not leave home 10 Not applicable LABEL Whether can go out as often as would like POPULATION All persons aged 5 or over with a disability or aged 60 years or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Can go out as often as would like 2 Cannot go out as often as would like 3 Does not leave home at all COMMUNITY PARTICIPATION LABEL Activities performed using the Internet in the last 12 months multiple response COMPUTER USE POPULATION All persons aged 15 or over with a disability or aged 60 years or over living in households who used the Internet in the last 12 months excludes persons with a non restricting disfigurement or deformity only CATEGORIES 1 General browsing Use email access chat sites Buying selling of shares for private purposes Purchasing ordering of goods or services for private purposes Accessing Government services for private purposes Other NWN KRW N CoCo ooo eo HEH HS
314. tory system heart n f d 0910 Heart disease 0911 Rheumatic fever chorea with heart disease 0912 Rheumatic heart disease 0913 Angina 0914 Myocardial infarction heart attack 0919 Other heart diseases 0920 Diseases of the circulatory system n e c 0921 Rheumatic fever chorea without heart disease 0922 Hypertension high blood pressure 0923 Stroke 0924 Arterial or aortic aneurysm 0925 Hypotension low blood pressure 0929 Other diseases of the circulatory system 1001 Influenza and pneumonia 1002 Bronchitis bronchiolitis 1003 Respiratory allergies excluding allergic asthma 1004 Emphysema 1005 Asthma 1006 Asbestosis CoCo ooo ooo EHO OEE ESE HEHEHE EEE EEE HEHEHE SESH HEH HEHEHE HEHEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HHH HEHEHE HEHE OHHH E OOOO OE 36 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeeveeeeeeeeeeeeee eee eee eee eee eee eee eee ee eee moe em ee eee eee em ee Oe oC em eo em eC oO em em eo ee ele ALL CONDITIONS REPEATING DATASET continued 1099 Other diseases of the respiratory system 1101 Stomach duodenal ulcer 1102 Abdominal hernia except congenital 1103 Enteritis and colitis 1104 Other diseases of the intestine 1105 Diseases of the peritoneum 1106 Diseases of the liver 1199 Other diseases of the digestive system 1200 Diseases of the skin and subcutaneous tissue n f d 1201 Skin and subcutaneous tissue infectio
315. ty to look after self at home when other household member s are away for a few hours POPULATION All persons with a profound or severe core activity limitation living in households with others CATEGORIES 0 Not applicable 1 Could manage alone for a few hours without difficulty 2 Could manage alone for a few hours with difficulty 3 Could not manage alone for a few hours LABEL Ability to look after self at home when other household member s are away for less than an hour POPULATION All persons with a profound or severe core activity limitation living in households with others Ceo ooo eo ooo HoH HOHE OHHH HOHE HOE HEHEHE HOES H HEHEHE HEHE HEHEHE HEHEHE HOE EEE EOEE ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 115 APPENDIX DATA ITEM LIST continued eovovoevveeveeeeeeeeeeee eee eee eee eee eee eee eee eee eee eee eee eee eee ee eee eee eeeeeeeee DISABILITY IDENTIFICATION CATEGORIES SUPERVISION continued 0 Not applicable 1 Could manage alone for less than an hour without difficulty 2 Could manage alone for less than an hour with difficulty 3 Could not manage alone for less than an hour LABEL Ability to look after self at home when other household member s are away for one day POPULATION All persons with a profound or severe core activity limitation living in households with others CATEGORIES 0 Not applicable 1 Could manage alone for one day without difficulty 2 Could manage alone for one
316. udes cases where neither resident parent is natural LABEL Sex of principal carer POPULATION All principal carers living in households as identified by a co resident with a disability CATEGORIES 0 Not applicable 1 Male 2 Female 9 Don t know lt includes cases where neither resident parent is natural LABEL Sex of usual resident main recipient of care POPULATION All primary carers living in households whose main recipient of care is a co resident CATEGORIES 0 Not applicable 1 Male 2 Female 9 Don t know lt includes cases where neither resident parent is natural LABEL Whether main recipient of care able to care for self at home if left on own for a few days POPULATION All primary carers living in households whose main recipient of care is a co resident with a profound or severe core activity limitation CATEGORIES 0 Not applicable 1 Could manage on own for a few days without difficulty 2 Could manage on own for a few days with difficulty 3 Could not manage on own for a few days LABEL Whether main recipient of care able to care for self at home if left on own for a few hours POPULATION All primary carers living in households whose main recipient of care is a co resident with a profound or severe core activity limitation CATEGORIES 0 Not applicable 1 Could manage alone for a few hours without difficulty 2 Could manage alone for a few hours with difficulty 3 Could not mange alone for a few hours CoCo eee eee eae HEH
317. ulty learning or understanding things 2 Does not have difficulty learning or understanding things LABEL Whether main recipient of care has had head injury stroke or other brain damage multiple response POPULATION All primary carers living in households whose main recipient of care is a co resident CATEGORIES 1 Has not had head injury stroke or any other brain damage Had head injury with resulting limitation or restriction Had stroke with resulting limitation or restriction Had other brain damage with resulting limitation or restriction Had head injury but no resulting limitation or restriction NWN KRW N Had stroke but no resulting limitation or restriction 7 Had other brain damage but no resulting limitation or restriction LABEL Whether main recipient of care has limited use of arms or fingers POPULATION All primary carers living in households whose main recipient of care is a co resident CATEGORIES 0 Not applicable 1 Has limited use of arms or fingers 2 Has full use of arms and fingers LABEL Whether main recipient of care has limited use of feet or legs POPULATION All primary carers living in households whose main recipient of care is a co resident CATEGORIES 0 Not applicable 1 Has limited use of feet or legs 2 Has full use of feet and legs LABEL Whether main recipient of care has loss of sight POPULATION All primary carers living in households whose main recipient of care is a co resident CATEGORIES 0 Not
318. upport caring relationships time spent caring and reasons for being a carer and computer and Internet use Available on the ABS web site is a set of Excel spreadsheets for each State and the Australian Capital Territory that contain versions of statistical tables featured in the Summary of Findings Australia publication Summary of Findings publication tables 10 each New South Wales Victoria Queensland South Australia Western Australia Tasmania Australian Capital Territory Also available are separate Excel spreadsheets for Tables 1 and 2 summary data for the disability topic Table 21 ageing and Table 27 carers of the Summary of Findings Australia publication Each of these spreadsheets contain versions of one of these publication tables for each state and the Australian Capital Territory Selected tables for all States excl NT 10 each Table 1 All persons Disability status and whether has a long term health condition by age Table 2 All persons Disability status by sex and age Table 21 Persons aged 60 years and over Activities for which assistance is needed by age Table 27 All persons living in households Carer status by age and sex COC Ceo ooo ee ooo Ho HE OHHH HEHEHE HHH HOHE HEHEHE HOES HOHE H HEHEHE HEE HEE O EEE EEE EES ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 23 SURVEY OUTPUT AND DISSEMINATION continued eovovoeeveeveeeeeeeeeeee eee eee eee eee eee eee eee
319. usehold tasks POPULATION All carers of in scope co residents living in households CATEGORIES 0 Not applicable 1 Provides assist household tasks 2 Doesn t provide assist household tasks LABEL Whether carer provides assistance with meal preparation tasks POPULATION All carers of in scope co residents living in households CATEGORIES 0 Not applicable 1 Provides assistance with meal preparation tasks 2 Does not provide assistance with meal preparation tasks LABEL Whether carer provides assistance with mobility tasks POPULATION All carers of in scope co residents living in households CATEGORIES 0 Not applicable 1 Provides assist mobility tasks 2 Doesn t provide assist mobility tasks LABEL Whether carer provides assistance with private transport tasks POPULATION All carers of in scope co residents living in households CATEGORIES 0 Not applicable 1 Provides assistance with private transport tasks 2 Does not provide assistance with private transport tasks LABEL Whether carer provides assistance with reading and writing tasks POPULATION All carers of in scope co residents living in households CATEGORIES 0 Not applicable 1 Provides assist read writing tasks 2 Doesn t provide assist read writing tasks LABEL Whether carer provides assistance with self care tasks POPULATION All carers of in scope co residents living in households CATEGORIES 0 Not applicable 1 Provides assistance with self care tasks 2 Does not provide
320. ustralian Capital Territory CoCo ooo oO OEE EHO HEHEHE EEE EEE EEE HEHEHE HEHEHE HEHEHE EEE HHH HHH ESE HSE HEHEHE HHH HHH HHH HHH HHH HEHEHE HEHEHE HEHEHE EEE OOOO OS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoeeveveveeeveeeeeeeee eee eee eee eee eee eee eee ee eee ee meee em em em ee em eo em ee meee eC ee OC oO ee ee BACKGROUND IDENTIFIERS LABEL Person type POPULATION All persons CATEGORIES 1 Usual resident of private dwelling 2 Usual resident of health establishment 3 Boarding school student 4 Usual resident of other special dwelling LABEL Random family identifier family level POPULATION All families living in households CATEGORIES Continuous LABEL Random household identifier POPULATION All households CATEGORIES Continuous LABEL Random identifier person POPULATION All persons CATEGORIES Continuous LABEL Random income unit identifier income unit level POPULATION All income units in households CATEGORIES Continuous LABEL Random person and broad activity identifier POPULATION All broad areas of activity where assistance is required or difficulty experienced excludes persons with a non restricting disfigurement or deformity only CATEGORIES Continuous LABEL Record level identifier for SuperCROSS All conditions level POPULATION All persons with one or more long term condition s CATEGORIES Identifi
321. voeeveeeeeveeeeeeeeee eee ee eee eee ee eee eee eee eee eee eee eee eee eee eee ee eee eee eeee Coverage continued SAMPLE DESIGN AND SELECTION PROCEDURES Private dwelling selection Occupants of cared accommodation establishments in the scope of the survey were included if they had been or were expected to be a usual resident of an establishment for three months or more Persons who did not meet the three months residence criterion such as patients in short stay emergency care hospitals were excluded from the cared accommodation component Multistage sampling techniques were used to select the sample for the survey The actual sample included 14 019 private dwellings 303 non private dwelling units a 564 cared accommodation establishments The final number of responding persons was 36 241 for the household component and 5 145 for the cared accommodation component The area based selection of the private dwelling sample ensured that all sections of the population living within the geographic scope of the survey were represented Each State and Territory was divided into geographically contiguous areas called strata Strata are formed by initially dividing Australia into regions within State or Territory boundaries which basically correspond to the Statistical Division or Subdivision levels of the Australian Standard Geographical Classification These regions are then divided into Local Government Areas LGAs in State Cap
322. wW N Not applicable LABEL Whether uses high technology aids to assist with reading or writing POPULATION All persons with a disability who use communications aid s excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses high tech aid to assist with reading or writing 2 Does not use high tech aid to assist with reading or writing LABEL Whether uses high technology aids to assist with speech POPULATION All persons with a disability who use communications aid s excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses high tech speech aid 2 Does not use high tech speech aid LABEL Whether uses low technology aids to assist with reading and writing POPULATION All persons with a disability who use communications aid s excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses low tech aid to assist with reading or writing 2 Does not use low tech aid to assist with reading or writing LABEL Whether uses low technology aids to assist with speech POPULATION All persons with a disability who use communications aid s excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable 1 Uses low tech speech aid 2 Does not use low tech speech aid CoCo Coo H HEHE HEHEHE EHH HHH HHH HHH HEHEHE HEHEHE HHH HHH HHH HHH HHH HEHEHE HEHEHE EEE OOOO OS 3
323. which information was collected Transport is a single task activity referring to going to places away from the usual place of residence Need for assistance and difficulty are defined for this activity as the need to be driven and difficulty going to places without help or supervision Unemployed persons are those aged 15 years and over who were not employed during the reference week and had actively looked for full time or part time work at any time in the four weeks up to the end of the reference week and were available for work in the reference week The unemployment rate for any group is the number of unemployed persons in that group expressed as a percentage of the labour force i e employed persons plus unemployed persons in the same group CoCo ooo ooo EHO EEE SEDO HEHEHE HEHEHE EEE HEHEHE HEHEHE HEHEHE HEHEHE HHH HEHE HHH HHH HHH HHH HHH HHH HEHEHE SEE HEHEHE HEHE OEE OES ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 203 2000001459133 RRP 10 00 FOR MORE INFORMATION INTERNET LIBRARY CPI INFOLINE DIAL A STATISTIC www abs gov au_ the ABS web site is the best place to start for access to summary data from our latest publications information about the ABS advice about upcoming releases our catalogue and Australia Now a statistical profile A range of ABS publications is available from public and tertiary libraries Australia wide Contact your nearest libra
324. who need assistance with property maintenance because of disability or old age CATEGORIES 0 None 1 One 2 Two 9 Not applicable LABEL Number of informal sources of property maintenance assistance POPULATION All persons aged 15 or over with a disability or aged 60 or over living in households who need assistance with property maintenance because of disability or old age CATEGORIES 0 None 1 One 2 Two 3 More than two 9 Not applicable LABEL Type of property maintenance assistance received POPULATION All persons aged 15 or over with a disability or aged 60 or over living in households who receive assistance with property maintenance because of disability or old age CATEGORIES 0 Not applicable 1 None 2 Informal only 3 Formal only 4 Informal and formal CoCo oo ooo OOOOH EEE SEDO HEHEHE HEHEHE EEE ESE S HEHEHE HEH HEHEHE HEHEHE HHH HHH HEHEHE HEHEHE HHH HHH HHH HHH HEHEHE HES HEHEHE HOHE OOOO OS ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 67 APPENDIX DATA ITEM LIST continued eovoveeveeveeeeeeeeeeee ee eee eee eee eee eee eee eee eee eee ee eee eee mee eee mee ee em em oO ee ele ASSISTANCE RECEIPT OF LABEL Extent to which need for self care assistance received met ASSISTANCE WITH SELF CARE POPULATION All persons with a disability living in households who received assistance with self care CATEGORIES 0 Not applicable 1 Fully 2 Partly 3 Notatall LABEL How became aware of m
325. xcluding persons living in sparsely settled areas of the Northern Territory Conceptually as persons in sparsely settled areas did not have a chance of selection in SDAC they should be removed from the population benchmarks However this is difficult to do accurately and so the benchmarks used include persons resident in sparsely settled areas except in the Northern Territory The effect on survey estimates from this is considered to be negligible as the relative proportion of the States population resident in sparse areas is very small Expansion factors or weights were added to each respondent s record to enable the data provided by each person to be expanded to provide estimates relating to the whole population within the scope of the survey The first step of the weighting procedure was to assign an initial person weight to each fully responding person The initial person weight was calculated as the inverse probability of the person s selection in the sample and takes into account which component of the survey the respondent was selected in i e the household component or the cared accommodation component The next step in the weighting procedure was calibrating the initial person weights to a set of person level population benchmarks The calibration to benchmarks ensures that the sample survey estimates agree with independent measures of the population at specific levels of disaggregation In addition the calibration reduces the impa
326. ype of long term condition reported CoCo oo eo eo HEHEHEH HEHEHE HEHE HHH HEHEHE HEHEHE HHH HHH HHH HHH HOES HEHEHE HHH HEHEHE OEE OOS 110 ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 APPENDIX DATA ITEM LIST continued eovovoevveeveeeveeeeeeeee eee eee eee eee eee eee eee oe eee eo eee em eee meee mee eee em ee em ho em em oO ee ele DISABILITY IDENTIFICATION LABEL Main condition causing difficulty gripping or holding things IMPAIRMENTS AND POPULATION All persons who have difficulty gripping or holding things LIMITATIONS continued CATEGORIES See Type of long term condition reported LABEL Main condition causing difficulty learning or understanding things POPULATION All persons who have learning difficulties CATEGORIES See Type of long term condition reported LABEL Main condition causing disfigurement or deformity POPULATION All persons who have a disfigurement or deformity CATEGORIES See Type of long term condition reported LABEL Main condition causing limited use of arms and or fingers POPULATION All persons who have incomplete use of their arms or fingers CATEGORIES See Type of long term condition reported LABEL Main condition causing limited use of legs or feet POPULATION All persons who have incomplete use of their feet or legs CATEGORIES See Type of long term condition reported LABEL Main condition causing loss of hearing POPULATION All persons with a hearin
327. ys needs to be driven 2 Sometimes needs to be driven 3 Does not need to be driven but difficulty travelling without assistance 4 No difficulty travelling without assistance 5 Need to be driven or difficulty not related to disability or age 6 Does not leave home TRANSPORT PUBLIC LABEL Ability to use public transport POPULATION All persons aged 5 or over with a disability or aged 60 years or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 0 Not applicable Could use all forms of public transport 2 Could use some but not all forms 3 Could not use any form 4 Does not leave home OS ABS DISABILITY AGEING AND CARERS AUSTRALIA USER GUIDE 4431 0 55 001 2003 185 APPENDIX DATA ITEM LIST continued eovovoeveeveeeeeeeeeeee eee eee eee eee eee eo eee eee eee eee eee ee eee ee eee eee ee eeeeeeeeee TRANSPORT PUBLIC continued LABEL Reasons for inability to use some or all forms of public transport multiple response POPULATION All persons aged 5 or over with a disability or aged 60 years or over living in households excludes persons with a non restricting disfigurement or deformity only CATEGORIES 01 Getting to stops stations 02 Access difficulties steps 03 Access difficulties doors 04 Access difficulties other 05 Inadequate access to toilets 06 Crowds lack of space 07 Poor ventilation 08 Lack of seating difficulty standing 09 Pain or discomf
328. ysical work Any disfigurement or deformity caused by an ailment or injury that they have had from birth Having long term treatment or taking any medicine or tablets for a condition or ailment that still restricts them Modified wording Any loss of hearing replaced anything wrong with hearing 1993 Survey of Disability Ageing and Carers Persons with a disability Persons with a specific restriction by severity level Older persons Principal carers Three new criteria Difficulty gripping or holding small objects Head injury stroke or other brain damage Any other restricting condition Modified wording Restriction in physical activity or phy sical work Disfigurement or deformity without qualification Slow at learning or understanding without condition Needs to be helped or supervised in doing things because of any mental illness 1998 2003 Survey of Disability Ageing and Carers Persons with a disability Persons with a specific restriction by severity level Older persons Providers of care Primary carers All informal carers Two new criteria Restricted in everyday activities by Chronic or recurrent pain Shortness of breath or breathing difficulties Changes Hearing loss a disability criterion if there was difficulty communicating or use of aids Nervous condition restriction in every day activities rather than treatment for condition Treatment of long t

4431.0.55.001 Disability, Ageing and Carers, Australia: User Guide

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